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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 875 of the Juicebox Podcast.

On today's episode I'll be speaking with the mother of a child with type one diabetes, her name is l and l was not good at getting her equipment set up. I'm not gonna lie about that. This just gets ridiculous and I mean funnier and funnier as it goes along. But nevertheless, while you're listening to it, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your healthcare plan for becoming bold with insulin. If you're a US resident who has type one or is the caregiver of someone with type one, please, please please go to T one D exchange.org. Forward slash juicebox and complete the survey. So all I'm asking you to do in exchange for that here. If you want to get some super cozy jammies or bedspreads, sheets, towels, pajamas, cozy earth.com at checkout, use juicebox to save 35% on your entire order cozy earth.com there see fill out the survey for me and then go get yourself some like 35% off jammers. Although I would get these joggers if I was you there's so soft this episode of The Juicebox Podcast is sponsored by Omni pod five. Learn more about the tubeless insulin pump and how it works with the Dexcom G six at Omni pod.com forward slash juice box. Get yourself an omni pod five. podcast is sponsored today by better help better help is the world's largest therapy service and is 100% online. With better help, you can tap into a network of over 25,000 licensed and experienced therapists who can help you with a wide range of issues. betterhelp.com forward slash juicebox to get started, you just answer a few questions about your needs and preferences in therapy. That way BetterHelp can match you with the right therapist from their network. And when you use my link, you'll save 10% On your first month of therapy. You can message your therapist at any time and scheduled live sessions when it's convenient for you. Talk to them however you feel comfortable text chat phone or video call. If your therapist isn't the right fit. For any reason at all. You can switch to a new therapist at no additional charge. And the best part for me is that with better help you get the same professionalism and quality you expect from in office therapy. But with a therapist who is custom picked for you, and you're gonna get more scheduling flexibility, and a more affordable price. I myself have just begun using better help. Better help.com forward slash juicebox that's better help h e l p.com. Forward slash juice box save 10% On your first month of therapy. Don't don't start out don't start looking behind you. Because you're okay. You're gonna look away from other microphones. Okay, all right, I can do that. me a second. I'm so tired now it's over. Alright, so you're being recorded so that you know. Okay. I am a little lightheaded. Give me forever. That was like the longest one maybe ever. That's okay. I think what will happen is later today, you'll just realize there's a switch on the headset that turns the microphone on or something

Elle 3:49
like I've been looking around. It's not mine.

Scott Benner 3:53
Is there a switch on the wire?

Elle 3:55
There is a a volume control on the wire.

Scott Benner 3:59
Have you tried turning it to see what would happen? I have I've gone all the way

Elle 4:03
down. And I've gone all the way up. And it just makes you quieter or

Scott Benner 4:07
louder. Okay, good. Well, let's get that adjusted to where you want it. Yep. All right. Introduce yourself. So we can start talking.

Elle 4:19
Oh, my name is Elle and I have technical difficulties. I have four children. And one of them is type one who's my oldest?

Scott Benner 4:29
Alright, let me just make a suggestion to everybody have less children or fewer children. And then you can afford a Mac you understand what I'm saying?

Elle 4:37
Oh, my husband would never allow.

Scott Benner 4:40
Yeah, God forbid stuff would work. And

Elle 4:46
it doesn't make sense to my brain. I will say that the Apple System I cannot. Like if you thought that I had technical difficulties with this. You would do you would just hang up on me if we were trying to figure it out on Apple. So

Scott Benner 5:01
let me tell you what would happen if you had, if you had an apple, you would have turned it on it would have worked. And that would have been the end of it. You would, there wouldn't have been anything for you to understand.

Unknown Speaker 5:11
But I probably wouldn't figure

Elle 5:12
out how to listen to the podcast. So I don't know. Like,

Scott Benner 5:16
I think you would, I definitely think you would, I'm sticking with what I initially said, have fewer children buy a Mac. Okay, I know sometimes you go out there's like, these tablets are at $9. And these PCs are foreigner bucks like, oh, $4 just,

Elle 5:28
oh, I don't really use my PC a whole lot. If you couldn't guess that? I do you use my phone a lot. I don't know what my phone's problem was today. But honestly, technology in general just hates me. I have wanted to take my printer out and beat it with a baseball bat in my backyard. So many times,

Scott Benner 5:48
we absolutely should have recorded the last 20 minutes and just put it at the end of the episode. Just just my my two favorite parts where you call it you were kept referring to the computer as it but you weren't referring to the computer, you're referring to the sentient decision making that was happening in front of you as it you're like doing this?

Elle 6:10
What else do you call it? What would you call it?

Scott Benner 6:12
Well, I mean, do you want to go over this? No. I tell me how old you are.

Elle 6:22
I am 36

Scott Benner 6:23
This is the closest I've come to speaking to my mom about tech.

Elle 6:29
I have been okay, so I signed up to be here at seven months ago. And every week I woken up and gone. My computer's not gonna work.

Scott Benner 6:37
Oh, you were right. I'm telling you, at least you're not paranoid. At least you're not paranoid. My mom when something would go wrong with her computer. She goes Come on guys. And I finally one day I was like Mom, who were the guys. Were the guys were talking about the computer. I was like, Well, who are you talking to? You're like it's doing this. And I'm like, I don't know what it is. And then, but the biggest. My biggest laugh I didn't actually tell you about was in the chat. While we were trying to figure out why it didn't work. You're like this was my biggest fear.

Unknown Speaker 7:16
And seemed like That's why

Scott Benner 7:19
I don't have an exact number L but I'm gonna guess I'm gonna guess that I record about I'm gonna make an educated guess here. I gotta do this. Don't spend weeks in the year say I'm the worst. Yeah, I'm gonna say that I record over 200 times a year. There are only technical difficulties about three times. I don't think they've ever gone on for 20 minutes before I win, as always, because here's what I feel like happened. I feel like you gave up.

Elle 7:56
But didn't. So I was like, I was walking up the stairs with confidence on my phone with my battery pack ready to go lock myself in the bedroom. And I'm like, it's gonna work. And I said testing, and nothing.

Scott Benner 8:12
I just maybe you didn't give up with effort, but I feel like he gave up in your heart. I feel like there was a moment where you were like, I knew this wasn't gonna work. And I'm not recording this podcast. Did that. Well, I

Elle 8:22
I sent a message to my friends before I started. Please wish all the blessings on my technology today. Because they know that this is this is my life. I'm cursed when it comes to technology.

Scott Benner 8:36
I'm gonna assume it's not you. I'm gonna tell you just keep squirreling away money. Get yourself a MacBook. Everything's gonna be fine. Okay. Alright, so I'm sorry, we gotta keep a diabetes, just say

Elle 8:53
he's 12.

Scott Benner 8:55
Okay. And you have four kids, though in total? Yes. How'd you figure that?

Unknown Speaker 9:03
Well, it works. Don't take computer for that. No technology

Scott Benner 9:07
for that. I'll tell you if you need to. You need a computer to have a baby. You'd be living with a cat. I have one of those. Alright, so hold on. So the 12 year olds got type one. And I don't need all the other particulars. But what are the ages the other kids just so I can make fun of your reproductive health and stuff like that letter nine, six and 2962. And you're 36 Six you married?

Elle 9:36
I've been married for almost 16 years since you were 20. I was 19. Oh, well. He was 20 by a couple days.

Scott Benner 9:45
Well, I don't care that your kid has diabetes as much anymore.

Elle 9:50
None of those were in there. None of them attended my wedding. Just so you know.

Scott Benner 9:53
I'm doing the math. Your choice is not what I'm saying. I want to know how you end up married at 19. Are you escaping the law? I know where you're running from l tell me right now. Don't you don't have to tell him. He thinks you love him. But where were you running from?

Elle 10:08
I wasn't running from anything. I promise. Like we chose to get married. We wanted to get married. And a lot of people tried to talk us out of it. But I remember

Scott Benner 10:18
where those married people trying to talk you out of it. Some of them. Yeah, it's because they've been married. Okay, so. Alright, see you. Wow, that's amazing. Like, were you in college or fresh out of high school? Or what was the situation?

Elle 10:34
We got engaged the week before? Oh, my goodness.

Scott Benner 10:37
Unbelievable. You have a dog too. After all the microphones. You're not allowed to have a dog and a microphone. That doesn't work. You have to pick one. That dog sounds like it just ran for its life and it's little feet wouldn't catch on to anything. Is that what happened?

Elle 10:53
Well, she's a corgi. So she is short. And she doesn't have much to catch on to around here. But she was chasing a cat.

Scott Benner 11:02
So. Alright, let's keep talking to see if we can find a good decision in your life.

Unknown Speaker 11:09
The Corgi is a good decision. Just saying.

Scott Benner 11:12
Isn't that the Queen's dog asleep?

Unknown Speaker 11:14
Yes.

Scott Benner 11:15
How the hell does she help? Oh, are you gonna say something? No. I'll be asleep.

Elle 11:22
Um, she will tell me if someone's here. She will tell me if there is something wrong in the world. Oh, corgis are very specific about who they let in their house and how the broom is put away.

Scott Benner 11:40
So this dog is stands in for your anxiety. Yeah.

Elle 11:49
Okay, me figuring she's my second Corgi. My first Corgi was

Scott Benner 11:53
from anxiety.

Elle 11:56
I got when my my oldest son was two. Oh, how long did they live? I'm usually around 15 years. She died when she was eight.

Scott Benner 12:08
I'm sorry. Yeah, that was unexpected. I imagined eight.

Elle 12:12
Yes, very. Gotcha. Um, but yeah, she. We had a person come to our house and make threats one night in the middle of the night. And after some counseling, I decided to get a dog.

Scott Benner 12:27
Oh, how did this How old were you when this happen? You're gonna tell me serious stuff. Don't let me joke about it first. Okay. So I mean,

Elle 12:35
she, she's a dog. So like, there's good and you know, scary things that. I mean, she, she's like companion. But I want to say she's not like registered or anything. She just

Scott Benner 12:47
helps you like a ninja or something like?

Elle 12:52
No, there was a situation where someone thought my husband was someone else and came in made threats to us. And I didn't sleep. Pretty much the last half of 2011.

Scott Benner 13:07
So sorry. So someone just shows up your house with a mistaken identity situation? Oh, okay. You don't have to tell. Do you want to not tell me?

Elle 13:16
I can tell you. It's just kind of a long story. My husband had a co worker that purchased a gun from him. And then he used it on himself intentionally. And his brother thought that my husband had somehow convinced him to use it or was a drug dealer or something. And he came to our house and we were sleeping. So like, we did not hear texts or calls. But evidently he sat outside my house for hours texting my husband, that he was going to harm us. And then when we woke up at like, three in the morning, we were like,

Scott Benner 13:56
what? And we're still outside.

Elle 14:00
He was not outside when we woke up and got the messages. Okay. All right. So he was a grieving brother. Right? But,

Scott Benner 14:08
and you live in Texas?

Unknown Speaker 14:10
No, no, I live in Iowa. I wasn't

Scott Benner 14:13
sure how many other states you could just like, sell sell a gun like that? Because I know in Texas, all this

Elle 14:18
was back in 2011. Okay. So things were a smidge different. But

Scott Benner 14:26
wow, that's terrible. Yeah, so sorry. Had you had you been an anxious person prior to that?

Elle 14:34
I've always been an anxious person. I remember waking up for kindergarten and feeling nauseous.

Scott Benner 14:39
Really? Yeah. Have you done anything about it? Um, as an adult.

Elle 14:45
So for the last, well, 13 years, I kind of feel like my body is not my own. Since I've been pregnant or nursing for the last 13 years. And so medication hymns and pregnancy and nursing don't always go, as well.

Scott Benner 15:04
So you would do something if you weren't so busy pumping these kids out. All right.

Elle 15:10
I mean, the dog worked for a while.

Scott Benner 15:14
For a while, such a strong title for the episode, you're talking.

Elle 15:22
And I mean, it's still like, if I leave her at the kennel, or whatever it's called, when you like, go out of town and and you'll get back in time to pick her up. have a hard time sleeping sometimes.

Scott Benner 15:33
Wow. Okay, does this been passed on any of your kids? Do you see any anxiety with the kids?

Elle 15:40
Well, that, that plays a pretty big part in my son's diagnosis story. Go ahead. So, in I'm gonna say, march 2020, which is all you know, everybody knows what that is. We, you know, can't play with our friends. We can't go to the park and meet up with people. We can't do any of the activities that we've been doing. So my son starts talking about how he can't sleep at night. And like, he thinks he has heartburn he thinks he has upset stomach. And at one point between there and diagnosis, he like he came down, he's like, I can feel my heart beating. And we just thought that he had anxiety. Okay. He's a very extroverted kid. And we had just moved to our current house, just from across town, but there were no kids at my other neighborhood. And when we moved in the first day, we moved in, he was playing with neighborhood kids in our yard. And like, that was a really important thing for both of us, that he have friends and relationships. And then in March, all of that was just taken away. I mean, for good reason, obviously. But

Scott Benner 17:02
before we go on, is there a washing machine behind your air coming out of a vent, or oh, it's the air conditioner.

Unknown Speaker 17:08
Do you want me to turn it off?

Scott Benner 17:10
I don't want you to sweat. What do you say?

Unknown Speaker 17:12
I'll be alright, I'll turn it off. I'll be right back.

Scott Benner 17:15
You're fine. What's the dog's name? My daughter Arden began wearing the Omni pod tubeless insulin pump on February 4 2009. That was 5093 days ago. Were another way to think of it 1697 pods ago. At that time, she was four years old. Hang out with me for a moment while I tell you more about the Omni pod Omni pod.com forward slash juice box. Today Arden is 18 and still wearing Omni pod back then there was one choice just one pod but today you have a decision to make. Do you want the Omni pod five, the first and only tubeless automated insulin delivery system to integrate with the Dexcom G six, because if you do, it's available right now for people with type one diabetes ages two years and older. The Omni pod five is an algorithm based pump that features smart adjust technology. That means that the Omni pod five is adjusting insulin delivery based on your customized target glucose that's helping you to protect against high and low blood sugars, both day and night. Automatically. Both the Omni pod five and the Omni pod dash are waterproof. You can wear them while you're playing sports, swimming in the shower, the bathtub, anywhere really. That kind of freedom. Coupled with tubeless a tubeless pump you understand it's not connected to anything. The controller is not connected to the pod. The pod is not connected to anything, you're wearing it on the body tube lessly no tubing to get caught on doorknobs or anywhere else that tubing with those other insulin pumps can get caught Omni pod.com forward slash juice box. That's where you go to find out more. You may be eligible for a free 30 day trial of the Omni pod dash. You should check that out too, when you get to my lake Omni pod.com forward slash juice box. So if you're looking for an insulin pump that is tubeless waterproof, and automated. You're looking for the Omni pod five. If you want to do it on your own, and you're not looking for the automation Omni pod dash for full safety risk information and free trial Terms and Conditions. Please also visit Omni pod.com forward slash juice box I should ask that center. Hey buddy. God save the Queen. I looking at pictures of corgis online. They are cute. Like a like a fox with a dog face.

Unknown Speaker 20:00
Okay, it takes a minute for

Scott Benner 20:02
your find your heart, let me know.

Elle 20:04
It's probably supposed to be 97 today,

Scott Benner 20:07
you'll probably find that What's the dog's name? Retta. I tried to call to the animal when you went away, but I realized I didn't know the name. Oh, and I had my headset on to. She probably hear you read over the D rehta. Or

Unknown Speaker 20:22
RH a TTA or

Scott Benner 20:23
H. Okay, I got it.

Elle 20:25
It means speaker of the house. I picked her name because Retta means speaker. Gotcha. So her official paperwork says read a speaker of the house.

Scott Benner 20:38
You got paperwork for your dog? That's nice. She's

Unknown Speaker 20:39
She's, uh, you know, my Casey certified Gorgui. There.

Scott Benner 20:43
I'm looking at the pictures to cute. They have a fox with a dog's face.

Unknown Speaker 20:48
Yeah, the booty is the best part.

Scott Benner 20:53
I can't comment on that, because then I just Google's Corgi, but okay, really? I promise. Alright, I'm about to do this. And if I see weird dog porn, I'm really good.

Unknown Speaker 21:04
I'm gonna be weird dog porn. Promise.

Scott Benner 21:07
Oh, they have big fat s.

Dog is thick with like, two seats. Yeah, absolutely. There's a tissue box cover here. That's according he's asked. And I gotta be honest with you. I'm into it. That's funny. All right. Okay. All right. Now, hold on a second. So the kids not stressed. She's got diabetes.

Elle 21:36
Mm hmm. All right. But it's pandemic height. So we didn't make a doctor's appointment for something that's not like life threatening, you know? Because anxiety in itself is not always immediately life threatening. Yeah. And there's a higher one, that I had my phone on me. That's fine.

Scott Benner 22:00
That's fine. Don't worry about

Unknown Speaker 22:05
so

Scott Benner 22:07
you don't make an appointment right away. And then what happens after that?

Elle 22:12
It's so I was pregnant at the time, of course, obviously. And then other things start happening that I you know, push off as new baby. His emotions are crazy. He was, like, had no self control. I mean, what 12 year old does but even more noticeable than it had been? He's we homeschool. So like, if anything challenged him. It was just a meltdown. Yeah. And I, I attributed that to a new baby in the house or a new baby coming. And thought, this kid needs some counseling. But we're not doing that right now.

Scott Benner 23:03
Have you seen that kind of behavior as other babies were being born?

Unknown Speaker 23:07
Yeah, honestly. Yeah.

Scott Benner 23:12
So, as expected, it was easy to like match up with something you'd seen in the past,

Elle 23:16
right? I mean, all of his symptoms were easy to match up with other things. Like, he's always been a big eater, like, eat and eat and eat. And he didn't have excessive thirst. But we were telling him to drink water. Because we're like, you don't drink enough water. You're saying you're hungry, because you need to drink more water. Like, let your stomach catch up with what you've eaten. Because he was eating as much as my husband and I and he was nine. But he's always eaten a lot. Like, since I could hand him a plate of food. The one of the first words he signed when he was little with baby sign language was more and I mean, it's always been a thing that he just eats and eats and eats.

Scott Benner 24:08
You teach the sign language when they're babies. Yeah,

Elle 24:11
before they can talk they can sign sometimes. So think milk and more and eat all done potty.

Scott Benner 24:20
Yeah, I've seen monkeys do it. I mean, sure. But I didn't know

Elle 24:26
it helps with especially like right now my two year old is just starting to string a couple words together, but she could tell me a little bit of what's going on without so much hassle. I don't know like it's harder for her to form words with her mouth than just tap her fingers together to say more. Okay. So, yeah, going back to Remy he was eating a ton. He was very moody. He was very skinny. And he's always been very skinny. But I found myself googling Why are my child's knees so big? Because he was super skinny.

Scott Benner 25:21
Oh, I see what you're saying. His knees

Elle 25:23
looked swollen because he had no fat on his body.

Scott Benner 25:27
Oh, can I say something? I think the people listening are going to be mad at me if I don't tell you that the air conditioner wasn't the the sound Oh no. I don't mind the sound does that why do you mind this out? Don't let me lie to you. I hate the sound but I can deal with it. But I don't want you to like be cooking while everyone listening is like that poor girl is baking in that room and he's not telling her that it didn't know it's

Elle 25:48
okay. It's 97 outside but it's 92 or not 9272 inside so I think it might be the ceiling fan. Let me get that

Scott Benner 25:58
okay

Unknown Speaker 26:07
that work

Scott Benner 26:10
where'd you go? I'm listening. Oh no. Okay, still the hair it's fascinating. It's the microphone I guess. Because when you walk away from the mic it's not as soon as you walk away from the mic and stuff. Is your computer is your phone your your computer

Unknown Speaker 26:28
I don't wear my phone. No, no.

Scott Benner 26:31
All right. When you hear this back you're gonna test yourself see there it is. Wait, it's gone. Now it's back. What happens and when you're talking it still happens to just say the same word over and over again for a second coffee still there and then when you move away from the computer so what happens if you just move your entire body six inches from the

Unknown Speaker 27:01
coffee coffee coffee

Scott Benner 27:05
I have no idea what's going on. It's interesting. It's going it's going What does it sound like? Alright, let's play a game oh dear. Feels like like I want to say almost like a windmills running behind you. Or

Elle 27:26
I mean the computer fan is going

Scott Benner 27:29
now. God could that be it? Is it the computer or the computer fan? What is that? I can just I can tell

Unknown Speaker 27:37
I don't even know where it is

Unknown Speaker 27:44
now the dogs making noise

Scott Benner 27:45
don't worry I'm having a great time by the way I bet

I don't know right well then we're gonna have to let it go.

Unknown Speaker 28:03
I'm sorry. Sorry.

Elle 28:07
I almost like went out and bought a new microphone for this because I knew that there was going to be sorry,

Scott Benner 28:12
my microphone. I think it's definitely the computer.

Elle 28:15
Well right but if the headset could work I would just take it upstairs and be alone in my room.

Scott Benner 28:20
Oh, but don't worry about what you don't think the sounds in that room though. Oh no. All right. Scale louder. What is that? Refrigerator I can't turn my refrigerator it might be the refrigerator walk away from the refrigerator. Is the computer like

Elle 28:46
computers plugged in because it's so old and crappy that it's going to die if I don't keep it plugged in.

Scott Benner 28:50
Interesting. It definitely could be the refrigerator

Unknown Speaker 28:56
I can't move the refrigerator I'm sorry yeah,

Scott Benner 28:58
let's really you could let's think about

Elle 29:01
all my insulin would just sit there

Scott Benner 29:03
and Dolly and an extension cord I think we could have this straightened up pretty quickly to stop now his refrigerator not running anymore. Right there it is. often does your refrigerator run for by the way?

Unknown Speaker 29:19
I don't know it's 97 degrees outside and I turn the air

Scott Benner 29:22
probably more when it goes through the air.

Unknown Speaker 29:25
No, that's okay. I'll be alright

Scott Benner 29:32
alright, I'm not giving up I'm not I won't give I would like you to move out of the way you said that the spell or the rust belt or what do they call that? There? I am. Hi Well, what part what belt is Iowa in?

Elle 29:44
Probably the Bible Belt. I don't know. That's the only one I've heard it referred to.

Scott Benner 29:50
I just Googled Iowa belt but now I'm just looking at belts that

Unknown Speaker 29:56
go back to Corgi butts.

Scott Benner 29:58
No, we're done with that. All right. Okay, so fascinating thing that you just said, like an hour ago that you're that he was so skinny that you started thinking his knees looked large. Mm hmm. Yeah. May I tell you that we used to think that my son's ears were big. But then we realized his head was small, and his ears were the regular size.

Unknown Speaker 30:22
Yeah, that I mean, that matches that's,

Scott Benner 30:25
and the way we did that was by measuring everyone's ears in the house, instead of by just measuring his head probably would have been the way to go. But looking back on it now, is a bit of a faux pas. So we measured everyone's ears and his ears were the same as everyone else's. And we were like, Oh my God, we've always thought you had really big ears. And then we realized like he wears a smaller hat. Like he's like a seven and a quarter, or sometimes seven, an eighth or something like that. And we're like, Oh, your ears to the right size. And this happened to you. The legs. Were getting so skinny that the knees seem big. Yeah. How long do you think this was going on for?

Unknown Speaker 31:02
Oh, months.

Elle 31:05
I went back through on my like my facebook albums and looked at pictures of him, because I organized them by date. And the last picture that I can look at him and go, that's a kid that probably doesn't have diabetes is March of 2020. And he was diagnosed in August,

Scott Benner 31:24
March, April, May, June. Oh my gosh. Was he okay?

Elle 31:29
Yeah, he was okay. I really think and I've talked to us in the chronologist about this. I really think that his activity level kept him alive. Because that kid runs and runs and runs and does not stop. And when he runs his blood sugar goes down.

Scott Benner 31:50
Well, okay, so you think he was kind of managing it off himself? Do you think there was any kind of looking back any kind of honeymoon whatsoever helping him?

Elle 31:57
No. I mean, well, I don't know how, I don't know how a honeymoon would work before diagnosis. Because I mean, I wasn't giving him insulin. So I don't I don't know how that work

Scott Benner 32:08
would be it would just be if he was getting help, and then not getting help from his, you know, from his pancreas. So it was kind of jumping back and forth.

Elle 32:15
I mean, maybe I don't really know.

Unknown Speaker 32:20
It's hard to

Elle 32:22
guess that back when he was. You know, just yeah. Not diagnosed and having all these symptoms, but I don't know what he did that day.

Scott Benner 32:34
You know, the joke where someone calls and says, Hello, and you don't know who they are. And you go Hello. And they say Hi, my name is Scott. I was calling to find out if your refrigerators running. And then you go running. It is like oh, you should go catch it.

Unknown Speaker 32:53
The refrigerator turned off so it's not the refrigerator.

Scott Benner 32:57
I'm not fascinated by what's making noise and you're

Unknown Speaker 33:00
like a Ghost Adventures got me the computer. That's the only thing I can hear

Scott Benner 33:04
turn off the computer and see if I can still hear

Elle 33:09
something under it. Like I could put like a What do you mean hello or something under it? Really? That would do something? Maybe Maybe it's like rattling too much on the table.

Scott Benner 33:19
You have a computer that rattles

Elle 33:21
I mean the fan you know like maybe the fan is just

Scott Benner 33:24
I'm worried about all of you people listening now. Now I'm not just worrying about all you people have rattling computers. Do you want me to get a pillow? I mean, just lift it up off the table real quick and see what happens. I did it did change its computer. Slider now.

Unknown Speaker 33:47
Let me get

Scott Benner 33:48
I'm gonna need a corgi by the time this is over.

Unknown Speaker 33:54
Everybody my daughter's animal,

Scott Benner 34:00
I can feel my heart rate going down. I don't know what you did, but it's better.

Elle 34:03
I tilted the computer and put a stuffed animal under it. So that it's angled upward.

Scott Benner 34:11
It's different. It's lighter. So when you lifted it up, it was gone.

Elle 34:17
It's the computer Okay, of course it is. See, technology is out to get me. It's like it's not even malfunctioning. It's just Oh, I'm

Scott Benner 34:29
gonna have a stroke. I haven't felt what the last couple of weeks and this is not helping me. Don't be sorry. Actually, we should put my medical condition on the podcast so people can help me with it. You have a medical condition right hold on. We're gonna get back to your kid in the big news in a second. But here's what happened right? I feel like I got bit by something. So I'm like I'm in the lawn like my my mower has a problem. I'm on the ground fixing my mower. I know too famous to be fixing my lawnmower I agree to people gotta click on the links a little more in the show notes if you if you want Scott not to have to cut his own lawn, okay, so buy me a lot more. And by the way, don't buy me a lot more. I don't want that because the last time we joked about something like that, I got this amazing chair, I'm sitting in love, but I feel bad about. Okay, so, somewhere between my thumb and my forefinger, kind of on the meat of my hand, I get this lump, like the next day. And it looks like a bug bite. And I look at it, I think that's a bug bite. And it's hard and I touched, I guess I'll be fine. I don't care. There's a little itchy and take much of it. Next day, I wake up, there's another bump like that on like a finger on my hand, like my middle finger if I'm if I'm remembering, right? And I was like, well, that's weird. I must I got bitten twice. And then by the third day, there was one on my ring finger on my right hand, one of my middle finger one by my hand. And I started finding one like, in between my fingers somewhere else. I was like, what is happening? And they were super itchy. Oh, like, really, really bad. And now is the time where I decided how honest I'm going to be while I'm telling the story. And you know, got it everywhere. Gonna have to be honest. I guess we could bleep it out later. Don't you think?

Unknown Speaker 36:17
You got it everywhere.

Scott Benner 36:19
It started bothering me anywhere. Something touched me kind of lightly, where you'd get that kind of like, you know, like that initial like, response from your body. Like you can like, if you touch you know touched your arm, you're like, Oh, I'm touching my arm. I can feel it. So I would get it where anything was brushing me so my thighs would get itchy. I was wearing shorts. And then one day I'll it was my was my boss. And. And then and then one day I scratched them. Like just not even thinking like I was like that's an itch, scratch it. And then when I scratched them, then I just got this incredible response. And then it was very, very, very itchy. And it also moved around in other places near near the balls, but not the balls. And poison ivy.

Elle 37:07
Scott, do you have poison ivy?

Scott Benner 37:08
Do you want to hear the story? Oh, do you wanna jump in? And so and so don't know, I gotta save this. This is your fault, because your refrigerator noise your computer noise I gotta save this episode and tell people that my balls Ricci. And so as soon as I stopped touch, like, as soon as you stop scratching, it just dissipates. And it goes away. And I'm like, this is Chris Hogan having this crazy response, like so now I'm trying to live like not, you know, learn tighter underwear because I don't want anything to move. You know, like, I'm not touching my hand edits, I keep thinking it's a bug bite. I'm stronger than a bug bite, I'll be okay,

Unknown Speaker 37:48
a bug bite that moves from your hand. So for

Scott Benner 37:51
that can be that can be the name of the episode to a bug bite that moves in your hands. Not me. And so I wait three, four more days now. This I start getting tired in the afternoons to three o'clock in the afternoon, I'm getting wasted. And the itching is not going away. I said to my wife, I was like this is it. So what you've been wishing for, I'm dead. It's just happened and slow. She goes goes to go to urgent care. And I say no. What do I get an urgent care for? And I would wake up the next day, and there's a bump on my opposite hand. And I'm like, I'm gonna go to urgent care or go to urgent care. I'm sitting in the chairs. I know what you're thinking. Scott's too famous. That's good care. People don't click on the links. If you click on the links a little more of a guy come to the house. But right now I gotta go to urgent care. Okay, so I'm sitting in urgent care, this old man who had a bike accident came in, he was just one skinned body part. It was terrible, but older. And just like he's like, I'm fine. Like, I love that generation. He's like, it'll be fine. Like, excellent. So I get called back. The lady makes me weigh myself with my shoes on which I didn't appreciate very much. Then I go in the back. And this this down, there's I don't know, Pa maybe comes in. And it's a lady pa she's like in her mid late 30s. And she's like, what's going on? And I'm like, I'm so sorry. I gotta tell you this and I tell her and I'm showing her my hand. And there's these These hands are like lumps now it's not spreading. It's not poison ivy, just literally at these like these points. And I said and they're okay at the moment. But if I were to touch my, my business, like it would get very itchy too. And I said it if and if you actually issued it would like inflame and and then leaving it alone makes it go back again. And she's like, Tell me about that. So I started explaining that to her that I had to tell her that two nights prior two nights Good?

Day, it did work, by the way. But that's a scary thing to do, because I'm like, is this gonna burn? Or is it gonna? But I was in a situation where I was like, well, worst isn't gonna be worse. And so sorry. So she's just a pause. And I said, Please don't make me show you.

And she goes, she goes, I don't need to see them. And I took that as I don't want to see them. But she said, I don't need this. I think if I looked like Bradley Cooper, she'd be like, I need to see those. But fair enough, and like, you don't I mean, she'd be like, well, just let me look just to be just to be sure. Mr. Cooper, you know, and let me sit on the bench. I want to get down on that level. Like with me, she was like, no, no, it's okay. You could just You're fine. I let me look at your hand. So anyway, so she gives me the steroids. And then my pharmacist messes up writing the prescription on the bottle, because you know how hard that can be when you're a pharmacist. And they've got me taking three of these tablets twice a day. So I'm supposed apparently supposed to be apparently in the first three days, take two twice a day. But instead, I take three, you know, a few hours later, I go to bed, I take three more, I'm going to tell you four hours after I took the first time, these lumps on my hand, like you let air out of a tire. They were gone. And I was like, Huh, that's amazing. They just disappeared. And then little itchy. Next day. Not so bad. My hand didn't it anymore. And I was like, let me just see if nothing else edge like Greg said he had gone away. Third day I get up in the morning, I take these tablets. And I take a shower and I come down to Kelly and I'm like, I'm gonna have a heart attack. And she's like, what I'm like my heart's racing, I'm sweating in the shower. I'm like, something's like really wrong. And I'm and I take these, you know, the pills, and I shake them. And there's not many left. And I'm thinking, But this can't be right. Because this is supposed to last like a week. So I dump them out on the counter, I start doing my good synthesis, and I'm counting them and everything. And I'm like significantly short on these pills. So anyway, I go back to the pharmacist and I tell her you didn't give me enough pills. And then she goes, No, I gave you plenty. And then we realized that she'd written the wrong thing on the on the thing and I called the doctor doctors like, Is he alive? And I was like, Yeah, but he's fine. You know? So anyway, at this point, all the stiffness in my back that I live with pretty consistently is gone. Yeah, steroids will do that. My back feels great. My bumps are going off my hands my balls like I'm 20 years old, you know, they mean just terrific. And and then the story is ended. And from being honest with you, I still don't feel great. So this is probably you know, something really serious.

Unknown Speaker 43:22
You had poison ivy.

Scott Benner 43:24
Really? I do from my lawn? There's the poison ivy in my lawn.

Unknown Speaker 43:32
There might be

Scott Benner 43:33
I don't know it's an ivy makes you listen, I'm listening to you. You're counting on a dog to protect you from the man Well, I don't know if you know anything. So

Elle 43:41
I personally have never had poison ivy in my life.

Scott Benner 43:45
Can you give an advice for them

Elle 43:46
but everyone in my family will look at it well everyone except my dad. Everyone in my family can look at it and they're covered.

Scott Benner 43:54
Alright, so I did not have poison ivy I'm telling you for sure. How do you know because what a doctor looked at it I looked at it I know what poison ivy steroids

Unknown Speaker 44:01
which is what they would have done if you had

Scott Benner 44:04
no I was having like some sort of a systemic reaction to something. It didn't matter wherever I had this like no matter where you touch me I'd get itchy

Unknown Speaker 44:13
like your hands on your balls.

Scott Benner 44:15
One day I got in the shower and my eyebrows were itchy when the hot water hit my eyebrows I itchy eyebrows.

Elle 44:22
So I have had poison oak before and poison sumac and I don't know how personal you want to get but you've been talking about Go ahead man bit I've had my lady bits get poison something sumac I think and I thought I was going to pass out because I got a steroid and it worked. But it burned.

Scott Benner 44:52
Burning, burning for me.

Elle 44:55
I learned like I legit got like, tunnel vision I could et Cie couldn't hear was very close to passing out and it was screaming

Scott Benner 45:06
from the from the pain. That's what got you

Elle 45:10
from the shower when after I had taken this

Scott Benner 45:13
really interesting. Yeah, I'm just telling you I don't I something's not right still, like it's been over like I've been off the stories now three, four days and my back's a little stiff again. And I feel a little like, I don't know, I just feel a little off. I don't know.

Elle 45:33
I mean, you're on that many steroids it can make you feel off, I guess to

Scott Benner 45:38
I felt great on the steroids. The steroids?

Unknown Speaker 45:39
Of course you did anyone around you what's really like, what's his problem?

Scott Benner 45:43
The steroids may be considered like using like recreational drugs. I was like, Is this how people feel? This amazing. My back feels fine. I love more energy. Everything was good. Just a little sweaty. Like when I when I normally wouldn't be anywhere and get like super angry and hulk out on everyone. They're not steroids like that. They're prednisone, they're not going to steroids. Steroids suppress your immune system. Right. So I probably have like, some autoimmune thing.

Elle 46:12
I was just gonna say, but if you have an autoimmune disorder, and they're gonna make you go nuts,

Scott Benner 46:17
well, no, I mean, like they get they would give steroids for like, ra, right? They would give steroids for all kinds of stuff. Anyway, your big need kid you take him to the hospital eventually. 40 Man,

Elle 46:28
I did eventually take him to the hospital. I weighed him. And he had lost 10 pounds, which is

Scott Benner 46:35
why he was nine at the time. Yeah, that's a lot. Yeah. Okay. So now, so what? I mean, does he has diabetes? Ever? Enter your mind? Are you just like C so so you're taking them to the hospital?

Elle 46:51
Um, I had someone had suggested to me that he might have diabetes. But even looking at like, the the lists that you Google, I could easily write those off as like, well, of course he you know, is anxious. There's a global pandemic. Of course, he's eating a lot. He's always eaten a lot. He's drinking more water because we're telling him to drink more water, right. All the signs, I could easily point to something else and be like, No, it's not that because at the time, I did not know that type one was an autoimmune disorder. I knew it was sort of hereditary somehow. But I didn't know that it was auto immune. Okay. And after I weighed him, I went to our local drugstore and I bought a test kit with land sets. Or maybe I didn't buy Atlanta, I had to go back for something because I didn't realize it. It didn't all come together.

Scott Benner 47:52
But some of it but not all right. I

Elle 47:55
got like a meter and strips and a poker but I didn't have the land sets to put in the poker. So then we had a super high carb meal at lunch. And two hours later, I tested him and the first one said hi, and I was like, go wash your hands. And the second one said 300. Something. Stop it. So the second one said 300 something. And I knew that wasn't good. But I still didn't know that it was for sure. diabetes, because ironically enough, he'd had poison ivy the week before and had steroids. Like he'd gotten a shot at a walk in clinic for steroids. Like maybe two weeks, somewhere around there.

Scott Benner 48:43
Well, they probably helped him kept them a little jacked up. I'm telling you I've never felt better than I was on this. Meanwhile, I must have I probably have some rare disease now. Probably by like up like hyper nesis gravidarum or something like that. Did you say hyperemesis is that? What it is hyperemesis hyperemesis gravidarum? Is

Unknown Speaker 49:03
that what it is? That's, that's a pregnancy thing. It's

Scott Benner 49:06
not Oh, I just Googled rare disease real quick. And it said the first one that I saw.

Unknown Speaker 49:12
I had that so Wait,

Scott Benner 49:13
hold on. Stop. That can't be true.

Elle 49:18
Yeah, I had hyperemesis with my pregnancies. It's you can't have it. Sorry.

Scott Benner 49:23
hyperemesis for years to intractable vomiting during pregnancy that leads to weight loss. And you had that? Yeah. All right. Let's just be clear. First of all, this is the best episode I've ever done. Second, second, well, it's definitely the worst. But secondly, I Googled rare diseases while you were telling me about the kid. Yeah, clicked on a link because it said rare diseases. Then I spun the mouse. Like no lie, spun the mouse just down. And then I looked up. And I thought there's two words that sound funny when I think hilarious when I tell you it was a blast when I make this joke, I'm gonna say this because I'll mispronounce it. It'll be fun. The whole thing I almost meant with almost meant with muckle wells syndrome.

Unknown Speaker 50:14
I haven't heard about one, but I probably have it too. But instead

Scott Benner 50:17
I said, hyper misses, what is this hyper one? hyperemesis hyperemesis gravidarum? And you said I had that? Yep. Holy Hell, that's crazy. You should only have one thought in your head right now. I'm never getting pregnant again. What is muckle wells syndrome? That's the only thing you should be wondering right now. It's a form of cryo Perin associated periodic syndrome that is caused by a mutation in the C I A S one gene, and the increased activity of protein Cryer printed in the body. This leads to inflammatory damage throughout the body as well as several other symptoms, including the possibility of amyloid dosis. This is probably gonna end up being what I have.

Elle 51:10
I don't think I have I don't know what any of that means. But

Scott Benner 51:14
no one knows what it means. It's a rare, rare Genomics Institute. I can't believe it do. I just told you what it says how do you

Unknown Speaker 51:25
know if you have it?

Scott Benner 51:29
How's it diagnosed? Blood tests, degree of inflammation in the body

Unknown Speaker 51:35
inflammation. Got it.

Scott Benner 51:39
So got a patient may also undergo a cerebral spinal fluid analysis and audiogram a kidney biopsy or urine protein test. This is going to be so weird if somebody ends up having this that I know. Plus, I gotta start picking lottery numbers if that happens, because I've never put any effort. I can't believe you had the other thing.

Unknown Speaker 52:00
Me neither. All right. Okay. All right. It was not fun.

Scott Benner 52:04
Jesus it by the kilometer. He tests his blood, your blood sugar's high is the hospital. What did they do in the hospital for him?

Elle 52:11
Well, I tried to get him to go to the hospital. But I didn't know how to like, proceed after finding out that he had high blood sugar. I didn't know like, is this an emergency room. So I called Well, I talked to one of my friends. And she has a friend who has a kid with type one. And they recommended an endocrinologist. So I tried calling him but he works for the hospital to the University of Iowa. And I called them and they wanted to make an appointment for him in a month. I was like,

Scott Benner 52:53
already waited five months. So

Elle 52:56
I was like, I don't I don't think I can wait a month. And so they put me on hold for 45 minutes. And then they hung up on me.

And that again, that is my life like has not been disconnected while I'm talking to you so far.

So I called back and nobody answered. I was like, well, that's weird. Why would a hospital? Not answer? Yeah. So then I drove him to a semi local walk in clinic. And I had a two month old at the time. So I took her with me in a global pandemic, because I'm nursing her at the time, and I'm thinking we're probably going to stay overnight here. I made my baby. Yeah, she can eat. They did not like that. But they didn't send me away or anything. They immediately admitted him into the emergency room. And while we were pulling up pulling in, but we're walking into the emergency room, we see the ambulance pulling out. And we are rural Iowa, like there's only one ambulance. So they admitted him started him on a drip of some sort. I don't know what's going on at this point, because I'm just like, I know what diabetes is, but not a lot, right. And so three hours later, they decide they're going to transfer him. But they were calling around to multiple hospitals and all the hospitals are saying we are not admitting any patients right now. And I'm like, Is this because of COVID? Is this because he's like, he needs a PMT unit? Like what? Why? And somebody said there was a tornado in the city that you live in? I'm like, No, I don't think so. I would have known about that. Like, I was just there and my husband and my other children are still there. So they called to a hospital in Des Moines and Des Moines said no, they called Iowa City, Iowa City said no, they called Tom wha where I live. They said no. And finally, someone in Iowa City said fine, we'll take him. But the baby can't come. So I sent him in an ambulance. And I'm sitting here looking at my baby and my oldest and literally deciding, like, Who do I go with? Which was probably the hardest moment in the whole thing. I think it's the only time I actually cried. No. But I have an acquaintance friend, who's a nurse at the hospital that I was at. And she said, let your husband go. Because if you go, and you're with the baby, and if they don't let the baby in, you're gonna have to, like stay in a hotel, and you're gonna miss a lot. Because when the doctor is there, he's there. Like, you're not going to have him on your schedule. You need to be on his and the baby doesn't care. So my husband drove up separately from the ambulance, and I drove back home to pick up the other kids and stay home with the baby and the other two. And when he got to Iowa City, it was dark, like black because there were no streetlights there were no stoplights there. There were there was no electricity anywhere because of the tornado. It wasn't a tornado. What was it? It was a juried show. Oh, wait,

Scott Benner 56:34
hold on. What up to Rachel, is that a disease I might have?

Elle 56:40
It's basically a land hurricane. With like, I think it was 80 mile an hour winds straightens. So I'm thankful that I didn't send him in that first ambulance because he probably would have been right in the middle of it.

Scott Benner 56:56
How often does that happen? Never. A direct show is a widespread, long live straight line windstorm that is associated with fast moving groups of severe thunderstorms. Wow. Can cause hurricane force winds tornadoes, heavy rains and flash floods. Yeah, and not for nothing. You live in the same town as radar O'Reilly from Yes, yeah. Did you know the man? Well, he didn't recently passed away the man that that they base this character on recently? Yes. Donald Schaefer. Mr. Schaefer was born in 1929. He died in 2022. He was the inspiration for a character on mash called radar or Riley who was from a tumble Iowa. Yep. You learn so much on this podcast. That's all and the thing about the windy thing that Theresa or something? She's again, why do you live there?

Elle 57:58
Well, a few reasons. But for the math. Did you look that up to know that I just love math capital of the world?

Scott Benner 58:08
No, it isn't right. No. You're making that up. You're being fun. No, I'm not. I'm not sorry. I didn't make fun of that.

Unknown Speaker 58:17
Okay, clean of meth is from a tumbler.

Scott Benner 58:20
The queen of meth is from a tumbler? Yeah. What is the Swiss she calls herself it's Tom Arnold sister. All right. Oh, no kidding. In that documentary she made they made the documentary about her. Well, I guess if you're gonna be famous for something that'd be okay. Queen of meth made $200,000 a week. Meet Tom Arnold sister Tom Arnold, the man who used to be married to Roseanne Barr.

Elle 58:49
Yes. They used to live in Eldon, which is I think it's all done. Maybe it was agency, which is like five miles outside of Ottawa maze. And maybe

Scott Benner 59:00
he's very good friends with Arnold Schwarzenegger. I believe we see these things. I know. That's odd. You need to know the other odd things are you know,

Elle 59:09
I mean, let me know everything about Tom Arnold is probably a little odd.

Scott Benner 59:13
A lot. A lot. A lot of weird energy, that's for sure. All right. Okay. So this poor kid almost gets blown away, but has diabetes instead. And, and how and so you're you ended up sending your husband with him to the hospital? Sorry.

Unknown Speaker 59:28
He followed him to the hospital like yeah, okay.

Scott Benner 59:31
All right. And so you stayed did you go home with the babies like because it's all COVID D. So what do you do?

Elle 59:36
I went home and stayed there and picked up my other two from their grandparents house. And we stayed home and I learned a lot via zoom.

Scott Benner 59:47
Wow. How long was he in the hospital?

Elle 59:50
I think it was. I've gone back and forth. I cannot remember if it was like three days, two nights.

Scott Benner 59:58
All right. Night They didn't rush him out and they needed to bring his blood sugar down and do that slowly because he was really in trouble. I imagine.

Elle 1:00:06
Yeah, that by the time I got off pulled when they hung up on me, we tested him again. It was 500 something.

Scott Benner 1:00:12
Well, what do you know? What is a once he was when they checked?

Unknown Speaker 1:00:16
15.1? Yeah, well,

Scott Benner 1:00:21
insulin pens. And any talk of glucose monitors, do you have them now?

Elle 1:00:27
So he had to prove to insurance that he had diabetes by testing three times or more a day, for a month, and then he got

Scott Benner 1:00:37
a Dexcom. Okay, so they didn't take the diagnosis of the hospital seriously.

Elle 1:00:42
I don't understand insurance. Like I don't understand how some person in a cubicle gets to decide medical care. Isn't that practicing without a license?

Scott Benner 1:00:51
Yeah, it's a little weird. How did you find the overall education?

Elle 1:00:58
Excellent. Honestly, Nurse Laurie, shout out. I asked her permission to say her name.

Scott Benner 1:01:07
Did you ask her permission to say her name in the middle of episode or someone's had ball? 16?

Elle 1:01:13
I didn't specify but yeah, I think she knows.

Scott Benner 1:01:17
She hears this.

Elle 1:01:21
She she called me like, every other day for two weeks. And then it was like every three days for another two weeks. And then it was once a week and then it was and she I don't know. She's excellent. That's wonderful. She's just absolutely excellent. She listened to me talk about things that weren't even diabetes related just my own

angst at No, I

Scott Benner 1:01:51
would listen to you talk forever. So you know, well, I could probably talk forever. Yeah, you and your flame vagina and this for kids and all the other stuff. There's plenty here to go into. I don't even know we need to talk about this diabetes, but it just just because people tuned in. How's the kid doing? Just a couple years doing

Elle 1:02:08
really well? Yeah. But he like his agency has not been over 5.9 Since diagnosis.

Scott Benner 1:02:14
Well, good for you. How are you accomplishing that?

Unknown Speaker 1:02:18
You? Oh, sorry.

Unknown Speaker 1:02:21
There's no reason Lori.

Scott Benner 1:02:23
There's no reason I can Laurie but go ahead. Yeah.

Elle 1:02:26
Well, Nurse Lori can't call me every day. But I can listen to the podcast every day. She has other people to go save.

Scott Benner 1:02:37
Yeah, she's super lady. She's calling everybody on the phone. Do you ever think about that? Once she's talking to you like, Oh, I'm probably not the only person she does this with? Yes, I

Elle 1:02:45
do. Think about that. And that was trying to be very respectful over time. But again, I can talk forever. So sorry, Laurie.

Scott Benner 1:02:52
So obviously, you get a CGM a month in. Are you still doing pens? You can check me.

Elle 1:02:58
He did pens until it was about six months. I think it was March of 21.

Scott Benner 1:03:06
You go to a pump then after that? Yeah. Okay. Medtronic, no, no, say it like that their sponsors of the program. Oh, are they in pen from Medtronic? diabetes?

Elle 1:03:18
Well, we tried to get the in pen. But evidently the week. Again, this was my luck. The week that we got it approved, our insurance decided that they weren't covering it anymore. Or there was a grant or something. Something fell through. It was approved, but then we couldn't get it without spending $800 to get the device.

Scott Benner 1:03:39
Yeah, that definitely shouldn't be I think I think you can get it. Like, let me just say this. You know, I think there's you know, you have to check, there's fine print and stuff. But I think mostly it's like 35 bucks for people. So definitely don't pay $800 Well,

Elle 1:03:52
I didn't because I knew we wanted to get on a pump. And I didn't see the sense in going through the hassle of getting on something that we weren't going to permanently use. Sure. Not that it's a bad thing. It sounds amazing. But,

Scott Benner 1:04:07
ya know, it's a it's a great insult. But yeah, I understand you're not wanting to do that. So, okay, so what what did Laurie tell you that helps you keep an A once the under six with a nine year old

Elle 1:04:20
Pre-Bolus. Check as often as you feel like checking. They did go over. So I don't know if this sounds a little braggy. But so in 2019 My husband and I did keto, which meant that I already knew how to count carbs pretty well. And so they gave Lorie and there are other members of the team, but I think sorry. Other people that I didn't ask permission to say names of I I usually defer to Laurie, just because we got along well, she gave, like resources, where I could look up carbs of things quickly. And I could like put in a recipe and it'll tell me the carbs in it. And there was a big booklet that we did secondary education on. So that was like sick day and stuff like that. But University of Iowa is they are with it. Yeah, they've got it going on.

Scott Benner 1:05:35
Talk for a while of me giving a talk at the University of Iowa. And then it just I think COVID happened, and then it just people stopped talking about so. But yeah, apparently there's a large type one population in the student body at that school. Oh, yeah. That's crazy to be okay. So Pre-Bolus count your carbs do the right thing. Pay attention to the blood sugar sounds like what Laurie was telling you? And then you did it like, but what made you like so many people don't? Like, follow through, like, what made you follow through.

Elle 1:06:11
I'm a rule follower. Just am. Oh, gosh. And I want to make sure that I only share my experience. So this is going to be kind of complicated to talk about. Both of my husband's goodness dogs. Both of my dog. She's chasing the cat again. Oh, I put her outside. Then she saw my children drive away and she was crying outside. So I figured that would be noisy enough, but it's fine. So both of my husband's parents have type one. And the education that they have received is not the standards of the University of Iowa. Yes. I'm just gonna say that much. So seeing and hearing the information that they received in action makes me sad and angry at any doctor that thinks they know something, and is giving advice when they don't really know what they're talking about.

Scott Benner 1:07:35
Okay. How both of his parents have type one. Yeah.

Unknown Speaker 1:07:43
For a long time. Still missed it. Yeah.

Scott Benner 1:07:46
Yeah. And he didn't see it either. He didn't know either. Any other autoimmune in the family?

Elle 1:07:51
Oh, my gosh, so many. My mom has rheumatoid arthritis. She has hypothyroidism. She has bipolar disorder, which I know. It's not an autoimmune, but you say that there's a connection. And then my husband's mom has type one. She's had type one for 50 years. His dad has had type one since the 90s. Early 90s. I think he was was right before. No, it wouldn't have been early 90s It was right before I met him. So I'm gonna say he was 45 ish. Okay. But he was diagnosed as type two until he got cancer. And then they did a C peptide when he had cancer. And found out Oh, it's type one. Okay, so you'll have to Google it. It's E H, E. And I'd have it's like 13 syllables.

E. H. E. N E I'm surprised students say that one earlier when you search.

Scott Benner 1:08:58
Wow, I'm not gonna be able to say that.

Elle 1:09:01
Yeah. If you tell me the first syllable, I can probably tell it that the heliad epithelioid him angioma isn't right but I get them all

Scott Benner 1:09:10
a man God. Don't feed me Allah. HEMANGIO e n d o t h e l i o m a is the second word. That's crazy. rare cancer, the growth in the cells that make up the blood vessels most commonly seen in the liver, lungs and bones. Okay, and he did he kick did he beat that?

Elle 1:09:39
It's not really curable. Okay. He's had some things removed from his liver and his lungs.

Scott Benner 1:09:46
I'm sorry. Okay, and so there's again I say I don't know what you autoimmune people do like what signal you put out into the world to attract other autoimmune people but like it's a fascinating it's on both sides of the family like add that. I didn't even list all of them. But yeah, don't keep going. What do you got more?

Elle 1:10:05
Has my husband's mom has hypothyroidism, and then my husband's dad. So my husband's aunt also has type one, but it's, they call her type two. And I'm, I don't know how to tell someone I think you need to be tested for. Like, she's, you know, almost 70 years old now. And she's been treating it this way. But I'm convinced it's type one. And his other sister has MS. And I feel like I'm forgetting something. Oh, both of my husband's grandparents had pancreatic cancer. So I don't know if that's related.

Scott Benner 1:10:47
You know, this is more information than anybody should say probably. But everyone's passed on. So my friend Mike, his mom had pancreatic cancer.

Unknown Speaker 1:10:58
I remember you saying that?

Scott Benner 1:11:01
Interesting. All right. Well, you should probably do some math.

Elle 1:11:08
I don't think so. Sure. I'm pretty sure. I don't think that would help the situation any? No, I

Scott Benner 1:11:16
mean, I don't think it would help anything. But I mean, you're in one of those rare situations. I'm not certain about hurting either. So sorry. That's, that's really terrible. Least get yourself a new computer. So obviously, I said a ton of stuff that was very helpful to the kid. And he's doing great now probably going to name your next Corgi after me or something like that. And you consider that, did you? You didn't do it, though. So it doesn't get in. She's the girl.

And it's so much you pay homage where you pay that much. That's all. Is it? Oh my gosh. How do you set? Some people say homage? And I'm 100? I don't say that. I'm 100%. Sure that's not right.

Elle 1:12:02
I'm probably more likely to pronounce that. Oh, long. All right. Oh, my

Scott Benner 1:12:07
God. Alright. So is there anything that we haven't talked about that you want to talk about?

Elle 1:12:14
The exercise thing I did want to pick your brain on?

Scott Benner 1:12:17
Okay. And but let me ask this question. First. How many things that we talked about that you didn't want to talk about? All of

Elle 1:12:24
them? Oh, testicles weren't on the list. In my mind? No,

Scott Benner 1:12:29
I didn't think they were either. But then the computer was loud. And I felt I felt obligated to give back. You don't I mean? I really did. I was like, I need to put something in here. I don't want people to be like, Oh my God, it was a refrigerator. But it wasn't it was a computer. I mean, there's only so much that you can take, you know, say so. Okay, so what you want to talk about exercise and insulin or something. Go ahead. What's your question? So

Elle 1:12:54
he has been diagnosed for almost two years. I don't think he had a honeymoon at all. If you did, he exhausted it before diagnosed. I

Scott Benner 1:13:02
think you used it up before you were diagnosed. But God.

Elle 1:13:05
So key, I'll give an example. In May, he went with his birth his buddy for a birthday party. They went to the largest skate park in the United States, which is in Des Moines. It's about an hour away from where his buddy lives. So they were in the car for a little bit. But he was writing about 70 Before we left, he didn't really go up at all for the car ride. And then we had Chick fil A, which is I'm guessing he had 120 carbs. But then he had a full sugar soda, too. So I'm gonna say 150 carbs. Ish. I did not give him any insulin for that. I did. I didn't even have his pump on him when he was eating that meal because I did not want any auto boluses he's on to slam Yeah. So we took the pump off for the skatepark because I do not want to busted pump. And I didn't really want him getting insulin while he was skating. And he still had to treat three loads.

Scott Benner 1:14:18
Still just like skateboarding. How long did he do it for?

Elle 1:14:21
He was on a scooter for about three hours. Sounds like a long time. I mean, it was a long time. Yeah. But this kid drops like a rock with any exercise. Right? And I just like I've heard you talk about bolusing Arden during a softball game and I'm like, my kid would not be able to play at all.

Scott Benner 1:14:43
So I think it's I mean, there's different impacts right so softballs, not scootering scootering for three hours, so a lot of effort. If you ever watch a softball game, there's a ton of standing around. So you know they're standing around. You could strike out three times and never even have to run to first base. You You know what I mean? So they're standing around, there's the heat. There's then dehydration that comes along with it. So if you're at the skate park is indoor outdoor, it was outdoor, hot or not hot.

Elle 1:15:13
I would say it's warm. It wasn't cold by any means. I wouldn't say it's 97 degrees like today or anything

Scott Benner 1:15:19
ton of effort for three hours straight. A lot of aerobic exercise. I can see. I mean, you described I mean, I could see that not needing insulin for certain that makes sense. Was there a big Bolus prior to the skatepark?

Elle 1:15:37
I mean, he had breakfast. But that was probably four or five hours before the park.

Scott Benner 1:15:46
You actually got that? But yeah, like a nice yard like 70 Something on your way to the skate park? Yeah. So you, obviously you killed breakfast really well. And then you will get that by himself. Wow. That's impressive. And then he went into the right into the activity. So you pop the pump off as you started at the skate park.

Elle 1:16:03
We took the pump off before he ate Chick fil A.

Scott Benner 1:16:06
After this, wait, wait, hold on. The Chick fil A was before skating?

Elle 1:16:10
Yeah. Before skating, no insulin.

Scott Benner 1:16:15
But wait. So the Chick fil A was without insulin before the activity? So that it sounds like you. I mean, I mean, the best I could guess is that he maybe over Bolus the breakfast

Unknown Speaker 1:16:28
hours before.

Scott Benner 1:16:30
I mean, it doesn't make a lot of sense

Elle 1:16:32
that it's it's not just this time, either. I mean, it happens every time you go. It's every time he exercises like aerobic activity. Wow. And I just I don't know, he went to camp last week. And they reduce his basil, I think by 50%. And I mean, he ran higher at Camp than he does at home. But I don't know how to replicate that at home to get a good idea of how much to give him because what ends up happening. So we we went to a fourth of July party, the third. And we had it in that camp profile, because I wanted to see like it being the pump. I wanted to see if it would work for us at home. And it did. Like he played volleyball after he had a meal. And we did Bolus for the meal. But it was a reduced Bolus. He had his basil reduced for hours beforehand. And he played volleyball and he had to sit out the last round because I just couldn't get it to come up. But then when we got home, so like three hours later, tea skyrocketed.

Scott Benner 1:17:54
Well, I have to admit, from your explanation, I don't know exactly what to say. Yeah. I mean, if you telling me that you ate before the skate part is the part of the skate park that throws me off. Like I mean, the only thing that makes sense to me is that breakfast somehow impacted it. Because otherwise, I mean adrenaline. Was he excited to go to the skate park? I mean, something he does, right. It's not like some great treat or something like

Elle 1:18:25
well, it was a birthday party. We don't often go to Des Moines to go to the skate park. He plays on his scooter weekly. It's not right. And when he does it at home, he doesn't drop like that. Oh, he does. He drops any time any any exercise. Like he has a Wednesday night activity that he does during the school year. And I have his pump and exercise mode which you know, raises the target but still gives many boluses which I hate we put we reduce his Basal re hours beforehand and then we have a low carb meal so that he doesn't take insulin for it. And it sometimes work interesting problem with that is that it's so super spontaneous and unpredictable that I don't know when he's gonna be sitting me playing but that's a whole other thing.

Scott Benner 1:19:19
So I don't know anything about this. I'm just like, kicking around like I don't I don't know is that could that be not adrenal though, right. Don't think that's I don't know if that's for a person with type one where like hypo, you can get like hypoglycemic from like adrenal fatigue, but I don't know if that's to do with diabetes, or if that's just a thing people experience side of it, sometimes. I don't know. But I mean, it does sound it's what I can say is it sounds like egregious. It sounds crazy. You know, like those crazy hours and hours without insulin. Um, I mean, I do, I'm imagining a lot of activity with the with the scootering, obviously, but

Elle 1:20:08
Peter gets the same result like he went to a place where he played Ultimate Frisbee. And he, he did have some insulin at lunchtime, but it was like 30% of what I would have given him a home. And then it was still two hours before he played and it's Ultimate Frisbee like he's

Scott Benner 1:20:31
running around and sprinting all over the place.

Elle 1:20:35
Right. But I don't want to call it a bad name. His his pump gave him an auto Bolus. Okay, of point 118, which I know for a lot of people is a lot but for my kid is nothing. Like he uses like 75 units daily 2.118 dropped him from 210 with fruit snack to 90 straight down in 15 minutes.

Scott Benner 1:21:05
Yeah, I mean, that's so doesn't sound like that the insulin could do that. But that's like, like, I feel like there has to be something else at play. Have you asked the doctor about it? i

Elle 1:21:17
My CTE nurse, Laurie? Laurie? She said it's just a Remi thing.

Scott Benner 1:21:23
something specific to him? Yeah.

Elle 1:21:28
I was. I was in that conversation asking about different types of insulin. But I don't know. I don't know, as they would be any different.

Scott Benner 1:21:40
Like switching a brand of insulin, right? Yeah, I mean, I have to be honest, I'm not sure. You No, I'm sorry. It's it's it's out of the ordinary enough that I don't know what to say.

Elle 1:21:56
I figured I'd give it a shot. Because I don't know. Too many people that manage diabetes.

Scott Benner 1:22:04
Do you try? Have you ever tried giving him like a protein before? Oh, yeah.

Elle 1:22:09
I mean, the Chick fil A was a chicken sandwich. But yeah, we use peanut butter. We like the the meals that we give him before his Wednesday night things are very heavy protein, very heavy fat. Okay. And 15 carbs or less.

Scott Benner 1:22:25
In a normal situation, that meal would cause them you really Bolus for? Yeah. But not when he's active.

Elle 1:22:35
If he's sitting, he needs insulin, like, needs. Right? Mom's going crazy. He's grown six inches since diagnosis. And like that's, he definitely needs insulin. It's not that his Basal is too high, or that his ratios are off. It's the activities specifically,

Scott Benner 1:22:58
have you tried having a conversation in the Facebook group about it?

Elle 1:23:02
Um, I think so. But I don't remember for sure.

Scott Benner 1:23:06
Yeah. Well, you know, if you had an answer you would have you would remember the answer a lot of times

Elle 1:23:09
I, I hold back because I feel like I over explain everything, especially in a group like that, where I, I tried to condense and then they need more information. So I ended up like, well, let me start back when I was born.

Scott Benner 1:23:27
Yeah, that's not helpful. What about, like runners goo and stuff like that? Have you ever tried that? I don't know what that is like that. Like, it's just like paste that runners used to like, keep their blood sugar up while they're running. Like, I'm wondering if it's, I mean, he doesn't want I don't want him to be eating something constantly. But trying to decide like it has it ever been a real problem for you? Are you able to stay on top of it? For the most part,

Elle 1:23:52
I'm there. I've never had to use his G voc. But I've had it out before

Scott Benner 1:24:01
dropping so fast. Yeah.

Elle 1:24:05
And honestly, I think those situations were because he had insulin on board and like, he went and jumped on the trampoline, like, well, that's obviously not gonna work well.

Scott Benner 1:24:20
I feel good. I'm sorry.

Elle 1:24:22
I feel like he's missing out on the activities that he wants to participate in because he's sitting on the side drinking juice. And that's my biggest concern, I guess, for a 12 year old boy to have to be like, sorry, I have to sit down and drink a juice box and his friends don't really understand that and then he doesn't get invited next time.

Scott Benner 1:24:47
What happens if he just like drinks Gatorade throughout the whole process?

Elle 1:24:52
That's what he was doing at the skate park, but he still had to have two packs of fruit snacks. and

Scott Benner 1:25:02
it had been hours since he had insulin, at least five and there was food in there.

Elle 1:25:08
Yeah, a whole meal. Like 150 carbs or more I don't even know I didn't count it. It was Chick fil A fries, chicken sandwich and Dr. Pepper.

Scott Benner 1:25:24
And you didn't Bolus for it didn't Bolus at all. And then he still tried to get low later

Elle 1:25:29
didn't even have basil on like, I turned his pump to we have a zero profile setup, so that it doesn't beep all the time. But it still doesn't give him any insulin. I wonder

Scott Benner 1:25:39
if away from this activity. He needs so much insulin that even though you haven't had it for a few hours, once you add the activity, it just gets sped up so much.

Unknown Speaker 1:25:52
I don't know what that means. I mean,

Scott Benner 1:25:54
I mean, like, what's his Basal rate? Like forget this activity a second for I get a normal situation? What's his Basal rate an hour?

Elle 1:26:01
Like 1.3? Ish? What's he weigh? 135.

Scott Benner 1:26:07
That seemed crazy. And but it also it does seem a little heavy, but it doesn't seem crazy. I don't mean heavy. Like it's wrong. I mean, like, like, there's a need there. So

Elle 1:26:20
his Basal is cranked at night, not cranked but higher at night because of growth hormones and activity. And then, like during the school year, we have a higher Basal rate during school hours because we sit more. Yeah, but then, like, from about lunch? So about 11 Until gonna say 830. It's less. So I don't I don't think so. Oh, wait, I have a picture. I forgot I took pictures before I send them to camp in case they changed. Let me find. Okay, so midnight, until 11am is 1.47 an hour. And then 11 until five is 1.37. And then five, until 830 is 1.5. And then 830. Until I guess it is right. 10 is 1.71. And then I think it goes back. It's a little less between 10. And midnight, just because I don't usually give too many corrections. And honestly, that's the only reason I haven't changed. And this is if I give

Scott Benner 1:27:32
this is working for you like his keeps his a onesie in the fives. But you're having lows around activity, but not lows that other times, right. I mean, I listen, I I do wonder after after you go over those numbers, like what would happen if forget, like a couple of hours prior to activity, but what if like, you made a concerted effort one day, you know, like, we're gonna go to the skate park at four o'clock in the afternoon. Like, what if you got up in the morning and cut the Basal wave down? Like, first thing in the morning? Yeah, like the point nine and let it be like that for, like 6789 hours before he went there. I'd be interested to see what would happen after that.

Elle 1:28:18
I just I am willing to do that. My concern is what about the nine hours leading up to it?

Scott Benner 1:28:29
What would happen? Do you think he did that?

Elle 1:28:32
I think he would be in the two hundreds all the whole day. And then like, if I don't correct, he'll stay in the two hundreds. But if I correct it, then I'll have insulin on board.

Scott Benner 1:28:46
Yeah, then I would actually have to add to that. I guess you would want to go with a lower carb lifestyle that day just to keep Bolus down just to see what what happened. Because what I'm trying to get at is, I wonder if you need these heavy boluses because he's a 12 year old kid. And then there's so much insulin happening like you don't I mean, like it sounds like he's two people. It sounds like he's Yeah, like, right. He's just sitting around kid, right? And then all the sudden he's an Olympic skater kid.

Elle 1:29:16
Right, right. Right. How do I know which one he is going to be that day? Well, does

Scott Benner 1:29:20
it always happen with a skate park?

Elle 1:29:22
It always happens with any activity, but 12 year old boys are not known for planning out their activity.

Scott Benner 1:29:28
Right now. I don't have an answer to but what it sounds like to me is that you're managing one body style, one, one impact, and then suddenly, you're switching to a significantly different impact. Yeah,

Elle 1:29:43
that's exactly what's happening. Right? I just don't have a whole day to prepare for it. Because if his buddy comes over and wants to go ride scooters, I can't be like, come back tomorrow.

Scott Benner 1:29:58
We'll plan this a lot sooner. There has to be some sort of a level of carbs that you can put in him that a hold this up because it sounds like he got closed. He did the Chick fil A and then he did a couple of packets of gummies. And so 150 carbs. I know it's a lot. I don't know how to I'm not I'm trust me. I'm not saying it's makes a lot of sense. I'm just saying that like talking it through this is this is what I'm imagining from your conversation. So I'm not sure I did that sound like it sucks, though. I'm sorry for that.

Elle 1:30:33
I just hate that he misses out on things. That's, that's the only I mean,

Scott Benner 1:30:37
is he really missing out? Or is he have to stop once in a while

Elle 1:30:42
his friends have stopped inviting him places. Because he's drinking juice, because he has to sit. And they don't want to wait on it.

Scott Benner 1:30:51
How long does the deficit toys okay?

Elle 1:30:54
Just depends on what they were doing. And how long. Like if we're dealing with an insulin board situation or a just, you know, like they at the skate park. We we knew that was coming a month ahead. And we prepared for it. So he just ate some gummies and kept skating right. And if I'm there, like I can tell him hey, you're 120 Eat some fruit snacks, and it'll bring you back up. But if I'm not there, and he's just hanging out with his friends, like, at the playground or whatever. I'm not there to tell him eat fruit snacks when he's 120. And his pump doesn't alert him when he's 120. And Dexcom doesn't even go that high.

Scott Benner 1:31:33
So he doesn't find out till he's lower and then it's too late that he's got to wait and wait and all that stuff. Yep. Yeah. I'm sorry. That sucks. Have you tried? We tried hiring Jenny for a couple of minutes to see which

Elle 1:31:52
I would love to but I can't afford a new computer.

Scott Benner 1:31:59
We she'll talk to you on the phone.

Elle 1:32:02
What I mean is, I think Jenny's probably out of my price range.

Scott Benner 1:32:06
I honestly, Can I be honest with you. This is gonna sound crazy. I have no idea how much Jenny charges? I honestly don't know. But I mean. I mean, it's a big deal. And it's got a big impact on him. So maybe no, it is. worries, no help.

Unknown Speaker 1:32:25
I'm just gonna still gotta feed the kids too.

Scott Benner 1:32:27
Well, not really. I mean, there's four of them. Right? They dog if something goes sideways. All right. I gotta go. I actually have a call. So

Unknown Speaker 1:32:39
hopefully it goes better than

Scott Benner 1:32:42
this guy is gonna know how to use his computer, which is a step in the right direction. I really did. I honestly did appreciate this conversation a lot. I thank you very much. I just I actually have to give them a shout out. I have a call with people from G voc and a little bit and I have I have told them they definitely know what they're talking about. I have to go be an adult. So I really appreciate this. We hold on one second for me. Yeah, thanks.

I want to thank L for coming on the show. And in a second. I'm going to tell you all the different ideas I had for naming this episode. Anyway, thank you l Thank you better help for sponsoring this episode better. help.com forward slash juice box saves you 10% off your first month of therapy. And thank you Omni pod, get your Omni pod dash or Omni pod five at my link Omni pod.com forward slash juicebox. That's pretty much it. I want to thank you so much for listening. Remind you that there are links in the show notes of your podcast player and at juicebox podcast.com. To all the sponsors. When you click on the links you're supporting the show. Don't forget to go to T one D exchange.org. Forward slash juice box fill out the survey. And of course you can get 35% off at cozier calm with the offer code juice box. Now I recorded this for myself as soon as