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Scott Benner 0:00
Hello friends, welcome to episode 962 of the Juicebox Podcast.

Today on the podcast I'll be speaking with Jill she is a person living with type one diabetes. She's here to tell us her story. Her sister has type one. There's a lot going on here. I think you're going to love Jill. While you're listening. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Would you like to receive something for free? Well, how about a year supply of vitamin D and five free travel packs with your first order at drink ag one.com forward slash juice box. You want to get something for 40% off sheets towels. This beautiful sweatshirt I'm wearing and much more at cozy earth.com use the offer code juice box at checkout to save 40% Don't forget to check out the private Facebook group Juicebox Podcast type one diabetes and the public Facebook page Juicebox Podcast if you're enjoying the podcast, please share it with someone else who you think might also enjoy it.

This episode of The Juicebox Podcast is sponsored by us med us med.com forward slash juicebox. US med is the place where Arden gets her Omni pod and Dexcom supplies from and you can get that and much more US med.com forward slash juice box to get your free benefits check or you can call 888-721-1514. Did you know that the Juicebox Podcast has a type two diabetes Pro Tip series? Oh, you didn't? Well, now you do. So if you know someone with type two or pre diabetes that you think would be interested in learning more about what's going on with them and possible ways to make things better. Send them over to juicebox podcast.com and tell them to click on type two diabetes up in the menu.

Jill 2:24
My name is Gil. I am a type one diabetic. I've been a type one diabetic. Actually, my diet Versary was yesterday on National diabetes Day or World diabetes Day. So really? Yep. It's 15 years.

Scott Benner 2:37
November 14 was 15 years for you. Correct you Did you get anything special? Buy yourself something nice

Jill 2:44
to do you know, I forgot all about it until my sister lock texted me who is also type one diabetic. She texted me at like 8pm last night and said Happy diabetic. Sorry. And I said oh yeah, that's today.

Scott Benner 2:56
We guys had a club or something. Your your husband's sister has type one.

Jill 3:01
Well, that was funny because on our first date, I sat down to eat with my husband. We were out to lunch and I pulled out my kit. I was doing MDI at that time and I pulled out my kit, and I pulled out and it's open. He goes, Oh, you're diabetic. My sister's a diabetic. And that was it. I married him after that. Because you know, when one type one diabetic means somebody who already knows how it works and knows all that goes into it. That's just it's done. So

Scott Benner 3:25
I'm sick. So I'm not laughing because if I laugh, I'll start coughing. But your bar is very low. You know what this insulin pen is? Good enough.

Jill 3:38
That's it. That's all it takes. Listen, it's pretty annoying to have to explain it every time you go on a date with somebody like oh gosh, here we go again. You know, I'm like, it's just exhausting.

Scott Benner 3:47
I'm picturing you laying across the abdomen like don't need heavy because you're getting sex and everything today. I don't want to lose you. They want to set up you know what my insulin fan is? Tell me honestly, how long you've been married?

Jill 4:01
A lot. We we've been together. 11 years we've been married? Seven. Okay.

Scott Benner 4:07
Tell me seriously, if you can remember. What's that feeling? Like? When is it acceptance? Is it comfort? Like what happens there?

Jill 4:14
With my husband in general with the whole diabetes thing?

Scott Benner 4:16
Oh, just with him going? I know what that is. My sister has this. Like,

Jill 4:19
oh, it was just relief. Just it's exhausting. I'm joking. But I'm not joking. When I say it's exhausting, you know, to have to explain everything. And then you feel weird. You feel awkward because people like Oh, I'm so sorry. And you know, I like answering questions about diabetes. I like educating people, but not necessarily on a date. You know, and I don't want them to be like the focus of you know about me. And so the fact that I didn't have to do that, and I didn't have to explain everything he already knew he already understood. That was just releasing it was really being

Scott Benner 4:50
what would you have done if he didn't like him? How long would you have put up with it for the fact that like,

Jill 4:55
I mean, every other guy I've dated before him, didn't know anything about it. So we're Long.

Scott Benner 5:02
Just I just like I like to imagine like three weeks into you're talking to a girlfriend. She's like, how's this guy going? Like, I don't like him personalities terrible, but let me say something also without his shirt on. It's frightening, but I'm just he really understands the diabetes piece and I'm just gonna hang in my gosh, that's a well, that's amazing. Good for you how many? Oh my god, I almost asked you a question. It didn't mean the way it was gonna sound.

Jill 5:30
I like those questions.

Scott Benner 5:32
How many guys do you have to go through to find them? But that's not what I meant.

Jill 5:36
This is turning into a diabetes after dark. Really quick,

Scott Benner 5:39
so sorry. I had you been? Were you an adult at that point. Had you been dating? Did you date through high school with diabetes? I guess? Yeah. How old? Were you?

Jill 5:48
I guess. So I was diagnosed at 19. So,

Scott Benner 5:52
okay, you had been on a couple of days before you had type one.

Jill 5:56
Correct? Yes. And then I had a couple after so. And you met him about what age? It's a great question. I think 21 or 22. Okay. All right. Yeah. Well, that

Scott Benner 6:05
makes sense. I'll tell you, it makes a lot of sense to me. I mean, forget diabetes. If I made a table, and I say something about myself that most people are like, what's this now? Or? Oh, I'm so sorry. And they don't have that reaction. I'd be like, Alright, cool. This is good. I guess my bar is low, right along with your show, I think just like you like, and you're not gonna ask me a bunch of dumb questions. Perfect. Like, let's

Jill 6:28
go to understand me. Yeah, really,

Scott Benner 6:30
is something. Okay, so diagnosed at 19. You were in college already.

Jill 6:35
I was. But so this is kind of a funny story. My brother has type one diabetic and he's been diabetic since he was 23 months old. So he was diagnosed in the 1988. And so I had grown up with type one diabetes my entire life. And my brother and I were both tested for the antibodies when we were younger, we both tested negative joke's on us. And then in college, I had started having symptoms a year prior of hypoglycemia. And I kind of assumed that that's what was happening because I had heard my brother explain what it felt like to be low so many times, and I called my dad and I said, you know, I think I'm going low. And he said, You know, it's your freshman year of college, you're eating different, your activity levels different. Maybe you're just having some dips, you know, next time you're home, grab one of Pat's kits and bring it to school with you. Well, I forgot to do that. And then so the following year, I had transferred home. And I was for some reason decided to roll crew and do a sport for the first time in my entire life. And so for that whole fall semester, I was very active. And I think it was a masking the the onset for a while because the week after we stopped rowing for the season is when I started having superduper symptoms I was you know, super hungry, super thirsty, peeing all the time. And I started tracking how often I was peeing, because we're kind of a medical family. And so I knew something was kind of off. But it wasn't until I was sitting in the back of my classroom one week, and I couldn't see the board and I at the time, I had perfect vision. And I was like, something's wrong here. And I think I had called my dad and I think we kind of both knew what it was, but we didn't want to say it out loud. But he said, you know, come home, we'll test on one of Pat's kits, and it was like, it was 600 something.

Scott Benner 8:19
So you're here to say that rowing crew keeps type one diabetes, or at least for a little while. Did you mention another brother with type one?

Jill 8:27
No, I have two brothers one has type one, but one does not. Okay. And he makes fun of us constantly.

Scott Benner 8:35
Lovely, Anna, and a sister in law with type one. Let's stick with your family for a second. So that's a two out of three with type one. Is there other autoimmune stuff in your family line?

Jill 8:46
Oh, lots.

Scott Benner 8:49
Sure. I think I could start guessing your mom has hypothyroidism.

Jill 8:54
So my mom actually passed. Oh, I'm

Scott Benner 8:56
sorry. That's okay. I could have said your dad. That was literally just guessing.

Jill 9:00
That was just unlucky guess.

Scott Benner 9:04
Did she passed away last week? How far did I put my foot in my mouth?

Jill 9:09
No, it was awhile ago. So who knows? By now maybe she would have had a she wants to know but I will tell you she would have had celiac because everyone on her side of the family all has celiac. Okay. Okay. And I I've been tested 1000 times because I have lots of other stomach issues. And every time they tested me, I'm negative. They've done the genetic testing and I met I forget what it is. But the genetic testing came back. You're gonna get it at some point. And so I'm just riding that train as long as I can. But on my dad's side is all thyroid.

Scott Benner 9:37
Oh, look at how bright I would have been if I would have flipped the coin the other way. You were so close. Hey, by the way, have you heard Arden's episode about the digestive enzymes that she used to clear up her stomach issues?

Jill 9:48
I did. I have not tried those yet, but I just started Oh, basketball four days ago because of you.

Scott Benner 9:55
Oh, hey of basketball. Are you listening? Yeah, perhaps not a spa. They're not yet, Joe. But I mean, maybe we're closer now? No. Oh, that's great. Yeah, I mean, I don't know. Obviously, everyone's tummy hurting isn't this but we actually we, sometimes I get confused. I do this almost completely by myself. I'm like, we're about to like I'm an organization. I'm about to put up an episode this week with Jenny. And I think it's called over useless pancreas where we describe that a pancreas isn't just to make insulin with and why you may have, if you have type one diabetes, you may experience digestion issues. So you know, it's a

Jill 10:37
funny, I cannot tell you how excited I am for that episode. Because I'm an RN, I always thought that in another life that maybe I would go like the research route, and look into that myself and kind of research the difference between the exocrine and endocrine functions of the pancreas and how one likely would affect the other. Yeah, because of exactly what you're saying.

Scott Benner 10:58
I hope it helps people. And I said to Johnny, while we were making the episode, I'm like, I feel bad. I said, you know, because of I tell people all the time, like, don't just see diabetes, like if you sneeze, don't see diabetes, right? Like people sneeze. But there's a moment where you go, Okay, I have an autoimmune issue. I may have more, you start looking and have all of the things and I mean, the myriad of things that we checked into for Arden over the last two years, and there were so many, I don't know how we skipped over, hey, maybe her digestion is this messed up because their pancreas, you know, it's funky. And, and if I felt bad, and then when I put it up online, and I saw so many people react to it. I started feeling badly for you know, don't get me wrong, Joe. I'm not mentally unstable. I shook it pretty quickly. But I mean, I felt like I felt worse about Oregon, because we dragged her through so many things to find out something that I picked up at a health food store. That was upsetting. But I just imagined all those people who eat their stomach hurts, and they just think that's the way it is. And you know, and it changed my life, too. I started taking them, and seriously helping me in ways that are just almost immeasurable. So I'm glad you found that that's terrific. You know, you said you were a nurse, there's so many letters behind your name. I looked them up. So I first I thought, Oh, I thought Jill's an operative for the Republican National Committee. But that's not your so you're an RN, C m n n, which is the Maternal Newborn nurse,

Jill 12:29
right? So I'm a certified so you can be just an RN, or you can go out and have a you can take an additional board to get a specialty certification in a particular field. So I am a certified registered nurse for Maternal Newborn Nursing.

Scott Benner 12:41
You're telling me that I'm going to nurses that aren't certified? You can speak in a little bar, so that'd be a little.

Jill 12:49
No, no, no. That's an additional qualification after you go to nursing school and you do all that training and all that that schooling, you can then seek out additional credentialing and specialization. That's not something that you have to do plenty of nurses and amazing nurses don't do that. But lots of hospitals prefer to have, you know, certified nurses, it gets easier, like a little boost on your resume. And I'm also an ibclc, which is an international births Board Certified Lactation Consultant.

Scott Benner 13:18
What's that? See worth another 20? Grand? I'm just using your I wish Oh, it's not? Yeah, it should be. And your light gray. So So what's the we're a little all over the place, but I think it's because I like you. I can't tell. Oh, what do you do? Like day to day you'd catch some babies or in a hospital? Or how do you do?

Jill 13:37
Yeah. So I've done a little bit of everything. So currently, I'm just just a plain old, boring postpartum bedside nurse. For the past year, I was practicing as a lactation consultant for postpartum unit in Miami. And then I was postpartum nursing. Before that. I did spend a year catching babies as you put it, that is what we call them, the baby catcher. They attend the deliveries and literally catch the babies either in a C section or a vaginal delivery. And I loved that. But I had done night shift for that. And I wasn't able to do night shift anymore because of my husband's schedule and our son so I had to go back to day shift.

Scott Benner 14:12
How do they test you for the catching? Do they throw things at you when you're not looking when you're walking down the hall and the people who don't drop them get to catch the babies

just the other day I received an email from us Med and it said, Hey, your diabetes supplies are ready to be refilled. Do you want to do that? And I clicked yes, right in the email. And then a number of days later Arden's Dexcom G sevens just showed up at the house. Arden also gets her on the pods from us Med and US med has t slim they have let's see Dexcom freestyle you get the libre to libre three the Dexcom six Dexcom seven Omni pod dash Omni pod five. This place is The best, the reordering process at US med. It's just so smooth and easy. It fits right into your day. And honestly, with stuff like this with pomson, other supplies, I mean they have diabetes testing supplies, they carry some insulins, I mean, with all this stuff, what you want is easy, especially once you're into a repetition. Like if you're newly diagnosed right now you're like, oh, this all sounds like a lot. But trust me, days turn into weeks turn into months, and you need new supplies. And you want that to just happen. You don't want to be constantly, you know, in a battle to get the things you need sent to the house, U S med.com. Forward slash juicebox. You go to that link to get your free benefits check, you make sure that US med takes your insurance. And by the way, they take over 800 private insurances, and they accept Medicare nationwide. So good chance, they're going to take your insurance, and then you just get started. Now if you want to talk to a person and you don't love the internet, you can call this special number just for Juicebox Podcast listeners 888-721-1514. US met always provides 90 days worth of supplies, and they have fast and free shipping, you're gonna get better service and better care at us met. links in the show notes links at juicebox podcast.com. Or you can dial the number or type the URL right into a browser us med.com forward slash juice box.

Jill 16:30
Oh man, they are slippery. I will tell you

Scott Benner 16:31
I saw a couple of them slippery was definitely the word that came to my mind when you say are incredibly slippery. I would think though if you were the person giving birth to it slippery is what you're looking for.

Jill 16:41
I you know what? I don't know if I should say this. But somebody literally just asked me this the other day, they have to lubricate a woman in preparation to give birth. And I my my literal answer was it's a pretty self lubricating process

Scott Benner 16:55
itself loops. When you look at that person, they'll never hear this. How far down on your expectations list for what you're going to get out of them as a friend that they slide for you like, oh, it's actually my husband's best friend. But seriously, he dropped the level right? You're like, I didn't realize, okay, I got it. Now.

Jill 17:12
He doesn't have any kids. He doesn't know how it works.

Scott Benner 17:15
It's also doesn't sound like a great boyfriend, if I'm being honest from that question.

Jill 17:21
Wow, this is a diabetes after,

Scott Benner 17:23
don't you want to know how you should know how the whole thing operates? It's not. I mean, it's not. It's not that hard to figure

Jill 17:31
out? Well, I can see thought to, you know, to help ease the baby out even more.

Scott Benner 17:37
That's making me laugh. Did you? Did you laugh at him? Or were you able to hold it together?

Jill 17:41
Well, it was via text message. So I was able to compose myself. But I did laugh. So you did

Scott Benner 17:45
walk across the room, hold this in your front of your husband's face and go, who do you consort with when I'm not around?

Jill 17:51
He was he was in on the group chat. He's aware.

Scott Benner 17:55
That's great. Lactation Consultant. I just had a thought the other day. Just if you're on social media, at this point, you are going to see a woman breastfeeding a baby, but you can't you can't avoid it. And I remember the first time that someone did it. And I was like, Huh, that's interesting. They're pushing a line. But now all these years later, my thought yesterday was I'm glad people did this. Because it because it seems so freakin normal to me now that I don't pause when I say it. It doesn't make me go oh, that lady doesn't ever talk on her. I saw her nipple or I don't know if I should see this, you know, tender moment between the child and I just I was like, wow, this is just they they normalized for me breastfeeding through social media. I was pretty impressed with it actually

Jill 18:42
didn't ever consider that. But that's I'm very happy to hear you say that. That makes me want to post more. I love that. I never considered that. But that is a problem that I'm glad that you've you've come that way. But a lot of people haven't. And that's a real problem that mother's face is the the shame of breastfeeding in public. And, and really we have we have billboards all over, you know, plastered everywhere, your women in lingerie and their boobs out that way. And, you know, breastfeeding is the most natural thing in the world, every mammal in the world does it. But we've sexualized breasts in such a way that it becomes shameful. And that's, you know, it shouldn't be that way. And so I'm glad that social media has, you know, had that unexpected effect on it.

Scott Benner 19:21
Well, I'll tell you something to expand on your point. It's also ruining boobs for me, not the not the location part. Put that aside the breasts, like the bouncy thing, like, Listen, I don't want to offend anybody. But there are a lot of people now that believe it is a job opportunity to stand in front of their phone and bounce it their knees, and they're ruining boobs, because now I see boobs bouncing jello, and I'm like, Yeah, okay, I don't care anymore. I cared so much that they like so the thing they did for breastfeeding, which was delightful. I think it's having the wrong effect on the fun part.

Jill 19:54
Oh, no, you're being desexualized whatever will we do?

Scott Benner 19:57
Oh, well, I mean, listen, it's given me a lot more free time but It's perfect. So I'm just like,

Jill 20:02
my take it Kelly did not breastfeed then she did

Scott Benner 20:05
she did with coal, but it didn't go well. And then she stopped. And then she didn't work hard. But I don't know she did not she, she wishes it would have gone better. It was not like one of those things where she's like, this didn't work. She really wanted it to go better. But it just wasn't working. And we were pretty young. Yeah, and a lactation consultant I don't think was something that existed outside of like the back room of a granola you know, healthcare store at that time, like, you know, that your your, your your hospital was not offering it to you. Right. And then Kelly's also a very large breasted, so they would like like porthole was, he was trapped. You know what I mean? Like it?

Jill 20:42
Oh, yeah. That's an issue. I was gonna make a horrible joke about, well, that's why Arden has diabetes.

Scott Benner 20:49
Breasts. Oh, good. Let my wife hear that. That's lovely.

Jill 20:53
That was a joke. It's totally a joke.

Scott Benner 20:55
No, I mean, it's funny, because that's a hard thing to say out loud. Because there are some people they'll go, oh, well, then this is what happened. But you know, I can also go pull this together people with diabetes who were breastfed so

Jill 21:04
well, and I'll tell you, I am I always tell this to my clients and my patients. I said, I am the lactation consultant who almost exclusively formula fed my own son did. I did I wasn't able to produce I had, I have a lot of other issues I had I had breast reduction and other things, but the type one diabetes plays a huge role in it. It can be very difficult for type one diabetics to and other diabetics to produce a full milk supply. So there's a bunch of factors.

Scott Benner 21:30
I didn't really I didn't even realize the reduction gets in the way as well.

Jill 21:33
Oh, yeah. Cuz you're removing all that milk making tissue when you have a reduction. Oh, wow.

Scott Benner 21:37
Okay. Yeah, I didn't know Oh, your husband's friend must have hated that.

Jill 21:42
He wasn't in the picture. Yeah. MASM wasn't either.

Scott Benner 21:45
Being serious for a second. How many people? I'm assuming guys came up to you before that and went, please don't do that. Did you get a lot of that?

Jill 21:52
I did. I really did. I worked at a restaurant at the time. And they had I think they had a death to Jill's boobs party.

Scott Benner 22:03
I just I don't know. Like, it's what I don't even know why I would care or not care what somebody did you know me like I as I'm talking. I don't care. But I did imagine that everybody would just come through and go please. No, it's the highlight of my day your boobs.

Jill 22:16
It was it was about two or three months before I was diagnosed. It was all the same year. So I'm

Scott Benner 22:21
kidding. Oh, you did it when you were young. Were they? Yeah, it's 19. July. I'm sorry. I know. This isn't why you came on. Eventually. We'll get to why you came on. But I did no way around this how they were pretty big. Yes. Can you just give me a letter? Triple D? Oh, how tall are you? I'm sorry. I

Jill 22:39
was just about to say I'm pretty short statute. I'm 520.

Scott Benner 22:41
My goodness, did you must have literally like been like the butt of like, every like 1970s joke like, like, Are they pulling you over? Like that kind of thing. You just

Jill 22:52
keep you just can't wear anything without having a grotesque amount of cleavage when you have breasts that size. And some women are down for that. And they liked that. And they enjoy that I did not enjoy the attention. And I had a lot of back and shoulder issues as a result of it. And so I said, you know, let's just hack these bad boys off. And

Scott Benner 23:09
did that work for your like your back shoulder stuff? For a time? Yeah, first time did they come? They didn't come back did that because I've heard about that. Oh, they

Jill 23:16
have that not so big not as the data before but you know, as you you age and you grow and you try to breastfeed and you get fat. They come back.

Scott Benner 23:25
Jo's boobs fought back might be the episode title. No. No, you know why I wouldn't do it. I don't like the apostrophe the title. Oh, Joseph. Yeah, I don't know. Like, by the way, have you noticed that moving in society, like people are not using apostrophe s anymore. And they're then they forced it into it being normalized. I don't care by the way, but like if it's Jill's car, and people are like, don't use that. Have you not seen that happening on the online?

Jill 23:56
And what drives me crazy, I'm ugly. I'm a grammar police kind of person. So

Scott Benner 23:59
you're seeing isn't what I'm saying? Yeah, people are literally trying to force the apostrophe up. I don't have time to fight that battle. But you know who could fight it? Apparently, your breasts because they're resilient. Oh, hold on a second. 2040. For the first time, they said a curse. It was under my breath. But anyway. Alright. Joe, in fairness to you, and for the people who are listening right now going I can't listen to any more talk about breast. What the hell did you come on this podcast? Sorry.

Jill 24:31
Well, I didn't I was trying to find my original email or whatever I sent to you. But I basically I think I said to you, I'm just like a potpourri of stuff. Just because and I think you kind of mentioned I'm kind of all over the place but I just had a lot of interesting things. So having so many I feel like a lot of people are isolated when they have type one diabetes. They don't know a lot of people have type one diabetes. I have two type one diabetics in my family. So I have a lot of support. We are our own little club and it's so it's really nice. that our families are educated, we have each other to lean on, you know, then I'm a nurse that I was diagnosed late. I also, you know, it was funny because I went into the hospital and kind of self diagnosed. I mean, I just walked up to the ER desk and said, Well, I'm I'm a type one diabetic, and they said, Oh, well, how long have you been type one. And I said, Oh, I need you to tell me that I am officially today, because I just tested myself at home. But because we caught it relatively early, because we kind of knew what the signs were and the symptoms. You know, I wasn't in DKA. So I didn't get admitted. They sent me right home from the ER with the promise that I would be an endocrinologist office the next morning, because my brother already had an endocrinologist. So they just got me in. We have an interesting

Scott Benner 25:43
thought for a second thought was it. The same thing happened to Dr. Desk? Hi, we're here. Our daughter has type one diabetes for how long? And we're like, oh, no, no, we just figured it out. Yeah, yeah. And they're like, oh, and then today. Yeah. Right. Like, just now I'm telling you. And they look at you a little like, Well, maybe you don't know. But they took it very seriously. In Western right back. I'm sorry. I, I was in art school and getting that thought in. But oh,

Jill 26:07
no, that's fine. No, it's it was funny, because the doctor who comes in, and he sits down and he just like kicks his feet up on the bed. He goes, Well, I'm not going to sugarcoat it for you. You have diabetes.

Scott Benner 26:17
Thanks. I knew on the way over. You said a lot of people around you more than your sister and on your brother or I mean, not that that's not a lot. But are there others?

Jill 26:27
Now just those two, but I feel like most people, at least the ones I hear about, they don't have siblings or other people in their families that have oh,

Scott Benner 26:34
oh, yeah. Overwhelmingly, a lot of adults say that what they like about the podcast is listening. This is the only chance they get to even hear from other people who have diabetes. And right. It's weird, because I mean, the podcast has been going on for so long. I think people feel like, like, if I'm going to ask to come on, I'd better have like some crazy story, which is not true, by the way. But I think you might hear more people on the show with multiple people in their lives than actually exist in the real world.

Jill 26:58
Right? Yeah. And my brother and I constantly argue about who has it worse, you know, I say I had it worse because I lived 19 Completely normal leaders and then had to, you know, change my life overnight. Whereas He, you know, he was diagnosed before he was two years old. He never knew what it was like to not be diabetic. So

Scott Benner 27:16
is there a consensus? Has anyone won this argument? Oh, I went every time. Would he say that he wins every time. If I talked to him? That's irrelevant. But it's an interesting question, isn't it? Like, you know, him. So in my mind, if you're talking just about health, I give it to him, because he's held for shadow longer, right. So he could run into more problems just for, you know, turn, determine service. So but as far as making the adjustment, intellectually, and mentally, I think it's you, because of your age. So,

Jill 27:50
and I did go through a pretty gnarly diabetes rebellion phase. Shortly after I was diagnosed, I think I kind of gave it some effort for the first year or so. Then I just, you know, and we talked about on the podcast all the time, but there's just a lack of education. And it's just, it's staggering. And as a nurse, I know, firsthand how little education just general nurses get and how uneducated, they are about type one diabetes. And so I didn't know what the heck I was doing. Even though I had a brother. He wasn't, he wasn't poorly managed. But he wasn't, you know, super tightly managed at the time. I just let it slide for about five years. And it was pretty bad, and didn't actually get my act together until I met my husband. And then his sister was on a pump. And that was I had always said, I didn't want to pump. I didn't want to pump because I didn't want to be, you know, tethered to something. And then I met her and saw the pump. And it made me think, well, maybe I do want a pump. And then I got a pump. And then my brother looked at me and said, well, she's got a pump, maybe I'll get a pump. And then he got a pump. And by then he was in his 20s. And he was still doing MDI and had been since he was two.

Scott Benner 28:58
I'll tell you, what a common story from people. Like, oh, yeah, yeah. Really interesting. When you say things were a mess. What do you mean, what was your one? See? What was your day to day to day management? Like,

Jill 29:11
I think my a one C's were probably in the nines. I think they were like, low nines. I just didn't know what the heck I was doing. I was taking my long acting. I'm sure it wasn't enough for meal boluses. I was all over the place. I would sometimes Bolus sometimes wouldn't would either way over Bolus or under Bolus. I didn't know what my carb count was, you know, I was just kind of like looking at something and saying, Oh, that looks like two units. And I know you do that. And you do that effectively, but I was not.

Scott Benner 29:40
Well, listen, in fairness, I make those guesses along with settings that are really good. So like you're saying, I'm not sure if I had enough basil. I don't know what my ratios are. Like when I say I think that's two units. I have a lot of comfort that the other things are working the way that I expect them to. Right I was completely shooting in the dark. Yeah, this is interesting. So Oh, what happened? You get it at 19 Your parents are so dead inside from diabetes or your mom, I don't know. I didn't ask you when your mom passed. I'm sorry. Did she pass earlier in life? Yeah, no, she I was 11. So sorry. I'm so sorry. So. Oh, so it's your dad. Does that have like, you got like a stepmom? I do. Yeah. So you should add your stepmom. And they've been at this for so long with your brother, that and you look like an adult to them. So they were probably like, Hey, you have diabetes like that now here? And is that the idea? Did you just not get any, like support in the beginning that would have helped you learn these things? Were you just on your own?

Jill 30:38
No, I think that so my dad is incredibly supportive. He's very involved, very educated. I was also a sophomore in college. At the time, I wasn't living at home, I was living on campus. So he wasn't there for the day to day. And I'm a pretty independent person. So from pretty young, I had just kind of, you know, said like, Oh, I'm gonna do my things. And you know, my dad didn't manage things like that. So I was making my own doctor's appointments and dealing with the insurance myself and getting all my supplies. And so I think he just kind of was letting me do my own thing. And, and he would ask, you know, he would ask, how's my agency and how's my management and I did have a diabetes, diabetes education class when I was first diagnosed, but it was, you know, woefully

Scott Benner 31:21
inaccurate, inadequate, inadequate. Yeah. When he asked you, how's it going? How do you answer?

Jill 31:26
I honestly don't remember, it was so long ago.

Scott Benner 31:29
Do you remember? Let me see if I can just pull a feeling out of you. Do you remember being having a feeling that you were being dishonest? Oh, yeah,

Jill 31:37
no, I was definitely hiding it. And I was I was ashamed. But I also kind of was just, I don't give a f, you know, kind of attitude about it. Because I was in my early 20s. And I just wanted to, you know, be a young, I didn't want to have diabetes, you know. So I just kind of said, eff it. It wasn't until that I met my husband, and I wanted to commit to being healthier. And I just was tired of being on this roller coaster of being crazy low and then being crazy high and it doesn't feel good. You know, it doesn't feel good to be that high all the time. But you kind of get used to it. And that's your normal, you know,

Scott Benner 32:12
did you have a feeling like I'm trading later in life for this decision, but how much understanding you have of the consequences of what you're doing?

Jill 32:19
I don't think I did. I don't think I did at all. I think maybe I had just just an inkling of that. But I did not have the I wasn't in nursing school, then at that point, I didn't understand the gravity of the the choices that I made at that time, you know, affecting my later control.

Scott Benner 32:38
Okay. So when you're talking about being like embarrassed almost, when you're talking to your father, it's more about, he's asking you something, you know, it's not what he expects to hear back. And now you're kind of fibbing. And that part is embarrassing, right? And just

Jill 32:52
knowing that I should be doing better, you know, I know I should be taking care of better care of myself.

Scott Benner 32:57
I gotcha. And I wasn't Alright, so you meet your husband, you decide to move things along. Pump seems like it was the first step that got you moving.

Jill 33:05
I think I did. Dexcom first, but it's hard to remember that far back. But I remember when I was diagnosed, the first thing I wanted, I had heard of this magical device called a continuous glucose monitor. I wanted one and I think there was an insurance battle. It's just so hard to remember. But I think at one point, I did do the Dexcom, either just before or concurrently with starting the pump therapy.

Scott Benner 33:27
Okay. Did you have a reaction when you started using the CGM? Like, oh, my god, is this what's happening? Like was what's happening was what you saw happening on the monitor commensurate to what you thought was happening?

Jill 33:40
Yes. But I also at the time, I didn't know what good management really looked like. So I just it didn't have that impact on me, because I just thought, well, this is, you know, it is what it is. It's interesting.

Scott Benner 33:52
It's just it's very interesting, because I mean, of your now your professional background, which means you have the capacity to understand it, obviously. And so it's all context. Like, if people don't have the right context, there's no way for them to make any decisions, even if you give them the technology,

Jill 34:08
right. If I were to look back on my management and my numbers with through the lens of what I know now and how I manage my diabetes on a day to day now, I would be absolutely horrified. But at the time, I didn't have any of that understanding. So I just, you know, kind of looked at it and was like, Well, I'm high a lot, I guess, you know,

Scott Benner 34:27
and that's it. And you did you're not even when did you realize my question should be that being high and bouncing around made you feel poorly? Was it after you control it? Or was it while it was happening?

Jill 34:37
I think a little bit of both. I think I thought you know, I'm tired of feeling so all the time. And then once I started managing myself, it was the full impact of wow, I was really feeling lousy before I didn't even realize

Scott Benner 34:49
Yeah, no, I I think that's so important. And I want to remember to say it more often because newer people listen, and I think I don't think they know I think that it becomes like a numbers game. It gives me a few of context now like I shouldn't be 200 You know what I mean? If you know that your mind or my kids shouldn't be 250 after a meal, you don't know that. There's no way for you to know that they're not feeling well. And then they start getting accustomed to the feeling. And there's no way to know that that that acclamation is bad for you. Like just right when you start feeling okay at 250 Your body's making.

Jill 35:25
You've been you're you're Zero has been reset. You've been tired at a not a good level. And this

Scott Benner 35:30
is not Yeah, and this is not sustainable. Even though today, it seems okay. Today, you're like, Oh, I feel fine at 250 Yeah, that's bad news. Because one day, things are gonna start short circuiting. Do you have any problems or do you feel like you're doing well?

Jill 35:45
So now I'm it's I'm it's night and day, I'm a completely different person from from then before I found your podcast, I had started to kind of do a little bit of the juice box method my own way. I don't know why it never occurred to me to search for podcasts or for you know, communities online, but I was controlling my diabetes a lot better with pump and CGM therapy. I did Medtronic for a while. Gosh, I hated those sensors. So I got off that I did while at Dexcom with Medtronic for a while, then I went to Omni pod for a while. I love Omni pod, but I cannot use them because I have a terrible issues with tunneling and leaking and I believe it has to do with the 45 degree insertion angle. Okay. So I did Omnipod for a while, went back to Medtronic. Then I was about probably like the maybe at the highest seven a one C but usually like the high sixes then I discovered your podcast. I don't remember how. But this was many years ago now. And I think at one point, you just kind of offhandedly mentioned, looping. And that was before you ever tried to loop with Arden. And I forget the context in which you were just talking about was like, wait a minute, is this a thing, this this algorithm this, you know, this DIY pump. And so I went on a Google search and went down the rabbit hole and finally found out about looping. I just I couldn't I can't tell you how excited I was I went to my husband's like, this is a thing like you can actually do this. I buy all the things. I didn't have a Mac at the time. So I had to build the the virtual desktop on a PC and it took some time and some effort but then I was looping and I looped with the Omni pod for a while but then the same issues came creeping back with the tunneling and the losing of the insulin and so I had to stop. I tried to get a Tronic loopable Medtronic pump and it broke after I bought it off some guy.

Scott Benner 37:42
She's healthy. There's a world right I found a guy on line is gonna sell me a used insulin pump. Everything's listen.

Jill 37:47
I never knew that there was a black market for used loopable pumps, but boy. And then so I went back I actually then I went to the TCM and that's what I'm on now is I'm on the good for

Scott Benner 38:00
you. Yeah, yeah. Listen, Arden, Saab three, two days away from finishing her first semester of college. And so she's taking tests and finishing projects and going to class and she's sick. And I still saw her eat a big meal this morning. She didn't do a great job. It seems like she didn't Pre-Bolus And she had like a 190 blood sugar that she the on her own. Got back again in like 90 minutes. And I do not think that that would be her situation without algorithms. You know, and it's funny this happened the other night I need to talk about somewhere so it's fresh in my head. But her Dexcom was supposed to be supposed to die the following day. Oh,

Jill 38:45
is this what you post about about the transmitter? Yeah.

Scott Benner 38:47
And like around seven o'clock at night, she says, hey, my Dexcom is like really flaky, and the transmitter is done. So she's like my sensors done tomorrow. The transmitters not good for a restart. I'm just gonna do it tonight to get it. You know, and I was really proud of her for being proactive and not fighting with like a fluky transmitter, like for hours overnight. Everything is like, Oh, look at her, like being proactive. This is really good. So she does the whole thing sends me a text. She's like, I never done it before. But it all is perfect and went great. And it's warming up. And I'm like, that's great. I mean, she's been, I mean, we've obviously changed transmitters, you know, forever on G six for years. And she's there and she helps and everything but the first time she was doing it by herself. And two hours later, it just says transmitter failed. And she's now it's like 930 And I was like, well, that's weird. I said, Well, you know, monitor, get your old make sure your old transmitters way far away from you. And just, you know, do it again, like maybe it's confused. Maybe the two of them are too close. I don't know. Like, I'm not there. I don't know what she did you know? So she does it again. And it won't connect. And then it becomes a problem. And now it is not working. And so she's testing she's like oh my blood sugar's okay, it's 100 by 105 or something like that. I'm like Good, good. We'll test again and an hour So we tried it again and it didn't work. We ended up taking that transmitter off and going to the next one. Now she goes that I'm holding the last transmitter I have right now. She's like, you sent me two, which was more than more than she needed. And now we're on to the second one. And I'm like, Okay, well, you know, what do I do if this doesn't work? And I'm like, he's like, 800 miles from me, Jill, I'm like, I'm like, my brains gone. I don't know what you're gonna do. If this doesn't work, like, finger sticks. Yeah. Let's just hope this doesn't this works, right. So anyway, sets it up, goes through the thing, it won't connect. And so now I'm like, this is just a Bluetooth thing. But let me go online and get I want to download everybody's thoughts. And I'll read through them real quick and see if I'm missing something. Right. And we weren't. And finally, it just I don't know what I ended up telling her to do. That worked. We I think we rebooted the phone and like crap, you know, like, deleted the app and start over. So I'm like, something's weird. And like Bluetooth connections. Weird. I'm just gonna make it start over again. I did so many things. I rebooted the phone, blah, blah, blah. And it comes online, boom, hey, it's connecting. This is great. At that point, Jill, it was 130 in the morning. She's looking at me over FaceTime. Like, can I go to sleep now? Please? You know, she's like, I have a final in the morning. And like, I'm like, I'm like, no, no, no, yeah. So I'm like, alright, well, what do I do? And now my brains frozen. Because here's the other thing, two and a half hours into this, she tests no lie. She went from 100 to 400. Stop. And it was probably like a it's this terrible food from the college it probably had like a fat rise. It hit her on the other side. And now the algorithms not right wasn't there to catch her. Right? What how amazing is that? Because even if she wouldn't have done anything about a fat rise, the algorithm would stop her by 200. Right. But without that algorithm, and just eating the regular food that they gave her a college, not looking at her blood sugar for two and a half hours, from 100 to 440. That's incredible. So now we're making this giant Bolus without a CGM. And she while she's going to sleep, she needs to go to sleep. And I'm just like, oh, okay, that's this. This is what this day is gonna be like, that's fine. I said, Yeah. I said, here's what we're gonna do. I said, make a heat. I said, open up your health app, put in your blood sugar so that the loop can see the number, right. Like, I don't, I wanted to leave the loop open. But I thought no, when the CGM comes back online, I want the loop operating because we're all gonna probably be asleep. Right? So I'm like, so bolt, make this big Bolus, close the loop, go to bed. And she, she does all that. And then I use the next four hours to catch up on Shameless, which I'm power watching. Because I'm like, I'm not going to sleep. I don't know why I can't see your blood sugar. And I just, you know what I mean? Like, I just, I

Jill 42:51
just Yeah, but you, you want it to be awake for when it did come back online for

Scott Benner 42:55
the life of me. I'm like, I should just go to sleep. She's either going to die or not. I'm not there. I don't know. I can't see like, you know, but anyway, I sat up. And then two hours into it. I see a little Bolus and Nightscout. But we forgot the flip the switch in the loop app that says after you change the transmitter, that it's okay to send the data again. So I am not looking at I have no Dexcom data.

Jill 43:21
Yeah, I had to just the Dexcom follow. She

Scott Benner 43:24
didn't like she put the new transmitter on. And there's I don't know what happened to share didn't start working right away. So we just don't have anything, right. I don't, I'm just like, Okay, what do I do now? It's five, like, it's like five in the morning now. And I think, Oh, I'm still Nightscout is showing me the Bolus. So I'm like, if it bolused, he must be high, she needs insulin. And then I realized there's a little like pill where you can see what it what it thinks your what your blood sugar just was. And so now I'm like, Oh, I can see your blood sugar in this little like, little screen. So that's what I used to I sent her a text I said, when you wake up in the morning, we need to flip a switch in your loop app, you know, probably open and close the Dexcom app and get the share going. And she gets up in the morning, does not look at my text goes right? The school takes her test. And I'm like, and I was like, Fine, like she's fine. Like I'm still kind of able to monitor this way. But I'm not getting alarms. I'm not like, you know, nothing's happening like that. But I'm like, she's fine. She's She can do it. And she did. She went took her test. She said she got a 90 on her final. And then later in the afternoon, I texted her and I said, Hey, just FaceTime me real quick. I'll show you what, what switch to flip. And she did that real quick. And everything came back on. And that was it. So Wow. There's two stories in there. One of them is you can do it without technology. And the other one is the technology is really great. And you should probably use it if you could afford. I mean because I mean just look at what it's doing for like post meal. Right? That's crazy, you know, so anyway, I'm glad it's working for you. What are your outcomes like now like you went from nines to low sevens, high sixes to what?

Jill 45:04
So now I am right now my most recent was 6.1, which is actually a little bit high. For me, I prefer to be in the high fives. Yeah, but I've had a lot of life things going on. And so typically what I do is I will run a clarity report every week or every other week in and look back at the previous week's data and make changes. I know, you say, you know why watch it for a week, if you if you see a pattern after you know, one day change it, but I just don't have the time. Of course, I have a four year old and I'm a nurse, and you know, so I just, you know, I just choose to that's my level of attention. My attention has slipped, I haven't been running reports for a while because of just life being crazy. But so I do want to get it down a little bit. I actually have an appointment with a new endocrinologist, we just moved to Orlando, Florida. That's where we live now. And so I finally found an endocrinologist who's going to be on board, Dr. Metric who I learned from the type one beyond type one conference. I actually I met you at the top the conference back in September. And so I heard about Dr. Metrics spoke at that conference. And I said, Hey, do you take this insurance? And he said it? Yep. And I said, Okay, I'll see you in a couple of

Scott Benner 46:13
wait, you met me at touched by type one? tech spec type one. There

Jill 46:16
it is. Yeah, sorry. Sorry. I

Scott Benner 46:18
was like I was at a conference. I don't know about. That could have happened. But I know I'm usually more aware of myself in that. And so you in that great that you found a good doctor that's on board. That's local, everything. That's

Jill 46:31
right. Um, he's, he's over an hour away, but I'm willing to drive, you know, to finally have an endocrinologist who will be on board with my method, my my style of management, because I'm just constantly fighting endocrinologist, I have never been able to find anybody who is fully on board with, you know, being more aggressive about management. And to finally find somebody who is you know, I'm gonna be as gung ho as you are than I am. I'm, I'm willing to make that drive for that kind of man.

Scott Benner 47:01
was a delightful when you met me? Or was I not?

Jill 47:03
You were being your company. People were coming at you from all different angles. But I just heard you speak behind me. And I looked around I went Scott.

Scott Benner 47:11
I tried to go from the the table in the beginning where they greet people in the morning, I tried to get to the food. I was like, That's

Jill 47:17
exactly where it was. And you that's why I say you're getting you're getting it from all different angles.

Scott Benner 47:21
I was like, I just need, I don't want a lot. Like I just give you a piece of toast real quick. And I get a text on there for like a half an hour and I get a text from somebody that says, I thought you're gonna meet us for food. I'm like, I'm halfway there. She goes, What are you talking about? She's like, it's 100 foot walk. I'm like, Well, I'm halfway there. I'm Drew. I'm doing my best. And it's lovely. Like, it's really nice to meet everybody. But I see why. In a setting. Like it's a weird thing. I said to somebody when I was there. Somebody somebody said to me like why you're famous. And I said just here. I was like, If you could pick me up and take me 50 feet outside of the hotel, no one would know me. I was like,

Jill 48:00
if you just silently walked and didn't speak, then probably nobody would have

Scott Benner 48:05
gotten away with it. If I didn't talk. Yeah. But once I talk, then it's just then there's lines, which is, by the way, really nice and weird for me. Because I look up and I'm like, I don't understand this at all. Like I can just feel my children yelling at me and my wife mocking me and I'm like, I they would not my family would not wait to talk to me. So

Jill 48:26
what was really funny because at your, at your when he caught slot, it was so funny, because you're like, does anybody you're not listening to the nobody raised their hand like, well, everybody knows the stuff.

Scott Benner 48:38
That messed me up because I do a great little talk that kind of brings you up to speed and then I bring you into the stuff. And it was the first time it ever happened to me. I looked up at this roomful of people and I thought, Oh, no. He might not. Oh, let me ask, you know, like, Does anyone not listen to the pocket and nothing and I was like, oh, hell, I said to my wife later, she goes, how was it? I said, it's, it was different than ever before. I was like, those people were there to see me. And that's never happened to me before.

Jill 49:11
So now you need to prepare a people normally people don't know me presentation. Yeah,

Scott Benner 49:17
yeah. So now I have to do I have to do something different. I have to have to because it I mean, I think I did. Alright, I switched up on the fly. Oh, yeah.

Jill 49:25
No, you did but and my husband was there and he doesn't listen. So that was it was beneficial for him.

Scott Benner 49:29
Good. Good. I mean, you have to give them some context. They also just because they listened doesn't mean they get even you said something earlier. Like you know about making adjustments. And you know, you said I know you say after one day but that's just something you heard me say one time that stuck with you. Like I don't like always adjust after one day like it's just it's the podcast is weird because once I say something, it feels like it's a rule. You mean and that's hard to from my position like you have to sweat you have to be able to speak in a way way that guides people without, you know, having them walk away because you never know what people are going to focus on. You have to meet and take away from so anyway, but I'm glad it was good. And you had a nice time. I also

Jill 50:11
got to meet Jenny Smith and went to her talk on managing pregnancy and diabetes. And that was a that was amazing. Yeah, she's

Scott Benner 50:18
something else. Actually, Jenny just sent me a note. haven't responded to her yet. Like literally in the mail, she sent me a note, along with a photo we took after that day. So after that day ended, Jenny was on her way to dinner with a family that she helps who was they're really lovely people who I don't imagine what their name said. So I won't. But this was like that afternoon was my last time to say goodbye to Jenny. So I said, Hey, let's meet somewhere real quick. We'll say goodbye. Because as much as Jenny and I speak, we've only been in each other's presence twice, ever. So I came downstairs and I said, you know, I was like, hey, just want to, you know, say hi, and bye before you left and everything, and the family came up and said, You should come with us, we're going to dinner. And I was like, this is lovely. And then I heard my son's voice in my head. And he always says, one of these people is gonna kill you. You're gonna get murdered. It's gonna be by somebody listens to the podcast. I don't know when it's gonna happen. But it's definitely said I was like, alright, well, I do want dinner. And it sounds like fun. And this is better. I was gonna go up to my room and sit there. And so I was like, Yeah, great. So we went along, and Jen just sent me a photo that we took from there. And it sent me a nice note about the event. But I've only met Jenny twice. So you've met Jenny one time less than I have? Yeah. Wow, that's so special. She's I know her. I wish, am I sending a message directly to people who have me come out and speak right now. Maybe I wish that they would not have put Jenny in Iowa at the same time.

Jill 51:44
Do you know I, I, oh, my gosh, I got so upset. Because you your like second part talk was at the same time as Jenny. And there was a third talk that was at the same time as Jenny. That was I forget what it was, I think it was for like it was technology like new technologies and developments and future developments. And all three of those at the same time. And that conference, as much as I enjoyed it was very geared towards children and teens and had a lot of those sessions. And so for like the first two slots, there wasn't really anything for me to go to and all the the sessions that I wanted to attend as an adult. Were all at the same time.

Scott Benner 52:22
Yes. So I listened not just in that one touch by type one, by the way, it's the best conference I've ever been to, but But I tell everybody, like when they contact me, it's not as much speaking anymore. COVID kind of killed it. But like I say to them, Look, this is going to sound pompous, but you really shouldn't put me up against anything else you care about. Because I'm gonna cannibalize it. And some people are like, Oh, sure. Haha, you know, and I'm like, No, seriously, and then Jenny, and I basically cannibalized each other. So like, I think the mass of people were either with her or me, like, I felt bad for whoever else was speaking at that time. Because

Jill 52:58
yeah, there was nobody with Jenny. It was it was me. And I think to other women, that was that.

Scott Benner 53:04
That's a shame. Yeah, she should be with she should have her own slice. She's really good.

Jill 53:09
That was nice. So I appreciate that. Because we got like, one on one attention and time was fantastic.

Scott Benner 53:15
I wanted her to speak with me, too. I said, just like you ever come out with me and you don't want to mine? Um, because she and I've done that before. We did it in Georgia. And it went really well. Just like, like the podcast was kind of live. You know what I mean, right for episodes that she's in. But no, I mean, just a great conference. Absolutely. Beautiful hotel. The setup. Oh, wonderful. You know, gorgeous. Yeah, so good stuff. Well, I'm glad I wasn't bad. I mean, no, I don't fantastic. I don't really prepare that much. You don't I mean, so.

Jill 53:43
It was really funny because you were like, hype man, you weren't you. You took the mic, and you went outside. And you were corralling people.

Scott Benner 53:51
I've been I've been a JDRF events, where I'm standing a door and people are walking by and I have the microphone in my hand. And I'm speaking to them through the speakers. And I'm like, where are you going? We're gonna really shouldn't do that. You should come back in here. Like I don't. July, I just got a call from somebody, they want me to do this event. I can't do it. It's so far across the country. It's like 17 airplanes to like a puddle jumper you don't like I'm like, I'm sorry. That sounds like I can't do that. They were like, Oh, well, you don't have to spend a lot. Just come out, give your talk and go on. I'm like, You want me to fly all that way, and then just talk for an hour. I was like, I'm definitely not doing that. Like, if I come use me, you know what I mean? Like, I'll talk all the time, if I can, you know, or actually, I did something with touch by type one. This time that went I thought really long. I know. They enjoyed it. But I just went and talked to the kids. There was like 50 kids in a room, their parents were in there, some of them. And we just talked about what it was like for them to have diabetes, you know, and then just tried to give them the overall idea. Like the big picture stuff so that if their parents came to my talk, and went home, they wouldn't be met with resistance by the kids. Like, they'd be like, Oh, I heard this too. Like you don't mean so maybe it would make it easier for them. Right. All right. Anyway, I had a question about your job. It's a very active job, right? Like you're moving around constantly. Is that right? How do you? Does the control IQ hold up with that? Well,

Jill 55:12
yes, I've been surprised. I think it also, when I used to work a night shift, I used to have a lot of issues with with lows have to run either Temp Basal, or, you know, with that control IQ, you can't do that, which drives me nuts, by the way, unless you go out of the algorithm, but you I would put on the activity setting, and that sometimes would or would not be enough. Okay. But during day, it manages me fine. I hardly ever go low. If I do it's very occasional.

Scott Benner 55:38
Well, that's excellent. I mean, that's, that's what you're looking for much better and much better than what you had previously. Yes, yeah, that's right. I can't say enough about. And I think these algorithms just get better and better as time goes on. But it's a new world, that's for sure. And they all have now too. So it's terrific. If you want to use a Medtronic pump, you can do that. If you're using, you know, tandem on the pod. They're just, you know, do it yourself options. There's so many, you know, so many options that I love that about it. So they don't like it, I'm sure the companies

Jill 56:12
but I'm gonna try it certainly doesn't like it. It's funny because I got my brother to, you know, I don't know if he would say I got him to pump but you know, got him more interested in that. And now he's a pediatric endocrinologist now. So he can teach you along that path. And he's always been wonderful with kids. And, you know, he has a unique experience of having diabetes since he was a baby. So now he's a pediatric endocrinologist in New Jersey.

Scott Benner 56:39
So Oh, that's amazing. Was he was he always I on being a doctor? Yes. Oh, okay. Yes. He didn't go from like, working at GameStop. And he's like, You know what, I should do less?

Jill 56:51
No, no, no, he always wanted to be a doctor. He considered doing pediatric neurology for a while, but I've me and everybody else in our field was like, Pat, you gotta go on Endocrinol. So he loves it. He loves He works out of Rutgers. And he's just having he's having a great time.

Scott Benner 57:08
Oh, no kidding. I drove past Rutgers recently. Yeah. And I thought to myself, I hate driving here. Terrible traffic. Do you think people who like live in the US live somewhere around here with Rachel?

Jill 57:21
I live in Orlando. Okay. Yeah.

Scott Benner 57:23
I mean, East Coast. I don't even think of the whole coast is the same place. But

Jill 57:27
well, all my family's in New Jersey. It's just, I'm the only one who's just not there

Scott Benner 57:31
currently. I just wonder when you say traffic to people who are like, you know, like, there's somebody in South Dakota here that and like, what, what vision pops into their head when they hear traffic? You know, cattle? I don't know. I mean, the number of cars I mean, I know, you know, that you're in four lanes, like you're on your own, like, you've been like 287 There's like, oh, yeah, five lanes of traffic, everyone's driving 95 miles an hour,

Jill 57:55
just from the Washington DC area. I know traffic terrible. I'm about

Scott Benner 57:59
to drive through DC in two days. That's actually part of the drive where you think, Alright, it'll be a good shot from here to here. And I'm gonna hit Washington. And that's gonna take forever. And then you know, like, you know, it's it's such a game, you just don't know if you don't know.

Jill 58:15
Yeah, you got to plan your, your time that you're leaving around whenever you're going to hit the beltway.

Scott Benner 58:21
My sister in law came for the first time from Wisconsin. And I picked her up at Newark, and we were in the parking lot. And there's like a hotel in the parking lot. I don't know if that's maybe 15 storeys high or something. We go out to the car, and she goes, that's the tallest building I've ever seen in my life. Oh, wow. I was like, well, you're about to be knocked on your ass because so we you know, we leave the parking lot at the airport. And you look across the there's bad Manhattan and like the, the Budweiser facilities there and everything. Like if you leave the airport, and she's like, Oh, my God, and then she looks at the road. And she goes so many cars.

Jill 59:00
Road is so wide. Yeah, she

Scott Benner 59:01
was just like, I didn't I didn't see this many cars last week, like in total. And I was like, well, here they are. And we're gonna dive in with them like salmon swimming upstream and try not to die. So let's go. And I don't know how it works. Both those.

Jill 59:15
Somebody smarter than me has figured out how to make roads, somewhat safe.

Scott Benner 59:20
Fascinating. Isn't it fascinating that we are not constantly just running into each other? Yeah, so it really is something. All right. What have we not talked about that we should have talked about?

Jill 59:30
There's a couple of things I want to talk about. So I have some kind of thyroid disease as of yet undetermined. So I had my son in 2018. And I was able to manage myself very well throughout pregnancy. Just kind of on my own. I didn't really have a lot of guidance. I didn't have a great endocrinologist at the time and my OB was fine, but they just they weren't good at managing diabetes and my MFM did not do any kind of management of my diabetes. So I was kind of just on my own, but I did agree A job I was between like a 5.1 5.41 C three pregnancy. And then afterward about a few months, up to a year afterward, it just started losing weight like crazy. And I'm like, wow, this is awesome. I guess this is postpartum chasing a one year old heck and losing all this way. And you looking back at it now like, I'm an idiot, I had all of these classic die, symptoms of hyperthyroidism. And I was just like, this new motherhood, you know, and

Scott Benner 1:00:31
he's back by the world for bringing a baby into it. It's gonna make me make me like I was when I was 15

Jill 1:00:37
is amazing. And I was like, I look great. Doesn't matter that my hands are shaking all the time. That's fine. I have this like horrific heat intolerance. That's fine, too. And so finally I went, I had an I finally got a new endocrinologist and she was like, when was the last time I checked your thyroid. And like I said, I've got tons of thyroid on my, my dad's side. My aunt and my grandmother. They both had our Hashimotos. And then my other aunt has Graves disease, and she actually had thyroid storm two years ago and almost died. Oh, wow. So I she was like, I actually don't know when the last time I checked my thyroid. She was like, well, they must have checked it while you're pregnant. And then we looked back and somehow, neither my endocrinologist, my OB, nobody ever wants checked my thyroid levels throughout my entire pregnancy as a type one diabetic. That's not good. Not good. So we checked my levels, and they were like, my thyroid stimulating hormones like almost unreadable. It was so low. So I started on the, at the PTU. The other one that's gonna let them as well.

Scott Benner 1:01:42
And that's all. I don't know that one.

Jill 1:01:45
Yeah, so methimazole and PTU, I guess are the drugs of choice for treating hyperthyroidism. Okay. And so I did that for a few months. And she at the time, she, you know, checked all the antibodies. And I came back positive for both Hashimotos and for graves antibodies. And so I did them at the muzzle for a few months, my levels, Mike came back into range. And then she kind of said, you know, it could be grazing, you're now in remission, or you are, you know, this could be started Hashimotos. And it's, you know, thyrotoxicosis from, you know, the thyroid gland being damaged. Yeah, you're

Scott Benner 1:02:27
just not sure yet. Right. And so

Jill 1:02:29
this has been, I mean, it's been four years, and we still don't know, a lot of medication. Now, so my levels have been stable. But after listening to your episode with Dr. Starts with the s, Dr. Benito, Dr. Benito. Yeah, my levels are quote, quote, quote, unquote, in range, but they're high for me, right? Because I have a lot of hypo symptoms. They've done ultrasounds and I have goiter, but they've looked at the ultrasound, they said that everything looks okay. So I'm not really sure what's going on there.

Scott Benner 1:03:02
So you have symptoms, though? I think so.

Jill 1:03:05
Not, not markedly so. But sometimes I'll have cold intolerance, I had a lot of weight gain, which also can be from the methimazole. But I've been off of that for years now. Dry skin, you know, so some of the things that I see, you know, you could say our hypothyroid symptoms, I've thought about once I go to this new doctor, like I said, he's kind of more hip to how we do things. I'm saying like maybe just trial, a low dose of Synthroid and see

Scott Benner 1:03:34
Yeah, I mean, there's no harm in it. I mean, to get your I mean, Dr. BENITO tries very hard for two, right Oh, two level, I think art is a little lower Cole's like a little higher. But they're right at two. And Kelly's I don't remember what Kelly's last one was, I have to tell you what you said stuck with me so hard. After Arden was born. I don't know how many months it was after Arden was born. But I remember looking at Kelly thinking, if getting her pregnant makes her look like this. We should probably keep doing it. Like she was like, You know what he means? Like, he was like, I was like, You look amazing. And she's like, I know. Like, just, I mean, it was it was it was incredible. I thought she was pretty before and I was like, wow, like, you look like you're gonna be in a bit of magazine soon. And really what it was was, you know, thyroid issue. And then and then of course, we didn't notice it as that. And then by the time she started having more of the like symptoms, and then her weight swung the other way. And then she went to a doctor and the doctor was like, hey, lose weight. That's your problem. And she's like, I don't think so because I don't eat like, I just don't think my eating and exercise is commensurate to what's happening to me. And they would just tell her just lose weight or you're depressed. That was the other stuff. You're depressed, lose weight, blah, blah, blah. No one ever and then we, you know, the only reason we figured out Kelly's thyroid issue, Ardennes first Nurse Practitioner. I think her first one just said offhandedly, one day. Yeah, you know, a lot of times you see autoimmune diseases through families. And I went, really? And she was because I didn't know like, how would you know? And I was like, really? Because yeah, it's pretty common. I see the Kelly. Hey, guess what she said today. And then we started looking at our symptoms differently. We figured out that Kelly's thyroid was a problem. And then it still took a number of years to talk a doctor into giving her anything. And by then it really, it just really beat her up. Right. So terrible. Anyway, that's, I think, why I'm so the way I am about it. I don't want to I don't want to see anybody go through that. If they don't have to. I know what it looks like. It's terrible. So yeah, I think you should, I think you should use medicine, as well as you can to keep yourself where you want to be.

Jill 1:05:52
Yeah, so that's something I'm going to look into right. Also, do you know who Dr. T Berry Brazelton is?

Scott Benner 1:05:59
Is that the like, the baby doctor from the book? Uh huh. I didn't know it's kind of

Jill 1:06:05
Yes. So this is a much longer story. But I'll just give you the little the little bit. But so he used to have a show a TV show, in the 80s. And 90s, called what every baby knows, my brother had a, I actually don't remember how, how we met him how we got in touch with him. But he had a show. And because my brother was, you know, so young, when he was diagnosed with diabetes. I guess they had gotten in touch with his production company for that show at the time. And he found out that my mom was pregnant with me at the time. And so I was born on his TV show. We really, yep, I was the first episode of the season, where they featured a whole segment on Parents with a special needs child special needs being type one diabetes, and having a second child. And so her labor and birth was on the first episode of the TV show. And then my brother, you know, them sitting down with me and my brother and talking about type one diabetes was featured throughout that season.

Scott Benner 1:07:06
That's amazing. Do you know how long he lived?

Jill 1:07:09
Out? Yeah. Well, you kept in contact with him for a long time. His picture was on our fridge going up. Oh my God. He was 100 when he died. He was an amazing, amazing guy.

Scott Benner 1:07:18
He missed 100 by two months. Oh, isn't that crazy?

Jill 1:07:22
Yeah, no, I remember reaching out to my dad when he when he passed. I was like, Oh, Dr. Brazel.

Scott Benner 1:07:27
That's it. That's an incredible story. I'm looking at a little bit of his particulars here. What I think is very interesting. Two things. One of them most interesting is he only had one kid. He got one he's like, you know, this enough.

Jill 1:07:42
I'm surrounded by kids all the time. Yeah. One of the homes good.

Scott Benner 1:07:47
And Yep. Did he he married late? That's interesting. What for Holland. He's born in God. This guy was born in 1918. in Waco, before waco meant what, what makes you think now, so 2838 48. He's 31 When he gets married. And what's super interesting is that they list the end of his marriage as when he was like, 96. But I am finding myself hoping that she passed away. Not that they got divorced, that they're dying late. Oh, God. So now I'm gonna look. I'm just hoping, alright, she died in 2015. Okay, so I don't know, it's for some reason. I was like, I would prefer that that lady died. Then they got divorced in their 90s for some reason. As far as me taking in, you know, information goes.

Jill 1:08:35
Well, that went to their house a couple of times to you know, have barbecues with the production crew and the other families that were featured on the season.

Scott Benner 1:08:43
That's really something how long did it do you know how long it ran for? The TV series ran for 12 years? That's really crazy. Yeah,

Jill 1:08:53
so that's my always my icebreaker when I was like oh icebreaker to this. So it's a fun fact, about yourself. You were

Scott Benner 1:08:59
born on a television show. That's what I say. That's for TV.

Jill 1:09:03
And do you know Dr. Peter Chase? That one? I don't know. So he wrote The Pink Panther book series for kids. Oh, oh, yeah. type one diabetes. Yeah. And that was my brother's endocrinologist when we lived in Colorado. Interesting. Yeah. And we also do you know, doctor, not doctor, just Barbara Davis, the dark Barbara Davis family and foundation.

Scott Benner 1:09:29
I mean, I know the Barbara Davis Center. So yeah, I assumed it was named after a real person.

Jill 1:09:33
Yep. So that's where Dr. Peter Chase was. But before that, we lived in LA. I was military if you couldn't tell already by now. We lived in LA and his Endocrinologist, Dr. Frank Kaufman in LA, put them in touch with the Barbara Davis Foundation, and family and my brother was invited to be one of the kids at the carousel of hope in the 90s. And so they all that's when they had their celebrity asked works for the diabetes ball, I guess you would say. And then Sylvester Stallone was my brother's escort for the night.

Scott Benner 1:10:06
No kidding. Barbara Davis, by the way, 93 years old and still moving. Wow, she pops some kids out 12345 think she had lubrication?

Jill 1:10:18
Let's all help. So

Scott Benner 1:10:21
we've waited an hour to do that call back

Jill 1:10:23
way to bring that full circle.

Scott Benner 1:10:26
But sitting on it. Not. I shouldn't have been sitting right. I've been. I've been holding. I've been holding it for just this occasion, hoping that we would talk about a 93 year old lady's children.

Jill 1:10:40
Right? Yeah. You never know when that comes up.

Scott Benner 1:10:45
You just never know. Sorry, I don't know why that made me laugh. So I had the COVID It turned into bronchitis. Oh, around week four. My wife was like, We need medical attention. I said, Yeah, I think we went to I have to tell you, I have insurance. It's pretty good insurance. I live near doctors, they're good doctors. I still prefer to go to urgent care for a lot of things. Really, I love the urgent cares, really good. So I guess maybe that's part of it. Like maybe if I walked in there and it was more like a crack house, I'd be like, I don't want to be here. It's really. So you know, I don't need an appointment. I go when it works for my schedule. I walk in, I say this is what's wrong with me. Bang, here's a chest X ray, here's this, here's that it took a little blood. Boom, boom, lady comes back in the room, she goes, gave you a story pack, I'm gonna give you Z pack of some kind, you're gonna feel better in a couple of days. You've got bronchitis to rebound bronchitis from COVID is very common. We're seeing with a lot of people. And I'm like, Thank you. First of all, I wish you could take the steroid packs forever, because you never Oh my god. So no lie. It's just it's just like a you know, I don't know, like a little pill. My back has hurt. My back is hurt since I was 20 years old. My lower back again, just it's a part of my life. And I take this stuff, boom, back is perfect. I was there I get twist around like a spring. Right? If I had any I noticed the last time I was wanting even digestive issues before I found the digestive enzyme and all that stuff that kind of to actually put things right. Even my digestive issues went away on steroids. And I'm like I have I obviously have inflammation, you know, and the first day and a half on the steroid IP, like you like you shot a bazooka through a camel. And so

Jill 1:12:46
it makes me concern for your prostate,

Scott Benner 1:12:48
does it? Right, yeah, right. But inflammation again, right. Right. Exactly. I should be taking the steroids forever. Is that what you're saying that maybe I was so sick that when I sat down the doctors, like let's see if we can help you. I said, I want to be clear. If you think cocaine or heroin will help me. I am up for it at this point, because I'm so sick. And I talk every day. So I sit down now to do the podcast with a giant like, you know, carafe of like hot tea. I'm like dumping it down my throat when I'm talking trying to keep going, you know, and this meds hit me. And in 24 hours. My chest doesn't hurt anymore. I feel better. I obviously have too much energy because I talked about boobs for 15 minutes this morning. So I'm feeling better. And it's just it's fast thing. I will again, you know,

Jill 1:13:39
that makes me disappointed because I had the exact same thing happened after I had COVID. And I couldn't have steroids because I'm a diabetic. Because I had I had COVID twice because I had the I took pecs over because I'm a diabetic. And then I had the rebound COVID week or so later after the COVID had subsided. And then immediately after that I had the flu. And what I'm now convinced it was the rebound bronchitis because I was so sick and I had to go to the emergency room get a chest x rayed. It was a whole big thing. But I didn't get no steroids.

Scott Benner 1:14:15
Oh, I'm sorry. That what was that packs? What's that med? Pack? SLOVAN. My wife got it. That and that drug is the reason? Listen, I don't know anything. All right. But my wife takes that drug in five or six days after getting COVID Like she was laid up. She was like laying in bed going. Like, you know, and I'm like, let's call the doctor. So we call the doctor said Oh, take this. I don't know if it's three or four days later. She's like, I feel like a million bucks. And I'm like, great. And then we you know, tested she was negative couple times we even stuck. We left her in the room a couple extra days because my son and I were like, you know, yeah, she looks sad in there but we're not sick. So let's leave her in there. I tested negative a couple times were like, Alright, we're gonna allow you to come out. She comes out. And two days later, she's sick again. Yeah. And she got us sick. And I was like, unbelievable. So now she's back upstairs. I slept in orange room for like 10 days this month, like because I was just trying to stay away from her. And oh my god, like, I know people are like, I know that COVID started out by being like, it's killing everybody. So if you don't die, it just feels like a win. But I mean, there were six or seven nights in a row. I couldn't sleep. I was exhausted all day. But when it was time to sleep, I had no feelings of going to sleep. And I would lay overnight for seven hours, getting hot, and then cold and that hot. And just it was, it was insane. That I'd sleep from like 6am to 9am Get up and make the podcast. As a matter of fact, if you guys go back to Episode 789, it's an episode I did with G voc about the hypo pan and Jenny. I'm listening to that literally today. Oh, well, this is perfect. Then how do I sound are that good? Right?

Jill 1:16:06
I just started it. So I don't think I'd noticed yet. Sweating like

Scott Benner 1:16:09
I was kicking heroin while I made that. Okay, like I came into the room. It was very embarrassing. Because it's an episode. First of all, it's an app, it was my idea. I've been like pursuing G voc. I'm like making an episode with me about this. You know what I mean? And they were very kind and they wanted to do it. And they you know, it's great. It's good for them. It's good. For me, it's good for the people listening because I think people don't know how to use their glucagon very well. And so we sit down to do it. The reason I tell you that it's it was, first of all, I have nothing to hide. But there were four people from the company on the call, like you and I are talking now no one hears us. But Jenny and I were talking. And there were four other people listening in. And I come in the room now my cameras on so Jenny can see me. I come in the room in sweatpants holding a blanket. And I sit down, and I put the blanket down next to me and I look over this piece and I go listen, I don't know if I got RSV or COVID. I haven't decided yet. I'm really sick. You're not going to notice while I'm making the podcast, I go, I'm a professional, this will be fine. I said but if you ever see if you see me pick up the blanket wrap around myself, I don't want you to worry. Because I feel like I'm about to be freezing. And then I start talking and I can see Jenny looking at me like Are you alright? And I didn't even realize that I just started like sweating and sheets. And through the whole thing. I was on fire. And then I got done. My son comes in he goes, Are you alright man? And I'm like, What do you is your shirts wet? And he's like, I don't mean like a couple of spots because you're, you're wet. And I said I gotta go lay down. And when I got done, I sent a text to my guy at the PR company. And I'm like, What's that? Okay. And he goes, it was amazing. And I was like, really? Because I'm not okay, like, and he goes, he didn't look good. So, anyway, be very impressed when you listen to that one because I was on death's door when I made that episode. And I don't think you can tell. So I have

Jill 1:18:05
I'm gonna go listen to that. You know, that's so funny. I just started listening. And

Scott Benner 1:18:09
then it just hung on for weeks. Like you'd get up tired all the time. Always sick. always feeling like blowing your nose, your chest feels heavy, you can't breathe. You know, I had to go outside and do yard work because like their leaves are falling. And if I don't get into the street, I'm gonna be stuck with them all year. I thought I was gonna die doing that. And then finally, Kelly's like, we got to go to a doctor again. I said, Yeah, I don't know what we're doing. I think it's you just don't you never feel your age. Like I just remember back to when I was younger, like this wouldn't have stopped me, you know? And now I'm like, I'm not kicking this. And then boom, magic pills and all good. Yeah, I'm sorry. You got to twice you said.

Jill 1:18:52
Yeah. Did Kelly had the horrible Peck? Slow? Bad

Scott Benner 1:18:55
mouth? Yes. Oh, yeah. Like a bad taste in her mouth. Right? Oh, yeah. Horrible. said that, too. So anyway, after all that the doctor says the doctor that gave her the Pax Lovitt not the urgent care. We get back on the phone with him. At some point. He goes out. We shouldn't give him that too. Oh, that was like, I was like, Oh my god. Okay. He's Yeah, we're seeing this with that. I wouldn't prescribe that. I was like, one of the guys in your office did he goes you should you talk to each other? Like you don't even like, right. So anyway, I don't know. I don't know why. And we, by the way, I've been vaccinated and boosted. So it was Kelly. And so it was call. So I don't know. I mean, maybe this was lesser than it would have been. I have no idea. You know, right.

Jill 1:19:42
That's what I kept saying to my husband. We I was pretty sick. He got a very very mild case. He was sick for like one day. I said, but can you imagine if we hadn't had these vaccines? That's why this disease was so scary when it first came out because we didn't have any treatments. We didn't have any disease. Yeah,

Scott Benner 1:19:56
no, of course. Well, I never get sick for long so when everybody said Gotta get it and I was like, I am going to be the SuperHero this scenario because like two days from now I'm going to be okay and and it just like that's how I get sick like you can. Like there's maybe twice a year I'll look at Kelly and go getting sick. Gotta go lay down. And I'll sleep all night long wake up in the morning and it's over. And that's just how it usually works for me. This did not go that way. So anyway, kicked our asses is what it did. Oh, okay. Well, you were delightful. joins us you get did you enjoy this? Oh, yeah, this

Jill 1:20:30
was something else. This is so fun. Oh, good. Good. I'm

Scott Benner 1:20:32
glad. That's excellent.

Jill 1:20:33
What am I talking shop?

Scott Benner 1:20:35
Shop is a euphemism for your boobs? Or what are we talking about? Your existing term? My favorite part of the episode, everyone go back if you didn't hear it was We're like two minutes into it. And I said, So do you like lean across the table and say eat like because we're gonna have sex later. And Joe went she went, is this how this is gonna go?

Jill 1:20:59
Oh, man, I was gonna tell my dad and listen to this

Scott Benner 1:21:03
install. Listen, it's fine. Your dad knows. He's figured it out. And if he didn't know, back then he's figured it out at this point, don't you think?

Jill 1:21:10
Oh, yeah. No, he was he was right there at the doctor with me. He knows.

Scott Benner 1:21:14
Oh, you started saying he was right there. And I'm like, oh, what kind of a sinister story is this gonna be? But you meant at the birth of your child?

Jill 1:21:25
No, that's not what I meant. I'm at the doctor with the plastic surgeon.

Scott Benner 1:21:28
Oh, for the oh, oh, I guess you were pretty young. Right? Yeah, no. So you had to go to your father and say I'm thinking about getting the girls taken down.

Jill 1:21:38
Listen, when your mom dies when you're 11. Yeah. And you only have a dad, you get really close to your dad. I mean, you understand you have the same relationship with Arden. Sure. You know, he he knows all about my periods. He knew every time I had my period that I was going to be laid up. I had to go to him and say listen, I don't like my boobs. They're too big. Let's go to a doctor. You know,

Scott Benner 1:21:58
he's all for it. Look at him. Oh, that's really progressive. That's excellent. Yeah, no,

Jill 1:22:02
that's it's a silver lining. You know, you know, you have this relationship with Arden and I had this relationship with my dad that you're able to be a lot more comfortable and freer with one another.

Scott Benner 1:22:12
Starts out because you have to be but by necessity, right, then you realize exactly. Yeah. No, I agree with that. For sure. Okay, well, that's excellent. I'll ask you one more time. Is there anything we missed? Oh, thanks. So excellent. Thank you for doing this with me.

Jill 1:22:27
Thank you for having me. My pleasure. Hold

Scott Benner 1:22:29
on one second. Okay.

I'm gonna start off by thanking Jill and then I'm gonna thank us med us med.com forward slash juice box or call 888721151 for us med always provides 90 days worth of supplies and fast and free shipping. You can get your supplies just the way we do at US med. Don't forget if you know somebody with type two diabetes or prediabetes, and you'd think they would enjoy some content especially for them. Go to juicebox podcast.com. Click on type two diabetes, you're gonna get the type two Pro Tip series, as well as some episodes called type two stories. And these people have type two diabetes. And if listen to the podcast, you get to hear the results. Turns out there's a lot in this little podcasting that helps people share it with somebody who could use that help. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast.