#1483 Small Sips: Just Smile and Wave
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Not everyone understands diabetes—acknowledge advice politely but stick with what works for you.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends, welcome to the sips series.
These foundational strategies were nominated by listeners. They told me, these are the ideas in the podcast that truly made a difference for them. So I distilled them down into short, actionable insights. There's not going to be any fluff or complex jargon, just practical, real world diabetes management that you can start applying today. And I know your time is valuable, so we're keeping these short. Another small sip will come out once a week for the foreseeable future. If you like what you hear, check out the Pro Tip series or the bold beginning series for more. Those series are available in the menu at Juicebox podcast.com and you can find complete lists of all of the series in the featured tab on the private Facebook group. Please remember that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. The questions you have, I guarantee you there's answers to them in the Juicebox Podcast, and it's all free. You
I wasn't sure if I ever spoke about this with you, but I did in bold beginnings, medical team episode, 1117
Jennifer Smith, CDE 1:37
Okay, you'll have to tell me what I clearly don't know. The numbers.
Scott Benner 1:42
It's also come up in episode 357, and 679, 357, was actually called just smile and wave. So I would see people online have these, like, great achievements with their diabetes. They, you know, had a seven and a half a 1c they listen to the podcast. All of a sudden they had a six and a half a 1c they'd go to the doctor, and the doctor would immediately try to turn like, take away insulin. They're like, Oh, you're getting low. Because the doctor could not imagine that they did something purposefully, right, right?
Jennifer Smith, CDE 2:16
Achieved it without lows, right? It was just, I'm aiming too low now. And so, of course, my a 1c reflects that, because it is just an average. Yeah, so you must be having a whole bunch of blood sugars that are way too low rather than goodness. Let's look at your data to actually evaluate how you did that. Yeah. And wow, look, you're more stable. There aren't really any lows in the picture,
Scott Benner 2:38
but yeah. And it's not uncommon for people to stand in their doctor's office and then be forced to say something that I fully admit, and I think anybody would admit, probably sounds crazy in a doctor's office, which is, no, I found a podcast and I listened to it, and now my a one sees better and look like, look at my graph. I'm not like, you know, I'm not coming by this, you know, by having a bunch of lows and then a bunch of highs and a balancing out, like I'm actually, like, I learned how to keep my blood sugar stable at a lower number and everything. Now, some doctors will take your pump from you and change your settings. Some people get told their settings are going to get changed. They don't want them changed, but they don't have, they have that little bit of that white coat, right? Like they're scared of the doctor, so they just, they just go along with it. What were you gonna say? I
Jennifer Smith, CDE 3:25
was gonna say, you saw me like cringing with the take the pump and touch it. I think I've said before when we've talked, I feel very much when somebody in the past, eons ago, because I don't let them do that anymore, eons ago, they would take it, and I felt like they were touching me. Yeah? Because the pump is a it's a piece of me. It's almost like a body part, right? And in taking it, it's like removing it from the room. It's like, it's like taking your baby, your newborn baby, and taking it out to do tests, and you're the new parent in the room thinking, what are they doing to my poor child when I'm not there? You know? Yeah, that's how I felt about it. And I just I learned to put on my big girl pants, and I was like, I'm so sorry. I printed my reports for you. Here they are. You don't need to download my pump. I
Scott Benner 4:13
have learned and and still have to remember sometimes. But I asked permission to take Arden's phone I used to like because it occurred to me. It's funny you say like this, because at first it occurred to me like she didn't want to be told what to do. But I wonder how much of it might be like, No, this is me, like you're changing my body. If you touch this phone, you know, right, beyond that, beyond just like, you know, hey, I want to change your settings. There's other things. People come in and say, like, you know, I'm bolusing now for fat and protein, and some doctors have never heard that before, and they'll go, you can't do that like so any situation where you're with somebody medical or otherwise, even maybe your mother in law, who's trying to tell you that if you just put ashwagandha up your nose, that kid's diabetes will go away, or whatever, you know, whatever, there's more synonyms, right? That's. You know, you just haven't washed his hair enough with Berberine. Any situation you find yourself in, what I tell people to do is smile and wave. And it's getting to be a very old reference at this point, but there's that animated movie Madagascar, and the penguins are very mischievous, but when people look at them, they just put this big, dumb smile on and wave. And their leader, when they get they got caught doing something, their leader goes, just smile and wave. Boys, just smile and wave. And that's how I think of all of these situations. We want to make your basal lower. Okay, that's fine. Yeah, you know, have you tried having her tap dance on a piano? My grandmother's cat's diabetes went away after it danced on a piano one time. Oh, thank you. Thank you. That's lovely. Thank you. And then you leave the room and either talk about that person behind their back or you put your settings back. The amount of people who have sent me a note that said I listened to this podcast. I made changes. I went to the doctor. The doctor changed them back. I stopped in the parking lot and put those settings back, and anyway, just smile and wave. That's my advice in situations like this.
Jennifer Smith, CDE 6:13
No, it's a great and I usually say if they are wanting to touch your pump because they think you don't know how to use it. Have them tell you what to adjust and you push the buttons, therefore proving you actually know what you're doing with your device. Right? You are visually showing them. I'm not a dummy. Just because you have a white coat doesn't mean that I don't know what I'm doing. I wear this product, 24/7, it never leaves my side. At two o'clock in the morning, I know what to do when it alarms me. You're not there, right? And if they really want to give you the settings, then have them write them down, print them out on your you know, end of appointment summary. You can change. Say, I will change these when I get home or whatever, but if it's me, like you're not touching,
Scott Benner 7:05
well, my takeaway from smile and wave is this, if you truly know better on any subject and you're not looking to have an argument with somebody, you can just placate them. Yeah, and that's it. Now, for those of you who have a genuine inability to go against something a physician has told you. I think that the reason that this is on the list from people who have listened to the podcast and said, Here's a thing that's really helped me. I think this has really helped that type of person very likely to say, I know what I'm doing. You're not going to push me off what I know. So Right. Anyway, just smile and wave. Boys, just smile and I like
Jennifer Smith, CDE 7:40
it smiling. Wait,
Scott Benner 7:50
if you're ready to level up your diabetes care, the diabetes Pro Tip series from the Juicebox Podcast focuses on simple strategies for living well with type one, the pro tip episodes contain easy to understand concepts that will increase your knowledge of how insulin works. And so much more, my daughter has had an A, 1c, between five, two and six, four, since 2014 with zero diet restrictions, and some of those years include her in college. This information works for children, adults, and for the newly diagnosed and for those who have been struggling for years, go to Juicebox podcast.com and click on diabetes pro tip in the menu, or head over to Episode 1000 of the Juicebox Podcast to get started today with the episode newly diagnosed, we're starting over and then continue right on to Episode 1025 that's the entire Pro Tip series. Episode 1000 to 1025 if you're newly diagnosed, check out the bold beginnings series. Find it at Juicebox podcast.com, up in the menu in the feature tab of the private Facebook group, or go into the audio app you're listening in right now and search for Juicebox Podcast, bold beginnings. Juicebox is one word. Juicebox Podcast, bold beginnings. This series is perfect for newly diagnosed people. If you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. You.
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#1482 I Be Only One
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or wherever they get audio.
Despite a rocky start, she quickly taught herself and is thriving as a sign language interpreter—we even explored adding sign language to the podcast.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome back to another episode of The Juicebox Podcast.
This is Michael as she was diagnosed at 22 years old. She's 24 now. She had a bit of a rocky diagnosis, but came along pretty quickly, taught herself a bunch is doing great. She is a sign language interpreter. We talked about her maybe doing sign language for the podcast, which is awesome. This is her story. I hope you enjoy it. Nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code Juicebox at checkout. That's Juicebox at checkout to save 40% at cozy earth.com AG, one is offering my listeners a free $76 gift. When you sign up, you'll get a welcome kit, a bottle of d3, k2, and five free travel packs in your first box. So make sure you check out drink, AG, one.com/juice, box to get this offer. Are you an adult living with type one or the caregiver of someone who is and a US resident? If you are, I'd love it if you would go to T 1d exchange.org/juicebox and take the survey. When you complete that survey, your answers are used to move type one diabetes research of all kinds. So if you'd like to help with type one research, but don't have time to go to a doctor or an investigation and you want to do something right there from your sofa. This is the way t 1d exchange.org/juice box. It should not take you more than about 10 minutes. This episode of the juice box podcast is sponsored by Medtronic diabetes and their mini med 780 G system designed to help ease the burden of diabetes management. Imagine fewer worries about mis Bolus is or miscalculated carbs thanks to meal detection technology and automatic correction doses, learn more and get started today at Medtronic diabetes.com/juice box. I'm having an on body vibe alert. This episode of the juice box podcast is sponsored by ever since 365 the only one year where CGM, that's one insertion and one CGM a year, one CGM one year, not every 10 or 14 days ever since cgm.com/juicebox
Michaela 2:38
Hello. My name is Michaela, and I was diagnosed with type one diabetes just two years ago, actually, and you're how old now I'm 2424
Scott Benner 2:44
Okay, how did you figure out you had type one it
Speaker 1 2:48
was a six month process of me ignoring all of the symptoms, but it was April of 2022 that I got COVID, And it was not any real severe COVID symptoms. But what happened for me? It was just a extremely high fever for multiple days, like, I think it was about 104 and I could barely get it to go under 101 for three days. So that happened, and then I, you know, was fine, and I carried on with my life. I graduated in May of 22 and I thought life was grand. But in that process, I was slowly losing weight, and it was a slow process at first, but it, I noticed it. I just thought it was because I was being careful. I was like, trying to work out I'm graduating soon. I wanted to look nice for graduation, and I always worked out anyway. I always tried to eat healthy, but I was just being a little bit more cautious. And so I thought, oh, that's what's doing it. And then summer came around, and I'm a surfer, so I surf a ton, and I was surfing a lot and losing more weight, drinking a lot of water, but I thought, Oh, I drink more water, I lose weight. And I, you know, I'm surfing a lot, so I'm losing weight. Kind of fast forward, I wound up going to the doctor, not because I was losing weight, not because of all the other symptoms I had, but because I wound up with oral thrush, which is something that babies get, but it's like that infection in your mouth, where it like causes a bunch of sores and everything. You're not
Scott Benner 4:09
the first person to mention that before being diagnosed, by the way, yeah,
Speaker 1 4:13
I think I've heard a few people mention it on here, but that's what actually got me to go to the doctor and was like, Hey, I'm concerned about my mouth and nothing else, because
Scott Benner 4:21
it was my mouth painful and unpleasant. You're like, well, this I'm not living with right? Yeah. And
Speaker 1 4:26
I was, I was just like, I don't know what's going on. At first. I was like, mouth cancer. How would I get that? Like, I'm so confused. So like, not what it was.
Scott Benner 4:34
My elbow hurts for two days, and I'll go to my wife. I'm like, I definitely have cancer in my elbow. And she's like, I don't think that's a thing that happens to people. And I was like, All right, well, my old Well, my elbow hurts for sure. Yeah, right. So you go to what kind of a doctor? Well,
Speaker 1 4:46
my primary care is always busy, and I don't love my primary care doctor. I've just kind of kept her because I don't have to see her that much.
Scott Benner 4:54
I would love it if she could know that that's like, it just must be so, like, crushing to hear something like that. But. Anyway,
Speaker 1 5:00
I think I've seen her once or twice since I became non pediatric, so I was every other time it's like, sometimes she's great, and then other times I'm like, I don't I didn't really get much this day, so I
Scott Benner 5:11
gotta stop you. You and I are gonna get along so well. You just said non pediatric for being an adult. That was the one you're like, Oh. You're like, when I became non pediatric and I was, like, an adult, yeah, that's awesome, yeah. So you've got this woman in your back pocket in case something goes desperately wrong, yes. And what
Speaker 1 5:33
else, I guess I should preface though, whenever I see the doctor, I do have hypothyroidism that I was born with, I go to see my endo a lot, so anytime I need lab work, it's her. So that's why I don't see my primary care that often. Oh, Michaela,
Scott Benner 5:44
we're gonna pivot for a second. Okay. How did they figure out a newborn has hypothyroidism?
Speaker 1 5:49
They just ran a bunch of blood work, and at five days old, they found out. Well, I don't I think that's it might have been earlier than that, but basically, from the time I was born, they said, Yeah, her thyroid is not working right? It was under developed in your womb, and so it's just small, and it's not going to provide all that she needs. So here's medication. She'll take it every day. And so I was on thyroid medication since I was five days
Scott Benner 6:10
old. No kidding, yeah. Have you ever had it checked? Like, is it Hashimotos, or is it just hypothyroidism, or is it like something different?
Speaker 1 6:18
I've never had it checked. I believe it's not Hashimotos unless that appeared, but I don't know that. I would know because I already have hypothyroidism, so I don't think I'd really tell a difference. I've never had it checked, though. I did get my thyroid ultrasound done not too long ago, and they just said, yeah, it's all there. It's just really small. It just doesn't it's not big enough to produce enough of the hormone. So I this
Scott Benner 6:40
is going to be, I hope this is important to people, but I think I feel like I need to know this. So like, if you are born, hold on a second, I'm going to ask our friend, you know what I mean? Oh yes, if you are born with an undersized thyroid, what is that called? So that gives you congenital hypothyroidism, or thyroid hypopalocy refers to an undeveloped, small thyroid gland. Okay, could this person later get Hashimotos? Because I don't see why you couldn't be born with because, yeah, because, right. It says, Yes, someone with undersized thyroid or congenital hypothyroidism could later develop Hashimoto thyroiditis. I'm sorry. I don't know why I'm so excited by stuff like this, but I guess I'm the right person to make this podcast. It's interesting, because if you were born with a congenital issue and developed 22 years later an autoimmune issue, would it matter if you contract Hashi motors, or would you never even know? I feel like
Speaker 1 7:46
I would never know my thyroid. I feel like it's constantly changing anyway, really as yeah, as I got older, it kind of slowed down. But I do tend to change my medication probably every two years. Sometimes amounts
Scott Benner 7:58
you go up, yeah, and do you take just t4 do you take t4 t3 I
Speaker 1 8:03
just do t4 I did try t3 right after I got COVID, and I thought it was giving me blurred vision, so I stopped it. And I think that was the diabetes, but I haven't gone back since.
Scott Benner 8:15
Do you feel like you're not making teeth? You take the t4 but it needs to get translated to t3 some people like that process doesn't work as well for them. But like, what made you try the t3 were you like, overly tired? Couldn't get rested, but your TSH was good. When you think of a CGM and all the good that it brings in your life is the first thing you think about. I love that I have to change it all the time. I love the warm up period every time I have to change it. I love that when I bump into a door frame, sometimes it gets ripped off. I love that the adhesive kind of gets mushy sometimes when I sweat and falls off. No, these are not the things that you love about a CGM. Today's episode of The Juicebox Podcast is sponsored by the ever since 365 the only CGM that you only have to put on once a year. And the only CGM that won't give you any of those problems, the Eversense 365 is the only one year CGM designed to minimize the vice frustration. It has exceptional accuracy for one year with almost no false alarms from compression lows while you're sleeping, you can manage your diabetes instead of your CGM with the ever since 365 learn more and get started today at Eversense cgm.com/juicebox, one year one CGM. Today's episode is sponsored by Medtronic diabetes, who is making life with diabetes easier with the mini med 780 G system, the mini Med, 780 G automated insulin delivery system, anticipates, adjusts and corrects every five minutes. Real world results show people achieving up to 80% time and range with recommended settings, without increasing lows. But of course, Individual results may vary the C. 780 G works around the clock so you can focus on what matters. Have you heard about Medtronic extended infusion set? It's the first and only infusion set labeled for up to a seven day wear. This feature is repeatedly asked for, and Medtronic has delivered. 97% of people using the 780 G reported that they could manage their diabetes without major disruptions of sleep, they felt more free to eat what they wanted, and they felt less stress with fewer alarms and alerts you can't beat that. Learn more about how you can spend less time and effort managing your diabetes by visiting Medtronic diabetes.com/juicebox
Speaker 1 10:39
Yes, yes. And my t3 was a little bit lower, not too low, but lower. And ever since I was a kid, my mom always she was like her t3 is off. She's not right. She needs a higher dosage to fix her t3 and as a kid, I never did t3 and t4 but she knew that the level of t3 was what affected my mood, my personality and everything. And so she would get my endocrinologist at that time to raise my level just a little bit, or my dosage a little bit so that it would raise my t3 and that worked just fine. I never had to take a supplement. But when I got to be older, that wouldn't work. And my endo was like, I can't raise it anymore, or you'll be too high. So let's try a t3 supplement instead. But I wound up feeling like I had blurred vision. And so I said, Is this a symptom of this medication? Should I stop? She goes, Yes, just stop it. Tell me how you feel. If we need to readjust, we'll figure it out. And I felt fine, and my blue, my blurred vision went away. So I thought that was what it was, but I'm assuming it probably wasn't. So you
Scott Benner 11:36
have cytome in the house, and you're thinking, maybe I'll try it again or no, I've thought
Speaker 1 11:43
about it, I just haven't really noticed anything that I'm like, needing it for right now. Wouldn't
Scott Benner 11:49
then, like, you're not losing hair, you're not super tired, even though you sleep stuff like that, right? Oh, cool. Then maybe you're good, yeah? Awesome, awesome. Okay, I appreciate you taking that left turn with me, yeah. So we've got thrush and we're going to the doctor, so let's go back to that.
Speaker 1 12:05
Yeah. So I went to the doctor in November. So it took me from April to November to do something about any of my symptoms. I wound up getting lab work. At the beginning of November, got my lab work back, and he ran a full panel because I had told him, like, you know, I've also been losing a lot of weight, like, I think it's just because I'm drinking more water, but can we check my thyroid and anything else that you think needs to be checked? Oh, backtrack a little bit when I said that I didn't see my primary care doctor. I just called my insurance and said, Can you just get me in with any doctor that's available? Tomorrow,
Scott Benner 12:38
I'll take anyone available. Hey, can I ask you a question? How many people have you seen lose weight just drinking water?
Speaker 1 12:44
Not many. I'm going to be honest, I just liked being able to eat whatever I want, stay skinny and lose weight, and I was living my best life. I honestly didn't think I felt that bad, and I was honestly that put my mood so high that I ignored everything else and thought life was grand. How much did you lose? About 30 pounds on how tall 520 my
Scott Benner 13:06
gosh. You must have been like, This is it. I'm finally going to be a runway model.
Speaker 1 13:10
I was to the point where I was like, this is getting a little concerning. Oh, at the end, at the end, because I had people telling me that they think that I'm looking a little too thin. And I was like, I can't do anything about it. Like, this is just how my body is.
Scott Benner 13:24
Now. I'm just a thin person, and you're jealous. And
Speaker 1 13:28
they were very kind about it. It was like, loved ones and family. But I was like, I don't know what to say. And I've always been a pretty muscular person, especially in my arms, I tend to gain muscle really easily, and I lost all my muscle everywhere. And I thought that was also normal, because that comes with weight loss, obviously,
Scott Benner 13:44
wow. And you're young too, and you know what I mean? Like, not that young people don't understand you actually sound incredibly mature for 24 I don't know if you know that or not. People tell you that I think. No, no, mature. Like, thoughtful, oh, okay, not like you're gonna make tea and sit around and watch the programs with me or anything like that. But do you find yourself to be that way? Yeah,
Speaker 1 14:03
I do. I do tend to find myself gravitating towards more like mature relationships, too.
Scott Benner 14:08
Yeah. No, I hear it in your voice. I don't know how that's the thing I can hear in your voice, but I think I do. You go to the DR du jour and they run a bunch of labs and tell me where that goes from there.
Speaker 1 14:20
So the lab work comes back, and they run a full panel. And so, like, everything was just like, high through the roof, looking bad, like I was ill, dying, etc. And so I was more concerned about my cholesterol and triglycerides, because they were, like, ridiculously high. And I was like, Oh my gosh, I'm gonna have a heart attack. I'm gonna die. Like, I was like, I was like, What is wrong with me? I was like, I'm so thin now. Like, how could anything be wrong? That's I just equated thinness to the health. And so I did see the A, 1c, and I knew it was high, but I was like, oh, 17.4 I don't know what that means. I'm sure it's not that bad. I'll just cut back on the sugar. Like I had no idea. What that meant. So I was more concerned about the cholesterol, and because I had him test my thyroid, my endocrinologist, who she doesn't specialize in diabetes, really, she has, she worked someone who does. She's a nurse practitioner, and I don't know how to really relate that, but she's knowledgeable to the extent she has to be about diabetes, but not in this in to the extent where she like takes on diabetic patients to manage their diabetes. And so she was looking at my my lab results, to look at my thyroid. And she said, your thyroid looks good, but all of your other lab work is concerning. Let's redo it. And so I said, Okay, I did notice that my thyroid was a little bit lower, like it was not on the low end, but it was a little bit lower than what I wanted. And she said, I asked her, Can this cause all of my other work to be this high, like, Can my thyroid being low cause this to mess up the rest of my lab work? She goes, yes, but not to that extent. So we redid it, and like, two days later, it was a 16.9 so not much had changed, although I was surprised. It went down that much in two days, and then I wound up not knowing what that meant. When I got the lab work back, I got a call from my insurance saying, Hi, your insulin is ready for pickup.
Scott Benner 16:05
Got the wrong person. I'm Michael, 22 years old, by the way, I don't watch programs and I don't need insulin. Did you hang up on them? Or do I mean, how does that? That's a weird call to get. No, yeah.
Speaker 1 16:17
Well, I because I saw my lab work, I knew what it was, and I the doctor, Google told me this wasn't good, but I didn't know exactly what it meant. And I pretty much knew from what I read that it was going to be type one diabetes, but I really didn't know for sure, and I was holding on to every hope I had that it wasn't, yeah,
Scott Benner 16:34
you're like, this might be from surfing. I'm just gonna wait. Yeah, who knows? I'm gonna take a little side note here. So high cholesterol, high triglycerides, in undiagnosed diabetes, is primarily due to metabolic disturbances caused by insulin resistance or insulin deficiency. I could tell you more about it, but, I mean, I think people would generally be bored. There's roles in like lipid metabolism that lead to these all different kinds of issues, but it's actually like a known thing that has a name. It's often referred to as diabetic dyslipidemia. I think I got that right. It's a hallmark, it says, of increased blood sugars out of control. Like, let me, let me read the breakdown here for you at the end, lipid abnormalities can occur if the condition is undiagnosed or not well controlled. So if you can see this with undiagnosed diabetes or diabetes, that's just, you know, not getting the insulin that it needs. Interesting, I brought that up and kind of stretched it out, because I don't know that anybody's ever said that before, and I thought it was worth making the point here. Yeah,
Speaker 1 17:35
I definitely assume I got my lab work done after that, and everything went back to normal. So I was like, Oh, that was definitely the uncontrolled diabetes, but, but
Scott Benner 17:42
isn't it interesting, though? Like, because what it's making me think is, if I'm a person with type one who has, you know, some of these lab values, you know, they're just going to medicate it, right? Like, they're not going to say to you, like, hey, what if we worked on, you know, giving you a lower, more stable, a 1c and less variability. Like, they're just gonna say, Oh, you've got cholesterol. Let's take cholesterol medicine. If you have, you know, triglycerides, let's do this. No, it's that's worth people hearing. I think. Okay, so the insulin ferries on the phone. Then what happens?
Speaker 1 18:12
I say, I'm sorry. What? I was very confused, and I was at work, so I had just stepped out of the office to take the phone call, because I knew I was expecting something about my lab work, and so when this random lady who I've never spoken with told me the insulin was ready for pickup, I said, who prescribed that? She gave me a doctor's name I've never heard of. I said, Who's that? She goes, Oh, they're taking over for your primary care while they're on vacation. I said, I've never met with this doctor, though. How do they know what insulin I need? I didn't even know I needed insulin. I said, nobody ever told me anything. And she goes, Oh, you not met this doctor? I said, No. She goes, Oh, then don't pick it up. Definitely wait and we'll schedule you an appointment with a nurse practitioner who will give you the insulin instead. And I was like, Well, okay, when can I get that scheduled? Yeah, right. Mind you, this is November 22 she goes. Our first availability is December 16,
Scott Benner 19:02
but your a 1c 16 ish, it's 17.4
Speaker 1 19:05
or 16.9 depending on which lab work you refer to.
Scott Benner 19:09
Any chance this doctor's name was Dr Bombay, no, no, it was a
Unknown Speaker 19:13
receptionist who had called me,
Scott Benner 19:14
Michaela. That's a joke you're never gonna get but older people right now are cracking up, just so you know.
Speaker 1 19:19
Oh, okay, yeah, that went way over my oh no, it went over
Scott Benner 19:23
your head. By I'm guessing. Let me see 70s, 80s, 90s, maybe 65 years. Gotcha. But you might want to go watch bewitched sometime on one of the television just that run the old TV shows. This is crazy. Like, did you ever figure out, like, why a random doctor sent an insulin prescription. I
Speaker 1 19:43
think they just saw, Oh, hey, her a one sees high she needs insulin. Here you go. And she just, or he, she, I don't know, sent a random insulin prescription in, because supposedly, my primary care was supposed to do that because she was on vacation. He took over, or she took over.
Scott Benner 19:57
I think it's dumb luck. We're all alive after I hear stories. Like this. Every time somebody says something like that, I'm like, Oh, my God, this is all just like, it's just luck. The whole thing that the lights go on, that anything happens like, my god, yeah. Okay, so I'm assuming you push harder than you know, we can't see you till whenever. Yeah.
Speaker 1 20:15
Well, I said, Okay, I'll take the appointment. But I said, What am I supposed to do in the meantime, I know that if someone's insulin dependent, they need insulin or they could die. And like, I questioned it to her, like, is this true? And she goes, yeah, just since you don't know the doctor, I would just wait definitely don't go pick it up. And so I was like, Uh, okay. And at this point, I'm on the verge of having a breakdown. I hang up the phone. I have a breakdown. I go in, I tell my boss, I have to go home. She's, like, very comforting, and I love her dearly. So that was awesome. So I go home and I tell my mom, and because I live at home with my parents still, because I would like to save money and buy a house one day, yeah, so that's the goal anyway. So I go home, I tell my mom, and she's like, Yeah, that's not acceptable. She goes, I'm so sorry that you're going through this, but at the same time. That's not acceptable. You need an appointment sooner. So I call back and I say, Okay, this is the situation. I tell them what's going on, and I tell them, I need an appointment before December 16, because two weeks from now, I could be on the floor croaking. So they said, we have a phone appointment with her tomorrow morning. I said, Okay, great, I'll take it. Oh, I guess I should backtrack a little bit too. I did ask them, if I were to pick up this insulin, how would I learn how to use it? They said, Oh, you can do a walk in clinic, and they'll teach you how to use insulin. They have it at this location. Blah, blah, blah. I said, Okay, great. I called someone else to get that appointment rescheduled or pushed up, and they said. And I asked them, should I still do that? And they said, we don't do that. I don't know what that other person told you that for i Can I
Scott Benner 21:42
say something? First of all, the person you spoke to the day before is just a person at the office with a list of calls they have to make. Yes, they don't know, I believe from Shinola is a saying that they would have used in the 50s. Okay, so and not their fault. It's not their job, right? Right? Like somebody should have said to you, go to an emergency room, right? Like, I mean, if we can't help you right now, you should go to the ER, God, it's fascinating. Yeah, this person over here will teach you to use the insulin. Hey, I'm calling to get lessons about insulin. We don't do that here. What do you like? What in the hell I want to thank the medical community right now for making my podcast so successful. Thank you so much. Like, I really enjoy making this podcast, and it's all because of those of you out there who are just terrible at your jobs. Let me just say so people don't get upset. There are plenty of people who are very good at their jobs, but the ones who are terrible at it, you really are. You're making a life for me, and I really appreciate it. I mean, Jesus, just do your job, and I'll have to go I mean, my next option is probably like, I'm gonna say cashier, you can get rid of me by just telling Michaela how to take care of herself, like, because you keep going. I'm so sorry. No, I'm getting upset. Don't be sorry.
Speaker 1 22:53
Yeah, I was just I was upset. So they said, I we have a with that same nurse practitioner. I call her my doctor. She's a doctor in my head with that same doctor that I was supposed to be scheduled with in December. She has a phone appointment in the morning. We'll get you scheduled with her. I said, okay, so she calls me, and the first thing out of her mouth was, I am so sorry you've been going through this. And I found somebody go ahead, yeah. And she was like, they should not have been doing what they've been doing to you. She goes, I know everything, like I've seen what they've been giving you the run around. She goes, this should not be happening. She goes, so first of all, I'm so sorry you're going through everything, including the diagnosis you do have type one diabetes. Here's what we're going to do. And so we discussed my daily habits, how that would work with like being type one she said, Now, are you available today? I said, Yes. She said, Okay, I'm going to schedule you with my nurse assistant. That's who you're going to be on the schedule for. She goes however, that is my lunch. I will be there on my lunch helping you learn how to use insulin, pick up your insulin before you get here. We will go through this together. So that was my saving grace. Let me tell
Scott Benner 23:55
you something that's going to make you you're going to think ill of me. I almost cried just now when you said that I'm seriously. I feel a little like, by the way, I don't know if you know this, but I went over this with Erica on one of the like, mental health issues, and it's she tells me that when I tear up, I'm crying. I just think of that as tearing up, but apparently I'm crying. So I'm gonna, just gonna say you made me cry just now that you found somebody who knew what was going on, who put you before themselves. Like, the whole like, did the right thing. That's awesome. Like, okay, all right, so you and her have lunch together. That's great. Did she eat while she was talking to I would have brought a sandwich if I was
Speaker 1 24:32
her. No, she didn't. But she she, she popped in and out, uh, throughout the appointment with her nurse assistant, or whoever the other person was that I was seeing. I don't really remember at
Scott Benner 24:41
this point at the end of that meeting, did you feel put how you felt prepared, like better,
Speaker 1 24:47
better kind of but also still devastated that I had type one and that this was my new life. So Right? No, I it was something I had to wrestle with for a little
Scott Benner 24:55
while, but to go by yourself. Did your mom go with you? No,
Speaker 1 24:58
we. I. We had a brand new 10 week puppy at the time, so my mom went with me, and then my aunt and my cousin came to watch the puppy in the car, while my mom went to the appointment with me. Oh, that was the other thing that was super nice, because my family all lives nearby, and my cousin, she has rheumatoid arthritis, so she knows what it's like to go through a diagnosis. And was very, very graceful, helpful and just like a gift from God, honestly,
Scott Benner 25:24
two things. So your cousin has an autoimmune issue too? Anybody else? Yes,
Speaker 1 25:28
my grandma on my mom's side rheumatoid arthritis. She was taking thyroid medication. For what reason? I don't know if it was Hashimotos or not. And then my grandma on my dad's side also has rheumatoid arthritis. And so I thought for sure, when my cousin got it, I was like, Oh, I'm next. But instead, diabetes got me. Instead, hey,
Scott Benner 25:46
Michaela, don't, don't lose hope. It could still happen. I'm well aware, and I'm a little nervous. No, but the other part is, you know, you're making people with crappy families very jealous and angry right now, your mom came to your appointment with you, and your aunt came along to watch the puppy in the car. Like, what do you guys like? Like a television show where everybody's happy. It's awesome. My
Speaker 1 26:08
family, my family, is pretty great. I have no complaints about my family. All of them just wonderful.
Scott Benner 26:13
It really was just, that's a wonderful story. Okay, so what's the puppy's name? By the way, Aulani. Okay. Oh, are you guys Hawaiian? No,
Speaker 1 26:21
but this kind of is related to the story. We had just gotten back from Hawaii when we got the puppy, so we thought, oh, we'll name her a little Hawaiian name. And so we did, and that's the story in itself, that I was in Hawaii with an A 1c of, you know, super high and unknowingly, and I was eating everything in the world. I definitely almost died in Hawaii. I almost went into DKA. I just didn't know it. So now
Scott Benner 26:44
I'm looking at your picture. You're an incredibly Caucasian person, yes, and your name is Michaela, yes. Do people just love Hawaii or the culture Polynesian? Is there something I'm missing? So the
Speaker 1 26:56
name isn't from there that I'm aware of. My mom got the name from a TV show. Oh, what TV show? Doctor, medicine woman. Oh, no kidding, yeah. So Dr Mike. Her name is Michaela, and so that's where she got the name. But she heard the name, didn't know how to spell it, so she spelled it, M, a, k, a, y, l, a, which then she found out that Michaela is the feminine form of Michael so it should be spelled M, I, C, H, A, E, L, A, your
Scott Benner 27:20
mom didn't have the internet 24
Speaker 1 27:22
years ago. What happened? No, no, I probably not. Lovely
Scott Benner 27:25
woman, but didn't look into the spelling your name. Okay? So she just,
Speaker 1 27:28
she just sounded it out. But there's so many ways to spell it anyway, so it doesn't really matter. That's
Scott Benner 27:32
lovely. Okay? I just, I mean, then the dog's name was what it was. And I started wondering, what was going even your last name, like, I started thinking, like, maybe your dad's Asian, and I just don't see it. Nope. Is Asian the right word? Oh, God, 2024 I don't know Japanese is maybe what I meant. Mostly, okay, I'm gonna say Japanese. I do not want to hear from you people. I'm very old. I did my best. I don't mean anything I
Speaker 1 27:56
did. I got that a lot in in elementary school, where they would think that I was of Asian descent of some sort, because of my last name, and I would show up the whitest little kid there was
Scott Benner 28:05
so, okay, okay. Michaela said Asian too. So I feel like I'm okay. I feel like that's fine, but okay. So we have diabetes now, but I don't want to start down that path till I hear a little more about what you said. I wrestled with that for a while, meaning having type one. Can you tell me a little bit about
Speaker 1 28:21
that? So I don't even know where to start. I've never been afraid of needles, because as a kid with thyroid issues, I was going to get lab work done all the time. So I got over that fear real quick, but I did have a slight fear of injections. I do not like the thought of things going into my body. Take all the blood you want, but don't put things back in really? So, yeah, it was a weird thing for me that I just like the thought of it just like, gave me the heebie jeebies, like I just hated the idea of, like, injecting something into my body. So that was something that was a struggle for me, and then also knowing that all the weight that I lost was not earned. It was something that I was gonna put back on and probably just put back more than what I wanted. And it was very upsetting to me, because as a kid, growing up dancing, I always wanted to be like, super stick thin, as thin as you could get. And so I was like, Oh, I finally got it. And then they were like, Oh no, just kidding, you're sick. And I was like, oh, okay, great. So
Scott Benner 29:16
in a moment when you overwhelmingly thought I am making good decisions. I am so healthy. I'm on the path I mean to be on. What you end up finding out is I'm not healthy. This has nothing to do with my decisions, and I am going in the absolute opposite direction of where I wanted to go. Yep, yeah. And then how long does it take you to go through that? Do you do it with a professional help with family? How do you navigate that?
Speaker 1 29:39
Mainly family and my faith in the Lord above. So those are my two, my two saving graces, and
Scott Benner 29:46
that that was it. How long do you think that process was? I want to say
Speaker 1 29:49
about maybe three months before I was finally like, okay, like, this is, is what it is. And I think that was around when I found your podcast too. And I was like, Oh, sweet. Okay, I can do this. So that's
Scott Benner 29:58
my next question. And is, how does a 22 year old find a podcast about diabetes? I
Speaker 1 30:03
was just searching for people that could answer questions, and I found Reddit, and I didn't even know Reddit really existed, which I know sounds strange for someone my age. I just didn't know I like, heard of the term Reddit, but I never used it. I didn't know what it was. Found Reddit, got on Reddit, asked people questions there all the time, and then somebody was like, Hey, listen to this. And I was like, okay, so I did, and then I found your Facebook group, and then the rest is history, I guess. Oh, that's
Scott Benner 30:24
awesome. I've found Reddit to be incredibly supportive of the podcast overall. And like, I appreciate it. I really don't, because it's a place I'm not at. So yeah, it's nice to know there are people out there making these suggestions. So tell me how it was valuable for you.
Speaker 1 30:39
It was really just because I was constantly emailing my doctor about, like, what do I do now? This is happening. What about this? This is happening. And she told me, please do that. She was she was like, I'm here for you. I'm here to help you. Yeah, but she's not working 24 hours a day. So you know there was times where it's like, midnight, and I'm like, what's happening here? And and she's not gonna be able to tell me, so I would go to Reddit, and that's when credit was like, Hey, let's do this. This will help you. So it helped me to give me a peace of mind, knowing, like, oh, somebody else did this. This is what they did, and it worked for them. Let me try it. I actually think I started with the Pro Tip series. I don't know if I started. I don't think I ever started with bold beginnings. I think I started with pro tips, and I just dived into those. And then I went from 1716, a 1c, to a 12 within one month. And then I went to a 12 to a six within, like, I think, four months. And then I've been under five for over a year and a half now. Oh, good for you. Congratulations or not, under five in fives. My God, I was gonna say, like, you got the fours. No, I wish.
Scott Benner 31:33
No. What did you find? I mean, you were on MDI at that point. Is that, right? You got into fives on MDI?
Speaker 1 31:41
I did. I was actually on fives MDI for a year before I transferred to Omnipod.
Scott Benner 31:48
What would you tell the people who tell me all the time that my content is too pump centric and that it's not for people with MDI? I'm gonna
Speaker 1 31:56
say I felt the same way at first, but then I realized that you can do the same things, you just have to be more on top of it and maybe not snack as much if you don't want to take as many injections. But that's about the only thing that I noticed was like something real difficult for me was like, oh, I want to eat the snack. I don't want to inject. So it's either I eat the snack and have to eat the snack and go high or don't eat the snack at all. So that was one thing that was, like, a little bit different for me, because I felt like you could kind of snack more on the pod and still keep your blood sugars under control. But other than that, I feel like that was about the only thing other than, I guess, like temporary basal. But I would, for me, because I surf all the time, if I knew I was going to surf the next day, I would just inject, like a unit or two less of my long lasting the night before, and then just know I would maybe dose a little bit more for my meals if I needed to, if I thought that, you know, I injected a little bit too little Yeah, but it never seemed to be a problem. If I knew I was going, I would just make sure I was I was prepared. And if I didn't know I was going, and it was a last minute decision, I would just bring snacks with me and make sure that I had no insulin in my system before I went
Scott Benner 33:02
out, is surfing kind of a mix of anaerobic and aerobic, right? Because the paddling, I would imagine kicking is aerobic, but then being up on the board is probably a lot of muscle control, right?
Speaker 1 33:13
I guess. So, yeah, I feel like it's more aero, anaerobic or aerobic,
Scott Benner 33:17
more like pumping and running, or more muscular, more running, okay, because of the paddling and kicking,
Speaker 1 33:24
yes, yeah, and then yeah. I don't know that's what my experience is, but maybe I not really paid attention. I guess, does the fear of sharks at all like, enter your life? I get that question a lot, really. Okay, where do you surf at? I surf down in Southern California. Okay, do you have you ever seen a shark I have not. However, I have seen a shark attack happen at the places I surf at, but I have not been
Scott Benner 33:48
slow down. This was out in the surf or back at the beach, or where did you say it? I
Speaker 1 33:55
was at home, but I saw it on the news. Oh, I surf there, and I was like, Oh, that's great. Oh, I see.
Scott Benner 34:00
I thought you were like, there when it happened, because I'm gonna guess, if you were there when it happened, what you would tell me is, I love surfing, Scott, but I don't do it anymore.
Speaker 1 34:09
No. And the person was fine. They just the shark, I guess, caught their board and took a little dink out of it. But
Scott Benner 34:15
no big deal. Yeah,
Speaker 1 34:19
I don't know. I have faith that the sharks don't want me. They want other things. So I'm going to keep that thought in my mind.
Scott Benner 34:25
Okay, well, listen, it's because you know what. You know why you think that? Because when you were six years old, your parents didn't take you to see jaws in a movie theater. That's true, yeah, but mine did, listen. I'm going to sound like a baby, but if I can't see all the way to the bottom, I'm not interested in your water like I live in New Jersey. You couldn't pay me money to walk waist deep into the ocean in New Jersey. I wouldn't do it. I'm a baby. You
Unknown Speaker 34:50
understand? Yeah, I love the ocean. I cannot relate
Scott Benner 34:52
not how I'm going out. Michaela, that's it. That's valid. Yeah, that's all. That's all. I also want. Fall off a ladder. I want to tell everybody right now, I spent $180 a year having my gutters cleaned because I am not having my last thought. Be it only would it cost me $180 have these gutters cleaned as I'm falling to my death. Do you understand that's I won't do it. I won't do it. So that's it. I'm not getting eaten by a shark. I am not falling off a ladder. These are pretty much the only things I'm worried about. I assume my wife's gonna kill me, honestly, like, you know, and it'll be justified. I don't think she'll do jail time, you know, that's how I always assume I'm going out. Nevertheless, I want to go back to what you said about the podcast. And thank you. Oh, of course. But seriously, like, it's really cool to hear somebody mimic back to me my intentions. You know what I mean? Because you make a thing and you think, Gosh, I hope this is how it's received. And then to hear that it was but by a 22 year old who, let's be honest, like I'm too old, like you shouldn't be listening to my podcast. It's silly, like we shouldn't find each other, but that we did and that it helped you so much, I just, I feel wonderful about that, like I'm just, I'm excited to know that that content in its form was that valuable for a person like yourself. Yeah,
Speaker 1 36:11
I love it, and I still listen to like, all the episodes, just because they're entertaining. So I find, I find it fun,
Scott Benner 36:19
excellent. So I It doesn't matter how old I am, is what you're saying? No, it does not. Yeah, I agree. I'm wearing very comfortable sweat pants. I look like a kid from my waist down. Like, if you saw me from my vision right now, you'd be like, That guy could be like, 25 I believe it. It's not that you see me walking or you go, Oh, that old man has on pretty hip pants. Ridiculous. You have any brothers or sisters? I
Speaker 1 36:40
don't I'm an only child. Oh, why? What happened there? My mom did struggle to get pregnant for a while, and then my dad and her were like, are we good not having kids? She said, Yep, we're good. And then surprise, I came. So they were like, Okay, well, we have kids now, so that's fine. We wanted kids originally, so we'll flip back to that. And then by the time I was two, she's like, No, I'm not ready for another one. That's three, no, I'm not ready for another one. And then I was four, almost five, and she asked me, she goes, Do you want her brother sister? And I told her, and I quote, no, I be only one. And she said, You know what? That's fine. I don't want to start over with another baby. Anyways. So my mom and dad were both happy with just me. It's
Scott Benner 37:19
possible that you just named your episode. I be only one. I love it. That's awesome. Yeah, I like your mom too. She's like, Yeah, you know what, you were kind of a problem. So I don't feel like I need to do it twice. Listen, I agree with her, yeah.
Speaker 1 37:33
She She says that I was just fine, but she did have a lot of work trying to manage my thyroid as a kid, because it was like, I throw a tantrum over something silly. And she's like, Huh? Like, this is not you. So that was a lot of work for her. So I wouldn't blame her. I
Scott Benner 37:47
heard you talking about that earlier, actually, and it was definitely something I was going to get back to. The idea that, like, your mom was very aware of your mood and your personality being tied to your thyroid.
Speaker 1 37:57
Oh yeah. Then when I was undiagnosed, she was like, your thyroid is wrong. Go to the doctor. And I was like, I have it's fine. I don't know what to tell you. And so we had a few arguments about that one, because I was like, I'm fine. I don't know what you want me to do. She's like, You're not yourself. And I was like, Well, I feel myself just you're not and so yeah, it was a constant back and forth of like, you need to go the doctor figure this out. I'm like, I have my lab work is fine. I don't know what to say.
Scott Benner 38:19
So how irritating is that, that your mom knows you that well, not that irritating, honestly,
Speaker 1 38:23
kind of kind of helpful, until I'm actually in the situation. I'm like, I'm fine, and sometimes I'm right, sometimes I'm wrong.
Scott Benner 38:29
Be honest, has she ever just in the middle of you having a moment? Has she ever just slid the medicine vial of like Synthroid across the counter at you?
Speaker 1 38:39
No, but she'll always be like, you take your meds this morning. I'm like, Yes, I did constantly. So yeah,
Scott Benner 38:45
that's not fun. Arden forgets sometimes. And I'm like, Hey, have you been taking your stuff? She's like, Oh my god, leave me alone. I'm like, Oh, it sounds like a no,
Unknown Speaker 38:54
yeah. That normally means no, yeah.
Scott Benner 38:56
Nobody's ever like, oh my god, leave me alone. When what they mean is, yes, I've been doing exactly what I'm supposed to be doing, right? I think it's worth highlighting because, I mean, I've had your experience right? Like, I've had it with with iron, like my irons gotten low. Your personality changes, your tolerance changes, like your your mood changes, and you don't know what's happened, yeah, you know. So it's nice when somebody will reach up and say to you, Hey, have you? My wife said it to me recently. She's like, how's your iron? And I was like, I'm just mad. I But, but then I did put it in the back of my head, and I thought, I am gonna watch this now, because, yeah, maybe she's just seeing it earlier than not. Turned out not to be my iron. But it just turned out that everybody in my life was a pain in the ass that day, including some of you online. But nevertheless, I'm fine now. Okay. So how long do you do MDI for?
Speaker 1 39:50
Let me think I just started the pump this past February. Oh, so from November 22 to February of 24 what
Scott Benner 39:59
pump did you go. Of Omnipod. Oh, did you that because of the podcast
Speaker 1 40:03
I did, and because it was tubeless, and I like to surf, and I did not want to take the pump off to surf.
Scott Benner 40:07
Awesome. Okay, omnipod.com/juicebox, if you guys want to try it. Did you have a CGM with MDI?
Speaker 1 40:13
I did. They actually gave me a trial CGM the day that I had my first appointment. She said, Here, take this. You're going to want it. And so they put it on me there, and I've had one since day one. Awesome.
Scott Benner 40:23
Hey, you don't have to if you don't want to. But would you say that doctor's name out loud? Because she sounds awesome,
Speaker 1 40:28
I would. She is nurse practitioner, Margaret Guerrero, good job. Margaret. She's actually on your list, on your website, from the like the ones that people can add about being great doctors. She's on there. Did you add her to juicebox.com or did? I did not someone else had to have I was going to check and see if she was there, and she was,
Scott Benner 40:46
Wow, great job. I mean, honestly, like people who are doing a great job deserve to be shouted out like that. And she, she sounds like she really is for you. How was the transition from MDI to Omnipod?
Speaker 1 40:58
Yeah, it was interesting, because I was on g7 when I got the Omnipod five, so I did not have integration at the time, and so I kind of just used, I kind of liked it, though I liked the slow transition from manual to you're basically doing manual, but with something that doesn't have to poke you every few hours. Yeah. And it was nice to adjust my basal rates as I wanted, and play around with that. So I really knew what my rates were without knowing or without having the system do it for me. I really did like that, and so I did that until the integration basically came out for g7 and Omnipod five. I did have some leftover stash of g6 though. So when I was done with my g7 I used up the g6 is to try the automation. And at first I hated it. I did not like it. I was like, this is not keeping me where I want to be. My a 1c, is going to be so much higher. I hate this. I want the control. I'm a type A person. I do not want this thing making decisions for me. And so I was just fine waiting for the automation. And then when it came I was like, Okay, I need to get this thing a fair shot. And I definitely switched back and forth, depending on my mood and depending on if it's actually working for me that day or not, I feel like sometimes if I'm not as active, it's not good enough. So I will just switch into manual and and make sure that I have control. But other than that, I love it, and I felt like the transition was pretty smooth when I did do MDI to manual pumping to then automated mode, because I felt like it was a learning experience to use the manual pump right? Because if anything went wrong, I knew how to be in manual. I also knew what my basal rates still were. So if I had to go back to MDI, I'm not like, oh my gosh, wait, what? How do I do this again? So it's been to me, a great and smooth transition. I did not feel super stressed. I didn't feel overwhelmed or anything like
Scott Benner 42:39
that. Yeah, I think, I don't know how Omnipod feel about me saying this, but I think it's great that you that you use manual when it's necessary. I honestly, I think that's I think people who are more in tuned with what their needs are, with their insulin and proactive about it, I think generally do better. That's probably how you're keeping everyone seeing the fives. Yeah,
Speaker 1 42:59
yeah. I agree. And I also sometimes don't like where it keeps me at night, like it'll keep me at 110 which is it's gold, like it's doing its job, but I like 9100 so sometimes I'll, just before I go to bed, throw it into manual, and I know that I'll be where I want to be all night, and then when I get up and start doing things, I'll put it into automated so I don't go low, or just don't have to focus on it as much. I
Scott Benner 43:19
knew you were type A, by the way, when you basically floated the idea that you're in charge of what the sharks think. So I was like, Do you have any anxiety? Or are you just, is that just type A personality? No, no anxiety. No. Okay. Is your mom like that? Or your dad? Who's got this? My
Speaker 1 43:36
mom is type a worse, like, I don't say worse, because not necessarily a bad thing all the time, but, yeah, more type A than I am.
Scott Benner 43:43
Worse, you said worse. I think we'll stick with it. My mom's more type A than I am. She's a plus. Yeah, that's a good way to put it. Your dad doesn't care. Is he all chill?
Speaker 1 43:53
My dad is, is very, very chill. I get that from him in the sense of, like, it's weird. There's certain aspects of my life that I'm like, Yeah, who cares? It's fine. Whatever works. Like, go with the flow. My mom's not really like that. But then when it comes to, like, other things, like my grades, I was like, I have to have straight A's. I don't care what I have to go through to get it. I have to have straight A's. Like, that's where it kind of came into play. For me, was more in like, I guess goal reaching, right? And to me, diabetes is a constant goal that you have to reach. And so it kind of feels like school where I'm like, Okay, I have to get under a certain point because that's an A plus, or this is a B, and I don't like B. So
Scott Benner 44:24
Arden's changing, like, where she's going to school right now, and as she's leaving, she's like, I don't care about this. I got a good grade. It'll be fine. And then you're talking to her, and she's like, well, if I get this on that, and I'll have this, and I'm like, do you care? Do you not care? In Arden, I think there's enough of me and enough of my wife, and they fight with each other, like she's like, I'm super chill, but not really, yeah, and yeah. What did you go to school
Speaker 1 44:51
for? I went to school to become an American Sign Language interpreter. Oh,
Scott Benner 44:56
and is that what you do? It is tell me how you make. A living doing that. So
Speaker 1 45:00
you can work almost anywhere as an interpreter, because anywhere that you do things, deaf people do things too, so and they need communication access. So then there you are to interpret. I really like interpreting college classes. They're fun because you're kind of getting an education of stuff that, like, you don't have to do the work for, but you get to learn about, which is fun, but you're interpreting, and it's a fun process to interpret. And I just like the college atmosphere. So I do tend to interpret college I do this thing called Video Relay Service, where, when deaf people need to call a hearing person, or a hearing person needs to call a deaf person, I'm interpreting that phone call. So I sit in an office and I take the phone calls and I interpret the phone calls while the deaf person is on a screen and the hearing person is in my ear. Those are the two main places I do work. And then there's also what's called community work, where you just go out into the community where people need you, like the doctor's appointments or a warehouse work training or a safety meeting for this business and things like that.
Scott Benner 45:57
I don't know what's wrong with me. I think I'm a lady, because now I'm crying again. That's so nice. She's, oh, by the way, not that women cried. You know what I mean? Like, I just, I can't take it. I've said this before, but once I was like, a stay at home dad, I just sort of gave myself over to it. You know what I mean, like, and so, like, you know when ladies say, like, I feel my ovaries twitching, like I think I feel that sometimes too, like this is so nice, like you're out there doing that. Can I ask a reasonably self serving question here? Sure. Like when you show up at an auditorium, how many people are you signing? Is it signing or interpreting? How do I say it? Yeah, interpreting signing. Okay. How many people do you find yourself doing? Can you be in a group of 600 people doing it for one person?
Speaker 1 46:41
Yes, depending on the situation, yeah. Like some people do concert interpreting, which I've never done, because I find it to be a little bit stressful, because you have to know the meaning of the song to interpret it. And a lot of times I'm not very good with that. I'm like, Oh, these are the lyrics. I follow the lyrics, but that's not really what song is about. So I don't find myself doing that, but that's a good example of that, where there'll be, like, one deaf person in the entire auditorium for really famous persons concert, and just interpreting for just one person.
Scott Benner 47:07
Yeah, I take your point, because what could yellow by Coldplay be about? You know what I mean? Yeah, yeah.
Speaker 1 47:12
It's just, I find interpreting songs to be difficult. Like, if you wanted a word for word interpretation, I'd be happy to provide that. But if you want the actual meaning, sometimes I'm not the greatest for that one. When it comes to songs,
Scott Benner 47:22
my thought around asking was you just made me as you were telling your story, and I was feeling so good about it, I was like, should I have somebody do this for, like, the Pro Tip series or something? Or
Speaker 1 47:34
I actually have thought about that so many times of just doing that on my free time. But I was like, I have no following, and nobody's ever gonna find it. And I don't know how I would ever do that for because sometimes the episodes are long, so I was like, I can't interpret them by myself. That's one thing about interpreting. You tend to switch off every 15 to 20 minutes, depending on the content, because your brain, like, literally, cannot interpret for that long without starting to kind of break down and and stop working, because it's a very thorough process. Some people can go longer, and they have a built up stamina for that, and that's great for them. But a lot of people, most people, I would say, actually, for their own mental well being and their physical well being, because it can be tiresome, will do every 2015, 20 minutes and switch off with another interpreter. So I thought about doing that, but I was like, Man, I don't know that that's going to work. So I've never done it, but that's funny. You mentioned it because I have actually thought about it, because I was like, man, there's so many deaf people with diabetes in the world. I would love them to hear this too. But, you know, I mean, they can read the transcripts. But some, some Deaf people aren't English language learners either. They strictly are American sign language
Scott Benner 48:34
so, oh, oh, no kidding. Oh, that's interesting. I didn't realize that you have two voices in a transcript. Do you need two interpreters? Or is that not necessary?
Speaker 1 48:45
Not necessary. It would be helpful, if for visual reasons, but it's not necessary.
Scott Benner 48:51
Is there a number in your head? If I said to you, what would it cost you to do an hour recording and interpret it onto video? Yes, there is a number in your head, okay, yes, share it with me afterwards. Okay, okay. And I don't care if it takes a while to do you could do it 20 minutes at a time. Doesn't matter to me. In your free time. Listen. I'm right now for the people, I'm reading A Christmas Carol for the podcast for Christmas, and I'm through the first Dave and I got done, and I'm like, oh my god, am I gonna keep doing this? So I know what you mean about the sitting down and like I was exhausted, like I did the first chapter of the I sat down to do the first part, you know, the Marley's ghost part, and I was just like, at the end of it, I was like, oh my god, I'm exhausted. My thought is, is like, do I have you put all this work in to find out that, like, it's not going to be used by anybody I
Speaker 1 49:41
know. I've thought about that too, but I will say I do know there's a lot of Deaf people with diabetes, type one or type two, regardless, out there in the world. So I would hope it would find them and if they'd want to be interested. But yeah, I wouldn't know for sure if
Scott Benner 49:54
you're listening to this and you're a advertiser, and you think to yourself, how great would it? Be if Michaela was signing and my logo is in the bottom corner that said sponsored by blah, blah, blah, maybe send an email, because that might be awesome. I have the same problem with Spanish speaking, by the way, but I think AI is gonna finish fix that problem. So I don't think AI is gonna fix your thing ever. Or are you one of the people who's like, AI is gonna ruin me.
Speaker 1 50:21
I have mixed feelings about it. I think it's great in some aspects of things, and then I think some people overuse it and try and depend too much on it. But I don't think it's gonna destroy the world, at
Scott Benner 50:30
least not yet, exactly. But I'm talking about, like, for your job, like, are you worried that somebody could just, oh
Speaker 1 50:36
no, yes and no. I guess I think that there could be things that will come up where it will maybe take some work away from real life interpreters, but I think the deaf community, from what they've shared with me, because it's not my world, it's not my culture or my community, but from what they've shared with me, they want face to face interactions. They want people. They want that communication with a real, live person. They don't want just some robot. That's why they don't really like transcripts as much as they prefer an interpreter. They don't want to have to write back and forth most of the time. They want interpreters. They want that like face to face communication and American Sign Language. A lot of the language is on your body, not just your hands. It's your face, your facial expression, your mouth movements, your body language, your shoulders, like everything. So it would be interesting to see AI try and achieve that, but I don't know that it would would be possible, to the extent that some interpreters can interpret that. I
Scott Benner 51:26
didn't know all that, but it doesn't surprise me as you're explaining it. That's really interesting, actually, all right. Well, we'll afterwards, we'll talk about a little bit. So is there anything that I haven't asked you about that I should have
Speaker 1 51:38
I'm trying to think. I don't think so. I remember I put down talking about transitioning to a pump, and we did that, and my diagnosis story, I guess that would be I guess that would be it. You have a
Scott Benner 51:52
little bit here about anything else. Let me ask you about this here. You said the mental capacity that diabetes requires in the beginning and how it affected my relationships. Oh,
Speaker 1 52:02
yeah. I definitely noticed myself changing after I was diagnosed. I don't know if that's because I thought I had one personality with high blood sugars, and then I realized, Oh, my personality is different from that. Now, the mental capacity it took on me was it was a lot with body dysmorphia. It's something I struggled with growing up being a dancer and seeing dancers always to me, most dancers were always super thin and skinny, and so I was never overweight, but not being that either was something I always struggled with as a kid. So then having that experience, then go back to the way I was was, was mentally loading on me, plus having to manage the sugars, plus feeling all of the symptoms go away, and technically supposed to be feeling better, but feeling worse, because I got so used to it for so long, it was just a lot. And so I definitely noticed some of my relationships changed. Some of them got stronger, like friendships and everything, but others dwindled away because they they didn't know how to handle the new way of my life. They just they, they kind of ignored it and pretended like I I hadn't changed. Nothing was different, and I'm not saying to treat me differently. I'm not saying that like everything has to be different, but they just weren't really supportive in the process. So I did notice a few friendships dwindled because of that. So it was something that was kind of shocking, but also like, eye opening at the same time. Yeah, can I
Scott Benner 53:22
hear more about that, please? So you're saying there are people in your life that you counted as close to you, and they ignored diabetes
Speaker 1 53:31
in the sense of like, oh, everything's fine. Nothing's changed. I'm like, Well, no, it has changed. Like, I have to do this now, and they would just be like, Oh, okay. Like, they just, they didn't seem to want to. I'm not asking everybody to care about it and to learn about it, but they did not seem very supportive of the things I had to do, like, if I would complain about something or, and I'm not saying I complained all the time, but if I were to complain, like, Oh, my blood sugar is high right now, they're like, Oh, well, what do you want to do about it? Like, they wouldn't, like, provide any sort of support. And so I'm the type of person that likes to talk things out loud. And like, you know, have people listen and give feedback. I like that, that kind of camaraderie of just talking, listening and making comments on what I've just said, and vice versa. Like, when they say the same, like, say something they want to share something with with me, I try and engage back in the conversation to let them know. Like, oh, I'm interested. And there's a few individuals that did not had that same response,
Scott Benner 54:24
what did that do to you? Like, why did it ruin the relationship you could and by the way, I want to say, like, I don't think you're being unreasonable about your expectations for people, but I'm asking because you are not the first person that said this. And I know people personally, people I love, who've lost relationships more than friendships, like marriages. You know when their diagnosis has happened and they don't get back what they want or need from that other person, and when you don't get it back, I don't know what happens there. Like, is it like? You know what I mean, like, once they don't mirror what you need, what does that do to. You.
Speaker 1 55:00
I think for me, it's disappointing and it's just more like, Okay, I It's and it's eye opening for me to realize what I need to do for my friends as well. Sometimes I think it can be very one sided, but for me, I was like, Okay, this is how I feel because they're doing so and so and so. It made me realize, okay, I need to be more aware of my actions and my words and my behaviors with my friends that I have and make sure that when they need something for me, that I'm providing what I think they would need or want for me, and to even ask them, like, what do you want from me? Not just to assume that they want or need this, but it was kind of a learning experience and a way to improve upon myself. I took it as something that like I could improve my relationships that I do have with instead of just saying, Oh, see you later. I don't need to be in a relationship or a friendship or whatever it is with you anymore, but I will say I didn't lose any friends over it. It was just, we're definitely not as close. We don't hang out as much. It's just more of like a an acquaintance, like, Hi, how are you? Yeah, I also debit or was like, Oh, I don't want to be in any contact with you because you did this. Like that. Wasn't like
Scott Benner 56:01
that either. Do you imagine that this drifting would have happened on other subjects as you got older? The Diabetes just maybe brought it to a head quickly,
Unknown Speaker 56:08
absolutely, absolutely,
Scott Benner 56:09
right? Interesting. Okay, I appreciate that. It's very understandable. But, and I imagine a lot of people go through it, you just seemed like you really had thoughts about it. So I wanted to let you get them out, because I get that feeling of like it's not like you're like, demanding of somebody, like, my life has changed now you should change with me. But right? It's just a human like, back and forth that is not unreasonable to think is part of a healthy relationship. Is that
Speaker 1 56:37
the idea? Yeah, I guess that would be it. And the just ignoring it to me is, like, the main thing that was like, bothers him to me, where it's like, if I would mention anything about it, was like, Oh, Okay, moving on. Like they did not want to even think about it. And I was like, does this make you uncomfortable? Like you got to tell me these things so I know what to do. But they just, they wouldn't. There was no, no, really, communication back with how they were feeling about it, either. And like, if this is something that bothers you, we need to talk about it. But if it's just because you don't want to face the fact that I actually have this now, which is not even your disease, it's mine. But I understand if that's the case, then we need to talk about it. But right,
Scott Benner 57:11
yeah, I have like, two last questions for you. So my one is, are you past the idea of something being injected into you, or does it not bother you as much? With the pot pump on it doesn't
Speaker 1 57:20
bother me at all period anymore. It took only, like, I want to say, maybe a week or two. And I was like, Okay, I'm over it.
Scott Benner 57:27
And I also enjoyed talking to you very much. So if I want to fire Arden, what do you know about Bridget Mendler? Like, can I
Unknown Speaker 57:34
I love her. I think she's great.
Scott Benner 57:36
Would you have had opinions like, Arden, if I would have had you on to talk about it? Did you not hear that episode? Did you hear that episode? No, I
Speaker 1 57:42
did. I did. I don't know if I would have had opinions like her. I feel like I'm very, like, passive accepting. Yeah, I can be very passive about things. Like, if you think one thing, I'm like, Oh, cool. I'm glad you think that. Like, I'm not gonna go in with my with my comment if I don't agree, because I'm like, there's no point. Like, I'm glad you think it. So I feel like that. That's where it would be. Kind of
Scott Benner 58:02
might not be the right one for me then, but I did like talking to a lot, so
Speaker 1 58:07
I'm glad I enjoyed talking with you, too. It's nice to actually talk with you and not just listen to
Scott Benner 58:11
you. Did you have that weird feeling where you thought, like sometimes if I was monologuing, you felt like you were listening to the podcast?
Speaker 1 58:18
No, I don't think I did. And my I never connected the dots. Now, awesome.
Scott Benner 58:21
So we were always having a conversation. Sometimes people say, like, you started talking for 30 seconds, and I got, like, lost, because I felt like I was listening to the podcast. Oh no, I don't feel like I did cool. No, you did a great job. And I stand by what I said. You're like, 37 in your mind, I'm pretty sure, oh boy, no, I think that's probably good. I bet you get that house and like, and things work out for you. You seem well
Speaker 1 58:45
thought out. So, yeah, I hope I try to be. I do try to be. Is this a
Scott Benner 58:49
thing? You find a lot of your friends doing the staying home longer to try to save money?
Speaker 1 58:53
Yeah, yeah. Most of my friends actually live at home. I only have one friend who is engaged and living on her own and will be married soon. So obviously that's a little bit different, because she's a little bit further on with other things in life. But yeah, most of my friends don't just move out on their own. Just to move out. They stay at home to save
Scott Benner 59:11
money. You're not on any timeline about being married, right? I was when I was a kid. I'm not now, really. When you were a kid, what did you think was going to happen?
Speaker 1 59:20
I wanted to be engaged by 2425 married around 2526 and then kids by like 28 and now, now I'm almost 25 I will be next month, so I don't see the marriage thing happening now. I would just like to make sure that I'm happy in life. And whatever that leads to is
Scott Benner 59:39
what it leads to. That's awesome. When do you think that changed for you when I
Unknown Speaker 59:43
ended a six year relationship?
Scott Benner 59:44
Oh, that girl? Yeah, no, I know. Yeah. No, I get what you're saying. What a piece of am I right?
Speaker 1 59:51
We're actually still friends. No, that's okay. That's okay, but I
Scott Benner 59:55
understand. Listen, you and my son are the same age, but. He has a girlfriend, and you would definitely make a baby with diabetes, so I'm good to keep you away from him.
Speaker 1 1:00:04
Yeah, yeah. I actually it's funny. You say that because there was one person I did my pump training with, and if he hears this, that's kind of embarrassing, but oh well, I did my pump training with him, and he had a lot in common. He was the same age he had and and it was just funny, because I was like, Oh my gosh. Like, we have so much in common. And then he started talking about his fiance. And I was like, Oh, okay. I was like, that's okay. We'll make a baby with diabetes anyway. So that's not probably a good
Scott Benner 1:00:25
idea. McCallum is up to, like, do you surf because and he's, like, got a girlfriend. Is that what happened?
Speaker 1 1:00:31
No, he we were talking about sea life animals and how he has sea life tattoos, and then he talked about his fiance's tattoos, or his wife's tattoos. And I was
Scott Benner 1:00:39
like, Oh, gotcha, you were almost all in before you heard about the fiance.
Speaker 1 1:00:42
I was like, I'm like, I'm interested. Like, I kind of want to see where this could go. Like, it was just a pump training. I don't know what would actually would have happened, but in my head, I was like, Oh, that's cool. And I was like, oh,
Scott Benner 1:00:51
nevermind. That's awesome. You guys. Yeah, you definitely would have made, like, Captain America out of diabetes or something
Speaker 1 1:00:55
like that. Yeah? Like, oh no, no, no. Not a good idea. Or,
Scott Benner 1:00:59
you know, I wonder, I'll tell you what. I'd love if people are listening to this now and they're like, and they're like, look, I'm an adult with type one. I have a I'm married to a type one. Our kids do not have any auto immune issues. Please call me. I would love to, well, call me. What's it? 1978 let's just send me an email. Call me. Please. By the way, none of you call me. I don't want that. Don't want that at all. And those of you who think you have my phone number, you don't, but definitely send an email about that. That'd be awesome.
Speaker 1 1:01:23
Yeah, I'd like to listen to that too. I've always wondered about that. I'd like to pick through that
Scott Benner 1:01:27
because, I mean, in the end, you start telling me there's RA on this side, there's RA on that side. I have type one. I'm not surprised by that. You
Speaker 1 1:01:34
know, I also had chronic hives, which could be autoimmune too. So, oh, my
Scott Benner 1:01:39
son got the was the how my son figured out he had Hashimotos.
Unknown Speaker 1:01:42
Mine was not related to that, but, yeah,
Scott Benner 1:01:45
it's another, like, it's like an immunity issue, like your body just over, over, attacking something, right? I guess his, my mom had them too, but she thought
Speaker 1 1:01:54
hers was from her birth control, and, like, three months later, after she stopped birth control, that went away. So she thinks that's what hers was from, but that's what hers was from, but that's still hormonal, because birth control is hormonal. So
Scott Benner 1:02:04
who knows? Yeah, hormones are terrible. Yeah, yeah, is the bane of most, uh, evil. Michaela, I don't know. I'm gonna stop because, if not, you and I are gonna talk all day long. You're awesome, like, I You definitely are just an old soul, because I'm an old man and you're just like, I like the podcast, you know, I like talking to you. Yeah, fun. All right. This is very cool, and a proof to all of you out there that I am young at heart and I will never die. I just want to say that I agree. That's my plan, by the way around. But people are like, Why are you taking the weight loss so? Like, seriously? I'm like, I am trying to stay alive longer. I didn't think about it like that when I was younger, but now I you get a little older, and you're like, Oh yeah, I'm trying to stay here. You know what? I mean, yeah, yeah, definitely. All right. Cool. Hold on one second for me, okay, yeah.
The podcast episode that you just enjoyed was sponsored by ever since CGM, they make the ever since 365 that thing lasts a whole year. One insertion every year. Come on. You probably feel like I'm messing with you, but I'm not. Ever since cgm.com/juicebox thanks for tuning in today, and thanks to Medtronic diabetes for sponsoring this episode, we've been talking about Medtronic mini med 780 G system today, an automated insulin delivery system that helps make diabetes management easier day and night, whether it's their meal detection technology or the Medtronic extended infusion set, it all comes together to simplify life with Diabetes. Go find out more at my link, Medtronic diabetes.com/juicebox dot com, slash juice box. I can't thank you enough for listening. Please make sure you're subscribed or following in your audio app. I'll be back tomorrow with another episode of The Juicebox Podcast if you're living with type one diabetes, the after dark collection from the Juicebox Podcast is the only place to hear the stories that no one else talks about, from drugs to depression, self harm, trauma, addiction and so much more. Go to Juicebox podcast.com up in the menu and click on after dark there, you'll see a full list of all of the after dark episodes. The episode you just heard was professionally edited by wrong way recording, wrongway recording.com,
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#1481 Melted Squirrel
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Charlie tricked me into coming back—and now her child has type 1 too.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Here we are back together again, friends for another episode of The Juicebox Podcast.
Charlie is back. She was originally in Episode 1327 called beaver tail. She kind of tricked me and came back on today because she didn't think she did a good job the first time she spoke. But it turns out that since she was on the podcast the first time where, by the way, I think she did a great job, her child has also been diagnosed with type one since then, so we've got some new things to talk about. Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. AG, one is offering my listeners a free $76 gift. When you sign up, you'll get a welcome kit, a bottle of d3, k2, and five free travel packs in your first box. So make sure you check out drink AG, one.com/juice box. To get this offer, don't forget to save 40% off of your entire order at cozy earth.com. All you have to do is use the offer code juice box at checkout. That's Juicebox at checkout to save 40% at cozy earth.com. I'd love it if you would go to T 1d exchange.org/juicebox, and take the survey. When you complete that survey, your answers are used to move type one diabetes research of all kinds. So if you'd like to help with type one research, but don't have time to go to a doctor or an investigation and you want to do something right there from your sofa, this is the way t 1d, exchange.org/juice, box. It should not take you more than about 10 minutes. US med is sponsoring this episode of the juice box podcast, and we've been getting our diabetes supplies from us med for years. You can as well. US med.com/juice, box. Or call 888-721-1514, use the link or the number. Get your free benefits check and get started today with us. Med, today's podcast is sponsored by the insulin pump that my daughter has been wearing since she was four years old. Omnipod. Omnipod, com, slash Juicebox, you too can have the same insulin pump that my daughter has been wearing every day for 16 years. My
Charlie 2:28
name is Charlie. I am from Canada, and I am here to talk about the last year of my life.
Scott Benner 2:34
Awesome, but before we begin and find out about the last year of your life, you said that you've been on the podcast before, and you thought you were awful. I
Charlie 2:43
was just awkward. And I know why I thought I was through the thick of it, like of my my own diagnosis, right? And which I was doing better than the initial diagnosis, but I was still not doing very well. I was high, I was hungover, I was just so desperate. I was desperate to be the voice that I needed to hear. And I was just, I just sent your style.
Scott Benner 3:08
No, wait, wait, wait, what Episode Do you know what I called it?
Charlie 3:12
I think you called it beaver tails. But I haven't looked. I haven't had time to look and see if it's, if it's up yet. But it was in May, like, I went on to, like, schedule initially, and it was like, six months in advance, and then I went on two weeks later. I'm like, oh, I should schedule. And you had it, you must have had a cancelation, because there was an opening. It was on my birthday. So I'm like, oh, meant to be. It's
Scott Benner 3:36
definitely called beaver tail. Now I'm interested. It says Charlie has gestational diabetes. Had gestational diabetes to all three of her pregnancies, and now has type one. Yeah. Well, wait and you're saying that in this episode, you were here, but you were looking for something for yourself. What do you mean by that? I was just
Charlie 3:55
struggling so much with my diagnosis. I was struggling the fact that it happened, I was struggling to manage my diabetes. I was just struggling. I was mostly lonely. I learned that later I was so lonely I'm a ladder or I mean, I don't know. I've heard different things about Latin type one as an adult, but I couldn't find anyone that could relate with me so well, except for you, you and your Facebook page and your podcast. So, but even then, lacking a bit of the latter stories and like the shock of like the adult diagnosis. So I'm like, I'm going to add my story to that that might help someone
Scott Benner 4:35
else. Oh, I bet you, it did. So how old were you when you were diagnosed for, like, when you got the type one diagnosis, 3232 32 Yeah. How young were you when you were pregnant the first time? How old's the oldest kid? He used five. Okay, then you said 32 you subtract five. You're 27 Yep, you rolled three kids out in five years,
Charlie 4:55
three kids in three and a half years, when, when the third was born, he. Was three and a half, yeah, two to three kids in three and a half years. I know, like
Scott Benner 5:03
a situation where you're in Canada, it's so cold you can't go outside something like that, yeah. I mean, you gotta keep warm somehow I understand. Okay, you had gestational with the first one they said, Oh, don't worry, when you're done being pregnant, it'll go away, yep. And it did. And it happened again and again. And then, well, the third one
Charlie 5:19
was assumed type two or gestational they didn't know, but ended up being the onset of type one. Yeah, interesting. So the Yeah, it was starting before I got pregnant the third time, right? With lots of lows, like as low as 2.6 after a snack. That was the lowest I ever got. And I wasn't on any medication for diabetes. That was just my body doing that. And then the pregnancy made me high. Throughout that third pregnancy, they had an inkling that they saw signs that this, you know, this doesn't seem like gestational so they tested me for the antibodies the week before the baby was born, and it was high. It was very positive and very
Scott Benner 6:07
positive. Hi, Canadians. You use the metric system and the very positive system. Yeah, go ahead,
Charlie 6:14
very positive. Well, I've learned later because I've seen people's I joined all the Facebook pages, and I've seen some other antibody tests, and they're like, barely high, and I was really high so, but they told me that a month after baby was born, and they're like, you're going to be type one, but we don't know when, wow, Charlie. I'd
Scott Benner 6:34
like to point out I think there's only just one Facebook group that the people need to join. But I
Charlie 6:38
agree with that. Now I didn't know that initially take
Scott Benner 6:42
me through that little journey. So you're looking for people who understand your situation that seemed very important to you, even just by the way you spoke about it just now, and you ran around and joined a bunch of Facebook groups. So what was that experience like?
Charlie 6:56
I just searched type one diabetes initially, and then I was searching for Lata, because I was I joined these type one pages, and everything was like, oh, like, how do you get your kid to eat after you dose? And I'm like, That's not my problem. I know when I'm eating. And I'd scroll on, and all these pages were about kids, yeah. And like, I mean, I I don't want to sound cold, I felt for them, but I'm like, That's not my problem. I need help managing this. And three kids, like, almost
Scott Benner 7:26
frustrating that you got close to the information, but then you know what I mean? Like, you're like, Oh, I found people with type one diabetes talking about type one diabetes. This isn't my their issues.
Charlie 7:36
Yeah, problem, right? But I haven't told you yet. Okay, let me give you, like, the key points of my last year, and then you can take it from there. So October, I started insulin. April, I started pumping with tandem. June, our three year old was diagnosed with diabetes. Then July, our three year old started pumping. And then a month ago, I got us both looping. No kidding. So it's been, it's been a year. That's for people
Scott Benner 8:04
who think that Canadians don't go to school. Look at that. I
Charlie 8:08
did not go to school. I'm trying
Scott Benner 8:11
to make a joke here. What do you what do you tell me? Wait, you graduated from some from high school, high school? Yeah, that's fine. That's school, yeah.
Charlie 8:21
And then I ran away and joined the world's largest circus. That's what I did. Did
Scott Benner 8:25
we talk about that in beaver tail? No, we did not. Well, let's do that for a half a second. Wait, what did you you ran away after high school and did what my daughter is, 20 years old. I can't even believe it. She was diagnosed with type one diabetes when she was two, and she put her first insulin pump on when she was four. That insulin pump was an Omnipod, and it's been an Omnipod every day since then. That's 16 straight years of wearing Omnipod. It's been a friend to us, and I believe it could be a friend to you. Omnipod.com/juice box, whether you get the Omnipod dash or the automation that's available with the Omnipod five, you are going to enjoy tubeless insulin pumping. You're going to be able to jump into a shower or a pool or a bathtub without taking off your pump. That's right, you will not have to disconnect to bathe with an Omnipod. You also won't have to disconnect to play a sport or to do anything where a regular tube pump has to come off. Arden has been wearing an Omnipod for 16 years. She knows other people that wear different pumps, and she has never once asked the question, should I be trying a different pump? Never once omnipod.com/juicebox get a pump that you'll be happy with forever. You've probably heard me talk about us Med and how simple it is to reorder with us med using their email system. But did you know that if you don't see the email and you're set up for this, you have to set it up. They don't just randomly call you, but I'm set up to be called if I don't receive. Respond to the email, because I don't trust myself 100% so one time I didn't respond to the email, and the phone rings the house. It's like, ring. You know how it works? And I picked it up. I was like, hello, and it was just the recording was like, us, med doesn't actually sound like that, but you know what I'm saying? It said, Hey, you're I don't remember exactly what it says, but it's basically like, Hey, your order's ready. You want us to send it. Push this button if you want us to send it, or if you'd like to wait. I think it lets you put it off, like a couple of weeks, or push this button for that. That's pretty much it. I push the button to send it, and a few days later, box right at my door. That's it. Us. Med.com/juice, box, or call 888-721-1514, get your free benefits check now and get started with us. Med, Dexcom, Omnipod, tandem freestyle, they've got all your favorites, even that new eyelet pump. Check them out now at us, med.com/juice, box, or by calling 888-721-1514, there are links in the show notes of your podcast player and links at Juicebox podcast.com, to us, med and to all the sponsors.
Charlie 11:06
Not, right? Like, a few years after high school, I joined the world's largest
Scott Benner 11:10
circus. Are you allowed to say the name of it? Or is that what it's called? I
Charlie 11:13
don't see why not. It's called Cavalia. I don't believe it's a thing anymore.
Scott Benner 11:17
Yeah, after they said you couldn't, like, whip an elephant, that ruined circuses pretty quickly.
Charlie 11:22
No, I was a horse circus, though, no elephant. It was, wait, it was a horse circus, yeah, Cavalli. It was a, like
Scott Benner 11:29
traveling rodeo.
Charlie 11:30
No, not rodeo. Like acrobatics, like a Cirque du Soleil plus horses. What did you do in this? I was a groom, so I looked after the horses.
Scott Benner 11:41
Oh, you just wanted to get away from home. Yeah, exactly. How come
Charlie 11:45
all my friends were off to like, university and college, and they're moving on with life, and I wasn't I was home with my own horses working, and I just needed to go somewhere, but I didn't know what to do for schooling. I didn't go to university because I couldn't pick something. And yeah,
Scott Benner 12:03
I picked the circumstance. Was that a good decision at the time? Oh, yeah,
Charlie 12:07
it was fun. It was, yeah, if I could go back, I would do it like I wouldn't change anything. No kidding, but if the job came up now, I would not go. You got
Scott Benner 12:17
these kids in the diabetes and everything? Yeah, it's still going an epic yet soulful theatrical experience that will take your breath away by its beauty. I don't know who wrote that, but I think it's a little incorrect. An uplifting and emotionally charged theatrical production featuring 70 horses and 50 artists. That's the thing you did, yeah, and you groomed, picked up the poo, cleaned them up. Did you shoe the horses? By any chance?
Charlie 12:39
No, there was a farrier for that, but we Yeah, lots of poop cleaning up, lots of horse clean. They're white horses. They're mostly all white horses, and horses like to lay in their poop, and so we had to clean the horses and keep them nice and white and shiny for the show. That's
Scott Benner 12:56
why I don't lay in my poop, because I'm white.
Charlie 12:58
Yeah, yeah, it stains easier. I don't
Scott Benner 13:02
need that problem. You know, I get dry skin. I'm sure it would pick it right up. I am a little ashy. Here I'm looking at my shins. How long were you in? Can we stop calling it the horse circus? What else should we call it? Cavalia is fine. I'm gonna go back to horse circus. How long did you do that for two years? No kidding. Now. Did you make friends there? Did you have so many? Yeah, emotional relationships, romantic relationships at Cavalia. No, nothing. Romantic No, couldn't find somebody. I didn't wasn't looking okay. How old were you when you said I probably got to stop shoveling this and get back to my life, early
Charlie 13:37
20s. Okay, I don't know that's more math. You think I'd be better at math now, I mean all the carb counting, but
Scott Benner 13:44
if you went to college, listen, I think some people are just like, it's not that you're bad with math. I think that timelines I'm not good at it. Like, if you ask me questions about my life, I'm like, Well, how old were you? Then I'd have no idea at all. I feel like a hypocrite asking people, I'm like, How long ago was that? How old were you? Because I would never know the answer to that question. Okay, so that's a life experience. You head home, you meet a boy who helps you knock out those kids, and now all the diabetes is here. Have you looked into those families like your family line? His is there? Auto immune?
Charlie 14:20
No, I haven't dug too deep. I haven't asked too much, but there's nothing in the immediate family, okay? But I just type two. Like, there's type two on both sides of my family. Yeah,
Scott Benner 14:31
there's type two. What about thyroid stuff or celiac or stuff like that? Nothing that I know of like, nothing interesting, nobody got a creaky grandmom? Ra, maybe, no, I'll be damn just you. I
Charlie 14:43
know I I mean maybe, but I don't think so. Yeah,
Scott Benner 14:48
I know it sounds like you're a super spreader.
Charlie 14:51
We just won the lottery. Oh, yeah, woo. When you
Scott Benner 14:54
spoke to me, I'm doing a little math here because your episode came out in October 2024 Which, by the way, already has me wondering how you're back recording this soon, so I have to remember how that happened, but that means that you and I recorded six months prior to that, probably, so, yeah, I don't know. Maybe April, May, May, okay, yeah, and how long had you had diabetes when you signed up to be on the podcast initially in May, five
Charlie 15:19
months. May was five months, right? October? Oh, so
Scott Benner 15:23
you signed up almost right away when you were diagnosed, and then, because you have to wait months to get on. No,
Charlie 15:29
it was only a two week wait. Like I said, You must have had a, yeah, you must have had a because when I first looked, yeah, it was like six months. And I'm like, wow, but then I probably got interrupted by a kid. I never booked it. And then when I went back on to book it, there was an opening two weeks,
Scott Benner 15:45
you skirted the system, yeah. So when I gave you the link, you didn't act. And then when you finally looked at the link, someone had canceled, and you were like, Oh, I can just do this two weeks. Don't tell the other people who are going to be on the podcast. That'll make them very upset. So you jumped on the podcast in April, recorded. It came out in October. It's now really just two months after your episode came out. So about eight months after you recorded, how did you get back on the podcast? Did you just, like, sneak in with the link again, or did you email me? Oh, I used the link. I didn't ask you to come back on. You just decided to come back on. Is that okay? I mean, no, but I'm delighted by it. This has never happened. Charlie, really? Yes, this has never happened before.
Charlie 16:28
No way. Yeah. I was just like, after we recorded. I'm like, I have more to say. So I'm like, and I'll have even more to say six months later. So I just immediately, like, I hung up from you and clicked the link and booked again. No
Scott Benner 16:43
one else listened to what she just said. Just keep going forward and imagine that. That can't happen,
Charlie 16:48
but it, I mean, meant to be, because now, because when I booked it, our daughter wasn't diabetic, and now she is. I have that,
Scott Benner 16:56
yeah. Okay, so let's go back to that moment. Right? You got done recording. Enjoyed it, but thought what? I didn't do a good job. I didn't say everything. Tell me how I
Charlie 17:07
just thought, like, I thought about it. It wasn't immediately. It was that night. I'm like, because I I was thinking about it the rest of that day. And I'm like, I just wasn't good. I was just so I was a tight ass. I was so focused on my notes, I couldn't keep my train of thought like on the tracks, and I I just it didn't feel right. Okay, so I booked so I booked again, Charlie, I'm
Scott Benner 17:30
going to tell you something, and this is a public service announcement to the people who have been on the podcast. Everyone feels that way,
Charlie 17:36
yeah, but I know it wasn't me like I was so I just didn't let you do your thing. I didn't let the conversation roll. I was just, yeah, so I'm like, I'm gonna
Scott Benner 17:47
book again. Did you steamroll me? I don't know. I feel like. I just felt like it was, I mean, that feels unlikely, doesn't it? No, like, I don't
Charlie 17:55
think I like. I wasn't rude. I was just, I don't know, I don't like it. So I'm like, I'll try again. All right.
Scott Benner 18:02
Well, listen, you've got about 45 minutes to fix this up of yours, so let's get going. All right. Also, please no one else do this. I just, please don't do this.
Charlie 18:12
I had no idea. Like, I just, you would send me a link from your website, because you send me a link and I'm like, oh, man, I should have just looked on his website. You
Scott Benner 18:22
can't sign up through the website like you have to get a link from me. That's so basically way, yeah, I don't know. No one's ever thought to go back and click on it again. I guess,
Charlie 18:31
or no one else felt like they messed up and had to try again. No, everyone.
Scott Benner 18:35
No. Charlie, listen most of the time. When I get done and we stopped the recording, the first thing people do is apologize, and I'm always stunned by that. I'm like, What did I not just hear like, we just had a great conversation? Like, what are you talking about? Like, No, I didn't. It's not me. I wasn't. I just think that it's not a normal thing for people to be doing. And you can second guess yourself to death. What I would tell you is that if you found the podcast valuable and it's helped you, it's built by a bunch of people who all thought they didn't do a good job on the podcast, so that, in turn, must not be true.
Charlie 19:15
Yeah, that's interesting, and that's good to know. And absolutely, I benefited from the podcast. Your podcast is what gave me my life back. Like, truly, I was not kidding when I say I was struggling with this, and then I found the podcast, and life became pretty much normal again. I'm glad to
Scott Benner 19:33
hear that, and this is definitely a way for you to, like, make me feel better so that I won't think about the other thing anymore. But that's okay, seriously, let's move forward. So you booked the podcast because you felt like you didn't do a good job, and you've been waiting How long since? How are you back on the schedule again? I booked in May. Oh, okay, May, June, July, August, September. Okay, that makes sense. Okay. So booked in May. You've been. Wait in six months? What do you want to say?
Charlie 20:01
I don't know. I made it through. You made it through the year. Like I just felt like I kept getting these curve balls. And like, with my daughter being diagnosed, she was diagnosed eight months after I was diagnosed, like I was still learning, like, everything I've heard from other people, it takes a year or two to to really understand your own diabetes, and I was only eight months in, and then two months into pumping. So like I was still learning my pump i and then I've got this diabetic three year old now, plus two other kids. It was just like, I just couldn't believe it like one more thing. So you're
Scott Benner 20:41
stunned. There's another thing to do. You're still learning about yourself, yeah, have you even come to grips yet with the fact that you have diabetes? Yeah?
Charlie 20:49
She her diagnosis helped me. It helped me. It gave my diagnosis purpose, because then she's just like, Mommy, yeah, and it has helped her so much. Like I read these stories of kids struggling, they're the only one in the family, and like, she doesn't she has had a really easy diagnosis. I caught it early too, so no, DKA, No, he wasn't admitted to the hospital. And then, yeah, she's just like mommy. So
Scott Benner 21:22
So you feel like that the two of you have this in common, makes that easier for her. But are you also saying that having to care for her is causing you to focus on yourself as well? Not
Charlie 21:33
so much focus on myself? I was trying. I've been trying really hard from the start to to manage this well. I always took it seriously and wanted to have perfect numbers, but her diagnosis made it easier to accept. Because one I was diagnosed, I just all I could. I just kept thinking, like, Why? Why did I get this? And not even just why, but why now, like, when I was diagnosed, my oldest wasn't quite potty trained, so it was even more work than a kid in diapers, and my other two were in diapers, and I was breastfeeding the baby, and I had two bonus two kids for before and after care. They get dropped off in the morning. Yeah, get on the bus here, and then get off the bus here. So I, I had five kids.
Scott Benner 22:18
You're like, I don't have time to time, and
Charlie 22:21
I'm high as can be, I don't understand why I'm high. Or I have this sugar hangover because I've been high forever, or I was high all night, or, or I got too low, like it was, I was on this roller coaster for months, yeah? And it was you. It was your podcast that got me off the roller coaster. My team started me on eight units of basic one. I only needed three. I was down to three. But it took months, and it was, it was you, because I remember, like, gonna do my needle, and, man, I can't. They kept tweaking me. Like, oh, try seven, and we'll try six. So no, I think you need, think you need the eight now and like, up and down, and I just eventually, like, once I learned how valuable your podcast is, get your basal right. And I'm like, Okay, I gotta this isn't working, so I cranked that pen back all the way to three, which it was a half unit pen. So it was a lot of clicks and and I did three units, and that was it. That was what I needed. Are you
Scott Benner 23:23
saying that all those clicks made you feel like, wow, I'm really turning this down. I hope this is okay.
Charlie 23:28
It was like, huge. I was trusting my team, and I didn't know there's, there's so much I didn't know about diabetes that I learned through the podcast. It's
Scott Benner 23:38
awesome. It really is. I got a note this morning from someone and they said, Hey, I saw something about the podcast. Share it out in the world. And they let me know that it was being shared. And you know, if you go and look people are, you know, just talking about how valuable it's been for them, which is really lovely. It was a nice way to start my day. And my thought was, oh, well, this will help combat the feeling inside when you see someone online call you an asshole. Yeah, it's great to hear that from you, that it that it was that valuable, and it got you moving in the right direction. Because, yeah, meanwhile, I want to say I'm joking when, when people speak badly about me online, I honestly, genuinely just think it's part of this. So, like, I don't really think that if you're going to make a podcast, there aren't going to be people who don't like you. You're helping make my day brighter by by telling me that, and I really appreciate that. Thank you. So basically, you listen to the podcast and it makes you think my insulin must not be right. Let me look at my basal first only to learn that the doctor's office and you live in Canada. So are they really a doctor? I mean, is it a, b, like, I don't like, you know what? I mean, like, is it like Dr Doolittle? What are we talking about? Really,
Charlie 24:48
well, my diabetes, okay, my GP is like Dr Doolittle, but my endocrinologist is fantastic, even fully supportive of loop, which surprised me at the time. I was bouncing between three endos and different nurses. Like, every time I booked an appointment, oh, like, every three months was a different dietitian, different nurse, different Endo.
Scott Benner 25:08
She didn't feel like you had any continuity of conversation,
Charlie 25:11
yeah. Like, on one hand, it's like, okay, I wish you didn't have to review my file in this much detail every time. But on the other hand, now I'm getting three different opinions.
Scott Benner 25:21
In the end, the opinion that wins has you with more than twice the amount of basal instantly you actually needed, yeah, yeah. And then in the
Charlie 25:28
end, it was my it was my opinion,
Scott Benner 25:32
the valuable one, exactly. So you so you were being over basal, getting low, eating a bunch, getting high, coming down. And that was just happening over and over.
Charlie 25:41
It was awful. And I didn't know so about basal is that keeps you stable. Because my experience with the pregnancies long acting is for your fasting number. That was it. I didn't know about the stability that never came up with my pregnancy. So I'd wake up high a few nights and go, Oh, it's my basal. And I'd increase it, I wouldn't look back and be like, Oh, maybe I messed up.
Scott Benner 26:05
So back when you were gestational you were taking just basal insulin.
Charlie 26:09
No, I was on meal meal time too. But once
Scott Benner 26:13
you were diagnosed, it did not occur to you that maybe what happened prior is what's impacting me now,
Charlie 26:19
yeah, so what they told me was, like, they always say, with pregnancy, it affects your hormones and it can make it hard to manage your sugar. So I just assumed, hey, I'm diabetic, but I'm not pregnant, this is going to be steady and stable and easy, like, easier than gestational and I was wrong. Like, so wrong, yeah, but I, I, I just didn't know. I thought it was all my mistake. I didn't know all the variables. They didn't even explain honeymoon to me properly. Okay? They just told me, like, over time, your pancreas will produce less insulin. So I assumed it would be this nice, steady, consistent drop over time. And then I like, now looking back, I can see I was honeymooning, but I didn't re I'm counting my carbon better, and I'm like, looking at everything else thinking I made a mistake. Yeah, I didn't know. So that helped with our daughter, because then when she was honeymooning, I'm I try. I didn't try that hard and like, we just have to survive the honeymoon, and then we'll get our
Scott Benner 27:23
settings right with you. You were you didn't know where to fight the fight even I
Charlie 27:28
yeah, I thought it was my fault. Man, I'm doing awful. Like, I need to manage this.
Scott Benner 27:33
And in the end, am I correct to say it's getting your basal state right, learning how to Pre Bolus your meals, making sure you're counting your carbs well, making sure you're understanding the impacts of other foods, like fat and protein, not staring at high blood sugars, not over treating lows. That pretty much it,
Charlie 27:50
yeah, yeah, that's it. Also recognizing like, hey, you know, this might be the pancreas. And just don't even just survive. I wish I could go back and just survive my honeymoon and not try and perfect my honeymoon.
Scott Benner 28:02
You didn't get caught up in the like, why is this suddenly happening like this? You just said, Well, this is what's happening. We'll get through this day. Eventually this will stop happening. Yeah,
Charlie 28:10
with our daughter, yeah, yes. That's what I meant, yeah, yeah, yeah. Oh. It was like, Kurt managing her was so much, like, more laid back because I knew already I'm like, Ah, it's your pancreas. And what I did, speaking of schooling earlier, I gave myself everyone says, give yourself grace. I decided, because I had heard from many diabetes, it takes one to two years to really get the hang of it. I gave him, I've told myself four years, because that's like a university degree, or like a schooling degree, I take your point. In four years, I will either know why this happened or it won't even be happening anymore. So when something happened, yeah, I'm just like, Oh, I've got three years left to figure this
Scott Benner 28:56
out. But that's not what they call true, because a lot of people get to the end of the amount of time they set for themselves and still not be there. But you figured that that's not really what you did though you went and found the podcast and you learned quickly,
Charlie 29:08
yeah, I mean, I'm still our highs. No, no, of course, but already most of them are, yeah, I'm I gave myself four years to like, help my mental health, my sanity, my stress levels, but we're, I feel like we're already there.
Scott Benner 29:24
You got to hear four years and how long? Well, I'm
Charlie 29:27
one year in a bit. What am I? I'm 14 months into this.
Scott Benner 29:31
Yeah. Well, then to that person online. I'm not an asshole. See, no, I helped this lady and her kid. I
Charlie 29:38
like I sometimes think about where would I be right now without the podcast, how long would it have taken my team to get my basal right? Charlie,
Scott Benner 29:47
which province are you in? Ontario? Oh, I don't know what that means. I just wanted to say, well, this isn't one that starts you with mph. Is it? No,
Charlie 29:59
I was Star. Started on basal glare and Nova rapid. And she was started on basal glare and Humalog. But
Scott Benner 30:06
still, in all, did you turn your basal up back then? Or did they
Charlie 30:10
at times I was, I was making adjustments between appointments, but then they would also turn it up and down.
Scott Benner 30:17
Were you honeymooning in that, that situation? I
Charlie 30:20
think so, yeah, but then, like I said, I didn't know.
Scott Benner 30:23
You didn't understand the honeymoon. Well, I didn't understand the
Charlie 30:26
honeymoon so I couldn't even consider it. I didn't know that's what it could be.
Scott Benner 30:31
So by the time you get through your honeymoon period, you and they have moved your basal all over the place countless times, and you're like, you said, roller coastering up and down all the time. That could have been your launch. You know, once the honeymoon was over, your settings could have been so far whacked, like, I don't know where you would have ended up or how long it would have taken you to get back from it. Yeah, I hear so many stories of, you know, sometimes you get a great endo nurse practitioner, etc, and they help you get through it very quickly, and sometimes you don't, but such a crap shoot. Like, are you going to get lucky and get that doctor and then live a reasonable life the way you are now? Or are you going to get unlucky and just chase this dragon until you you know, to throw yourself off of an iceberg? Yeah,
Charlie 31:17
I think I got lucky with my endo now. I don't bounce around endos anymore. I have found a good one, and he is good. And I didn't know that until just a few weeks ago, when I had an appointment and I talked to him about loop I was on tandem tea slim, and I said, Look, I had started looking into loop more when Sydney was diagnosed, her team had suggested Omnipod for tubeless. And I was like, Yeah, but I, I know the value of an algorithm. I want that for her too. And her team had said that what they see in kids this age is algorithms just put them on roller coasters. And my first thought was, well, that's a settings problem, right? I just kind of agreed with them, because I, I wanted to fast track my pump for her or her pump. I knew they had to trust me in order to get that done. I was like, okay, yeah, we'll do Omnipod. And that's when I started looking into loop way more. So
Scott Benner 32:10
you smiled and waved them into giving you an Omnipod so you could put her on loop. Watch
Charlie 32:15
also my, well, my Endo, um, had even went into my loop settings. And he's like, No, you should do this. You should do that. And I said, Look, I'm surprised you touched my loop. Like, I've heard doctors don't do that. He's like, Nah, that's a misnomer. He's like, you're going to do great. Loop is great, and you're going to be teaching us stuff soon. And that's when I learned, okay, I have a great Endo, but her team. I don't know yet. I don't know.
Scott Benner 32:42
Don't worry. Give him a chance. Yeah,
Charlie 32:45
so her team was kind of against the algorithm. And I'm like, Yeah, that makes sense. Blah, blah, blah. And I kept doing my loop reading, yeah. And everything I was reading was saying with with kids on such little amounts of insulin that she was on her basal before pumping was half a unit of basal glitter, sometimes eyeballing a quarter unit. And on Omnipod, it was point 05 every other hour. So all my reading on these Facebook pages, your Facebook page was diluted. You need more basal for loop to work. I emailed her team and I said, like, Hey, I'm still doing my loop reading. I hear diluted will make it better. What do you think? And they called me and they said that there's actually a shortage on the diluent. Parents whose babies like nine month old babies need this, truly need it. Are buying it off the black market, and also it's off label to use diluted in a pump, so the doctor's not comfortable with it. And I said, Okay, yep, that's not an option. Then that's fine. But a month goes by and I'm like, I haven't seen any complaints about the shortage of diluent on all these Facebook pages. So I posted, I'm like, Hey, like, in my Canadian Facebook pages, the local ones, is there a shortage on diluent? And nobody said yes. Like, everybody's like, No, we all have our diluent. What
Scott Benner 34:17
do you think happened then? What do you think that answer really meant from them. They just didn't
Charlie 34:22
want to do it because it's off label. I even called Lily and asked, is there a shortage on your diluent? And they said, No, there's no shortage. And they told me how to get it from the pharmacy, and I got it so now she's looping with diluted, and her team doesn't know yet. And
Scott Benner 34:39
you took care of that all by yourself. I did. You're an awesome mom, aren't you? Well, it was your podcast. Well, yeah, I mean, I'm awesome, but if I keep saying that, people are gonna get annoyed with me. So you're an awesome mom. Take credit.
Charlie 34:52
Well, I was chatting with Adam from Adam song. He reached out on your page and said, Hey, feel free to message me. So I. Private messaging with him, and he was helping me convert her settings, and just helping me, like helping to set me up for success with putting her on diluted. Oh, that's awesome, too. It was awesome like he there's a few things that I would have figured out myself. They would have been speed bumps, but he helped. He just tweaked it, and they weren't even a problem.
Scott Benner 35:23
You know, I daydream sometimes about moving the Facebook group into a like, a private group. Like, there are third party companies that make, they basically make Facebook pages, but it's not in Facebook, and they have more options, like, and one of those options is like, people can set chats up and talk to each other right there and, and I so dream of like, like, not even like, most people set those up to charge people to be members of them. My dream is to just pay for it and let everybody just be in there for free. But I don't know how to get people to leave Facebook to go use this thing. And I get scared that it'll, like, split the group up, but I know it would be a better experience. It would be nice if Facebook would just add some of these features, but nevertheless, and then you wouldn't be stuck with their algorithm. Posts you see, you would just see them all, okay, yeah, which would be really wonderful, but I just, I can't figure out how to get that accomplished, and I don't know that it would work, yeah, but it's so cool that you found that person, and that you guys, you know, struck up a little bit of a of a friendship there and and took care of things, yeah? And we're
Charlie 36:31
still, like, I, I've touched base with him the network, man, it's, it's been incredible.
Scott Benner 36:36
It gets around the problem that you outlined and me, you basically just told a story about trying to get diluted insulin that I told about trying to get an Omnipod when Arden was four, right? Like somebody, you know, in a, you know, I'm making air quotes, but in a position of power, decided that that wasn't a thing they wanted me doing, and then they gave me a bunch of excuses about why it wouldn't work. Right now, you know, I don't know. 16 years later, Arden has been wearing an omnipot for 16 years. But back when Arden was four and I was looking for a pump, my wife and I were out looking for a pump. You know, omnipot was very new at that point, and they were like, you don't want that. They gave me a bunch of reasons why I didn't want it. And, you know, you basically just got the same thing. Oh, there's a shortage of that. Oh, it's not okay to using a pump. Oh, this. Oh, that. What they really mean is, we don't want to be involved in this. Like, so, yeah, why don't you just go home and struggle through this till this isn't a problem anymore? Yeah, and it sucks. It
Charlie 37:35
sucks. And I just wish, like, if they're that uncomfortable with it, sign a waiver. Like, have me sign something I recognize that my doctor advised against this, but I'm doing it anyways, yeah? And then watch me do it, right? But, yeah, that's not going to happen, but, but, like, if you're that on, I don't get especially when I'm hearing all these success stories of little kids looping on diluted Yeah, so it's not that dangerous. Listen,
Scott Benner 38:01
I've never used the little insulin. I wouldn't begin to know how to even accomplish it. I don't know that. I couldn't figure it out if I had to, but I have. I've never been involved in it, but I have seen 1000 people talking about how valuable it's been for them when their kids are very small and don't need a lot of insulin. Yeah, you know, again, I'm proud of you for figuring that all out, fighting through the system and getting it accomplished. Thank you. You're welcome. It's very cool.
Charlie 38:25
It was a lot to do this past year, I bet, but even back to the community, like, when I was building loop, I was messaging these people from around the world, they're helping me, and they're like, feel free to pm me. And then I'm messaging them like I because I was determined, like, I'm not going to waste the time of all these volunteers, I'm going to find the answers myself. The answers are here. They have all the websites, they have all the documents, but sometimes I just couldn't find the answer, yeah, but post and then they just immediately share. Yeah, I got answers right away. It was incredible. It was just like, it brought me to tears a couple times as I'm thinking about all these random people around the world who are helping, helping me. Yeah, it was amazing. That's
Scott Benner 39:08
awesome. And I'm proud to be perhaps, the, you know, the person that set the community up, that facilitated the conversation. So yeah,
Charlie 39:16
like for Yeah, you did, like it started with the juice box. For me, that's awesome.
Scott Benner 39:21
I'm so glad. Yeah, hey, you mentioned earlier that one of the reasons you didn't go to you guys call it University, like college, is because you couldn't think of something to go for. If I asked you now, what would you want to go for? Do you still not know?
Charlie 39:34
Oh, I don't know. I don't know. That's interesting.
Scott Benner 39:37
I didn't know if something had popped up in the years and you thought like, oh, you know what I would have been great at. You know this?
Charlie 39:43
No, I mean, maybe something with a hydro company, because they have great health benefits.
Scott Benner 39:48
That's all, oh, just something to get, something to pay for the diabetes. Currently, do you have a job? Or are you raising the kids? I'm raising the kids. Yeah, yep. Yeah, that's awesome. What's your husband do? He works for hydro. Oh, I see. And he's got good insurance through them. Yeah, the health coverage
Charlie 40:07
we have, I'm so, so thankful for it. I just can't imagine. What do they do? Is it water, oil, hydro, electricity, electricity, power line. Gotcha? Power Line? Technician, yeah.
Scott Benner 40:19
Oh, does he lay lines? Yep, hang lines. Oh, that's awesome. Yeah. Does he have stories about birds and other crazy things that, oh yeah,
Charlie 40:28
melted squirrels and, yeah, he'll take pictures. And he loves finding a melted squirrel, because then that's the problem. He goes, I guess. Oh, that's like, they don't have to troubleshoot anymore,
Scott Benner 40:40
yeah, just peel off. Show
Charlie 40:41
up like, oh, there's there it is. They don't have to, God, yeah,
Scott Benner 40:48
but, um, but a great podcast. All right, so now listen, we're three quarters of the way through your episode. Are you doing a good job? Are you going to be happy with this? I do not need you upset again now that you know how the links work.
Charlie 41:02
No, I feel, it feels, yeah, it's good, awesome.
Scott Benner 41:05
Yeah, that's really great. What just saw you make me laugh. I just imagine you like, you know, being like, where's that link? I forgot to say something. I'm gonna be I'm gonna have to put like, a No, I
Charlie 41:18
won't do it again. Maybe, if another kid gets diagnosed, then I will. I
Scott Benner 41:23
hope that doesn't happen me too, although I'm enjoying speaking with you, but not enough for one of your children to get diabetes so that I could do okay, yeah, how involved with all of this is your husband? Have you been passing information to him about your daughter's care?
Charlie 41:38
Oh, he's been amazing. It's been incredible. He just took it in stride. He learned really fast. I was careful to not overload him with information, because I was watching him learn how to look after our daughter and and I was seeing myself eight months prior. Yeah. So what happens usually is he comes home from work and then he's looking after her. He's counting the carbs, he's dosing her. He's in control. When he's at work, I look after her like, I think we've done a great job sharing. And there was times like I'd see him doing something and I think I'd do it differently, but I wouldn't say anything. I think he has to learn. Are
Scott Benner 42:20
you finding that his different is different wrong, or just different, different, but still works
Charlie 42:26
sometimes different wrong? Like, there was times I'd think like, that's not enough insulin, or that's too much insulin. So then I think he has to learn. Like, so what if he gives her a bit too much insulin? We'll have to give her some juice, and now he knows what it feels like to give a bit too much insulin or not enough. You
Scott Benner 42:44
have some have those experiences the way you do. That's
Charlie 42:46
the hot yeah, yeah. That was at the very start. I wouldn't say much. I kind of just let him do it, but then moving forward, once he had a better understanding, then I'd be like, hey, maybe we should try this. But do what you want, and
Scott Benner 43:00
it's awesome. I'm very open minded. My wife tells me, I do everything wrong, and then I sometimes say to her, you know, when you're not around, I live quite fine, yeah, like, I've made a number of decisions over the years that have gone well because anyone noticed? No, okay, but that's maybe a different generation who knows she's a lovely girl. That's the first thing I want to say. And if she hears this, I'm just kidding. You've never done that every day, Charlie, what? What are the impacts on the other kids? From you having type one and then from your daughter being diagnosed? Well,
Charlie 43:39
the baby, she's not even two yet, so she's doesn't know, but our oldest, I'd say, he felt the new diagnosis a bit because of all the extra attention. I'm sorry. The baby just came upstairs and she playing with a loud voice
Scott Benner 43:54
so the baby can get up the steps. She came
Charlie 43:57
upstairs with a loud toy, and I'm I'm walking away from her. Just push
Scott Benner 44:01
her down the steps. No, push her. Just push her. The Fall will stop her from coming back. She won't try it twice. I don't think. No, you're fine. What? What's the loud toy,
Charlie 44:09
the rolly thing? She's walking with this cookie rolly. Oh, I used to love that when I was a kid. Yeah, she loves it too, which is fine. Does
Scott Benner 44:17
it do the uneven wheels thing, where it kind of looks like it goes up and down a little bit.
Charlie 44:21
No, it's a different one, even wheels, but there's like, wood in it that clicks around. Yeah, that's lovely. Joey is our oldest. He was jealous of the diabetes, and he has said it a few times. He's like, I wish I had diabetes. So I got a prize because we got the NIA prize bin for her needles within the first week, and you
Scott Benner 44:42
should have stuck him with a couple of needles and said, hey, oh, this feel worth it, by the way. Wait just real quick for the people who think I'm an asshole. I'm just kidding. So you shouldn't just stab people with needles. But did you do something to try to offset that and help him?
Charlie 44:58
He got a lot. Up more one on one time, like we'd point out, like, hey, like, let's go outside and ride your bike. So he learned to ride a bike with no training wheels the two weeks after her diagnosis, because we spend that much time with him. One on one
Scott Benner 45:13
you saw that quickly and you reacted to it. You know it's, can I say something? Yeah, Charlie, maybe you found your job just fine. You know what? I mean? I know. Yeah, yeah. Like, everybody doesn't have to run off to college and do a thing to have a great life and be super valuable and complete inside.
Charlie 45:35
Yeah? Like, I'm happy. I just wish I could make a bit of money at home. That's all.
Scott Benner 45:38
Yeah. Well, you got to get those kids to pay you for what the work you're putting in, right? That's all, if you figure that out. I think you've got a winning combination right there. Yeah, yeah. If only can you send them out in the street to sell pencils or Panhandle or something like that? What if they held a sign that said, My mom works really hard and I don't pay her anything?
Charlie 45:57
That would work? No, yeah,
Scott Benner 46:01
the cardboard would freeze and get wet, probably, and then nobody be able to replace Ontario, right? Oh, yep, sounds
Charlie 46:08
cold. They just had a they had a snow day yesterday. Well, of
Scott Benner 46:11
course, what happened? Tell and Friday. Tell people how many feet of snow fell yesterday? Well,
Charlie 46:17
it was just freezing rain yesterday. Oh, but we got like two feet on Friday, so they had, I had all kids, all three kids, home four days in a row. God bless
Scott Benner 46:27
you. The snow. It's very upsetting to me when I hear about it. Yeah, I don't like it. My son enjoys, uh, downhill, snowy things. Every time I see him, he's having such a good time, like pictures, videos or whatever. But all I can think is, isn't it cold? And he tells me it's not. But he says it's not. He's like, once you get up there and you start doing it, he's like, you don't really, you don't get cold. And I'm like, I don't know. It seems like it would be really cold. I don't know. I probably just grew up with parents who didn't like to be in the snow, although it occurs to my wife and I recently, my wife enjoyed the snow. I did not. So when the kids were little, and she'd be like, take kids out, and it's not big, like, they didn't really grow up being out in snow. Okay, my son took to it really quickly.
Charlie 47:11
The kids don't get cold because they don't stop running and shoveling. Yeah,
Scott Benner 47:14
yeah, right, you're making a point. Maybe I should have went out. That's too late. Now. My life is best paid by now, I'm too old to go out in the cold. And by the way, if I'm being honest, now that I've lost weight, I do get cold faster. Really. I'm like, an old lady. I'm like, is it chilly in here? My
Charlie 47:31
husband's so glad when he, when he shaves his beard off, he's like, it's cold.
Scott Benner 47:34
I don't know. Yeah, no kidding, right? Sometimes I go outside, I'm like, my god, it's cold. Like, I bought a jet. I've never really owned a jacket as an adult, but I bought a jacket. I was like, I gotta have something to put on when I go outside. So anyway, these are just my problems, not yours. I don't want to take up your time. What have we not talked about that we need to
Charlie 47:54
I guess. Her diagnosis, I caught it early. Yeah, her hair fell out, was the first sign, Oh, her hair fell out. Um, looking back, her hair was falling out over two weeks. But in the moment, you don't think your three year old's leaving a hair No, sure. So initially it was like, you pull out a hair tie and it's like, Oh, I'm sorry, sweetie. Like, I must have pulled pretty hard, because a lot of hair came out. And then you brush your hair and it's like, oh, I guess I haven't brushed her hair in a while, because a lot of hair is coming out. And after two weeks, it's like, No, her hair is thinning. Now it wasn't clumping, it wasn't coming out in clumps, but it was thinning like to the point that she looked like an old lady, like it was really, really thin. So then my first thought was, she has diabetes, because hair loss is from can be from stress, and my sugars stress the body, and I just snuffed it. And I'm like, Nope, I because I had to trial that kit in the house. I hadn't. I had decided to test the kids, right? But I hadn't taken her yet for that antibody screening. It was on the kitchen counter. Like, Nope, it's not so
Scott Benner 48:58
you sniffed it out, but then you didn't want it to be so Is that correct? Yeah, okay, okay,
Charlie 49:03
I just in the back of my mind was this voice of, like, diabetes and like, no, it's so unlikely that she'll be diagnosed. But made a doctor's appointment for the hair loss, which took another week. They said it was probably from a fever a few months prior, that it's actually quite common for kids to lose hair after a fever. We've had many fevers, and we've never they've never lost any hair or vitamin deficiency, yeah, so she ordered blood work, and I did say I'm like, by the way, I have diabetes. What are the chances? And she asked about her water consumption. Like, yeah, she has been drinking a bit more, but it is warmer out. We've been outside more. Like, I could kind of justify the water at that point. So she's like, Oh, her own sugars, just in case. But then it took a week to get the blood work done, and by then, her water consumption had gone up a lot. And I just, I had to poke her. So I did. I couldn't go to sleep. I just got to test her blood. And I done it before. Four twice months before. For some other reason, I thought she had diabetes, and I'm like, I'll test her blood. She'll be in the fives, and I'll just go to sleep. I tested her and it said 21.9 and my first thought was, oh, I'm holding the meter upside down. That has to be 12. But, I mean, 12 still not still
Scott Benner 50:22
would have been still
Charlie 50:23
not okay, but like 21 so I flipped the meter upside down, and I'm like, that's not right either. Then I flipped it back upright, and I'm like, it's 21.9 and then it hitting me like, this is this? This is diabetes. I told my husband, I said, Look, I just tested her, and now I'm crying. I ugly cried. I've never cried that hard in my life. I had this little voice in the back of my head that was like, she's fine, she's going to be fine. You already know what to do, but I had all these emotions, yeah, sure, and all these posts that I told you, I just scrolled on by, not my problem, not my problem. All I could think was, now, this is my problem too, not just me, but a kid. So I cried and I let it out, and then when it was out, I checked her ketones, and they were okay. So then I decided, okay, we'll just take her tomorrow. Because I'm thinking, do I have to go to the hospital now? Like I'd I never went into DKA. I don't know. I don't have that experience, so, but I did have the ketone meter for myself, and her ketones were okay. So I thought, Okay, one more night, it is fine. Not that I slept. I stayed up till two in the morning searching Google for any other reason she could have high blood sugars, and obviously there was nothing. Yeah, and then yeah, the next day, took her to the doctor, and that's when we got the lab work. Her blood sugar in the lab was 32 and her agency was 9.9 Wow.
Scott Benner 52:00
Yeah, that's really well. It's well done figuring it out just from the hair thing, and then getting through the process pretty quickly. I think he did a good job figuring it out.
Charlie 52:11
Yeah, I think so too. But thank you. It's nice to hear it. No,
Scott Benner 52:14
of course, you took me back to standing in a hotel room in Georgia with my son playing while he was playing baseball, when I got the phone call from Kelly that Arden had thyroid issues, and I was, I was so upset that another thing happened, yeah, I think because my son was there, I didn't scream out loud, but I, I remember screaming in my Mind, yeah, yeah. So I found that very upsetting. Actually, I don't know why. I mean, as, I mean, the diabetes was incredibly upsetting, don't get me wrong, but like, the idea of like another thing felt unfair, and you know, then you realize it's unrealistic to feel like only one bad thing is going to happen to you in your life, nevertheless, like, I know what you're talking about. So, yeah, I appreciate you sharing that. Jeez. Way to bum us all out at the end, Charlie, I know, right? I don't know what to say now, yeah. I mean, yeah, you really, you ruined the whole thing. Let's go back to, how do the squirrels melt? Exactly? They just, like, are they like plastic, like, you know, like, or like, when a candle melts on it, like, when you, you know, when you burn a candle and it like drips on the tables, more like that, you peel it up in a big like
Charlie 53:24
that. It's pretty goopy, looking from the pictures, I've never seen one like he doesn't bring them home. Wow. But yeah, the pictures, there's like, goop and maybe some bones,
Scott Benner 53:37
goop and bones. Yeah, it's weird.
Charlie 53:39
Weird. Well, that's
Scott Benner 53:40
much more upbeat than the thing about the kid get kid getting diabetes, that's awesome. Thank you. I know, by the way, goopy bony squirrel not an upbeat thing for those of you who think that I I'm not kind to animals, by the way, for anybody who might think I'm not kind to animals, I'm looking behind me here, and there's a rain forest of like, reptiles living in this room that somehow started with me going, like, I'm gonna get a chameleon, and ending with me going, I have too many chameleons.
Charlie 54:08
I don't. Haven't followed the podcast enough to, like, know a lot about you, because all I've done is listen to the episodes that will help.
Scott Benner 54:16
Oh, you do the Yeah. Oh, you're a very management focused listener.
Charlie 54:20
Well, right now I've had to, like, when she was diagnosed, I thought I'm going to listen to this podcast start to finish, and I got two episodes in, and I'm like, I can't do this.
Scott Benner 54:32
I better go get the stuff I really need. No Not even that. Oh, not even Oh, tell me. Well, I
Charlie 54:36
needed a break from diabetes. I'm like, I'm already still learning very much, learning me and my new pump. Now I have this three year old. So now on my downtime, I'm going to listen about No, I am living it. I'm not going to listen to it anymore. I had to turn it off, had to take a break. I understand. I had to, like I had to go back to my. Crime podcast. Well, I did the dishes. No,
Scott Benner 55:03
I completely understand it. I also just got a note from old lady last night who said the same thing. She's like, it's too much diabetes for me. I can't and then, but eventually a lot of people cycle through that and then come back and do what you did and start listening later.
Charlie 55:20
I know I will in time, but I'm not gonna binge it like I binged the series to help me learn about diabetes. Yeah, so I know one day I will get through them all for sure, at
Scott Benner 55:33
your leisure. They're there for you when you need them, if you want them, yeah, yeah, absolutely. Well, I really appreciate this. I can't thank you enough for taking advantage of the system and coming back on and retelling my story. I'm so scared for all the people right now who are like, I didn't do a good job. I still, I still have that link somewhere. Oh, my goodness, I can't believe please email me first and ask so we can get it all worked out.
Charlie 55:55
Yeah, you're gonna change your system now, aren't you a one time use link or something? I
Scott Benner 55:59
mean, I've been thinking about it for about an hour now. Like, I wonder if the system, like, makes these, like, maybe I can make links that expire. That would be a good idea. Yeah,
Charlie 56:11
I'll book one. Now, before you do that, no,
Scott Benner 56:14
no, yeah, no, no, I pre it's such it's so funny. Like, when you said you were, like, a returning guest, and you're like, and I was on beaver tail, and then I went and I looked, I was like, that just came out. I'm like, I don't do things this way. I was like, Well, how is this possibly happening? But now you described, uh, you described it very fully. I understand what happened. So there's a flaw in the system, same flaw that lets those squirrels get through the electricity, I guess.
Unknown Speaker 56:40
Yeah, really.
Scott Benner 56:43
Well, you Canadians, you're just normal people like everybody else, right?
Charlie 56:47
Yeah. I mean, we apologize a lot. I believe we don't say sorry five times a day. We risk losing our citizenship.
Scott Benner 56:56
I love that you said sorry. Thank you for I know you don't know that you just said sorry. You think you said sorry, but I really appreciate that you did
Charlie 57:02
it. Oh, the like, with an accent. It's
Scott Benner 57:04
one of my favorite, like, Canadian words, accent situations like, sorry, sorry, yeah, it's my it's my favorite. It might be my favorite one. Actually, you guys do a couple of that are, like, about or a boot. Now the a boot thing that's too overdone, yeah? Everybody over here a boots all the time when they when they're making fun of you Canadians, yeah, I just the story to me, like, you've changed the word completely. I had no idea. And at the same time, the way it gets drawn out actually adds to the story. Like, like, like, you really are sorry. Not just like, Oh, I'm sorry. It's like, Well, I'm sorry,
Charlie 57:40
there's like, a sad tone to it. Yeah, yes, the
Scott Benner 57:44
way the words pronounced adds sadness to the tone. It's just very Canadian, in my opinion. And I, of course, know nothing about Canada, but I mean, if you're gonna listen to me about my opinion about Canadian, this is the most Canadian thing, except for beer and working in oil fields, apparently, which is a big thing there. Well, maple syrup, yeah. I mean, what an oddity, right? And why is it so expensive? I don't know, but I love it in my coffee, in your coffee, yeah. What the hell are you serious? How do you bowl us for that? At
Charlie 58:17
first, I didn't before I found the podcast. Have I talked about that enough? I would do an hour Pre Bolus on tandem or with MDI on MDI be like 30 minutes to an hour Pre Bolus. But with Luke, now, I don't need to wait that long,
Scott Benner 58:30
okay, because it hits it more and more as it rises.
Charlie 58:33
Well, I can type it in as a fast acting carb. Oh, I see. And it and then it. Loop has been awesome, amazing. Yeah, yeah. I went from like 85% in range on tandem with a lot of intervention on my part, to like 90s, mid 90s, time and range, and I changed nothing, and I still eat pizza.
Scott Benner 58:52
Wow, good for you.
Charlie 58:54
That's awesome. Yeah, I couldn't believe it. They
Scott Benner 58:56
had pizza in Canada.
Charlie 58:57
Yeah, you have pizza in Canada, but no maple syrup on it. Why? That's just in the coffee Canadian
Scott Benner 59:04
pizzas, most popular pizza in Canada, is typically made with tomato sauce, mushrooms and bacon. The dough is not made in a specific way. I don't believe that you have pizza. I'm not. I'm not joking. I genuinely don't. It's not like, a big, thick, like, no, it's thin crust, too interesting. You get deep pan. You can get the deep pan pizza. I don't want that. No, if I ever come, I'm gonna have pizza while I'm there, just to judge it. Dominoes. No, see, that's not pizza. You don't know. I knew. You didn't know about pizza dominoes. Dominoes is fast food. Ah,
Charlie 59:40
okay, then maybe we don't have pizza. You don't.
Scott Benner 59:42
There's no way you do. I don't know why, but it can't be possible. You can't. Oh, my God, are you ever going to travel
Charlie 59:50
here? Probably not in the near future. No, all right, I'm just
Scott Benner 59:54
saying, if you ever get to the East Coast, just, please, just anywhere, even on the street. You. You'll be like, Oh, this is so good, or you'll hate it. Who knows? Maybe you just maybe you've got a taste for the dominoes. I do have a taste for the dominoes. Do you ever order any of these other scary things that they have, like the cheese filled things, or the macaroni and cheese, or do you stick with the pizza? Mostly, not
Charlie 1:00:15
the No, not the mac and cheese, but their chicken bite, those are good. And then the cheese bread, the philly steak. Cheese bread,
Scott Benner 1:00:23
philly steak I get. I am from Philadelphia, and I guarantee that there's nothing about that that would mimic you having a cheese steak here in the city. Well, there is a Domino's perfect combo deal for $20 that has so much, and I'm going to use air quotes food in it. I can't understand how it's only $20 there's a pizza. There's lumpy things. Other lumpy there's a lot of stuff here, dipping sauces. I pick
Charlie 1:00:53
based off of what coupons they offer. Okay, they always have a mix and match coupon. So it's like 899, for all these items, and I picked from those.
Scott Benner 1:01:03
I just have to say, I want to say this out loud, if you are bolusing for dominoes and all the accouterments that come with dominoes with something I taught you, I'm a fucking genius, that's what I'm gonna say right now, because this stuff does not look good. No, we
Charlie 1:01:19
had, like, a few days into looping, we had Domino's Pizza, and I'm like, Alright, I'm prepared for a high. Because I'm like, I'm I'm gonna do the like, five minute Pre Bolus, and because with tandem, I had all my tricks to, like, not go high. And I'm like, I just gotta start somewhere with loop, I didn't go, I hit, ate something, and then came back down, and that was it. I couldn't believe. No,
Scott Benner 1:01:42
I'm a genius. I'm going to come right out and say it also, I want to tell you all that if you just go to YouTube and search for Stadler made pizza, you'll learn to make a dough there. Then I'd like to see you make your own sauce, throw a little bit of Montreal cheese on top of it, put it in an oven, bake it up. I really think Canadians, you would love this. I want to get you away from dominoes or pizza. Pizza, Little Caesars. Yeah, we do. That's there too,
Charlie 1:02:07
not in our town, though, we just do dominoes. Okay?
Scott Benner 1:02:10
Saddler made YouTube learn to make a pizza for yourself. I think you'd really enjoy it. Okay, I will look that up. I mean, you've got three kids, they would love making pizza. They
Charlie 1:02:22
would Oh, they do love making pizza, but we get the like the frozen No,
Scott Benner 1:02:26
no. Charlie promised me you. You tricked me and came on the podcast space, promise me you'll make pizza one day.
Charlie 1:02:32
I promise you. Oh, I will look well, yeah, I write this link down, then I got
Scott Benner 1:02:38
no Statler. SP, T, A, D, I'll find it for you. It's S T, A, D, L, E, R, pizza dough. Oddly enough, the guys from, I don't even know where, he's got quite an accent. He has great short videos about how to make pizza dough and how to, like, ferment it, and then, you know, it's a little bit of a process, and you're not gonna have a pizza oven, but I still think you can get away with doing it in your regular oven at a high temperature kind of quickly. I see this as being a nice family. I'll give it
Charlie 1:03:11
a shot. I will. I'm gonna do it. Yeah, thank you. We haven't had to keep the night in a while, so
Scott Benner 1:03:17
if I just do this real quickly, I think I can use the guys. The guys got such an interesting voice. Hold on one second.
Speaker 1 1:03:23
Slowly start to suck up all the voice and start to stick onto the table. In case this happens, I have one tip for you. Try to blow some air underneath. Okay,
Scott Benner 1:03:32
I don't know what accent that is, but some of the fish knows how to make pizza, so you don't know. Yeah, how would you know what an accent is. Yeah, we don't have accents, right? Just listen, if you don't make the pizza, call me up and just say, oh, you know, I'm sorry. And then that'll be the end
Charlie 1:03:48
of it. I'll make it, and I'll post my graph into Facebook. Thank
Scott Benner 1:03:52
you. Thank you. Last question, I'll let you go. Right. All right. What do you think it is about the Canadians and the apologizing?
Charlie 1:03:59
I have no idea, but I was sick of being teased for it when I worked for the circus.
Scott Benner 1:04:04
You're not joking though, right? Like you're you're apologetic by nature. I
Charlie 1:04:09
don't know where it came from. I think it's, it must just be a word. It just must be like, we don't always mean it. We just say it, kind of thing. Oh,
Scott Benner 1:04:18
you don't think you mean it when you say it. Not
Charlie 1:04:20
always sometimes, yeah, it's just, I don't know.
Scott Benner 1:04:24
My wife would tell you I haven't apologized since I met her, and she might be right, and I feel bad about that. I don't know. I just didn't know if you had any insight about it. You almost apologized while, while explaining why you might apologize. You were like, well, you know, I mean, it's just a thing we do and, you know, like, it gets like that all the sorry. I don't even know you were a split second away from going, I'm sorry, but I can't answer your question about sorry, so I don't know anyway. God bless you. And that was a weird thing to say. I have no religious holdings whatsoever, but I but I'm really happy for you and the success you're having. Manage. Your your child, yourself and how far you've come in such a quick amount of time. So, really, seriously, well, thank you. No, it's my pleasure. Hold on one second for me. Okay,
Charlie 1:05:08
okay.
Scott Benner 1:05:17
Arden has been getting her diabetes supplies from us Med, for three years, you can as well us med.com/juice, box, or call 888-721-1514, my thanks to us, med for sponsoring this episode and for being long time sponsors of the Juicebox Podcast. There are links in the show notes and links at Juicebox Podcast com to us Med and all the sponsors, a huge thanks to Omnipod, not just my longest sponsor, but my first one, omnipod.com/juice box. If you love the podcast and you love tubulin pumps, this link is for you. Omnipod.com/juice box, I can't thank you enough for listening. Please make sure you're subscribed, you're following in your audio app. I'll be back tomorrow with another episode of The Juicebox Podcast. If you or a loved one was just diagnosed with type one diabetes and you're looking for some fresh perspective, the bold beginning series from the Juicebox Podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginning series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698, in your podcast player. Or you can go to Juicebox podcast.com and click on bold beginnings in the menu. Hey, what's up? Everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob at wrong way recording doing his magic to these files. So if you want him to do his magic to you wrong way recording.com, you got a podcast. You want somebody to edit it? You want rob you?
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