Daddy's Blog Scott Benner Daddy's Blog Scott Benner

JDRF Walk: Tyler Park

When the walk began yesterday at 10 am we had collected $6,500!  Twenty-Four hours later as I type this the donations are still coming in!  Our current total (for now) is $6846!   

When I started ‘Arden’s Day’ I didn’t know exactly what it was gong to be.  At first it seemed like a great way to educate friends.  Then it became a great way to raise donations for the JDRF.  Now it’s all that and more!  People are approaching me to say what a profound effect Arden’s Day has had on them, so I’m going to keep it going.  We are going to sponsor a poker tournament, host a movie night, sell shirts and much more.  All of the proceeds will of course go to the JDRF.  So keep an eye on your inbox.

No words can truly express how grateful we are for all of the time and effort everyone gave to the walk.  If you donated, walked or passed the site on to a friend you helped raise this money!  And you did more then just generate donations.  The walk is full of people who have just learned that their child has Type I diabetes.  Last year that walk helped lessen the insane fear I felt after Arden was diagnosed.  Seeing all of those kids living with type I was a huge boost for me.  I like to think that we provided that same confidence to people yesterday.  You should all feel very proud! 

Please take a minute to read the names of the people that made our walk the success that it was...

One last thing: We owe a huge thank you to Jared Philips of Face It Studios for the fantastic drawing of Arden that he donated!  We used it on our walk team t-shirts and on thesplash page of ardensday.com.   I urge all of you to use Jared at your child’s next party.  He’s done a fantastic job for us countless times!  Thank you Jared!

Thanks for reading!  On to JDRF Walk  pictures and video.

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The following are archived comments from this post. You can post new comments below.

Megan
Great Job with the website!  Keep up the good work....
Tuesday, October 30, 2007 - 10:34 PM
Thanks Megan!  I'm starting to work on the Poker Tournament next week.
Wednesday, October 31, 2007 - 02:51 PM

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Lost in Newark, NJ

Q: What do get when you add a torrential rainstorm, 

Newark traffic on a Friday afternoon and a low blood sugar together? 

A: About 9 minutes left in a 15 minute long meeting with a Senator.

So Arden and I were late getting to the meeting with Senator Lautenberg.  In the end I don’t think it was any great loss.  There were a number of nice people there all wanting to thank the Senator for his support of diabetes research and funding.

We did see the inner-workings of two very nice parking garages on our journey...

Anyway,  I lost my opportunity to speak which may not be so bad.  I wasn’t there in search of a sympathetic ear, I had something I wanted to say and in the end I was able to leave my notes with the Senator’s Projects Specialist.  She promised to include my intended parting statement in the meeting minutes.  I think I’m happier that they’ll exist there, this way the message may be less fleeting.  Besides, the room wasn’t my intended audience... the Senator was.  Though the statement was to be the culmination of my thoughts, I’ll post them here.  Though out of context I think they still may be of value.

I believe transparency is the path to understanding.  Frankness while uncomfortable is paramount if we’re to have honest discourse.  That kind of raw conversation is our best chance of moving forward.  And not just in this situation but in every aspect of our lives. When we remove fear and misconceptions our differences disappear...  revealing our shared humanity.  Only then can real progress be made.

More picture have been posted in the scrapbook...  If Arden looks a little tired in the pictures it’s because her BG is low.  Turns out 3 of the kids in those pictures were hypoglycemic at the time. (pics were lost in site migration)

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The following are archived comments from this post. You can post new comments below.

Scott

One last thing:  Our team has the 13th most walkers registered in the Eastern Pennsylvania Chapter of the JDRF... and that's out of 150 teams!!  I'm so proud of all of you!  Thank you so much.

Tuesday, October 23, 2007 - 01:43 AM

 

 

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Arden's Team

 

These are the people that have signed up to Walk for Arden.  If you would like to support one or all of them just click on their picture and it will take you to their donation page at the JDRF’s website.  We sincerely appreciate your support!  

Join the team!

 

 

 

 

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Sixty Days!

‘Arden’s Day’ is two months old! 

Sixty days ago I barged into your inbox and began describing Arden’s diabetes to you.  My arrival was intentionally unexpected, uninvited and uncomfortable.  Just like diabetes was for us.

We tend not to think about the bad until it comes.  We don’t rock the boat... some think of it as not tempting fate, others just hoping the bad doesn’t find them.  The “bad” is random and without conscience.  It isn’t karma or poor judgement that brings it to your door... It’s just luck, the bad kind.

If I open my address book and scroll... I’ll see the names of friends, family and some people I’ve met along the way.  I’ll also see autism, diabetes, cancer,  infertility, depression and the premature passing of a wonderful woman.  As debilitating as these afflictions are, their most crippling aspect may be the isolation they bring with them.  Cells stop dividing correctly, a baby isn’t born the way you expected or an organ starts to fail.  Suddenly your life is startlingly different, forever changed.  It was already near impossible to stay in touch with friends and family as you grew older.  But now when you do get a chance to see each other, an awkwardness exists that was never there before.

It’s no ones fault.  People want to know how you are but don’t want to pry and you want to be treated normally but still need to know they care.  Soon politeness takes hold, platitudes erupt and that special something you had begins to erode.  This quiet avoidance is a disservice to you both, the bond you’ve built and the situation you find yourselves in.

It doesn’t have to be like that.  Speaking honestly and openly will make the bad seem just a little better.  Not sugar-coating your thoughts is perhaps the greatest respect you can offer a person in a situation like ours.  Transparency is the key, understanding is the goal and if you don’t understand... just ask.  

I’m not asking you to feel bad for us or guilty or sad.  I’m asking you to be moved.  I’m not telling you these things to garner pity, I don’t want or require it.  I’m telling you so you’ll help, not just monetarily but also by understanding.  I’m asking you to teach your children not to feel awkward when they meet Arden or another child with a reality that’s different then theirs.  This isn’t accomplished in a few minutes by reading a blog or with a lecture, it’s accomplished slowly, by example.

I’m doing this to help people and yes hopefully with a cure but just as well through enlightenment.  I don’t want Arden to know a day where she’s thought of as anything but Arden.  Long after the JDRF’s Walk to Find a Cure is finished, Arden’s Day will still be here.  I am going to continue to talk... to friends and family, to Senators and Congressmen.  I’m going to keep talking until everyone knows.  Knows that transparency leads to understanding, that frankness while uncomfortable is paramount and that honest discourse is the only way we move forward.  

**

The following are archived comments from this post. You can post new comments below.

Tami
All I can say is "WOW"
Monday, October 15, 2007 - 10:07 AM
mom
scott keep up the good work i am so proud of you and the thoughful way you are telling ardens story
Monday, October 15, 2007 - 10:24 AM
Barb
Scott - I'm so impressed with this site. Cole and Arden's gain having you is some marketing company's major loss!  This site is so though provoking and from the heart. 
I can't wait to hear about Miss Arden's meeting with the Senator!
All the best, Barb
Monday, October 15, 2007 - 08:39 PM

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World Diabetes Day

From the World Diabetes Day Website:

Celebrate the first United Nations observed World Diabetes Day

On December 20 2006, the General Assembly of the United Nations passed a landmark Resolution recognizing diabetes as a chronic, debilitating and costly disease. The Resolution designates World Diabetes Day as a United Nations Day to be observed every year starting in 2007.

The UN Resolution makes World Diabetes Day stronger than ever and provides the opportunity for a significant increase in the visibility of the campaign and an increase in government and media participation on or around November 14. The Resolution will ensure even greater reach for awareness-raising activities throughout the diabetes world.

Diabetes in Children and Adolescents

The theme of this year's World Diabetes Day campaign is Diabetes in Children and Adolescents.Diabetes is one of the most common chronic diseases of childhood. It can strike children at any age, including pre-school children and even toddlers. Yet diabetes in children is often diagnosed late, when the child has diabetic ketoacidosis (DKA), or it is misdiagnosed completely. In many parts of the world, insulin, the main life-saving medication that children with diabetes need to survive, is not available (or is available but remains inaccessible for reasons of economy, geography or constraints on supply). As a consequence, many children die of diabetes, particularly in low and middle-income countries. Those closest to the child - family, school staff, family doctor - may not be aware of the ominous signs. The World Diabetes Day 2007 and 2008 campaigns set out to challenge this and firmly establish the message that ‘no child should die of diabetes'.

Today, more than 240 million people worldwide are living with diabetes. Within 20 years, this number is expected to grow to 380 million. Children are not spared from this global epidemic, with its debilitating and life-threatening complications. Type 1 diabetes is growing by 3% per year in children and adolescents, and at an alarming 5% per year among pre-school children. It is estimated that 70,000 children under 15 develop type 1 diabetes each year (almost 200 children a day). Of the estimated 440,000 cases of type 1 diabetes in children worldwide, more than a quarter live in South-East Asia, and more than a fifth in Europe. Type 2 diabetes was once seen as a disease of adults. Today, this type of diabetes is growing at alarming rates in children and adolescents. In the US, it is estimated that type 2 diabetes represents between 8 and 45% of new-onset diabetes cases in children depending on geographic location. Over a 20-year period, type 2 diabetes has doubled in children in Japan, so that it is now more common than type 1. In native and aboriginal children in North America and Australia, the prevalence rate of type 2 diabetes ranges from 1.3 to 5.3%.

Diabetes is different for children

Diabetes has a unique impact on children and their families. The daily life of children is disrupted by the need to monitor blood glucose levels, take medication, and balance the effect of activity and food. Diabetes can interfere with the normal developmental tasks of childhood and adolescence, which include succeeding in school and transitioning to adulthood. To help the child and family cope, and to ensure the best possible physical and emotional health of the child, care should be delivered by a multidisciplinary team with good knowledge of paediatric issues. Support must also be given to caregivers and to school personnel. In this way, children with type 1 or type 2 diabetes can reach adulthood with as little adverse impact as possible on their well-being. For children with diabetes in developing countries the situation at present is bleak.

The campaign aims to raise awareness of the rising prevalence of both type 1 and type 2 diabetes in children and adolescents. Early diagnosis and early education are crucial to reducing complications and saving lives. The healthcare community, educators, parents and guardians must join forces to help children living with diabetes, prevent the condition in those at risk, and avoid unnecessary death and disability.

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