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Scott Benner 0:00
Hello friends, and welcome to episode 849 of the Juicebox Podcast.

On this episode of Juicebox Podcast I'll be speaking with Angela who is the mother of a child with type one diabetes. The episode title has something to do with what you're gonna hear at the very beginning and something to do with but you're gonna hear at the very end and the law makes sense afterwards. But Angela, just just lovely and we had a great conversation. I thought you might enjoy hearing it. While you're listening. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin. Don't forget to take the T one D exchange survey if you are a person living with type one diabetes as a US resident or a US resident who is the caregiver of someone with type one. The T one D exchange is incredibly interested in your answers to a few simple questions about diabetes. T one D exchange.org. Forward slash juice box take the survey support type one research right from your sofa T one D exchange.org. Forward slash juice box

this episode of The Juicebox Podcast is brought to you by cozy Earth and cozy Earth offers luxury bedding bath and sleepwear that you will go crazy for use the offer code juicebox at checkout to save 35% sitewide at cozy earth.com. The podcast is also sponsored today by the Omni pod five, learn more about Omni pod at Omni pod.com forward slash Juicebox Podcast so just I just did hit record so you know. Okay, and I don't feel well. So if I go, don't don't don't if I just disappear. Just know that my wife's already aware that any loud thud should be investigated. So don't worry about me just if you hear dead silence for five minutes go. That's it Scott's going on an ambulance ride. And then it's okay. We'll finish it later when he gets back. I don't want you to worry about it. While it's happening. I can't I can't exactly describe what may have made but may or may not have happened to me. But I think the best I can put together was it last week I my lawn mower broke. And I spent a couple of hours lying on the lawn. And a day or so later, I had this like bump on my hand. And I was like kind of pushed out and I was like, I don't know what that is. That'll be okay. You know? And then you I mean, you're married, you know, boys. So then I got another bump on a different finger. And as I can it's probably Alright. And then they started to get hard. And then they started to itch. And I thought I've probably got bit by something like you know what I mean? That's fine. I don't feel ill like there's nothing wrong with me. And then I start getting a few days later, some odd. So you and I have known each other for two minutes. Now it's okay, if I tell you this, right, this is probably going to end up staying in the podcast, I just want to find out be great. If I embarrass myself with one person. Everyone else might as well hear it anyway. Yes. So then I start getting some what I'm going to call odd. Itching in places you don't want to edge. So and it only happens if something touches my skin. So like, I can go 10 hours. I don't notice an itch. I'm not in pain. But if my clothing brushes me the wrong way and starts kind of like that response. And if I go to respond to it, it just doubles and multiplies. And it's 1000 times worse and I could literally just scratch a hole in my skin. But if I just stop, it goes away. And so it's it's just this this then starts going on for a couple of days. And you know how people say they spray Flonase on like sites. Yeah, yeah. Angela, I'm gonna I don't think I'm gonna bleep this out. But there was a moment in my life last week where I had to spray floaties on my balls so that I wouldn't like go crazy.

Angela 4:30
And anti-histamine might help you better Oh, I

Scott Benner 4:34
took those two but I was in a panic situation. You understand? Like, okay, the fistful is there tech and what's the one that makes you loopy? Benadryl, Benadryl, and then I took that and stood there for three seconds and I was like, Well, my next option is to get a knife and castrate myself or to figure out something else to do. And I thought, right, I'm not going to do that. Because Kelly's obviously going to leave me one day and I'm not going to be apprised in the Middle East. If I can't see her child, right, so I just took the phonies out. I was like, I hope this is okay. And I'll tell you what helped a lot. So anyway, so after all that happen, Kelly says to me, let me see. So I was like, Oh my God, I didn't think I'd get her anywhere near my balls again. But here we go. And I and she took a look. And she goes, You got to go to urgent care, my friend. And I was like, I'll be alright. And as quickly as it flared up, it went away. So I was like, see, it's fine. I get up the next day. And then in the afternoon, at a time where only old people nap. I was like, I gotta go lay down for a minute. And I thought, well, this is it here. Because, you know, for me, I don't know how other people exist in the world. I don't get sick very often. And when I do, I take a nap. And when I wake up, I'm better. Like, it's just constant in my life. So I was like, I laid down. I slept for like four hours, and I woke up and I thought, I honestly popped up like, oh, well, that'll be done now. And I was still tired. I was like, oh, hell. So I woke up yesterday morning. And the bumps from my right hand, one of them appeared on my left hand, and I thought, okay, I guess I'm gonna go to the doctor. So that poison ivy, I go to urgent care. And I and now I have to tell like you're now the second woman that I don't know that I had to tell the story to. And so I'm in a little room explaining are also power watching the last episode of Obi Wan Kenobi in case I'm about to die. I wanted to see the end of it. You know what I mean? My kids love that show. Oh, and your kids and me. We watch the same things. It makes sense. And I love so I'm in the waiting waiting room. There's an old man bleeding from his head. The I don't even care. I have my headphones on. I'm down. I'm watching Obi Wan Kenobi. They put me back in the little room. I shut the light off in there. I'm watching it in there. Almost got through it in thing she comes in. She looks at my hand. And she says Tell me the story. I tell her a version of the story I just told you. And I said, Look, I'm so sorry to say this too. But I've had itching in places. I wish I did an edge. And she's like, aware. And I was like, can you just imagine? And she goes No. And I'm like, so now some now now now. Now I'm completely honest, which I wasn't with you a minute ago. I just said my testicles and foreskin. And she goes, Oh, that must be unpleasant. And I was like, yes. Thank you. And she's looking at my hands. And she goes, I don't know if your shoe because you're having a systemic reaction to something. And I went, Yes, I figured that out with the internet, but I don't have a prescription pad and she goes, Okay, you're gonna be okay. If I tell you need steroids. And I said, Yeah, tell me please, like put them in my mouth. You know what I mean? So, so she writes me a scrip. I take I go home, I take the three. I'm supposed to take three and three. The first day I take Three. And four hours later, the bumps on my hand completely subsided. Good, really crazy, right? So I was like, see, this is nothing. I just needed a little help from a pharmacist. I'm good. I take the next ones, you know, before bed. And I wake up this morning and I'm like, I am woozy as hell. So I feel like a bobblehead doll now. As long as I hold my head still, I'm okay. But if I start to move around too much, my head wants to keep going an extra couple of inches. So anyway, that probably explains why I said testicles and foreskin already. And you haven't introduced yourself yet. But again, if

Angela 8:34
I pass in, and work in healthcare, I get all kinds of stories and pictures sent to me. Do you love to send me pictures of random things. We were

Scott Benner 8:44
leaving the the exam room and she goes well, she goes You were delightful. She called me delightful, which, you know, I just after that, I was like, Well, this is fine. I mean, it's almost I've come off. Well, you know, and, and I and she's like, thanks so much. And I said thank you for not making me show you my balls, taking it on faith. And she goes, No problem. And then we just kind of went our separate way. Anyway, oh, my gosh. Let's hope that this episode has nothing to do with your genitals so we can keep talking. Thank you introduce yourself, please. My name

Angela 9:16
is Angela and I have a daughter who has type one diabetes.

Scott Benner 9:20
Angela, how old is your daughter?

Angela 9:22
Eight, eight.

Scott Benner 9:23
When was she diagnosed?

Angela 9:25
She was five, five. That was three years. That's been about three. It was in January of 2019. Yes. So it's been about three tune, oh, three and a half years then.

Scott Benner 9:41
What do you want to count together?

Angela 9:45
It will choose diagnosed the day after my son's second birthday. So

Scott Benner 9:48
let's say you're making this difficult just use the calendar January 2019 to January 21 is one year, then just wanting 21 is two years or 2020? Yeah, two years. 2022 is three years. It's During the half, right, three and a half years, yeah, you're like the winter solstice was here and my son was born in June. So that means

Angela 10:07
it wasn't all blur, you know? Yeah. Yeah, I

Scott Benner 10:11
know. Trust me what am I gonna ask you? Well, this might be fun. Hi, Angela. Scott is loaded on steroids and not feeling well doing a podcast. So any autoimmune in the family previous term, you know?

Angela 10:31
Yes. hypothyroid fun. There's a couple people on my I have hypothyroid but I was negative for Hashimotos. My husband's side of the family has a lot of hypothyroid I think there's some thyroid cancer, but I don't know the specific kind. His grandma didn't tell me. But my husband has vitiligo. So there's definitely some autoimmune on that side.

Scott Benner 11:00
You guys shouldn't have this conversation when you were dating.

Angela 11:06
Yeah, you don't talk about I mean, my family is all cancer and heart disease. So I'm not a winner either.

Scott Benner 11:13
Angela's not a winner. Yes, a close, close option for our first title of the day. So

Angela 11:22
but there is autoimmune underside in both sides of the family. But there was never there was no type one. We have a lot of type two. So she was the first type one, my uncle had type one, but he was my my aunt's husband, and he was more of a Ladda. He was in his 30s when he was diagnosed. And so I knew of diabetes, obviously for a long time. So introduce Yan. I did I'm sorry. No,

Scott Benner 11:55
don't do it two more times. I'm out just so you know, I'm gonna fall asleep. I'm here on Well, right now, I'm here because I dammit take this podcast very seriously. I easily could have an email, and I did not. So Dr. Angela, do this later in the day, please. It's what the email was gonna say. So okay, a lot. I mean, your husband's got vitiligo, you have hypo that's not autoimmune. You don't think daughter has type one. Hypothyroidism so

Angela 12:28
she does have Hashimoto su that was diagnosed after the type one.

Scott Benner 12:32
Okay, Lucky her. Okay. So did they give her something for it?

Angela 12:36
No, she's being treated. At first. She wasn't her thyroid level was normal for about six months? Well, yeah, about six months after her antibodies came back positive. And then they're like, well, we can check it in the future and just monitor but then I think about six months later, I was like, You know what, she's really tired. Check it. And it was Hi, she started in Memphis. And after that,

Scott Benner 13:04
I'm going to tell you something I definitely have not said yet. So you know how when you graduated from high school, you can buy like an ad in the yearbook and help support the school and you put your kids picture in there. And you mentioned, most people go mommy and daddy are so proud of you get it to me like that kind of stuff. Yeah, we did one for art and full page. It's a lovely photo of her from her graduation picture in the middle and the top so that you recognize that she you know, is a human being. And then there are eight or nine photographs of art and sleeping on different hard surfaces in our house. That's pretty hilarious, like countertops are on the floor, or in the fetal position, but up on her knees with her head on the ground with a blanket over top of her, like passed out on a table with a winter jacket over her head.

Angela 13:47
And did she find it amusing?

Scott Benner 13:49
Well, she did. She got a good sense of humor. And it said, it says something like you know, I forget what we said like congratulations to our daughter Arden for graduating high school. And then at the bottom, it says if you see our little girl or something like that sleeping at college, please wake her up. And it's just and she is a wreck in these photographs like there are like there's not one picture in there that you would want another human being to say, and it's just hilarious. So

Angela 14:17
that fits your personality and her personality. So that's perfect.

Scott Benner 14:20
Oddly enough, it was Kelly's idea. Oh, really? She wouldn't have run with it. We ran with it when she said it out loud. She said and we were like we're gonna do that. And you know, then we just went into our photos and found that we had to. There were so many pictures because we take a picture of Arden every time she falls asleep. And then we texted her so when she wakes up she sees it and stuff like that. But I mean seriously on hard countertops, kitchen tables, like under things just anywhere like it's an Arden's fix for that has been it's a shame because we figured it out once and then she had a side effect that we we blamed on the wrong thing. So please, it's been fun. These last years have been a party, we realized she had to have a T three as well as a T four. To supplement her when she did, boom, she was fine. Then she started losing weight, oddly. And we thought it was the T three. But it was a birth control pill she was on. And we just didn't see the forest for the trees, took her off the T three. And then sometime later actually switched the birth control pill. So the weight loss stopped. And we never went and thought to ourselves, Oh, I wonder if it was the T three. So then she went back into sleepy mode. And then we we talked to Addy da Dr. BENITO from from the thyroid episode. And as he put it back on T three, and it just lit her right back up again. So it's amazing. Actually,

Angela 15:52
it works for some people.

Scott Benner 15:54
Yeah, yeah. It's just really, really fascinating. Anyway, she's good. Now she's not falling asleep in the middle of the afternoon anymore. Now I am now it's me. Do you think I'll turn into Spider Man? I guess that's the question. We should be asking.

Angela 16:08
You know, if you figure that out, my my son would be interested in knowing so

Scott Benner 16:13
five minutes before we got on. I was texting with Isabel, are you on the Facebook page? Yes, Isabel from the Facebook page. And, and she's just wonderful and helps me manage the page. And I was telling her like, you know, you're not going to get a lot out of me today. Because I think I'm I think I'm dying. And you know, I explained briefly and she said, Well, you know, hopefully you'll turn into Spider Man and let me know if you can like shoot a web later. And I said, I really just want the ABS and she said but you'll get the great suit too. And I said if I get abs I'm not wearing a shirt for like a year. Why would you? I just wouldn't I'm gonna walk around and be like those kids on Instagram though. I'm gonna be like, hey, look, say alright. Alright, and just so your kids diagnosed with type one diabetes in 2019 just after Christmas, which is a lovely gift for the new year. What are those first days like? How did it present? What did you do

I've decided that today I'm going to read to you things that have been sent to me about the Omnipod five. Here's an adult who says that they were on a medication that would normally cause them to have to turn their basil up to 150% but with on the pod five nice stable line she woke up in the morning with a blood sugar of 118 This is from a mom about her son nine month post diagnosis appointment two months and starting the on the pod five says they're blown away legit was speechless. Diagnose that in a one C of 11 and a half was last checked six months ago 6.2 They switched to Omni pod five went back to the doctor weren't sure what to expect. A one C was 5.7 Omni pod.com forward slash juicebox. The Omni pod five is an algorithm based automated insulin pump to understand it talks to your Dexcom CGM finds out what your blood sugar is. And based on your settings, makes adjustments to your insulin. Now these are just two random people and obviously their results may very well be different than yours. But I mean, come on, check it out right Omni pod.com forward slash juicebox go learn more. On the pod five is the only tubeless automated insulin delivery system that integrates with the Dexcom G six CGM and it uses smart adjust technology to automatically adjust your insulin every five minutes helping to protect against highs and lows without multiple daily injections. And on the pod five is FDA approved for ages two and above. Because on the pod five as a pharmacy benefit, you can get started today without the four year Durable Medical Equipment contract that comes with most insulin pumps, even if you're currently in warranty right now with another system on the pod.com forward slash juicebox. That's where you'll learn more get started and be able to see the full safety and risk information as well as clinical trial claims. All right now we're going to talk about some seriously comfortable sheets that I'm sleeping on from cozy Earth. I'm gonna go right to the website cozy earth.com You know cozy co z EY e a r th cozy earth.com Here's what I met with lovely bedding. Women's and Men's sleep and loungewear and look at these bath towels. Oh my goodness. Now I am at the moment sleeping on a set of sheets from cozy Earth. Actually they're bamboo sheets made of viscose bamboo, but I'm eyeing up these bath towels. Premium waffle bath do I want the waffle or the plush? Huh waffles nice pretty Medium bath towels. They look nice, but they are those would match the decor my bathroom. Oh, look at that, Matt. Okay, listen, you're gonna get lost shopping@cozier.com And you know that car is gonna get pretty full. So how about this? Why don't I give you an offer code that will get 35% off of all of your items. Just use juice box at checkout at cozier thought calm, and that way you can get towels and sheets and I don't even want to look at these. I don't want to share too much here with the I don't wear pajamas, but they also have like shirts and tops and pants. Some nice loungewear have to look at this too. Alright. cozier.com use the offer code juicebox. There are links in the show notes of your audio player and links at juicebox podcast.com to Omni pod cozier and all the sponsors. When you click on my links, you're supporting the show

Angela 21:08
well, you know, I knew something was wrong, probably two to three months before she wasn't acting herself. It wasn't the urination or thirst that I noticed first it was just she was just tired. She was cranky. And that's not her at all. And I even talked to her school. I'm like, because there's something going on. And they're like No. And we thought she was going through a growth spurt because she was having leg cramps at night. Turned out it was blood sugar issues. And then she had chapped lips, but it was winter. And then she just wasn't acting herself. I knew it. And then we went on vacation after Christmas. And it was in North Carolina. So it was cold. I mean, relatively, she kept asking for water. And I that's when I might was really concerned. And she went to bed twice. And I said something to my husband. I'm like, I'm really concerned. And he's like, he's like it's dry up here. And so that's our running joke. Because as he can say, No, I'm thirsty too. And she probably wet the bed because we're in a house that she's not familiar with,

Scott Benner 22:18
because people pee themselves in unfamiliar houses constantly.

Angela 22:22
She's five, so you know, his in his mind. Yeah. So I didn't think I was still just was concerned. So then it was the new year, my son's birthday party at my mom's house was that Saturday, and my sister in law was a nurse too. And she's like, Katherine just doesn't seem like herself. Because she's usually like, she'll talk. And she's just a bubbly girl. I'm like, No, I'm concerned. And the next day, she was at begging me for water at bedtime. And I looked at my husband, I'm like, I think she has type one diabetes. And he's like, no. And she had an upcoming appointment with her pediatrician that Wednesday, right? He's like, No, he's like, I'll take care of tomorrow. I'm like, No, I'm concerned. He's like, would you and I made her get on the scale. She lost four pounds. I'm like, No, I'm concerned. And he's like, Would you be happy if I went to the CVS and got a Google glucometer? And I said, Yes. So he went and got one and he took her blood sugar. And I said, Hi, then he cried, and then off to all children's we went to that was fun. And then when we got to the hospital, like at first, we thought that they didn't take us seriously because we went in and I was like, we checked my daughter's blood sugar and just said, hi. They're like, Okay, have a seat. Like, okay, but then they came out with a cart, because apparently, it was in like DK or so they brought us back. They immediately checked her blood sugar, put an IV and then they were like, hey, what they kept asking me, Well, what made you check your blood sugar? I'm like, Look, I'm a physician assistant. I've had experience in Endo, and then it just changed and it's just like, Oh, okay. Then they were trying to ask me like, has she been sick? Has she been on steroids? Like no, like, at this point? I know what it is. And I know most parents at that point didn't know what it was. I knew. I mean, I knew before we went to the hospital. Yeah, sure. So So then they she was just so mad because it was late at night. It was like eight o'clock, so she's already tired. We have like a two year old sleeping on my husband and she's getting an IV. She was she looked at my husband with the most evil look like how dare you let these people put an IV and Oh, but she wasn't in DKA. Luckily, so they finally got orders from the endo to give her insulin. They kept her overnight. Yeah, that that endo came in and was very nice when she was like, Okay, who has experience with Endo? And I'm like me. And so she, I mean, her explanation to me obviously isn't what it would be to a parent that does even know what type one diabetes is. So she kind of told me what was going me what? Insulin and things they made sure my husband stopped cook given, oh, well, yeah, give crying, but give the shots and the CDE came in. But I look back at that experience and like, I'm in healthcare. So I know more than most people. And I just think to myself, like a parent that didn't work in health care parent that didn't know what type one diabetes was to begin with, like, how overwhelming that? I mean, it was overwhelming for me. Yeah. And I kind of know stuff. Right? So I couldn't imagine someone who doesn't know anything. Yeah. So but on the flip side, it was kind of like, Oh, you got this, like, but me working adult endocrinology, 12 years or 10 years? Yeah, probably eight years at that is different than taking home a child with a five year old. But so the nurse kept trying to make sure we got the right insulin at the pharmacy, which I appreciate because she wanted to make sure whatever insulin she sent was approved. So we didn't get discharged till eight o'clock that night, and my kids are hungry. And what made me mad was they don't even bother to check my daughter's blood sugar before we left and get to the car, and it was slow. But I did bring up to the endocrinologist, like, kinda have to check that before they leave the hospital

Scott Benner 26:59
affairs fair. She said diabetes for five hours. Now, do you have a meter? So you don't need anymore? You're good.

Angela 27:08
But it was just overwhelming at first, just because I remember sitting in the hospital. And I was just like, how am I going to give you the life you deserve? Like, that was what was already running through my head, like, I have to get you back in school. Because she loves school. And my thing was, she could not leave a Friday and not ever see her friends again. So that was part of our next step, which luckily, we did get a wreck in her preschool. But that was a battle. It was just like, you don't even realize all the things you have to advocate for. Until you do. Yeah, I'm trying to Yeah, try to do it in a nice way.

Scott Benner 27:58
I am a big believer in realizing, especially at a young age that you're going to be with these people for a very long time. And you don't need them looking at you like you're a crazy person. Even if you're not being crazy, they're gonna think you are, you know, I can look back on the things I was saying, when Arden was going into kindergarten and be like, Oh, those those poor people must have been like, What is wrong with him? Like plenty of kids have been through here with diabetes, we know what we're doing, you know, they have that feeling. And they really do. But

Angela 28:25
you know, it's you have what I even said to my daughter the other day, cuz she because she has some in her camp who knows her very well. And they do excellent. She like put the kids in these classes don't know about diabetes, and she's used to having the same kids who have known her forever. I was like Katherine, but you are making a peasant positive impact, because now they know what diabetes is. So you have now made it to the next kid that they encountered that has diabetes, easier on them. And I just feel like you have to have that mindset, mistakes happen. But how you present it is different. I would hate to make somebody feel so bad about a mistake that they don't want to take another type one diabetic. That's just my mindset. And I know not all are like that. But mistakes. I make mistakes. So how can I expect other people not to make mistakes? That's just kind of how I am. I think that

Scott Benner 29:23
in general, when you see people get like, super upset because something went wrong. It's understandable. You know what I mean? Like, it's a frightening thing. You're, you're picturing the worst outcome. And, you know, some people fly off the handle. Yeah, you know, and I got revved up at my daughter's school when she was, you know, in kindergarten. But it wasn't like I didn't go zero to 1000 I tried really hard to get them to pay attention and for them to take things seriously. And then one day something actually went wrong the way I told him it was going to and I I use that situation too. It kind of forced them into doing the right thing.

Angela 30:03
And you have to sometimes and I think times have changed from when your daughter was diagnosed. I mean, she didn't have a CGM when she was in kindergarten, did she? No, no, no, nothing like that. So things I mean, now the nurses, at least my daughter's nurse, who is fantastic. Her biggest advocate follows her Dexcom. Not to say all nurses do that. But I think that technology has definitely given them peace of mind to

Scott Benner 30:31
Yeah, and they're definitely still there. People who don't want the responsibility. And then, yeah, by responsibility, I mean liability. And so they say, No, they don't want to miss something, and you turn to them and go, and this is also reasonable. Hey, my kid had a seizure. You were supposed to be paying attention. And you know, like, now my cell phone is is like, you know, if I'm not aware of it, you can yell at me legally. And like, I get why people stay on it.

Angela 31:00
I do. Actually. I've heard nurses say that before, because they didn't want what if the person's home and their blood sugar's like, what? Where does your responsibility right now?

Scott Benner 31:10
Right, yeah. One wacko to go, you know, sure, we were all asleep, but you have my kids follow on your phone, and you're a nurse. And, you know, yeah, I do get it.

Angela 31:21
And I see people's posts sometimes and their expectations of other people on like, Oh, my, I just ignore that.

Scott Benner 31:29
Well, I agree. So So, so we get home. And first of all, it's such a fun part of the fun, fun is the wrong word. I am on medication. By the way. It's such a, it's a telling part of the story where your husband's the one like there's no problem. There's no problem. There's no problem. I'll get a meter. And then he falls apart when he sees the number. Like you can see you're protecting himself even in the decision to say, Oh, come on, it's fine. It's dry here. I'm thirsty to like, let's not find out. Our kid has diabetes. You know,

Angela 32:02
he is the most protective but in different ways. Like if the kids bumped themselves, he like his heart just like rips out of his butt. Like if there's stuff like that. He's just, I don't know, it's just it's that the he ignores it, and just thinks he's trying to protect his heart, I guess. But. But he's very protective in other parts that I'm like, they're okay. Bill live. So, we're different in that part. But I mean, he doesn't work in healthcare. So

Scott Benner 32:37
yeah, I listen, I appreciate it. I really do understand how it goes. So she gets home. How do you set up care? Like you got her back to school really quickly, but

Angela 32:47
it took three weeks. So we didn't get her Dexcom for three weeks and how a life changer that was? Well, luckily, her school that she was at her preschool, it was a hook to elementary school. She had been there for three years. And the owner. Luckily, it was it wasn't a big company. So the owner had more say in it, it but she was on vacation. Of course, nobody wants to do things when she's on vacation. So we had a wait tissues back home from vacation. And then it was just back and forth with their insurance company, because then their insurance company was saying things that didn't make sense out of concern. So we did get her back at school. And I went and train the staff. My husband and I went and explained and explained the diabetes. And luckily her two teachers were amazing. And the staff already knew Katherine for three years. And it light bulbs went off at her school, her teachers too, because now things made sense. So they're not quick to give out medication. And I was like, Look, I will come every day at lunch and give her her shot. So that's what I did. I made it deal with my job because I worked close by. I left I set an alarm. I left went, got her, gave her a shot. 20 kids watched her get a shot. And then, you know, then we till we did that for eight months before she went to kindergarten. Okay, well, I Well, I went and gave her her shot, but it was the best it worked. It works. And at that point, did I want to give that responsibility to anybody else. Like I remember her endo was like, well, they can't give it I'm like no. And then she's like, well, there's always a way I'm like, I'll go at that point. She only trusted me and her dad give her shots anyway, you know, so it works.

Scott Benner 34:48
That's very interesting. And I see people do it and I think you know if you can accomplish it like I mean you were lucky you were close enough by your job was nice about it. It's an easy, the easiest way to get through the first thing, because what are you gonna do train? You know, in a in a preschool situation just for a couple of months to get you through?

Angela 35:08
I wouldn't want to give them that responsibility. Would they do it? If they were legally able to probably because they liked my daughter enough, but I didn't want to give them. One.

Scott Benner 35:20
It didn't work out. Were there any issues? Yeah, that way?

Angela 35:23
No, they did have. The one thing is, you know, my daughter relied too much on Dexcom to tell her how she feel. So like once they had a Water Day, and obviously the Dexcom is going to be intermittent at that point. And I had said, you know, Catherine, if you don't feel good, please tell the teachers, because the Dexcom is not working.

Scott Benner 35:48
But she was like a body of water. You're saying, yeah, they had like

Angela 35:52
a water day. So the Dexcom was kind of off to the side, you know, it's not gonna work as well and water. So I picked her up, and she's like, I'm thirsty. I'm thirsty. And she was low. And I didn't blame the teachers. I did tell them the next day, she was low. And they're like, I'm so sorry. I'm like, no. But she also has to realize if she doesn't feel good, she needs to tell you guys, because she can't always rely on the Dexcom and she is still young. But if you don't feel good, say something, but she didn't say anything. You know, but that means the kids it's funny preschool kids really awesome to her. Like, they asked great questions. And I love that age group. But they all like they would see your get a shot, they would see your get there her check her blood sugar. And they all ask, like really appropriate, they ask better questions that adults like, okay, like, when can you see me give the shot? And then I'd put the needle in the sharps and he's like, oh, so is that? Is that where you put the blood? I like how he's like the blood that you're taking. He thought I was not giving her shot. He thought I was drawing out blood. But I could see from a four or five year olds perspective how he could see that. So it was just it was nice talking to the kids, because they were all very protective of her. They were very kind at that age group. But it worked out well. I mean, we had not issues and that things that the teachers did wrong, but like just sometimes they would overcorrect. The lows, which as you know, that's common, like they would see that that they would treat her and then the next reading would go lower. So they get worried and give her more. And I'm like, it takes some time. You know, but that's just stuff that you learn. And they were just scared.

Scott Benner 37:45
Everybody honestly, like, no one's not been in that situation. But like, why don't we just need a little more please?

Angela 37:51
Yeah, so what she got like two juice boxes. I'm like, Oh, this is gonna end up bad. But you know, it's it's it's a learn in but did I yell at them? No, of course. It was just like, if you ever worried just manually checker?

Scott Benner 38:04
Did you have the same success moving into first grade? And I guess second grade? Oh, Canada. Oh, it was

Angela 38:09
funny because it when we did when we went for orientation at first signing up, because actually she was diagnosed the same week that we had to register her for kindergarten. And here were worried about that. So we said something to the assistant principal. And he was like, Oh, it's okay, brainy. The nurses great. And she has other diabetics, and don't worry, but I couldn't talk to her beforehand. So it was like a week or two before school. I was in contact. I had a drop off supplies and stuff and she's great. And she's like, is it okay if I follow her on Dexcom? And I was like, Absolutely. The first but then I fell back because I didn't have they didn't tell me her kindergarten teacher was so I it was like two days before school we get to meet the kindergarten teacher and I felt so bad because I walk up to her and I was like, I just want to let you know. My daughter has type one diabetes. She has a Dexcom I met the nurse and here's a bag of snacks just in case she goes low and just the look on her poor face because she never had anybody with diabetes before. If I would have known ahead of time who the teacher was, I could have prepared her more but I didn't. But the first day of school here nurse Texas, me and says Your daughter's asked if I had ever done this before. And I was like good Catherine she's she she knows to ask the right questions. But no, we've had a really good experience. I mean, her kindergarten teacher made an error once and it is she felt bad but it happens because she was doing some type of math projects but it was marshmallow. And the kids got to eat the marshmallows afterwards, she forgot to say something to the nurse. So suddenly see her blood sugar goes super high. And the nurse goes down there. She's like, I'm so sorry, that happens to kids the count is exactly she's like all the other kids ate the marshmallows. She forgot to say something to the nurse. But we've had a really good experience. And I think communication. And I'm not saying every nurse is great. But I think communication is key. I mean, when something happens, she takes it more personal than me. I'm like, it happens. We move on. So Well,

Scott Benner 40:37
I understand. It's cool. So how about your husband? How did he settle in with it?

Angela 40:43
Over communicate the decks calm took him a while to not overreact to every data point. I don't know if that makes sense.

Scott Benner 40:52
No, it does. I hear people talking about it.

Angela 40:54
Yeah. So he used to like, and like Ryan, sometimes you just kind of had to see where it lies. You can't overreact. Because if you treat it could have just leveled out. So it took him a while to realize that but he's, I mean, now he's just like, I'm just gonna let it watch which two years ago, he

Scott Benner 41:16
would have freaked out when you say overreact. He was overreacting with carbs to Lowe's, to Lowe's.

Angela 41:21
He just would freak out is you know, when you see that double down arrow, and I'm like,

Scott Benner 41:28
just watch it. But even if it was double down and 250 was, well, yeah, it is

Angela 41:33
like the Pre-Bolus Like he's gotten better with Pre-Bolus. But he was always terrified and Pre-Bolus and it her go low. I'm like, we're we're in a house with things we can treat. Like it was just, you know, you people. I think people are always more afraid of the lows, which I understand being afraid of the lows than the highs, you know, and just trying to teach him. But he he me, he does excellent. He's the worrier of the group. She was on Camp trip two weeks ago, and I was busy seeing patients so I really wasn't following her Dexcom very much. And she went low, but she wasn't responding to his calls. And I thought to myself, I'm like, I can see Scott do this. So he drove an hour to where she was for camp. And then she answered the phone. And so he didn't tell her he was like outside. Yeah,

Speaker 3 42:27
way back. No, because they were in the way they were about to

Angela 42:31
leave. So she said that she got on the bus and she looks over. I was like, there's my dad. So but he just was worried.

Scott Benner 42:43
I understand. Well, you, you listen, you start doing the math. And you think there's an amount of time I have here. If she doesn't answer the phone, then I didn't do anything. And it seems like a special situation to me. Like I respect what he did there.

Angela 42:58
No, I did. And it was really nice that he did that. But it was just, it was just it was very typical Ryan thing to do. Well, I'm just gonna go to her she doesn't.

Scott Benner 43:11
I know you probably have heard that story. But I was in the shower once when Arden wasn't answering while she was at school. And I like panic, drive myself off, like put like whatever clothing I could find on when outside drove to the school was going through the front door like about to tell the person why I needed to be there and art and text and she's like, I had a juice. And I looked at the woman to the window and I went sorry to bother you. And I walked up ready to break right back.

Angela 43:35
I actually told my husband that story. And he was like, Yeah, that would be me. Yeah,

Scott Benner 43:39
I probably looked a little crazy in that moment. That's why I got out of there. I was like, let me just leave. Maybe she'll forget this. You know what I mean? Like,

Angela 43:46
I just think it's funny that she saw him at a stoplight and I was like, my dad was here. Yeah. And he like she was even surprised.

Scott Benner 43:54
Well, that's nice. Well, that's good, though. She then she believes he's gonna be there for two.

Angela 43:58
Oh, yeah, absolutely. That's protected.

Scott Benner 44:01
That's what about your other child's her anything going on there.

Angela 44:06
He assumes that he's gonna get diabetes, which is sad because he was too. I mean, I check in periodically, we're trying to, I've been on the fence about Chalamet I'll probably do it. But he's kind of his tap, as you've talked about before, like temperament for different kids is different. His is different. He would not handle it as well. But his he only remembers his sister as having diabetes. So he always makes comments like, Oh, when I get diabetes, can I have a Dexcom? Or he just assumes he's going to always

Scott Benner 44:42
told him that that's, that's completely possible that it won't happen.

Angela 44:46
I yeah, I do. I'm like, oh one we hope that you don't, but if you do, it will be okay. But I check them periodically. If I'm worried. We'll probably do the trial that it's just we we got the home kit. once and it was a disaster because we didn't get enough blood. So, and then COVID happen. And then. So then it was on hold. So okay, he was just I was on the fence because I'm like, it is a genetic, I'm pro it. But I was like he's already anxious about it. This part of me was like, is it fair to give him his genetic possibility? If that's not something he wants to know, you know, so that I probably will do it?

Scott Benner 45:32
Well, yeah, it's a personal decision, that's for sure. Have you asked him if he'd want to know if he could find out?

Angela 45:39
You know, he's just turned five. Yeah.

Scott Benner 45:42
Seems to me. Yeah. Cuz it's kind

Angela 45:45
of like, it was hard to ask him that. But, right. I mean, it was reverse Katherine and be like, absolutely. But you know, different kids are. temperament is different. Yeah,

Scott Benner 45:56
you'll handle it the right way. I mean, it's just, you know, I just think it's, I don't know, I guess he's young. It makes sense. But it's sad that he's thinking he's gonna definitely get sick.

Angela 46:07
I know. That's the me he only sees it as it was so weird that they pick up on things that they that you wouldn't think like he was we were at a park one day, like a water like just splash park. And he, he comes up to me later, and he's like, I think you need to check my blood sugar. I didn't feel well. And then my heart sank. Like, what? It was fine. Yeah. But the fact that he's like, he put together him not feeling good with him. Yeah, yeah. Which is I mean, I guess he sees and hears enough to warrant that.

Scott Benner 46:46
How old was your husband when he got vitiligo? Do you know?

Angela 46:49
You know what he was in his 30s? It was

Scott Benner 46:53
too late for you to return him.

Angela 46:55
Yeah, it was a stressful that I don't remember. It was probably about four. He's 38. Now, so I'd probably be I would say like 30 to 33 on his hands, a little bit on his feet. He went to DERM. They're like it's auto immune that much to do about it. But I think he has unrelenting hypothyroidism, but I'm not his doctor. And he's like, my doctor says, I'm fine. I'm like, Okay,

Scott Benner 47:22
how long have you guys been married?

Angela 47:25
12 years, we've been together for almost seven.

Scott Benner 47:29
Teen. Okay. I was just wondering, because So wait, his doctor says he's okay. What is that?

Angela 47:36
Well, I specifically asked them, him to tell his doctor that he has a family history of autoimmune thyroid disease, and his daughter has Hashimotos. And I know a little thing or two and his TSH has been borderline on the high side. Not enough that, hey, you need medication, but to observe and he saw he asked his doctor, can you check for Hashimotos and his doctor was like, we don't normally check for that. And I'm like, oh, but he didn't press the issue.

Scott Benner 48:09
You know, a simple blood test. Like you know, you're going for other blood tests that you're at you're well like it, you're well versed. It's like just add like check a box.

Angela 48:18
I know. Yeah. But he also doesn't press the issue. He's like, they said no. And I'm like, okay.

Scott Benner 48:25
That's the wrong attitude, but not him. Yeah. Well,

Angela 48:29
he did say do you want me go to endocrinologist? I'm like, No, well, I look at his

Scott Benner 48:33
slaps when you said his TSH was borderline. What was it? It was like in the

Angela 48:37
three range which I kept it. I mean, it's on the higher side a normal I would. I'm not a doctor, but I would know I would if he was diagnosed, and I would as a practitioner, but I'm not his dad, why

Scott Benner 48:49
don't you just slip in a couple of Synthroid for when he starts feeling better go, hey, guess what? I know you can't legally do you shouldn't give people drugs that they're not expecting. I'm teasing, but I know. But he would. He would definitely feel better in ways that he might not even be perceiving as a problem.

Angela 49:07
Well, yeah, I mean, he's, he's, he has he's sleep solver. Yeah, he is. He's tired a lot. But I I'm sorry. He says I like to diagnose him with things well, so

Scott Benner 49:18
I was just talking to everyone. I said snippy not sleepy.

Angela 49:22
Oh, snippy occasionally, and sleepy.

Scott Benner 49:27
Yeah, why would you not want just a stupid little pill? You just pop in your mouth? You wake up? Oh, he

Angela 49:32
wouldn't be opposed to taking it if someone told him other than his wife.

Scott Benner 49:36
Oh, I say Couldn't you tell him while you weren't wearing a shirt? Doesn't that work better? Maybe my wife got up. So you know. It's she's like she's like, should we get on top? I said no expensive. Don't do that. I said it no for a long time. Then one day she just said it coming out of the bathroom. And I was like, it makes sense to me. So yeah, I mean, if you want to get up adds up, we should look into it. And I'm, I've seen her boobs a lot. And I was still, I was still like, Yeah, I think you're right. I think you should just, you know, break out of the shower, drying your hair and go, Hey, don't you think we should maybe get your TSH tested again? They'll probably be like, Yeah, I think so. And luckily, it

Angela 50:16
hasn't gotten any higher. So I was like, I'll fight one battle at a time.

Scott Benner 50:21
I'm sorry that you feel like your life is one battle.

Angela 50:25
No, but you know, you it's funny as which I don't know you personally. But sometimes guys will listen to somebody that's not their wife telling them things. So if he had somebody else say, Hey, Ryan, I think you need Oh, God, this looked at, okay. But

Scott Benner 50:44
once you're writing notes to get his pocket when he goes to the doctor, like you're sending a four year old for bread in the 50s. Please do this. My wife said for you to read this. No. I wasn't.

Angela 50:59
It's probably a reason he doesn't have me go to his appointment.

Scott Benner 51:02
I wasn't allowed to read it. She said, it's not for me. But it's for you. Just slip it in there.

Angela 51:07
Yeah, it's funny. No, he's a good guy, though.

Scott Benner 51:11
You're too young to recognize that people used to my wife used to get sent for cigarettes. Like she'd walk across town with a pocketful of change to buy cigarettes for her parents. Like when she was

Angela 51:21
my mom said this, she used to do that with her parents. Her dad

Scott Benner 51:27
had to go to a separate machine, the diner down the like blocked from my house, my dad would be like, here's quarters, get me cigarettes. And I was like, All right, just one go. And then I would steal some of his quarters, play a video game. And then I would I would come back and I did across a major thoroughfare to make that happen. Just so you know, like I'm talking about like, massive amounts of traffic going into different directions. So he could have cigarettes, and it was not like,

Angela 51:51
you lift a little bit. I survived. I did

Scott Benner 51:54
sort of at one time. I look back on this story Angele all the time. And I wonder if it was my imagination. But my friends and I were crossing this, this busy road. And you couldn't make it all the way across. So you kind of like traverse the first couple of you know, lanes that were going in one direction, say to my right. And then you got into the center lane, which was the beginning of a turning lane, you just prayed nobody had to turn you stop there and waited for the traffic going left to clear so you could run the rest of the way. And I know modern parents are like, what is happening, but this was a fairly common thing in my life. So we all run across the first two lanes. And I stopped a little late. And when I turned back, I felt like the truck went by and like hit my the tip of my nose it felt like like I don't know if it really did or if it was just close enough that it felt like it but when I turned my head back and opened my eyes, there was a tractor trailer going past me and it felt like it was a half an inch from my face. It could have been three feet. I have no idea. Right? But that scares the crap out of me. I was like I almost got hit by a truck. And still, I told my parents that story and I was still sent across the street.

Angela 53:08
I was wondering did you go back and say it was died for your cigarettes?

Scott Benner 53:11
Well, did you hear me talking about my balls or all your I of course told somebody the story because I love talking about things. So I came right back. I was like, oh my god, guess what almost happened. And it was back then. Like they didn't go Oh, you're never crossing that road again. They were like, well be more careful. No one No one. No one said walk out of the way to the intersection where you could use a traffic light because that was inconvenient. So you know what I mean? Like, I don't know. Yeah, it's the 70s and 80s. That's Yeah, nobody cared. Die. They had two more kids, they would have been like, Yeah, that's fine.

Angela 53:43
Like, sad truth.

Scott Benner 53:45
I was adopted to this. They were probably like, whatever. We already did a good thing.

Angela 53:55
We adopted him.

Scott Benner 53:57
He's turning out to be kind of a pain in the ass anyway, so I, you know, whatever. But anyway, it's just yeah, it's different world. But anyway, I'm sorry, I if your husband ever listens to this, do get your TSH check. If it's over to take Synthroid. You'll feel better. That's it. It's very simple.

Angela 54:14
He won't listen.

Scott Benner 54:15
But he wants your daughter to listen, I bet. Yeah,

Angela 54:19
you know, she was the one that told me to come on.

Scott Benner 54:22
Come on the podcast. Really? How come?

Angela 54:25
Yeah, I don't know. I was like, when you had posted about people's stuff in I was like, You should go. I was like, fine. Sure. I don't know.

Scott Benner 54:34
Cool. Well, but for no real reason other than just to tell her story.

Angela 54:39
I don't know because I was the edge, I guess. I mean, she She's pretty. She's a smart. She's very intuitive and smart person and I think she thinks it helps other people. She's just that type of person. If it helps. She's okay with it. Yeah,

Scott Benner 55:00
that's very nice her for her yeah her story to get told like that and, and, and do you listen a lot to the show?

Angela 55:07
I do. I drive a lot. So I put you podcast I enter between driving and when driving I either put music on or your podcasts.

Scott Benner 55:20
That's what I do. I like listening to people talk when I'm driving. Actually, when I'm working around the house or in a lot of different situations, I've actually as I get older Angela, I noticed I don't go to music as much anymore.

Angela 55:36
I actually recently I was putting on some like 90s music and my kids made me feel so old. They're like, was this the I forget what? It was just like old. It was like TLC or something. But they made me feel like it was like 100 years ago. I don't like guys.

Scott Benner 55:54
No chasing waterfalls, and the kids didn't dig it.

Angela 55:58
I know. Yeah, I think so. My son was obsessed with glorious stuff on when he was that was the only song that would make him stop crying. He loved turn the beat around. Like he would start crying we'd put turn the beat around, he'd stop crying.

Scott Benner 56:15
We call was the baby. He wouldn't go to sleep, that he had to go to sleep a certain way. And when he was like first born like the first 910 months of his life, I had to go to where a computer was in my house and lay him across my legs, like stomach down and rub his back and play Blackbird over and over again by the Beatles. And he'd go and he'd go to sleep.

Angela 56:37
colic is terrible. Yeah, like my son had colic. And it was just like the witching hour of just, it was terrible.

Scott Benner 56:49
We had a family. That's how I felt this morning when Kelly's like, can you take the dogs out? And I was like, I don't feel good. And the dogs I know. I heard that she did not try hard to get basil to go out last night before bed. Like I was upstairs woozy. And I heard her do the Basal Do you want to go outside? No. Okay. Like, he's gonna pee on something. That dog is unstable.

Angela 57:12
She asked the dog if he wanted it.

Scott Benner 57:15
Yeah, I'm like Kelly, you just like kind of like, move him to the door. And he goes outside. He pees. And he comes back. And she's like, well, he didn't want to I told her this morning. I was like, you know, the effort you save last night cost me this morning. And she's like, huh, and I realized what she meant was better you than me.

Angela 57:31
That's exactly what it sounds like. Okay. It was well, that's your problem.

Scott Benner 57:37
You took a you problem tried to make it a me problem. But I was I was able to take a me problem make into your problem. So you lose. And I was like, great.

Angela 57:45
Oh, dog is the least of our concerns. It's our cat that like meows in the morning when he just wants people up just because

Scott Benner 57:53
our older dog now just barks at the door when he wants to go outside, which is great, except he wants to go outside early in the morning sometimes. And even as you like, yell to him like, Hey, man, I hear you. I'm on my way. He's so old. He can't hear you talking. And so when you get there, and he makes eye contact with you, he's like, Oh, you're here. When he really doesn't hear you coming anymore. It's, it's crazy how long he's living. And he's, he's old. He's gray. And he's lost weight. But he just keeps eating and going and going. And so he looks happy. And you know, I'm happy for him. I just wish he could sleep till nine. He's like my mom who's like I was up at four today. I'm like, why?

Angela 58:35
My dad was like that, before he passed. He was up at like, 430

Scott Benner 58:38
like my dog or like my mom, how was your dad? Probably both.

Angela 58:41
But he would just wake up early. And it's like, but you're not doing anything so that he would fall asleep at like 730 at night because there was this vicious cycle of just

Scott Benner 58:53
how old was he when he passed? 60 two's gonna say you must have been young, you're in your 30s. How

Angela 58:59
long you have lung cancer? Sorry.

Scott Benner 59:01
That's how long did he have it for?

Angela 59:05
Well, we assume a long time but he was one of those big believers. If you don't go to the doctor, you there's nothing.

Scott Benner 59:10
I heard that story about your husband a minute ago.

Angela 59:14
So don't tell me I'm married. But no, but we knew and he even said, you know, he he knew that there was something wrong but time that that he finally went to the hospital, from diagnosis to his death was like a month. Yeah, he so he had it for a long time. And it's just like, if you just went to the doctor, you probably could have you know,

Scott Benner 59:36
does your mom alive? Yeah, she's

Angela 59:37
alive. She's,

Scott Benner 59:39
she's doing that he passed.

Angela 59:41
Good. She me. I comes in waves. You know, I tell people that with grief all the time. So it's just weird being alone, you know? Yeah. But I mean, she does pretty well otherwise, but I mean, she's independent. She's still working. which I told her is good because otherwise she just sit and dwell.

Scott Benner 1:00:03
But make sure to tell Kelly a couple of times a year when she's mean I go, you're gonna regret this when I'm dead? Because I want her to feel bad after I die. Just a little bit once or twice. No, I don't know.

Angela 1:00:19
No, I always tell my house. I was like, If I die, just get remarried. He's like, Oh, I'm not doing that again. I'm

Scott Benner 1:00:29
a shining endorsement for you, Angela.

Angela 1:00:32
No, but it's just like, I'm like, You're wrong. He's like, no, no. But, you know, you always think that, you know, especially when you have kids and stuff, it's just like, and then like, when you have a kid with a chronic issue, it's like, who would I give them to something have like, yeah, no, not everybody can hit like the things that go through your mind differently to pick someone you kind of I had to get it in writing. But I mean, my sister in law was a nurse, she would probably do the best if, you know,

Scott Benner 1:01:03
I hear Yeah. We had to pick somebody to, you know, it's so weird. It's a weird decision to make where you're just like, who would? Who would? Almost medically, I was like, is this? Is this the decision you make? Like on MediCal? Or is it a decision you make on like, support and emotion? You know, who would be better what as

Angela 1:01:21
it is to me? Hopefully, she knows that she's gonna get my kids. The between her and my mom. But my mom's like, I'm older. So you know,

Scott Benner 1:01:31
not long before I started napping at the time today. Yeah, but

Angela 1:01:35
I mean, I would say like, you know, oh, retrospectively, once Katherine was diagnosed, it made sense. My sister in law at the birthday party the day before she was diagnosed, she's like, it makes sense now, because she was trying to talk to my daughter, Catherine down to Capri Sun asks, Megan, my hurt my sister in law for another drink. And she's like, she just had a drink. She literally took the Capri Sun that my sister in law was drinking out of her hand, and drink it. And now she's like, that makes sense. Because she's like, she would never do something like that. But she was just that thirsty. But she was always like, she's always like looking up stuff for diabetes and stuff related to her. So she's a good support. I mean, that's great. We have been blessed in other ways that we're we have been have people that actually care. But I will say I think it's a two way street. Because when I did say something to her preschool teacher later, because I would always see posts about people would be rejected from preschool after they were diagnosed. So I said something. And I'm like, I just wanted to really thank you for allowing Katherine to come back. Because that would have not been okay. It would have been like another hit to being diagnosed. Yeah, she said, and she was like, at that point, it was a parent parental decision. If it was a parent, a different parent that was a centric, or neurotic or anything like that, I wouldn't have taken the risk, but you were very calm you came in, you explained it to us. And it made us comfortable. So that's why it's like, you have to have that communication. And I don't know, I just, I mean, I just feel like some people just like, I make mistakes, and I'm not saying justifying every mistake, but I think I don't want to make it to where someone feels so terrible that they never want another kid that has diabetes, I would hate that. And I You're probably the same way. Like you would be like it's okay, this is a learning experience. That's what I always do. Especially with the overtreated Hello, just next time, do it this way.

Scott Benner 1:03:59
Please just try to remember this the next time because there's gonna be a next time and I need to do is

Angela 1:04:04
there's gonna be a next time. I mean, the one time that her nurse did it, it was even the nurses fault. It was actually my daughter's fault. She went into her office and started crying. And I called her I'm like, first of all, that's not your fault. Second of all, Catherine's gonna get in. And it happens, you know? And but she took it to heart because she cared

Scott Benner 1:04:27
No, that's it's nice. It's nice to that they recognized that it would have been a lot to pile on top of another thing and take the kids school from her and everything else but it sounds to me like if you were the kind of if you were the kind of parent that they thought was going to be a problem they might have said no. So and

Angela 1:04:45
and I get it. I understand. So but now you have to take the positive with the negative and we're all learning as we go Hello.

Scott Benner 1:04:57
How are you guys making out with Kara Do you mind talking about like Whether your goals are what a one sees look like stuff like that. Oh, yeah,

Angela 1:05:03
that's fun. Um, she has been less than 6.1 or less for the last almost three years. I took she's on the Omnipod arrows. Her insurance won't cover any other one. I know that Omnipod five just came out, but that's a battle. With the insurance, the owl owl fight another day with her. She has the Dexcom we actually do the untethered method. And I started that last year, because we swim a lot. Because we live in the south, we have a pool, we swim a lot. And it was around June, she had three pod failures in 24 hours. She just cried in the last one, because she hates her Omnipod change. She's gotten a little bit better, but it would give her the tics give her anxiety. She tries to guess when it's gonna come based on the ticking when she know the tics are different every

Scott Benner 1:06:09
year I'm laughing. Arden still tell us that she's like, she, like

Angela 1:06:12
cringes in everybody. We have to pause everything because she has to hear the clicks. So we have to turn off the TV like it's a whole ordeal. So she had like a third. I think one was actually a change. Then she had a pod fare, then it was like eight o'clock at night, her blood sugar went to 400. The pod was bad. I think we might have had a bad batch or something. But I was just like, it's eight o'clock at night. So I just gave her some of my long, long acting. I was like, You know what, I'm done. I'll fight this. Another day. I need to sleep. But I don't want her to go to DKA because she's excessively so then my husband which I did read a little bit about untethered before that. He's like, can we just give her some on the some basil and then do the rest in the pump? And I was like, Well, yes, we can. So I said something to my daughter the next day. And I was like, Look, we can give you some a shot once a day. So you have some basil, because her biggest thing is the pod. If something happens with the pod, it interrupts her day, she has to stop what she's doing. She has to get, you know, it's a bigger deal when you're a kid. So I was like, let's try it for one week. I give you some basil. We'll do the pod for everything else after a week. If you're okay with it will continue. After week, she's like, My anxiety is less. So we've done it for a year, I do lose some control. With that, because there's more variation. There's more adjustments being made. But she's on such little basil during the day, that if something happens with her pod, I can just give her a shot to correct her. And then I could change her pod when it's convenient. Like she doesn't have someone doesn't have to stop to go to school. You know, it gives her more peace of mind. Cool. It's been a year and she likes it. And she hasn't fought me on it. And I even I mean, I'm a big proponent, I can't take the disease from her. I see adults that are burnt out. And I use their stories to help me with Katherine. And so if, if I can't, I told her, I'm like, you don't have to be on a pump. If you want to you, I am negotiable with certain things. You have to take your insulin, I don't care if it's a pump, I don't care if it's pen, you have to. That's non negotiable. But that is your choice. Is it with the Dexcom she, she has a love hate relationship with it. I do give her breaks. And because she was having really it's funny that you mentioned earlier about the flow nice that when she first had it, she had terrible reactions. Terrible. Like, it was terrible. But we finally have the Flonase and some skin barrier was sometimes she just doesn't want it. And so we make an address, we make a deal. You can have your Dexcom off if you're home with me. And any time I tell you to check your blood sugar, you don't give me guff about it. So before camp started, she was home for like a week and she was like I can I have a Dexcom break. I was like okay, but you know the deal. So she got to the third day and I was like check your blood sugar. And she's like, I'm like so are you ready to put your Dexcom back on? Yeah, but I think I have to give her that.

Scott Benner 1:09:48
Break something wrong with her having that experience? No,

Angela 1:09:51
because it's like this is a long term thing. I mean, is it make more work for me? Yeah, but there's something Things I'm willing to fight. And there's some things I'm not. And it's just funny that the things that affect children are different. Like once I was asking a patient who was just burnt out, and I was like, were you ever controlled and you know, and she was like, well, when my mom was in charge, I did good. Then I got to high school. And I had to go to the nurse to get my insulin and check my blood sugar. And I just didn't want to go. So that's where it kind of diverged for her. So one day I asked my daughter, I was like, what? At school? What about your diabetes, don't you like, and her, her thing was different than I would think. So she's like, I have to go to nurse brandy, before lunch, and I have to walk to lunch by myself. That was her concern. So I talked to the nurse, the nurse goes to her now. But it was something that me and you wouldn't necessarily think as an issue. But as a child,

Scott Benner 1:11:08
it's a good idea to ask, you know,

Angela 1:11:11
so I think it's good to ask those questions. I put her I had her see a psychologist when we were first diagnosed, because I was like, I think she's doing well. But I think to have an outsider talk to her would be good. So I brought her to one that specializes in chronic diseases. And she's like, she's very matter of fact, but I think it was a good idea that you brought her

Scott Benner 1:11:35
no, it's Well, I think that it's possible that all of us are not exactly the way we appear to other people. So you know, when you're raising someone, you're going off of what you can tell about them. And you think, Oh, this seems okay. You know, you like you said, a very simple thing. She would have just liked to have walk to lunch with her friends. And you never would have known that. Had you not asked her. I have a couple of questions. The first one about the untethered You said she doesn't get a lot of basil to begin with. But how much does she owe

Angela 1:12:02
during the day? Most of hers is in the morning at night. So right now in her pump she has most of it is actually in her pump. She gets like 30% of it with her Basal for her to Seba. I had more at one point, but she requires so little during the day that she was dropping. So like 30% of it goes with the trustee but and then the rest of it is through the

Scott Benner 1:12:30
What's her total basil?

Angela 1:12:32
Oh, her total? Let's see three plus. I think right now it's 10. She just went through a major growth spurt and I had to increase everything. And then now I backed on everything guess she gave out of the groups. So she during the growth spurt, she went to like almost 15 Like, I increased her insulin needs by like 30%. It was terrible three months. And then. And then now she's on probably what she was before the Grossberg. So I think it's about 10 total.

Scott Benner 1:13:03
So Arden just announced that she's done using a birth control pill to try to help her with her with her problem with her period. She's like, we have to find another way to do this. I don't want to be on this birth control pill anymore. And we're like, okay, great. No problem if that's what you want. And privately, I'm like, Oh, she's going to I hope she doesn't go back to these these odd periods, which she very well could when we're trying to figure out other ways to deal with it. But the the but the other part of it, I thought Oh, thank God because her blood sugar is so much easier to deal with when she's not taking those pills. And it was just terrible. Yeah, it's it's so much more difficult on the birth control for her than it is without it. So I was like, Oh, good. So she's got like, four. Like, we're like, we'll just finish the pack, you know, because that seems to be the thing you're supposed to do. And and she's got like five left and I'm just counting down like, I can't I'm so happy this is over. I don't know what's going to come of it but this part of it was not pleasant. Okay, so she gets like 70% from or pumped out 30% from and then I have another question because I'm gonna forget to ask you. I can't nail your accent down. I don't need you to tell me what street live on. But where in the country are you? Florida? Okay. Are you from there? Yeah, okay.

Unknown Speaker 1:14:16
I kinda want Florida is

Angela 1:14:19
weird because most people are not from Florida.

Scott Benner 1:14:23
Right? Yeah, that's what that's why I wouldn't guess because I agree with you. I think a lot of people don't live there initially. But you I kind of thought that and I just but I couldn't get maybe people who know the accent are probably like you couldn't tell me but I really I was I was having trouble figuring it

Angela 1:14:38
out. And it depends on where you are in Florida. Northern Florida is more south. South South Florida is different. And then there's the center. So

Scott Benner 1:14:52
Gotcha. Do you have like one of those Florida man stories do you have one that you know personally?

Angela 1:14:59
Well Florida man stories well it's just unusual thing happen in Florida and Jen now not personally but we see it's always every time we read a story and it's like theme sorry, had to be Florida like that's always like I'm like for my husband's it was like of course it is. But yeah it's just unusual things that I think a lot of people come here from around the world too. So at times I'm like dude I'm a Floridian they're just making this but but it's no there's a lot of Florida stories. It's just it's a it's an interesting place to live. I did We did live in Illinois for two years and I do not recommend going there in the middle of winter when you're from Florida. Just

Scott Benner 1:15:44
so I just Googled Florida man and nothing else. I have this is terrible. Florida man cut wife's throat played her favorite music as she passed. Driving while kidnap Florida man drives erratically to attract police kidnap Florida man, Trevor, what's the next one here? Oh, Florida man who won $2 million lottery credits his pregnant sausage dog. That's interesting. Florida man attack by alligator while playing catch near Pong

Angela 1:16:09
that is common the alligator thing. I think it wasn't me personally but around our area. I think a year ago this poor older lady alligator because she lived on a pond came through her sliding glass door. And she felt trapped like she didn't to do it. She's like it he are good. Why'd I guess he got her white bottle.

Scott Benner 1:16:36
Well, here this is to give context. Apparently the guy that killed his wife did it because she burned his passport. That's a that's an overreach on murdering her. Florida man arrested for allegedly distributing over $230 million of unadulterated HIV medication. That's nice. Florida man accused of stealing from a Hudson Valley New York nonprofit. Now the funny thing is, is that if you change this to like, I don't know. Let's just pick up like, Connecticut. Will the same thing happen? If I say Connecticut man? Ready? Let's try. Oh. I'm not the same. No, it's yes. Still. There's still stuff there. But I know that's become a joke over the years. Like, you know,

Angela 1:17:29
no, it is. But people like to visit. Listen.

Scott Benner 1:17:34
What are you gonna do? You got an ocean. That's hot,

Angela 1:17:35
though. It's It's hot. It's okay.

Scott Benner 1:17:39
It's not the right kind of warm.

Angela 1:17:40
No, I mean, summer. It's bad. Actually. August is the worst here. But in the winter, we're like, hey, it's Christmas. And we're swimming. Yeah,

Scott Benner 1:17:51
I tell you I always think that the the actual indication of success is being able to live in a warm climate in the cold months in a cold climate in the warmer months. So I very small goals in life, but that's one of them.

Angela 1:18:04
That's a good goal. Yeah.

Scott Benner 1:18:06
I just I you know, when you're you don't know. But you walk outside and that cold and you're just like it did.

Angela 1:18:11
We lived in Illinois for two years. I got depressed, terrible. Just like why is it so cold? Well, because it was funny. Because when we moved up there because my husband got a job there. And I when I started my new job, they're like, Hey, where are you from? I'm like Florida. They're like, Why did you move here? Because all the people had just came back from.

Scott Benner 1:18:30
Like, the heartstart. When people are like, you're gonna hate this, like, oh, well, it

Angela 1:18:34
was like negative 35. Like November, it was like negative 35. And I'm like, and I had Katherine was three months old. And like, you're stuck inside in it, it for months. And I remember it was April on it started snowing, and I'm like, why is this okay? Like,

Scott Benner 1:18:53
I know, I saw like my brother and Jenny live in Wisconsin. And sometimes you're like, how's it there? And they'll say things like, that's not bad. It's like minus 10. You're like, What do you mean? Not bad? Like, why are you there? Leave, pack your things up and go somewhere else. Because other places you can get hurt houses, other places. Go get one of those. Jesus, it's minus and it's getting to your bone. Yeah, I don't like it. All right. So is there anything that we didn't talk about that we should have?

Angela 1:19:21
No, I think I mean, we just everybody's everybody. I think everybody's story is different. Right? And I think everybody's unique circumstances is different. And as you know, you've talked to enough people and like every one of my patients is different every one of their stories is different every one of their just abilities to manage is different and I think I just I like that you promote kindness and you're very good online shutting down people that are negative.

Scott Benner 1:19:55
So interesting. You brought this up, so I'm gonna get your opinion. Okay. So We're recording today, I get this, I just have windows open, like my desk as a couple of monitors on live windows on once the Facebook group and everything. And this thing pops up in front of me. And this person doesn't. I'm gonna give you the whole story. Okay. And then you tell me what what I'm going to, I'm going to talk to you about what I should do. So a couple of days ago, listen, I don't think it's any, any, any great surprise to people. There's a lot of content in the world. And you have to when you're making it, you have to tell people like here it is, you know, like so they're they remember, even when they're subscribed and stuff like that. So go on the Facebook group. And I actually was genuinely asking this question. I had a episode with a girl in her mid 20s, who learned that she had diabetes because she had a, an abscess, in her most delicate places, actually, between one of her most delicate places, and the other most delicate place, there was an abscess, and she ends up in the hospital for the abscess, the stories to me was funny, like, like India was interesting, because she was dating a guy for not very long. And they were only together like four months. And she had to basically say to him, like, I need you to, like inspect my undercarriage and tell me what's going on and take a picture for me, right. And it just the whole thing was just It was ridiculous. And moral of the story she gets there, they give her a bunch of blood work her blood her, her blood sugar's in the three hundreds and nobody at the hospital even mentions it to her. And you're right. And so and she's got diabetes in the family. And she's kind of so focused on that her butt just exploded that she's trying not to like she's not even paying attention. And she tells a little story. Now here's the thing. When she tells when she asks to come on the show, and you know this to be true. I didn't make her tell me what she was going to talk about on the show. I have no idea. I don't know what pumps she uses. Does she have a CGM? I don't know her diagnosis story. I don't know what she's gonna say there was a woman on the other day who had some interesting religious beliefs that she just came out in the middle. And I was like, Cool. This is what she thinks this is what she's saying. So my point is, is that I didn't know that Katie was going to talk about her butt exploding. I had no idea what her story was. And so I put up this little poll, and I said, How would you feel if tomorrow's episode was titled? butthole? Adjacent? Because I did. Oh, have you seen that one yet? And the player?

Angela 1:22:22
No, I didn't listen to by solid did post about it.

Scott Benner 1:22:25
Yeah. Okay. So you know, I got 25% of respondents said, I don't care. And by the way, about 600 votes. So it's a reasonable like, understanding what people think 11% of people said, Please don't. And 63% of people said they didn't care. So in my mind, 63 plus 24 is the number of people in this poll, who don't give a crap. You know, like, yeah, 89% of people are like, it's fine. Use the word butthole, which was really what it was about. And everybody overwhelmingly has reported back about enjoying the story. And so, anyway, this message pops up under this, this post. And a woman who's not been in the pod cast group for very long, maybe a couple of months, says this episode was such clickbait with that title. And I thought, I read that while you were talking, I was like, this whole story is about something that happened right next to her butthole. This is not this is absolutely like accurate. And I'm like what, okay, she says, here's the summary. Adult goes to ER for unrelated issue gets bloodwork done, has higher blood sugar, we didn't need to know why she was in the ER or the lead up to it. Now this to me, says the talk about her intimate places made a made her uncomfortable or whatever, I don't know, I can't be in this person's head. What I can tell them is if they made a podcast, it'd be very boring, and nobody would like it. And so but but that sentence is not true. Like, like, I think the thing, I think the story is about the story. And whether I believe it or not, it's how the person wanted to tell the story. She goes on and says You didn't need to you didn't need or the lead up just that surprise, she has diabetes, too. And she was the first to notice, but you never would have had her on. If that was the story. You wanted sensationalism. And I thought, well, what an interesting that makes sense. Hot take so I'm so in this person's mind. I'm assuming that that I get emails all the time. And I wait for the one where the lady says I had an abscess next to my butt. And I go, Okay, well, you can come on. First of all, that's not how I do it. And secondly, I don't feel like I lean towards sensationalism. Actually. I know I stay away from it. But I just like Okay, so now my question is, do I respond to this person say, hey, with due respect, you're making assumptions here. You're not right about or do I just I would,

Angela 1:24:50
I would ignore them. I don't know.

Scott Benner 1:24:52
I don't know. Well, though, what should I feel? Because

Angela 1:24:55
in my mind, if I respond, I won't be nice. I'll be

Scott Benner 1:24:59
nice. I don't have a problem with her. I get that that's her hot take on it, but she's not right. So like,

Angela 1:25:06
right, but I don't know, somebody will also have a sense of humor. Scott, you should know that. But

Scott Benner 1:25:15
I wonder if this might be part of the situation because I listen. So you go listen to that episode. And if you don't think it's interesting and funny and bizarre, you let me know. But I got done. And I went downstairs and my wife's like, Hey, what's going on? It's like, I just painted my Mona Lisa upstairs. She's like, what I'm like, I'm never going to do better than the episode today. And she, she's like, why am I? Because this girl told me this real honest story about what happened to her. And we stayed in it for a while, you know, 20 minutes in the beginning, something like that. I said, butthole a couple of times for fun. Like it was pretty much it. But I mean, it's, at one point, this girl, this poor girl in her mid 20s had to decide, am I going to show my four month boyfriend this problem? Right? And they decided to do it together. And you know, as she's talking about, I started having questions like, How do you do it? Did you bend over the counter? Did you like lay on it? Like, you know, like I need to know. And she turns out, she's like, I stayed on my side, I left my underwear on. I just kind of pulled it aside. So you could see a little bit to get in and take a picture. Now here's the thing as she starts to marry that guy, that's what she said. And I said, I said, did he grabbed the cheek? Or did you? And she goes he did. And then she pauses and said, and then it just opened up. And I was like, Oh, God. So like, like, all I'm thinking about is this poor girl seems to like this guy. And this is this

Angela 1:26:39
way, you know what he's like? Sounds like a good guy. I haven't listened to their episode. But any guy that is willing to do that is

Scott Benner 1:26:46
she made that point, I made that point. I made a joke. I said, Did you see him redownload his Tinder app on the drive to the hospital. And anyway, I thought it was a really delightful honest, like story and everything. And this one person, which is fine, everyone, let them ruin your day. They're not gonna ruin my day. Don't you worry.

Angela 1:27:05
I think stories are good. Like, like, what? When I talk to people, especially patients, I like to know their them outside of their diagnosis. I think it better helps me treat them knowing that stuff, knowing their social history, knowing what they do for a living, because sometimes you realize, oh, well, their education might you know, it's good to have outside context. So I think you just kind of you give people different stories that other people can relate to. They might be like, Oh, something similar happened to me that or they, it's good to have to feel like you're not alone in this world. But I think it's great.

Scott Benner 1:27:50
I don't care that she doesn't like the episode. It's fine with me. I don't I I don't vet people and say yes, are the only people I say no to our authors, because they just want to come on and talk about their books. And it's painfully boring. I don't like doing that. It's not this podcast,

Angela 1:28:08
they tried to do they try to come on a lot. It's a non

Scott Benner 1:28:10
stop delusion of people who want to come on and talk about their books.

Angela 1:28:15
What did they say, Hey, I got a book. Can I talk? Or do they present themselves as somebody who's a listener and just happened to have a book?

Scott Benner 1:28:24
No, they usually, they're usually out there trying to find places to selling a book is really hard. And so I had to do it once. It's not easy. And it's fine. But I've done it a couple of times. They just It's

Angela 1:28:37
oddly, the only one I liked. Well, I because I actually that's how I found your podcast because I read his book and as a follow up him so then people mentioned you was sugar surfing. Stephen ponder. I liked his book.

Scott Benner 1:28:51
Yeah, I've never read it. But I've had him on. And I don't I also don't read. So it's not up my alley. Like I'm like, I'm like a books like you want to come and talk about movies. I'll do that with you. And I don't want to talk about books. Um, it's it's usually like, you know, my kid was diagnosed, I wrote a children's book about this. And they just they want to sell the book so badly, that the conversation is boring, and no one listens to it anyway. And it's just a waste of everybody's time. So I don't do authors. As a matter of like, you know, course principle. Yeah. And I'm not saying I'll never will, but I know

Angela 1:29:23
I think cuz you've been really honest about like, you know, your sponsorships and stuff like that. And then if you just brought on a bunch of authors all the time, people would probably think that you're like, changing the direction of your show.

Scott Benner 1:29:37
I just make a podcast that I think is interesting. So But anyway, I don't curate people's stories. I don't wait till somebody says something outlandish to have them on the show. And as a matter of fact, there's a ton of actual sensationalism in the diabetes community. And I don't, I don't lean into any of it. You don't. By the way, like any you know, you could say You know, like, Oh, I almost died. And cookie saved my life and all that's, you know, all that stuff. And and I could, you know, I could put that in a title. And to me that would be hurtful. Like, I don't know, I put the word butthole in the title because this thing happened to her buckle. And by the way, it was on her team. And I didn't say, and that's I don't know if that's that's not a technical term, I don't think but yeah. Oh, Angela, you're in the medical field does have a role is that paired to them?

Angela 1:30:30
It's kind of like the peritoneum area. I'm assuming if that's what she's alluding

Scott Benner 1:30:35
to. It's the distance between the Yeah, what I what I took from this was the from somewhere between the bottom of her vagina and where her butthole is. She has a problem. So is that the peritoneum? Yes. Okay, you see how that wouldn't have been a fun title for the podcast episode. You know, I'm saying like, so I tried to make it fun. And I also wanted people to know that the word butthole is gonna come up in this episode. So if it's something you're not comfortable with

Angela 1:31:02
that, it's not that, like, I don't find that offensive.

Scott Benner 1:31:09
You live in Florida.

Angela 1:31:10
I have Florida man story.

Scott Benner 1:31:12
Yeah, you've got neighbors who put meth on their cereal? You're not You're not thrown off by people's butts. Are you right now? What? Are you picturing which neighbor I'm talking about? Are you thinking No, I don't

Angela 1:31:25
know. I was thinking, Well, maybe not my not my particular neighbors, but people that I have known.

Scott Benner 1:31:33
I hear you. Yes, I do. Anyway, I am going to very politely respond back to this person and let them know that there. But it's okay. I don't mind if they don't like the episode. But they've made a couple of assertions here that just aren't true. And I'll be clear with her. Why would you do that? Yeah.

Angela 1:31:55
I Yeah. Cuz I would, you're nicer and your response, probably the night would be but

Scott Benner 1:32:01
our time I actually feel like I don't have it in me anymore to be like, go to hell, like I just don't like infested.

Angela 1:32:07
That way, I think I would just get a sense of, I don't know, I get very, I don't write well, when I'm angry. I usually have to give it 24 hours. So that's my general rule. I'm

Scott Benner 1:32:21
gonna stop talking to you right now. And then we're gonna say we're gonna say goodbye privately. And, and then I'm going to answer her. So. All right. Well, thank you very much.

Angela 1:32:31
You're welcome.

Scott Benner 1:32:37
A huge thank you to Angela for coming on the show and sharing her story. I'd also like to thank cozy Earth and remind you that at cozy earth.com You can get 35% off everything on the website by using the offer code juice box at checkout. And of course, thank you to the Omni pod five Omni pod.com forward slash juice box use my link to get started. Where to learn more. Don't forget to check out the private Facebook group always free Juicebox Podcast type one diabetes 34,000 Plus members in there right now answering questions and being supportive. It's a wonderful community. Don't take my word for it. Check it out. Juicebox Podcast type one diabetes on Facebook. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.