Daddy's Blog Scott Benner Daddy's Blog Scott Benner

Vote for Sierra Sandison so she can #ShowMeYourPump on Television

Vote for Sierra Sandison to put an insulin pump wearing contestant on television during the Miss America Pageant. Takes 5 seconds, no kidding.

People's Choice: Miss America

There will only be 15 contestants featured on television during the Miss America pageant next month and WE have the ability to vote for one of them... 

It takes less than 5 seconds to vote: Let's use those five seconds to propel Sierra Sandison, our favorite insulin pump wearing pageant contestant, into the top 15!

VOTE, VOTE, VOTE!

Just click on this link and check the only option you will see (it says, "Click here to vote for Miss Idaho 2014 Sierra Sandison), then press the "Finish Survey" button and you are done, it's that easy. Voting ends on September 12th.

Let's all help Sierra take #ShowMeYourPump from the Internet to your television and give her the chance to tell the world what that thing on her hip does.

After you finish please share the People's Choice news with your friends any way that you can. Use my social media share button below, write a note on your favorite social media platform and include this link - http://bit.ly/SS-AD - or shout from the highest mountain!

#DOC 

#ShowMeYourPump

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Daddy's Blog, HuffPostBlog Scott Benner Daddy's Blog, HuffPostBlog Scott Benner

Social Media is Amazing (and so are you!)

Follow the Butterfly...

One June evening Arden walked into our living room and commandeered our TiVo remote. As she settled into our sofa she announced, "The softball World Series is on TV"... we all sat together and watched Alabama take on Florida.

Follow the Butterfly...

One June evening Arden walked into our living room and commandeered our TiVo remote. As she settled into our sofa she announced, "The softball World Series is on TV"... we all sat together and watched Alabama take on Florida.

The next day I received a Facebook message from an Arden's Day reader telling me that Alabama's catcher, Molly FIchtner, has type I diabetes.

That message prompted me to reached out to Molly on Twitter the next day, I asked her if she would be interested in doing an interview with me for Arden's Day and Huffington Post Sports.

A few days later Molly and I spoke on the phone where, for over an hour, I found Molly to be inspirational, clear-minded and in possession of a drive that one doesn't often come across. I immediately sat down to write her story and posted it on Arden's Day the very next morning, Huffington Post Sports followed a few days later.

Molly's story received thousands of Facebook shares and likes and hundreds of tweets were sent from people who wanted to spread the word about Molly. In the diabetes community, the JDRF tweeted, as did The Joslin Diabetes Center and countless people who live with diabetes. In kind, the softball community got the word out too. Players, colleges and travel teams alike all spread the word about Molly. The NCAA even sent a tweet that included a photo of Molly, complete with a quote that she gave me during our interview. - "Be determined to take your ability as far as it can go."

Molly

Then yesterday I received a new message on Facebook, one that delighted me and showed the power of community, positive influences and the power of sharing online. The message was from a mother who's child does not have diabetes, she told me that her daughter's softball coach recently emailed his entire team a link to an interview that he wanted them to read... My interview with Molly.

I'm proud to be a diabetes blogger, and I'm touched that you all take the time to read and share. I wanted you to know that your participation in our community does more than just help you and your family. You are part of something that is much larger, an interconnected process that is bringing hope, relief and guidance to families just like yours and mine - and beyond.

Have a wonderful weekend!

My best,



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Arden's Day of Diabetes: #DayofDiabetes

Around a year ago the JDRF did this cool thing where people could sign up for text alerts that were meant to simulate having diabetes - so people could understand better the relentless nature of living with type I. I loved that idea, but how could I not? That's exactly how I started Arden's Day. 

Six months ago some wonderful folks did it again on Twitter using the hashtag, #DayofDiabetes and I loved the idea even more (Twitter is perfect for this) and participated in the event. Those same people brought up doing it again today - I'm in.

I'll be tweeting, Facebooking and refreshing this blog post all day whenever diabetes requires interaction. I wonder what kind of day with diabetes this Day of Diabetes will be?


ArdensDayofDiabetes1.JPG

Midnight: My day with diabetes began around midnight when a late evening bolus just would stop. Managed temp basal rates to get Arden's BG to 110.

4 AM: Up again to set more decreased temp basals. Finally gave up around 5 AM and gave Arden some juice (1/4 of a box) . Ended up staying awake because the juice wasn't working. Of course, the juice I added at 6 AM ended up being too much - figures.


7 AM: Up for school and now blousing to stop the BG rise from the second juice sips. CGM now 160, arrow straight up. Juice sips worked too well!


7:50 AM: Replaced juice box in Arden's bag (Used it last night for a low during softball pitching practice), set a timer for 45 minutes on her phone. Going to try and eliminate high BG (190 CGM) before school snack at 9:30 am.


8:28 AM: Blogged about diabetes


9:07 AM: Just texted with Arden, need her to test her BG. She told me to "wait five minutes" apparently they are in the middle of a contest. #DayofDiabetes


9:30 AM: Arden and I texted for her school snack. BG was 190, stubborn this morning. We boluses for 30 carbs. I asked her to test, she wanted to bolus from CGM. She said, "Fine I will but if they match I will poop on you" - I hope she meant the emoticon. They matched BTW.


11:00 AM: Lunch time text.


1:48 PM: Post Gym #CGMnow is 97. Temp basal off for 30 min and a few carbs should hold it there. We’ll see. #DayofDiabetes


2:30 PM: Arden will be home soon. Time to pack a bag with supplies so we can go watch her brother play baseball for the school team. I don't remember what it feels like to run out the door with just my wallet and keys. #DayofDiabetes 


3:16 PM: So the one day I try to outsmart an after school drop in BG... diabetes does the opposite. 185 and creeping up. Damn


5:07 PM: Some mini muffins will stop the bg fall. Only bolusing for half. #DayOfDiabetes


6:30 PM: Made a wild guess about dinner carbs on the way to a restaurant. Needed the pre-bolus time to work on a slightly elevated BG. I won't know hoe well I guessed for about 90 minutes.


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Daddy's Blog, OmniPod Blog, Type I News Scott Benner Daddy's Blog, OmniPod Blog, Type I News Scott Benner

FDA and the Diabetes Patient Community

Patient Network Live Chat: Diabetes - Glucose Monitors and Test Strips


Talk with FDA expert Courtney Lias and
Patient Advocate Bennet Dunlap (Yea Bennet!)
about Glucose Monitors and Test Strips

Monday, March 31, 1:30–2:30 pm (EDT) Talk, share, and connect with the

FDA and the Diabetes Patient Community


Do you want to learn more about the role of the FDA in the regulation of medical devices, such as glucose monitors and test strips, used in the management of diabetes? Do you want to learn what the FDA is doing to increase the accuracy of blood glucose monitors and test strips?

When you participate in this friendly online chat, you will:

Enjoy an informal, open discussion with a fellow patient advocate, CDRH subject-matter-expert and others in the diabetes community.Learn more about the role of the CDRH, specifically the Office of In Vitro Diagnostics and its work to ensure the safety and effectiveness of medical devices used in the management of diabetes. Get your questions answered about the newest FDA draft guidances, which are proposing new recommendations intended to improve the accuracy and safe use of blood glucose monitoring test systems, giving healthcare providers and people with diabetes better tools to manage blood glucose levels.

Whether you want to just listen to the interview, ask relevant questions about the medical device regulatory process or just speak your mind on the newest draft guidance document…. you should join in the conversation.

Register for this event and be sure to mark your calendars and join us on March 31st, 2014.

link to original text on FDA.gov

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Evolution of a Blog

Arden's Day began in the summer of 2007 - it was never intended to be what it has become.

There have been two moments in the evolution of this blog that I see as pivotal. The first came after I became disenchanted about blogging. I was certain that there were plenty of people in the world doing what I was and that the community didn't need my voice. This feeling came to me after I read a number of blogs during 'Diabetes Blog Week' and saw many similarities between my writing and the other people participating in blog week.

I did stop writing for a short while, but I missed it so much.

When I realized how much I missed writing and contributing to the diabetes community, I searched for a way to share that I didn't think was repetitive. 

Things were going along just fine until one day a reader told me something that changed everything...

I was speaking on the phone with a mother when she told me that sometimes she can't read the blog because it made her feel badly about how she was handling her child's diabetes.

I was momentarily confused, but she went on to explain that when things go right for us it can magnify when things go wrong for her. In short, hearing about good things sometimes made her feel like failure.

Well, that was about the most debilitating thing that I could have heard, but I understood. I gave that conversation a great deal of thought and then began to share everything, even the moments that made me feel like a failure.

These two moments have shaped everything that I've done here on Arden's Day, they transformed my writing and they are the only reason that my book is well received. Saying that I am grateful doesn't begin to cover it. Two moments, two people that opened me up to a part of myself that I was ignoring - it changed my life.

If you like this blog, you have Diabetes Blog Week and a mother who wasn't afraid to say that she felt like she was letting people down, to thank for it. Makes you wonder, doesn't it? Who or what are you effecting and where will it all lead?


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