#1363 Caregiver Burnout Series: Part 3
Erika Forsyth provide strategies and encouragement for caregivers to manage nighttime sleep disturbances and burnout.
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Scott Benner 0:00
Here we are back together again, friends for another episode of The Juicebox podcast.
Erica is back for part three of the caregiver burnout series, and don't forget, if you'd like to hire Erica, you can learn more about her at Erica forsyth.com. Nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. Don't forget to save 40% off of your entire order at cozy earth.com. All you have to do is use the offer code juice box at checkout. That's Juicebox at checkout to save 40% at cozy earth.com if you are the caregiver of someone with type one diabetes or have type one yourself, please go to T 1d exchange.org/juice box and complete the survey. This should take you about 10 minutes, and will really help type one diabetes research. You can help right from your house at T 1d exchange.org/juicebox, I know that Facebook has a bad reputation, but please give the private Facebook group for the Juicebox podcast, a healthy once over Juicebox podcast, type one diabetes.
This episode of The Juicebox podcast is sponsored by ag one, I start every day with a delicious drink of ag one, you could as well drink, AG, one.com/juice box. Today's episode of The Juicebox podcast is sponsored by Omnipod and the Omnipod five learn more and get started today at omnipod.com/juice box and that Omnipod iPhone app you've been waiting for, it's available right now in the Apple App Store, Erica, we are going to jump into episode three, the third part of our caregiver burnout series. Today we're going to talk about what
Erika Forsyth, MFT, LMFT 2:10
that's right today, we are going to talk about the third burden or barrier to why it's challenging to take care of yourself as a caregiver or find time to care for yourself, and that is managing type one and the experience of nighttime sleep disturbances. Again, this is the third most common burden or issue that parents have identified in all of the research around caregiver burden for children with type one,
Scott Benner 2:41
when it's time, can I read the quote from the research? Yes, I'm gonna
Erika Forsyth, MFT, LMFT 2:45
pass it over. It's time. Read the quote. This is from the parent from the from the research, getting,
Scott Benner 2:51
getting the character. Let's see, I'm sad and tired. Okay, I got it. Yes. I feel unhappy when I think about not sleeping, feeling anxious and feeling tired and moody all the time. So it's rather contradictory, because I'm obviously satisfied that things are well and that my child feels fine at the same time, I may not feel satisfied because I do not feel well, really. Okay. So what this person is saying is, right, like I've got, I got my ducks in a row here. Kids doing good, but I'm up at three in the morning Bolus in a 140 and I feel like I'm gonna drop dead because I'm unbroken sleep might be the worst thing that could happen to you. I used to think, I guess, in the beginning, when Arden was first diagnosed, and I realized, Oh, I'm awake at two in the morning for 45 minutes, and then I'm up again at 430 for 15 minutes. I actually, in the beginning, I thought, I can do this. It's okay. I guess this is what it is. And then as the years went on, I mean, there were times like I one time I woke my wife up and I said, I need you to watch Arden's blood sugar. I feel like I'm gonna have a heart attack. Like I like I was yes, I was buzzing, and my heart was like thumping out of my chest. I was exhausted, but I had so much adrenaline, it didn't matter I was awake. And I'm not that guy. I am head on the pillow. Go to sleep like I don't. I do not struggle to sleep. Prior to ardence, diabetes, I would not have been a person who I thought could have just woken up at two in the morning and stayed awake before stayed awake for 45 minutes or an hour or something like that. I just wasn't that person. But then I was, and I actually tricked myself for a long time into thinking, Well, I'm gonna be okay. This will be all right. This is, I guess, this is how I live, and I'll be okay. And then one day, I thought, I'm gonna die if I don't, if I don't fix this, you know, yes, and then CGM and algorithms came, and it got easier, but, but tell me more about it, please.
Erika Forsyth, MFT, LMFT 4:46
Yes. I mean that that tension between you know, you need to sleep, but just as important, you wanting to make sure your child stays alive and or doesn't have a. Have a low or stay high for hours. And so this is, obviously, this, the state of sleep deprivation is really common in the beginning of diagnosis. And as we've talked about, you know, the seasons of change, particularly from, you know, changing devices or growth hormones, etc, etc. So this, you know, the fear, this is probably one of the greatest fears among parents, at least according to the research. But I would also probably say, from what we hear on the podcast and in in my office, you know, this is the greatest feared outcome. Is your child having a hypoglycemic reaction or seizure. And so then that fear is driving. You're just wanting to monitor whether you're finger pricking every half an hour to an hour, or watching the CGM. And so even, as you just said, parents know and experience you have short tempers over long periods of time of not sleeping, you are not motivated to exercise. You have difficulty making decisions. You have you might have some impairment in your work performance or functioning. You might not make the dietary choices that you are striving for. You have decreased patients and irritability. So you're then stuck in between this tension of, I so desperately want my child to be safe at night, and I so desperately need to sleep, and I and I know that I'm not functioning well, yeah, but yet, as the parent says, but then you feel well because your child's doing okay at night, right? You're
Scott Benner 6:37
proud and exhausted at the same time. And yes, it's funny, because you said hypoglycemia is what people are worried about in the research, I was worried about both. Like, that's the other thing. Like, I'm freaked out when somebody says, Oh, you know, I needed to sleep through the night, so we just put their blood sugar at, you know, 180 and left it there all night, or 200 or wherever you put it. I'm like, Oh, God. Like, don't do that. Don't do the other thing either. Like, that's the to me, that's the that's the push and the pull and the anxiety of the whole thing, which is, like, you can't be low, that's dangerous right now, and I don't want you to be high, because that's dangerous later. And, you know, I'm exhausted, but in my mind, you know, if I go to sleep now and don't do something about this, either you're going to have a seizure or your eyes are going to explode when you're explode when you're 35 and like, and that's how it feels like it just, it feels like, no matter, like I have to do the right thing to avoid both sides of this, you know, Storm and, you know, like in the middle feels so narrow, like the line you're trying to walk, it feels, it feels like a tightrope, right? And you know, just, it's not easy, and then you're exhausted. And everything you just said about what comes with exhaustion, I know I've lived through all that, just, just every, everything you just said happened to me, and it's, I don't think it's a thing you can avoid, all those, all those implications,
Erika Forsyth, MFT, LMFT 7:57
yes, yeah. So this is, it is challenging. And again, can be normal during certain, you know, ages and stages of your child's diagnosis. But what we're wanting to encourage you to think about, you know, if this is now becoming years and years and years, right, of of not being able to sleep, and so pausing and asking yourself, you know, noticing the why, what is going on. And so as we move into kind of the tool, you know, I say take breaks, and we're going to get into that, like, what does that actually mean? But I would encourage you to to start asking yourself, what is the risk and the benefit of studying the numbers? What is, what is the underlying reason that you cannot sleep? And this might feel a little bit similar to episode two of kind of pausing and listening to what is driving the behavior? Is it fear? Yes, it's probably fear of having, if your child up being too high for too long or having a low but what is underneath that? Do you need more education? Do you need more knowledge? Do you need more time? Do you need more trust with the alarms? And we'll get into that a little bit more. So what is, is it kind of general anxiety? Are you feeling anxious about everything, and that's keeping you up, and then you're watching the numbers, so just trying to understand what is is it might be grief also come, you know, in the beginning or at any point, what is it that is driving you to continue to monitor the lows beyond the obvious of what we've already said, Right?
Scott Benner 9:41
Guilt, maybe my daughter is 20 years old. I can't even believe it. She was diagnosed with type one diabetes when she was two, and she put her first insulin pump on when she was four. That insulin pump was an Omnipod, and it's been an Omnipod every day since then. That's. 16 straight years of wearing Omnipod, it's been a friend to us, and I believe it could be a friend to you. Omnipod.com/juicebox, whether you get the Omnipod dash or the automation that's available with the Omnipod five, you are going to enjoy tubeless insulin pumping. You're going to be able to jump into a shower or a pool or a bathtub without taking off your pump. That's right, you will not have to disconnect to bathe with an Omnipod. You also won't have to disconnect to play a sport or to do anything where a regular tube pump has to come off. Arden has been wearing an Omnipod for 16 years. She knows other people that wear different pumps, and she has never once asked the question, should I be trying a different pump? Never once omnipod.com/juicebox, get a pump that you'll be happy with forever. The holiday season is approaching quickly, and I'd like to take something off of your plate. If you're looking for something for a partner, a parent or a friend, why not give them the gift of health. Give them ag one. And right now, ag one is running a special Black Friday offer for all of November. Ag one is a daily health drink packed with nutrition to help alleviate bloating, support sustained energy and whole body health. It's the time of year where we put a lot of different stuff in our bellies, but the one thing we should put in there, my opinion, is ag one. So this holiday season, try ag one for yourself, or even gift it to someone special. It's the perfect time to focus on supporting your body with an easy and surprisingly delicious daily health drink. And that's why I've been partnering with ag one for so long. Every week of November, ag one will be running a special Black Friday offer for a free gift with your first subscription, in addition to the welcome kit and vitamin d3, k2, so make sure to check out drink a G one.com/juice box to see what gift you can get this week that's drink a g1 com slash juice box to start your holiday season off on a healthier note, while supplies last, yes, right? That could get you it's my fault. This comes from my side of the family, that kind of feeling, I think, also either being a single parent or having a spouse who you guys have decided that, well, they work during the day, so I'm the one that does this. Or, you know, I have to be honest, I hear a lot of people tell me, you know, I guess it, I guess it, it could be either side of it. But I hear a lot of women tell me, like, Oh, my husband says he's not getting he's not good at hearing things. So I'm like, Oh yeah, me either. But let's go. Like, so sometimes, I think sometimes in a two spouse situation, you'll find one that just goes, Oh, I'm not good at this. And then, you know, it gets laid on you, or you're the one that does the management, so it feels like you're the one that needs to be doing it. And, you know, people can kind of use that as either like a legitimate reason or a cop out for not being involved overnight, yeah, but at the same time, I don't know, I think you could set to see to me, it seems like a learning thing, like very much like we talked about before, like, if you if you had good tools, not just, not just, you know, CGM and pumps, which you know, would obviously make it easier, I think. But just like good knowledge of how insulin works and you know how to head things off before they become giant, you know, hyperglycemia issues or, you know, or hypo I think those tools will help you. And then maybe you start with a wider range that you're okay with overnight, and then learn how to through actions that happen prior to sleeping, you know, settings and bolusing strategies, etc, you know, learn to, like, tighten that tolerance as you go. I wish I could go back into it that way. I didn't have any of that information, but, but I can see where it would have saved me to do those things.
Erika Forsyth, MFT, LMFT 13:53
Yeah, yeah. So, so, you know that's trusting. You know, can you trust? If you are using CGM, can you trust the alarms? As you were saying, right? Like, and if you can't, what is underneath that? Is that general anxiety? Is it not trusting? Is it too tight? Is it too wide? You know, what is your range?
Scott Benner 14:16
Also, the physical alarm? Like, maybe you just, maybe some people just don't hear it. Like, I know that I just kind of was sarcastic about it because, but sometimes you just don't hear it. I alarm, fatigue is very real. There's a ton of research about it. I don't hear the damn thing, like, half the time, like, you know, I mean, like, I'll hear the I'll hear the den, den, like, the real low one, yeah, but I don't, I don't hear the other stuff. And we actually just realized recently that my wife's phone her high alarm, like it's set where ours is, but she's not really that. My wife's not involved in like, moment to moment decisions about insulin. So I said to her, like, let's raise that alarm up so that if Arden goes over 120 your phone's not beeping every few minutes. I said, because I think. It's, I think we're just hearing it now and not reacting to it anymore. Like, let's put it at a place where, if it goes off, it wakes us up, because we're not accustomed to hearing it. And even though we're sleeping through it, I still think it's causing poor sleep for us as well. Yes, yeah,
Erika Forsyth, MFT, LMFT 15:13
yeah, alarm, alarm, fatigue, not hearing it. I mean, I often, I think I've shared this before. I don't necessarily hear my alarms, that my husband will, but I will feel the vibration. My pump will vibrate. And so I often will feel that wherever it is, you know, in my bed. But there are certainly more, you know, sugar, all the different you know, sugar pixel glow. Glucose
Scott Benner 15:33
isn't Thank you. Glucose gloss is audible. It's visual, but I find it okay. So you want to go over these real quick, yeah, yeah. Let's do it. Sugar pixel has a puck. Actually, I have it right here. That's crazy, a puck that plugs into the sugar pixel and then it vibrates. You can kind of put it under your pillow, right? And hopefully that'll give you some vibration there. I like glucose because it I set ranges for colors, and then if I should wake up in the middle of the night and I look up and there's a soft green glow in the corner. I don't have to open my phone and look at it, because I think, okay. Green, good, back to sleep. Red, Oh, I gotta wake up and see. And it helps you to stay it helps me, at least, to stay aligned with what I'm trying to accomplish without it yanking me hard out of sleep. Now, you know, yes, that is cool. Yeah, it definitely helps with that. Also, if you get too low, if the blood sugar gets too low, it flashes red. Now, visually, I've never been woken by that, because I have it on a it's as dim as I can get it. I use it for just like it makes my wall glow a color off in a corner, and that's how I use it. But the sugar pixel itself that has alarms, and you could set it up to vibrate for yourself. It gets a great tool. I have a sugar pixel next to my bed. Arden doesn't have it because she's at college and she couldn't get it onto the to the Wi Fi like because her school's Wi Fi was blocking it. But I also know there are people who can get around that. Yeah, it's a weird monster. It's so the data so valuable, and the alarms are so valuable, until one day you just like, I don't hear this anymore. And that's, that's the end now, yes, what about the other side of it? If my daughter's low, my wife's cortisol shoots through the roof, and she can't go back to sleep. Like it hits her. She gets hit with adrenaline, even if I'm like, she's fine. She's like, it don't matter. I'm up. So does that happen to people too? I guess, right,
Erika Forsyth, MFT, LMFT 17:31
yes. And, and I think with your different ages of your child, we have, yes, thank goodness we have all this technology if you're if you're able to use it and the the alarms, but also your body, for most, not actually, I don't know what the stats are. I wonder if you do of how many people can wake up from their lows. Because prior to my wearing a CGM, my body would wake itself up from a low now it doesn't, because now, now I'm reliant on my alarms if I go low, so I will not wake up and feel low prior to my alarm going off, but before I had alarms, my body would wake itself up. My brother would never wake up from a low and consequently had some more morning seizures. Okay, so I wonder, I don't know. I've never actually thought through this, but I wonder if our bodies have become more dependent on the alarms, as opposed to waking themselves up, Bolus, I don't know,
Scott Benner 18:27
you can also get, like, hypo, hypoglycemic unawareness and that, well, yes, yeah, which can come from that it described to me when it when your body used to wake you up, what did it feel like? You remember the visceral feeling?
Erika Forsyth, MFT, LMFT 18:40
Yo, yes. Like, it was pretty classic, you know, shaky, racing heart. Those would be the the first I would wake up and feel shaky, wake you
Scott Benner 18:51
up, like, physically pop you open. Or, like, you know, when you're dreaming, and you realize in your dream, you like, I gotta pay, and then you wake up because you gotta pay. Like, that kind of, how does it work? How did it work?
Erika Forsyth, MFT, LMFT 19:01
The shaking wouldn't wake me up, but not like I was seizing, but it would. I would wake up feeling that way, feeling shaky, and would just roll over and pop some glucose in my mouth.
Scott Benner 19:13
Did you stay awake to see if it worked? No, I
Erika Forsyth, MFT, LMFT 19:16
would take three and go back to bed and probably wouldn't even finger prick. Yeah, that was back in the day. Take three and you're good, yeah,
Scott Benner 19:23
three should be it. Boom. Done that. Did you wake up in the morning super high, or was it usually okay? Oh yeah, I'll fix this by making my blood sugar 350 but, but, you know, at a certain age, right in college, maybe, like, just, it's great that you did it honestly now, but you say now, as an adult, your husband's the one that wakes
Erika Forsyth, MFT, LMFT 19:46
you. He'll hear the alarms and think, you know, due to technology, I don't have as many nighttime alarm or lows, right, because the pump will shut off, but if I do have a low I would say. Most often I'll hear or feel the vibrate or the alarm and wake up and then feel low. How often
Scott Benner 20:06
does that happen to you in a month,
Erika Forsyth, MFT, LMFT 20:08
a nighttime low? Maybe twice, okay? And that only happens if I've eaten late and have I have a lot of insulin on board before going to bed, and so that just means I over bullish. But if I if everything is okay, and I naturally go low, my pump will shut off, and I'll never
Scott Benner 20:26
you'll wake up in the morning and say, Oh, I was 65 for an hour and they came back. I was, yeah, yeah, gotcha. That's interesting. Okay, so I'm sorry, back to, back to,
Erika Forsyth, MFT, LMFT 20:35
yeah, it's okay. So I mean, yeah, nighttime. What is driving that fear right beyond the normal? Is it fear? Anxiety? Is it guilt? Is it shame? You know, we've talked about, what, what gremlins? What thoughts are you having as you're watching the arrows? Are you on that roller coaster of fear, of shame, anxiety, as you watch your child's numbers rise and fall. So what do you do? I know a lot of people, particularly in the beginning, and I understand and get it and validate it, but you might spend all day watching the numbers, staring at it, yeah. And then, even if you're in you know range, and you feel like you're in a comfortable space, it's hard. You can't tell your mind to say, oh, it's night time. I'm going to stop looking at the numbers, right? It's hard to make that switch. So if you're Reliant and dependent and accustomed to staring at the numbers for most of the day, it's hard to just turn that off at night. And so when one tool to take an actual break during the day, for example, not looking at at your and this is, again, mostly we're talking to people who are, you know, doing follow or watching your child's number on a CGM app, not look at it for starting with five minutes, if you're if you're looking at it, or if it's constantly up in your screen again. If you are able to function and you feel comfortable and everything is flowing, that's great. But if you are finding that you are riddled with fear and shame and guilt and need to feel like you're fixated on the number and want to take a break, this is, this is something that you could try to say, Okay, I'm not gonna look at the number for five minutes, or an increase to 10 or an hour, whatever feels like wherever you are in that threshold that feels like a challenge initially, and then grow, yeah, and during that time you will that will give you clues as to what's going on. Are you panicked? Are you fearful? Are you able to distract yourself and trust what's going on with where your child's number is and how much insulin is on board, etc? And so during that initial time, it might be hard to be like, what else can I do? You know, whether it's make a phone call, do something positive for yourself, any kind of distraction that is helpful, but noticing in those breaks of when you're not looking at the CGM or the number, that is an indicator of what is in going on inside you emotionally. Does that? Does that make sense? It
Scott Benner 23:13
does. Can I I'm gonna this is not a left turn, I promise you. No, go ahead. Encouraged me while we're talking right. How does social media platforms keep your attention through dopamine hits for instant gratification. Dopamine has another name. It could be adrenaline. So it gives you that a social validation loop. It's another thing that social media does to keep you and you're validating that you you're doing something important. It gives you that feeling of completeness, that you've completed something people love, that it hits you with, uh, FOMO, right? So the fear of missing out on something, there's something called notification triggers. So push notifications come. It draws you back into the app. It makes you feel like there's something interesting happening, like, this whole thing, there's an engagement loop that comes from that. And then there's social comparison, which you talked about earlier. And then there's the kind of the gamification elephant that they use. They gamify things. So you could make a an argument that I've heard people say that they game their diabetes, and they do well because of it, because they take it as like, Oh, I'm trying to keep like, you know, it's, I don't know it's like, Pac Man, like I'm trying to keep the lady inside of the thing without the ghost catching her. Like, I'm trying to keep my numbers here and there. Some people report that that's a really great way for them, not for everybody. And also, you get a lot of emotions out of this too. So it occurs to me that, like, there are a number of reasons why that could help you do well, but there's even more reasons why it could hurt you. But at the same time, we're right back to the idea of like, you can't just put it down. It's not, it's not a game. It's it's life and it's health. But there's a bunch of ways that you could be being impacted by it and not realize it. And. Therefore keep you in that app longer than you need to be, which is why I very just simply tell people you set alarms and you do not look at that app unless those alarms are beeping. Just do not just, you gotta just, you gotta trust something. You gotta trust that if I'm in the range that I set, I don't need to look. That's my opinion. That's what worked best for me, yes,
Erika Forsyth, MFT, LMFT 25:20
if that doesn't work for you, that's okay. And if you're noticing that whatever you're doing doesn't feel sustainable, that's you know, then to kind of pause and say, Okay, what is why can't I trust the alarms? Why can't I sleep? If the fear. And I get it. I really do that the fear you don't want your child to have a low or sustained highs, and then looking at where is that fear coming from? And again, I know, I think I've said this every episode now, but that it does often feel like a luxury, something that takes time and energy to pause, like, what? What is driving my fear? I don't have time to think about that. I'm just surviving. I'm just trying to keep my child alive. And so I think I want to acknowledge that too, that this, hopefully just even by listening again to this, to this particular episode, that you're able to spend a few minutes saying, like, wait, you know why? Why is that so hard? Beyond the obvious of wanting to keep my child alive,
Scott Benner 26:21
right? Well, I'll talk to about the again, about the ranges, because I think this is important. At some point in the in the podcast, you'll hear me say that it occurred to me while I was still learning all this, it occurred to me one day that Arden's top number was set at 200 on our CGM, and that we were very good at keeping her blood sugar under 200 and then I thought, I wonder if this is an expectation game. So I pushed her blood sugar to 180 and then I realized we were awfully good at keeping our blood sugar under weight 80. And I was like, oh, so I kept pushing it down right. What you don't realize in that story is that along the way, I learned other things that were helping us keep her at 181 6140, like on and on and on, and it's a lot about settings and timing and the other stuff we talk about in the podcast about how to use insulin. But as I was learning to use insulin and tightening the range up, I was getting what I was expecting more often. It just occurred to me while you were talking, I don't know what Arden's blood sugar is. I don't think I've looked at it today, so I wasn't certain. I opened up my phone and her blood sugar is 88 but that freedom of like, the settings are good. We know how to use the insulin most of the time. This is going to be okay. Like, the way to get to that is by understanding how insulin works. Is, again, my opinion, like, like, and so if there's a place to put your effort to me, it's, it's learning what you talked about, like your body. It's, you know, like, what it needs, like, what happens, like, how do I get ahead of this knowing simple things about insulin? I know this isn't like an insulin, like, you know, series, but the one thing that I think most people miss out on in the beginning is that what's happening now is about what you did before. And I don't think people think people think about it that way, usually, like, you mentioned it earlier, like, if I get low overnight, it could be because I had a heavy dinner some six hours previous to that, you know. And I don't think that in the beginning it occurs to you. Like, I think you just look at and you go, it's three in the morning. Why did I get low in three in the morning? And you start making changes to your basal and messing up your basal and, like, everything else, right? So that's the stuff. It's where I just think, go listen to the Pro Tip series. Learn how to use your insulin, and then see if a lot of these things don't get not alleviated over time. It's my expectation for you. It's why I made the Pro Tip series. Actually, I can't believe Martin blood sugar is 88 I'm like, super happy. It's like, she's in college. She just ate something terrible, I'm assuming a while ago, because I see a Bolus, like I see a Bolus about about 45 minutes ago, and she did a great job with it, you know. Anyway, I'm sorry,
Erika Forsyth, MFT, LMFT 28:52
no, that's good, I mean. And it is true, like there a lot of it is this education piece, and when you are able and ready to access and apply that is also part of your journey. Yeah,
Scott Benner 29:07
you have a note here too. I don't want to miss about setting a timer.
Erika Forsyth, MFT, LMFT 29:10
Like, yeah. So, so the timer, yeah, we talked about like setting the timer in terms of during the day. The topic is, you know the nighttime sleep disturbances and the fear of your child going low or having long term high, and that if you're watching the numbers all day long, it's hard to tell your brain to turn it off when you're going to bed, and so to practice giving yourself that break during the day. So setting a timer like what you were just saying with the alarms. Don't look at the number at the CGM or test your child's blood sugar for five minutes. It's very
Scott Benner 29:47
worth like, highlighting like, I'll set a timer, and I will not think about this until the timer goes off again. You can teach yourself to like, I know it works, because before all this technology, I used to think I. To check Arden in an hour. And, believe it, I seriously, believe it or not, eventually my brain knew an hour, yeah, like, I would just be like, Oh, I'm gonna test her now. And then my alarm would go off. My taught my brain how long an hour was without looking at a clock. And so you can teach yourself to, you know, to step back a little bit too. I think, I think that's like, a really valuable idea to give yourself some a shot at separation from the whole thing,
Erika Forsyth, MFT, LMFT 30:25
yes, and then hopefully that gives you feedback as to what's going on, to then apply that at night also, right? So what we're trying to do is to want to help you have more sleep at night, ultimately. But it is a hard it's a hard process to get there, and it is normal to have that right, to have those sleep disturbances, but we hope that eventually to get to a place where you can trust what's in place, so that you can take care of yourself and get some sleep.
Scott Benner 30:58
Yeah, because it's it is very hard to see what a lack of sleep is doing to you until it's too late and you're having those fights and those problems that you were talking about. And sleep is just not a thing. You can't bank it like, you know, I mean, like, I can't just sleep 20 hours today and be okay tomorrow. You need to sleep every day. And I know that's the thing. I just, everyone must know, but it's tough. Like, it just, it really is. It's the thing that's come the closest to killing me from diabetes so far. Like, seriously, like, I like, vibrating, heart pounding, like I'm so tired, but I can't go to sleep. Like, it just, it was, and it would, sometimes it goes on for days when you don't know what you're doing, yes, oh, it's hard. It's the worst. And I was lucky enough to be a stay at home, dad, like some of you poor bastards are getting up in the morning and dragging your ass to work, you know, like on no sleep. And then listen, we had a parenting thing the other day here, and I said to my wife at the end of the day, you know, lucky we are that we even work out of our house. I was like, this took a lot of effort and time and focus that I think if we were just leaving the house and going to work, we would not have been able to accomplish this like, you know. And just imagine being, you know, having that implication and being exhausted, on top of all the other things, did we get through? There's a little bit left here. Good. Well,
Erika Forsyth, MFT, LMFT 32:12
we, yeah, I think we got, we got through everything. I think they just, I wanted to end with a little exercise, just because these first three well, they're all They're all challenging and heavy, because what you're doing as a caregiver is challenging. But just wanted to end with a self compassion exercise, because a lot of these things that we've talked about, if shame or guilt or fear is driving some of these behaviors to offer some self compassion and kindness to yourself. And I can't remember if we've already gone through this before, but if you're able to either right now or maybe later, pausing and taking some deep breaths and either placing your hand over your heart and feeling your heart beat, or placing your hand over the other hand, and you can either just hold it or or tap it or kind of rub it as if you were kind of crossing your child's hand, but you're doing this to yourself and connecting with your body in that way, with either your hand over your heart or Your one hand over the other and having offering a positive kind of affirmation to yourself that I you know, I am good enough. I am I'm doing the best I can. I am taking this one day at a time. I am on a journey, and I am valuable. Whatever else is coming up for you. I know this might feel odd doing this right now, but if you are able to integrate it can take you can do it for 30 seconds or a minute throughout the day, of just pausing, connecting with your body and connecting with your mind and giving yourself some positive affirmation, because you all are doing an incredible job. I hope
Scott Benner 34:02
you're happy. Erica, now there's a bunch of people crying in their cars and while they're doing their dishes so but no, that's fantastic. I I'll try that for sure. Thank you. I appreciate it.
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