#1355 Bigfoot, Aliens and Diabetes

A child's T1D diagnosis led to the discovery of a rare genetic condition that saved her mom's life.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Welcome back, friends to another episode of The Juicebox podcast.

Samantha is back. She's a returning guest, and she's here today to talk about how her child's type one diabetes led her to find out that she had a rare disease and that saved her life. Please don't forget that nothing you hear on the Juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D drink, ag one.com/juice box. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juice box at checkout. That's Juicebox at checkout to save 40% at cozy earth.com don't forget, if you're a US resident who has type one or is the caregiver of someone with type one, visit T 1d exchange.org/juicebox right now and complete that survey. It will take you 10 minutes to complete the survey, and that effort alone will help to move type one diabetes research forward. It will cost you nothing to help to Today's episode is sponsored by Medtronic diabetes, a company who's working to make the invisible visible through their blue balloon challenge. Life with diabetes is like doing everything in life while trying to keep a balloon in the air. The blue balloon is a powerful metaphor for the daily struggles that those living with diabetes go through Medtronic invites you to join the challenge by taking a video of yourself balancing a balloon while doing something in your everyday life. Post your challenge on social media with the hashtag, blue balloon challenge and follow at Medtronic diabetes on Instagram to see other blue balloon challenge videos. Today's podcast is sponsored by touched by type one. Check them out on Facebook, Instagram and at touched by type one.org. If you're looking for an organization who's helping people with type one diabetes, you're looking for touch by type one.

Samantha Arceneaux 2:13
Hi, my name is Samantha arsenell, and I am in Orlando, Florida.

Scott Benner 2:16
That was easy, wasn't it? Yep, always the hardest part, perfect. You had your voice was all nice. You paused, collected yourself. It was lovely. That's a for everybody listening. That's how you do it. Sometimes I'm like, whenever you're ready go, and before I can say go, they're like, I'm Bill. And I'm like, All right, well, slow down, man. It's like, we're not in a rush. Yeah. So Samantha, you are a past guest. Let's tell people that. Yeah.

Samantha Arceneaux 2:39
So I've been on twice before, and the topic, both times, has been regarding insurance and between how to kind of appeal for things and fight your way through insurance guidelines, as well as how to save a bit of money picking your insurance. I'm

Scott Benner 2:55
going to look to see if I can figure out what episodes you were on. Well, one was

Samantha Arceneaux 2:59
the beginnings, the bull beginnings. So yep. And then the other one I believe, is episode 67 but I could be wrong. It's in the 60s. That's insane.

Scott Benner 3:08
It's episode 61 you were on the show 1016

Unknown Speaker 3:13
Yes, very early on.

Scott Benner 3:15
Oh, my God, that's eight years ago. That's

Unknown Speaker 3:17
fast. That's how long we've known each other. Oh, wow,

Scott Benner 3:19
look at us. But today we're not talking about insurance. We're going to talk about an experience you've had with your kid and your life. I don't really want to direct you through it, so why don't you just tell me the story, and then I'll ask questions.

Samantha Arceneaux 3:32
Yeah. So when I first reached out to you, I had a couple different things going on, and it just kind of seemed like very odd coincidences related to type one, but I think I'm probably the first guest that you'll have on your show who can genuinely say type one diabetes saved my life. So that's kind of like my claim to fame now. So I had a situation where, obviously my daughter was diagnosed with diabetes very early. She was 22 months old. Her name is Michaela, and I was pregnant with my second daughter at the time. And, you know, you kind of go through that panic when you're first diagnosed, of, is this going to be hereditary, where my other child can get it? So I started down this rabbit hole, so to speak, of DNA testing, you know, genetic testing, just trying to, you know, in my Mom Brain, see, you know, does Michaela have one version of a genetic mutation, and does my other daughter also have it? So I submitted all of our DNA through 23andme and at the time, my husband's like, No way. You know, they're gonna store your data. I'm not doing that. You know, total just conspiracy. You know, don't, don't want anything right, like this is also the man who hadn't been in the doctor in like, 10 years. So, you know, typical with the healthcare situation. I did that and realized I can get the raw data. So when you go on 23 me, and you submit for the health they give you your files, and then you can take that data and. Upload it to other companies that will do a little bit of a deeper dive than what 23 me is able to. So I use this company called Prometheus, and it was $10 to upload this data. And it kind of just, it doesn't diagnose you with anything, but it takes studies that are out there and gives them a rating as to how much of a correlation there is to what your DNA is presenting as. So when I did this, I found both of the girls to have something called, and I'm going to Butch butcher this familial hypercholesterolemia. So it's basically a genetic disorder for high cholesterol. And because me and my two daughters had done it, I realized I was not having this same alert kind of come up. And when I researched it, I realized it has to be from a parent, like, there it's it's definitely a parent hereditary thing. So I was like, okay, it has to be coming from my husband, right? My husband's in complete denial. Nope. Not me, not me, definitely not me. So I'm sitting there. Okay, that's that's fine, whatever you know, trying to get him, you know, at least check his cholesterol, not happening. You know, some people might know I am a board of director on touch by type one, which is one of your your brands that you have is on the show as well. And you speak at our yearly conference. Some of you may know we also have the D box, which is a free box that we send out to newly diagnosed patients. But back in the day, when it was first starting, we would sit around, have a small group of volunteers, and we would assemble the box together. A friend of a friend just happened to be volunteering that day, and she was mentioning that she worked for a local hospital system in their research department, and that she happened to be researching, FH, the short name for the one I'm going to butcher clearly. So I go, you know, no way. That's amazing. My kids were recently found to have this, and I'm trying to get my husband tested. And she goes, Well, we have a free study. Like, fantastic. I can get him the study. So I asked him, he's like, No, no way. And I said, Well, babe, why don't I come with you? You know, we'll, we'll both test and definitively see who it is, right? Because in his mind, he's going, it's gotta be her, you know, I'm, I got the good genes, right? That was kind of my sway to get him in, is that I agreed to go with him, knowing I was already negative. So we went in, we it was an easy, you know, swab sample, and they had a little form that said, Would you like to hold on to your sample and compare it to future studies that we meet do at the Research Institute? And, you know, I'm like, sure, you know, keep my sample, compare it. And my husband's like, no way they're destroying my sample. So fast forward two and a half years. I get a call from the Research Institute, and they said, we just want to let you know your sample has come up positive for one of our other studies. Okay, what's that? And they said, it's the RET gene. Never heard of it. They said, well, people with mutations in the RET gene are basically people with multiple endocrine neoplasia, again, have no idea what they this means. And they said, well, people with multiple endocrine neoplasia, it looks like you would be type two. Would basically have a 95 to 100% guarantee in your lifetime of developing medullary thyroid cancer. And I was like, Excuse me, and they said, typically, this is hereditary, meaning everyone in your family line kind of knows they have this because of the prominence of this cancer. So they will start testing babies for this, and if they're found to have this mutation, their thyroids are removed by age five, so that they don't develop this cancer. Obviously, getting this news at 37 like, what does this mean? 32 years late, apparently.

Scott Benner 8:48
But go ahead,

Samantha Arceneaux 8:48
exactly, and no family history whatsoever. So mine happens to be so first of all, let me give you some stats about this disease. So you kind of know it's one in 40,000 people get this, so it's considered a rare disease. Out of those cases, five to 9% are de novo cases, which means there's no family history. So you're taking a rare disease and you're kind of breaking it down even further. And then out of the cases of medulla or me and two, there's 5% of us who have the less popular, I guess you would say codon changes. So like, 95% of those cases are from, you know, certain codons. And then there's, like, the little 5% so I'm like, you're going like, five to 9% are spontaneous mutations, essentially. And then 5% of those are this, you know, even rarer codon at the time, it was like not found until 2014 this variant to begin with. And there's only like 30 people that they've identified in the world who have my particular variant, the thing with 30, go ahead. So the thing with multi. And medullary thyroid cancer is that there are basically no symptoms until you are already stage four. So if you have a symptom before stage four, typically it is going to be diarrhea, which, as we know, a lot of different diseases present as diarrhea stage four. The statistics for survival rates are in the 40th percentile, which means it's a very, very deadly disease. I never would have known I had this disease. Had it not been for my daughter's type one diabetes, you

Scott Benner 10:30
would have just pooped and then died. Yeah, pretty much. Like,

Samantha Arceneaux 10:33
you know, this is like Insanity. So of course, then it's like, you know, the study is, what do you do with this information? It's not like, hey, we have a pill we can put you on. Here's here's what you do. It's like, what do you do? Well, obviously, I'm going to go get tested to see if I already have cancer at 37 when you're telling me, most people are getting cancer in their 20s and early 30s. So thankfully, I will say, you know, I was found to not have an aggressive codon, which means the moderate risk, it could be anywhere from your 20s to your 70s when you develop this. So that's that's kind of like a unique thing that, wow,

Scott Benner 11:08
that's nuts. Now they take your thyroid out.

Samantha Arceneaux 11:11
So that is the possibility. So I actually was in contact with one of the leading thyroid cancer doctors. He actually lives in Tampa, so not too far away. And he said, Listen, you know you are able to test. You know, now that you know that you have this, you can do certain tests. And basically there's something called calcitonin. So interestingly enough, with all your thyroid series, Scott, this is not something that impacts your TSH, your t3 your t4 even though it's all still in your thyroid, you will have still perfect numbers of those levels, because it is going to affect the calcium producing part of your thyroid. So again, never kind of like causes these crazy symptoms where people are going to get tested to see if they have this cancer. For Leah,

Scott Benner 11:58
her husband, plays an instrumental role in helping her keep her balloon in the air while managing all of life's ups and downs.

Speaker 1 12:05
He is my biggest supporter, my biggest cheerleader, my shoulder to cry on

Scott Benner 12:11
this episode is sponsored by Medtronic diabetes, a company who is working to make the invisible visible through their blue balloon challenge.

Speaker 1 12:19
This person loves me and wants to take care of me and wants to understand what I'm going through and help take on that burden. That's why he's my community. He has helped me continue to live a healthy life with type one diabetes and not reach those breaking points. Sounds like

Scott Benner 12:35
between your husband and Medtronic technology, you're able to keep that balloon in the air longer,

Speaker 1 12:39
100% I think it is such a perfect analogy. Because if you've ever tried to chuckle a blue balloon while doing all your other daily tasks and managing diabetes and all that stuff, such a spot on analogy as part

Scott Benner 12:55
of this year's blue balloon challenge, Medtronic will be donating to break through T 1d to support their work to achieve affordable access to current therapies, drive adoption of innovative technologies and fund research for future T, 1d, breakthroughs. Post your video on social media with the hashtag blue balloon challenge and follow at Medtronic diabetes on Instagram to see other blue balloon challenge videos touched by type. One has a wide array of resources and programs for people living with type one diabetes. When you visit touched by type one.org Go up to the top of the page where it says programs there, you're going to see all of the terrific things that touched by type one is doing. And I mean, it's a lot type one at school, the D box program, golfing for diabetes, dancing for diabetes, which is a terrific program. You just click on that to check that out, both for a cause, their awareness campaigns, and the annual conference that I've spoken at a number of years in a row. It's just amazing, just like touch by type one, touched by type one.org, or find them on Facebook and Instagram, links in the show notes, links at Juicebox podcast.com, yeah, in the end, this is a thing that like 30 people are gonna die from. So they're probably not. Nobody's looking for it. Like, yeah, at your age, especially.

Samantha Arceneaux 14:11
So here's the thing too. So if you look at all the black box labels for like ozempic and govi and you know, all of these GLP one and inhibitors

Scott Benner 14:22
take them if you have a family history of medullary

Samantha Arceneaux 14:26
thyroid cancer or multiple endo neoplasia type two. Oh, me.

Scott Benner 14:32
So when they're doing this, like warning, and it's literally for like, a handful of people in the world, you're like, Oh,

Speaker 2 14:38
apparently it's I'm one of them. I was like, Man, that would have been nice to have. You know this drug that I could take to lose weight? No,

Scott Benner 14:46
no, can't do that. Do you know why? Why can't a person with so there

Samantha Arceneaux 14:50
are studies that have shown in rats, so it's not a human study that GLP one in rats, they developed medullary thyroid. Answer, jeez. So they're like, we don't even want to risk

Scott Benner 15:03
it. Everyone listening just thinks of those words as a thing that happens at the end of a

Samantha Arceneaux 15:07
commercial. Yeah, yeah. And it's, it's true, like, there are reasons that some people cannot take this, oh

Scott Benner 15:14
my gosh, that's my first question that almost has nothing to do with this. Has this changed your husband's mind?

Samantha Arceneaux 15:21
Well, at first he was in complete denial that I had me into he's like, There's no way. He's like, there, there's no way. So then we did the confirmation testing that came up positive. No, I you know, do they really want to remove your thyroid? Like, but,

Scott Benner 15:36
I mean, does he think the man's coming for him with his information that they're keeping on their computer, or like, yeah, he's,

Samantha Arceneaux 15:43
he's a little bit of, a little bit of a conspiracy theorist, and that, you know, how

Scott Benner 15:48
many beans and a can do you have in your basement? Just tell me that.

Samantha Arceneaux 15:52
Well, I'm in Florida, so we don't have basements, but, you know, we definitely have had some prepping.

Scott Benner 16:00
Listen, I'm laughing. He'll be the only one left alive one deck. But, you know, Wow, isn't that interesting? Well, I'm glad you pushed through all that. Also. You tricked him into going to the thing I thought that was,

Samantha Arceneaux 16:09
I totally did. But you know what? It worked out for the best, because he actually, you know, I was able to push him to go see a doctor, and now he's able to kind of manage his own cholesterol issues, because, lo and behold, guess what? He did have high cholesterol. Tim, it,

Scott Benner 16:26
it occurred to me while you were telling this story as as bizarre as this gonna sound, because I don't mean it this way, but Well, you're the perfect person to have something like this happen to, because you have the brain to pick through

Speaker 2 16:39
this. So that's interesting, because, yeah, the

Scott Benner 16:43
same bit of you that understands all that insurance crap, like figured your way through, am I right? Well,

Samantha Arceneaux 16:51
the thing with the insurance crap is that in order to even get to that level of doing the appeals, I read through so many different research papers. I actually have a degree in clinical psychology, so I've been trained on how to write these types of papers. Granted, it was many years ago, and I definitely could not do that nowadays, but, you know, at least, kind of know how to pick through that and what I'm looking for. So comp, compiling all of that information, kind of like gave me the research on where to find things, how to get the data I need out of it. And so I found one singular paper about my particular codon that I was able to kind of like use. And then I actually the harder part wasn't necessarily even my husband believing, you know, I have this disease. It was getting my endocrinologist on board, believe it or not, how what happened? Because he was just like, Oh, she thinks she has this disease. It was all like, I'm reading the notes, and I'm like, I think I have this I set you the data that's part of his hospital chain, by the way, right? It came from his geneticist, his, you know, Research Institute. And he's like, she thinks she has this disease, and I had to educate him on what tests I needed. And it was just kind of like, okay, he hit

Scott Benner 18:11
you with the doctor chat. GPT over here tells me she has a rare form of like that. Oh, I see, yes, yeah. And

Samantha Arceneaux 18:20
so, you know, I look at things, you know, I don't know if we ever talked on the podcast about zebra diseases. You know, a lot of people label that as there's one particular disease, but it's also kind of a broader term for people who have rare diseases as a zebra. So when Michaela was diagnosed, I was told by her pediatrician to not look for zebras when it's horses, meaning that it was more probable that she was addicted to chocolate milk than had type one at her age, which is crazy, right, right? Because I'm like, she's peeing. She's asking for, now, you know, milk all the time. He's like, no, like, this is very rare at her age. Stop looking. Stop looking for zebras. When it's horses, she's, you know, addicted to chocolate milk. So as a side, you know, I'm very sensitive when it comes to, like, rare diseases, so to speak, and being taken seriously by doctors, because I've had a bad history of people actually taking us seriously, right? Like, you're, you're saying, like, it's not just Google, like, I'm literally being told this by a geneticist. Well,

Scott Benner 19:22
it's funny. It's the phrase they teach it to him in medical school. When you hear hoof beats, think horse is not zebras exactly because it's more likely that it's a horse than a zebra, and that's how they keep them from falling down rabbit holes, when very often times, the most obvious answer is the right one, except when it's not and then your thyroid explodes after you poop yourself and you die. And yeah, can you imagine? Can you imagine the indignity I have diarrhea. I wonder where that's from and gone? Great. Thanks a lot. Literally,

Samantha Arceneaux 19:55
yeah. So the diarrhea is actually caused by an imbalance in the Cal. Level. So the cancer cells cause something called calcitonin to rise, and then that's what kind of starts the process of diarrhea. So they said, as long as, you know, I'm keeping an eye every six months on those levels, you know, as soon as they start rising, then boom, I've got to do a prophylactic thyroidectomy. But

Scott Benner 20:18
so is that how you're gonna roll with it just again till your toilet paper bill goes up. You're just gonna hold on.

Samantha Arceneaux 20:24
No, no, no. They said, by the time the changes start, because I'm monitored every six months, that it would give us enough time you know, before you know it's, you know, be on stage one for sure.

Scott Benner 20:36
Did insurance give you any trouble with the six month thing? Or

Samantha Arceneaux 20:40
Nope. So far, you know me, even if they did, it wouldn't, you would have stopped them by now.

Scott Benner 20:46
Listen, eight years ago, I tried to get Sam to go into business for herself, just helping people with their insurance problems, and we realized there's no way to make a living at that. And I was like, I actually, I remember saying to you, I don't know why a company wouldn't just hire you, because, you know, so many people get blocked by their insurance when they're trying to get a device or a medication or something. I was like, the company should have an office that you go to and say, Hey, I can't get the thing they prescribed to me. Like, help me get through it. Yes, but Yeah, nobody ever picked up on my what I thought was genius idea. No, I

Samantha Arceneaux 21:16
actually, I actually was in talks with Dexcom at one point to do that exact job, but I did not want to relocate to California so that I

Scott Benner 21:25
don't know if you got your husband out of Florida. He might have, he might have gone to the doctor faster.

Unknown Speaker 21:29
Oh my gosh,

Scott Benner 21:30
I know your husband. He's lovely. Yeah,

Samantha Arceneaux 21:33
he's he's Go ahead, don't you don't have to deal. You've been married a while. No, no, we're just gonna stop there. I've been with him a very long time. He's solid. I wouldn't have kept him around if it was all crazy, right? It's

Scott Benner 21:47
excellent. Also, I think this is good for guys to hear, because I think they're wondering now, like, wonder how many things I've done in my life that I thought were my idea, that some lady like got me to do,

Speaker 2 21:57
right? Well, I did tell you I have a psychology degree. Yeah, no, you

Scott Benner 22:02
were like, I'll get in there. Don't worry about it. It's fascinating. Does this fall back to your kids? Like you have more than one kid, right? Yes,

Samantha Arceneaux 22:10
yeah. So basically, at this point they and actually we're starting that process right as we speak. I have the collection kits on my my dining room table. There's a 50% chance that they inherited it. So now that it's, you know, not, it's de novo and me, but now it would be considered hereditary for future generations, so 50% chance. So we're going to submit that, and we should have the results back within a few weeks to know definitively if they are carrying the same gene mutation or not. So is it

Scott Benner 22:41
possible that somebody in your family's had and you guys just didn't know? So,

Samantha Arceneaux 22:45
I mean, there's always the possibility, of course, right? Because, you know, there's going to mean to be deaths in families that occur before this potentially could have,

Scott Benner 22:54
you know, get hit by a car three years before, you would have got fired,

Samantha Arceneaux 22:58
you know, so, but you know, I will say that I had all of my grandparents live, living until, you know, anywhere from 80s to almost 100 and there was literally nothing. And of course, it would had to have come from somebody. So it's like, okay, yes, they could have, technically have it. But you know, my aunts, my uncles there, there's just nobody, nobody.

Scott Benner 23:22
That's interesting. So it's just randomness,

Samantha Arceneaux 23:25
just completely randomness, yes, and then

Scott Benner 23:29
eventually, but once, once you have it, then your kids have, would you say one and one and two chance? Yeah, geez. Okay. How do you explain that to them? Like, how do you like, I mean, first you gotta tell them what's possibly happening to you, obviously. But then how do you how do you tell them, Oh, guess what? Good news. We're gonna give you a test too. Yeah.

Samantha Arceneaux 23:47
So that was actually concern with you know, that I had talked with the pediatric oncology geneticist department about, and they said, listen, until they're 16, they actually don't have to know the results of their test. So they can decide at 16, or they're going to have to be told at 16, I should say. But they don't have to decide now to know if they have it or not. So that was kind of like our little catch all right now. So they know what's going on with me. They know there's a possibility they have it, but they can kind of be in denial land, as far as if they have it or not. And for you know, my Michael is 13, and my younger daughter is 10, so they have a little bit of time to kind of wrap their brains around it and decide,

Scott Benner 24:32
and then are they gonna, if they have children, they'll have to have them tested as well, like this goes on and on. If

Samantha Arceneaux 24:36
they if they are positive, yes, if they're negative, then it won't be a problem for future, their future generations, but if they are positive, then it'll be exactly the same as it was with me, where their kids will have to get tested, although, now that we know they'll be able to have their children tested, you know, before the age of five.

Scott Benner 24:52
Wow, isn't that something? And you figured all that out because your kid got diabetes,

Samantha Arceneaux 24:57
because my kid got diabetes, and. I just happened to be in that room with somebody who was a friend of a friend. It's just like the craziest unrolling of circumstances that you've ever heard of, right? Yeah,

Scott Benner 25:09
otherwise, you go your whole life and you don't know about this, no.

Samantha Arceneaux 25:12
So what if I hadn't been volunteering that day, you know? What if she hadn't been volunteering that day? What if I hadn't been able to get my husband there, you know, because I wouldn't have done it had it not been for dragging my husband there, yeah,

Scott Benner 25:24
Wow, isn't that? So can I ask you now that you, I mean, I think the answer is obvious, but I'd like you to tell people, like, better to know things than not know them, right?

Samantha Arceneaux 25:33
I am definitely on that board, that train of thought. My husband, not so much. He's just kind of like, if I die, I die, right? Well, you're like, No, I would rather know people

Scott Benner 25:44
say that right up until they're dying, and then they think, oh, I should have, like, you know what? I mean, the should have comes out then, like, I get the wanting to be lucky about it, but if it's going to happen anyway, knowing gives you a chance, exactly. And I think that that to me, that's where my brain lies, like I'd rather try something and be you know, it's funny. I think the way I think about life, like the way I break down problems even, is I go to the end of it and then I work it backwards. And so when you do that about health, there's never a situation where not knowing is better, yes, right?

Samantha Arceneaux 26:22
I mean, look at diabetes, you know, like type two. They could go 10 years not knowing that they have it, and then all of a sudden, you know, they're facing all these complications because their blood sugar has been high. And it's kind of like, Man, if I would have known, you know, I would have done things differently. I

Scott Benner 26:38
started out at the beginning of my my GLP life. You know, I started out by telling this story in my diary about meeting this person who has type two diabetes. Was given a GLP. They were losing weight their a 1c went from over 10 down to like, six, like, and they're telling me this story, and I say to them, like, oh, it's amazing. I was like, you know, how long have you been on it now? And they go, so I don't take it anymore. And I went, why? Yeah, like, just told me this long story about how it's saving his life and everything, and he's lost this weight, and he's still, I'm like, I don't, I don't understand, like, so I figured, oh, something must have happened. Must have a reaction or something, or found out that he has medullary or me and two in his life, right? And no, the answer was, I like food and I can't eat my food anymore. And I went, but you're gonna have uncontrolled type two diabetes and die. He goes, I like french fries. I just couldn't figure it out, like, I, you know, I ran it through my mind every way I could, and I was like, Oh, this is a psychological issue. Like, this guy should go to a therapist, you know, like something, you know, I like being strong. I like being able to eat what I want. Like, actually, you know, I No one's ever gonna know who this is. And so I feel comfortable with this but, but describe to me, I like coming home at the end of the day and taking a bag of frozen french fries and making them all and then dipping them in something. I forget what he said. And I was like, Wait, you're gonna die for Alright, of French fries. Like, my God, like, and so I couldn't. Anyway, a year and a half later, I see this person again. He looks at me, and he goes, Man, you look terrific. And I was like, thank you. And he goes, You really, like, how much weight have you lost? I said, just, you know, about 47 pounds, about 50 pounds. Almost 50 pounds. And I said, but my God, let me tell you about all the like, things. Like, I used to have trouble in like, absorbing iron and like, I had to get infusions all the time, but I don't have to do that anymore, and I feel so much better. And like, I said, I'm honestly, this is the best I've ever felt my adult life back, as far as I can remember, on I said, and the truth is, is I, you know, to some degree, have you to thank for it, because, you know, my doctor was talking about, you know, glps a little bit with my daughter, but I never really thought about it for myself. And then you brought it up, and then I started thinking about it more, and then it became more, you know, popular in the zeitgeist, and I paid attention and like, I'm standing here today because I heard about what happened to you, and I did it for myself. I said, How are you doing? Because I don't take it. And I was like, Can I just ask, what's your a 1c? Now he goes, Oh, it's over 10. And I was like, I'm like, but you're gonna die. And he goes, I like being big and strong. And I was like, I don't understand. I was like, you start taking this a year from now, you're going to weigh 75 pounds less. Your a 1c is going to be in the sixes. And the reaction to that statement, he said to me, he goes, I call he didn't use these words, but I correlate strength with size. I don't want to lose weight, Yeah,

Samantha Arceneaux 29:41
he definitely should do some hypnosis or therapy, for sure. Was that

Scott Benner 29:46
not? What's gonna happen to him? He's just gonna get sick, yeah, you know, and it's just, and they said, I take it. So he goes, Well, I do take it once a year. And I'm like, wait, I don't understand. So for. This person's job, I don't want to say what their job is. They can't have an A 1c that's high. So once a year, when they know that the the test is coming up, it pulls the GLP out of the refrigerator and uses it long enough to get his a 1c

Unknown Speaker 30:14
It's like shedding weight before a boxing match, similar

Scott Benner 30:17
situation, right? And then gets the test, and then gets to keep his job for a year, and then goes back to it again. And I just, I didn't know how not to just feel bad for him, but as I'm talking to him, I'm thinking, this can't be the only person who thinks this way, you know. And I just wanted, I just wanted him to have like, five seconds of how I think about it, which is, you go out into the future and you find the day in your life that the thing happens to you, and you work it backwards and see all the things that led up to it, and realize that on this day right now, if you just started doing this, none of these things happen.

Samantha Arceneaux 30:54
Yeah. And I do think, you know, there is quite a difference between mindsets. You know, I'm a very curious type person, so that's kind of evidence with a lot of things in my life, and it just happens to pass along through the health sector. But, you know, you've got, you know, say my husband, he's like, you know, I don't even have time to think about other things outside of my general little bubble, because he's just go, go, go on his daily things, he doesn't have time, so to speak, for the curiosity. But

Scott Benner 31:24
your brain says, you know, when you won't have time when you're dead, because we didn't do this now, right? Like, that's how you think about it, right? I want

Samantha Arceneaux 31:32
to bring up something else too. You know, we were talking about coincidences with diabetes, and this one, I think, will be, you know, along the spectrum of conspiracies. Right by, I love the conspiracy. Go ahead. Yes, so. And part of, part of the whole thing with my husband is he is in the solar energy field. So, you know, he does run across quite a few preppers. And, you know, end of the world tight. So it kind of like fuels that mindset. But he works for, at the time, it was a considered a small company, you know, maybe had 50 employees Max. Out of those 50 employees only, you know, a handful actually had kids during the certain time. So you're talking maybe 15 kids Max, and three of them all aged within a year of each other. So it's three girls who are, you know, within 12 months of age of each other, were all diagnosed with type one. And I was going, you know, what kind of Erin Brockovich situation are we dealing with, that three out of like 15 kids all the same age would be diagnosed with type one. Like, statistically, you're talking one in 400 kids are diagnosed with type one. So you would need, you know, theoretically, 1200 people, 1200 kids, you know, and how many employees? So I'm just sitting there thinking like, Okay, is there something in the water? Is there something in the dirt that was brought in? And it just got me thinking about clusters at type one diagnosis, and I found another one in a city not far from here, where a lady was telling me her son the backyard neighbor, so literally, their backyards touch, and the person who was on the corner, three Boys all diagnosed within six months of each other. And I'm like, Okay, I I'm starting to kind of pick up that there's heavy usage of fertilizers in this general area, both where my husband used to work, as well as the land it used to be orchards and farmland. So I'm like, you know, is there some kind of like thing, you know, Aaron Brockovich, if you're listening, start researching Central Florida, because it's very, very odd to me that so many people are in these little clusters. And I hear it time and time again, specifically related to geographical location that you know, there, there was a school in Georgia that had like, 16 type one seniors at their high school. It's kind of like, what, what is in the water, what is in the land? How could that? That's kind of my tangent. You know, the conspiracy part of me easily

Scott Benner 34:12
get me to think about this, yeah. And you go, Uh huh. This makes sense.

Samantha Arceneaux 34:17
Well, because everybody always says, you know, I don't have family history. I don't know how my kid got this, you know, and it just kind of leads you to, well, what is like, kind of the trigger on this?

Scott Benner 34:29
Oh, my God, listen, I, I have no idea about anything, but I'll tell you right now, if a certain fertilizer was used and it changed people's gut bacteria a certain way, and like, you know, I there's, there's got to be, to your point, like, in the teens, number of people all in the same grade. Come on. You know what I mean? If that's random, then, Boy, that's a weird form of randomness. It definitely should be looked at. How would you not want to look at something like that? Yeah, exactly.

Samantha Arceneaux 35:00
I mean, there are people are always asking, you know, how did my kid get this? And I'm like, Listen, you know, I have a theory. I have a theory. Obviously, genetics do play a portion of the role, but for those people without and it's not just to say type one, it could be, you know, many autoimmune diseases fall under this kind of like difference in how the body's processing their exposure to the environment. Like you said, the gut bacteria or inflammation in general, when you have that situation and it's clustering, I do think that it's kind of like a glaring light, like should be shown on, on the area, yeah, what is in our land?

Scott Benner 35:37
Yeah. Who's doing that? That's the problem, right? Who are you going to get to get that get that one accomplished? It's easy. When you look and you're like, Oh, my dad has a thyroid thing, and there's a type one uncle and like, and then my he married my mom, and my mom has celiac and like, but, you know? And they go, Okay, well, that makes sense, right? You know? But yeah, to your other point is, like, Where does all that start? Why are there so many autoimmune issues? Why do they grow over time like this? It's got to be environmental to some degree. Yeah.

Samantha Arceneaux 36:07
I mean, you know, a lot of people point out, oh, you know, the vaccine loads are higher than they used to be, and that's why we have so many more instances of, you know, auto immune. And I'm, I'm thinking like, I'm not discounting, you know, anything, but I do think that it is very much more probable that it's something inflammation wise, or, you know, getting absorbed, you know, some kind of, you know, they, they're talking about how many, you know, plastics are, even in our waters and stuff. So just something along those lines, entering the body, causing a shift in how the body reacts.

Scott Benner 36:40
Well, I can tell you what chat GPT said, no, no. It said, I said, are auto immune issues increasing in the US? It says, Yes, auto immune issues appear to be increasing in the United States as well in other parts of the world, for reasons. The reasons for this rise are not entirely clear, but several factors are believed to contribute to the trend improve diagnostics and awareness. So advances in medical diagnostics and greater awareness among healthcare providers have led to more frequent identification that makes sense environmental factors, exposure to environmental toxins, pollutants and chemicals have been hypothesized to trigger auto immune responses in genetically predisposed individuals, factors such as pollution, industrial chemicals and heavy metals, may disrupt immune function. Hygiene hypothesis, this is in quotes, is suggest that the reduced exposure to infectious agents due to improved sanitation and medical practices may lead to an underdeveloped immune system. The lack of exposure may cause the immune system to become overactive and mistakenly attack the body's own tissue. I've heard that have Possibly, yeah, the George, that's the George Carlin joke, right? I used to, I used to swim in the East River with like, needles and poop. And, you know, I have never been sick a day in my life. He did die of cancer. Eventually, I think diet and lifestyle changes, modern diets high in processed food, sugar and unhealthy fats, along with sedentary lifestyles, have been linked to inflammation and immune system dysfunction. The gut microbiome, which plays a key role in immune regulation, can be disrupted by poor diet, leading to an increased risk of autoimmune disease, genetic factors, increased stress level, and then the last one says vaccination and immune modulation. Some researchers have explored the idea that vaccines and other immune modulating treatments may contribute to the development of autoimmune diseases in susceptible individuals. Yes, though, this remains a controversial and complex area of study with mixed findings. So I mean, these are just like you know, the theories that chat GPT can find it says examples of autoimmune diseases on the rise are celiac disease, MS, Ra and type one diabetes.

Samantha Arceneaux 38:48
So yeah, I mean, and you know that it doesn't have to be necessarily even one certain answer, but you know if, if someone out there is looking to study Come, come to Central Florida, and we can kind of narrow that environmental went down. It

Scott Benner 39:02
will point you to a patch of dirt.

Speaker 2 39:03
I'll give you a couple streets. I'll give you a couple of streets to go test, right?

Scott Benner 39:07
That's like, they, when they would, you know, they put up, like, those high tension power lines. Then people started getting, like, cancer, certain kind of cancers, yeah. And then people are like, I think everybody living on the street has brain cancer. That's got to be a thing, right? And then they figured out that, oh yeah, we shouldn't have done that. And

Samantha Arceneaux 39:24
yes, I mean, there was even with my husband, had a brother who was born with gastroschisis, so basically his intestines were born outside of his abdomen, and he was a cluster, you know, it was on a military base in the the southeast. I won't get into specifics, but it was back in the 70s, and there was like every single baby was born within a certain time period with gastroschisis, and they all died. You know, it's definitely there's environmental things that can wreak havoc on your body. Yeah, yeah, don't

Scott Benner 39:54
google burn pits for God's sakes. I

Samantha Arceneaux 39:56
know I unfortunately have, because my brother is military. So I made that mistake years ago, when he was overseas and learned things I did not want to know about the risk. Jon

Scott Benner 40:05
Stewart tried really hard to shine a light on that last year. I think I remember about the military burn pits. Yes, it's awful. Yeah, when fighting desert wars, we throw our garbage into a pile and light it on fire with jet fuel. Yes, yeah. So including all

Samantha Arceneaux 40:22
of those plastics, you know, like everything gets burned. So imagine inhaling that along with jet fuel, yeah, and what that does to your body.

Scott Benner 40:30
Guys would describe women too, right? That just the wind would shift, and then that would just roll back on their encampment, and then they were all standing in it. So, yes, yeah. I mean, listen, I don't want to say obviously, but obviously there's Yeah. How many people I don't even know the Listen, I don't know the possible science behind this, one way or the other. But how many people grab a plastic bottle of water, put it in their car, leave it in their car. Their car heats up to 150 degrees in the summertime, day after day, and then one day you're stuck and you drink that bottle of water. Like, is that okay? Like, you know what I mean. So

Samantha Arceneaux 41:07
I am kind of a germaphobe, I will say. So I actually will not do that, and have taught my kids not to do that, because I am so, like, worried about the leeching of the plastic into the water. I'm

Scott Benner 41:21
with you. Don't get it. I try over and over again in my life, I tell people I'm like, I don't think we should be drinking out of plastic. I don't think we should be microwaving plastic. I think that it's a simple little thing, and I don't know that in my lifetime, I'm going to be able to prove it to you that it's a good thing. We didn't do it, but I don't think we should do it. I don't think you should cook on a pan that has the non stick, the non stick stuff. I don't think you should do that. I think take a nice metal, stainless steel pan, light it on fire, put a little butter in it and cook, you know, don't spray. I don't want to use a name, but don't spray a non stick. Spray on your pan. I think it has silicone in it. Don't do that, you know, like, so it's everywhere, right? Like, and is that the price to pay for a modern society? Like, you know what I mean? Like, if we were all growing food out back, we wouldn't have a lot of the things we have. And I don't, I don't know. Is that a bad trade off? A good trade off? Well,

Samantha Arceneaux 42:19
you know, they're talking about singularity. I don't know if you read the news the other day, there was a thing about a theory in the 2045 ish, I'm going to be off by potentially a decade, but they're calling it singularity, which is basically where humans merge with some kind of technology, whether it's nanobots helping, you know, to improve the bodily functions, or, you know, implants, they're predicting by, you know, within 20 years or so, that we will be gaining, or at least leveling off for every bad year that we're going, kind of like towards death. It's going to reverse that, or at least keep it.

Scott Benner 42:59
How long do I have to stay alive. What'd you just say? Yeah. So

Samantha Arceneaux 43:02
basically, within 20 years, they're saying that technology will improve to such a degree that it will allow it to meld with us at some point, to extend our life or keep us from dying an early death. I should say, Oh

Scott Benner 43:17
no, listen. And isn't it interesting? Because if you let's say that happens. Let's say that one day there's a Jetsons pill you take, and a bunch of little robots jump inside of your body, do all the things that you figured out with genetic testing, and then come back and write a report and go give her this, this, this, this, take that out. She's gonna live to 150 if you look back on that, 500 years from now, you're gonna say, well, it was worth it, right? Like it was, it was worth what we went through to modernize technology to the point where we came up with this thing. And yes, there was 150 years in the middle where people's joints hurt and a lot of them got type one diabetes and but that don't help you today. Like, that's not a story I can tell my kid. Hey, you know what I mean, don't worry, because hundreds of years from now, people you've never met before are never even going to be sick, and she's going to be like, Yeah, well, I got to take insulin for food. So call that. But

Samantha Arceneaux 44:09
they're, they're claiming it could be as soon as 20 years. I said it, it was like a once the computers had, like, a trillion, and I'm going to slaughter because I know nothing about computer technology, but trillion basically, like thoughts per second. That was the time frame of when technology will really ramp up. And they believe that will happen, yeah, within the next 20 years.

Scott Benner 44:31
Well, listen, I mean, we're not in the infancy of it right now, but it's just starting to really blow up.

Samantha Arceneaux 44:38
I mean, we already have smart insulin on the way. You know, I

Scott Benner 44:40
saw a news report about that again, that there people are looking at that again. Yeah,

Samantha Arceneaux 44:45
it's down, down that rabbit hole that, you know, not that it's a bad thing. You know, we're already starting to see the the beginnings of that.

Scott Benner 44:53
Sam, if you saw the minimal amount of words I put into chat. GPT four, oh, to help me with, like. Conversation with you today. I typed familial hypo cholester Emmy. And so I just, I didn't ask it a question. I just typed it in and it gave me an overview of it. Then later, you said, r, e, t gene. I typed ret gene. I have a breakdown of that. I couldn't remember the saying about doctors and zebras. I said, What's that saying doctors use about zebras and please, the phrase is commonly used in medical training and practice to remind doctors to consider the most common and likely diagnosed first, rather than jumping to rare or exotic conditions. And there's more. I typed our autoimmune issues increasing in the US, and I got everything that we just talked about. It's astonishing at the level it's at now, and when it can start identifying a problem and then giving you an answer to it, you know, as long as nobody types in, shall we play a game? I think this is going to work out really well for us, which is a joke I used in another episode with Jenny. And she's like, I don't know what you're talking about. I'm like, Jenny, you've never seen war games, you know? I know there's a lot to be concerned about, and there's probably people listening like, AI is going to kill us all. Your husband's probably listening going, I got beans in a can. We're going to be okay, by the way. How long to be watch this. How long can beans stay fresh when canned, canned beans can stay fresh for a long time, if stored properly. Here's a breakdown shelf life of canned beans. I can write a report on it. Now, from that anyway, my point is I know that AI is scary and I know that there's a possibility it's going to go the wrong way, but I choose hope. And what Sam is saying is not crazy, like it is not crazy to think that one day you'd be able to just say, here's who I am genetically. Tell me how to stay alive longer. You know, you know, and that you might end up with an answer and but people are like, I don't want to be paired with a robot. Your phone is already you're already paired with a computer. Don't worry. You know what? I mean, like, Wouldn't it be nice not to carry it around?

Samantha Arceneaux 47:00
I mean, could you imagine, you know, even 20 years ago, having, you know, the internet at our fingertips, you know, it's, you know, we had a pager where we would, you know, write 8008, to spell out a words, or 3003

Scott Benner 47:15
so I went back home recently where I grew up, and people who listened long enough might Know that I was a volunteer fireman for some years when I was a teenager, and the firehouse, before paging equipment, had an air raid siren on the top of it, and the town was so big that it spun so that the noise would get shot around, so that firemen would hear that and go to the firehouse right And because it's also an air raid siren. Apparently, they never shut it off, even after technology came. So I was sitting there the other day, and I'm like, Oh my God, that noise. I haven't heard that in years. And it's this air raid siren going off telling firemen, like, come, come to the firehouse. And I said out loud, I'm like, why are they doing that now? Like, there's pagers, like, there's and then I went, what am I saying? It's probably an app on their phone now, yeah, like, I was thinking of how, like, when I was younger, they were like, Oh, we're gonna give you a page and we used to carry this brick on our side in case, and it would beep, and you'd go to the firehouse. And then I started talking about, like, I sound so old, there's pagers, pagers, there's an app. I mean, there's,

Samantha Arceneaux 48:20
there's probably a generation listening Scott right now, who don't know what a pager even looks like. Thanks. Oh,

Scott Benner 48:26
and why would they? How would they know that my first cell phone came in a nylon bag, it had a cord on it, and I plugged into my cigarette lighter in my car. Except those people don't have cigarette lighters in their car, so they don't even know what I'm talking about when I say that, you know.

Samantha Arceneaux 48:39
And honestly, you had to be rich to be able to have a car phone. I mean, that was like, Epitome, you've made it if you had a car phone. Can

Scott Benner 48:48
I tell you how I scammed that? I was friends with a bunch of cops, and they got a deal for the phones, and I got in on that. Of course, you did. You got to know

Samantha Arceneaux 48:59
somebody. You gotta know somebody. You

Scott Benner 49:00
gotta know somebody. So I had the phone Place Right Time. Phone was free, and I can still picture it and but I never used it. It was literally an emergency device, because a phone call cost 99 cents for 60 seconds. So nobody used them. They just had them. It was ridiculous, but, but it makes the I hope people understand that this conversation makes the point like, you got to do the thing so you can improve on the thing, so you can get to the point where it's now. I mean, what do they say? My iPhone has more computing power than what we shot. Like the guy said to the moon, I've heard that. And we all have more access to information than the President had in the 80s. Do you know more about the world right now than Ronald Reagan knew when he was the president of the United States?

Samantha Arceneaux 49:51
That's insane. Yeah. I mean, and I grew up in that generation. You know, they call my generation like the xennial. So I'm kind of stuck between an ex Gen X and. Millennial, where you know that that was our first thing. I had the encyclopedias at home and but then I also was able to have internet at one point and in my high school. So

Scott Benner 50:09
yeah, now, I mean, there was a world where an encyclopedia, my mom and dad bought a set of encyclopedias on a layaway plan. We'd get one book like every they were expensive. They

Samantha Arceneaux 50:19
were like, five, $600 for a set of knowledge. Basically, like, yeah, otherwise you had to go to the library. So

Scott Benner 50:27
the library, yeah, when I was a kid, I was allowed to use I was one of the few kids in my class that was allowed to use the Dewey Decimal System, like the card catalog, yeah, I understood how to use it. And the librarian was like, you can use it. They can't. I was like, yeah. Dum, meanwhile, I've read like, three books on my entire

Samantha Arceneaux 50:47
Oh, no. I'm a big bibliophile, so I love books, but now they're all in my Kindle, so I don't have to go out of my house to acquire them. I saw

Scott Benner 50:58
a lady floating in the ocean with a kindle the other day.

Speaker 2 51:02
You know, I don't blame her. If I had the waterproof version, I would too. I was

Scott Benner 51:06
very impressed. She's out there just reading. I'm like baking. I'm still flaking all over the place, by the way. Oh, Scott,

Samantha Arceneaux 51:13
I had one more circumstance, and I want to get your opinion while we're still on. So I have another theory, right? It was obviously, is age subjective, because my daughter was diagnosed at 22 months, but she was sick on Christmas Day. She ended up being diagnosed in March, so you're playing with about three months there, and she was 18 months old at Christmas time, she got sick. And I immediately started noticing, like her energy started going down, meaning she didn't necessarily want to go up and down the stairs by herself before she would just fly up the stairs fly down. Now she was more cautious. Didn't really want to go up them. She wasn't having the language explosion that they always say 18 month olds have where they're gaining, you know, a word a week or so, or even a couple words per week. Just those are the steps the pediatrician says will developmentally happen with kids that age. She wasn't progressing, she would have maybe one new word a month. You know, you're talking about three words in the time between Christmas and the end of March, the day she was diagnosed, and we were introduced to insulin at the hospital. Scott, I kid you not, she had three new words in one day. And so I go back, and I'm like, you know, thinking about it, I do think type one diabetes had a huge role and a developmental delay, you know, not so far as to this could be a symptom. But it does make me question, if someone is seeing kind of those reversals or stationary kind of growth in their kid, is this something related to sugar? Is it because she did not have the insulin unlocking those cells to cause, you know, this action of learning new words in the brain. She just did not have enough energy to do that, because she was focused so much on the actual physical energy, those gross motor skills, that she didn't gain the developmental portion of learning the, you know, the words. So just kind of like throwing it out there to see if you've heard this before. Is this a new theory?

Scott Benner 53:24
Well, I've never heard anybody say that, but it made a lot of sense to me, and of course, I went to my overlord and

Unknown Speaker 53:32
CBT. What did they say about it?

Scott Benner 53:35
It could. My question was, can undiagnosed type one diabetes impact a child's development prior to the introduction of insulin says yes, and here are the ways growth delays, poor nutrition utilization, muscle wasting, pretty obvious, but cognitive and neurological effects, hyperglycemia, high blood sugars, prolonged high blood sugar can affect brain development and function. Cognitive impairments, such as difficulties with memory, attention and learning may occur.

Samantha Arceneaux 54:02
Ah, okay, maybe they pulled that from my blog from yours ago. Not

Scott Benner 54:07
funny. It wouldn't it be great if, like, learn

Unknown Speaker 54:09
it somewhere. Hold

Scott Benner 54:10
on a second. Watch this. I'm gonna copy that, paste it and say, Where did you get this specific passage?

Speaker 2 54:20
They're like the defunct blog says it's general

Scott Benner 54:23
medical knowledge and understanding of effects of prolong hyperglycemia, cognitive function. Sources information include medical textbooks, reviews, clinical studies, guidelines from health organizations like so, you know, it's funny. I have an episode called, what is it called? I have an episode about this because it is a thing that, generally speaking, people don't believe. I used to say a lot more when I was younger, when I was younger, when the podcast was younger, I would say, I want my daughter's blood sugar to be low, normal and stable, so that she can be the person she's meant to be, because higher blood sugars impair you. Yeah. And do you have any idea how many people write and go, you don't know what you're talking about. That doesn't

Samantha Arceneaux 55:04
happen. I mean, you know how many research studies I've witnessed? You know, at the time that this was going on, and I had my hypothesis, there was really only one or two studies out there, and they were all talking about, after diagnosis, what is the effect of hyperglycemia on the brain, you know, MRI studies, or CAT scan studies about the changes in the brain when it's constantly exposed to hyperglycemic, you know, events, or, you know, just the ongoing high blood sugar trend. So, you know, I've never really seen anything that addresses the before diabetes diagnosis, because nobody pays attention to that stuff, because nobody pays attention. So I'm going, you know, think for those people who are listening, and they had kids who are diagnosed around that 18 to 22, to 24 month period when they're supposed to be learning or, you know, it might not even be that they were having mental blocks, because my kid was very energy focused on the physical so it could be reversed. Maybe they're learning the words, but then they're not progressing the way that they should, with walking or, you know, doing those gross motor skills. You know, they're only having a certain amount of energy. Where is that energy getting expended?

Scott Benner 56:18
I just listened to Mark Cuban the other day, talking about the that pharmacy business he started, and he was talking about one of the ways it got like he he had the idea, and I forget what it contextually. It's not important. But what he said was he realized, when he saw that, remember that guy that put that cancer drug price up and he got thrown in jail. I don't remember his name.

Samantha Arceneaux 56:40
Oh yeah. The younger guy, I

Scott Benner 56:41
remember right, but when he Cuban said, I'm gonna get this mostly right, he said that when he saw that somebody could just wildly change the price of something, and that it was just okay for so long, what it made him think was nobody knows what's happening. This entity exists, but nobody really understands it well.

Samantha Arceneaux 57:02
That's because PBMs are shrouded in mystery themselves. Nobody can even tell you what a PBM does these days, right? And they're huge drivers of the cost of our medication. So, you know, you shroud the whole process in mystery. And really, it comes down to money making businesses money. They don't want you to know that they're making money hand over fist, right?

Scott Benner 57:22
Yeah, exactly. But his point was so, so much, I expanded on it my head, which is, how many things do we all do every day? You don't even know why you're doing it. It just happens, and maybe there are some people taking advantage of it. But what about the situations when nobody's paying attention, but nobody says anything, because it all just sort of seems okay. I feel like that's what you're talking about. Like maybe nobody talks about developmental delays with undiagnosed kids who will eventually have type one, because they don't know what's happening. And then once they know they have type one, the focus isn't on looking for that sooner and other people. The focus is, well, let's fix it now for this kid, because now we have a diagnosis. But you know, going back to my original point about this episode, 485, it's called altered minds. We had to make an episode about it because so few people believed that vacillating or high blood sugars could change, it could impair you. They're willing to believe if you're low, you're impaired, but not if you're high. It

Samantha Arceneaux 58:22
is definitely both, and the research is out there, so I don't know why this is such a controversial thing, for these people to write in and tell you you don't know what you're talking or for

Scott Benner 58:33
the same reason, your husband doesn't want to go to the

Samantha Arceneaux 58:35
doctor, right? Well, he's just in denial land. But you know, people with

Scott Benner 58:39
type one diabetes don't want to think like something that I'm trying so hard to handle and maybe isn't going the way I want to is now impacting like the words coming out of my mouth, or my ability to understand something, or the way I saw it originally with Arden, which was if her blood sugar got much over 180 she literally slowed down when she was running. Her foot speed decreased. Yep, it was one of the first things that I recognized when she was playing softball, is like, Oh, if I let her blood sugar get too high, she can't perform well.

Samantha Arceneaux 59:06
And I've heard the same thing. And when my daughter's blood sugar is high or low, she says, you know, my knees don't work. And you know, that was, that was her explanation when she was little, my knees don't work.

Scott Benner 59:18
Yeah. So I'm just saying stability, low and stable, not low, too low, but low and like normal and stable gives you the best chance to be who you are, and to expand on that further, and to kind of shine a light back on what you were saying. What else is happening to you when that glucose is in there that doesn't belong there, exactly right? Just because these are the things we see doesn't mean these are the only things that are happening. It's

Samantha Arceneaux 59:42
incredible the amount of knowledge we have versus what is still out there to be learned. I think that's it. Yeah, that's overview of this episode, right? Like the things we don't know.

Scott Benner 59:54
Well, then we'll just put the nanobots in.

Samantha Arceneaux 59:56
I wish, right? Can they take my thyroid out for. Me too, so I don't have to go through surgery,

Scott Benner 1:00:02
I would imagine. So one day they'll just, they'll send in a nanobot with a with a knife. It'll just

Unknown Speaker 1:00:09
exactly, oh, man, I wish. Do you want

Scott Benner 1:00:12
to know what the current state of nanobots medicine is? Sure, nanobots are being developed for various medical applications, including targeted drug delivery, minimally invasive surgery and diagnostics. However, these applications are mostly in the experimental phases or in early clinical trials. Some research has focused on creating nano scale sensors that can detect biomarkers of diseases within the body, such as cancer cells, pathogens or even specific genetic mutations. These sensors are designed to provide real time data and may eventually be integrated into nanobots for an in body diagnostic goes on talks about, I mean, they're,

Samantha Arceneaux 1:00:49
they're doing the diagnostic too. I mean, think about, you know, colonoscopy, or, you know, those types of procedures where they're just sending in, you know, cameras or or or bots, basically through your gastro system in order to see what's going on. I

Scott Benner 1:01:06
swallowed a camera when my iron was low, when I originally finally figured out that my iron was so low. When you're an adult and there's no bleeding, they think you have cancer if you have low iron, that's the first step, right? So I went to the doctor. And he goes, Okay, you know, take this with you. It's all charged up. Keep it with you all day. Wear it on your hip. I forget what it you know, is like the train is like, catching the signal of the video. And he's like, and right in front of me, take this pill. And I was like, What is this? He goes, it's a camera. So I swallowed the camera, and then it took images as it went through my system, and then they reviewed them.

Speaker 2 1:01:40
I mean, that is a very intimate procedure.

Scott Benner 1:01:43
Let me tell you. I said, What? What happens, actually, you know what? I said, I was screwing around, yeah. How does it come out? I go, like, do you want it back? And he goes, No, no, it's okay. When you're done with it, let it go where it goes. And I was like, gotcha. But yeah, just really, I mean, that's that, is this just in today's technology. It says, near future, five to 10 years, we'll see the first generations of nanobots, or nano scale devices used in specific controlled environments, such as cancer treatment or for targeted drug delivery. Midterm 2010, to 20 years, more advanced than about capabilities performing complex diagnostic tasks inside the body may begin to see broader clinical use, and 20 plus years they're hoping for fully autonomous diagnostic nanobots capable of navigating the body.

Samantha Arceneaux 1:02:29
What do you think will come first, Scott, the cure for type one, or the nanobots that cure pretty much everything?

Scott Benner 1:02:35
I Yeah, right. Well, you know, if you want to be cynical, or if I was gonna be your husband, what I would say is, if they know these nanobots are coming 30 years from now, why are they gonna be busy worrying about curing something that 30 years from now the nanobots gonna cure anyway?

Samantha Arceneaux 1:02:50
Well, I mean, there's a whole sector, you know, I hear it repetitively that there's the whole sector of people who believe there are already cures for many, many things, and that it's financially, not to the company's interest, you know, to release it so, you know, it's,

Scott Benner 1:03:06
I don't know, like, also, I think that light you ever heard the light bulb story is the GE story about The patent,

Unknown Speaker 1:03:15
or the light bulb. Oh,

Samantha Arceneaux 1:03:21
you mean Edison versus burnout, yeah, so that, you know, I grew up in Fort Myers, where Thomas Edison used to have a winter house, and that was, you know, a highly regarded story where he had a worker who actually invented something, you know, either the filament or parts that had the light bulb work. And Edison took the credit for it, and it might have even been Tesla. I'm trying to remember who there was somebody else, and Edison took the credit, supposedly.

Scott Benner 1:03:49
So that's not the story I was thinking of, and chat GPT knew exactly what I was thinking of, and says it's a myth, an urban legend, but the way I heard it, growing up, when it's a conspiracy theory, there was this guy. He came up with a light bulb that won't burn out. He went to GE and said, I've developed the light bulb that will never burn out. Is revolutionary. And they said, We want to buy it. Bring it in, bring all of your work, etc. They brought him into a room. Said, this is these are all your samples, yes. This is all your data, yes. And they paid him for it and burned it all up in front of him. That's the story I heard growing up. But that story, which I'm not the only one that heard, because chat GPT knew it immediately said, it says that it's an urban legend, so, but I think that kind of stuff gets it into people's heads. I believe that if there was a cure to something, we would know about it. And I go on the theory that people can't keep their goddamn mouth shut. So if somebody, especially in a world of social media, somebody would know and be like, I'm gonna be famous for this. And they and they, they'd spill the beans unless that's true, yeah, and you can't pay everybody off get an Amy. You. But is it,

Samantha Arceneaux 1:05:01
I wonder, though, too. So, you know, I don't know if you know this based on, you know, monitoring the Facebook groups, but obviously you've heard of the Fauci lab, and my daughter was actually part of that study. And it's kind of fascinating when you're looking at, you know, the roadblocks that have kind of come from these studies, where it's like you maybe we could get to some, and I won't say a full cure, but a functional cure, if only there was more funding available. Where? Where does funding typically come from? Companies who are looking to purchase, you know, the patent so they can make money one day. So when you're using something that could also be used for something else, meaning someone's already made the money on it, then suddenly they're not interested. So, you know, it makes me wonder, what do we already have that could be applied to other things, but nobody's looking for those things, because it does not make those people money in that

Scott Benner 1:05:54
moment. Yeah, like, like, maybe even, like, not using Dr Fauci as an example, but maybe they started on one idea, and it didn't really work out like that, but it does have other applications, but people can't figure out how to make money with the application, so nobody funds

Speaker 2 1:06:07
it exactly. It's just, you know, what

Scott Benner 1:06:10
did you do with that study? What? What did you learn about it? So,

Samantha Arceneaux 1:06:15
so basically, I went in and I wasn't quite sure, you know how it worked. I just heard, you know, the the results from the adults were really, really positive. It was showing that there's lower glycemic variability for the people who had gotten the real thing versus the placebo. They were using less insulin, lower a, 1c, when I talked to Dr Fauci, it was very much like we are teaching white blood cells to basically eat sugar, instead of needing the beta cells to do that job. So therefore, it avoids autoimmune, you know, that autoimmune response, because it's not the beta cells being attacked. It's just, you know, kind of like a workaround. So more of a functional, I won't say the cure word, but, you know, a functional treatment in order to not have the same amount of insulin needs. So it's really fascinating, and it's all from the BCG vaccine, which has been, you know, given to billions of people around the world. So then the next question is, you know, well, why aren't, you know, people preventing diabetes, then, if they're getting these vaccines, but it's a very specific dose, a very specific strain. But the problem is, it only costs $1 you know, per dose. So what incentive is there for, you know, companies to pick this up, so to speak. Did your daughter do it? So, yeah, she's currently, it's a five year study, so they actually don't tell you if you get the placebo versus the real thing. So we won't know that she is going to Boston and she's, we're, I've been to Boston twice, and we're going back at the end of the month. So it's a really fascinating, fascinating study, the

Scott Benner 1:07:47
process in general, yeah, yeah. I had her on once, and I thought it was interesting. I mean, she's using what the BCG vaccine, tuberculosis, right, right? Yes. I was like, All right, cool, but I haven't really heard anything, and I'm also, I'm a little cynical too, because it's easy to be right. When my kid was first diagnosed, I had the same experience that so many people have, right. Like you, you flip on the news one day, or you jump online and you see that they've cured a mouse of type one diabetes. And you think, that's it. It's over, yeah, five years, right? Yes, until you realize that you know what works on a mouse doesn't work on a person, but you don't know that because you've never been around disease before, is maybe your first time, because your kid just, you just got diagnosed, or whatever. And I remember, I went to my wife like an idiot. I was like, oh my god, I can't believe we're so lucky. Arden was diagnosed with type one diabetes just a year before they're going to cure it, because that's how it felt. And now I refer now you Scott, yeah, and now I refer to that time as, now I realize that these labs need funding, so they all dump their, whatever they have, out into the news. This press release is hoping to get more funding. And now I call that cure season. Really

Samantha Arceneaux 1:08:59
does boil down to you, you know, trying to get your best foot forward in order to get money. This is a study when Michaela was first diagnosed. So she's been diagnosed for 11 years now. This was one of the first studies I had ever heard of where I was like, Oh my gosh, there could be, you know, a cure or something that makes her not have to take insulin. And then it was just like, dragging out so long because of the funding, so they're just now into pediatric trials. The good thing is, it's for people who've been diagnosed for a long time, so we didn't kind of miss the window that so many other studies have, which is recent diagnosis, because she has, well, sailed past that threshold. That was kind of my thought processes, you know, and getting my husband on board, honestly, you know now that I've kind of shared some of this conspiracy, obviously, he's not a huge vaccine proponent, but I was like, Listen, this one has been around over 100 years. You know, it's given to billions of babies, you know, around the world, the most well studied vaccine. So at the very least, she's protected against tuberculosis. My

Scott Benner 1:10:00
kids definitely not getting tuberculosis. Yeah, it's, it's very nice you to support research like that. That's awesome. Yeah, really. And nice of your daughter too, because the travel involved, and

Samantha Arceneaux 1:10:10
yes, the travel has been a little difficult. But, you know, she does want, she actually wants to go into the medical field in the future. She wants to be a nurse practitioner. So this is kind of right on that mindset of very curious, she kind of obviously got that one for me, not my husband. So very curious mind. What should

Scott Benner 1:10:28
we call this episode, Bigfoot aliens and diabetes, something like that? Well,

Samantha Arceneaux 1:10:33
I mean, like I said, you know, how many people can say type one diabetes saved my life and other odd coincidences,

Scott Benner 1:10:39
and other god coincidences. That's great. Yeah and Bigfoot. I'm gonna write at the end, yeah and Bigfoot? Yeah, that's awesome. I'm enjoying talking to you so much. We're gonna see each other soon, right? Yes, we

Samantha Arceneaux 1:10:49
will touch by type. One has their annual conference next month in September here in Orlando, so as usual, you're one of our highlighted speakers.

Scott Benner 1:10:58
It's gonna be fun. I got told to stop talking about it, because, I guess they sold there

Samantha Arceneaux 1:11:02
is the registration is closed. Yes, we're over 500 500 registered. It's

Scott Benner 1:11:07
free, but, like, at the same time, but at the same time, like, you have to register, you know, to do it. And I was like, you know, I mean touch by type, one buys ads on the podcast, and so in the ads for a while. I was like, hey, like, you know, I'm going to be speaking with this thing. Like, go do it. And I got a note one day from somebody, and they were like, Stop, yes, yes,

Samantha Arceneaux 1:11:25
no, we are fully, you know, we have, we do have a wait list. But even the wait list is kind of lengthy at this point, so, and it's at a beautiful, beautiful conference center, the JW Marriott, here in Orlando. So you know, if I was looking for a conference that would be a fun day for me. Well,

Scott Benner 1:11:44
I'll go out on a limb here and say a thing that it may be six months from now when this comes out, people will be like, I wonder if that's really going to happen. And I don't really know for sure, but Elizabeth and I have been talking about touch by type one setting up me speaking at other places in the country. So I have

Speaker 2 1:12:00
heard I've had, they've been talking about that, yes.

Scott Benner 1:12:05
So hopefully she and I had a conversation. She's like, I could facilitate that. I was like, really? And I was like, Cool. I was like, I don't want to charge people like, you know, like, how do we do this? So she's looking into it, and I was really excited. So I think she's trying to get one in, like, the first one in Philadelphia, maybe.

Samantha Arceneaux 1:12:20
Okay, I know they were trying to, like, figure out where good places might be. So yeah, and I believe there was, did you put a poll on one time recently

Scott Benner 1:12:31
to give her cities to look at? Yes, I

Unknown Speaker 1:12:36
did see that that

Scott Benner 1:12:37
was really cool. Like, it's very good for your ego when you're like, where should I go? And like, you know, you come back a day later, and there's just 1000s of responses like, Oh, it's so nice. Yeah, it looks like Philly, because I can drive to it and, you know, as a test, as a testing and she actually said to me, like, she's like, Could you speak at the Kimmel center? And I was like, Could I I'm like, I'm gonna have somebody mention that at my funeral if that happens. I was like,

Speaker 2 1:13:00
I'm not familiar with Philly, but I'm assuming that's a fairly big center. Yeah, I

Scott Benner 1:13:04
was like, Yes, please. Can we dig my mom up so I can tell her? Well, that's

Samantha Arceneaux 1:13:08
the thing you know. You know at the conference, unfortunately, I am one of the speakers who ends up yearly as someone against your time slot. And I will tell you, it's no fun having to have a time slot opposite you, because you definitely draw the crowd. So I can only imagine, you know, going into a new area, the amount of people that would be, I hope registering to see you. I

Scott Benner 1:13:31
hope so. And also nice of you to tell that story, because when I tell it, I sound like I'm bragging. Actually, there's a short list of people I have that are still angry at me because they flew somewhere to speak, and their slot got put against mine, and then like three people went into their room to listen to them talk. Yeah, like

Samantha Arceneaux 1:13:48
you thankfully, you know I'm my ego is not going to be hurt. You know, I'm there, regardless of whether I'm speaking or not. So, yeah,

Scott Benner 1:13:58
well, other people's egos have been hurt, and they've spent a lifetime trying to me because of it. So, oh no, yeah, those people are not pleasant. That's a different story. Thank you for doing this. This was terrific. I don't know I should have you on more often. You're very natural at this.

Samantha Arceneaux 1:14:12
Thank you. Yeah. I mean, I think we've been trying to schedule this since last conference, September of 2023 and right now, as we're recording. It's August 2024 so you're a busy, busy man.

Scott Benner 1:14:24
Well, no, also your family is very busy digging a tunnel from Orlando to Cuba. It takes a lot of

Speaker 2 1:14:30
time. Oh man, let me tell you, it wouldn't be Cuba. I'll tell you that I

Scott Benner 1:14:35
would love to interview your husband. I'd be like, tell me what's gonna happen when they come for us, and just let him talk.

Samantha Arceneaux 1:14:39
Oh man, he's, yeah, I won't say he's off the deep end, because, you know, I do spend a lot of time reeling him back in too. But I will say it has been very difficult with the amount of fake news and in the media or online to kind of like, go through that mental, analytical process with him. Of like, is. Do you really believe this, or is this something someone is posting? Because anybody can post anything versus, you know, like, you gotta, like, use your brain and just don't look at something and take it at face value.

Scott Benner 1:15:11
I watched the thing happen to one of my kids the other day. I don't even want to say which one, right? They have a certain a political belief, and came and said something to me. I said, Oh, that sounds weird, like that doesn't sound quite right. I spent a little time to like I dug in and around it, and what I found out was, is that the thing they heard about another person. So just imagine there are three people in this conversation. They heard a thing about the second person that was designed to make the second person look bad. And it turned out that the third person floated that story to make the first person look stupid for believing it. And like, once you, like, realize that that's the level of like, shithead chest that's going on, right? I was like, see, you believed a thing that is not true. Yeah. And if I gave you a day to figure out why someone made up that lie, you would not have come up with the actual answer. Like your brain would have started going, Oh, it's probably because of this and this and this. But it wasn't. It was for a completely different reason that you would have no way to understand. It's really fast.

Samantha Arceneaux 1:16:21
That's just it. You know, one of my things is, you know, not only do I have the clinical psychology degree, I also have a degree in marketing and sales. Because apparently, that's what I did, was just go to college for a bunch of random things. So, you know, in marketing, that's, that's like, the the 101, you have to capture their attention. You have to, like, really, if you're not selling something, you have to dissuade people from buying the other product, right, put down in their mind. And it kind of rolls with that psychology. But you know, media has figured out that you just have to post it and have someone believe it and have that word of mouth spread, because those people who read it aren't going back to look to see that there's a correction or that something has been modified? Yeah? They just go with it, and it's like, yeah, rolling with it. The advent

Scott Benner 1:17:07
of social media taught people who are in the business of changing hearts and minds for whatever reason. It taught them, I don't have to get everybody, I just need a percentage, yes, and that's it, that's and the truth is, is that, like, there's also ways to think about that that aren't devious and terrible, like, I'm a very successful podcast in a very small niche, and that is why, because everyone who listens has type one diabetes or loves somebody with type one diabetes. So if you're selling a pump or a glucose monitor or something like that. The people listening to me are almost 100% a possible, you know, customer I'm a good bet to buy an ad with. And that idea is the same as what you just said, like, we'll just blurt this out to 30 million people. We only need, like, a million of them to believe it, and then, you know, we've got enough of them to capture the space. And now, at least the the idea is out there enough that even if it's not true, it still seeds doubt in people's minds. I heard a thing like the GE light bulb thing. I heard it like when I grew up, that was a fact, and as an adult, I was like, that's weird. I wonder if that really happened. And I looked into it a number of times like that, that as far as anybody can tell, that didn't actually happen.

Samantha Arceneaux 1:18:26
Well, that's what. I don't know if you've seen this meme, but it's like, you know, what did you do before the internet? How did you find out things? And it's like, Oh, your aunt Kathy told you something, and you believed it for 20 years, like there was no fact checking.

Scott Benner 1:18:38
And now think back on Kathy. She's a crackpot. So, like, I mean, listen, you're like, there's something in the dirt and one like, and you might be right, and you also might be completely wrong. Like, it's, you know what I mean, like it, but in 1975 if you said it out loud, it was true, Yep,

Samantha Arceneaux 1:18:57
that was absolutely but they also smoked in restaurants and all kinds of crazy other things that we know better,

Scott Benner 1:19:02
My God, my dad and smoking in restaurants, just my whole life. All right, I got a role. Thank you so much for doing this. Absolutely. It was great. Talking to you, fantastic. Talking to you too. I'll

Unknown Speaker 1:19:13
see you soon. Okay, sounds great. Thanks.

Scott Benner 1:19:15
Hold on one second.

You a huge thanks to touched by type one for sponsoring this episode of The Juicebox podcast. Check them out on their website, touched by type one.org or on Facebook and Instagram. Today, we heard from Leo, who will be participating in her own blue balloon challenge. Follow at Medtronic diabetes on Instagram and use the hashtag blue balloon challenge on social to see inspiring videos from Leah Aaron and other people living with diabetes, and you can join the challenge yourself or with your support squad to show how you're keeping your balloon in the air on top of everything else in life, are you starting to see? Patterns, but you can't quite make sense of them. You're like, Oh, if I Bolus here, this happens, but I don't know what to do. Should I put in a little less, a little more? If you're starting to have those thoughts, if you're starting to think this isn't going the way the doctor said it would, I think I see something here, but I can't be sure. Once you're having those thoughts, you're ready for the diabetes Pro Tip series from the Juicebox podcast. It begins at Episode 1000 you can also find it at Juicebox podcast.com up in the menu, and you can find a list in the private Facebook group. Just check right under the featured tab at the top, it'll show you lists of a ton of stuff, including the Pro Tip series, which runs from episode 1000 to 1025 I can't thank you enough for listening. Please make sure you're subscribed or following in your audio app. I'll be back tomorrow with another episode of The Juicebox podcast. The episode you just heard was professionally edited by wrong way recording, wrongway recording.com, you.

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#1353 Carol Brady Wouldn't Understand

'Gertie' has type 1 as does her son; and did her father.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, welcome back to another episode of The juicebox podcast.

We are calling today's guest Gertie. She's 41 years old. She's had type one diabetes for 23 years, and her 19 year old son has had it for 17 years. Her youngest son is 14 and also has type one diabetes. Her father had type one lung cancer and some problems that we'll talk about as the episode goes forward. Please don't forget that nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. Don't forget to save 40% off of your entire order@cozyearth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40 percent@cozyearth.com when you place your first order for ag one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink. Ag one.com/juice, box. Don't forget, if you're a US resident who has type one, or is the caregiver of someone with type one, visit T 1d, exchange.org/juice, box right now and complete that survey. It will take you 10 minutes to complete the survey, and that effort alone will help to move type one diabetes research forward. It will cost you nothing to help. This episode of The juicebox podcast is sponsored by Medtronic diabetes, and later in this episode, we're going to be speaking with Heather, who will talk about the importance of education and understanding the impacts of hyperglycemia. Medtronic, diabetes.com/hyper. This show is sponsored today by the glucagon that my daughter carries, gvoke hypopen. Find out more at gvoke glucagon.com. Forward slash juicebox. Today's podcast is sponsored by us Med, usmed.com/juice box. You can get your diabetes supplies from the same place that we do. And I'm talking about Dexcom, libre, OmniPod, tandem, and so much more. US med.com/juice, box, or call 888721151,

"Gertie" 2:20
I am dirty, and I live in the middle of the desert,

Scott Benner 2:26
and it's dirty. You live in the middle of a dirty desert, so gross. You mean like dusty. There's

"Gertie" 2:35
so much dust. No matter how many times I sleep and mop and dust, it's just dirty.

Scott Benner 2:41
Have you considered leaving no not for a few years?

"Gertie" 2:47
I do, but I want to wait until my recent high school graduate son is settled before I leave

Scott Benner 2:55
I see okay? 41 Oh, congratulations. Nice age. Not sure about that. Let's see what you're not sure about what don't you like about it so far?

"Gertie" 3:06
The lack of metabolism thing, it's like dying.

Scott Benner 3:14
I'm with you on that. I are. You have any creaky joints yet?

"Gertie" 3:18
Or my hips when I was born were slightly rotated, so they're like crooked, and so the heat helps, but I can't sleep if it's warm. So it has to be icy cold,

Scott Benner 3:31
and they ache. So living in the heat helps your hips, but you can't sleep in the heat. It is.

Unknown Speaker 3:42
Do you have type one?

"Gertie" 3:43
My recent high school graduate has type one, and then my younger son, who hates me, has type one.

Scott Benner 3:54
Why does he hate you? Because

"Gertie" 3:56
we have differences of opinions. He thinks that he should be allowed to do whatever he wants, and I have rules at my house. So he's with his dad, because dad has no rules.

Scott Benner 4:09
He moved out. He is 14,

"Gertie" 4:10
and he was only with me for a year while his he's always lived with his dad. He's a daddy's boy, but I've always been, you know, an active part in his life, but he didn't like the rules, and so he went back to his staff.

Scott Benner 4:26
Gotcha is living in the desert like watching rango? Yeah, it is. I was pretty sure that's what it was. So wait a minute. So you have other type one, obviously your kids, but how about in the extended family? Do you see type one or other autoimmune on

"Gertie" 4:44
my biological mother's side? We don't know anything about my dad's biological dad and his family, so as far as we know, I'm the first i. But my dad did develop type one a couple of years ago

Scott Benner 5:06
and ultimately died from it. What is he was 6263 well, how does that kill in a couple he just didn't take care of himself like

"Gertie" 5:19
I flew out there for three weeks. I shared all the information. I called him all the time. I followed his Dexcom. He just didn't care. But also, my dad was a meth addict. Oh, the methyl.

Scott Benner 5:33
Oh yeah, a little bit,

but he beat lung cancer. But lung cancer didn't need insulin. How do you beat lung cancer? Maybe the meth helped. I think

"Gertie" 5:46
he lied to me about beating the lung cancer just to make me feel better, because despite his poor life choices, he was a wonderful father. He was very present, very active. Father daughter dates, chaperone field trips, all the conferences at school. Was at my track meet. Father daughter, work days. I mean, he was very, very present in my life.

Scott Benner 6:04
Yeah, Curti, are you trying to tell me that you think that your dad had no

"Gertie" 6:09
my dad was diagnosed with lung cancer,

Scott Benner 6:13
right? But I'm saying never really beat lung cancer and told you he did so that you wouldn't worry about him. Did he know that? You knew he did meth? Interesting and but once he got type one diabetes, a thing you have, he let it kill I don't

"Gertie" 6:30
think it was on purpose. I think he just thought that regardless, he would live forever,

Scott Benner 6:36
because meth and cancer, right? It's a rock solid, you know what? You can't, you really can't fall.

Unknown Speaker 6:43
I mean,

Scott Benner 6:48
he's dumb, he's he's gone. Now we're gonna, we're gonna be respectful, but, but I'm saying if, like, if you feel like cancer didn't get you, you use meth and it doesn't kill you. When someone goes sugar in, your blood's a little too high, you're probably whatever, yeah,

"Gertie" 7:02
probably like what he thought he's gonna live forever?

Scott Benner 7:07
Yeah, I'm sorry. How long ago died

"Gertie" 7:09
on my birthday last year?

Scott Benner 7:13
Jesus Christ. Do you think he did that on purpose? No,

"Gertie" 7:16
I'm gonna wait three more days. Fell asleep thinking I'm gonna call my daughter in the morning with my normal birthday shenanigans, and it's going to be great. And he just didn't, and he fell asleep thinking about me.

Scott Benner 7:31
Was he using drugs when you lived

"Gertie" 7:33
with him? No, that that started later in life.

Scott Benner 7:37
He's a late in life. Isn't that bizarre. I mean, it sounds bizarre. Bizarre. I feel like we're never getting to your diabetes. Sorry.

"Gertie" 7:46
He was so present in my life and such a good dad.

Scott Benner 7:51
Even. Do you ever talk about it with him? Like, Hey, Dad, I noticed you're doing meth. What's that about?

"Gertie" 8:00
How I felt about it, and I said,

Scott Benner 8:04
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"Gertie" 9:15
He said, It's not a reflection on me, it's a reflection on you. It's your choice. I don't approve. I know you want to move here to be closer to me, because he lived in Washington. I said that you can't while you're using that. I don't want you around my kids. My kids will not tolerate it. Washington

Scott Benner 9:30
State, yes, upper north. I gotcha think people who live there like, What do you mean by that? I don't. I don't really mean anything by I'm just around so, wow, that's crazy. How about your mom?

"Gertie" 9:43
I don't have anything to do with her. Okay, she is that crazy. Oh, I

Scott Benner 9:48
see, yes. All right, fair enough. I was like, hoping you'd say something like, Oh, she's the CEO of Oscar de la Renta.

"Gertie" 9:56
Wouldn't that be great? No, my partner's mom. Mom and my ex husband mom are my moms. They're they're my moms.

Scott Benner 10:05
What's the implications on you growing up with BET crazy mom,

"Gertie" 10:09
I have complex PTSD. I have severe anxiety. I don't do people because I don't trust them, because I couldn't trust her.

Scott Benner 10:20
You know all this, but it's, it's not something you can can impact. I chose to be a better parent. Okay, well, what about for you personally, though, like, like, you know, wouldn't it be nice to trust somebody?

"Gertie" 10:33
I have a few select people in my life that I can trust, but I'm very, very cautious about who I let into my life. Fair enough.

Scott Benner 10:44
How come the dad thing didn't bother you? How come the crazy bothered you

"Gertie" 10:48
never lied to me? Okay, my mother lied so

Scott Benner 10:52
I'll tell you right now. We should stop the episode. Eight minutes and 42 seconds. There's your lesson for today. Doesn't matter what your truth is. Be honest with the people you love,

"Gertie" 11:01
right? Yes, exactly. Just tell the truth, right?

Scott Benner 11:05
Yeah, not always going to be fun, not always going to be what you want to hear

"Gertie" 11:08
it. It sucked when my dad told me, but he was honest. He has been honest with me since I was as a child. He always made it age appropriate, but he never lied to me, right? That's interesting, and that made a huge difference in our relationship, versus my biological mother, who lied all the time. Right?

Scott Benner 11:28
You ever seek therapy for this? Or do you I have

"Gertie" 11:31
been in therapy off and on most of my life, and when my dad passed away, I went back to therapy because I couldn't handle it.

Scott Benner 11:38
Yeah, it's a lot. I want you to know that I recorded the like 30 seconds before you thought you were being recorded. It's you telling me you have ADHD, oh, that's fine. I almost responded then, but I wanted to wait until we got farther into the conversation to see how it would go. But in 10 minutes, I already have my answer. I'm genuinely and frequently fascinated that people who have ADHD tell me, I have ADHD, I'm going to be all over the place. And then when I talk to them, I don't find them to be that way. Oh, it'll happen, I'm sure, because it hasn't happened so far. You know that, right? Yes, yeah. Like you're on task,

"Gertie" 12:17
really hard on staying on topic, I can do it, but it sometimes I can't. Okay, like, I just saw the pink stapler, and think I hate that thing, but it works so well on stapling. No, no, it is terrible. Well, let's

Scott Benner 12:34
throw it out. You want to get a new one.

"Gertie" 12:37
We have a really, really good one, but my partner used it, and nobody knows what he did with it, because he didn't put it back. Well, this

Scott Benner 12:44
is his problem. He has to find it or replace it. He doesn't live with us. Well, wait a minute, then go to his house, it's probably there, and take your pink stapler and swap them. That would be fun, right? Yeah? Be like, here. You take the shitty pink stapler. I'm gonna take the good one. What's the good one? Is this swing line. They make a nice stapler.

"Gertie" 13:03
I don't know it. It came from Sears. That's all I know. Oh, no kidding, Sears, they

Scott Benner 13:07
still have a Sears. Or is that old? It's that old. No kidding, good for you. Yeah, Sears, yeah. But

"Gertie" 13:15
the feral cat got in my box spring, so I had to cover the bottom of my box spring, but I couldn't find the stapler, so we just bought this cheap one, and I couldn't use it. You

Scott Benner 13:25
paused. So interesting in box spring. You were like, my feral cat got in my box spring. And I was like, where is this going? But then I noticed you met your bed. So I was like, what is happening? Hey, tell people about the email you sent me the other day and why you sent it. Which email the one that you were like, I don't know if I can do this. Oh gosh,

"Gertie" 13:44
I have been dealing with cluster migraines for the last two months. So it's this nasty, vicious cycle where they hit, light, noise, sensitivity, nausea, vomiting, the most agonizing pain ever. They last anywhere from 15 minutes to three to four hours, and then, like, I have a half an hour where I kind of feel like crap, but then I'm fine for a while, and then they hit again, and so if it hits, I have to go lay on my bathroom floor. Is that

Scott Benner 14:17
something you've talked obviously you've talked to a physician about, but how do you try to manage it? Or can you not?

"Gertie" 14:22
Um, well, I've been through like, four or five different migraine meds, and none of them work. My neurologist is booked out until February, so I'm seeing a new one next month. We are hoping that I can get the new migraine injection, because I am a perfect candidate for it, okay? And since you know diabetes perfectly capable of doing it myself.

Scott Benner 14:47
Is it a daily or a weekly?

"Gertie" 14:48
I'm not sure. I don't know much about it yet. I'll find out more at the neurology appointment next month, I think. But my primary also suggested that while Gabe piercings don't. Have any medical statistics saying that it works. She's had several patients that have done it, and it's helped. My cousin on my mom's side had it done, and she's had one migraine in like, two years, and she had it

Scott Benner 15:14
done. So I'm sorry. I feel like I misheard you had what done. My

"Gertie" 15:18
it's a date piercing, so it's part of the cartilage in your ear, okay, so getting it pierced somehow helps.

Scott Benner 15:26
What if you just cut your whole ear off, like Van Gogh? Do you think Van Gogh had migraines, maybe? Oh, wait a minute. Now, we're onto something, rewriting history with Scott. It's my new podcast. I like it, yay. Oh, wouldn't that be fun? That would be pick like big historical events and just making Henry the Eighth and make stuff up about it for an hour on podcast. That would be so fun. Gertie, I'm sorry, I just gotta sit up for a second. You're a layback episode. I laid way back in my chair to talk to you, but I'm just gonna make a note here. First of all, I want everybody hear me say this. Don't take my idea. Okay. Now the next idea is rewrite history podcast, I think is a great idea. I also have another idea for a podcast. It's called argue with Scott. Podcast, everything says podcast B, you just pick a topic and we argue about it for an hour. That could be fun. I think it's going to be. It's going to be great. These are my after type one diabetes ideas. I like that, yeah, because eventually I'm going to get, I don't know, don't you imagine one day I'm just going to wake up and go, I can't talk to another person with diabetes. I got to stop.

"Gertie" 16:38
I could see that, I could see that I honestly

Scott Benner 16:40
don't feel like that, but there I am trying to be prepared for the future. So there's arguing with Scott and rewriting history. Boy, those are, that

"Gertie" 16:49
is a great one. I would have so much fun with that

Scott Benner 16:52
one. Rewriting history with Scott. Yeah, we could just make I am obsessed

"Gertie" 16:56
with, like the War of the Roses and the tutor on our screen, so I could have a lot of fun with that one.

Scott Benner 17:05
I don't know how you guys order your diabetes supplies, like CGMS, pumps and testing equipment, but at our house, we use us Med, and I'm gonna walk you through the entire process right now. I'm looking at the email from us med. It says it's time to refill your prescription, dear Arden, please click the button below to place your next order. Then you click the button that was it. Two days later, I got this email, thank you for your order from us med. We wanted to let you know that your order and it gives you an order number was shipped via UPS ground. You can track your package at any time using the link below, and then there was a link, and then it showed up at our house. Now I'm going to walk you through the entire chain of events. On the 29th which was the Saturday I clicked on the email. On that Monday, the first I got an email that said the order had been sent four days later on the fifth the package arrived. If you can do it easier than that, you go get it. But if you can't, us, med.com/juice, box or call 888-721-1514, get started today with us. Med, get your diabetes supplies the same way we do. This episode is sponsored by Medtronic diabetes. Learn more about hyperglycemia at Medtronic diabetes.com/hyper

Speaker 1 18:29
Well, Hi, I'm Heather lackey. I am a wife and mom. I have two children that are seniors in high school, and I've had type one diabetes for 34 years. And I'm a dietitian and a diabetes educator. You know, I'm the Director of Global Medical Education. I lead a team of clinicians that are developing content. How

Scott Benner 18:51
do you feel when your blood sugar's high? Irritable, thirsty, hungry. What do you enjoy most about your job? See

Speaker 1 19:00
education working, see people thriving. That's kind of the fuel that feeds, you know, my fire.

Scott Benner 19:08
What would you like to see community members talk about more hyperglycemia

Speaker 1 19:12
is the critical thing, right? That leads to short term and long term complications. Hyperglycemia is the greatest unmet need in the treatment of diabetes currently, and I think that that's where technology can help

Scott Benner 19:27
if you're having trouble with hyperglycemia. And would like to talk to other people in the diabetes community. Check out the Medtronic champions hashtag, or go to Medtronic diabetes.com/hyper What about I heard where we just have someone come on to talk about something they don't know a goddamn thing about, oh, that

"Gertie" 19:44
would be fun too,

Scott Benner 19:46
but they've heard stuff about, oh,

"Gertie" 19:47
could we put my partner on that one?

Scott Benner 19:49
I'm sure there's gonna be a never ending line to people to be on that one. Oh, that one. I'm watching it play out in the Facebook group today as I put up episode 1230 he says. And. Isn't sure about the number, yeah, 1230 it's this 58 year old guy had type one for eight years. They put him on Manjaro a couple years ago, and he's completely off insulin. And so he comes on to tell his story, and, you know, like, and he was very kind, and he said, If you want to, you know, put up a post in the private group, I'd be happy to stop by and try to answer questions. So this post has been up for about an hour and a half now. It's already reached 14,000 of the members of the of the group. It's got 171 comments. Most of them are just people who are like, I would like to understand this guy's story, which is really what we're looking for. We're not saying, Yeah, you know, obviously no one's saying, Manjaro, like cures type one diabetes. That's not the case. No one's saying that, etc. But once in a while, someone will pop in and say the craziest thing, like, there's a picture along with the post, and the picture is clearly AI created, right? I went into into chat GPT four. Oh, and I said, 50 year old man. Like, give me a picture of a 50 year old man with diabetes. Man with diabetes, and it basically takes and makes a man sitting in his room, and there's a meter on his table. It's it. And a woman comes into the group and says, Well, this man has gray hair, so obviously he's type two.

"Gertie" 21:18
Oh, my goodness, great. Would it

Scott Benner 21:20
be to have her on the podcast and say, Okay, let's start here. People with gray hair don't have type one diabetes, you've heard, right? And then just start. And then, then, like, on this episode of I heard, like, you know what? I mean, it's a great idea. Also, I had another episode. I had another podcast idea for a series with Arden, but I couldn't get her to do it with me. Oh no. I was gonna call it I don't understand. And then I was gonna have her come on and pick a different thing every episode that she didn't understand, and we were gonna talk about together and learn about it.

"Gertie" 21:55
Well, I can give you an I don't understand from my perspective. Go ahead, 19 year old swags. It does a count carb, nothing, just swags. It Dexcom g6 and he maintains a 6.0 A, 1c, well, I

Scott Benner 22:11
mean, Arden doesn't count carbs. So, oh, hey,

"Gertie" 22:15
so it's a thing. Yeah, a lot of people don't

Scott Benner 22:17
count carbs after they've had diabetes for a while. How long have you had type one.

"Gertie" 22:20
I was diagnosed right after my 18th birthday. He was diagnosed right before his second birthday. So you've

Scott Benner 22:28
had it for 23 years. He's had it

"Gertie" 22:33
for 16 July. Okay,

Scott Benner 22:36
let's not, you know, be so specific, yeah. I

"Gertie" 22:38
mean, look over his full management around 10.

Scott Benner 22:43
Is he managing better than you were when you were helping him? Yeah,

"Gertie" 22:46
honestly, he is the way he does. It totally works for him.

Scott Benner 22:52
Have you ever tried to ask him to show you like, like how

"Gertie" 22:56
just doesn't make sense to me.

Scott Benner 22:59
So the way I think about it is, like historical knowledge, like you look at food and say, Okay, I've eaten something like this previously. It took about four units of insulin, so I'm gonna bolus four units of insulin for it. Is that not like sensible to you?

"Gertie" 23:18
I mean, it is, but my brain doesn't think that way. How do it think? It thinks you must count carbs if you're going to eat them, like it's been so ingrained in my head that you have to count carbs. Oh, okay, I don't count carbs, but that's because I don't eat carbs. I am a low carb or high protein,

Scott Benner 23:39
but you still any carbs you have, you're covering,

"Gertie" 23:42
yeah, but it's minimal insulin, so I don't have to worry about the risk of severe lows, like, sometimes the foods he eats, he's taking 1520 units. And I'm just like, oh my gosh, you're gonna die. So

Scott Benner 23:55
this is interesting. Let us dig into this. Also. I'm gonna keep my notes here. I don't understand. I heard these are, these might be good starting points for conversations you've had type one for a long time. You were diagnosed at not a real young age, but a young enough age, at a time where everything was counting carbs, yeah, for good.

"Gertie" 24:17
I mean, even with new foods, he tries, he just swags it and nails it.

Scott Benner 24:23
But I'm trying to get to why. I want to shine a light on where you're at so point, I think the point is, I've talked to a lot of people, so I'm going to make some generalizations here. You tell me if I'm right or wrong, right. So they beat it into your head about counting carbs. You do that. Things don't go particularly well for you as far as outcomes, and eventually you transition to low carb. Is that about what happened? Because

"Gertie" 24:44
counting carbs doesn't honestly work, ah, but that's what happened to you? Yeah, yeah. And then that's probably why my son doesn't count carbs.

Scott Benner 24:52
But then you get super low carb, and what are your outcomes? Like fabulous anyone sees in the fives or. Fives, right? How many carbs a day? Less than 15. Yes, okay. Are you super ripped? No, you don't have, like, a washboard abs or something like that. No, I'm

"Gertie" 25:11
actually kind of chunky.

Scott Benner 25:14
How do you feel about that? Are you like, god damn it, low carb? What happened?

"Gertie" 25:18
I didn't switch for, like, weight loss, I've lost weight but it wasn't about weight loss for me, it was about preventing the severe lows and the swings. For me, I have a freakishly weird body, so if I eat like, one piece of bread and dose for it, I shoot up to, like, 500

Scott Benner 25:40
so what if I said to you, I bet you I could make a bolus for you and your and bread wouldn't make you 500

"Gertie" 25:48
oh my gosh, that would be so great. I miss bread so much. Okay, well, I love to bake homemade bread. Well, that's a lost art in your life, though, right? Oh yeah, from scratch. No bread maker. Oh, fancy, yes.

Speaker 2 26:03
I It's, do you cook it outside on an Adobe? No, I wish

"Gertie" 26:09
I did try it in the air fryer once. That didn't work out so well, really, how would that? Yeah, my oven decided it didn't want to work one night. So you tried that? Yeah, it did not cook in the middle

Scott Benner 26:21
Gertie. I can't believe I got Adobe off the top of my head. That was fabulous. I was really impressed with myself. Because I'm like, I'm impressed with that one too, because I was like, she said, desert. I'll make a joke here. What are those little domy ovens called? And I just plucked that out of the sky like, after I said it. I thought I'm probably wrong with that, but I was right. Oh,

"Gertie" 26:40
you, you got it right? That's That was impressive. Not bad.

Scott Benner 26:43
No, no, I'm gonna, I'm gonna live off that joy for at least 20 minutes, just so you all know how it works. That's good. That's good because I do Adobe oven. You think people right now are like Adobe's Photoshop. What are we talking about right now? So you would like to eat carbs, but you don't, because this is the only thing you found that you can kind of manage your health with. It

"Gertie" 27:05
works. Oh, it definitely, I think the only carb I would go back to eating is bread. Occasionally. I also don't like the way it makes me feel. I get really lethargic and I just kind of feel up, which was another reason for, like, giving them up.

Scott Benner 27:21
Do you have that crazy low carb energy? I do, yeah, like, super, like, focused, like, that kind of vibe.

"Gertie" 27:30
I don't do focus real well, but I have lots of energy. And then throw in my bipolar disorder. So when I'm like, in a manic high, I irritate myself. Are

Scott Benner 27:42
you telling me that one half of your brain irritates the other half of your brain? So what you're trying to say, Yes. Wasn't sure if you were making bipolar humor or not, but it felt like that's what was happening.

"Gertie" 27:52
I am a train

Scott Benner 27:55
wreck because, you know, like, if I joke about it first, and people are like, he's very insensitive. She said she had bipolar disorder, and he made a joke. Really hard to offend me, no, but that's what you meant, right? Yeah, okay, yeah, no. So I have to be honest with you, I have been, as the Yiddish would say, sitting on spilkas for 24 minutes wondering if you were bipolar, because I am absolutely bipolar because of the cluster headaches and the ADHD and the drug addict father,

"Gertie" 28:24
I actually was. My mom's a drug addict too, but she I didn't mean

Scott Benner 28:27
to miss I'm sorry. I didn't mean to shortchange her.

"Gertie" 28:31
My parents were train wrecks too. I am the one that changed it all.

Scott Benner 28:35
So is her batch crazy clinical probably a lot of trauma

"Gertie" 28:39
from her childhood, and then my dad had similar trauma, so it's like this big vicious cycle, yeah, and my kids have some trauma. I was not the best parent at first, but I figured it out. Where did you go wrong in the beginning? Temper, lack of patience, discipline, I can definitely say that some of the discipline may have crossed the line when they were younger,

Scott Benner 29:05
like your socks don't match, so I just crack you in the mouth like that.

"Gertie" 29:08
No, no, no, I think I was harsher than it called for, okay, not physically, though, I spanked my 19 year old once and cried, and he was about four, he got a SWAT on the butt, and never again. Okay. Plus, it didn't work.

Scott Benner 29:28
If I found your ex, he's an ex, right? The guy who you're 14 year olds with, yes, yeah, if I found him and said, Hey, describe Gertie to me, what do you think he'd say horrible, horrible things because they're true or because he's lying.

"Gertie" 29:44
We have a very volatile relationship, and while I'm able to look past that and try and do it best for our child, he is stuck in the past and can't move forward so he

Scott Benner 29:57
remembers you the way you were. Yeah. Yeah, okay, I think that's common, by the way

"Gertie" 30:02
it is, and it's like, I'm not, I'm not that person anymore. Yeah, it's hard done a lot of growing and healing, and every day, I try to be a better version of myself, for myself and for my kids and for the people in my life, right?

Scott Benner 30:16
So I think this is so common, like, because you actually mentioned it earlier, right? Like, if you think about it, like the way you grew up, imprinted on you, and now you know, you know you're like, This isn't right. I shouldn't feel this way, but you can't stop yourself, and I don't know that that's so different from I was with you when you were like this, and now you're not like that anymore, but this is how you've imprinted on me, so this is how I feel about you,

"Gertie" 30:44
yeah, and that's that's what it is. My ex husband, my older two boys, Dad and I are best friends. Best friend. He's my go to and I'm his go to. Gotcha like we have traveled to visit him. I stay at his house. We do stuff together, we talk almost daily. He was able to look past the person I was when we were together and see who I am today. That

Scott Benner 31:14
makes sense. And so that's my best friend. Nice. So you use medication for the cluster headaches you use doesn't work. It doesn't work. Use insulin. You're thinking about getting something in your ear pierced to try to, like, remove that a little bit. What do you take for the bipolar or anything?

"Gertie" 31:31
My official diagnosis just came along with the ADHD, so I'm not medicated yet. Okay.

Scott Benner 31:40
Is that something you're working towards?

"Gertie" 31:41
I think so. They have a gene testing now where they can tell you what medications will work best with your body. So I will do that before I start medication.

Scott Benner 31:56
How did that high fluten doctor and make it out to the desert?

"Gertie" 31:59
I don't know. I just asked my primary about it, and they knew,

Scott Benner 32:03
yeah, is the doctor's office dusty?

"Gertie" 32:06
It's not quite as deserty where her doctor's office is. So no, I drive an hour for my primary because she's the

Scott Benner 32:15
best. Let me ask you a question, are you driving very slow and it's close to your house? You're driving very fast and it's far away, or somewhere in between?

"Gertie" 32:22
I do the speed limit, okay? So the I get a little road Reggie when people in front of me go under the speed limit. So under is not okay. Overs is over better if you're in front of me. Yeah, I had

Scott Benner 32:34
a very bad day yesterday, and I went out for a fast drive to pump up my adrenaline, to try to kick

"Gertie" 32:39
out my gosh, I love going fast, but it's not my truck,

Scott Benner 32:44
so I follow the rules. I understand. Okay, so this place is about 60 miles from your house. Am I guessing right? Yeah, interesting. Yeah.

"Gertie" 32:50
You know how I figured out my endo is a three and a half hour drive, so I go in person once a year, and the rest is telehealth. Holy

Scott Benner 32:57
hell, how far in miles is that? Seriously?

Unknown Speaker 33:02
Sure? A lot, a

Scott Benner 33:03
lot. Yeah, is that just the best endo you can find? What makes you go that far to get to them?

"Gertie" 33:09
I tried the ones in my area that my insurance covered, and I could not handle them. This one asked me what my a, 1c, was, and what I what age I was diagnosed at, and decided, after 20 years that I was type two, oh, 140 miles. And so that was just a no. And then told me the high breakout on my chest was a thyroid problem.

Scott Benner 33:38
How is your TSH,

"Gertie" 33:39
normal?

Scott Benner 33:40
What's that mean? What's the number? Um, I

"Gertie" 33:42
don't have my lab work in front of me. It's okay.

Scott Benner 33:45
Sometimes they'll tell you it's normal. When it's high, is all I'm saying.

"Gertie" 33:48
Yeah, no, I have chronic hives. It's interesting because

Scott Benner 33:53
my son got, my son's only indicator for, like, outward indicator for Hashimotos was hives. I

"Gertie" 34:00
started getting hives, like, three days after my dad brought me home from the hospital. When I was born, it's been a lifelong condition for me. There's

Scott Benner 34:08
a biologic for that too, you know, yeah, because you're because the thing for the headaches, that's a biologic, right? Yep, yeah. Interesting, interesting. I have a question that has nothing to do with anything, but everything to do with this. Okay, when you're bipolar, how do you trust your reactions? Like, when your doctor says something to you and you're like this, ladies and idiot, how do you not go or maybe she's not self control. So how, what do you have to, like, go home and think about it later. Or, how do you how do you manage it? A

"Gertie" 34:41
lot of I call my ex husband or my grandma. I used to call my dad, but, yeah,

Scott Benner 34:49
no, I understand. So we so you'll call and say, Look, this happened. This is what they said. This is what my response was. Can you tell me if this is. Reasonable? Yes,

"Gertie" 35:01
that is what I do, because I can't always trust my reactions, so I have to get advice or validation from someone else to make sure that you know I'm not overreacting, underreacting.

Scott Benner 35:17
No, yeah, that's what I was wondering about. And if you and I, if I interviewed you every day for a month, would I eventually meet a person who's not at all like you are right now? Oh, absolutely. How would that conversation go? Would you like be combative?

"Gertie" 35:31
I could be yes, although I'm pretty good at maintaining control when I feel that way or I isolate myself because I'm not gonna upset everyone else because I have a chemical imbalance. How do you know to do that? If I catch myself getting snarky, I'm just like, Okay, guys, bye. I'll let all I'll come out when it's time, because

Scott Benner 35:56
you just know I'm gonna say something. Why do you care, though, if you're in that space, how come it's not more cartoonish, like in the movies? Like, seriously, like, why are you not like? Why do you just like, suddenly not

"Gertie" 36:07
care, and I don't want to be like my mother and hurt them

Scott Benner 36:11
I see was your mom clinically. You called her patch crazy earlier. Now it's just stuck in my head, but she doesn't have

"Gertie" 36:20
any official diagnosis, because she doesn't believe in it, but, but there is depression, I'm sure some anxiety, probably bipolar. Your kids do? They

Scott Benner 36:33
have any issues like this?

"Gertie" 36:34
My youngest son definitely needs an evaluation, which is part of the reason why he hates me, because I tried to have him evaluated, but my goal was to see if there was anything going on and to learn as much as I could so that I could be the best parent to him and give him what he needed from me. Yeah,

Scott Benner 36:58
but that's hard. I mean, you can see, right, like, if, if the same thing happened to you, do you think you'd have a similar response to his? I

"Gertie" 37:06
actually asked my dad, when I was living with him, if I could be admitted to be evaluated, and him and my stepmom, because back, you know, when I was a teenager, mental health wasn't a big thing. It was hush hush where we lived and that time, so it never happened, but I honestly wished my parents had because maybe

Scott Benner 37:36
I would have had better luck

"Gertie" 37:39
as I grew up, you know, better understanding of my mental health and what I needed to do so that I didn't lash out or do some of the things that I've done. Yeah, you

Scott Benner 37:51
might have been so far ahead of the curve on that that, who knows if the help would have helped or not.

"Gertie" 37:56
Hopefully, it would have. But, I mean, I can't go back and change it.

Scott Benner 37:59
Yeah, that's for sure, because if you could, you'd own a time machine, and we be rich, you and I, because I go to business with

"Gertie" 38:06
you, and you know, I probably wouldn't have my kids. And even though my 14 year old's kind of rotten, he's my kid, and I adore him when he's being nice. Can you be kind of rotten sometimes? Yeah, but when I noticed myself being rotten, I tell my family, I'm i I'm agitated, irritable, snarky. I'm gonna go in my room and stay there until it passes.

Scott Benner 38:26
Maybe he'll learn that over time. I hope so. Yeah, I mean, 14 is a little early to figure that out.

"Gertie" 38:31
My 19 year old type one he when we first moved down here, he had a lot of anger issues about it, and so I decided that we would do therapy so that we could communicate with each other and learn how to communicate with each other. And it was amazing. It helped so much.

Scott Benner 38:53
It's lovely that you're doing this for your kids when you know

"Gertie" 38:56
I want to be better than my mother was. It sounds like you've done that. I think that I have. I think I've done a good job with my boys. Is that fulfilling it is? It really is like when I got to watch my recent graduate graduate, I was a sobbing mess. I mean, I never in a million years thought that that was that I would be able to get my children through school and be able to support them and help them make it happen. Hit

Scott Benner 39:26
a milestone like that in a happy, expected way.

"Gertie" 39:30
Yeah, I I mean, and my oldest son is getting his GED. He's got a pretty decent part time job. He has some issues, like anxiety issues. So he doesn't work full time, but He's respectful, polite, a productive part of society, and so is my 19 year old. He is fabulous.

Scott Benner 39:52
Very nice. Look at you. Congratulations.

"Gertie" 39:55
Like other than that few months when we first moved down here, I've never. I had any issues with my oldest kids. Have you heard of senior assassin?

Scott Benner 40:04
Is it something like in the last couple weeks of school where you pick somebody and, like, pull a name out of a hat and you have to, like, pretend, kill them somehow? High School,

"Gertie" 40:13
it's kind of nationwide. You have teams of three or four. You get pool floaties for your arms and squirt guns, and your goal is to take out other teams, and it's a $500 pot at the end of it for the last team

Scott Benner 40:32
I have heard about this. Okay, so

"Gertie" 40:35
our school, our high school, participated in this, and I was sleeping, and my 14 year old was with me, so he comes and knocks on my door, and he goes, my brother got home, brought home by the police. And I'm thinking, What? No, not him, you maybe, but not him. So I'm thinking, this kid's messing with me. And I go open my front door, and my jaw hit the ground, because there's my son with the police officer, because the girl knew his group was coming to her house, told it them to bring it on. And then her parents saw, you know, four kids creeping around with sport guns and called the police.

Scott Benner 41:15
Well, that's not bad. That just sounds fun.

"Gertie" 41:18
My son was super, super respectful, listen to the officer and goes, you know, maybe, maybe nighttime was not a good time to do this. Like, you're right. This, this could be, yeah, it could be dangerous. Like, what if they had a gun and pulled it on me? And the officer's like, yeah, totally. So because of his respectful behavior, they just brought him home about that. Yeah, the officer left, and I'm like, walking through the house, if my son turns around, he's like, are you gonna yell at me? I'm trying really hard not to laugh, actually.

Scott Benner 41:50
Well, that's nice. I can't believe they let it. They let them call it senior assassin.

"Gertie" 41:54
It's not associated through the school districts. It's just something seniors do. They do, like, I don't know where it came from, but it's not through the school district. It's not associated with the schools at all. I know a lot

Scott Benner 42:05
of kids just quit in the middle of it. They're like, Oh, my God, $500 I can't go through this for all this time again. We have to split the money. I've heard people do it. They seem like they have fun.

"Gertie" 42:17
Thank you. I thought it sounded like a lot of fun when he told me about it,

Scott Benner 42:22
yeah, yeah, for sure, how long have you been low carb?

"Gertie" 42:26
Um, it's been a couple of years. Okay,

Scott Benner 42:29
and you said bread you'd want back. But like, let me just ask you, kind of like, this question, if your boluses went the way you wanted, if they went the way your sons do when he boluses for himself, would you change from low carb? Or would you just go, No, I like eating like this. I

"Gertie" 42:44
really like eating like this. I feel so much better. I have energy. When I'm not in a manic high, I sleep really good.

Scott Benner 42:54
It's valuable for you. It is, yeah,

"Gertie" 42:57
I do. I feel better. I have more energy. I still can't focus for the life of me, but I do, I feel better overall.

Scott Benner 43:04
That's excellent. I'm glad you passed on the work. So,

"Gertie" 43:06
like, who doesn't want to eat steak? Like, good steak.

Scott Benner 43:10
We did a low carb diet, I mean, years ago, to try to lose weight, a long time ago now, and it worked. Like, you know, I lost weight. I wasn't using insulin, so I don't know, you know, obviously, what impact it would have had on that. I found it unsustainable. After a while, kind of felt like I ran out of things to eat. Definitely. I mean, it definitely worked. And I think anything that people do that worked for them is fantastic. I just think that it's if I were to pluck you out of whatever year you were diagnosed and bring you forward to 2024 and say, Hey, you're diagnosed. Now you're a teenager. Here's a CGM and a pump that has an algorithm in it. I think you probably don't end up having the same experience.

"Gertie" 43:50
That's definitely true. When I was diagnosed, I didn't get a lot of education. No one even told me this was a lifelong condition. Oh, really. So I assumed that the files of insulin I got were like antibiotics. When you were done with them, you were better. No, no kidding. That's how my diagnosis went. Let me ask

Scott Benner 44:09
you another question before we started me, we made the decision to make you anonymous, because you said you didn't think people were gonna like you when this was over. But now we're 45 minutes into it, and I don't know what you were talking about. Well, because I

"Gertie" 44:21
have a I don't care that I have diabetes. I don't care that my kids have diabetes. It doesn't impact our life negatively, no matter what. Like a couple of years ago, I went grocery shopping with my partner's mom, and my son was 17 at the time, and we came home with fried chicken, and he, like, stumbled out, and I thought he had just woken up from a nap. Okay, no big deal. I don't hear his Dexcom screaming, so I watched him walk down the hallway, drop a piece of chicken and go into his room, and I'm like, Hmm, that's not right. Right? So I grabbed a glucagon and the meter that I keep on the bar in the kitchen and followed him, and he was having a seizure. So I'm like, prepping the glucagon, checking his finger. It just read low, stabbed him in the leg, made sure he didn't hurt himself. I read my book out loud, and he starts coming too, and he's like, What are you doing? And I'm like, you had a low, induced seizure. And he's like, I was sleeping. And I said, Well, what happened to your Dexcom? And so we get his phone because there were no alerts, yeah. And he goes, my phone is off. I'm like, do you think it's possible you turned it off while you were sleeping because it was beeping, and he goes, that's really rare, but I was pretty tired, and I'm like, okay,

Scott Benner 45:50
okay, but why would that make people not like you?

"Gertie" 45:52
Because I don't care that he had a seizure. I mean, there's nothing I can do to change it. It happened. We called this Endo, let her know we did a telehealth appointment. I'm not going to sit there and cry about it or be angry and nor is He. He's just going to go, Okay, what did I learn about this? So

Scott Benner 46:09
what I was going to say is this, I have a lot of experience talking to the public, and you can always find somebody who's going to find fault with anything that's true. You have to look at it as a whole and say, if there are, I don't know, 10,000 eyes on this statement, and three people are ranting and raving at me, then 9997 of them don't have problem with it, and that's true, yeah, and I don't, and so I don't, I don't make my decisions based on what one or two people say that's true, yeah, especially when it's so common. Just, it's just so human to have a knee jerk reaction to something, say the first thing that comes to mind, not really consider the implications of the entirety of perspective. And just say, like, like I said earlier, like, oh, that person has gray hair, so they must have type two diabetes. Like, well, if you sit down with that person, if I found that person, and I really sat and talked to them, and they were on my I heard podcast, and I was like, All right, today's topic is, I heard, if you have gray hair, you can't have type one diabetes. It has to be type two. And then I let them talk. And then an hour later, we get done, I'm sure they'd say, hey, you know you're right. I was just being bombastic or, like, you know, overly simplifying my thoughts. I obviously don't think that. And so I I wouldn't take and I also wasn't trying to prove her right or wrong. I just responded back, and I said to her, have you listened to the episode? I'd hate to think that this is like, devolved into us just, you know, making decisions based on an AI generated image, which is not of the person who's in the episode, or maybe AI is just so good now, like, I should be like, Wow, I can't believe nobody that she didn't notice that was not a real human being in that photo. I think if you could talk to her, she'd be okay. So, like, my point is, is that you have not said one thing that I think people find objectionable. Now, can we find somebody to be upset? Go ahead, ask your question. I'm only here.

"Gertie" 48:14
Why do people carry all of their diabetes supplies, like including the kitchen sink? Everybody carries so much stuff and don't understand it. What's a rapid acting pen? Close packs, and there's a glucose meter in my truck. That's it. Okay. Do

Scott Benner 48:29
you have glucagon with you?

"Gertie" 48:31
I think there's a G vo in the truck. There

Scott Benner 48:33
you go. Hypo pen they I'm assuming you're not supposed to store it at that temperature. And I probably signed something that says, I'm gonna say that out loud, but I

"Gertie" 48:42
think so too, okay, which is why I'm not 100% sure if it's in the truck.

Scott Benner 48:47
So you carry low snacks, a meter, a pen, glucose.

"Gertie" 48:52
I use the tandem pump. Well, normally,

Scott Benner 48:55
you see people carrying around, though, that you're questioning, but like people with

"Gertie" 48:59
they like carry extra cartridges and the infusion sites, and they carry the glucose meter, and they carry this that, and they all make these four kids carry these backpacks with all the like sling bags or fanny packs.

Scott Benner 49:13
You think little kids are walking around with extra sites.

"Gertie" 49:16
I've seen it posted before in some groups, so

Scott Benner 49:19
then, don't you think what you're actually seeing? Listen, I don't want to be reductive, because I think you should do whatever you think is right. But don't you think that sometimes just some type a people are so proud of how they've type a coordinated everything in the end of their type A experience is to take a beautiful photograph of it and share it with other people. Well, I

"Gertie" 49:40
guess, but I just feel bad for the kids that have to carry that around.

Scott Benner 49:45
Those people are listening right now and they're like, I feel bad for you because you were like, you know, you had your own implications in life, too. Yeah, yeah.

"Gertie" 49:53
I mean, I just, I don't know. I never made my son carry all that stuff.

Scott Benner 49:58
Listen I hear what you're saying. My. My kid rolls around most of the time with actually, at this point now she's using trio, the app, the do it yourself algorithm. So she's got her phone, which is, of course, it has the app on it for the the algorithm. It also has an app on it for Dexcom. And so there's a phone. She has glucagon with her. She has test strips a meter. She has the contour next gen meter with her test strips, juicebox, and that's it. Now, here's but here's the wrong it's all she needs. She will carry

"Gertie" 50:38
like Dexcom extra OmniPods. And it's like, you know, if you're still using the g6 you still have the two hour warm up, plus you have to stop what you're doing and go change it, and you still have to poke your finger in that two hour time period. Like we went to Magic Mountain and my son's OmniPod fell off. Okay, so I have a rapid acting pen in my little cell phone case. That is all I take.

Scott Benner 51:06
So you had a backup, though, those people wouldn't have,

"Gertie" 51:09
I have a backup. We always have a rapid acting pen with us, but if you feel the need to carry, you know, extra sites, yeah,

Scott Benner 51:16
no, this is specific to your situation. But what I was going to say is that, you know, if Arden leaves in a car, she can get back in a car, but if she leaves and she goes more than, like 30 minutes away or somewhere where we're gonna spend it like, if we were gonna drive the half an hour to my mother in law's house and swim for the day, we'd bring insulin and extra stuff with us.

"Gertie" 51:39
Cassie, I wouldn't. I would just have the glucose meter and the pen and pen needles,

Scott Benner 51:43
that's it. But the pen is, is extra insulin. Well,

"Gertie" 51:47
it is. Or I could carry syringes and just pull it from the pod or the tandem cartridge, yeah. But also, you could just carry, also, oh, you know what we do, keep a package of syringes in the truck too.

Scott Benner 51:57
I see you're arguing against yourself now,

"Gertie" 51:59
so I am arguing against myself. I just don't see the point of carrying extra Dexcom and pod sites, even if you're going to be gone all

Scott Benner 52:06
day. So Arden went to New York City recently.

"Gertie" 52:09
I would take extra supplies if I were leaving town, okay, for like, more than a day.

Scott Benner 52:13
So you're saying I wouldn't take an extra Dexcom with me if I was going to the grocery store. Well, I mean, I wouldn't either.

"Gertie" 52:22
I'm just saying, that's what you're saying, right? My grocery the grocery stores we use are, like, we do use fries here in town, but a lot of times we'll go elsewhere. So I live way outside of, like, the main city. I live in a little town, so most everything is over an hour away, but I don't take anything with me. So if you so you could be going to take a Dexcom. I went and spent the night with my cousin when she visited over an hour away. I didn't even bring an extra pump site. I think I had a full cartridge. So I just threw some syringes and a glucose meter in there and blow snacks. That was it. That's all I got. But use a pen. You have a pen with you. I did not have a pen because it was empty. Okay. So

Scott Benner 53:03
what if, at 247, in the morning, you would have woke up had no insulin delivery and no pen? Well, I had syringes with me to pull it out of the pump. Yep. So, I mean, I always, always have a backup. What's the difference between carrying syringes and going through the mishegoss, of pulling it out of the pump or just bringing a pump and an insulin with you? What's the difference?

"Gertie" 53:29
Because it's less to put in my purse and less to carry, not,

Scott Benner 53:33
I mean, I mean, Arden has an OmniPod, so it's this little square package. It's only about maybe three quarters of an inch thick, and maybe, I don't know, three inches square, and then Insulin is the size of my pinky, so I don't know, is there really that much difference? It's not like I'm bringing a brick and you're bringing a feather. You know what I mean? This feels like a thing. You're twisted up

"Gertie" 53:58
about doing stuff during the day. I don't want to stop what I'm doing to change my pump or my Dexcom I want to just get my insulin and go, here's

Scott Benner 54:07
the OP. Here's the alternative to that idea. If you're out trying to enjoy your day and you had an insulin pump or Dexcom fail, I'd want you to get it back on immediately so you could go back to enjoying your day. But

"Gertie" 54:20
I would enjoy my damn old day all the same with just using my pen and meter right? So now

Scott Benner 54:25
that we have both given birth to the idea that my idea and your idea makes each of us happy, why does it matter what you see other people do online?

"Gertie" 54:36
I don't know. It's none of my business, honestly, but it's something that like, we brought it up and that I know, but I, like, hyper fixate on it sometimes. Yeah, I mean, that sounds like none of my business, and I'm not judging them. I just, I want to understand.

Scott Benner 54:53
Let me stop. You're not judging them. I don't mean to judge that, okay, but you don't understand. But I've explained. It to you, and every time I've explained it to you, you've argued with

"Gertie" 55:02
me. I'm argumentative. I mean, I guess I understand, but it just

Scott Benner 55:06
is this how argue with Scott would go, this is fantastic. Oh, I like it. I really do enjoy this. Yes,

"Gertie" 55:12
I guess what I think is I just feel bad for those kids that have to carry all those extra supplies, like when you can just throw a meter, I

Scott Benner 55:21
hear what you're saying, and what I'm telling you is I could go find 100 people who would say, I feel sorry for all those kids that don't carry extra supplies and have to draw insulin out of their pump with a syringe all day because their mom just wouldn't bring a pump with

"Gertie" 55:33
them. My My kids don't care. They find they prefer just either having extra syringes in their pocket. Well, they usually use a pen,

Scott Benner 55:42
yeah, but you taught them that. That's why they prefer it

"Gertie" 55:46
well, and I've asked them if they want they carry extra supplies. My older type one has no desire to. He cannot wait for the OmniPod five app on his iPhone. He will be so excited, absolutely. Yeah, no, that will be just bought himself a new iPhone. So it's even more up. Is he using Dexcom g6 or g7 Yes, he's using the g6 Okay, he has seen my struggles with the g7 and it's like no ball weight, all right. So two

Scott Benner 56:10
things, Arden has g7 it's fantastic. There's no struggles with it. By ass, my issue is they don't stay on. Don't have a problem with that. Although I live in the desert. I sweat my point of saying this was I was going to give you some inside information. If what he cares about is the iPhone app or OmniPod five, stay on the g6 for now. He has no desire to switch. All right, let me just say I can't tell you why, but do that for now. Now keep in mind that we're recording in June of 2024 it could be completely different by the time this comes out, but you right now, don't, don't switch from the g6 Okay, okay.

"Gertie" 56:49
I used tandem, so I switched. But yeah,

Scott Benner 56:53
no, listen, are you not using the Dexcom overlay? Is that not working for you?

"Gertie" 56:57
No, I order them from Amazon with our HSA card. So I use right care or skin grip for them, okay, because they don't aggravate my skin nice and skin tack. I use a grip shield from Deck my diabetes. But you're only supposed to put them on your arms, and that does not work for

Scott Benner 57:17
me. So they're not falling off because you're putting overlays on them.

"Gertie" 57:20
I sweat them off. Yes,

Scott Benner 57:25
dear Lord, how much are you sweating? I'm a sweater. It's really gross. That's a great quote. If I did social media around my episodes, I would definitely have you going, I'm a sweater. It's really gross. And then it would be like, check out more with Gertie at episode. I just have time for that, so I don't do it. Yeah, so

"Gertie" 57:45
I don't use them on my arm. I use them on my thighs. My stomach is really inaccurate, so I don't use my stomach.

Oh No kidding. And then I've had two fail recently.

I would get sensor error, and then just fail. And I drink 128 plus ounces of water a day, if not more. We

Scott Benner 58:07
bailed on a g7 day eight and a half this week. I remember saying to Arden, something's funky with that sensor, like earlier in the day. And then we tested and it was reporting much higher than she was. And I was like, oh, and I don't think you should try to ride this one, like, because usually she doesn't have this problem. So I'm just like, just get rid of this one. And she was doing the like, I don't know, man, I don't feel like, change that whole thing was happening. And then I went upstairs and I heard dad, and I'm like, Yeah. And I look back downstairs, and she goes, my sensor just errored. And I was like, Ha, but that's the first g7 that's errored on her since she started and and hasn't made it 10 days. And she's literally been on it since, like, day one.

"Gertie" 58:53
My first four were awful. Okay, the first one wouldn't connect with my pump. So I called tandem. They had me walk through the process. It didn't work, so I pulled it, I put the next one on with my overlay, and I woke up the next morning and it was attached to one of my blankets, the next one I hit on my bedside table.

Scott Benner 59:19
But, but, I mean, that's not a

"Gertie" 59:21
Dexcom problem. No, no. And that was a total. That was a total. Me, I'm a klutz, but it didn't lift or raise or come loose that you could tell. So I was like, Okay, fine. And then, like, an hour later, sensor failed. I'm like, What? What is this? How it's perfectly fine.

Scott Benner 59:39
See, the way I see it is that thing had some sort of a problem, and it did what it was supposed to do and shut off so it wouldn't give you inaccurate ratings,

"Gertie" 59:47
see, and that's nice, but I guess Dexcom has this new thing where you only get three a year when they fail. Yeah,

Scott Benner 59:54
I bet you, if you complain a little bit, that doesn't really happen.

"Gertie" 59:57
Yeah, I I've only heard it. I. Never experienced it, because I just had the call to in for failed. My

Scott Benner 1:00:04
expectation would be, is that there are some people who are foolish and trying to rip off Dexcom, and they're probably trying to, like, find a balance between that.

"Gertie" 1:00:14
And that's totally understandable. I would get it. I would totally understand it.

Scott Benner 1:00:19
Have you heard this saying one bad apple ruins the whole bunch? Yes, yes, right, right. That's, this is what happens when people are, you know, blah, blah, blah.

"Gertie" 1:00:28
I maybe had to call in one g6 a year.

Scott Benner 1:00:31
Okay, yeah. I mean, I'm being 100% honest. Like, Arden does not have problem with g7 she didn't have problem with g6 like, she's one of those people. Like, tell me her secret. She sticks it on and pushes the button. Nothing else. She pays no attention to it. But I do. She uses the overlay that comes with the g7 that's it. I've never, like, you just talked about, like, all these different companies for like, I've never bought an overlay patch in my

"Gertie" 1:00:54
life, really, if I don't, they just fall off into these. You're

Scott Benner 1:00:57
disgustingly sweating. I'm

"Gertie" 1:00:59
a sweater. I'm a disgusting sweater. Yeah, exactly. My son can wear his g6 and no overlay, no skin tack, no nothing. And they will ask,

Scott Benner 1:01:07
yeah, he's not a horribly disgusting person like you are. He is not

"Gertie" 1:01:11
and, well, he showers like twice a day, though I would think that, you know, twice a day for 10 days. The 14 year old. No, my, my 19 year old. The 19 year old, okay, he's gonna say the 14 that kid is obsessed with personal hygiene. Nice. He has a whole freaking skincare routine. Oh,

Scott Benner 1:01:28
a lot of young people do that. My daughter's always up my ass. She's like, you're not taking care of your skin. That's why you have wrinkles. I was like, what am I trying to look good for? Exactly,

"Gertie" 1:01:37
right? Well, I've had cystic acne my entire life. So it's, like, excruciatingly painful. So like, my son gave me some pointers, and I haven't had a cystic pimple since, like, September. Oh, he knows what he's doing, yeah. And it can be overwhelming and frustrating because ADHD and anxiety, yeah, but I do it because the state acne is so painful. Sucks.

Scott Benner 1:02:07
Yeah, I'm sorry. I've Arden's had a ton of luck getting rid of her acne since she's been on a GLP medication. My insurance won't cover it. Yeah, it sucks. For the next couple years there's going to be dodgy insurance that won't cover stuff. Yeah, more studies will come. They'll, you know, probably get better coverage as time passes. I don't know this

"Gertie" 1:02:27
skincare routine works for me. He helped me tweak it for my skin needs. And yeah, no more acne. She

Scott Benner 1:02:32
tried so hard with all that for so long, and just nothing ever really, you know, bore fruit for her. Girl. Acne is so horrible, she definitely didn't like it. I have a question. It's a weird question to ask an hour into it as we're getting ready to stop. But why did you come on the podcast? You wanted something new? Well, this was new. You did it. Yeah, good for you. Looking back on it now and we're not going to change. So don't feel weird. But did you need to be anonymous? Maybe not. Okay, that's all.

"Gertie" 1:03:02
But I'm also a very private person, so I think I preferred anonymous regardless.

Speaker 3 1:03:07
Yeah, no, it's fine. It's absolutely fine. I have no trouble with it all. I was just asking the question. Okay, so here's where I ask you, is there anything we haven't talked about that we should have? Why do people panic in general? Well, like, if you have the lows. I don't understand the panic. Have you ever had a seizure? I

"Gertie" 1:03:26
have not, but my son has had, my older one has had three, right,

Scott Benner 1:03:31
panicky. Do you want it?

"Gertie" 1:03:33
Well, it bothered me, but I mean, panicking wasn't going to help the situation. In fact, it could have made it worse. So I just

Scott Benner 1:03:40
handled it, I would say, why would someone panic in a scary situation when staying calm is more valuable? Exactly? Would be like saying, why don't you not have bipolar disorder? They're not panicking on purpose, is my point. Well,

"Gertie" 1:03:57
like I said, I think that my trauma from my childhood is why I just don't react with panic. I don't panic over anything. Even when I tried to cut my finger off a couple of weeks ago, it was just like, Oh, look at that part. Really hurt.

Scott Benner 1:04:08
Two things, first of all, we'll get back to that. But the first thing is, yeah, that's a good point. Is that when your mom is mentally ill and addicted and your dad's addicted, and this is happening, and that's happening, a seizure probably doesn't even register in the top 10 worst things you've ever seen in your life. No, it doesn't right, but that's why they're panicking and you're not. They're living a fairly normal life where a seizure is a horrible thing, and you're living a life where a seizure is number 38 on the things that might happen to me today list.

"Gertie" 1:04:38
Okay, that makes sense. Okay. And

Scott Benner 1:04:40
what about your finger?

"Gertie" 1:04:44
My pork sausage was still partially frozen, so I was using a knife to, like, cut it up into smaller pieces and tried to cut my finger off. Oh,

Scott Benner 1:04:55
my God, when my wife uses a knife, we're all like, please be careful. Oh. Oh yeah.

"Gertie" 1:05:01
I think I have a little trauma from that, because I really don't use my knives right now.

Scott Benner 1:05:05
Did the sharp part hit your finger?

"Gertie" 1:05:07
Oh yeah, I got it all the way to bone. Oh, my

Scott Benner 1:05:10
God. Don't say stuff like that. Uh, that gave me the heebie jeebies. Jesus. Could

"Gertie" 1:05:16
I tell you there was blood all over my kitchen?

Scott Benner 1:05:18
Can I ask a serious question, What did you eat the sausage? Still,

"Gertie" 1:05:23
I did not.

Scott Benner 1:05:24
I don't eat spaghetti. Wait, wait, you were cutting it up. Oh, it was for someone else.

"Gertie" 1:05:29
I make spaghetti for my bonus son because it's like one of his favorite meals, and he had a friend over and requested spaghetti, so I was making spaghetti.

Scott Benner 1:05:37
Wait, had bonus son. Sounds like a kid who walked in off the street and you didn't make him leave. It

"Gertie" 1:05:41
is my partner's son. Gotcha. He lives,

Scott Benner 1:05:46
no, he lives with us. He does live you. Okay, yeah. Wait, I thought he had the stapler, but he didn't live with you.

"Gertie" 1:05:52
My partner does not live with me. My partner's son lives with

Scott Benner 1:05:56
us. You have a boyfriend whose kid lives two hours away. His kid lives with you, but you don't live with him. Yeah, who's paying for the kid? Grandma, his grandma, or your mom?

"Gertie" 1:06:11
I live with my boyfriend's mom, okay, my boyfriend's son, one of my sons, and myself.

Scott Benner 1:06:18
All right, listen, I don't care, and this is none of my business. But why doesn't he live with you?

"Gertie" 1:06:22
I live with you? Because we moved in here when covid hit, and his mom thought it would be best if he stayed with his grandfather during covid so that he could run the errands and stuff and prevent risk of his grandfather getting covid.

Scott Benner 1:06:36
So he's currently like, helping his grandfather,

"Gertie" 1:06:40
yeah, and as grandpa's gotten older, it's just been better for him to stay there and help with Grandpa, but

Scott Benner 1:06:46
he's six hours away. Yep. How often do you see him? Once or twice a year? Wait once or twice a year. You're not dating him. That's that's different. He's abandoned his child with you. That's all that's happened here. Well, his son

"Gertie" 1:07:00
was with his mom, but he came to visit for Christmas, and was like, I miss you guys. I'm moving back in. And I'm like, okay,

Unknown Speaker 1:07:07
he's like,

"Gertie" 1:07:08
I want to get my GED. And I'm like, Okay, let's do that.

Scott Benner 1:07:10
All right, listen, since you're anonymous, I'm gonna I'm gonna measure this entire situation with this next question. When you see him once or twice a year you have sex. Nope, you are not dating him. I just want you to know that. Okay, I

"Gertie" 1:07:23
want you to know that I agree with you. I just

Scott Benner 1:07:26
don't think he's figured it out yet. So, okay, what are we gonna call this episode? I don't know me either. Just call it. I don't know. I might call it frozen sausage. Oh, that's a good one.

Thank you. I appreciate that.

Unknown Speaker 1:07:45
I like that.

Scott Benner 1:07:46
I'm so worried I might bleep out my podcast ideas. Some of them are so fcking good.

Unknown Speaker 1:07:52
I love them. I was

"Gertie" 1:07:53
like, someone's gonna definitely take the first one of arguing with Scott. Oh,

Scott Benner 1:07:58
please. There's a cold wind episode coming out tomorrow where a doctor from Israel just argues with me for an hour and a half. So trust me, it's not the first one, but I had a great time arguing with her too. I love being arguing with people about anything. Doesn't even matter. I just love arguing. Yeah,

"Gertie" 1:08:14
I don't like arguing unless it's like today, that is acceptable arguing, because people, you know, we're not like throwing names at each other, we're having a conversation. So I wouldn't necessarily call it arguing.

Scott Benner 1:08:29
I have to tell you, I've decided that I'm going to start series within the podcast called, I heard I don't understand and arguing with Scott. I don't think rewriting history works inside of the juicebox Podcast. I'm just gonna make them I heard us. Yeah, I heard is good. This is a great idea. I have six months until your episode comes out, so I have six months to make this happen so somebody can't rip me off, and I don't, I'm not worried you'll tell somebody, because I think if you tell somebody, they'll just think you're making it up. So I'll be safe there. Well, the only

"Gertie" 1:08:59
person I would tell is my ex husband, and he would think that it's awesome, and he's like me. We're very private people.

Scott Benner 1:09:06
I gotta tell you something already, your shit is up, but I like you a lot. You didn't say one thing today that Carol Brady would have been like. That makes sense to me. Not one. I

"Gertie" 1:09:21
have never made sense to anyone. My I'm broken. Can

Scott Benner 1:09:25
I ask an inappropriate question before we go? Sure? Are you someone else right now or just not? Oh, so there's just no sex.

"Gertie" 1:09:32
No. I have no desire to be with anyone. Okay,

Scott Benner 1:09:37
so it's not necessarily the I can't believe we're calling them your partner when it really sounds like I see my mailman more than this, but like I do see my mailman. I actually shook my mailman's hand the other day. So I think he and I are dating. If you and this guy are dating, I don't know what any of that means. I don't have time if we started talking about this, I swear we'd be talking for three hours ago. I have to stop myself, but, but my point. Is, is that the sex thing's not about the guy. It's in general. It's

"Gertie" 1:10:03
just in general, I have no desire. Do

Scott Benner 1:10:06
you think he's with someone else? I don't, honestly

"Gertie" 1:10:09
think so. It's not in him, and, no, it's

Scott Benner 1:10:12
definitely not in you. God damn it. What a way to end this. All right, we're done. Don't worry about it, hold on a second.

Prolonged hyperglycemia can lead to serious health problems and long term complications. Learn more at Medtronic diabetes.com/hyper this episode of the podcast was sponsored by Medtronic diabetes. US med sponsored this episode of The juicebox podcast. Check them out at usmed.com/juicebox, or by calling 888-721-1514, get your free benefits. Check and get started today with us. Med, a huge thank you to one of today's sponsors, gvogue glucagon. Find out more about G vo hypopen at gvoke glucagon.com. Forward slash juice box. You spell that, G, V, O, k, e, g, l, U, C, A, G, o, n.com, forward slash juicebox. If you're living with type one diabetes, the after dark collection from the juicebox podcast is the only place to hear the stories that no one else talks about, from drugs to depression, self harm, trauma, addiction and so much more. Go to juicebox podcast.com, up in the menu and click on after dark there, you'll see a full list of all of the after dark episodes if you're ready to level up your diabetes care. The Diabetes Pro Tip series from the juicebox podcast focuses on simple strategies for living well with type one. The Pro Tip episodes contain easy to understand concepts that will increase your knowledge of how insulin works. And so much more, my daughter has had an A, 1c, between five, two and six, four, since 2014 with zero diet restrictions, and some of those years include her in college. This information works for children, adults and for the newly diagnosed and for those who have been struggling for years, go to juicebox podcast.com and click on diabetes pro tip in the menu, or head over to Episode 1000 of the juicebox podcast to get started today with the episode newly diagnosed, we're starting over and then continue right on to Episode 1025 that's the entire Pro Tip series, episode 1000 to 1025 Hey, thanks for listening all the way to the end. I really appreciate your loyalty and listenership. Thank you so much for listening. I'll be back very soon with another episode of The juicebox podcast. I was looking for a way that we could all get nice and tanned and meet each other and spend some time talking about diabetes. How are we going to do that on a juice cruise. Juice cruise 2025 departs Galveston, Texas on Monday, June 23 2025 it's a five night trip through the Western Caribbean, visiting, of course, Galveston, Costa, Maya and cozmel. I'm going to be there. Erica is going to be there, and we're working on some other special guests now. Why do we need to be there? Because during the days at sea, we're going to be holding conferences, you can get involved in these talks around type one diabetes, and they're going to be Q and A's plenty of time for everyone to get to talk, ask their questions and get their questions answered. So if you're looking for a nice adult or family vacation, you want to meet your favorite podcast host, but you can't figure out where Jason Bateman lives, so you'll settle for me. If you want to talk about diabetes or you know what, maybe you want to meet some people living with type one, or just get a tan with a bunch of cool people. You can do that on juice cruise 2025, space is limited. Head now to juicebox podcast.com and click on that banner, you can find out all about the different cabins that are available to you. And register today. Links the show notes. Links at juicebox podcast.com I hope to see you on board. Hey, what's up everybody? If you've noticed that the podcast sounds better. And you're thinking like, how does that happen? What you're hearing is Rob at wrong way, recording doing his magic to these files. So if you want him to do his magic to you, wrong way. Recording.com, you got a podcast. You want somebody to edit it. You want rob you.

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#1352 Poopy Pills

Emma has type 1, uses Ozempic and has anxiety about eating in front of people.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The juicebox podcast.

Emma is a returning guest. She was originally on Episode 1090 called diabetes breakdown. Today, we'll talk about her type one diabetes, her use of ozempic, how she lost weight, her social skills, anxiety and how she feels eating around other people. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan to save 40% off of your entire order@cozyearth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40 percent@cozyearth.com Are you an adult living with type one or the caregiver of someone who is and a US resident, if you are, I'd love it if you would go to T 1d exchange.org/juice, box and take the survey. When you complete that survey, your answers are used to move type one diabetes research of all kinds. So if you'd like to help with type one research, but don't have time to go to a doctor or an investigation, and you want to do something right there from your sofa. This is the way t 1d exchange.org/juicebox, it should not take you more than about 10 minutes. Did you know if just one person in your family has type one diabetes, you're up to 15 times more likely to get it too. So screen it like you mean it. One blood test can spot type one diabetes early. Tap now talk to a doctor or visit screened for type one.com for more info. The show you're about to listen to is sponsored by the Eversense 365 the Eversense 365 has exceptional accuracy over one year, and is the most accurate CGM in the low range that you can get ever since cgm.com/juice box. Having an easy to use, an accurate blood glucose meter is just one click away. Contournext.com/juicebox That's right. Today's episode is sponsored by the contour next gen blood glucose meter.

Emma 2:22
Hi, I'm Emma. I have type one diabetes. I'm 23 years old, and I'm back

Scott Benner 2:30
because where were you the first time you were in Episode 1090 it was called, what was it called?

Emma 2:36
It was called diabetes breakdown, right?

Scott Benner 2:38
Do you remember why I called it that? Because I don't,

Emma 2:41
because I cry all the time, and we kind of broke down diabetes too. So it was had a little double meaning.

Scott Benner 2:50
There was this one of those episodes where at the end I was like, try something and let me know how it goes.

Emma 2:55
I think so. I think you were, you were just like, stay, if you stay on ozempic, then come back and chat about it. Yeah,

Scott Benner 3:02
and you did, yes. Okay, so let's just do a high level overview. Diagnosed. How long ago?

Emma 3:08
2230, my gosh. Three years. Three years.

Scott Benner 3:13
Okay, and then at what point did your doctor add GLP to you?

Emma 3:18
It was about a year ago. Okay,

Scott Benner 3:20
so you've been on ozempic for a year. Is your insurance covering it?

Emma 3:26
Yes, it is. I'm lucky that way, nice.

Scott Benner 3:29
Do you know the diagnosis code they use to get it covered? No, I don't. Okay. Like, did they say you have insulin resistance or type two and type one? Do you know

Emma 3:39
I think it was insulin resistance. Okay, yeah, wow, good insurance.

Scott Benner 3:45
Let's just go right to that part. So your prior to the GLP, what are your a one C's, like, about how much is your total daily insulin, that kind

Emma 3:55
of thing. So my a 1c were fine. It was like, I think I was even in the fives at that point, but I was like, having trouble with management, because my pumps weren't lasting as long as they should be, because I was using so much insulin, either they would run out, I would use, like, the full 200 units like the max amount, but they would still run out before even the three days. Or I would be doing such huge boluses, 10 units or above, because of my insulin to carb ratio so high, I

Scott Benner 4:35
guess, flooding your sites and they weren't absorbing well and all that stuff. Yeah, right, right.

Emma 4:40
So my pumps were, like, leaking and stuff, and I wasn't getting as much insulin as I needed. So I was, like, having all these ties. And it like it wasn't affecting my ANC, but I was just it was affecting my mental health, because I was, like, stressing about it all the time. And just like, it was just not also

Scott Benner 4:56
using a ton of insulin, like, like using over. Or so you have OmniPod, right? Yeah, I just know because you said over 200 units so, like, so, so you're using over 200 units of insulin every three days. Yeah, wow. Were you gaining weight? No, no, okay. Was your weight prior to GLP where you wanted it to be? No, is there an amount of weight, you would tell me that you were over where you wanted to be. Well, at

Emma 5:24
one point I was, like, 150 pounds when I was, like, a freshman in college, and I also just, like, wasn't eating because I didn't like eating around people, so I lost a ton of weight, and I was not eating in a healthy way, but I was really happy with how I look. But then I got with my boyfriend, now, fiance, and we love to eat together, and so that part stopped. So I started eating really well, but then I gained some weight, so, and at that point we had been together for like, three years,

Scott Benner 5:59
Emma let me, let me pick through for a second. Yeah, if I asked you this the last time, tell me, but didn't like to eat in front of people. What does that

Emma 6:10
mean? I just like, I don't know. It's a weird part of my brain. I just have anxiety when I'm eating around, like, new people, not like people that I know are, like, my good friends, but like, if I don't know someone, I am like, thinking about what, like, what I'm eating, and if they're like, judging me for what I'm eating and like, how I'm eating it, and like, how much of it I'm eating. It's a really, really unhealthy way of thinking. But I just can't stop so when I went to college, I didn't know anyone, and we would like go to the dining hall, because that's what you do when you're a freshman. And I was, like, finding myself eating around all these new people, and, like, I just it was really hard for me. I eventually got over it. Obviously.

Scott Benner 6:56
Have you ever talked to a therapist about it? No. Do you think you should, or is it okay when I

Emma 7:02
go to therapy? It's probably something that I will talk about, but I just haven't, like pushed myself to go to therapy yet, which I know is bad, and like, everyone should go to therapy, but I just, I don't know, listen,

Scott Benner 7:16
it's not bad, and everybody doesn't have to go to therapy. I was just wondering if you had that's all because it seems kind of like a significant thing.

Emma 7:23
Yeah, well, it's not anymore, just because I'm not really surrounded by new people. The thing about now is that I as a as a teacher, I like, don't go to the lunchroom to eat with all of my colleagues that often. I usually just eat in my room, which is, like, fine, and I like, know, all my colleagues, and I like them, and I'm like, still forming friendships with them in other ways. But like, I just don't find community around food in that way. I don't know you have any insight into this at all. No,

Scott Benner 7:58
no, your mom always been. Did your mom talk about your weight or something like that, or

Emma 8:03
no, like, my family's never really been like that. I don't know it's it was probably just me being on the internet as at a young age and being impacted by that. But like, when I was in high school and I would do, like, summer camps, like overnight, like two weeks, wherever I would it was the same thing. That's kind of where it started, I think, summer game. But yeah,

Scott Benner 8:26
this episode of The juicebox podcast is sponsored by the ever since 365 get 365 days of comfortable wear without having to change a sensor. When you think of a continuous glucose monitor, you think of a CGM that lasts 10 or 14 days, but the Eversense 365 it lives up to its name, lasting 365 days that's one year without having to change your CGM with the Eversense 365 you can count on Comfort and consistency. 365 days a year, because the ever since silicone based adhesive is designed for your skin to be gentle and to allow you to take the transmitter on and off, to enjoy your shower, a trip to the pool or an activity where you don't want your CGM on your body, if you're looking for comfort, accuracy, and a one year where you are looking for ever since 365 go to Eversense cgm.com/juicebox, to learn more. Far too often, we accept the blood glucose meter that someone hands to us. The doctor reaches into a drawer and goes, Here, take this one. That is that, is that the one you want, is it accurate? You have no way of knowing. But if you want accuracy, and you want to be confident in the blood glucose readings that you're getting from your meter, you want the contour next gen. It's incredibly easy to get the same meter that Arden uses. Just go to contour next.com/ Flash juicebox. That's all you have to do. The contour next gen is easy to use and highly accurate. It features a smart light that provides a simple understanding of your blood glucose levels, and, of course, Second Chance sampling technology that can help you to save money with fewer wasted strips. Contour next.com/juicebox your kids mean everything to you, and you do anything for them, especially if they're at risk. So when it comes to type one diabetes screen, it like you mean it, because if even just one person in your family has type one your child is up to 15 times more likely to get it. But just one blood test can help you spot it early. So don't wait. Talk to your doctor about screening tap now or visit screen for type one.com to get more info and screen it like you mean it, oh, I don't know. All right, it's okay. We'll get past it. Did you get well, wait now I'm gonna ask one more question. Do you consider it an eating disorder of some kind?

Emma 10:59
You could,

Scott Benner 11:01
I guess I was talking to you. Hold on, let's, let's find out if it's actually

Emma 11:08
I call it like eating anxiety is what I call it,

Scott Benner 11:11
not being able to eat in front of other people considered an eating disorder. Lisk, chat. GPT,

Speaker 1 11:17
yes. Okay, not being able to eat in front of other people can be considered a sign of an eating disorder or related anxiety issue. This condition might be linked to social anxiety, where the person feels self conscious or anxious about being observed while eating. It's important to consult a healthcare professional. It's

Scott Benner 11:37
gonna tell you the stuff you're supposed to Yeah. Do you have social anxiety?

Emma 11:41
Yeah, okay. But doesn't everyone have a little bit of social anxiety?

Scott Benner 11:45
None, zero. Wow, absolutely not. What's

Emma 11:47
that like?

Scott Benner 11:48
It's fcking awesome. You couldn't say something to me that I couldn't just do in front of people.

Emma 11:58
That's amazing. I

Scott Benner 11:59
don't even care. I I swear to you, like I have, like, opportunities to speak sometimes in front of, like, four or 500 people at a time, like in person, and I'll be standing outside chatting with people, and someone will come up to me and go, Hey, your thing's about to start. And I'll go, Oh, okay. And someone will say, what are you speaking about? And I'll go, I don't know, and I just walk in, wow. And just go and then it's over. And people like, oh my god, that's so great in the situation I'm I'm describing. Now, I had, like, a flimsy understanding of what I was there to do, but I never, like, you get up there and like, Hey everybody, I'm gonna talk now and just start talking. And there's no like, I don't feel anxious about it one little bit. My My heartbeat is low. My pulse is low. Like, I'm like, it's, it feels very good to me to be doing that. That's kind of like a superpower. Well, would be if I could fly too, if I could fly while I was doing it, then I would completely agree with you. Like, I know we're supposed to say we feel lucky if anything happens to us. I like, how at this point now, I have to say I feel lucky to have a house, I feel lucky if I have food. I'm lucky if I have insurance. I feel lucky that I don't have diabetes. I feel lucky that my kid has insulin. I feel lucky that I don't have anxiety. There's a lot of ass covering going on in society right now. Emma, so I'll get on the train. I feel lucky that I don't have a problem with that, but it's just the thing that I'm good at. There's plenty of things I'm not good at that. You know, nobody says they feel lucky if they can do anyway. All right, so you have social anxiety to some degree. This is how it pops up. Blah, blah, blah, get the diabetes pumping using a lot of insulin. Doctor says, Hey, why don't you try ozempic? And you go, all right, whatever was that, what you said, like, cool, let's do it. Or what do you what were your thoughts

Emma 13:45
at that point, it was already, like, kind of, there was already some stigma attached to it, like in the media, with, like, all of these celebrities taking it for weight loss and blah, blah, blah, blah, blah. And I was, like, I, like, had a ton of questions about, like, side effects and, like, how else it would affect me? My doctor was basically like, well, there could be side effects, like nausea and all this stuff, but you don't know how it will affect you until you take it. And it's something that we can try, and then if you don't like it, or whatever, we can just, you know, something else, yeah. I was like, Okay, I guess I'll do it, yeah? And so I started taking it. And I think when we filmed, I'd been taking it for like, one week, yeah, basically, you

Scott Benner 14:31
had just started. So, so let's walk through it. Like, what was it like in the beginning? What did you notice? Are you still taking it now? Let's hear all about

Emma 14:38
it. At the beginning, I feel like there was kind of a drastic change, like it really affected my appetite, and it really affected how much insulin I was using. I used a lot less, and at the beginning I like, wouldn't have to pre wolf at all, basically because. Because it was making the insulin work faster too. Like, I wouldn't have to wait 20 minutes. I could, like, bolus right before I ate, basically, and that kind of happened every time my dose would go up. So, but then, I don't know, it would kind of like, those effects would, like, not be as much, and then it would kind of plateau, hold

Scott Benner 15:22
your thought, OmniPod dash, or OmniPod five. OmniPod five. Okay. And basically, I feel like there are two things happening. First of all, you take the medication, and it helps with insulin sensitivity. Helps with insulin sensitivity a bunch of different ways. One of those ways is by slowing your digestion down. So is your insulin working faster, or are you digesting more slowly? So the insulin is having more time to work before the impact of the food is coming. Which do you think you were seeing?

Emma 15:50
Probably the digestion, okay. Okay.

Scott Benner 15:54
And then as you upped your dose, you noticed it for a while, but then it wasn't as as much at that point.

Emma 16:01
Yeah, so. And then I think, oh, sorry, go ahead, yeah.

Scott Benner 16:04
Just let me jump in for a second. My This is a guess. This is an absolute guess, right? But you're using one dose for a while. You get to kind of a a point where the pump is seeing your total daily insulin being aggressive. Based on that, suddenly you take a new dose, which changes probably your slows your digestion down more. You get the other impacts of glps, and on top of that, so better insulin sensitivity, but also you probably can't eat as much. Is that right? When you go up a dose, yeah, and then the algorithm and the OmniPod five is still bolusing at you like you're on your old settings with a lower dose, and then eventually, I would imagine that the pump then figures out your total daily insulin for your new reality, and then it levels out again. That's my expectation for what happened.

Emma 16:53
Yeah, you're probably right. It's possible. I never, I never thought it through like that, but you're probably, probably right. Well, you're busy

Scott Benner 17:00
dodging people when you have a pretzel on your hand, so you don't have time to think about these things.

Emma 17:04
Oh my gosh. The thing about ozempic, about taking this weekly injection, is that I love that it's made me lose or, sorry, use less insulin, and that now my UMP works better and everything. But it's also another variable to think about in my brain when I'm bolusing and stuff, because there's, like, it's not as effective, like, there's different effectiveness, like, throughout the week. Does that make sense? Like, it kind of peaks in the middle of the week, yeah, and then it, you know, so I have to also think about that when I'm bolusing, whether to like, kind of lowball the carbs, because I know that the OmniPod is like, working really well right now, because it's in the middle of the week, yada yada. So, like, most of my lows happen in the middle of the week, yeah, because it's just working well. The

Scott Benner 17:56
half life of the medication is very short, so you inject it on a Saturday, and now you're all juiced up Saturday, Sunday, Monday, Tuesday, then Wednesday. It starts to wane, right? And then Thursday, Friday. So even if you're you'll notice, like, I can, like, I can eat more on Thursday or Friday than I can on Monday or Tuesday, and yeah, and so and so. The way you're adjusting around them is by basically, like, being more or less aggressive with your carb counts, depending on where in the week you are. Yeah, that's smart. Yeah, that's really smart. Okay, so how much, like you said before, you were using 200 units every three days. How many units do you think you're using every three days? Now,

Emma 18:42
did I see on my pump? I think it's like 50 a day, 50 units a day. So

Scott Benner 18:49
you you cut 50 units out over three days? So like 15, six, like 16 units a day, it went down.

Emma 19:00
Yeah, wow, that's great. And did you lose weight? Not really. Did you honestly? But I haven't, but I haven't been, like exercising or like actively trying, which now I am doing because I get I'm getting married in a year, so now I'm actively trying, trying to lose weight. So

Scott Benner 19:18
tell me how much weight you hope to lose 2530, pounds. Okay? And how much have you lost so far on ozempic, like,

Emma 19:27
maybe, like five, okay?

Scott Benner 19:29
And you've been using, really,

Emma 19:30
not that much,

Scott Benner 19:30
how long for a year a year. So what's your dose at now?

Emma 19:35
My sorry say that again, ozempic,

Scott Benner 19:38
dose, how much?

Emma 19:39
Oh, it's, I think I'm at four units. They're milligrams, yeah, sorry,

Scott Benner 19:46
yeah. So does she have you dialed a two milligrams inject and then do it again. Is that how that pen works? Or can you go all the way

Emma 19:56
to four? I think it's, I think it's a four. I might be wrong. Let me do. Because

Scott Benner 20:00
it's possible you're just not using enough, and that's why you're not losing weight.

Emma 20:04
It's the yellow box,

Scott Benner 20:05
Emma, the last time we spoke, did I turn into your dad at some point and feel like I had to take care

Emma 20:10
of you? You did. Dad's name is Scott. Starting to happen. It's two milligrams. It's two milligrams. I'm I'm silly. It's two, not

Scott Benner 20:19
four. That's okay, which is the most so, so you're shooting two milligrams of ozempic a day. Yeah,

Emma 20:25
no, a week a week. Excuse

Scott Benner 20:26
me, that was my fault and then, but so I think you're running into something that a lot of people with ozempic run into, which is that's the highest dose. And it's possible they could use more after a while, but it's interesting that so you haven't lost, I mean, lost five pounds in a year, which is great, but it's not a lot compared to what you're seeing with some people. So let's talk about it. Ozempic. Does it curb your appetite? Does it make you feel full in your head? Does it make your stomach feel full? Like what's all the impacts you're getting from it along eating?

Emma 21:00
I think it does. It has affected my appetite. It definitely did more in the beginning when I first started taking it. But that could also just be like, my brain getting used to it. Like, do I really remember what my appetite was like a year ago? I don't know, but I do think I'm eating less food, like I'm physically not able to eat more the

Scott Benner 21:22
mass of food is less, like, the actual like, like, physical amount of it. Have you changed the things that you're eating? Are there things that you can't eat anymore, or not attracted to anymore? That kind of thing?

Emma 21:33
I really don't like meat as much I didn't like ever love meat, but I sometimes I like, physically can't eat it. Like, it's just off putting to me, like the taste and the smell, like when meat is being cooked, I like, have to leave the room because it makes me feel nauseous. Sometimes.

Scott Benner 21:51
Are always census epic. Yeah, that's interesting. How are you getting your protein? I just

Emma 21:59
eat beet. My fiance. Just seasons it really well. He makes it he makes it yummy. But I, yeah, it's hard. I don't know chicken. I found that going vegetarian, chicken, mostly chicken. Yeah, chicken. Okay,

Scott Benner 22:12
so you're getting some protein every week, yeah? Okay, but you don't like, because Arden doesn't like the overall smell or taste of meat, either. But it was before, it was before her GLP as well.

Emma 22:24
Is she? Is

Scott Benner 22:25
she on it now too? Yeah, she's using Manjaro.

Emma 22:30
Okay, so my I just had a meeting with my Endo. I was talking to her about how I want to lose more weight and whatever, whatever, and she's moving me to Manjaro. Oh, cool. I don't know how different they are. She said that they that Manjaro is more like aggressive, or it like works better.

Scott Benner 22:47
So there's a GLP and a gip in Manjaro. It could help you more with weight loss. It might be easier on some of your gastrointestinal issues. If you're having any, are you having any? Do you want to talk about your poop while we're here? We

Emma 23:01
can go ahead. The truth is, I don't have any, like, I'm pretty regular,

Scott Benner 23:08
to be honest, nice. It comes out the way you like, it's not squishy or nasty or anything like that. No, yeah, it's

Emma 23:13
kind of perfect, I don't know. No complaints. Yeah, perfect.

Scott Benner 23:17
Like, you know, the the different, like, the different kinds of poop.

Unknown Speaker 23:23
Um,

Scott Benner 23:24
you don't know, Emma, this is what we're gonna do. Hold on a second. Hold tight. Okay. I had to do this with the guys helping me with my gut health stuff. And now you're gonna have to do it with me. Let me find the chart of poop. Googling poop chart gets me there, going for that. Hold on a second poop chart takes your right to it. I'll be god damn How about that? All right, ready? You can buy this on uh, Etsy, and hang in your bathroom if you want. Oh, great. All right. So there are seven types of poop, okay? Type one separate hard lumps, like nuts. Severe constipation is that you No, okay. Type Two, sausage shaped, but lumpy. Mild constipation, no, good. Type three, sausage shaped, but with cracks on the surface. I feel like that's me, okay. Type four, sausage or snake, like, smooth and soft.

Emma 24:26
Sometimes that's me. Keep going. I'm

Scott Benner 24:29
gonna keep going, then we're gonna go back. Okay. Type five, soft blobs with clear cut edges, lacking fiber, no. Okay. Type six, mushy consistency with ragged edges, fluffy pieces, nope. Type seven, completely liquid, watery, no. Solid pieces, nope. Congratulations. You have chosen the two of seven stool types that are considered normal. Congratulations. You are a type one diabetic and a type three and a type. Worship. Yeah, look at you. That's very good. It's super exciting. Don't you think

Emma 25:05
I know? Though it is. This is, like, my birthday. This is the best, yeah,

Scott Benner 25:09
you can just Google poop chart if you want, and then go to images, and they're just everywhere. There's also colors of poop we could go over. But I don't think it's necessary. Who got put in charge, by the way, this is the Bristol stool form scale for children, your or for adults, the poop chart who had to animate like, what poor person job was it to draw poop? Do you think? Yeah,

Emma 25:33
I don't know. I hope they got paid well. They

Scott Benner 25:37
didn't trust me. They absolutely didn't. They went home and they said to their fiance, can you believe that I had to draw poop today?

Emma 25:49
I wonder how many pictures they had to look at, like reference photos. That's

Scott Benner 25:53
the other thing. There were reference photos that they had to look at to draw it. And then they probably don't even have health care at their job. Terrible. Oh, all right, Emma, listen now, we know you're pooping, good, that's great, but they're moving. The doctor's moving you because of insulin resistance to the Manjaro or because they think you're going to lose more weight. What is the reason you're being moved?

Emma 26:16
I think it's because they think I want to lose more weight. Okay, I told her I was like, I have a wedding to be in, and I need to be skinnier Morgan, is what I said to her. And she said, Okay, I know

Scott Benner 26:28
you're young, but you want to lose weight because it's healthier for you. Okay, that's also true, and you'll just just look good in your dress because you're healthy. So but I

Emma 26:38
want, but the photos, I want to be able to look at the photos and be like, Oh, I look so happy and pretty. Not Oh, I look so happy, but I am fat. You know. Are

Scott Benner 26:47
you fat now?

Emma 26:48
I Yeah, it's just how you look at yourself, you know, no, but

Scott Benner 26:52
what about let's just use the BMI, the BMI skill. Do you know your BMI?

Emma 26:56
Oh, no, no clue.

Scott Benner 26:57
Hold on a second. Do you know how tall you are? Yeah. What's your height? 5454, you tell me your weight, yeah, 200 Okay, and then we'll get your BMI based on your height and weight. You have a body mass index of 34.3 this falls into the category of obesity. Generally, a BMI between 18 and 24.9 is considered healthy. So that's the way I would hope you would think about it, which is, you're not trying to look nice in a dress. You'll just look nice in a dress. I bet you, first of all, at your current weight, I bet you would look nice in your dress, but I hear what you're saying, and so you could lose, see, you said 30 pounds, but that's not really this happened to me.

Emma 27:42
Let me share with you

Scott Benner 27:45
when I started to lose weight, I was five nine, and I weighed 236 pounds, and my wife said to me, how much weight do you want to lose? And you know what I said, What? 20 pounds? And she goes, 20 pounds, you'll still be fat if you lose 20 pounds. And I was like, hey, actually, that's what she said. And I'm like, No, I'm like, 20 pounds is right? So I get on the juice, I'm hitting the juice, and I'm doing my business, and I'm losing my weight, and I lose 20 pounds, and I look in the mirror. And I thought, Ah, hell, I'm fat. How did I not realize this? Like, how did I not realize where my weight was and what it kind of become, you know what? I mean, they didn't see that. And so I thought, well, 30 pounds, obviously, and then I'm down to 2061, day. And I'm like, Nope, this is not close. And I started, like, looking at my body more about, like, health. And I was like, like, where am I carrying fat? Like, in that like, that fat needs to go for me to be healthy. I lost 2530 3540 45 now I've lost 47 pounds. And if you saw me today, you'd be like, Oh my god, Scott, you look fantastic. And I would say, thank you. And then I would say, I still have to lose weight. Now. I don't feel like weights my issue. I think fat's my issue. Like, I want the fat to go away, especially around my midsection. Don't want to have a heart attack, etc. My knees feel better. I'm healthier. My blood works better. All the other things that are actually important over how you look. Not that how you look isn't important, but all these things are getting better. But I stopped to reflect, and I thought, I don't know how much more weight I have to lose. Like, I don't think of it that way. I think of like, just thinking in terms of like the fat is what I'm saying to you, right? So when that when this fat that I'm squeezing right now is gone, I don't know what I'm gonna weigh, but I don't care, like the numbers completely inconsequential to me. I really don't care about the number I reflected on how far off I was on the number, like I was so wrong about the number. Her, and I don't know how that happened, like, you know, like you talked about your brain, like, getting used to things, or you look in the mirror and you just, you see yourself. You don't see you don't see what you look like five pounds ago, or something like that, for some and it's very quickly your brain tells you, like, this is what you look like. And you're like, Okay. And I'm like, I like myself. So this is great. You know what I mean? Like, I never really used to think about myself in terms of, like, when you ask me to describe myself, I would never describe myself physically. Yeah, I would tell you about, like, my thoughts, or how I think about things, or who I care about, what I do for a living, all those things would come out first. So I just don't think I ever accurately saw my health, especially as an assessment of my of my I guess I should have said I don't think I ever accurately saw my weight as an assessment of my health, like I just was happy with who I was as a person. So I never thought about my weight. And now I look back at a photo, and I think, how could I have thought that that person really only could have used to lose 20 pounds. It's really interesting. I wonder if you're going to go through some of those things as you as you lose weight. Yeah,

Emma 31:08
maybe probably,

Scott Benner 31:10
is it hard to talk about?

Emma 31:12
I weirdly, I have, like, an easier time talking about my than I do this. I don't know. I think it's because, like, as a woman, like, it's something that we have to think about constantly, and so I feel like I've taken the time and the work to like, not think about it constantly, which I'm happy with, because it's not like, impacting my mental health as much, but in that same vein, like, I don't love to talk about it, like even my my grandma, whenever she sees me, no matter what I look like, she's always like, Emily, you've lost weight, you look amazing. Like, even if I, even if I gained 50 pounds, I think she would still say that to me really, because she, like, just sees that as, like, a compliment and something that everyone wants to hear. I think that the younger generations are kind of moving towards, like, why is anybody talking about anyone else's body? Like, why is that even a topic of discussion, especially for women, just because it's so prevalent in society, and like, talking about how other women look, and comparing yourself, and all these things. And so I don't know, I've, I've conditioned my brain to, like, not want to talk about it. And like, I don't know, right?

Scott Benner 32:43
So first of all, I know what you look like, You're adorable, that's the first thing, okay? And like, so like, no one should think otherwise, and you shouldn't think otherwise. But it's interesting, because as you were talking about it, like you almost said something, I feel like you stopped yourself, like I've conditioned myself not to think about my weight that way for my mental health, but you paused, because for your physical health, it's not valuable.

Emma 33:06
But you know that, right? I guess so. I mean, I guess I think the thing about my physical health is that there's so much of my brain power that goes toward my physical health. In terms of diabetes, like, I make so many decisions about my physical health daily because of diabetes that everything else is just kind of, like, non consequential, like, it's not as important to me because my sugars are so important to me. I don't know if that makes sense. No, it

Scott Benner 33:37
does, because and I've I've interviewed a lot. I've recorded a lot. Today, I just talked to a guy who said that he started to gain weight with type one, and he thinks that one of the reasons why it happened is because he started seeing food and carbs as this thing that he could conquer with insulin, and he stopped thinking about it as nutrition or calories. Yeah. And so he's like, it didn't matter how much I ate, if I kept my blood sugar stable. I was like, I win, yeah. And he thought that. It felt like that was his only goal. And then he looked back in hindsight, and he's like, Oh, I was eating way too many calories, but I didn't think anything of it, because my blood sugar didn't go up, right? You know, I definitely relate to that. Yeah, so there's this like, and you're young too. So have you seen the South Park special about ozempic? No, I

Emma 34:30
haven't. Okay,

Scott Benner 34:31
they made a movie, like, a 50 minute movie about, like, ozempic and panchara. It's interesting, and there's a running joke inside of it, which I think took some flack online, but they said that, keeping in mind, this is satire, they're trying to make a bigger point. And basically what they were saying was, hey, if you're if you have money, you get ozempic or Manjaro, and if you don't have money, you get this other medication. And this other medication is body posits. Activity. And, yeah, I laughed, because I was like, oh my god, I see what they're saying, right? Like, big, like, bigger picture, what they're saying is, if you can afford to be thin, then here, and if you can't afford it, then we love you just the way you are. And I was like, Oh, my God. Like, because South Park is, generally speaking, a fairly liberal minded thing, but I think people would hear that as a very conservative view. Does that make sense? Yeah, am I making sense here?

Emma 35:35
Yeah, you

Scott Benner 35:36
are okay, okay, so, like, the idea of like, telling like, it's kind of like, it's kind of the feeling of like, look, we you know, there were, at one point, there were people saying, Look, I love myself the way I am. And everybody's like, Yeah, you should love yourself the way you are. And that at some point that that somehow translated into being unhealthy is okay if you love how you are. And I feel like somehow there's a connection between that and the person who told me that as long as I could conquer the carbs with insulin, I didn't think about the calories. Yeah, and either I'm drawing a really squiggly line or I'm not, I'm not, I'm not sure yet, because I'm in fairness, this is a podcast. I'm talking out loud, trying to figure something out. But you're in that space where you're young enough to think, like, I don't mean it this way, but like, like, you have more liberal views, which everybody has when they're younger. Usually, people's views get more conservative as they get older. You have liberal views, but you're not old enough to actually see the health concerns of extra weight. It makes me feel like if I got you into a time machine and made you 50 years old, and you lived for the next 50 years at a BMI of, like, 36 if you wouldn't go, like, I should have, like, done whatever I could have done back then, because this is where, this is where I am now. Anyway, yeah, it's these two competing ideas that kind of stop people from. It's the it's the psychological piece that stops you from worrying about the physical piece. If that makes sense. Anyway, yeah, and if you have to for your mental health, then that's, of course, I think paramount. But I don't think one doesn't exist because of the other. That makes sense, yeah. Anyway, your insulin needs are down, which is great. You are wanting to lose weight for your wedding.

Emma 37:26
How long until your wedding? A year, year.

Scott Benner 37:29
Oh, congratulations. It'll be in the summer. Yeah, very nice time to do it. Very nice. What is it you're going to do between now and then? Like you said, I'm not exercising. But is that a thing you're gonna add,

Emma 37:40
yeah, no, I bought, I bought a stepper. I also, like, hate going to the gym. It's a similar anxiety to my eating anxiety that I just don't like people observing me when I'm sweaty and gross. So I bought, like, at home, things to do. When we started doing daily, I have started doing daily, and it's, I don't know, it's kind of fun, because I can just, like, watch TV and do things I would normally do when I was sitting on the couch, and now I'm being active, which is nice, yeah, but yeah, but I know otherwise. Like, the thing about, okay, here's the thing, because you were saying how, like, You've lost so much weight and blah, blah, and you're always, like, you're always wanting to lose more. And my thing is that, like, I'm not super like, I see that my goal is 25 to 30 pounds, because I feel like that's totally doable in a year, and I don't want it to become like a completely different part of my life. Like, I like the way that I live, I like the things that I eat, I like the things that I do. And like, I don't know. I don't want, like, losing weight to, like, take over every moment of my day. Yeah,

Scott Benner 38:55
no, I understand. And I also don't want to put a number on it. That's so that would take so much time to get to that it would feel like a failure, even though you were moving in the right direction. Is that right? Yeah. Do you think you'd get to 25 pounds and go, Okay, that took as long as it took. I did it healthily. I'm gonna keep going. Or do you think you'd get to the number no matter what go, I did it, and that would be the end. Part

Emma 39:16
of me thinks I would just get to the number and be like, Okay, this is great, because, like, I remember what I looked like when I was that way. And the thing the thing about that is that however small I've been, I've always been, like, I look big, because that's just how women's brains work. Like we're just always comparing. So I don't know. Truth is, I don't know. I

Scott Benner 39:42
appreciate you talking through it. It's really very nice. It's it's a little listen. The one thing that's off putting about talking to you is you sound like you're 16, even though I know you're not. I know you're 23 and you're a teacher and you're out in the world being an adult and everything, getting married. But when you're talking like i i. There's a voice in my head that's like, don't ask her that she's so young. And then I'm like, No, she's not. Wait a minute. Like, it's hard to talk about, and I appreciate you talking about it, because it's obviously, it's not comfortable. Also, you know, where your body is good for you, your health and your happiness, etc, isn't necessarily tied to a BMI chart, you know, like, it's not at all. I'm happy to say that, like, I really don't care about, like, the number. I just care about my health, like it, really, like it, my blood work is so good now. And I'm like, okay, great, that's one step, but that's not a thing a 23 year old thinks about. And then, you know, like, my next step is to make sure I don't have a heart attack, like, that's literally, like, how I'm thinking about this, you know, my shirt size being smaller is nice and everything and, you know, but that's like, if I wasn't gonna have a heart attack and my blood work was good, I wouldn't, I wouldn't care about that part. Like, I'm gonna probably end up with loose skin. And the truth is, is, I don't think I care about that at all, you know, like, Good, yeah, even though it's visual, like, I don't think it's a thing I care about. You didn't have to adjust your insulin, though, the OmniPod five kind of did it for you, right? You just differently assessed the carbs until the pump caught up to your new need. Is that how you handled it? Yeah?

Emma 41:16
And my, yeah, and I, honestly, I don't I my settings. My endo gets mad at me because of how much I, like, I used to do, like, ghost carbs, because I would like have these highs, and I would like be looking at, like, that number, yeah. And so I would just tell my pump that I was eating even when I wasn't, and I've like, really tried to stop doing that, and I'm doing it less, partly because I'm not having as many highs because of Olympic but also because I'm just telling myself not to do it, and my pump will get smarter if I don't do it, my pump settings, my insulin to carp ratio and correction factor and all that stuff. I don't know how true it is, because for a while my incendi carb ratio was one unit to 10 carbs, because I would like look at food, and instead of seeing the carbs, I would see units, yeah, and so it was easier for my brain to have counter cats that like 10 units because it was easier math. And then my underwear just got mad at me, and she made me change my correct or my heart ratio. So now it's like eight. And so now I'm kind of having to relearn carbs are counting because I Wait.

Scott Benner 42:35
Was it working for you?

Emma 42:36
Yes or No, it was like, it was working fine, but I was like, just working too hard. And she was like, No, your pump settings need to be correct. And I was like, okay,

Scott Benner 42:47
so she made your insulin to carbo shoe a little stronger. Yes, okay. And that worked. That's been helpful. Yeah, have you remembered to go back into your manual settings and change them. So if you ever switch into manual, you're not getting like, like, crazily different amounts of insulin than you need. No, because your total daily insulin today is probably significantly lower than it was a year ago. Yeah,

Emma 43:14
right. I'm just never in manual, though, is the thing? Yeah?

Scott Benner 43:17
Well, you can go in your settings, just see your total daily insulin, do the basal, and then do the breakdown and go back and tell the manual, yeah, side of the pump. What's up? But okay, you don't go into manual ever. So OmniPod five works really well for you. Then,

Emma 43:32
yeah. Well, okay, my at my endocrinologist visit recently, she also suggested that I go to the, oh, it's the new, I should know the name of it. Oh, it's, it's the newer pump for teeth, slim. Is that the name of it? The Moby. I don't know it. It looks like an OmniPod, but it has, like an injection site and like a two inch tube.

Scott Benner 43:57
I think that's a tiny tube. Yeah. What's your A, 1c right now,

Emma 44:01
it's five, five.

Scott Benner 44:03
Why would she want you to change?

Emma 44:05
Because I struggle with my management around my period, and like, going from, like being super sensitive to being super resistant, and like having all that in my head is kind of hard, and like, taxing, right? And so if I were to switch pumps, I could have, like, a period program, basically, yeah, and be like it would. I could be able to make it really accurate, and whatever. And the other thing is that I could do extended boluses, which is something I, like, deeply miss from my OmniPod dash. Okay,

Scott Benner 44:44
yeah. Every time somebody comes on, they say to me, could you please ask OmniPod to put an extended bolus and OmniPod five? And I'm like, I not in charge of that. But okay, yeah, I hear that from a lot of people that they wish it had an extended bolus feature to help with, like, more fatty stuff, and I'm interested. To see what happens to you when they move you to the punjaro though, because I feels like there's a lot more ceiling for you that you haven't gotten to yet. Because the truth like, so we never got to this. So let's go backwards a little bit impact on I find it impacts like, three things. So how fast do you fill up your stomach, your physical stomach? Does your brain tell you you're hungry? Like, so does your brain tell you you're hungry ever sometimes?

Emma 45:25
But it's not. I don't know. The one thing that I've noticed, or if I get interrupt, is like food. Noise is like Gone, which I, like, always had before, right? I don't think about food and like, my next meal, and whatever, whatever I like, don't think about that stuff anymore, which is something that I did think about a lot, but, um, I would say I don't get hungry that often, but sometimes I do, depending on how long it's been since I've eaten, like I haven't I haven't eaten yet today, and I am Not super hungry, and it's like, 12, 130

Scott Benner 46:01
Yeah. So can you contextualize the difference between brain hunger and stomach hunger? I have sometimes a hard time explaining it, but like, you know what I mean? Like you have that empty feeling in your stomach, like you have to eat, versus the like I want food feeling in your head?

Emma 46:21
Yes, I so. I do feel stomach hunger, but not brain hunger.

Scott Benner 46:25
Okay. Do you have trouble eating even when you feel hungry? No, no,

Emma 46:30
not anymore. I think when I first started, I did, but not anymore.

Scott Benner 46:33
Okay. Did you have to teach yourself? I'm starting to think about it that way, like you almost have to teach yourself to eat on a GLP,

Emma 46:40
again, kind of, yeah, at school, I, like, don't eat a lot of food. I kind of only eat like one meal a day, like a big dinner, and then my lunches are like little snack packs with, like tiny crackers and like some cheese and like, that's it. Do

Scott Benner 47:01
you have a feeling for why you haven't lost more weight?

Emma 47:03
I don't know. I don't know just, I guess because, like, the food I'm eating, it's not that it's not nutritious, because I like, I eat my veggies and whatever. But I don't know, my boyfriend cooks with, like, lots of butter and tastes like that, which we're trying to cut that slow down. Yeah, we're not that active. Yeah, I

Scott Benner 47:27
think people think of butter as fat, but there's a lot of calories in butter too. Yeah, interesting. Are you just the person who like because you don't want people to see you sweaty, or because you just don't love activity, both food, noise. My wife talked about the food noise. She told me about it. I brought them up on here before, and she's like, I used to wake up in the morning, and first thing I thought was like, What's for breakfast? Yeah. Then she's like, and then I thought about it right up until I ate breakfast. Then I started thinking about what was for lunch. You know, that's that how it felt for you,

Emma 47:57
yeah. And it was not even like meals, but I'd be like, like, I would be like, bored, and I'd be like, Oh, I just want crackers, or I want like, chips. Like, I feel like it would be something to combat boredom, and I don't feel myself turning to food in that way anymore at all. Nice.

Scott Benner 48:18
That's excellent. Okay. Well, first of all, I wish you luck. I hope the night that the change, I mean, so are they going to put you on 2.5 to start or five of Manjaro?

Emma 48:27
I'm not sure. Okay, it's probably 2.5 for

Scott Benner 48:31
four weeks, then five for four weeks, then seven and a half. And they'll move you up until you get what you're looking for. Yeah? And then adding the activity will be a big deal for you, too. Pretty cool. Do you have trouble drinking water? Because some people even say, like, on the on the GLP, they not only you're not hungry, but you don't think about drinking either.

Emma 48:51
No, I like, I drink water, but I feel like I get dehydrated easier. I don't know I like, I feel like you need to drink more water than I had been. Okay. All right. Okay.

Scott Benner 49:04
So food, noise, hunger. So do your stomach feel empty ever? Like,

Emma 49:10
if I don't eat at school at all, then when I come home, I like, feel hungry in the way that my stomach is empty, which happens like, maybe, like, once every two weeks or something. I'm like, super busy at school, but I'm sorry, a lot of my answers are like, I don't know. Like, I It's weird, because I am someone who, like, researches things and gets super into that. But ozempic, I and and with diabetes, I'm like, super upfront, and I like to wear my sights where they're visible, and I like talk to you about it, yeah. But I think because there's so much stigma with ozempic, especially, I like, I'm not, I don't know. I'm not, like, shouting for the rooftops that I'm on OmniPod, because it's like, I don't know. I What will people think of me, which is like. Not nice, but I don't know. Oh,

Scott Benner 50:02
so, so what will they think of you that you're using a GLP medication?

Unknown Speaker 50:06
Yeah,

Scott Benner 50:07
are you afraid that they'll that'll make them think you have weight to lose? Or do you think, are you afraid it'll make them feel like you're cheating? Or what? What is it out of both?

Emma 50:18
Kind of both, and it's like, it's like, like, I am happy with how I look like, despite every, literally, everything I've said this podcast, like I am happy with how I look, and I don't like, I don't look in the mirror, and I don't hate myself. Like, I really am happy. So I feel like admitting that I'm on this medication I'm always like, but it's for my diabetes management, like it's for my insulin resistance. It's not because I'm trying to lose weight, which is, like, kind of ridiculous.

Scott Benner 50:50
I mean, it is, but I'm trying to figure out why you feel that way. Because I'm mentally

Emma 50:53
ill. I need to get therapist, that's why.

Scott Benner 50:58
But Do you actually believe you're mentally ill? No, that's just what the kids say. It's what the kids say. Do you think you need therapy?

Emma 51:05
I think everyone would benefit from therapy. Wait, even

Scott Benner 51:09
me, yes, I'm just kidding. Of course. I also, I, I get therapy all the time. On the podcast, I get to talk to people about all kinds of stuff. You're afraid of, what people will think I'm so I'm the opposite, like, if people say to me, Oh, God, you look amazing, the first thing I say is, I'm using zepbound. And they go, what? And then I make like, the, like, the motion, like I'm injecting something into my stomach, and they go, Oh, okay. But I haven't cared what anybody's thought of me since I was like, 15. I don't think so. It's awesome. Yeah, it's pretty cool. It just comes from, like,

Emma 51:42
I mean, you don't care, but like, I

Scott Benner 51:45
just, I grew up in a way where I needed to be my own person, you know what I mean, and I couldn't let somebody's opinion of what I was supposed to be doing or or thinking, like, impact me. Or I would have got sucked down a rabbit hole of being what they wanted me to be and I wasn't up for that. Having said that, I still I know that that's not as easy said. It's easier said than done for a lot of people, and I'm just I after I joked about this earlier, I feel weird saying this, but I am just lucky that that's the way my brain works. So you know, I recognize that it's just it's a crapshoot to feel the way you feel about something like I could easily be uncomfortable eating in front of people, and you could be, you know, super confident. And you know what I mean, like, who would know why it happens for one person not the other, right? But yeah, like, I just tell them right away. I'm like, I'm using ozempic work, great. I've lost 47 pounds. Like, oh, my God, that's terrific. You're all done. I'm like, Nope, I want to lose more. How much I'm like, doesn't really matter, but my guess is 15 or 20 pounds, and they go, no, no, you look terrific. I said, Please don't say that, because I don't care how I look. Try not to have a heart attack. One of the things I've run into the most along this journey is people telling me that I've lost too much weight, really, yeah. And I'm like, What is this? Then this thing I can hold on to here in front of me that has nothing to do with anything. It's not an organ. It's not important. It's not a muscle. Like, what is this? You look great, and it's just people are short sighted. They're like, You look better than the last time I saw you, so you're good. Yeah, that's how they think about it. But like, so what would happen if, I don't know if Emma was in the grocery store and some lady walked up to her and said, Oh, do you remember me from church? Let's just say, and you go, I don't remember you from church. She goes, I remember you. You've lost weight, you look great. What happens next in your mind?

Emma 53:38
I would be like, Oh, thanks. And then I would ask her something else, like, I wouldn't because, because, in my head, it's like, why are you commenting on my body?

Scott Benner 53:52
I don't know. Okay, what if you brought it up? What if, if they said to you, my God, you look so much healthier. I'm trying to do that. What did you do and you like were openly,

Emma 54:02
if they asked what I did, then I would be honest, for sure, but only if they asked such

Scott Benner 54:10
an interesting thing between the generations here, if I may, hold on a second, because everybody's judging each other constantly. It's, I mean, right, you do it?

Emma 54:20
Do you not? Yeah, yeah, no, yeah.

Scott Benner 54:23
So are you worried about what people are thinking of you? Because you know what you're thinking about them. No, okay,

Emma 54:28
I don't know. I'm not. I'm not a judgey person, but like you can't not like you can't just turn that part of your brain off. It's part of being a person, and that woman,

Scott Benner 54:38
if it's a human thing, to look at other people and make a judgment. When you talk about it, you say people judge each other like it's a bad thing, isn't it a normal thing?

Emma 54:48
I know in my brain that I'm saying nice things about other people in my head, but I don't I know that other people don't do that. You

Scott Benner 54:56
know, because you hear them. I.

Emma 55:00
No, because I assume the worst of humanity.

Scott Benner 55:06
But do you should I assume the worst of you? No, why would you assume the worst of them? Then it's

Emma 55:13
I don't know them. I don't know who they are, and they're strangers.

Scott Benner 55:17
This is interesting. I'm enjoying this. First of all, it doesn't matter what they think of you, because they have no impact or sway over you at all, like nothing, yeah, and if they're not actually saying it to you, then your worry is only something you're manifesting in your own mind. Right,

Emma 55:33
right? Okay, here's the thing, here's the thing, here's the thing, here's the thing, because it's, it's less about strangers, it's less about people, I mean, on the street, like, I really don't care about people that I don't know. It's more about social media and like, people that I know from high school, who I haven't seen in like, five years. Like, obviously, I look different than I did when I was in high school. And like, thinking about what they think about it and that sort of thing. It's not really about strangers.

Scott Benner 56:05
So it's not your mom, it's not people that you don't know on the streets. It's about people who you tangentially know, who will see you on Instagram. Yes,

Emma 56:15
which is so dumb. Oh, I

Scott Benner 56:17
know I'm listening to you. Yeah. So like, may I ask what seems like the most obvious question, why don't you delete Instagram?

Emma 56:24
Because it's have to be connected so that you can feel badly. No, I here's the thing. I don't I don't post that much on Instagram anymore. Like, I'm not like, it's not something that I obsess over. It's just like, when I feel like I should post, for example, getting engaged. I like, am constantly thinking about that, but if I don't have to post on Instagram, then I don't

Scott Benner 56:50
how many followers do you have on Instagram? Like, over 1000 I'm not laughing at you, but I am. Hold on a second. How many of them do you think are actually still on Instagram? I don't know. Okay, when you put up a picture, how many people like it? What's your number? I know, you know. I definitely know. You know,

Emma 57:07
my normal is like 200 ish, maybe a little bit more. But then my engagement post got like 700 Okay, or something,

Scott Benner 57:18
so a fifth of the people that follow you on Instagram, normally, like your picture, and when you put up your engagement picture, then all those, all those nosy bitches, like, double click, that is that, right? Yeah, okay, and this is a thing you've been like, you've can you've concerned yourself with,

Emma 57:39
yes, because I have to. It's not like I want to think about this. It's because I have to. Emma, do

Scott Benner 57:44
you know what I love about you? What you answer one way, but your voice says, I don't agree with what I'm saying, while you're saying, No, it's

Unknown Speaker 57:53
true. It's like, I hate

Scott Benner 57:56
this. It's fantastic to listen to you argue with yourself. It's like, my favorite thing, and if you don't giggle every couple of seconds, I feel like I'm letting you down. But that's neither here nor there. So you won't delete Instagram because it's very important, but it mostly makes you feel bad, but not because of what somebody says, but because of what you are afraid they're thinking, Yes, you understand this is all anxiety, right? Yes, right. So you don't just have an anxiety about eating in front of people. You have anxiety in general. Anxiety in general. Yes, yeah, you should have my job for a couple of weeks. You'd stop caring what people thought of you. Why? Oh, my God. Because if I got upset every time somebody cursed at me or told me that I'm pushing carbs on people, I'm pushing a GLP agenda. You deleted my comment, and that wasn't fair. You're trying to there. I don't have free speech. And then all the whining and fcking crying from the very what, you realize it's a very small percentage of people. It's not everybody. I have listen because I'm going to talk in your language for a minute. Okay? I have 21,000 Instagram followers. I have 75,000 Facebook followers, and my podcast has over 17 million downloads. Wow, I have reviews that call me a misogynist. Somebody is going to listen to this episode and say that I fat shamed you like no matter what I say or do out loud, someone's going to disagree with me or how I said something, or the word I chose, or that I laughed earlier about, everybody apologizes for everything all the time, because that is a very crazy, like young liberal, woke thing to do. Yeah, I just want to apologize for my privilege before I speak like, Jesus Christ, just say the fcking thing. Like, like, you know what I mean? Like, like, I you have insurance, and somebody else doesn't. Yeah, it's a travesty. It absolutely is. Everyone should have insurance. I'm not saying that, but we can't apologize for every like, how are we ever going to get through a problem if we can't talk about it? Great, we're always apologizing. I used to say all the time that when I was just blogging for diabetes, I would always say that most people's blogs were just so, like, filled with them apologizing before they spoke. They'd spend a paragraph saying, like, Listen, I'm not a doctor. This is not advice. You should not pre bolus your meals. It could be dangerous if you don't eat blah, blah, blah, blah, blah. But by the way, I pre bolus my meal like they'd spend five sentences out of talking you out of pre bolusing before letting you know that they pre bolus. And I was

Emma 1:00:34
that about is that about society? Or is that just about like liability?

Scott Benner 1:00:37
Is that the same thing? If I'm gonna say I just picked up my GLP meds on Friday. You know what? I paid for them? What? $25 so if I don't start by going, I want to just recognize that I have privilege, and I have a good health care and I can afford $25 and and it's also I have a car, and I'm so lucky to have a car, because so many people are are unable to drive, and I was able to drive to the pharmacy and like so I want to really say that I recognize my privilege, which is just basically saying, Here's my disclaimer before I tell you how much my GLP medication costs. And then if I if I recognize my privilege, then you're not allowed to be mad at me, right? But you know, who's mad when people are mad? Who just people who want to be mad? Yeah, yeah. No one's upset that I have insurance. Nobody gives a gift that I have insurance, right? But it but there are people who take great pleasure in going you have something, and they don't. You said it out loud. You're making people feel bad. I'm not making people feel bad. How am I making people feel bad by saying I have health insurance ridiculous in some way, shape or form, that, like apologizing before you're speaking is no different than putting out a disclaimer before you say something valuable, like you're trying to deaden the response that comes back, but you really mean what you're saying.

Emma 1:02:00
Right? Yeah.

Scott Benner 1:02:02
I say to this, I believe that a lot of your anxiety, and even people your age's anxiety, is coming from this thing that you're worried is happening in other people's heads. Yeah, and what I'm saying is them, who cares what they think? Go

Emma 1:02:19
ahead. That sounds wonderful. That sounds wonderful. That sounds wonderful coming out of your mouth. But can I get that in my brain? Sure. No, right now, therapy.

Scott Benner 1:02:26
Well, listen, I just watched this thing. Listen, let me tell you something. Emma, why you say no, maybe I can. Okay, okay, I just watched on the Netflix. I don't know if you're aware of what Netflix is. There was a What's that called when they tell you a bunch of stuff, and it's not entertaining. Oh, Christ. Why is the simplest word escaping me? It's a movie that's informative. To tell you about a thing like a documentary. Thank you, Jesus Christ. That was embarrassing. Okay, so I just watched a documentary that I want to say that rob the editor of the podcast, told me about it's about gut health, right? And at some point in the documentary, there are these people who are using other people's poop to replace their own gut biome. Now let me just say this real quick. Hold on, Emma, nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. I said that mostly because of how we were talking about disclaimers medical and I thought it was funny. So anyways, this lady comes on, lady girl, she was in her mid 20s. I think she's talking about her poop doesn't go well, like, just a, I mean, a literal show when she's on the toilet, right? Everything's wrong. Seven, stage, like, six, you got it. You were paying attention. Emma, okay, like, she's got the diarrhea. Things are going wrong. She's like, she said something like, I can't enjoy food, like, I have anxiety when I'm eating because of what's gonna happen later. And she hears about this, these studies they're doing, where they're replacing people's like, gut biome with other people's like, poop like, you know, but very medically. But these are just studies, and this woman's like, gonna do it on her own. So hold on, you don't, don't cut me around. Oh yeah, she's gonna find a friend, right, and have a capsule, and she's gonna eat it. I don't know the details, but she does take her brother's poopy and put it in capsules. And I don't know any of the details, and I'm not joking, try this, okay, because I don't know what I'm talking about. I'm just relaying a story. So she does that, and in some time, she develops, I believe, hormonal acne that she's never had, never had in her life, but her brother has what? Yeah, no, hold on Emma. So then she realizes that's where it's from, and she pivots to her boyfriend's shit. I was just gonna say, oh my god, right. And she pivots to the boyfriend. The Acne goes away. OmniPod, and she starts picking up the boyfriend's mental health issues. What I know, right? There are little bugs that live in your belly. Did you know there are

Emma 1:05:10
bugs in your belly? Oh, and

Scott Benner 1:05:14
they change your the way your body works. This is what she was saying. So what I'm saying is Emma. I think if I shit in a pill and you ate it, you might be more

Emma 1:05:29
confident over Scott. I'm ready. Can I tell you, as long as you'll package them, I don't want

Scott Benner 1:05:38
to do the hard work. Okay? I know none of the details of how this is work. I don't think she just, well, listen, first of all, I don't know, but because they don't go over the details of how it actually happens, I would assume that's on purpose. We could ask chat. GPT knows, but I just want to tell you a second. This is a complete sidebar how proud I am of myself because I've wanted to mention the documentary on the podcast. I had no idea how to bring it up, oh my gosh, and that I fitted it in here and so x, I mean, really expertly wrapped it around all the themes of our conversation. I feel like a ingenious right now. Yes, yeah, no, I really do. No, no, no, seriously, I feel very good about myself right now. But how crazy would that be if, yeah, if that, if something like that is because if your anxiety, like, what if you changed your gut flora and your anxiety changed, this is not beyond the shadow of reasonability. If you listen to that documentary,

Emma 1:06:36
by the way, what was the name of the documentary? Well, remember? I

Scott Benner 1:06:40
mean, remember is a strong word. I couldn't remember the word documentary five minutes ago. But hold on a second, I'll find out for you. Props to rob, by the way, hack your health, the secrets of your gut. Okay, I enjoyed it. Don't look at the rot and tell you to score. Those people didn't like it at all. But I also think they said something about autism that pissed off a bunch of people whose kids have autism, so that might have hurt the Rotten Tomatoes score. Nevertheless, I don't know how valuable the information in that documentary is, but I will say this that I thought, my God, that girl got hormonal acne after never having it her whole life, and then picked up her boyfriend's mental health issues, like when she changed to his gut biome. And I was like, so they're looking at how to do this, but, but try to imagine, imagine one day in the future, you go to the doctor and say, Hey, I have social anxiety, and I'm very worried about what people think to the degree that I can't eat in front of people. And, you know, blah, blah, blah. And they walked up to you with a shaker, and they were like, hey, here you go. You said, What's this? You said, I just some shit from a really confident person. Oh, my God, my God. The

Emma 1:07:47
future is just, it pills, everything. No more medication. Just,

Scott Benner 1:07:54
I'm telling you, it's, I don't know that. It's crazy, pills and chat GPT taking over the world will just be robots and poopy pills everywhere. All right? Emma pills, poopy pills. Yeah, it's all about poopy pills, right now, that's what I'm saying. The whole world's just shit pills. You said, Have we fixed anything here today for you? Or no?

Emma 1:08:17
Fixed a strong word giving you a different perspective, like, right? Yes, I do feel like I've gained a different perspective. I have many things to think about. We'll probably be looking for a therapist as well.

Scott Benner 1:08:31
How many more therapy sessions with me until you're not anxious anymore? Do you think?

Emma 1:08:36
Yeah, I don't know. Yeah, I'd have to start paying you big bucks. First of all, I

Scott Benner 1:08:39
can't collect a fee on that because I'm not a physician, and that would be that would be against the law. But I want to say that I also don't think that anything about, you know what's funny? May we be serious just for fun at the end here. Yes, a lot of people write me and tell me that listening to the podcast has helped them with a lot of problems like this, and people who have been on the show have written me back to say that they've made some pretty big changes after our conversation. So I don't know that it's crazy, but it does seem unlikely to me, because you just said something so interesting a minute ago. You're like, how do I put that in my head? And I don't, obviously, I don't know that there's an answer to that, especially if it also could be biological, right? Is your mom anxious?

Emma 1:09:27
I think so. I'm very similar to my mom in a lot of different ways. Part of

Scott Benner 1:09:30
the documentary says that when you're in there cooking in the belly, you don't have any bacteria, and your first introduction to bacteria is coming face first through the hoochie canal, and you pick up hoochie stuff, bacteria, and then it's actually valuable that I can't believe I'm saying this. It's actually valuable that you come out near the mom's butthole, because you pick up some bacteria there that helps you right away to digest food and stuff like that.

Emma 1:09:57
Interesting, isn't that crazy?

You think any of that's true?

Scott Benner 1:10:02
I don't know. I don't either, but I'm going to talk more about documentaries on the podcast, because it's fun, but isn't that crazy? So you get those, you get bacteria like, moment one coming out, and then you've taken more through all these different things, and then you get this little like mix. But what if you started out with your mom's anxious bacteria. God, I wonder if any of that's

Emma 1:10:23
true, but I feel like my brother is not anxious. Maybe he came out first. Yeah, I don't know. I guess

Scott Benner 1:10:30
his face would still end up near a butthole at some point, though.

Emma 1:10:32
No, no, no, Scott, we were both C sections Oh, that's

Scott Benner 1:10:37
another thing they talk about in the in the documentary, that people who are C sectioned have different bacteria issues.

Unknown Speaker 1:10:42
This documentary covers everything. Oh, and please go watch

Scott Benner 1:10:45
it. Of course, really, of course you do, by the way. Now people are gonna be like Scott's listen to pseudoscience and blah, blah, blah again. Let me be clear, if you're thinking about it right now, go yourself. It's just a podcast and it's free. Don't listen if you don't like it. Okay, I don't care, by the way. I do care. I genuinely care. Please listen. I need to listen. But no, but, um, yeah, no, I listen. The details are auspicious, because my brain's not good, but I they talked about that there's a difference between being C sectioned and vaginal birth. Did your mom not love you enough to have you vaginally? What happened there?

Emma 1:11:18
I don't know exactly, honestly? Well, I know that my brother was C section, and then you can't deliver vaginally once you've had a C section,

Scott Benner 1:11:26
yeah, then they talk about the zipper, right? Like you just kind of pop it back open again, bring the baby out. Yeah, yeah, wow. Uh, also, I don't think if your mom didn't have you vaginally, that this doesn't love you. That was sarcasm, in case some of you can't hear that. Oh, that's interesting. All right, okay, I don't know. I love you, Emma.

Emma 1:11:45
I love you too. Thank you. This is awesome.

Scott Benner 1:11:48
I swear to God, these are the best conversations. I don't know what the UF you and I talk about, but like I told you, before we started recording, Isabelle, like, sent me a note. She's like, at the end of Emma's episode, you said you were gonna get back on and talk about her ozempic. And she's like, are you doing that book that she's such a nice girl. And I'm like, okay, she loved you. That's so sweet. Yeah, that nice,

Emma 1:12:10
yeah. All right. Would

Scott Benner 1:12:11
you have any questions for me?

Emma 1:12:13
I don't think so. Okay. Would you Well, okay. Would you actually be interested in booking an episode with Jose? He does not have diabetes, but he's similar to you and a caretaker way. But I don't know if you talk to people like that on here. Is that worth it? I don't know.

Scott Benner 1:12:27
Periodically I have once or twice. It's usually like one time I did a sister who had type one and her non type one sister. I interviewed both of them. I thought that was interesting. I think the problem becomes like, genuinely, the problem becomes, is that I get them on I say, like, so you're taking an interest in Emma's diabetes. He goes, Yes. And then I go, how so? And he goes, I understand, like, how to bolster things, stuff like that. I'm like, Oh, that's cool. That's nice of you. And then I don't know where it goes from there. Yeah,

Emma 1:12:56
no, that makes total sense. You like, it does not hurt my feelings that you are not interested in that at all. How

Scott Benner 1:13:01
is this the thing that doesn't hurt your feelings like an absolutely here you were absolutely turned down, like a person said directly to you, no, I don't like your idea. And you're like, that's

Emma 1:13:11
fine. No, no, no, for real. I'm just saying to your podcast, but it's not mine. But if

Scott Benner 1:13:17
you thought about putting up an Instagram post about this, wouldn't you kill yourself for six months wondering how I would respond.

Emma 1:13:23
Maybe, perhaps, Emma, did

Scott Benner 1:13:26
I tell you that worry is a waste of imagination? The last time we spoke?

Emma 1:13:29
No quote though. Yeah, it really is.

Scott Benner 1:13:33
You're wearing yourself to death. All you people out there, all you anxious people. I know it's not on purpose, by the way, I feel terrible like I'm being super serious, like I've had so many conversations with people who suffer with anxiety, and all you feel while you're talking to them is, I do really wish I could get in a pill and make them not feel this or what I don't really having that kind of lack of, that nervousness and that, that one wondering, I can't imagine How upsetting it is to feel like shackled by it. Yeah, you know it's,

Emma 1:14:04
it's quite debilitating at some points. Yeah, but it's not, it's not a constant thing for me, at least, which is good,

Scott Benner 1:14:10
right? Well, you do well, I mean, you, you teach people like that. You don't have any trouble with being in front of those people while they're No,

Emma 1:14:17
yeah, no. And like, when I'm in teacher mode, I feel like my anxiety goes away completely, like I could be in front of the entire elementary school, which I have to do weekly. I don't get nervous about it at all. That's

Unknown Speaker 1:14:28
fascinating kids, is

Emma 1:14:29
it just kids? It's like they're the

Scott Benner 1:14:32
judges, people on the planet. No, but they're,

Emma 1:14:35
but they're elementary kids. Like, when you get to middle school, it's like, I would never teach middle school in a million years. But like elementary kids, they're just like, sweet and they love you, or they love me at least. Have you seen

Scott Benner 1:14:46
all those end of year tiktoks from teachers, the ones who write down every thing a kid said to them all year and then read some into their camera.

Emma 1:14:53
But that's middle school and high school usually is right? I guarantee, yeah.

Scott Benner 1:14:57
Are you poor one kid? Ask the lady. She goes, why? And she goes, any kid says, because of those pants you're wearing,

Emma 1:15:04
oh my gosh, oh

Scott Benner 1:15:06
my God, just a launch. There's a never ending supply of videos of teachers telling you the things that students told them that year, and they're really horrifying. Yeah, so, but you're saying younger kids are all like, in a different mode, yeah,

Emma 1:15:21
like, like, I have gotten the worst I've gotten was after I got engaged, I came to school and all the kids were, like, so excited, and they all went to see my ring, and they were really sweet about it. And then one of my kindergarteners, like, saw all the commotion. She came up and she was like, are you pregnant? And I was like, No, I'm not pregnant.

Scott Benner 1:15:46
I'm already trying. I got it was epic. I'm working on it. Okay,

Emma 1:15:53
right? Yeah, but she didn't mean by it. It was just her being sweet and trying to be excited. I don't know. She saw

Scott Benner 1:15:58
a bunch of people being excited around you, and her mind went to, oh, she's having a baby, yeah, but that you didn't see poorly. You didn't say, Oh, my God, that kid's judging my weight. No, you're fascinating, Emma. How come on? It's because they're kids.

Emma 1:16:13
Yes, it's because they're kids and they're pure, yeah, I don't know it's much. It's easier. Here's the thing, I It's so much easier for me to be around kids and old people like I don't like being around people my age. Isn't that weird? No,

Scott Benner 1:16:30
I see what you're saying. See, because this goes to show how close you are to not having to suffer with this. Because if they're children of a certain age, you believe their thoughts are pure, and you think that old people's thoughts are pure, no, no, just easier

Emma 1:16:44
to talk to because, because they're, like, easier to joke with. I don't know I feel like, I feel like I'm an old soul in that way. I just find it easier because I'm listening. Because when I'm at school, I'm in teacher mode, and I'm not like my 20 year old self. I'm like, pretending I'm a teacher or an authority figure because I have to, because I'm a teacher, and I have a bunch of fifth graders who will bully me if I don't. So

Scott Benner 1:17:08
you make it as a teacher, yes, and you're comfortable with older people because they're more mature, and you feel like because of that, they're easier to talk to, they've seen more of the world. Do you think that they're going to be less judgmental because they've they're beyond it all,

Emma 1:17:21
I think so. And it's also because I feel like they look at me and they're like, Oh, she's just a fun one year old, and she's so cute and fun. But that's

Scott Benner 1:17:30
your opinion of what they think, yeah. Also, it was your opinion of what the kids think, and your opinion of what the people online might think, yeah, yeah. You don't actually know any of these people, no, right? Well, but can I tell you some things I know about old people for sure? What's two things I can tell you for sure what they're judging every moment of your life? Okay, that's the first thing, because they're alive. And the second thing is, if they're in a home, they're in like rabbits. You understand what I'm saying right now? Please. No, they are. They are. They are. Think about it. I want you to think about it. No, I actually don't. Anyway, do you know that you might not find a higher instance of STDs than in an old folks home?

Emma 1:18:14
That's horrifying information.

Scott Benner 1:18:16
Well, now you know those are the people you're comfortable

Emma 1:18:19
with. Oh my gosh. I actually, just to be clear, I actually did mean my coworkers who are probably around your age. That's actually

Scott Benner 1:18:29
old. You meant like me, so not like geriatric. Yeah, I'm very judgmental too. But see, it's funny, I don't see myself as judgmental. I generalize a lot because I think it's a quicker way to get to something, and I don't have time to, like, learn everybody's like, you know what I mean, like everyone's ins and outs when most of the ins and outs are fairly similar. But I don't, I really don't judge people like i And it's funny, because if I said that, if ARD was in here and I said, I don't judge people. We would then have a two hour podcast about it. Okay, actually, that's a great idea. But I don't feel judgmental of people. I genuinely do not care what you do, what you think, how you are like I really don't care. I am incredibly interested in it, and because of that, I talk about it a lot, and I wonder out loud about people's motivations and what they do in my personal life and on the podcast, etc. Yeah, but I have no judgment about it. Like you said, your height and weight earlier, I didn't have a thought in the world. I didn't go, oh, that means a thing. I just thought, I need those numbers so I can tell you what your BMI is, so we can talk about it like that and and I don't like I have no judgment about it whatsoever, none. I have no opinion about whether you should or shouldn't lose weight. I don't care. I get involved in these conversations. But me, personally, I'm very agnostic about things. Yeah, I really, genuinely, I genuinely don't give a what any of you do. You don't. To jump off a bridge if you want to do I'd be like, Oh my god, that was horrible, and that would be the last time I think about it. And so like, yeah, agnostics the right word,

Emma 1:20:08
Yeah, but you're not Wow. No, no, all right, I

Scott Benner 1:20:12
don't know what you're gonna do. Yeah? Is Jose anxious? Not

Emma 1:20:17
as much as me. Well, I feel like we're anxious about different things, interesting, like, he he has some relationship anxiety, but I don't at all with you, yeah, just because of, like, past relationships, like nothing that I've done. Oh, he thinks you're gonna break up with him. No, no. But when I get upset, he gets super anxious.

Scott Benner 1:20:42
Oh yeah, Disney from a divorced family, yes, yeah. He thinks you're gonna get he thinks your thing's gonna when he sees the angry people, he thinks there's gonna be a disillusion of the family, right? Yeah, I used

Emma 1:20:54
to feel like that. I don't carry any anxiety in our relationship at all. About

Scott Benner 1:20:59
your relationship. You have no anxiety, yeah, which is so beautiful. Just about your Instagram posts,

Emma 1:21:06
yeah, but you won't get rid of Instagram, no, because it's important. Yes,

Scott Benner 1:21:13
all right, I don't know what to do. We're finished. Now it's over.

Unknown Speaker 1:21:18
Yeah, we're not

Emma 1:21:19
gonna go anywhere from here. Yeah, there's

Scott Benner 1:21:21
nowhere to go. Just delete the thing. What do you care? Seriously, I only have it because I have this podcast. Yeah, that's fair. Yeah, if I didn't have this podcast, I wouldn't know what Instagram was. Wow, what's that like? It's fantastic because you're old, that's why, yeah, but what is okay? One last thing. What does that mean? Why? Because I'm older. Do I not care about Instagram? Because I grew up with Instagram, just like I grew up, I had a computer to stop it. Like, like, no, no, I had a computer. I had the internet. I know how to like, I know all about that. I've had all the little different social media things coming up, whatever those things were called, then Facebook, when it was huge, and blah, blah, blah, blah, blah, but why does it matter?

Emma 1:22:09
Oh, no, here's the thing, here's the thing. No, here's the thing, because it answers it doesn't. But also, I don't live in my hometown where I grew up, and I also don't live where I went to college, so I have all these people around the country who I'm friends with who are doing things I don't know what they're up to, unless I I'm

Scott Benner 1:22:30
gonna say something horrible. Are you really friends with them if you don't know what they're up to? Oh, okay, but aren't they just followers who you've met in person once?

Emma 1:22:41
No, not once. No, these are like friends from college in high school.

Scott Benner 1:22:48
When you're 40, you're gonna think back on those people and go, I wonder what happened to him, and you're gonna have no idea, and you're not gonna care. And if he's only presenting himself like, do you present yourself as you are on Instagram or the best version of you? Oh, the best version. Then, do you really know how those people are no, but I want to know what they're up to. I

Emma 1:23:06
don't know when they're getting engaged. Well, you

Scott Benner 1:23:08
want to know what they're up to. They think to pull out their phone when they think they have a good photo to take. That's not what they're up to. Emma, I'm right. It's okay if you don't want to.

Emma 1:23:17
But the thing is that Instagram is not going away. Social media is not going away.

Scott Benner 1:23:21
It goes away be the leader. It's completely gone. For the same reason. I don't understand how somebody could become cyber bullied. I don't understand why you won't delete Instagram.

Emma 1:23:32
Yeah. Well,

Scott Benner 1:23:33
do you know who? I know for sure is real, what? Right now I could walk downstairs at this moment in my life. See my son, my daughter, my wife and two dogs. These are the people I know for sure are alive. That's it. My neighbors left to go somewhere a couple of days ago. They could be dead. I have no idea if they never came back. I wouldn't even think twice about it. I'd be like, I wonder why that house is like, just sitting there. That's maybe what I would think. Okay, so like, and if my neighbor, I'm using them as an example, because they're lovely people. And this is definitely not happening. If my neighbor was somewhere right now seated, and he had 20 people around him, he goes, I want to tell you a story about a mother named Scott, okay, and he was bad mouthing me, like he was using all the like, the favorites, like, I should just get up all my bad reviews and read them. He's saying those types of things about me, right? Like just a horrible person, and blah, blah, blah, blah, blah, and he doesn't care about these. Is a massages now, he had this girl on one time. She was a stripper. He talked about her boobs. What a idiot, all that stuff. Okay, by the way, she's a stripper. What do you want me to talk to her about physics? Also, she's a lovely girl, and I really like her, and, but that's not the point. Yeah, he's off in the world somewhere, trashing me right now, I'm unaware of it. Does it matter? It matters to you, doesn't it?

Emma 1:24:49
I think so. Yeah, I

Scott Benner 1:24:51
don't give a why would it matter? There's 20 people I've never met before, three states over my neighbors telling them bad stuff about me. Why does it matter? Her, Emma, you're not going to help me because you don't think, yeah, because you agree with me.

Emma 1:25:06
I do.

Scott Benner 1:25:08
When's this going to change? What do you think will happen that'll that'll shift you? I

Emma 1:25:12
think maybe when I like, have a family, when I have my own kids, when I'm I don't know, worrying too much about their life and I can't I don't just have to worry about mine.

Scott Benner 1:25:23
Is it wrong of me to say when you have something that's actually worth worrying about to worry about? No,

Emma 1:25:27
no, that's probably true. Okay, all right. Oh, this episode's

Scott Benner 1:25:31
gonna get me in a ton of trouble. I hope you're happy. I can't wait to see that. I can't wait to see the reviews. Let's see which one of you is wokest When you review my conversation with Emma. Good luck. You

Emma 1:25:41
think they'll listen this way, all this way. There's no

Scott Benner 1:25:44
way they make it to them. No, no, we lost them. They were already writing the bad review back when I said, I don't I don't want to apologize for having health insurance before I talk about something like, yeah, they're already like this motherfucker, although used like words that make them sound fancy? Yeah, you want me to read you the words. I can find it for you real quick. Gonna find the last bad review and tell you what they said. I'm sure the last social justice warrior who left her review called me a misogynist. On a second, we'll find out I have a daughter.

Emma 1:26:14
Wait, so where do they write these reviews?

Scott Benner 1:26:16
I gonna tell you that.

Emma 1:26:19
Why don't you delete that app. You

Scott Benner 1:26:21
can't, because I get a report about I have I'm a business owner. I get a report about them sent to me.

Emma 1:26:29
Well, delete those emails. Okay, well, I

Scott Benner 1:26:31
don't read them with Listen, do I sound worried about this review? No, oh, here. Oh, here's the last person that hit me on the here's my latest privilege email.

Emma 1:26:41
Oh gosh, take

Scott Benner 1:26:42
a shot. Lose weight one star. I assume they would have given me zero stars if it gave them the opportunity. Wait, that's all they said. No, that's the title. Oh, as a person with type one that has struggled with body image issues, listening to Scott talk about how great he looks and feels because of we go, V is getting really annoying. That was wearing capital is really an annoying. And they used, and I want to be clear, I don't want to get this wrong. 123, it looks like six exclamation points. So I think they really meant it. If only we could all just take a shot to lose weight. Check your privilege. I want the person to know who wrote that, that, when I read that, I laughed like a son of a bitch, like I was like, how could that possibly bother them so much that they were like, how do you leave a review for this podcast? I have a weight loss diary trying to help people understand what it's like to be on a GLP medication because a lot of people are using it. I'm being incredibly honest while I'm on there, because I don't think it's going to be helpful if I get on and pretend, and I also don't think it'll be helpful if I get on and apologize for 20 minutes every time before I say something that you need to know anyway. That was that was that one. A lot of these are really great. I don't want to lie to you these. A lot of these are actually fantastic. Five stars, incredibly helpful. Uh, thank you for doing this. Everyone should have the juicebox podcast. All right. Fairness, there's not a lot of bad but I don't know. I fully admit, I don't understand why anybody would leave a review for anything. I've listened to things that I've completely disagreed with, and it has never made me want to leave a review for it. I don't understand, like, your whole generation of like, my thoughts are so important, I'm going to put them here. You know, who sees those reviews? Nobody, and if they do, it's because they're trying to figure out if this podcast is going to help them with their diabetes. And you may have just talked them out of trying it. And by the way, I don't talk about a GLP medication in the Pro Tip series, the bowl beginning series, or a number of other places where people with type one diabetes learn how to be healthy and take good care of themselves. So I hope that person's happy they probably just killed a child. Can you hear sarcasm? Emma anymore? It's yeah, okay, it's

Emma 1:28:51
okay. That's so funny. Yeah,

Scott Benner 1:28:56
I'm done. Are you okay?

Emma 1:28:57
Yeah,

Scott Benner 1:29:00
you get me very chatty.

Unknown Speaker 1:29:02
I'm so glad. I

Scott Benner 1:29:03
appreciate this. Thank you so much. Hold on one second. You're just gonna keep talking. You're so amenable.

Emma 1:29:12
I'm I like I said. I don't have anything else going on today. It could be a six hour episode. I

Scott Benner 1:29:17
can't afford to edit a six hour episode. The guy that does these swear words you're gonna have to bleep out? Yeah, I can't even afford to run this one. But okay, hold on a second.

Arden started using a contour meter because of its accuracy, but she continues to use it because it's durable and trustworthy. If you have diabetes you want the contour, next gen blood glucose meter. There's already so many decisions. Let me take this one off your plate. Contour, next.com/juicebox Are you tired of getting a rash from your CGM adhesive? Give the Eversense 365 a try. Eversense. Cgm.com/juicebox, beautiful silicone that they use. It changes every day, keeps it fresh. Not only that, you only have to change the sensor once a year. So, I mean, that's better. Did you know if just one person in your family has type one diabetes, you're up to 15 times more likely to get it too. So screen it like you mean it one blood test. Can spot type one diabetes early. Tap now talk to a doctor or visit screened for type one.com for more info. I can't thank you enough for listening. Please make sure you're subscribed or following in your audio app. I'll be back tomorrow with another episode of The juicebox podcast. I want to thank you so much for listening and remind you please subscribe and follow to the podcast wherever you're listening right now, if it's YouTube, Apple podcast, Spotify, or any other audio app, go hit follow or subscribe, whichever your app allows for and set up those downloads so you never miss an episode, especially in Apple podcasts, go into your settings and choose, download all new episodes. The episode you just heard was professionally edited by wrong way, recording, wrong way, recording.com

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