#1410 iLet User Experience

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Dakota moved from Omnipod 5 to iLet to lessen his carb counting burden.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Dakota 0:00
Hi. My name is Dakota. I was on Episode 1198 and today I'm here to talk about my switch from Omnipod five to the islet bionic pancreas. You

Scott Benner 0:23
you, Hello friends and welcome back to another episode of The Juicebox Podcast. Nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. If you are the caregiver of someone with type one diabetes, or have type one yourself, please go to T 1d exchange.org/juice, box and complete the survey. This should take you about 10 minutes, and will really help type one diabetes research. You can help right from your house at T 1d exchange.org/juice, box. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juice box at checkout. That's Juicebox at checkout to save 40% at cozy earth.com when you place your first order for AG, one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink. AG, one.com/juice box. Hey everybody. I know there's so many episodes you might be like, I don't know where anything is, but if you go to Juicebox Podcast com, or go to the private Facebook group and look in the feature tab, you'll see a complete list of all the series that exists within the podcast. Today's episode of the juice box podcast is sponsored by the Dexcom g7 and the Dexcom g7 warms up in just 30 minutes. Check it out now at dexcom.com/juice box. This episode of the juice box podcast is sponsored by us Med, us, med.com/juice box, or call 888-721-1514, 887211514, get your supplies the same way we do from us. Med, hi.

Dakota 2:07
My name is Dakota. I was on Episode 1198 and today I'm here to talk about my switch from Omnipod five to the islet bionic pancreas. Awesome.

Scott Benner 2:18
Welcome back. Thank you, of course. What'd you say? 1198, Yep, let's see what we call that one hitting cows, one of my favorite titles. Do you remember like when you look back on that? I mean, that went up. Would you say May 1620, 2322 I don't even know 24 excuse me, just this past year, I've now lost track of everything. When you think back on that episode, it's been year and a half since you since it's been up. So it's been two years since you recorded about Wow, is it 2025 Dakota, how about that? Yeah, you heard me get confused there, huh? Like I said two years ago, and put myself into 2022 when you think back on that conversation, like, what do you think the overall message is like, if I if you didn't know you and you listened to it, what would you say? Like, this is what the code is talking about.

Dakota 3:13
Probably along the lines of, this is a young guy who's just starting his journey throughout diabetes and just learning everything you can, yeah, and

Scott Benner 3:23
then what's changed for you since you recorded that two years ago? Like, what did you learn? What did you try? What did you decide?

Dakota 3:33
Uh, perfection is very hard to achieve,

Scott Benner 3:37
for sure. Were you trying at first?

Dakota 3:39
Yeah, I was trying my hardest. I got burnt out very quickly.

Scott Benner 3:44
So what was like, functionally? What did that look like? What did trying look like? Counting all my carbs, dosing as often I could, pre policing, corrections and it all just, it got to it got to be too much,

Dakota 4:00
yep, thinking about what I'm gonna eat constantly,

Scott Benner 4:03
when it felt like too much. Did it stop you from doing it, or did it just make the whole thing drudgery? A little bit of both? Okay, yeah, I dreaded diabetes, and

Dakota 4:17
at the same time I wanted to do my best, but to a point I just

Scott Benner 4:23
couldn't. Is what it felt like. So did it turn into like, no matter what I do, this is how this is gonna go. So why bother?

Dakota 4:31
Yeah, and I was seeing like, 40 to 400 in the same day, multiple days

Scott Benner 4:37
in a row. And did you think you didn't understand what you were doing? Or do you think that, how do you get to 400

Dakota 4:45
so I think I was honeymooning in the beginning, okay, and then my insulin needs just started increasing, and I didn't know the first place to kind of begin,

Scott Benner 4:57
I see. So you're now using incor. Settings, but making the same steps, and then you're not getting the outcomes you were accustomed to exactly, all right? And then can I ask why you didn't adjust the settings? I was

Dakota 5:11
adjusting the settings the best I could by myself. I think at the time, I was not seeing an endocrinologist, so I was between endos and waiting for a new one to come into the office. So I was just with my primary care, and she was doing the best she could, but didn't know the Omnipod five system.

Scott Benner 5:29
Yeah, remind people the reason your episode is called hitting cows is because you live in the middle of a field the middle of the country. Is that correct? Pretty much, yeah, you're pretty much seemed defeated. Would you like to come out here and see the city Dakota? Is that your

Dakota 5:46
as long as it's not snowing, the

Scott Benner 5:48
snow horrifying the weather is. So I don't want to talk about this, but the weather has become so strange over my lifetime. I don't know if it's just changing, and I'm locked into what I remember as a child. But I mean, it's January 2 here, and two days ago, I walked outside in a T shirt. It was like 56 degrees, and now the wind is blowing and it's freezing. I don't understand what's happening. I don't know what there used to I feel like there used to be a smooth transition in and out of seasons, but I don't think that's gonna happen anymore anyway. All right. Well, you know, you can always come out and visit come out and visit, can't stay with me, but you know what I'm saying? It's yeah, I just want space. So okay, so you get this feeling you're not getting reasonable help with making the adjustments you're trying. But what's happening are you just not making them quickly enough, and then days turn into weeks, and then you make another small adjustment, but it's not enough again, yeah? Or I'd adjust too much, and oh, it would Yeah, so then I'd dial it back a little bit. Oh, man, I just couldn't find the right place to be at, yeah, but I'm sorry. And so even on an automated system like Omnipod five, you didn't have your settings right, and it just wasn't

Dakota 7:01
working exactly. Yeah, the settings are very important on that system. They

Scott Benner 7:05
certainly are so in a normal world, a world before your new pump, you would have probably continued on, figured it out, reached out, helped people, or maybe just tumbled further into despair. Like, I don't know. I've seen it go both ways for people, but instead, what did you do? You can manage diabetes confidently with the powerfully simple Dexcom g7 dexcom.com/juicebox, the Dexcom g7 is the CGM that my daughter is wearing. The g7 is a simple CGM system that delivers real time glucose numbers to your smartphone or smart watch. The g7 is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes. The Dexcom g7 can help you spend more time in range, which is proven to lower a 1c The more time you spend in range, the better and healthier you feel and with the Dexcom clarity app, you can track your glucose trends, and the app will also provide you with a projected a 1c in as little as two weeks. If you're looking for clarity around your diabetes, you're looking for Dexcom, dexcom.com/juice box. When you use my link, you're supporting the podcast dexcom.com/juice box. Juicebox head over there. Now, eventually,

Dakota 8:24
I got in with my new endocrinologist, and he looked at my like my clarity report from Dexcom, my ANC kept rising over like six to nine months, and he had suggested that I should try the islet or the Medtronic 780, G, and I was apprehensive about Medtronic. And I had heard good things about the islet and what it can do and what the technology is and where it's headed.

Scott Benner 8:53
Tell me what made you apprehensive about Medtronic, just the things I hear or read about online. Okay, so some you heard something somewhere, and it was not a positive thing. And so you thought, okay, that's not a good option. But then you heard something positive about eyelet. Is that what happened? The more

Dakota 9:09
I looked into it, the more it seemed like this is what I wanted. This is what I needed. It was a lot for, like, mental health reasons,

Scott Benner 9:18
more of the promise of what eyelet is. That was what was attracted to you. Yep. Got you tell people how old you are? 2727 Well, used to go to we're all getting old. Are we gonna be 54 this summer? That's why, that's why it's hard to get the young people to listen. You know what? I mean, I don't have any hip things to say. I don't know any of the new phrasing for anything like,

Dakota 9:40
like you. I mean, I know of it, but I don't know what any of it means. You

Scott Benner 9:44
don't you don't use it. No. So funny, when an older person tries to throw in a word, you're like, Oh, Mom, stop. It's over. Mom, don't do it again. Okay, so the doctor is the one that says eyelet to you. I was hoping you heard about it from me or. From I had already known about it at that point. Well, that's important to say, just in case they want to be a sponsor, one day, they'd be like, Oh, Dakota. Heard about eyelet from Scott, and that's why, when his doctor suggested it, he was like, Okay, I'll try that. Is that about right? Yeah, pretty much. Excellent. Good job, Dakota. Now. Okay, so how long have you been using it nine months around there. That's how long it takes to make a baby. Yeah. Oh, wow. Your Isla could be giving birth right now. Let's take steps through it. The doctor suggested to you, do they hook you up with a company? Does they come to the house like, how do they do it? Isla

Dakota 10:37
gave me a cold or bionics? I guess it would be. They gave me a call, got me scheduled. Well, first they ran my insurance and seen if I was covered, found a place to send it to me from sent it to me, and then I had to wait, I think, two weeks before I could do a training session through zoom. Okay, because I didn't have anyone local.

Scott Benner 10:58
How was it training? Virtually? Did you have a problem with it, or was it pretty good?

Dakota 11:02
So when I was like, putting on my set, my insulin set, my infusion site, they couldn't see it in the camera, so they were like, I think you're doing it right.

Scott Benner 11:13
The sounds you're making sound right? Yeah. Okay. So not perfect, not being in person, but it worked out. Yep. Okay. Walk people through it. How do you set up an eyelet so you're

Dakota 11:22
gonna take it out of the box, and to turn it on, you have to set it on the charger, because there's no power button. And then when it turns on, it asks you how much you weigh, and that's the only setting that it needs. Did you tell

Scott Benner 11:35
it? Did you lie to it? Were you like, Well, I'm just kidding. I

Dakota 11:39
wanted to, no, I wanted to. Oh no, I'm,

Scott Benner 11:41
you know, I'm more, like, 20 pounds less than that, exactly. That's interesting. There's no power button, so you have to, you set it on the on the charger, that brings it to life, charges it up, and then on a screen, it asks you how much you weigh, or on an app on the screen, on the screen, and you like, I weigh this much? Islet go. And that's it,

Dakota 12:01
yep. And then there was something with, I think my Omnipod had ended earlier that day, so I was off insulin for a few hours, and my blood sugar was, I think, in the three hundreds when I started training, okay, but it quickly came down, and it was like 225 by the time we ended. How long was

Unknown Speaker 12:21
the training? About an hour.

Scott Benner 12:22
Okay, you pop that thing on, it makes a Bolus, and an hour later, you're falling already, yep. Now take me back to that moment right before you know if you're gonna like eyelet or not. And we don't even know if you like it yet, because we haven't gotten that far. But do you have that like, uh, there's a piece of tubing. Now I'm connected to a thing. Did you have that feeling? I did.

Dakota 12:44
Yeah, I wondered how I was gonna sleep with it, or I was gonna hook it up to if I was gonna snag it on doorknobs.

Scott Benner 12:53
Did it end up being an issue for you? A couple

Dakota 12:55
times it's fallen and ripped out, maybe twice. There was one time I was holding it in my mouth and I cracked the screen with my teeth and I had to get a replacement.

Scott Benner 13:09
Diabetes comes with a lot of things to remember, so it's nice when someone takes something off of your plate. Us, med has done that for us. When it's time for art and supplies to be refreshed. We get an email rolls up and in your inbox says, Hi, Arden, this is your friendly reorder email from us. Med. You open up the email, it's a big button that says, Click here to reorder, and you're done. Finally, somebody taking away a responsibility instead of adding one us. Med has done that for us. An email arrives. We click on a link, and the next thing you know, your products are at the front door. That simple us, med.com/juice, box, or call 888-721-1514, I never have to wonder if Arden has enough supplies. I click on one link, I open up a box. I put this stuff in the drawer, and we're done. Us. Med carries everything from insulin pumps and diabetes testing supplies to the latest CGM like the libre three and the Dexcom g7 they accept Medicare nationwide over 800 private insurers, and all you have to do to get started is call 888-721-1514. Or go to my link, us, med.com/juice, box. Using that number or my link helps to support the production of the juice box. Podcast. Did

Dakota 14:32
you tell them? That's what happened? I told them the screen was broken. Hello,

Scott Benner 14:35
beta, bionics, I was chewing on my pump. Would you please right now? They're listening. They're like a kid snooker at us. So you're saying couple things that can happen. This is not specific to eyelet, but like, you have the pump in your hand, you drop it, the tubing tenses up, it yanks out your infusion set. Yep, okay. And one time you ran out of hands, put it in your mouth, bit down too hard and broke the screen. Yeah. Yep. Do you have a unusually powerful bite

Dakota 15:03
I am known for clenching and grinding

Scott Benner 15:09
my teeth. Are you here to ask the people of beta Onyx to please make the screen a little thicker so you can chew on it some more, right? And I have to admit the sleeping part. You know, you guys know if you guys know, if you listen like, Arden has been wearing an omnipot Since she was wearing a pump, so since she's four, which means she's coming up on 17 years with it. Is that right? Jeez, yeah. My God, I am old. The sleeping thing hits me right away. I'm like, How do you like sleep with a thing attached to you by a cape, like you wake up and it's like, I almost said something ridiculous, Dakota, that would have been funny between you and I, but not while we're making a podcast. But does the tubing get wrapped around things?

Dakota 15:50
Not necessarily. It'll get wrapped around, like the clip on the pump, if it falls off my waistband, and then it'll get tangled up in itself. Yeah.

Scott Benner 15:59
Is it cumbersome when you're I don't want to dig into your life too far, but like with the ladies or anything like that, you just disconnect. You disconnect to people, yeah, to do that part. Okay? You find that all okay, yeah, all right. Nine months later, you look back on how you felt that day. Has it been a like would you characterize it as a problem or just an adjustment. Just an adjustment. Okay, all right. So day one, it's on. Blood sugar starts coming down. What do they explain to you? Is happening? Is it figure like, you know what I mean? Is it figuring things out? Is it, you know, what's the explanation you got? So

Dakota 16:37
the first week you're supposed to eat like you regularly would, which I mean that in itself, is a loaded statement, so it can learn you and learn like you're eating, styles and how much insulin you need for each meal. Because when you dose, you choose if it's breakfast, lunch or dinner, and then if it's a usual amount of carbs, less or more,

Scott Benner 17:00
when it asks breakfast, lunch or dinner, is it asking about time of day or type of meal?

Dakota 17:05
That is a good question, and I ran into that when I was eating dinner for breakfast within the first week of having it. So I had messaged my trainer, and she said to choose breakfast, because it's a breakfast meal, but it's a different type of day. I'm recording an

Scott Benner 17:22
episode, you know this. I'm now talking to the people who are listening. I'm recording an episode tomorrow with someone from beta bionics. I'm going to write that down as a question for me is, how did I just put that? Is it the time or type for meals? It's good question. Scott, thank you. Okay, so it must have felt like a week long. Pass about eating, right? Because your goal wasn't good blood sugars. Your goal was just eat, be normal and let the thing figure things out. Yep, yeah. What'd you do? Would you eat?

Dakota 17:53
That was the same week I was going on vacation. Oh, jeez. So it wasn't really a good week to start the eyelet,

Scott Benner 18:01
because your eating was not common for you,

Dakota 18:04
right? Yeah. But at the same time, I wasn't eating three meals a day, and I knew when I was on vacation, I would be eating more consistently because I was going to be with friends and family. Okay,

Scott Benner 18:16
all right, so you go through that process, it learns how you eat. I guess that's the phrasing, right? And then that's it. Like you get up in the morning, you go, This is breakfast. It's what are the three questions, again, is

Dakota 18:29
size of its uh, usual, less or more? Usual? Less

Scott Benner 18:33
or more than normal? Is that right? Is that the phrasing? Okay? So you get up in the morning, you're like, I'm having breakfast. This is usual. Do

Dakota 18:41
you Pre Bolus? I don't Okay. And I thought I read somewhere that it's not recommended that you do with the pump, because your blood sugar starts going down and then it backs

Scott Benner 18:53
off. Because it backs off. So do you get too high after you eat? But it brings it back. How does it end up working? Occasionally,

Dakota 19:00
that does happen. It's kind of a task in itself to think about. Is this my usual amount of carbs, or is it more Okay? Something that I struggle with still is deciding the amount of carbs

Scott Benner 19:13
to choose. When you're faced with that question, you think I don't know. Sometimes,

Dakota 19:18
sometimes I'll just press a button and go on, because I know it'll correct me back down, or do whatever it needs to do, I see. But if I am thinking about it, and I say actively trying, I usually don't go high after meals, it'll keep me within range. What's the range? 70 to 180

Scott Benner 19:38
Okay, so after a meal, if you don't go over 180 you feel like this has been successful. Yeah. Okay. How long does it take for it to bring it back to 80? Like, where, actually? Where does it hold you, generally speaking, away from food and insulin. So

Dakota 19:52
there's a higher target and a lower target. I believe there might be three targets. There might be a usual two. Yeah, I'm pretty sure the number is 120 is where it's supposed to target you back down to

Scott Benner 20:06
and do you stay at 120 or how do you where do you sit? Stable?

Dakota 20:09
My average is like, 141 50.

Scott Benner 20:14
Okay, where is it? What was it on Omnipod five, when you had your settings all messed up? Oh,

Dakota 20:19
I know I was in range for like 40% of the day,

Scott Benner 20:23
between 70 and 180 Yeah, and now, now,

Dakota 20:27
on a good day, I'll hit like 90% and I'd say I'm about 70 to 80% four days out of the week.

Scott Benner 20:38
How often do you get low where you have to save yourself throughout the day. Sometimes I'll get a couple lows. They're usually nothing like intense. Are they after meals? Like couple hours after a meal?

Dakota 20:52
Yeah, and usually I'm working at the same time, so there's some activity involved.

Scott Benner 20:57
I see when you were using Omnipod five your goal. What were your goals that you couldn't get to?

Dakota 21:04
I had it set for 70 to 150 and every time it would go over 150 I would like put in a small correction, if it would let me through the basal calculator. Yeah,

Scott Benner 21:16
that. That was the game, by the way. I think Bolus calculator, I tell you. I just told that to Arden yesterday, so, like, you know, she's getting older now, obviously. And I said, you know, we had your goal, like, your your alarm was lower. And I said, but I think as you get older, I think it makes more sense to bring it up a little bit. And I said, I think maybe we should start at 150 like, we don't want your blood sugar going sugar going like, like, what I told her was, I think if she assumes a miss at 150 after a meal and makes an adjustment as she's approaching that that'll be like, a good place to begin for her to, like, find her own rhythm with it. You know what I mean? Yep. So that's what you were doing. You were at 150 you're like, oh, it's, I'm getting too high. Give myself insulin. How often do you have to inter Well, it's not just intervene. You can't intervene, right? So, like, I was gonna say, like, how often does islet put you over 180 after a meal? And you're like, oh, I need more insulin, but you can't Bolus with it. Is that correct?

Dakota 22:16
That's correct. And if you try to, like, announce another meal afterwards, and that'll just confuse the algorithm. You

Scott Benner 22:23
can't lie to it about carbs. Yep, exactly. Okay, so how frequently do you find yourself thinking, I wish there was a button on here that gave me more insulin. Maybe once a day. You get stuck, too high, too long, ever?

Dakota 22:38
Yeah, every once in a while, if I, like, Miss real big. So like, this morning, well, while I was sleeping, I ran out of insulin in it, so it holds 160 units, and I think I ran out like, four hours before I woke up.

Scott Benner 22:57
Dakota, that Mm, hmm. Was very parental. I don't know if you heard it. Yeah, I could tell Yeah. Thank you. I don't I please, please change your pump before you go to bed. Is it a cartridge or do you fill the pump?

Dakota 23:08
It's a empty cartridge that you have to fill.

Scott Benner 23:10
It's a coda. How long does that even take? So and

Dakota 23:14
I got this little container where I can do multiple ones at a time and stick them in the fridge. So you're telling

Scott Benner 23:19
me that you neglected to walk to the refrigerator before you went to bed last night and risk DKA over that.

Unknown Speaker 23:24
Yeah, yeah.

Dakota 23:29
Dakota, listen, I didn't, I didn't know that I was even getting low on my insulin before I went to bed. That's not something I checked regularly. I

Scott Benner 23:37
would like you to check it regularly. I know. Okay, so, yeah, no, it was recently. We were, where are we going? I think we were going to see wicked. Have you seen wicked? No, no, I didn't imagine you had we were going. I was going with the girls to see wicked. And we're like, you know, like sitting in the kitchen. People are like, pulling on shoes and coats and stuff like that. And Arden goes, oh yeah, this pumps almost out of insulin. Good thing I looked like, yeah, good thing while we're sitting in the movie that cost $50 for three people to watch. And like, beep, beep, beep, beep. And like, Wait, we're not near our house. Like, so we changed pump, or she changed her pump, obviously, but then we brought insulin with us, which I think is a thing I would have I think I would have done that. I don't like going to places where, if something happens to a pod, it ruins the experience, if we don't have one with us. Does that make sense? Yeah, yep. Okay, so I have questions, I guess. What are they? Is it worth it?

Dakota 24:35
Like I think, I think so for me, a big part of it, again, was for my mental health. So when I was starting to feel defeated with the Omnipod five, I would like rage Bolus, and sometimes it would be before I'd go to bed, which is not a good idea to do. No,

Scott Benner 24:52
you're making a list of things I don't want you to do here. It's okay. I like your honesty. Dakota. I appreciate you. Yeah. Okay. So it's worth it, because you were having other challenges, and they don't exist anymore. I feel like they don't. That's awesome. Yeah, did you exchange one problem for another? Like, what, I think my wife, the only reason my wife doesn't leave me. She's like, you know, the devil you know. But have you exchanged one problem for another. Like, did you fix it one set of issues, but you have a different set now.

Dakota 25:24
It feels like when my when I need to work on my mental health, my diabetes, takes a back burner. So yeah, in a way, trading out one problem for another, and it kind of goes back and forth between those two,

Scott Benner 25:37
like a slow game of tennis, yeah, yeah. The ball's on that side of the court for a while, then it comes back over here. Yep, I don't remember from our last conversation, and I'm going to apologize for that, but do you have any anxiety or any stuff like that going on?

Dakota 25:52
I did anxiety, depression. I've recently been diagnosed with ADHD, so I'm starting to deal with that too. Sounds fun, yeah, but the medication for that has helped with my anxiety a lot. And I think just like the constant mind running

Scott Benner 26:11
ADHD medication helped you with your anxiety, yeah. What's the medication?

Dakota 26:16
I'm on the lowest dose of Adderall, okay, just

Scott Benner 26:19
a little. What is that? That's actually, you live in the Midwest, you must know, what is it? Yeah, what?

Dakota 26:27
It's a D, it's a D amphetamine, salt combo.

Scott Benner 26:29
Okay, all right. Have you had any, um, it's the word I'm looking for, like, adverse events from it. Or do you, do you like the impact

Dakota 26:36
of it? No, I like the impact of it. Yeah. Is that a daily pill? It is, yep, and it's an extended release. So I just take it once in the morning just

Scott Benner 26:44
to avoid other medication with it. Or can you take it with other stuff, like vitamins and things? You know, you're 27 you don't take vitamins, but I would take vitamins. Dakota, thank you. See now look at that. See now you get the now the parental like, Happiness comes back. Awesome. Thank you. Just the vitamin. I just want you all taking a vitamin. By the way, if you buy a vitamin, it says that the serving size is two a day. Don't just take one and tell me you're taking vitamins. That doesn't count. Awesome. Oh, that's excellent. So are you able to take them together?

Dakota 27:13
Yeah, I haven't had any issues, and they didn't tell me to avoid anything while taking it.

Scott Benner 27:18
Well, I think we all know that they Dakota don't always tell you the things you need to know, so we'll find out to be sure. Excellent. Okay, so you announce the meal, and you never think about it again, or you do you think like, also, what CGM are you wearing with

Dakota 27:35
it? I'm on the g7 now. Okay,

Scott Benner 27:38
so you announce a meal, but it's pancakes, and now it's Beep, beep, beep, beep, beep, beep, that like, are you not? Is there no like, anxiety of like, oh my god, there's something happening that needs attention, but I don't have any power. It

Dakota 27:53
was very difficult at first. So at first I did. I would announce, like, a smaller meal afterwards, and then later, like, the next time I'd announced that meal, it would think I would need less

Scott Benner 28:05
insulin, okay? And so that's what you're not

Dakota 28:10
supposed to trick it, and then it would just get worse.

Scott Benner 28:13
Okay, yeah, so you felt the pressure. You're like, I just had five carbs and or a small you can't do that. You'd be like, I just had a small lunch, and then it just messes things up worse. Yep, okay, so then that doesn't fix the problem. Then, right? Like, how do you manage that feeling of, I know I need more insulin

Dakota 28:33
first. It was really hard. Now I just wait for the pump to do its thing. I've been on it long enough I've gotten used to giving that,

Scott Benner 28:42
did you you've done with that? The girl in that Frozen movie said, you just let it go. Let it go. Yeah? I like how you started laughing. You're like, Oh, I know what he's talking about. So you just, you were able to let it go, yeah? What's your a 1c, today, I was supposed

Dakota 28:56
to have an appointment at the beginning of last month that I missed. I slept through it. Dakota.

Scott Benner 29:01
What's going on there? Uncle's got the visit what's going on? Okay, it's

Dakota 29:07
rescheduled for like, in a week or two, okay, but my GMI is right at seven, and before that, my a, 1c was 6.8 before I started islet, it was 7.6

Scott Benner 29:22
Well, all right. I mean, that's a win. Yeah, right. No way around it. I mean, I'm listening to other people online talk about it, and then some of the things they're concerned about is, like, could you make the target lower? Like, have you had that thought

Dakota 29:35
I have? And then at the same time, the algorithm can be pretty aggressive at times. Okay, there's times like you don't really see insulin on board, but if you go into the settings, you can see how much it's dosed you. And there's been times when I'll look and there'll be, like, 18 units, and I'm like, oh, geez, that's a lot of insulin. So. For me, I would never do something much myself, but it's usually when I have candy after a meal, okay? And I spike, and it catches it real quick.

Scott Benner 30:09
So do you if you had a meal, like a regular meal, you're like, This is a normal dinner, and then an hour later, you're like, candy canes, Christmas. I love Santa. And you started, do you like say there's no snack button? Is there?

Dakota 30:24
No there's not. You're supposed to select the last meal you had and choose less than

Scott Benner 30:30
so if you said dinner normal, but then you're like, I'm gonna have two candy canes. That's dinner less than, right?

Dakota 30:37
And then the way the algorithm works is it gives you 75% of what it wants to

Scott Benner 30:44
upfront. So do you end up not telling it about the candy cane every once in a while? Yeah. Does that seem I should say often? Yeah. I was gonna say that seems sketchy to me. Yeah. Is that even a word the young people use anymore? No, right? That's over now. It's sketchy over, I think so? Yeah. Do you find yourself thinking I have a lot of questions about this? Or do you find yourself thinking I'm in a rhythm This is working. I'm done thinking about how eyelet works, a

Dakota 31:13
little bit of being done and thinking about how eyelet works. But there's still, like questions I do have, yeah, yeah.

Scott Benner 31:21
I mean, I've seen people online, like, because I'm gathering up questions for them, and they do feel a little like, hey, it would be great if it did this. It would be great if it the target was lower. It would be great. Like, so I think people are having the same experience you're having, right? Like, if they were struggling, if they were burned out. If they were like, You know what, this is just gonna keep getting worse on my mental health. Not here for this. There's a ton of win in islet, right? And, yeah, also, you were a person who was, like, actively trying, even though you weren't having a ton of success. And, you know, your settings were wonky. You were actively trying. I think they're also thinking about this not, you know, I don't think it's just for people who are just like, I don't know, I shoot my basal so I don't die and I don't do anything else, right? But like, that's going to be, I imagine, a huge benefit for people that are in that boat, because look at you, 781 say, boom, you know, right? Also, you got to imagine, I don't know if this is true, but ADA says seven, right? That's what they're saying right now. So it sounds like they probably set the pump up to shoot for seven, and it's giving you a seven, yep, which I'm happy with. Yeah. So the expectation here for me is like, if they could shoot for seven and hit it, maybe they could shoot for six and a half and hit or whatever else, like, maybe they'll and that's one of the questions I'm gonna have for them. Like, is there gonna be a time in i Let's life where you can turn it on and say, I weigh this much and I want an A, 1c, that's 6.3 like, Do you know what I mean? Like, why? Why not? Right? Yeah. Okay. Who wouldn't you suggest uses it? Like, if I said to you, should Arden do this? What would you say?

Dakota 33:03
I don't think Arden should do it. You guys seem like you adjust your settings quite frequently, yeah, or just, you know, like little tweaks at a time, right, right? You can't do that on the islet at

Scott Benner 33:14
all, yeah. So you have to really give away all your control. And you hear people talk about how you had to give away a little bit of control with Omnipod five, because it really doesn't tell you what it's doing, right, right? So was this more so or different? Definitely more more. Okay, yeah, so control freaks are not going to love this. I don't think so. Okay, gotcha all you Type A's out there. Hmm, how you gonna do it? Oh, we're not mocking people for being type A and being all like involved. It seems like a leap to me, like, for a person like I interviewed a guy yesterday. He is, first of all, by his own admission, way too involved with his kids diabetes. But like, if I just said to that guy, Hey, we're gonna slap this thing on now, I don't know if he'd have a moment of Zen where he's just like, Thank God, I needed this, or if it would make him pull his hair out. I can't figure that part out. Be interesting to see with the the meal announcing. Is there a chance, or has it happened? Are you concerned? Could you get burned out on this? Like, could this new normal at some point become burdensome to you? Do?

Dakota 34:25
I think the most burdensome part is changing out the infusion set. There's a lot of parts and steps. So as it mean, it's, it seems quick, but it's just you got to think about it, and the rest of it, you don't really have to think about an

Scott Benner 34:41
omnipot is so automatic, like, it's so easy, yeah,

Dakota 34:43
yeah, yeah, omnipot is a lot more user friendly in that aspect. Somebody,

Scott Benner 34:47
the person who designed that, like, I've interviewed him already, I was gonna be but, like, she's genius. You know what I mean? Like, peel, stick, button, done. Get out of here. You know? I mean, like, awesome. And two, it's funny, too, 200 units, everybody, and not everybody, but a lot of people, like, they'll bitch up a store about omnipotent you know, only holds 200 units, but you went from 200 to 160 Are you changing your site with eyelet more frequently than you were changing Omnipod? No,

Dakota 35:16
I wasn't filling up my Omnipod. Oh, all the way completely. And I had my prescription to change out every two days if you needed to, so I was changing it every two days. And now with Isla, I make it to the third day, but I don't make it through the third

Scott Benner 35:32
day. Okay. Is that a problem for you? No, no, because you're accustomed to changing every two days to begin with. Yeah. Why'd you, like, every two days with Omnipod? Was it for, like, having a nice site that was working? Yeah, yeah, I see that Arden does really well riding pods till the end, like, as far as, like, absorption goes. But if she didn't, she would, I mean, I would definitely ask her to change more frequently. There's no way she would do that. Yeah, I could see that being a problem. Sorry, I'm drifting off in my own head. It's now a podcast between me and my brain. Sorry, what don't I know about it that I should be asking you, what don't I know? Because I'm not using it like what? What are the things that you love about it? What are the things that you hate about it that we haven't spoken about,

Dakota 36:22
right? So there's no activity feature or exercise it's recommended that you either disconnect or take in carbs before

Scott Benner 36:33
you exercise. So

Dakota 36:36
I don't like exercise regularly, but when I am being more active, yeah, I get low pretty quick.

Scott Benner 36:44
Okay? Because it doesn't know and there's no way to tell it, right? I'm gonna run around now. Yeah, that is one of the concerns I've heard, especially people with like, little running around kids get what I mean, those little, like, whirlwind kids, yeah, that they're like, Well, how do I like this thing's out there doing what it's doing. I mean, I've heard people say the same thing about Omnipod five. Actually, any of the, I guess, the algorithms that are kind of built on this idea of, you know, like, this is how we do it. Like, you're not going to get a ton of, like, user control, and then if your situation changes greatly, sedentary to active, active to sedentary, then there's problems and so, so you would like them to put some sort of an Activity button on there. Yeah, just pause.

Dakota 37:32
There's a pause button, but there's no Activity button.

Scott Benner 37:35
Does it feel unfinished? A little bit like it's still a work in progress. Yeah, they feel like you bought a beta sometimes.

Dakota 37:45
Yeah, from beta bionics. Oh, I didn't mean

Scott Benner 37:48
that, but awesome. Look at you making dad jokes. Good job. I'd like to see you put that effort into changing your pod before you go to bed or you're pumping. I mean, like, Listen, I'm not digging at them. Like, I think they're great. It's possible they might come on as an advertiser at some point, like, but I'm just saying, like, does it feel like, like, it's an early product where they're just like, hey, you know, it would also be cool. Like, and do you know, as a user, are they thinking about that stuff? Is there any communication from them or stuff online that makes you feel like they're moving in a direction

Dakota 38:21
I'm not sure. As a user, I don't, I haven't heard anything from them about it. Yeah, it's not but since I've got so the one I have has a black and white, a black and white screen, and they've since come out with a smaller one that has a colored screen,

Scott Benner 38:36
colored screen, saved tandem. Oh, did it? Oh, it absolutely did tandems, a rags, the richest kind of insulin pump story. They were on their way. Like, I've heard like, this is years and years and years ago, I want to be clear, but I heard that they were starting to make internal decisions about maybe not selling the pump in America anymore, and like it was getting dicey, like it didn't look like it was going to take a foothold. They came out with that color screen, and people were like, Whoa, color. And that was it. Now they're here. It's like, it's interesting. What changes the experience for people? Yeah, yeah. So do you prefer the color screen? So

Dakota 39:14
I don't, I don't have it. The replacement one that they sent me was another

Scott Benner 39:18
black and white one. You should have written a strongly worded email. He should

Dakota 39:21
have. I asked for the new style of clip, though, so it wouldn't, so I wouldn't have to hold it in my mouth,

Scott Benner 39:27
Dear Sir or Madam. I am tired of putting this pump in my mouth. I need a new clip, and don't make me bite this thing again. I want a color screen right size wise, not, not bothers them to carry you're happy with that.

Dakota 39:42
I'm happy with that. I don't like rolling over on it in the middle of the night. Sometimes that wakes me up a

Scott Benner 39:48
little clunky, like square, too square, too pointy. What is it? It just feels,

Dakota 39:53
yeah, it kind of feels like a brick on your hip. I mean, it's not that big at all, like this. It's a little bit, it's about the size of a deck with. Charge. Somebody

Scott Benner 40:00
from beta bionics is listening to this right now, and they're like, awesome. We'll put that in the brochure. Thanks. Did you feel Omnipod when you rolled over on it? No, it's that curvature. Maybe what was helping? Yeah, interesting. All very interesting. Well, listen, let's be fair, like we're talking about things very specifically, Omnipod five and eyelet right now, none of these pumps are perfect. They all have things, you know. And at the same time, I think it's incumbent upon you and everybody else to find the one that works best for them. Exactly. Yeah. I think that's important. Like, like, if people are listening to this and thinking like concrete things, like, he said this, so no, or he said that, so yes, I don't think it works that way. Like you're a specific person, you have diabetes, you have other issues going on, like you're trying to balance a lot of different things you're saying for this moment. You think this fits best with who you are, not that this is perfect, correct, all right? And exactly. And if Omnipod five would have worked the way you expected it to, if you would have got your settings together sooner. Do you think you'd still be on it? I think so. Yeah, okay. It's interesting, because, you know, we have those Omnipod five pro tip episodes, and I still know, like, not everyone's gonna intersect with it. Like, maybe you listen to them and you're like, I don't understand. Or maybe you just were like, I didn't even know about those. Or you were like, I know about them, but I don't feel like listening whatever. Like, I don't know how you did or didn't intersect with that information. You you specifically Dakota, but like, it's important that it's there, because these algorithms, if your settings aren't right, it's just as random as, you know, a needle in a meter, and you know, it being 20 years ago, yeah, you know it's everything is settings. Listen, I'm excited about eyelet. I'm going to tell you right now. I don't think Arden would ever leave a tubeless pump, but if she did, it would have to be for a reason, like the one you're explaining, like the promise of being less involved, yep, right. But that promise would have to come with a six, A, 1c, in my opinion. Like, that's that for me and and maybe the difference between a SEVEN and a SIX is manually making adjustments. And maybe the way islet works, I'm not I'm gonna ask, like, maybe the way I look works, like, if they let you get in there and start monkeying with things that algorithm can't respond. Like, maybe it can't rebound fast enough from you making a mistake. Like, I don't know, I don't know what the the engineering ideas were behind not giving you any autonomy beyond, this is the size and this is the type of meal, right, you know? But it's, I think it's an interesting idea, and I can't tell you that, you know, if they don't keep going the 10 years from now, I won't say like, wow, like, out of sight, out of mind, six, A, 1c, let's go, you know, yeah. And

Dakota 42:49
I'm especially excited if they get, like, the glucagon part working

Scott Benner 42:53
the dual chamber, the dual chamber, yeah, well, I mean, then listen, anybody who figures that out, if that really works for you, trying to imagine a scenario where the pump is like, Hey, you're 90. I think you're going to be 50. Here's, you know, drip, drip of glucagon, and it stops the 90, like, and holds it at 70 or whatever. Like, you know what I mean, like, something like that. You never get under 70. You never get dizzy. You never have to intervene with food. Man, I'd like to see that. Yeah, you know, that'd be pretty awesome. I know there's a, you know, a handful of days of my life. I think it would have been awesome if something like that existed. So I'm just here, Listen, man, I want everybody to keep pushing. That's what I want. Like, people are probably like, oh, Scott, Omnipod. You're said to think it's not about that, like it's, I love Omnipod. I think it's awesome. I think if you got an Omnipod you'd be thrilled with it. I think if you got an Omnipod five, and you've got yourself set up, well I think you'd be thrilled with it. You know, I also think it's possible that Dakota is thrilled with eyelet, and I think that's awesome too. And I know people who use that new Medtronic device, right? The 780 G, yep. They love it. Love it. You know what else they love? Hand them. They love control like you. Some people love the movie like, you know what I mean? Like, and that's only good for you. It's only good for you. It's only good for the people listening. It's good for me. It's good for my daughter. If we have a number of people in different companies, and they are all motivated by success and money to do better for you. That's what we want. You don't want just one company making a thing, right? Just doesn't work out. Go, get out there and kill each other. Go, try to make a good thing. You know what I mean? Like, try to make it better. Don't. Don't sit back all the time and go, Oh, this is good enough. You should be doing R D on this stuff. Listen. Let's be honest. Dakota, when there's loop and trio and Android APs and that kind of stuff that you know between you and me and anybody listening works really well, really. Really well, and they all know it works well, like, and I know they're fighting with the FDA, and, you know, the person making, you know, an adjustment, the loop is not but, I mean, those are goals. I think those should be everybody's goals. I'm not on the board of directors at these companies, and I don't make any decisions, but I don't see how you're not shooting for that. All of you, right? Yeah, Jesus, this is I yelled at you. I yelled at them. Who else am I gonna yell? What else is going on? Dakota, how's your life? Pretty good, yeah, yeah, good place right now. I don't really have any complaints. That's a good place to be. No complaints. You still doing the same kind of work,

Dakota 45:37
yeah, still doing the same kind of work. I think I should be getting a promotion here in a little bit. Good for you. Yeah,

Scott Benner 45:43
very nice. What about people in your life? You got any relationships brewing? How do you kids date nowadays? Hinge, what is it? How does it

Dakota 45:50
work? It's a lot of apps. Definitely.

Scott Benner 45:55
Do you respond when someone swipes? You go, okay, yeah. Or I, because I see, I see Arden and her friends, and they sit around, they go, Oh, I wish something like this would happen. Blah, blah. And then somebody swipes up and they look like that person. They're like, nah. I'm like, Wait, how do you expect to meet people ever?

Dakota 46:10
Yeah, I don't like the apps. I feel like everybody's just judging on there.

Scott Benner 46:16
Yeah, right. It's not like for dating. It's for like, fun. Yeah, you blaming girls for this, or guys too? Uh, both of us. Okay, all right. So where do you meet people?

Dakota 46:26
I don't go out much, but the people I do meet usually are customers at my store.

Scott Benner 46:33
That's how you generate

Dakota 46:35
friends of friends.

Scott Benner 46:36
You guys confuse the hell out of me. DECO, I'm gonna, I'm gonna share something with you from this is one of the places where, like, I'll get an email later, I'll be like, Oh, why does he have to be creepy? I'm just telling you how the world worked. Okay, I was born in the 70s. I was a teenager in the 80s. And from the time Dakota, and I don't want to make you uncomfortable, but from the time of my sexual awakening till a half an hour ago, 78% of my day is spent trying to make a lady like me, like, I don't get how you guys aren't like, I don't know, like, how are you guys not all driven by sex? Like, I don't understand what's happening. Do I sound like a, like, a, like, like a caveman to you when I say that? No, no, I don't think so. My whole life, Dakota, as a teenager and young men in his 20s, was trying to figure out how to make a girl think I was a reasonable person to be naked with. Like, I don't know. You guys are just like, I don't go out much.

Dakota 47:36
There's too much going on right now. Oh

Scott Benner 47:39
yeah, I don't know, man, like, go find a go find a pretty girl. Change your attitude. You know what I mean, she'll at least make you want to buy your she'll at least tell you you have to buy her a house, and we'll give you something to do. No? Yeah, yeah. Trust me, my wife has got a to do list for me that she started writing the day that she decided to date me. And I believe I saw her put three things on it. Actually, I don't have to guess. She told me this morning, my car needs an oil change, and I think there's something wrong with my driver's side rear tire, which meant to me, you got to get my tire replaced and get my car an oil change. Yep. I said to her, and I want to say, this is a very capable lady. Okay, I said to her, how about later, when I check on that tire, I bring you out to the car, and I'll show you how to do it like, you know, in case I die or something one day. You know what she said in response, she left not even that total silence. She acted like she didn't hear me. Oh, what? No, I'm okay. Thanks. Here's what you should do, buddy, go fix my tire and don't die so you can fix the next one. That's what I heard. Anyway. That stuff gives you, um, motivation. Is that what you're calling it? Dakota, I grew up in a very transactional world, but I know that you guys all want to say, like, if I do enough nice things, somebody shows me a boop. That's how my life has been run for like, 35 years, and you guys are like, I meet I met somebody on apps, but the apps really don't work, and I don't go out like, I don't get you guys, the ladies would love you. Dakota, you're full of personality. Why are you not answering me? What are you doing? I don't

Dakota 49:17
know. I was taking a drink of my coffee.

Scott Benner 49:21
COMM, I want you out. In the world. I want you changing your pump before you go to bed, if it's gonna run out. I do not want you sleep. Listen to me. This is for everybody. I do not want you sleeping in a situation where you could be running out of insulin. Please don't do that. Okay, and don't change your pump eight seconds before you go to bed, because if there's an occlusion or a problem or something like that, you're going to be asleep and not have any insulin. Yeah, Jesus Christ. And now, you know what just happened there, Dakota. Now all the people who like me, but wish I wouldn't say Jesus Christ are passed so, and that's your fault. I

Dakota 49:54
just want to you write down the time and have your editor take it up. No, because I'm not going

Scott Benner 49:59
to. End to their will, God damn it. And I added god damn it, because that's the other thing they don't like. And I know because they sent me a lot of notes about

Dakota 50:10
you're gonna get a one star review, dude, my

Scott Benner 50:12
emails just sound like this. Don't be creepy, which means we don't talk about sex anymore. But screw you guys. You should and my end, please stop saying Jesus Christ and God damn, those are pretty much my emails. Anyway, I apologize to everybody who I've offended. All right, what have we not talked about that we should have? Dakota? Where should this conversation end? A few more things about the Iowa. Go ahead, roll it out to me, from what I understand, the way the meals adapt, they'll only adapt if they're spaced four hours apart. What do you mean? Explain that to me. So

Dakota 50:50
say you dose for breakfast, and then three hours later you dose for lunch, and you choose those two separate options, breakfast and lunch, the pump isn't gonna know which one to adjust for the next time you choose the option, the

Scott Benner 51:08
second choice or the third time. Like you're saying, If I said, Hey, I had a normal meal, a normal breakfast, excuse me. And then three hours later, you're like, I'm having a normal lunch. It's not gonna know what, what? Won't understand.

Dakota 51:21
It won't know which, if it's breakfast or if it's lunch, that the insulin needs adapted for. Ah,

Scott Benner 51:27
because so it can't hold those two meals independently in its thinking, right? Ah, it's just, it's just attacking carbs and highs at that point. Yeah, is that problematic for you? Do you find yourself not eating inside of that four hour window on purpose?

Dakota 51:45
I find myself eating more in the four hour window. You're like,

Scott Benner 51:49
I'm like, No, you.

Dakota 51:53
And then, and then nothing in my settings change.

Scott Benner 51:55
What do you mean? So, like, it'll

Dakota 51:59
decide for a normal lunch. Say it wants to give me 14 units, and I think that's too much. My normal lunch should be a little bit less than that. Okay, I have to eat that lunch, choose the normal or the usual, and then I have to wait four hours before I can eat anything again to get that insulin dose to decrease. Okay, I feel

Scott Benner 52:24
like I'm talking about a fresn now, so like, a four and an eight to 12. And I'm like, Oh, yeah.

Dakota 52:28
So I think that's something that you should ask. Okay,

Scott Benner 52:32
well, hold on a second. Let me get my marker on my whiteboard and ask you to, like, put that into words for me. Like, simplify that question, how do the meal doses adapt? How do meal dosing doses adapt when they're less than four hours apart? Yeah, okay, I'm gonna go blank when they're explaining that to me, because that's how I feel when, when the guy was like, so I took a four, and then another four, and then I'm like, can you just please easily explain to me how to dose of friends? It's an eight, the 12. And I'm like, oh, in the end, the answer ends up being like, it's kind of an art and you figure it out. And I'm like, that I accept. I'm like, okay, I get it. Okay, so I'm gonna ask, How do meal doses adapt when they're less than four hours apart? Okay, that's good. Thank you. I'll add it to my list and what else. And then

Dakota 53:32
I have heard that. So you can change the cartridge and the tubing at the same time, or you can just click an option that says fill tubing, and that's when you just change out your your infusion site, and not the tubing or the cartridge. So so you get an occlusion or it rips off, and you just need to change the part that's in your skin. You put that on, and then you click a button on the eyelet that says, Fill tubing. From what I understand is it forgets the last six hours of data that it's learned.

Scott Benner 54:02
Wait, when you change, look at everybody here Dakota, he's got a he's got a direct line to bite of bionics right now, through me, somehow, when you change the tubing or the site, the site, the site, and what then Phil, Phil canula and fill canula. Does the system what forget the

Dakota 54:28
last six hours of data that it's learned? All right, I got it

Scott Benner 54:33
cool. We're gonna make a nice episode with them. We'll learn a bunch of stuff. How does it adapt when the meals are less than four hours. They're gonna get this email. They're gonna be like, Oh, he was talking to people. He knows stuff. That's good, though. That's what they want. They want good questions so we can get good answers out there for people also, I'm gonna hit them up about dual chamber. Yeah, they've been on talking about that already. They were very excited when they made the agreement with the gluteagon company. Was the G, VO was, I think so, yeah, was it right now, the people at, uh, at zeros who are like, Oh, good job, buddy. Way to, way to remember things we buy ads, you know? No, I have that there. So, so I'm actually going to find out, because this is a good episode if you've heard this one and you want to hear something that is potentially exciting about islet, I'm going to type in here islet, and then glucagon at Juicebox podcast.com and let you know that I have a couple of great eyelet episodes, actually, 1217, islet from beta bionics with Dr Stephen Russell. He was a great conversation. I've spoken with Ed Damiano. It's Damiano right in episode 934 when they first released. But how come I'm not seeing my episode with them and the look at me, I'm like pimping the Juicebox Podcast. Calm. Search button, and we're not getting what we want. Let's try this again.

Dakota 56:04
You didn't even talk about how the site was recently redesigned. Oh, I

Scott Benner 56:08
did redesign this. I do like it. Is it better? Yeah, I like it. Awesome. Good. Thank you. Five days of my life sitting here, not moving, terrible, staring at the screen. Oh, my God, my elbow hurt. I just, like, people are like, I dug a ditch today, but I make a podcast. And, like, I still had to make the podcast. And then in the like time, I was like, Oh, I'm gonna take off a little bit of time for the holidays. Instead, I sat here for a week like a lunatic redoing the website. Because I was like, I've been wanting to do this for like, two years, and I just, there's never time I'm just gonna do it. You know, I got it 1209,

Dakota 56:46
glucagon in an insulin pump. You

Scott Benner 56:48
found it. Paul and Sean are CEOs of their respective companies, beta bionics and zeros. Today we talk about their new relationship and their desire to create a BI hormonal insulin pump like that's an interesting conversation, too. Anything else?

Dakota 57:01
I am working with a dietitian through a company called nourish, okay? And I meet with her every two weeks and we review my report that my eyelet pump puts out. Kind

Scott Benner 57:14
of report does it put out? Like, how is that valuable with the nutritionist, is my question.

Dakota 57:18
So she'll look at like, how often I'm dosing like when I'm announcing meals, and I'll make a meal log in a separate app, and we'll go back and see like if I went high afterwards, what did I eat? And we will decide if I chose like the wrong

Scott Benner 57:40
meal announcement, like the size,

Dakota 57:44
yeah, that's so then the next time I have that meal, I can

Scott Benner 57:47
choose the correct option. Does your insurance cover that? Yep, my insurance covers it, and I have a $0 copay. That's wicked. Excellent. You finding it valuable? Definitely awesome. Yeah. Is that online as well? Yep, through zoom nice, do it on your phone or at a computer.

Dakota 58:05
I do it on my computer. Important stuff you got to do on my computer. My

Scott Benner 58:08
kids are like, Do you want a laptop? Like, I'm not a child. Like they don't they don't understand. And I generally, I don't understand either. I like sitting at a desk with a computer in front of me. I think it's just because it's how I interacted with the computer. Computers when I was younger. I hate laptops. I hate that how small the screen is. I'm the same way. Oh, good. That makes me feel good. Yeah. Like, I like my phone because it's interesting. It's like, the pumps the phone presents a ton of convenience, but like, there are certain things you go to do on a phone, and I'm like, I would rather this not happen than me have this experience on this tiny screen. So, all right, Dakota, this was awesome. Thank you. I appreciate you reaching

Unknown Speaker 58:50
back out about this. Yeah, no problem. Thanks for having me back on. No,

Scott Benner 58:53
is my pleasure. Listen, I'm not your dad, but you know what you're gonna do this weekend, right?

Dakota 58:59
Change my insulin cartridge before I go to bed.

Scott Benner 59:03
All right, how about if you change your insulin cartridge and then go out in the world and try to find a cute girl who seems like she might like you, and then be nice to her and really be nice to her. Don't pretend to be nice to her, really be nice to her. And see if you guys get along. And maybe you'll get along and talk and have things in common. And then one day a baby will come, oh, a baby, yeah, like a baby. Or, if you don't want a baby, a puppy, but there's a girl in your house while you have it. I think this would be good for all of you listening, and vice versa. Girls like, go. I know boys are icky. I'm one. I get it. Like, there's got to be one out there that you would like, you should go look for him and see if you can find him. Now also, let me speak to the gays. Same thing, girls that like girls, boys that like Boys, boys that used to be girls that like girls that like boys. I don't give a shit. Like go out there and find somebody. You don't want to be alone. It's not good. And then when you find them, and I can't. Stress this enough, Dakota, when they're in the room with you, don't look at your phone. Please. Just don't look at it. Just pretend it doesn't exist. And then look at them, and you'll be like, Oh, she's pretty. Maybe, if I'm nice, she'll touch my hand, like, this is the stuff you should be working on. Well,

Dakota 1:00:22
maybe someone listening can go find me on the Facebook group and, yeah,

Scott Benner 1:00:28
that's fine. That's what you want me to do. I gotta hook you up. I need you out in the world, my friend,

Dakota 1:00:34
you gotta go turning into a dating podcast. Yeah,

Scott Benner 1:00:37
oh my god. Can I do that? By the way, I've done two life coaching episodes so far, they've been awesome. I definitely need more people to do that. I coached a 12 year old kid about his Pre Bolus thing that was fun. A woman in her 50s about her desire to get divorced. I did see you post that I'm super excited because Dakota, I'm completely unqualified to have these conversations with people. But at the same time, who else you gonna talk to? You know what I mean?

Dakota 1:01:06
Yeah, yeah, no one better than Scott. Have

Scott Benner 1:01:09
either of your parents told you to go out there and try to make a person with boobies like you? Nope, no. Well, they should have. Your mom is like, how long she gonna stare at you? You know what I mean? Right? All right. Maybe you got to talk a little bit man, but like, yeah. Like, we got to get out there. Like, this should not make you uncomfortable. This should make you be like, Yeah, I do want to see a boob. That's how it should make you feel. And then, and I don't just mean see and for all you girls out there, like, I'm not being like, not just like, somebody like just has to show you one, but somebody like is like, super excited to show it to you. Like, like, you don't need to like this, Dakota, he could be. I love him. He's awesome. I'm gonna let him see my boobs. Yeah, now you're getting it. Get out there, Dakota. Listen to me. If you all don't start fcking you're gonna us all. Do you understand what I'm saying? I'm gonna get old. I need one of your kids to work in the nursing home I'm gonna live in. You gotta get moving to go. No, I'm not making this up. I'm serious. I am one day gonna need a 21 year old with not great job prospects to carry me to the bathroom, and one of you has got to get out there and make that baby we're gonna cease to exist. You understand what I'm saying? Yep, I need you out there. I don't understand. Sex is so wonderful. How is it you're not like, just like, all day long thinking about, like, how do I get to have sex? That is not in your head constantly. I'm working 14 hours a day. I don't care. I work in a sheet metal shop with a bunch of dirty guys. And in any spare moment I had, I thought to myself, I wonder how I could have sex I once had a brief relationship with the of age. I just want to be clear daughter of the guy that drove the lunch truck to the shop I worked at like I want you to imagine that a truck would roll up at the filthy pit that I worked at, okay, and it just had sandwiches in it and drinks, and we'd walk out and it's just owned by a guy, you know, or a girl, I forget who owned it. But one day that person started bringing their teen I was young still, I want to be very clear, but one day that person started bringing their teenage daughter with them, like I think the girl was being punished. Do you know what I mean? And she was my age, and I successfully at a sheet metal shop, hit on this girl, started a conversation with her, got her phone number, went out with her, and eventually, through the goodness in her heart, she gave herself to me, and I'm telling you right now, I also gave myself to her. I just want to say it was a very loving exchange. And I want to tell you right now that I don't think someone your age in 2024 could pull that shit off if their life depended on it. We're all too awkward in personal interactions that are online. I feel bad for you. The

Dakota 1:03:56
internet's ruined everything

Scott Benner 1:03:58
it has. It made boobies too available. They have to be a thing. I would just want to say that for people who are understanding this, like, we're probably bleeping out boobies or we're not, I haven't decided yet

Dakota 1:04:08
that could be the name of the episode.

Scott Benner 1:04:12
I don't understand. It motivates most of my existence, like, just a girl being kind to me, like, I don't mean like, I don't actually mean them exposing their price being intimate with a girl like, or having them want to do that with me, that like, motivates my life. Like, I think if that didn't exist, I wouldn't, like, I don't even know if I'd have a job. But what motivates you guys? Like, what do you get up in the morning and go to work for pay my bills? Yeah, but I had bills too. I didn't give a about the bills. What I cared about was girls. Like it's not girls. I'm so confused by this I

Dakota 1:04:50
don't know what does motivate me, not a whole lot. How to take a

Scott Benner 1:04:54
phrase that seems more reasonable to me than how you guys treat like dating and interaction. Options. So weird. I don't know how to fix this. I think we've gone in a direction at this point. We went from free love in the 60s to this. 60s, 70s, 80s, 90s, 2000 to 1061. Years. 6070 years. We went from like, get high have sex with anybody you bumped into to I don't know. I'm awkward, and I need to pay my bills. They

Dakota 1:05:27
looked at me weird. Yeah, they looked

Scott Benner 1:05:29
at me weird. I don't know what to say. I was very upsetting. All right, listen, good luck. God bless and we're all, we all need help. I don't know who's carrying you to the bathroom. You guys are really screwed. Like, I might still get you to carry me to the bathroom when I'm like, 80, but, like, I don't know who you're getting. You have a plan, Dakota, you've had sex, right? Yeah. And is it awesome?

Dakota 1:05:57
Yeah.

Scott Benner 1:05:58
Okay, go. Wash your hair, clip your fingernails, put a little file on them so they're not sharp, you know what I mean? And then, and then, like smile, stand up straight, make eye contact and engage with people. You'll it'll happen again, and then again and again. And then eventually, get married, and it'll stop.

Dakota 1:06:20
That's what I hear. What happens, 100%

Scott Benner 1:06:23
true, Dakota, I just want to say like they're not lying to you about that at all. I

Dakota 1:06:28
read your book over the summer. Did you really? Yeah? I mean, three of my friends, we had a little book club. Three

Scott Benner 1:06:34
of your friends read my book. Yeah, that's why you're not getting laid. I mean, was it any good? It was, yeah, I liked it. Oh, good. It was funny, I'm glad. But that was about making a family, right? I thought it was gonna be a little bit more about diabetes. No, it's got nothing to do with diabetes. Yeah, I realized. But when you read it, were you like, oh, I should make a family. I thought about it first was second, and then somebody looked at you weird, and you walked away. Yeah, a lunch truck. I'm not even attractive. Do you understand me? You have to try, because there are other people out there who are also uncomfortable, and they they don't know how to try. And if someone tries, they'll go, who me? Oh, yeah. Like, you know what he means, like, because if a girl came up to you and you're like, hey, Dakota, he'd be like, huh, Dakota? Me, okay, do you see how you would get immediately? Like, they're waiting for that too. But if you don't talk to each other, neither of you are gonna know you won't know that. Yeah, everyone's awkward. That's why you can turn the lights off in the lights off in the beginning. When you're figuring it out, you don't do it with the curtains open till you're like, you know, really good at it. We're super comfortable, I guess is the way to put all right. I don't know how this got down this this road, but for everybody listening, in your 20s, please, would you start having sex with each other? I really am worried about who's gonna fix the roads, but I'm older, I'm worried about who's going to be at the grocery store. I'm worried about who's going to make the food at the restaurants. I'm worried about who's going to work at IBM. I need you out there. Again. It's not going to happen like this. What about those Tesla bots? Jesus Christ, Dakota, that's what you're hoping for. So first of all, I want to be clear, I would buy a robot and have it in my house if it was safe and affordable. I do think that sounds awesome at the same time, like in my house with my children and my wife, not by myself, in my domicile. You understand? Yeah, life is for the living, my friend, it's a saying. Have you ever heard it? No, you know what it means. Um, don't it means get out there and live your life. Oh, okay, did you not know that? Yeah, no, that makes sense now. Yeah, you sure you understood the book?

Dakota 1:08:56
I read it in sections.

Scott Benner 1:08:57
I broke it down into bits. See, you have good sarcasm.

Dakota 1:09:01
I'm full of sarcasm. Yeah, I get in I get in trouble for it, yeah, but there's

Scott Benner 1:09:05
some girl will like that. And then eventually, when she decides that you're okay to marry, she'll make you stop. But like, you know, she'll like it in the beginning. It'll be fun watching her change you.

Dakota 1:09:18
Well, I'll get right on that, and then I can bring her on to talk about me on the next time.

Scott Benner 1:09:25
All right, the phrase life is for the living suggests that life is meant to be actively experienced, enjoyed and embraced. It emphasizes the idea of seizing opportunities, being present and making the most out of the time we have, rather than merely existing or being being consumed by fear, regrets or excessive caution, it's a call to action.

Arden has been getting her diabetes supplies from us med for three years. You can as well us med.com/juice, box or call eight, eight. 87211514, my thanks to us, med for sponsoring this episode and for being long time sponsors of the Juicebox Podcast. There are links in the show notes and links at Juicebox Podcast com to us, med and all of the sponsors. The conversation you just heard was sponsored by Dexcom and the Dexcom g7 learn more and get started today at dexcom.com/juicebox,

if you or a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective. The bowl beginning series from the Juicebox Podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginning series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698, in your podcast player, or you can go to Juicebox podcast.com and click on bold beginnings in the menu. I can't thank you enough for listening. Please make sure you're subscribed or following in your audio app. I'll be back tomorrow with another episode of The Juicebox Podcast. Hey, what's up, everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob at wrong way, recording, doing his magic to these files. So if you want him to do his magic to you, wrong way. Recording.com, you got a podcast. You want somebody to edit it you want rob you?

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#1409 Weight Loss Diary: Sixteen

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Sixteenth installment of my GLP journey

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Welcome back, friends, to another episode of The Juicebox Podcast.

Guys, I know I'm way behind on this. I apologize to those of you who have been following the series, I'm back on track now. Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Don't forget if you're a US resident who has type one or is the caregiver of someone with type one visit T 1d exchange.org/juicebox right now and complete that survey. It will take you 10 minutes to complete the survey, and that effort alone will help to move type one diabetes research forward. It will cost you nothing to help. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code Juicebox at checkout. That's Juicebox at checkout to save 40% at cozy earth.com when you place your first order for ag one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink, ag one.com/juice box.

Well, it's World Diabetes Day, Thursday, November 14. I'm late. I was supposed to put this shot in yesterday. I think Scotty messed up. That's okay, though we still have some good news on the health front regarding this weight loss extravaganza. Let me pull up my app. We'll start this episode off with a little go through, if you know what I mean. Let's start right out of the gate by telling you I weigh 180.6 pounds today. Yesterday, I was 180.4 the day before 181 80 is my lowest. Going back like a week or so, I don't really know where to go to. I'm gonna go to like the sixth, one 80.21 80.4 on the seventh, 181 one on the eighth, one 80.4 on the 11th, 180 as I said, on the 12th, that was awesome. Today. I was 180 point 6.6 pounds higher than my lowest weight since I started this whole thing to remind you, or to catch people up who are maybe finding this for the first time, weighed myself the first time and shot back then it was we go V on the 28th of March, 2023 on That day, I weighed 233.4 pounds. Today, 180.6 that is, I can tell you, 52.8 pounds. I'm down. My BMI is down 7.9 and my body fat down 11.8% I feel awesome. Let's see my let's see where the trends are. Shall we wait? As we know, down. BMI has been pretty steady the last week. 26.7 I'm under that magical 27 number all of a sudden, body fat steady. 23.2 body water, staying steady. 55 and a half. Skeletal muscle staying steady. BMR, staying steady. Fat free. Body weight, staying steady. Like an example, fat fee, fat free. Excuse me, body weight, 130 8.6 on the day I started this 150 1.8 subcutaneous fat today is 20.3 on day one back there in March, 2023, it was 30. My visceral fat is holding at 10. My muscle mass is holding at 130, 1.8 my bone mass is steady at seven. Protein is standing very steady, and my metabolic age is 54 but I'm almost 54 so six, seven more months, nothing will be right. Hopefully it'll go down from there. Anyway, I'm gonna take my shot. I'll be back next week, excited to talk to all of you. I hope your World Diabetes Day was great. All right, I found my spot here. As you guys know, I enjoy this enjoys, really, the wrong word. I like to put the shot like, at the very bottom of my belly, like there's a kind of, like, a softer spot there. I don't know. Why don't really care? Why? Just doesn't hurt there at all. I take the cap off of my zepbound 12.5 milligrams like that. I unlock the cap. Want to hear it ASMR, Oh, you heard it, and we're gonna put this thing in. Get done. Get back to work. What works, Scott, I have to put an episode together for Saturday. We're doing a beautiful best of about Michelle Bauer, I hope you guys caught it back then. All right, ready? One, two, A, 1234, what's that? Billy. Joel, yeah. Thanks, Bill. Joel, ready, didn't feel a thing. All right, kids, Hey, what's up? I have not been doing well with recording for you. I apologize for that. I've actually injected twice without recording. So today is the fifth of December, but I can walk you through what's been going on. It's not frustrating, but I feel like I'm learning some things. Most important thing I learned yesterday, I'll get to that at the end. Anyway, this morning, I was 182 pounds, which is, I mean, awesome. And going back, you know, I'll go back a couple of weeks the you know, I'll even go back, like almost a month to November 12, when I was 180 so 180 has been my kind of low water mark right now, going forward, I did hit a 179 for one day. That was the 23rd of November and but right from there I went, you know what? You know it was Thanksgiving, and I held on there, 179 two on the 24th one 80.2 on the 25th 27th 183 28th 182 two. And today is December 5. See if I can get back to it. Why is it messing with me here? December 5, 182 Yeah. So I was one 80.6 on the 30th. Here's what I did. So, you know, I'm supposed to be injecting on right now, Wednesday. I've moved it around a little bit on Sunday last week, so if today's the fifth Sunday was the first. I actually shot two and a half milligrams that day. So we have some extra pens. So I did the two and a half, and then I don't know what happened to me. I just like, I whiffed on injecting yesterday, so I hadn't had my 12 and a half, you know, today now for eight days, the two and a half was like a nice little bump, and I think it helped me that Monday, Tuesday, but it didn't really do much. It wasn't going to do much to to offset the fact that I forgot to inject on Wednesday, yesterday. Now here's the super it sucked, but I learned something. I woke up this morning at 4am having a dream about having heartburn, and I woke up and I had heartburn. I have not had heartburn in forever on the GLP, and then one day without it, I had heartburn while I was sleeping. I'm telling you, it's helping me with more than I know. Anyway, back on the weekly am I going to try to do another two and a half on Sunday? I'm thinking about it for now. Today's Thursday, the fifth. I've got this 12.5 of zepbound. I've taken off the cap, I've unlocked the pen. I'm gonna slip it in here, and then I'm gonna make podcasts. I like this spot on my belly at the kind of the bottom of the bell the belly, which basically, at this point, looks like someone took a fluffy pancake and taped it to the front of me. So that's awesome. Here we go. Little bit of pressure, not bad, little bit of a drip, not bad. I promise. I'll be back next week. I'll keep having these trying to add whatever I learn. I think the heartburn thing is really important, as you know, I'm sure I've mentioned on here. I was told a couple of years ago I have the beginnings of what could be Barrett's esophagus, which is not good and definitely heartburn related. Tried a bunch of different things for heartburn. You know, some of it works, some of it didn't. Overall it wasn't working. I can't remember the last time I've had heartburn since I've been on a GOP. And then, boom, I. Missed my GLP for one day, basically. And I mean, what did I eat last night? That's the other thing. It wasn't anything crazy. What I have for dinner yesterday afternoon, I had an egg wrap. So egg and I had an egg and a wrap, maybe two eggs with some pork, like bacon. I think it was bacon, a strip of bacon. Later in the day, I had some turkey left over from Thanksgiving, but nothing really else with it. Maybe there was stuffing, a tiny bit, not much, if any. But I had a slice of pumpkin pie with my son, like in the evening, and that was it a slice of pumpkin pie. Not a big slice of pumpkin pie. Had a slice of pumpkin pie for no no GOP going at 4am bad heartburn. Had to get up, take couple of Tums, sit up till it went away so I could lay back down. I guarantee I'm gonna come back here next week and tell you I haven't had heartburn again. I'll see you soon. Hey, friends, what's going on? I have good news. Let's take a look. So I did not, I'm sorry. Today is December 11. I did not do an extra.

I did not do an extra so I just got a text message. I should probably not look at my phone while I'm making the podcast. I did not do an extra two and a half this week, but I was losing weight, so I was just like, let me see how this goes. I might do it this week. The extra. Let me get out my app and my glasses. I am 170 9.2 this morning. Also, I've gone to the bathroom since then, so maybe 179 but 170 9.2 that's fine. It is not, wait a minute, it is. That is absolutely Oh, I didn't even realize this. Look at me. I'm getting ahead of myself. That's as low as I've been so far. Get out of here. Oh, awesome. 182 two, back on the fourth, fifth, sixth, seventh, eighth, ninth, 10th, 11th. Look at me knowing how long seven days ago was. Next day. Excuse me, a 12 five, yeah, next day 182 12, six, 182 12, eight, I have to tell you, this rocked me. I did not expect this. I went from 182 to 179 four, and it wasn't it wasn't like dehydration. Oh, and I just lied to you the next day, 12, nine, the ninth. Just a couple days ago, I was 170 8.4 a few days ago, I had, what did I eat? Oh, I think I had a soft pretzel. Yeah, that put me back to 170 9.2 the next day, and then today, so the 10th and 11th both 170 9.2 feeling great. What I want to say about how I was feeling? Oh, I I heard this, this person on their social media saying, like, If I hear one more person say they have a GLP deficiency, they don't have a GLP deficiency. She's ranting and raving and everything. And I'll tell you, I don't know if I do or I don't, but man, it feels like I do. So if there's another way to say that, or a better way to put it, I'm going to try to figure out what it is. But all I know is that when this stuff is flowing, I eat. My body manages it correctly, like, I mean, listen, a soft pretzel. I don't know if you're all from, you all been out to the east coast before, but if you ate a soft pretzel, you wouldn't gain three pounds, but I would. And now with this, you know, 4.4 pounds, like, that's just, that's a fluctuation, that's not even a weight gain. But if I wasn't on this and I had a soft pretzel, I mean, trust me, it wasn't like yesterday. Was like an orgy of food that I capped off with a soft pretzel. I had my regular day. I had what I eat yesterday, two eggs. Had them in a low carb or wrap with some steak. That was breakfast. Actually, at lunch, I did something yesterday, mixing in protein powder. Now I'm not ready to tell you about it yet, because I yet, because I just started it, but I had eight ounces of milk with a big scoop of chocolate protein powder in it. I'm trying to I realized that I was eating protein, but did the math on it. I was like, and Jenny helped me. And I was like, this is not quite enough protein, she told me. So I was like, Okay, so I'm gonna do the drink. I'm gonna go every other day for the first couple days, make sure my stomach's good with it. But I went with like a I went with a pretty gentle one. I felt like I was okay today, but I'm skipping it today, doing it tomorrow. I'll give you more about that later. So I had the protein powder, I had the eggs, the wrap, the steak. At some point during the day, somebody had soft pretzels, and was like, I'll have one of those. I had a soft pretzel. I put. Yellow mustard on it. Then last night for dinner, we did, I did pasta. It was leftover linguini with shrimp, so four or five medium sized shrimp with, I mean, I a handful of pasta, maybe, anyway, 170 9.2 today. I was 178 something a couple days ago. I think this is it. I think I think I smell 175 caps off, talking about zepbound, 12.5 milligrams, unlocking the lock. Check on Chuck. I was gonna try to say chuck a con. I got like, stuck in my voice, stuck in my voice, stuck in my mouth, whatever. Oh, God, do you hear that? Sorry, that's my, um, I'm so embarrassed. That's the misting system for my chameleon. And now Arden's calling me. Hold on, a second. Arden, hold on. I'm doing my injection. I'm recording at the same time. Give me one second. Do you want to watch? You're watching. Look away. Look away. Look away. All done. Okay? Well, it's December 19, and been a bit of a roller coaster this week with Scottie his journey. It was good. It was less good in the end, you know, all the benefits are still there, but I'm one 80.8 this morning, but at some point this week, my goodness, what was I 179 two last time on the temp. I'm a day late, by the way. I forgot to do this yesterday. Well, here we go. I was 179 two on the 10th and the 11th. On the 12th, I was 170 7.4 It was awesome. But then on the 13th, I was 178 but still, like 178 awesome on the 15th, 179 six, then one 80.8 now one 80.8 I didn't eat enough this week. The big drop coincided with the first time I took a drank a my got a protein drink. I was like, is this it? I mean, I know it couldn't have been, but still, I did the protein drink the first day I skipped the next day. I just wanted to see how my body reacted to it was fine. And then somehow, this week, well, not just somehow, honestly, I've been revamping the website, Juicebox, podcast.com, I'm basically doing the work of like a five man team this week, plus making the podcast, plus Christmas is coming, plus Arden's home, plus, plus, plus, you know, I just it's gonna sound crazy, but I didn't eat enough this week. I didn't eat enough. I didn't stay with the the protein drink, even though it was awesome and easy to drink, and I'm gonna do it, continue it, but I just, I got lost in my work, no lie, and I'm one 80.8 today. Now, having said that, if you just go back, you know, a couple of weeks, I was 183 as a high on November 27 as an example. I was 183 I was 183 on the 18th of November. This is awesome, like 180 I'm a little higher than almost 181 and I'll love it, but still, I'm two pounds down from my highest. I'm not gaining weight, you know, just drifting around, and I'm not doing the right things. So let's do the right things, right let's, uh, do the 12.5 min jar of zbound. Excuse me, 12.5 milligrams of Zep bound today. Let's eat more food. Scott just needs to eat more. That's all I got chicken downstairs. I made sure I had beef. I make sure I had shrimp. I have. So I've got shellfish, I've got chicken, beef, I've got the protein drink I'm just gonna eat. And the podcast website's almost done, so it's a big load off, or got one more big project left for the end of the year. And then, you know, have some Christmas and then get back into making the pod for 2025 I don't talk about this much on here, but I think all of the sponsors are back for next year, and I think we have some new ones too. So huge shout out to all those people. Links in the show notes for the sponsors, keeping all this going. All right. Where am I gonna put this thing? How about it? Right here. Here are you gonna move the microphone so you can hear it better? Hold on. All right, ready?

All right. Let's go. Mary happy. You.

At least when it comes to this series. And I apologize, it's January 17, I've been taking my shot every week, just like I'm supposed to. But because of, you know, I don't know the holiday and running around and stuff like that. I'd be like, Oh, I have to take my shot. I forgot it. And then I'd be like, I don't have time to go record while I do this. And I'll just remember and it doesn't work. And then things go back and forth, and you forget where the hell you were. So what I'm going to do is I'm going to button up this episode and just commit to starting over. I with you guys. Like, don't get me wrong. I'm doing I'm doing good here, but I'm going to commit to starting over with you all. So I'm going to go back to because A lot's happened. What was our last time I was here? What was December 19? Let me find that it's been a bit of a thing. December 19, I was one 80.8 I'm not going to give you every day, but I went down, down, up 181 180 161 80. This is around the 29th of December, stuck in the 180 to 182 range to the second. Then on the third, I was 179 four. I'm gonna tell you right now. I thought I was I thought I had it on the fourth of January. 176 four, next day, 179 78 177 I ran 177 to 179 for about a week and a half. And now it's today, and I'm 179 four. I was 177 for the other day, on the 10th, now on the 17th, a week later, two pounds the other way. I gotta tell you like I know the problem, so I just have to start over. It's gonna sound crazy. I'm not eating enough food. That's it. I started doing protein replacement to make sure I had, you know, like, extra protein judge, and that was working great, and I just had trouble doing it every day, meaning, like, I just, I don't know, I didn't have a system around it. I guess I have to commit to having a system around the protein shake, which is not hard to drink. It's nice. It's chocolate. It's like eight ounce. It's not a big deal, you know. So here I am, January 17, Friday. You can even see I was supposed to inject Wednesday this week, and here I am. It's freaking Friday, and I'm finally getting to it. It's where the two pounds came, by the way, I was 177 this week, and the medications, like it's gone out of my system now. And I've, you know, I grabbed a couple of pounds already last night, I ate, I didn't even eat, well, like, I don't even know what if I made my I think I had, like, leftover pasta or something like that. So anyway, let me just I'm not going to say New year, new me. That sounds ridiculous, but it's January 17, 2025 I've got 12.5 of zbound right here. I'm going to stick it in. I'm going to commit to my my protein shake every damn day, and I'll be back on Friday, and I'm going to report something good if it kills me also, we're getting an aerobic, kind of like workout machine set up here at the house to help with that and kind of muscle building things we got, like a rowing machine. I'm getting that set up, and I want, I want to have better information about that next week too. But right now I just, I know for sure, protein, protein, protein and muscle training. I know these are the two things that I have to commit to, especially if I'm going to use this medication long term. Cap off, unlock, I'll tell you what the trash cans near. I don't think I'm going to miss I'm I found a nice jelly spot to put it. You ready? Hold on. I'll move the mic so you can hear it

better. Oh, that's some pressure at the end there. Damn, that's a goddamn. Oh, all right, all right, guys, I'm putting this I'm putting this I'm putting this one out because I don't even want the I don't even want another file to have any of this on it, of my inability to be consistent. So I'm going to be consistent. I'll see you next Friday. Enjoy this one. I'll see you soon. You

Are you starting to see patterns, but you can't quite make sense of them. You're like, Oh, if I Bolus here, this happens, but I don't know what to do. Should I put in a little less, a little more? If you're starting to have those thoughts, if you're starting to think this isn't going the way the doctor said it would, I think I see something. Here, but I can't be sure, once you're having those thoughts, you're ready for the diabetes Pro Tip series from the Juicebox Podcast. It begins at Episode 1000 you can also find it at Juicebox podcast.com up in the menu, and you can find a list in the private Facebook group. Just check right under the featured tab at the top, it'll show you lists of a ton of stuff, including the Pro Tip series, which runs from episode 1000 to 1025 if you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. You.

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Ashley's son was diagnosed a year ago. He uses an iLet pump. 

• Diagnosed unexpectedly at a well visit, now using the iLet pump without doctor guidance.

• Managing puberty, sports, and challenges with consistent bolusing.

• Support from unexpected places has made a big impact.

+ Click for EPISODE TRANSCRIPT

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Ashley's son was diagnosed about a year ago. He's 12 years old. We're going to talk a little bit about their diagnosis, and a lot of talk actually about their new eyelet pump, which was given to them with no help from the doctor. Surprise

me, music, Hello friends, and welcome back to the Juicebox Podcast. Nothing you hear on the Juicebox Podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juice box at checkout. That's Juicebox at checkout to save 40% at cozy earth.com and if you're a US resident who has type one, or is the caregiver of someone with type one, visit T, 1d exchange.org/juice box right now and complete that survey. It will take you 10 minutes to complete the survey, and that effort alone will help to move type one diabetes research forward. It will cost you nothing to help the diabetes variables. Series from the Juicebox Podcast goes over all the little things that affect your diabetes that you might not think about, travel and exercise to hydration and even trampolines. Juicebox podcast.com, go up in the menu and click on diabetes variables if you're looking for community around type one diabetes. Check out the Juicebox Podcast. Private Facebook group. Juicebox Podcast, type one diabetes. Today's episode of The Juicebox Podcast is sponsored by the contour next gen blood glucose meter. This is the meter that my daughter has on her person right now. It is incredibly accurate, and waiting for you at contour next.com/juice box. I'm having an on body vibe alert. This episode of the juice box podcast is sponsored by ever since 365 the only one year where CGM, that's one insertion and one CGM a year, one CGM one year, not every 10 or 14 days Ever since cgm.com/juicebox.

Ashley 2:18
Okay, hello world. I'm Ashley, and I'm here talking about my son who got diagnosed a year ago. Okay, unexpectedly, very unexpectedly. So I'm here to talk about that with you. Scott master Jedi,

Scott Benner 2:33
unlike Oh, I didn't know you're gonna say something nice about me. I wouldn't have talked over you. I'm so nice, so so nice. Yeah, I mean, I do you think most people are like, get diagnosed with things? They're like, I knew this was coming. I've got lambago. Like, or, you know what I mean, what is lambago?

Speaker 1 2:47
Well, I didn't know what lambago I I knew as much as what you just said, as I knew what type one diabetes was when he got diagnosed. Let's just go with

Scott Benner 2:57
that. Yeah, you just didn't have any knowledge of it. It wasn't in your life. It was not

Speaker 1 3:01
in my life. It was not in my family history. It type two was in my husband's family history. His grandfather had it so he had the sugars, as some would say, but he was in his 80s, and didn't really take that great of care, but at the same time, he did the best he could. But yeah, I didn't, I didn't really even know the difference between type one and type two. We went in for a well visit for Trevor. It's my son's name, and we had no idea, virtually no symptoms, besides being a angsty tween. Gotcha

Scott Benner 3:38
Wait, listen, let's go backwards for a second. First of all, lumbago is a general term used to describe pain in the lower back it can be caused by various factors such as muscle strain, etc. Anyway, it's lower back pain. There you go. There you go. Okay, that makes sense. It's got to be something I've heard like on an old TV show, because that seems like a word from like, like, hold on, when in time? Would this word be used frequently? Okay, it's got to be, like a, like an old timey word on a second. Also you said you're nervous. So I'm going to try to, like, figure it out the late 19th and early 20th century. Well, guess what? I don't know what that means, because I grew up in American my schooling was terrible. Well, wait a minute, when did the 20th century start? I just realized that nobody knows 1901

Speaker 1 4:28
really, I don't know. I think it was on Jeopardy some point,

Scott Benner 4:31
1901 god damn Ashley, get out of here.

Unknown Speaker 4:35
You know, well

Scott Benner 4:36
done. All right. Now people are like, Oh, wait, he doesn't know general knowledge. I'm making my meal bonuses off of something. He said, Okay, so you're not expecting it. You go in for a well visit. You said he was being a little cranky. How old was he then I'm sorry he

Speaker 1 4:54
was oh, let's see. Well, he his birthday wasn't. Year

Scott Benner 5:00
ago, how old was he now he's 12. So was he like, 11?

Speaker 1 5:04
Yeah, he was 11. We had the well, visit a little later than his birthday. So yes, he was 11. I

Scott Benner 5:10
want people listening to know before we go any farther, Ashley, that you and I have had a brisk half an hour to get to know each other while you're figuring out how headphones work. And so this isn't just me, like, jumping in and being snarky with a person who I met six seconds ago, like you and I, yeah, you and I are basically, like dating now. You know, we've been through like, a number, honestly, that's true. She did. She heated up, took off a layer of clothing, and I thought this is going great, actually. But what I said was, turn your camera off. I don't need to see this, although now I feel weird, Ashley, anyone would be lucky to see you take your shirt off. Okay,

Speaker 1 5:48
so I do, I do have multiple layers on. I just want to be clear. Yes, in

Scott Benner 5:52
fairness, she wasn't down to an undergarment. No, but, but nevertheless, why are you nervous? Do you think

Speaker 1 5:57
I just want to make sure that I'm emulating the right message, and I'm not going to say something that's going to offend or upset my spouse or my son. Should he care to listen to this? Because, you know, the internet's forever,

Scott Benner 6:14
right? I mean, I hope so for me. I mean, I put Can you imagine, like, if who painted the Mona Lisa? What was that guy? He's an Italian guy, right? Uh, fairly certain. Yeah. Okay. Anyway, if somebody paints the Mona Lisa and they put it online, it would have disappeared eventually, because people would be like, Oh, that's not a hot new thing anymore. I don't look at that anymore, thank God. Like, so I need the Internet to stay forever, or this will all just disappear one

Speaker 1 6:40
day. Do you really not know who painted the Mona Lisa. I just need to. I

Scott Benner 6:44
can't think of it off the top. It's playing art at Da Vinci. Da Vinci. It's very early in the morning. For me, I want to I am two for two. First of all, your general knowledge is rock solid. Well, I did go

Speaker 1 6:55
to school for art. Oh, wait, you did. Yeah, I have a sculpture degree.

Scott Benner 7:00
Oh, tell me about how handy that's come in paying the electric bill over the years. Well,

Speaker 1 7:04
you know, my husband's in healthcare, and I am the complete opposite, so, but I do dabble. I I am a floral designer. So, yeah, I I see now I am very handy with my hands.

Scott Benner 7:22
Is that why wait? I'm sorry. We haven't believe that. Okay, yeah, you're like, Oh, my son might listen to this. So are you saying being a sculpture, a sculpting major, yeah, got you a doctor? Is that what you're saying?

Speaker 1 7:38
No, he's not a doctor. He's an IT guy, but he just landed in healthcare. I'm just saying like he is one side of the brain and I'm the opposite. And, you know, opposites attract that way.

Scott Benner 7:49
Very true. Also you and I have something in common, although I have never arranged flowers professionally. I boy, I know for sure. I haven't said this on the podcast. I do very much enjoy doing it. Oh, very nice. Yeah, I do it like low rent. I go to the grocery store where they sell, like, bunches of flowers for like, no money, and I stand there very thoughtfully and grab things, and I'm like this, and this, this will go here. And then I go home and trim them up and arrange them in a vase. I give them to my wife, who seems completely unimpressed, because she's, you know, Irish and English, and she has no real heart inside of her, and so like, I'm like, hey, look, I did this for you. And she goes, they're nice. And then that's the end of it. But I sometimes think if I should have gone with a more Mediterranean background, because I feel like those girls would be, like, more passionate about stuff like that. I think you did a good job. I don't know. She's fine. I'm not saying anything like that. You're pretty Caucasian. Would you be excited if I brought you flowers? Or no

Speaker 1 8:54
actually knowing my profession, you should never buy me flowers. That's the last thing I want to see after I design flowers all day. Oh,

Scott Benner 9:04
I thought it would be because you'd look at me and be like, you did it wrong, or you shouldn't have put that red with that yellow, or something

Speaker 1 9:09
like that. Well, I mean, I have an appreciation for flowers for sure. No, I can appreciate flowers for what they are, but it's the end of the day when you work with flowers and then you come home, I

Scott Benner 9:21
understand, yeah. People used to ask, like, I worked in a bakery for a little while, and they were like, don't eat all the food. I'm like, Oh, that. That idea goes away pretty quickly. So can't do the same thing over and over again all day long. Yeah, yeah.

Speaker 1 9:33
So okay, oh, I just did a Scott. We did the Yeah, yeah, yeah. Do I

Scott Benner 9:38
do that? Oh, I do that, yeah, yeah. You do? Yeah. I don't know what I do. This episode of The Juicebox Podcast is sponsored by the ever since 365 get 365 days of comfortable wear without having to change a sensor. When you think of a continuous glucose monitor, you think of a CGM that lasts 10 or 14 days or. But the ever since 365 it lives up to its name, lasting 365 days. That's one year without having to change your CGM. With the ever since 365 you can count on comfort and consistency. 365 days a year, because the ever since silicon based adhesive is designed for your skin to be gentle and to allow you to take the transmitter on and off, to enjoy your shower, a trip to the pool or an activity where you don't want your CGM on your body, if you're looking for comfort, accuracy, and a one year wear you are looking for ever since 365 go to Eversense, cgm.com/juicebox, to learn more. The contour next gen blood glucose meter is the meter that we use here. Arden has one with her at all times. I have one downstairs in the kitchen, just in case I want to check my blood sugar. And Arden has them at school. They're everywhere that she is. Contour, next.com/juice, box. Test strips and the meters themselves may be less expensive for you in cash out of your pocket than you're paying currently through your insurance. For another meter, you can find out about that and much more at my link. Contour, next.com/juice, box. Contour, makes a number of fantastic and accurate meters, and their second chance test strips are absolutely my favorite part. What does that mean, if you go to get some blood and maybe you touch it, and, I don't know, stumble with your hand and, like, slip off and go back, it doesn't impact the quality or accuracy of the test. So you can hit the blood, not get enough, come back, get the rest without impacting the accuracy of the test. That's right, you can touch the blood, come back and get the rest, and you're going to get an absolutely accurate test. I think that's important, because we all stumble and fumble at times. That's not a good reason to have to waste a test strip. And with a contour next gen, you won't have to contour next.com forward slash Juicebox, you're going to get a great reading without having to be perfect like that's very important to go over right now. I don't know what I'm saying or why I'm saying it, or anything like that. This is just I am so unaware of,

Speaker 1 12:22
well, I'm sorry to have knowledge that that's one of the things you say, then just keep doing you. No,

Scott Benner 12:27
no, no, I'm okay with all that. Don't worry. I like, I like, knowing it's just, by the way, I'll forget, like, a week from now, somebody will be like, do you say? Yeah, I don't think, no, I don't think. So. Okay, so how many kids you got?

Speaker 1 12:39
I have two, I have a almost nine year old girl, and then I have a 12 year old boy, and he is the only type one that we know of in our family. How long have you been married? Oh, the married since. Oh, eight. So what is that going on? 17 years?

Scott Benner 12:58
Oh, congratulations. That's nice. You've gotten through all the difficult parts. There's one more coming up, and then it's just smooth sailing to death. All right, I don't know, yeah, right around 20 years. Oh, okay, you'll reassess in your brain. You'll be like, Am I really gonna do this till I die? And then you'll make that decision, and then it'll just be then it just goes, fantastic. This is the cruising part, right here, yeah, without all that pressure to have sex and do other stuff, it really gets easy.

Speaker 1 13:23
I love that. Looking forward to it. Oh

Scott Benner 13:27
yeah, it's gonna be great. It's also less expensive, because the kids get older and you stop paying for stuff that they do.

Speaker 1 13:33
Well, until the 26 year mark, I guess from Trevor. We'll we'll see how that less expensive part goes. Oh, I see. Do you worry about that? Yeah, I guess I do worry about, not on our end, but on when the transition happens. I I've already looked up jobs, you know, transitioning, you know, what kind of jobs he should maybe look into that has better health care, that kind of thing,

Scott Benner 14:01
yeah, well, don't work at a hospital that apparently doesn't do they, for some reason, they don't have great health care. Yeah, yes, and no. People in pharma have really good health care. You know what I find, generally speaking, if you work for a company that makes a lot of money, then they spend more money on health care. It's pretty much it, yeah? I mean, yeah, if you're gonna work for like, the lady up the street, who's, you know, you're, you're screwed. Definitely

Speaker 1 14:26
not a florist. That's not, don't be self employed.

Scott Benner 14:29
Yeah, no, that's horrible. I don't I mean, I get all my health care from my wife, and if I had to, I'm sure whatever. I mean, God, what could I do? You know what I mean, I'd be buying out of, I don't even know how that works, right? Like, how does a, how does a self employed person get health care?

Speaker 1 14:47
How does anything really work? I mean, somebody just says, This is how it works. So,

Scott Benner 14:53
you know, it's interesting. You say that because you're going to be the only person who knows this. If I see this out in public and. Next couple of months, I am going to know you gave it away. Ashley, okay, Arden and I are making a series for the podcast called I don't understand. And we just have this never ending list of things we do not understand, and we sit down and figure them out together. It's pretty fun. Yeah, it's gonna be good. Sounds great?

Unknown Speaker 15:17
What a great way to bond, too. Well, yeah, also,

Scott Benner 15:20
I figure most people don't understand those things, so might be interesting to listen to it get figured out. We'll find out. Nevertheless, yeah, you said earlier that I am like, fantastic. I forget the word you used. You were wonderful, fantastic. Something like that, a Jedi, I think I said, like, a Jedi Master or something masterful. I hear, heard you say. So what does that mean? How did you come to that? Why did you find the podcast? How's it helped you?

Speaker 1 15:49
Oh, um, so right after Trevor's mystery diagnosis, we were in the hospital. And, well, he was, like, barely in the hospital, because he wasn't in DK or anything. And I was completely overwhelmed, because not only did I not understand the differences between the types of diabetes, but I just was trying to just open any door and window and anything of trying to get education. And my husband is very much. He buys books on Amazon, and he just loves to just page turn everything. So he's doing that. And I went to Facebook groups and podcasts, and I found yours. I happen to come across yours, and got into just the you and Jenny, and listening to all of those pro tips. And it was really, really helpful. We did a lot of troubleshooting, a lot of I would listen to a couple get super overwhelmed, and then I would just stop and say, You know what? We'll figure this out. I'll let my husband take the wheel, and he seems pretty good. Get a good handle on what the books are saying. So let's just go that route. And then it was, Oh, let the doctors, you know, split that. And then that would kind of crumble. And I'm like, You know what, I'm going back to Scott and Jenny. Then I'll listen to those some more. And then I feel like I'd, you know, get some traction. And then I'd say, You know what, let's try this. And then that would work. And then I'd feel like, get some more confidence, and then a little bit more, a little bit more. And I'd listen to yours a little bit more and figure out glycemic load index and all the variables and fat, protein. And it was just and then you just kept saying, like, eventually it's just going to click. You just have to try and it'll click. You. So try it. It'll click. And I knew, like, I just needed to get over that hump. But you know, like you always say, we got to be bold with insulin. And of course, I thought I killed my kid a couple times, but we didn't. He's still here an event. You know, we're only a year in, so we still have a lot of learning to do. But I definitely feel like it's it's getting better, good. It's not getting easier. It's getting better. If

Scott Benner 18:00
you don't find yourself running through the house in the first 18 months going then you're not trying hard enough. You know, like things go wrong. And you know, that's why I would repeat over and over again to people like, you know, it's experiences, and then learning from the experiences, like so many people do the hair on fire thing, and then they lose the moment Right? Like, you like, yeah, it went wrong, but just step back and examine what's happening right now, because this is your answer to the next time and keeping it from going wrong again. Like, you have to have the experience. It almost has to go wrong, so you can understand what right would have looked like. And, you know, and that's a hard thing to like. How do you explain that to someone who, a couple of months prior, never thought anything like this was going to happen to them? You know what I mean? It's a big leap. And so I would imagine that what happened to you is pretty common. Like you listen, you go, this is a lot. And then something I said rings true, and you go, That guy might have known something, or that lady said something, let me go, like, find out again, because your husband was never going to get it out of those books. I don't think anybody I listen. No disrespect to people who read. There's so much right when you when you say something out loud, you have takeaways when you leave the conversation. And yes, that can happen with reading, but there's also so much information, it's so static, and it even if it was rock solid, you know, when it was written two years ago, now suddenly there's like, maybe you're using an algorithm pump and reading a book that was written before those existed, and then it's not apples to apples anymore. And you know, it's just, I don't know. I think this is the best way talking, you know, for me, I'm sure there are plenty of people are like, look, I read fine. I know there are people who read the transcripts of the podcast and don't listen to it. And actually, I

Speaker 1 19:53
do both. I do both. So I I think that's really helpful. Sometimes I do both.

Scott Benner 19:58
I'm glad to hear that, because. Is making those transcripts is a huge and utter pain in my ass, eats up a ton of my time. And I because I have to type each word out as I listen back, that's not really what happens. I just drop it in, AI, it's AI, but it's still, it's like, very time consuming, and like, in my heart, I'm like, nobody uses these. Like, that's how I I felt in the beginning. I was like, I'm going to do this, because three people asked me, but nobody's going to use these. And then I hear back from people all the time how valuable they are. So maybe I'm wrong about reading. I don't I don't know. How do you use them? Can you explain to me how you incorporate a transcript? Well, I used

Speaker 1 20:37
it yesterday, actually, when I was listening to a podcast, and I didn't have enough time to listen to the whole thing, so I read some of it, and I was like, okay, skip, skip, and read a little bit more. And then I got to what I thought was a juicy part, and then I skipped to that part. And then I was like, I don't have time to listen to listen to all this, so I'm just going to read it. And I was able to read faster than what you guys were talking and so I was able to read through it, and I went and then I was like, oh, man, I skipped this. I need to go back. So then I was able to go back and read. It's kind of like my, I don't know, I probably have dyslexia of some sort. So then I was able to get, I'm

Scott Benner 21:20
worried that you don't even know, like reading a book, and

Speaker 1 21:22
you're like, I need to get to the end and see what what happens, what happens? And then I go back and I read the whole thing.

Scott Benner 21:28
Do you mean dyslexia? Isn't dyslexia when you read? See things backwards? Yeah, I

Speaker 1 21:34
probably messed that up. Yeah, there's one point for you. Two for me, one for you. Scott, no, not that we're keeping track,

Scott Benner 21:41
you're gonna really enjoy the episode where Arden and I try to figure out what a blind person sees, color, blind or blind, no. Blind like a person who's completely blind, right at what percentage? What are they experiencing? If they're completely and totally blind, what is it they're experiencing? And is there context where we like we went through it. We tried to figure it out. We got, like, first hand accounts from people who were blind, like it was, that was us trying to figure out. Anyway, dyslexia is a specific learning disability that affects an individual's ability to read, spell, write and sometimes speak. Do you have dyslexia?

Speaker 1 22:15
No, I don't. I just, I guess I'm I can't focus.

Scott Benner 22:22
Do you have ADHD?

Speaker 1 22:23
Probably, yeah, I was the kid that got in second or third grade that got put in the gifted program, and then couldn't focus, and got all their work done super early, and then wanted just to, like, play around with all the kids got in trouble, and then they're like, put her in gifted program, and then they just always on stage, made my own, produced and wrote things and got on stage and got bored of that, then went back and became like a a B student.

Scott Benner 22:51
I couldn't get a B on purpose, that's for sure. I'd have to have a really bad teacher to get a B like that person would have to really not care that I was cheating, and then then I could pull a B, but of my own accord, a C, if I was lucky. Yeah,

Speaker 1 23:06
you're pretty smart that. I think you got it. You think you did pretty well for

Scott Benner 23:10
yourself there? I don't know. Usually, in a schooling situation, I look like a lead balloon underwater, just like that thing's never getting out of this, you know? I mean, like he's he's not getting out of here. He live here until he's 90. They're not even gonna let him out. I was terrible at school, like, really, genuinely bad at it. Hospital stay, not too long even.

Speaker 1 23:31
No, we were, well, like I said, we were, like, blindsided, like completely blindsided, by this diagnosis. He went in for the well visit. And honestly, I thought he had ADHD. I thought my son was, he was starting to get in trouble at school in fifth grade, and he was starting to get in trouble for, like, little things, you know, like someone, he took somebody's pencil through it, or did something. And I was like, You need to write an apology for that. And you know, they're like, Well, maybe he'll turn around after winter break or something, and then something else happened after winter break. And so I was like, Well, I don't know. So we did the whole had the teachers fill out the Vanderbilts and kind of like the first step on seeing if there's something there, okay, and we kind of piggybacked that doctor's appointment for the Vanderbilt with his pediatrician to go over those with his will visit. And when they went in with that for the well visit, they just happened to say, Oh, we also between ages nine and 11, somewhere between there, we'll do a finger stick. I didn't think anything of it, because he's my first born, and I never, never, we've never done that before. We never done it before. So I was like, Okay, go ahead. They finger stuck him, and it came back a little high. They, well, they weren't sure at first night. And I did understand what that was for. And I did mention, like, Well, he did just eat cereal about an hour and a half. Go about an hour ago. So just to let you know, like you did just have something sugary, like, okay, no worries. That came back and it was pretty high. I It wasn't astronomically high, but it was high enough that they said, Hey, this is concerning, but it could be a lab error. What do you want to do? And that's what I would say, what you want to do? What they asked me, what I wanted to do.

Scott Benner 25:22
What do you want to do? Like, Well, I I like to talk to somebody who went to medical school. What do you want to do? Jesus Christ, what do you want to do? You're like, like, I thought I was coming here to get a lollipop. Like, I'm making medical decisions now. Anyway, I'm sorry. What did you want to do?

Speaker 1 25:37
Well, I said, let's get a they, well, they gave me options. This is what they did. They didn't say, like, completely blindly, what do you want to do? They're like, you can either, you know, come back in and get a finger stick again, or you can maybe get lab tests. And I was like, let's just go ahead and get lab tests. We have no baseline of anything. Like, I don't even know those white blood cell red blood we don't have anything. So we had this scheduled. It just so happened that that was the same week that he had state testing for a school. And the school system, as you know, are pretty rigid about these schedules for their state testing, and I didn't want him to have to, like, go in for a makeup test for these he wasn't thirsty, he wasn't Bedwetting, not that I knew any of these telltale signs, but there

Scott Benner 26:20
was nothing extra. What was the finger stick? Do you remember what it read?

Speaker 1 26:23
I think it was like in the 160s okay, maybe somewhere around one I think it was around 160 I remember they were like, not overly concerned, but they were like, wow. So little high. So anyway, they had scheduled a lab testing, and it was right up the street from where we lived, and that it was the same morning he had to be fasting, obviously, but obviously we we're supposed to have a great morning breakfast and then send your kid to school for state testing the next day. And I was like, Oh crap. I forgot about that. So I'm like, well, we're not going to do the lab testing today, because we have state testing, we'll just skip that. We'll do that another day. We'll do that on Friday instead. So the next afternoon, when he's supposed to have his lab results, the pediatrician called him, like, hey, we never got those results. What's going on? I explained the testing, and they're like, actually, you really needed to get those we really need those results. We really, really, really need those like, it's Pam. Was like, I just didn't understand why they were what was, what was so important, big deal, yeah. And then they were like, explaining the dka and all this and that, I'm like, really, is that that big of a deal? And he has, he's never went and then they were explaining what that meant, and then I pushed back, saying he doesn't even drink water, like he doesn't even go to the bathroom. He's never wet the bed. You

Scott Benner 27:50
guys are screwing this up. I brought him in for ADHD, okay, so you're getting this all wrong. Yeah.

Speaker 1 27:56
No, I understand. So, yeah. So Friday is when he had his blood test, and that came back on my chart pretty quickly, but they also ran as a 1c that didn't come back until Monday. So all the results over the weekend came back fasting glucose was, I think, 109, his white blood cells were really low, I believe, and is late. Let's I think we're really high. He caught it really early, right?

Scott Benner 28:29
Super early. Yeah. I mean, a fasting 109, is still high, right? You shouldn't, like, if you're you don't have diabetes, your fasting blood sugar should probably be like 80, in the 80s, right? So especially for a kid and but still, that seems really early, so you didn't see no offense, like you weren't like, there's something wrong with my kid. He just, he threw some of the kids pencil one time, which, by the way, I don't know if that's getting to do with diabetes or not. Like we used to take pencils from people and throw them all over the place. I realized it's a different world. Now. People are like, nice to each other, but I think that's just what they say. I'm sure the same stuff still happens. Yeah, yeah. And you're like, hey, let's do the Vanderbilt test and see if he has ADHD. My dad would have just hit me. The 70s were so much different. You're like, let's get some testing to make sure he's okay. And my dad would have been like, Hey, did you throw that kid's pencil? Don't do that again. I would have been like, Oh, you're making a lot of sense, and that would have been the end. You're not supposed to hit children. I just want to say that out loud, no, and I'm not advocating it. I'm just telling you a story about 1978 when somebody would have just beat your ass for that, and then you would have never done it again. But it's okay. I know you said your husband grabbed the books and you went to online and everything to try to get your information, which is terrific, but like, can you dig down deeper into the actual like, in your gut feeling about all this? Do you feel like somebody shook up your snow globe? Are you in denial? Like, where's the deeper

Speaker 1 29:53
emotion? Deeper emotion I was I was grieving. I was. Grieving, but I was also thankful at the same time, it was like a weird juxtaposition of I was mourning that for Trevor, that he was no longer gonna be living a life with food that was gonna be free of just no longer after I understood what type one was like that. Yeah, he could live a normal, healthy life, but he has this relationship with food that I have, that he doesn't have, that he can no longer eat things without thinking about what it's going to do to his body, like I obviously have to do that too, but not in the way that he does not a life or death. He has to wake up every day and choose to live like that's just mind boggling. Yeah, no, I understand. I didn't mean to make you cry like I mean. And another thing that I I, I feel like it's important to say like he was, we were also shell shocked to this, like he was not in DKA, obviously. But when we got home from the hospital, his a 1c was eight, was 7.8 and they called on Monday and told us I did have the ADHD medicine and I was gonna go. And by this point, like on Monday anyway, I was gonna go. And so everything was, like, seemingly normal after that first result, or after the blood test, and everything the a 1c came back on Monday. By that point, I was just going off of the original blood, blood results, not even knowing what the a 1c was. And I my husband and I had just said, you know, let's just go ahead and try this ADHD medicine. Because they said, Yeah, we he might actually have a little bit of that. So I was walking into the pharmacy to just go ahead and try that medicine to see what that said. And that's when they called and said, Hey, a 1c came back. You need to get over here. Get over here now. Yeah, and he's going to be admitted to the hospital. What did you tell him? What do we tell Trevor? Yeah, I mean, we were honest with him. We told him what it was. We told him that we there's many, many, like millions of people that have it, infants, older people, you can live a long, healthy life. He's a soccer player. He plays competitive soccer. We told him about Jordan Morris, we told him about, you know, Nacho we told him about a whole bunch of athletes in a whole bunch of other fields, right? So he wasn't discouraged about that. You feel like that helped him? He thought, No, he didn't. It didn't help him at all. He felt like he didn't have it. We felt like he didn't have it. I mean, so, like, that's another thing that was, that's a huge thing with this whole whole thing. And I think we're still, he's still kind of in that little bit of a rut, even a year into this denial. Yeah, I think, Well, I think he's in acceptance now, but I feel like he kind of slips back into denial. He's always been the kid that's he's telling the stoves hat, and he's just has to put his hand on it, just to double check. So he just doesn't and also he just doesn't care. I think it's, I don't know if it's the age, I don't know. Listen,

Scott Benner 33:16
first of all, I don't think anybody cares. You don't even mean like, they don't want to, like nobody wants to think about this stuff. And we listen, you say the right thing, and it is the right thing to say, and I believe it, which is, you can live a completely normal life for this. Obviously, I think that right, but it doesn't make it go away. Now you're just doing more things to live normally, which, by definition, is not normal, and that's when it becomes attitude. That's the decision right there. Like, am I going to just accept this as part of my life so that I don't fight against it constantly, and I'm not always feeling like I got the short end of this stick somehow? Or am I going to decide to be ultra literal and say, No, this isn't normal, and I am getting screwed compared to people who are not going through something like this. That's where it's mindset. And I don't know how you get somebody to the right mindset like I think that. I mean, you can do the right things and as the parent and say the right things, and hopefully they end up there. But I don't know if you can force it, you know what I mean? Like, you mean, like, you're like, look, Jordan Morris, he plays soccer and has type one diabetes, and the kids probably like, yeah, that's good for him. Like, I don't want that though, you know, like, so, like, and he's too, yeah, he's young, so he's also going to start hitting puberty. He already has. He's like, nine feet tall or something. You know what I mean? How tall are you? By the way, I'm sorry I fairly know your kids, six feet tall. How tall are you?

Speaker 1 34:48
Yeah, I'm five seven. Okay, seven tall for a girl, as they say, is it? That's what they always want to be, five nine. So I didn't hit my goal.

Scott Benner 34:58
Yeah, listen, go ahead. A five three girl, if you're tall, so And how about your husband? Was he like a giant? No,

Speaker 1 35:06
he had potential to be. He's six one. People always think he looks really tall, though, but he's six one, yeah.

Scott Benner 35:12
How about tall? People in his family like, where's Where does a six foot? Girl was

Speaker 1 35:17
six four. My cousins are 6566, okay, my father in law is six four. I think 636

Scott Benner 35:24
they have any autoimmune stuff, those guys like, maybe, okay, I

Speaker 1 35:31
have Raynauds or raynoids. Look at you. Maurice, overachiever. Yeah,

Scott Benner 35:36
your hands cold. Do they turn your fingers turn blue?

Speaker 1 35:39
Oh yeah, they're getting pretty purpley right now.

Scott Benner 35:44
How come are you sitting a certain way? Is it? Do you know what brings it on? Oh, gosh, it could. Tuesdays, days it ends in y, stuff like

Speaker 1 35:54
that, yeah. Days, it ends in y. That's it. Yeah. Okay, so

Scott Benner 35:58
you have uncles with eczema, and you have Ray nods.

Speaker 1 36:02
My No, the eczema comes on my husband's side, on the

Scott Benner 36:06
husband's side. Oh, there it is. They should give a test when you're dating. I'm telling you, this is we could avoid these auto immune things if we just did a quick questionnaire before it got too serious. Darn here's a crazy question, how long you've been married?

Speaker 1 36:23
I think I said 1716, or 17? Yeah, I don't know something like that. I'm bad at math. Don't worry about I'm an art major. I didn't I didn't have to take math in college. That's one of the perks. I

Scott Benner 36:33
don't think that's math. I just think that's counting. But nevertheless, like, go back to dating. Okay, 20 years ago, whenever you were dating,

Speaker 1 36:39
and was 18 when I met him. I know that you were 18

Scott Benner 36:43
when you met your How old are you now? Oh,

Speaker 1 36:46
where I just I this was part of the podcast interview. Oh, wait, you don't want to I just turned 40.

Scott Benner 36:53
Oh, my God, you're almost gonna die. That's horrible. You shouldn't told anybody about that. So you're 18. You meet this guy, told the world, it's okay. You know what I tell people all the time, and I genuinely mean this, I'm old because I'm alive, the alternative not as good. You

Speaker 1 37:09
understand like, you know what I mean? Yeah, thank you for that perspective.

Scott Benner 37:13
Also, I saw you for a couple minutes. You're looking you're doing fine. Don't worry about it. Okay? Thank you. Arden asked me the other day, it's now on our list of I don't understand. Why do older people look younger than they did in previous generations? And we were in a restaurant the other day where the waiter guessed my age as 40. And I was like, oh, no, I just had a birthday. And he goes, Oh, happy birthday. How old are you? And I said, 53 and he was genuinely knocked over. And I was like, oh, is my hair is dark, and I act like a child. That's pretty much probably why. But the point is, is that when my dad was 53 he looked like he fought a war, you know what I mean. And his father, when he was probably died before he was 53 and probably did fight a war, you know. So no Stolen Valor here. I don't know if he was actually in a war or not, but point being that you look fine. You're don't argue about your age. But my question is, is, if I go back to you dating 18, Jesus, what did you know when you were 18? Nothing. Not diabetes, yeah. And I say to you, listen to me, Ashley, I'm from the future. Okay? And if you marry this guy, you're gonna have two kids. They're gonna be great. Here's all the great things are gonna happen to you, but your son, when he's like, 11, he's gonna get type one diabetes. And here's what type one diabetes is. So if you want to, just like, you know, you can date this guy if you want, but like, let's make sure we use a condom and then break up with him. You start loving him. See if you want to get out of this, would you have done that? Oh, 100% I would. You would have bailed on him when you were 18. If this, no, no. I mean, I would do it. I would do it. You still as at 18. You can look back and say, It's okay. I would, I wouldn't leave this situation.

Speaker 1 38:54
Yeah, yeah. I know what my husband looked like when I was 18. Yeah,

Scott Benner 38:58
of course. Oh, he was super handsome, is what you're trying to tell me he still is? Yeah, I would totally I love where that's so honest. Ashley's like, listen, I was 18 and he was hot. I'm not going anywhere.

Speaker 1 39:09
I'm not going anywhere. I'm locked in. Is

Scott Benner 39:12
that really what you meant? Yeah, that's fantastic. Thank you for being honest. I appreciate that. Are you still nervous?

Speaker 1 39:20
No, no, I really was, I mean, I was nervous, but I'm not, like, too, too nervous. Okay. Why'd you

Scott Benner 39:25
want to come on the podcast? Obviously, to meet me. I'm fantastic. Skip over that. What did you want to tell people? Yeah,

Speaker 1 39:31
I just wanted to let people know that screening, you know, I know, like screening super big right now, and that it really is important, because it truly. I feel like it saved our family. My son from going into DKA, which obviously he did not, although we're going through the psychological part of what type one can do to a family, I feel like that goes especially from listening to your pod. I feel like that is true in any regard, like what you just mentioned, like you just, you don't know, really, what your journey is going to be, as far as after diagnosis, but knowing is half the battle. So after you get that, you just, it's just what you do with it, what you do with the knowledge, what you can do with knowing what you know. Yeah, so I just, I wanted to come on the podcast to share our story, and then also to share how we're doing a year in we're on the islet pump, and to kind of answer any questions about how that's going with the kid on puberty. Because, shoot, I mean, you mentioned it before. He's six six feet. And I mean, he started this with he was my height, he was five seven, and now he's almost six feet. Wow, just shade under six feet tall.

Scott Benner 40:52
Well, let's talk about the eyelet pump. But before I do let me say this screened for type one.com. Is a sponsor right now, if you go into the show notes to the podcast player, there should be a link there, or you can type into a browser. I think there's links at Juicebox podcast.com now, that's if they're still sponsors six months from now. If they're not still sponsors six months from now, then scroll, don't. No, I'm just kidding. Do you know why it's because you said screening is like, is like, all the rage right now? Do you know why that is? I would think

Speaker 1 41:22
it's because of the the medicine that they can take to help prolong the Plymouth. Yes, there you go. Yeah, which is called, know what that was now called, you go ahead, you know what it is?

Scott Benner 41:36
It's because there's a push. Because, you know, I don't know if I'm supposed to say all this, but I mean, what are they gonna do? Sanafi bought tea sealed from a company called prevention bio, and this medication seems like it might be kind of revolutionary, like, at this point you take the infusions. I don't have all the details, so I don't want to, like misspeak, but there's these infusions that you get every day for a certain amount of days, and what they're seeing is it's pushing off people's diagnosis if you take the infusion early enough. My expectation is, is that they they think that it's possible that in the future, they're going to learn more about it, because that company paid a lot of money for that drug and so And honestly, you know how much they paid for it actually

Speaker 1 42:23
three. Dare I say $3 billion bill, oh, I was gonna say 1 billion. 1 billion.

Scott Benner 42:30
No, no. They bought prevention bio for $3 billion so I'm like, listen, they either think they know something, or, you know, somebody with an ego trip had the checkbook that day. I don't know which one it is, but like, point being that you know, if you get screened early enough and find out that this is in your future, and do this infusion, they're seeing it put off people's diagnoses for a year or more. And I think if you read between the lines in a lot of the interviews I did with prevention bio back in the day, I think they're hopeful that it one day might stop it from happening, or maybe modified somehow, might be that. So anyway, then when you think about that, like, how do you get people to screen for type one diabetes if they don't think they're going to get it and they're not showing any signs, because you really have to find out early. Yeah, that's a Herculean problem to get people to screen for something like that. So that's why you're hearing about screening so much. Anyway, screen for type one.com now that was not an ad, because I'm sure I said stuff in there that I'm pretty sure I'm not supposed to say if it's an ad. So anyway, that wasn't an ad. That's okay. No, it's okay for you, but I don't know if it's okay for them or not. But well, we'll find out. Well,

Speaker 1 43:43
it's really important. I feel like, I mean, the, I mean, listen, we go to a really great number one in the country, pediatric Children's Hospital for endocrinology. So the fact that, when we were there, they kept saying they we had multiple doctors coming in in the two day span asking, Hey, were you the kid? Was this the kid that got diagnosed with a they just a well visit or a finger stick. You give your pediatrician a gold like they that's an I just cannot believe it just to hear that that is unprecedented. I

Scott Benner 44:20
should stick on that for a second, Ashley, because I'm, I'm obviously quick to give doctors crap when they don't do something right. That was really well done by your pediatrician.

Speaker 1 44:27
Yeah, seriously, yeah. And probably I'm so thankful, yeah,

Scott Benner 44:32
saved your kid from being in DKA and saving him from, you know, but I mean, that could kill a person. First of all, is very serious, and you know, all the trouble that that goes through, plus you get a slower, you know, you're the onset still happening. You get a little time to figure things out before it gets wonky. Do you think he's honeymooning now, still? Or do you,

Speaker 1 44:51
oh, no, no, no, I feel like honeymooning ended in the summer. That was when I was saying. I was listening, dabbling. In your podcast, my husband was reading books. We were doing our first vacation. I think that's when we crashed and burned. It was

Scott Benner 45:08
all of a sudden, the need rose significantly. Yeah,

Speaker 1 45:12
we were insulin it was like, ours is insulin resistance was going on. It was just nothing was happening. That's when I learned about combo bolusing. That's when I learned about all sorts of things, all fat, protein rises. That's when I learned all the things. But that also that's when his honeymoon left.

Scott Benner 45:30
Did you sort of take over? Because it You made it sound earlier, like you're like, my husband's got a book. I'm gonna let him handle this. But are you that really is what you said? You're like, he's good with books. He'll probably take care of the diabetes. But, like, is it mainly you now, or do you guys do it together? No,

Speaker 1 45:47
no, I really feel like it's, it's a great teeter totter combo. You know, like, some days he's really great, some days I'm really great. It's a really good teamwork, nice. Yeah, and he's, like, I said he's, he's, my son is really into competitive sports, with mostly soccer, and he trains a lot and off seasons and does Futsal, and so, you know, we are really good at tag teaming and figuring it all out. It's just kind of like a little dance. It's

Scott Benner 46:19
excellent. Good for you. I didn't mean good for you. Like, shut up. Good for you. I want to move on. I just, I'm looking at the clock, and you did take 25 minutes to get your headphones on.

Speaker 1 46:27
So I'm trying to, like, talk about beta eyelet or something. We can do

Scott Benner 46:31
that. I have a phone call in a half an hour. So, yeah, go ahead. Somebody's inviting me next. What questions you got considering speaking in Canada next year? So I have to have a phone call to find out what they want from me. But my question is, once he has diabetes, is it syringes? Is it pens? Is it a pump? What do they give you? Do you

Speaker 1 46:50
an MDI? We got a g7 we were thankful that we had a one of our good friends is a an adult endocrinologist, and she had a sample g7 because he was diagnosed in April, and I think that was right around the time that it was available in the US, is that, if I'm wrong, I'm sorry. So she had a sample g7 and she gave one to us and said, Hey, try this. This works pretty well, from what I've heard, interesting. And we plugged that one on we plugged one of those on them. And at the time, I don't think it was on the formulary on insurance, but it quickly became on the formulary. And so we were able to get that for Trevor, so he's always been on the g7 and we are also doing that with MDI up until December, when the beginning of December is when islet became compatible with g7 and you've

Scott Benner 47:44
had it for almost eight months,

Speaker 1 47:47
islet, yeah, oh, yeah. We got the eyelet in January, January 7. So this

Scott Benner 47:52
is interesting, because you have no other experience with another pump. No. So what was his a 1c on MDI, but he was probably honeymooning.

Unknown Speaker 48:01
Um, he's always been in the sixes, sixes,

Scott Benner 48:03
okay? And he he wanted a pump. You wanted him to have a pump. He was

Speaker 1 48:09
always apprehensive to do pretty much anything so. But when the pump became available, we went through pump. We went through pump training in November, and there was like, nothing's available for g7 you can go back to g6 and we're like, we never run g6 and he was like, I am not doing anything other than g7 so we're like, well, we gotta figure out what's compatible with that. And so when the islet became available, we were like, Hey, let's go time if you want this and try. You ended

Scott Benner 48:36
up with an eyelet because it was g7 compatible, or because you liked the function of it and how it worked both we

Speaker 1 48:43
liked the function of it. During the pump training at the hospital, I had asked specifically to get a representative for Ilet to get more information about it. Again, the adult endocrinologist, my friend, had mentioned that this was going to be available and just kind of the ins and outs of the ease of what it did. I had also had you had also had somebody on talking about it, so I had listened to that in conjunction to, like YouTube influencers and things like that. Kind of like listening to other pumps and Trevor's endocrinologist at his three month appointments. Had also said, you know, asked him about like, Hey, are you guys interested in pumps? And Trevor had always been like, No, I think I'm okay with where I am, because he just got steady with something. And was like, This is it, it's working. This is it. This is working. This is it. And his endocrinologist point was like, let's get a goal of looking on YouTube and trying to see what pumps are available, what pumps you might be considering what pumps you're not like, just baseline. Just try and get try and get options. And so that was one of the options, was islet, because he liked the ease and the functionality of it, of like, not having to carb count. Okay, when that became available in December, I was like, hey, this one's available. Do you like this? Option. I mean, it's tubed, but, and he's like, Well, yeah, let's try it. And I was like, what's the harm of trying it? And then the summer, if you wanted to do Omnipod, there was no contract on that, you could always jump to that one for the summer time and then go back. I mean, there's options, right? So that's why we did that.

Scott Benner 50:18
Excellent. What was your finding like you, you started using this pump which explain to people, in your words, how do you announce a meal on an island, for example,

Speaker 1 50:27
depending on what his initial number is. Let's just look at what His number is right now, for example. Oh, well, let's not use this number for right now. Well, let's just say from when he woke up, his number when he woke up was like 140 if he is going to eat breakfast, I would have him announce a breakfast usual, because he usually eats his usual breakfast. And then I would have him wait about 15 minutes, and then he would eat so you are still pre bullish thing, and then he would eat his usual breakfast.

Scott Benner 51:03
They'll tell you not to do that. You know that, right? Like eyelet says don't Pre Bolus. The company

Speaker 1 51:08
beta biotics. Well, certain individuals at the eyelet will tell you not to do that. Other representatives will tell you it's okay,

Scott Benner 51:16
okay, gotcha. And that's all I just wanted to say. Then what happens? Like, like, just now, you're like, oh, let's not talk about this.

Speaker 1 51:24
I think he just ate. He might not have announced but

Scott Benner 51:27
so you think he ate without eating or without using insulin? Oh, yeah, yeah.

Speaker 1 51:32
So this is also what it is about him. When I said earlier, like, oh, he just doesn't care. And but also, he's a tween boy, so he could just be downstairs, just watching a show, and he might have gotten excited about whatever Lego build he's watching on YouTube, or whatever it is. I got some adrenaline. Yeah, adrenaline. And it just might have kicked it up a little bit, okay, and so. But what happens is, if you don't eat and your numbers shoot up a little higher out of range, it will, the algorithm will see that after a little bit of time, and will give you a little shoot of insulin, like a little herbs, a little bit, a little bit.

Scott Benner 52:21
Where is his a 1c, on islet, he's still in the sixes. And what about excursions at meals, like, what are high blood sugars look like, and how long do they take to come back?

Speaker 1 52:31
It just depends, uh, he can be in the two hundreds, or he could stay level. It just depends on what he's eating and the what if, is it raining outside? I mean, I don't know. So

Scott Benner 52:44
if he hits a 200 for example, off of like, say, a fatty meal, like something with, like french fries or something like that with some grease in it, how long do I expect him to be in the two hundreds? Does he get low when it comes back down? Honestly,

Speaker 1 52:56
it really just depends on the day. Is it a Saturday? Is it a Tuesday? Did he just work out? These are the things that I need to know. Right going he is going through puberty right now, so it is a crap shoot whether or not he's going to go high or low. Was he dehydrated? Did he have a soccer match? Is he going to a soccer match? Is he going to burn that off? I need to know what the fat, protein rise is going to be in that because if, if he's going to be high and he has a soccer match later, it's not that big of a deal, because he's going to burn it all off, in my opinion.

Scott Benner 53:26
Does a high blood sugar affect his ability to be athletic? No, he doesn't slow down, get tired, easier, stuff like that. No,

Speaker 1 53:36
a low blood sugar, for sure, does okay. He gets really weak in the legs. He gets like tingling, tingly in his leg. How low does that have to be for that to happen? He usually feels that around like 70, really, 6870

Scott Benner 53:52
okay. Is he generally higher than lower?

Speaker 1 53:55
No, he's usually around 161, 70. Okay. And do you know you would probably consider that very high?

Scott Benner 54:04
Well, I don't consider, I listen, I don't judge people. Okay, so, but I mean, I know, all I know is that I'm sitting here right now my blood sugar is probably 85 and 160 sounds like it's twice as high as 85 and so if my kid's blood sugar was 160 I'd be like, we need more insulin. But does the pump bring him from 160 down to a lower number? Or does he live at 160 like I'm trying to figure out, like, does his graph look generally lower, 80s, 90s, 100 and then big pop it food, and then back down again. Or is he always like, 121, 3160, with some pops to 200 and come back again,

Speaker 1 54:46
again. It kind of just depends on the day, I would say, like on his good days. Like, meaning, like he doesn't have a really strong or a really heavy, you. Athletic soccer, or a heavy training day where there would be like adrenaline spike, or what I call a false high, he would be somewhere around, like the 130s Okay, mostly, okay. And then the after he eats, he would go around highest would be around one, or would be around 190 200 and then he bought back down and like the 160s maybe, or back down to 120 and then that'd

Scott Benner 55:27
be like a good day. How does this reality compare to MDI?

Speaker 1 55:31
So much better. But the same time, we were at the very beginning of diagnosis, and he was binge eating because you were newly diagnosed, and he was finally, maybe, you know, getting the insulin he needed, hungry his body needed, so he was hungry, ravish Lee, eating. Who knows? I mean, there's so many different, like, so many different variables, that it's hard to see, yeah, and so I'm not quite sure. And now we're going through puberty, and he is an athlete, and it's also kind of challenging to really see a grand picture of, like, a great steady line all the time, because he gets these, I like to, like, I said, I like to call them false highs, because he gets huge bursts of adrenaline when he's working out. And, you know, he's starting to, like lift weights, pseudo kind of lift weights. And the liver is really shooting out that glucose, and then the muscles are really, you know, getting ripped apart. And then afterwards he drops because, you know, the recovery, because he's getting the muscles now. So,

Scott Benner 56:38
like weight lifters type one would tell you you have the Bolus to do anaerobic exercise so, but you can't do that with the eyelet, right? You can't say, Hey, I'm getting ready to lift weights now, Bolus. It's only for me. It's

Speaker 1 56:51
not really lifting weight. He's doing more like plyo stuff. And I'm not sure exactly what he's gonna do when he goes in for these training sessions. So I'm like, sometimes he's just running around in circles, and then he's, like, trying to do splits and stuff, and he's mostly a soccer training so I'm like, oh, a lot

Scott Benner 57:08
of running, yeah, a lot of running, yeah. Cuz, not really a sport. You can't use your hands and everything. I

Speaker 1 57:13
understand we really like the pause feature. That's really helpful. What is that? It's a new feature on the islet. It just rolled out about a month, a month and a half ago, maybe where, when he is disconnecting. So when he is playing soccer or on the pitch for a game or a match, sorry, on the pitch for a match, in his boots, um, he'll Disconnect his eyelet, and we will pause it so it's not spitting out anymore, basal or trying to adjust his numbers, and then you can pause it for up to two hours. And then once he gets done with his soccer match, we'll unpause the islet, and then it'll plug back in or reconnect.

Scott Benner 57:56
Is he high after he gets done playing? Um,

Speaker 1 57:59
he can be, but sometimes not generally, he usually is, but it's a then he comes straight back down, because that's an adrenaline high, and then he comes right back down. And usually we have to give him stuff. We usually have to give him a jerky or trail mix and stuff uncovered. Well, usually that's low carb stuff anyway, but we usually give him, you know, things uncovered in addition to protein, things

Scott Benner 58:24
to hold him steady after the exercise. Yeah,

Speaker 1 58:27
and we do that, we usually give him that kind of snack before he he goes in as well to work out, too. Okay, nice. And you're finding it's working for you some days, yes, some days no. I mean, sometimes we nail it just like pizza. Sometimes it's like, yes, we killed it, we did it. And other days, we're like, you know, what

Scott Benner 58:48
is it fair to say? You don't when it goes right, you don't exactly know why it went right.

Speaker 1 58:54
Are you at that point right? You're like, yes, we knew it. We rocked it. Rocked it hard. And other days, when it goes wrong, you're like, what happened? Are you

Scott Benner 59:02
ever able to, like, figure out what happened?

Speaker 1 59:06
Some days, some days we find the the candy wrappers. Some days we don't, you know, I mean, some days, some days it's that. Some days there's nothing.

Scott Benner 59:15
So your biggest concern right now is to get him to consistently Bolus for food. Mostly, yeah,

Speaker 1 59:21
mostly, if, I mean, yeah, I would say yes, we want him to learn how to manage, obviously, on his own accord, but also the right balance of pushing him to start to care. But as you well know, if you've done this so many years, you have to people care about what they want to care about. Yes, exactly right. So there's a right balance there.

Scott Benner 59:46
The goal is to, like, get them to care about it, or see the value in it, and, you know, etc, like, that's the kind of stuff it's that's where all the parenting comes in and not freaking out. And, you know, because you can't just yell at somebody. To do is like, despite what 1978 would tell you, hitting somebody is probably not a good way to get them to do what you want to do in the moment, doing that right, right? Yeah. My point is you can't force people to do things, right, yeah. Often when you try to force them, it just goes the opposite direction anyway, yeah, yeah. So that's pretty much the hill you're going to be climbing for the next couple of years. Yeah.

Speaker 1 1:00:20
I mean, the goal, obviously, is to get him to do this sooner. I would say, by high school. You think you will? I mean, if not, then I would hope girls would probably, or whatever he's into, would help the situation. I don't want to shadowing his dates. But if it comes to that, I think, hopefully that'll help. I don't know. So

Scott Benner 1:00:44
your expectation is, is that once he starts dating, he won't want people to see what's going on, so he'll take care of it, so it doesn't happen. I

Speaker 1 1:00:51
mean, he doesn't want anybody to know that he has his diagnosis. That's another hurdle we're trying to jump right now, is just trying to have him be open and honest with people, but at the same time, it's a heck of a difficult age to be diagnosed. So why do you think he

Scott Benner 1:01:08
doesn't want people to know? I mean, he's

Speaker 1 1:01:09
already standing out at a six feet tall person, six foot tall boy, so he's already that going for him, but I don't know. I think he's just, it's just his personality. I don't, I don't know. I can't answer that for him. I He just does not want anybody to know, to the point where he doesn't want to go swimming, he doesn't want to do things. Says he doesn't care. But we know that's just a 12 year old mindset right now. I don't know.

Scott Benner 1:01:35
Do you do therapy for that? Do you just keep working? We do? Yeah,

Speaker 1 1:01:39
he goes to and I love having that outside person that also has diabetes to help him and help nudge him. And we always see a great, great turn around after seeing that that's also with the hospital, you were able

Scott Benner 1:01:54
to find a therapist with type one. Yep, nice. So, oh, that's excellent. Yeah. See it is personality. Because if I was six feet tall and 12, I'd just be walking be walking around going, I'm so much taller than you like, I'd be so thrilled, you know what I mean. And then you see people who it happens to them. They're they're, they try to shrink. You know what I mean? Like, they don't want to stand out, or, like, I don't want to stand out. But I would definitely take that as a dominant thing and run with it. I'd be like, Oh my God, you're all so short and, you know, just like, live in the moment. But that's not how he feels about it. Yeah,

Speaker 1 1:02:22
yeah. Again, I don't, I can't get into the mind of of my son, but yeah, I don't know. Does

Scott Benner 1:02:27
he take after you or your husband with his personality? Me, okay,

Speaker 1 1:02:33
we are like oil and water when we get together. I see it very

Scott Benner 1:02:37
much. So because you're so similar, it's hard to get along. Yes. How would you manage if you had diabetes? Would you think you'd hide it from people? Probably, yeah, I think I would. Why? I think back in when I was his age, I would be in the blame and shame game for some reason or another. Yeah, just to but do you think that's what he's doing? Probably, in some regard. Yeah, I mean, I touched on this earlier, and I don't want to bum people out, generally speaking, but whatever, it's just, it's the end of the podcast at this point. So they're still listening. They'll go with it. It's the mindset you're going to need if you're going to be successful, which is, like, you know, I really don't care if I have diabetes. These are the things I do. It's normal. I can't sit around and belabor it and, you know, be like, Oh my god, Woe is me. Or like, want to blame somebody, but if you are doing that, I mean, I get it, you know what? I mean, like, you can live a normal life even you have diabetes, yeah, but it's not really a normal life. It's a normal life with diabetes. You know, like, no matter what would it? Forget diabetes. If you were born with nine fingers. You could live a normal life with nine fingers, but it's not exactly normal. You have nine fingers. You know what I mean? Like, it's that feeling in there. Again. I think some people get stuck on it and some people don't care about it, and I think you're gonna do better if you don't care. But how do you get people who are stuck not to care? That's like the million dollar question, or the $3 billion question, you know, if you're sanafi, but like, seriously, like, how do you, how do you make that leap to understanding that if you just accept it, it's better, you know what I mean? Like, there's that, um, I don't know how I haven't talked about this in a long time, but it came up in my life recently I was talking to, I shouldn't say who I was talking to. I was talking to a younger person in my life that isn't my kids. And I was explaining this, this commencement speech called This is water that was given like, I forget when by by an author who has since taken his own life. So, I mean, I don't know how much of his insight you're interested in hearing or not, but,

Speaker 1 1:04:41
well, I bought the book after I heard you on your podcast, so I'm sorry to hear that he's since deceased. He's long

Scott Benner 1:04:48
deceased, and not that. That makes it better. But nevertheless, this is not we're talking about. We're talking about it's this one idea in his commencement speech that I find to be like at the core of living. Happily. And, you know, I won't paraphrase him, I'll just tell you the way I think of it, which is, if you're driving down the road and someone drives past you like an absolute lunatic, they're probably an asshole, right? They're probably just driving unsafely, but they also might have a great reason for it. Their kids at home and sick, or their house is on fire, or they gotta take a okay, like there's a reason why they're doing this. They're not an asshole. They're just they're in a bad situation. My point is, is that you're in your car, they're in their car. They've just sped by you. You're never gonna see them again. You don't really know why they're doing what they're doing, and it benefits you to assume the best, because if you assume the worst, you're just going to have this anger, you're going to it's going to live inside of you. You're going to distrust people, you're going to have a bad experience. You know, the all these reasons why, if you decide to guess that they're just an asshole, it's bad for you. And if you just say, You know what, I hope they're okay, you know, and that whatever's happening is happening for a good reason. That's it. It's nice and light and airy, and you let it go. And I see the connection with diabetes there, which is you can decide to say, hey, you know what? You can tell me, I'm normal, all you want, but I'm wearing a thing on me that's giving me insulin, because my pancreas doesn't make insulin, and my blood sugar gets low, and my legs get tingly and etc and so on. And there's 1000 things about this that aren't normal, but if you just accept it, it just is easier on you. Like, I just that's, that's it really, like, just let it be easier on you, because life's already hard enough, and now it's harder. So give away as much of that anger as you can, because it's just better for you, like you're doing yourself a favor by just assuming that that person drove past you for a really good reason. And don't think about it anymore. I know that's probably overly simplified for people, but I just gave that book to two college graduates in my life, I was like, here. I read this a couple of times a year. It really helps me keep perspective, and it helps me be kind, and I hope you, you know, enjoy it now. Will they ever read it? I don't know. I mean, they're like, 20 some years old. They probably are just like, Man, I just want to smoke weed. Leave me alone. But who knows. Anyway, everyone smokes weed now it's a big thing. Ashley, as you know, all right, what did we not talk about that we should have?

Speaker 1 1:07:26
I don't I think we cut mostly. Did we do it? I think we pretty much did it. You

Scott Benner 1:07:32
sent me, like, two emails and the thing that you put in here, so I'm hoping I got to the stuff that you wanted to

Speaker 1 1:07:38
talk about. Yeah, I mean, I think that's pretty much it, unless you wanted to talk about Steve Logan, that's pretty much all. Wait,

Scott Benner 1:07:46
Steve Logan, what is that? Who is Steve Logan, yeah, I have no idea who that is.

Speaker 1 1:07:50
Oh, he is, like, arguably one of the best UC bear, cat basal players that's ever lived.

Scott Benner 1:07:57
What is that? Is that, like, a college,

Speaker 1 1:08:01
college? Yeah, University of Cincinnati. Oh, my God, you don't know who that is. No, of course not. Oh, Steve, okay. Steve

Scott Benner 1:08:10
Logan is an American former professional basketball player. He played college basketball for the Cincinnati bear cats. He's 44 years old now. He's 510 How do you play basketball in your 510 he must be like a super person. He was drafted in the second round in 2002 but it doesn't seem like he played professionally anywhere, because I don't see a listing for that. What does he do? Does he teach in the area now? Well,

Speaker 1 1:08:32
he was at a basketball camp that Trevor was signed up for. He did play professionally. He got drafted. Thank you. Oh, drafted for Golden

Scott Benner 1:08:41
State Warriors. He's a hands on man. Good for you. Steve, nice and hands

Speaker 1 1:08:45
Yeah, no, he's, he's really good. Well, anyway, it was so we had already had Trevor diagnosed. And so we had already had all these camps for Trevor, because you had to sign up for camps in February. Had diagnosed in April, and so we had all these basketball camps sign up. That's when Trevor still played basketball. He'd sent he has since quit basketball. He doesn't think he's good enough at six feet. I'm like, how do you I don't think you're good enough. But anyway, so we were still an MD guy and super nervous, and he had a whole week, all day long, all week at this University of Cincinnati camp spoiler. We live in the Cincinnati area.

Scott Benner 1:09:19
Come meet us. No, I'm just getting good. That's fine. As

Speaker 1 1:09:24
we're going to this camp, we're really nervous. The staff there is the trainers are wonderful. They supply lunch. They're all sponsored every, every day for lunch. So we're trying to figure out the combo, or the trying to figure out the Bolus is for every day. They're they're even able to give him the the injections for his lunches, which is great. So the last day, I gave thank you cards and gift cards to the trainers. And as I was there for the last day, I ran into Steve Logan, and as I was because I was one of the only parents that was kind of walking around. Uh, during lunch time, and he stopped me and was like, Hey, how's going? And just kind of chatted with them a teeny bit, and kind of explained, like, why I was there, just kind of handing out these thank you cards. And he was like, hey, you know your kid. He's the one with pink shoes, and Trevor had, like, neon bright pink shoes, like he couldn't miss them. And I was just blown away that he even knew that my kid was because there's hundreds of kids at this camp, yeah. And he's like, Ah. I was like, is he in your group? He goes, Oh, no, no, no. Some of the beginning of the week had mentioned that your son had type one, and I actually know the signs. So I decided right then that I was going to keep an eye on your kid, because I I have, I have type two, and I know it's not the same, but I know what to look for. So I've been keeping an eye on your kid all week, if any, if he needed anything, I just wanted to let you know that I had him covered. And also he's been, he's been doing pretty good. He's been working hard. And I was like, Oh my gosh. I just like, my heart dropped. And I just like, can I give you a hug? I know I don't know you, but I just also want to give you a hug. And he's like, yeah, yeah, sure, of course. And I looked at him, and I was like, my husband has always told me that you were his favorite basketball player, and I just want to let you know you are now mine, and I'll just never forget that. I just thought that was beautiful, so, so nice, unless

Scott Benner 1:11:30
that's how he gets the moms to hug him and then it's crazy. No, I'm just kidding. That's wonderful, though, and I can see why that's so touching to you. Yeah. Did you see I got uncomfortable with your emotion, and I tried to change direction. I know, I know. I was like, Oh, you're crying. Like he's probably just being creepy. No, I'm just kidding. He probably was not totally joking. That's really wonderful. It was so, so nice. And he has tight he told you, as type two. Yeah, that's something. Well, good for man. See, see, there's decent people all over the place.

Speaker 1 1:12:00
Yes, I feel like throughout this whole year, there's just been dabbles of that, just here and there. It's like, right when we needed it, things happen, someone you know, like the doctor, our friend who had the g7 I had no idea even which CGM to go for, look for, or even how to insert it, and all of a sudden, bam, there. It was wonderful. We had a neighbor down the street. She was the nurse. I had no idea what a 1c was. When that test result came back, she's like, did they check his a 1c I was like, I have no idea that came back. She knew exactly what to help me with. I mean, there's all these little steps all along the way. Ever since it's just been

Scott Benner 1:12:38
solid pieces together. You find a podcast, you read a book, you meet a person. No, no, no, I don't I didn't sound like I was trying to lump me something. I'm sorry. I didn't mean No, no, no, of course, you're lumped in there. No. But like, you know, these little things happen along the way, and you ascend and get better, and it gets easier and etc, and that's going to keep happening for him. You You understand right now. And by the way, if my phone rings, I gotta go. But like, I'm so sorry. No, don't be sorry. It's your fault for not knowing how to plug in your headset earlier. But that's Don't be sorry about it. It's no one's fault. It happens all the time. Seriously, please don't worry. But you know, like you're on a journey, he's on a journey. Your husband's on a journey. You got another kid who, trust me, is being impacted by this. You might not even notice it, yet. You're on a journey together, separately, and everybody's on a different timeline. So you just keep supporting each other, and it eventually, hopefully, people have the experiences they need to have the tools that they require, and they accept what's going on. And yeah, there you go. You know, yeah, that's what I'm calling the episode, by the way, yeah, yeah, yeah, yeah. So that people can incessantly listen for like, maybe they'll turn into a drinking game. Scott says, yeah, yeah, take a

Speaker 1 1:13:47
shot. I think it should. Let's put one right there. What do you think I mean

Scott Benner 1:13:50
by Yeah, yeah? Do I mean I hear you shut up. We're moving on. Do I what is I

Speaker 1 1:13:55
think it's your Matthew McConaughey is all right, all right. All right.

Scott Benner 1:13:59
He sounds much cooler when he's doing it. Yeah, I did not do it justice. I know, no, not than you, than, I mean, than me. I wasn't saying your Matthew McConaughey was terrible. I was saying, Oh, it is. No, it is. But that's not what I was saying. What I was saying was that I my, yeah, it's not as cool as his. All right. All right. All right. Don't you think? Do you think he gets tired of it? Do you think once in a while he's like, oh, people are waiting for it. I'll whip it out here.

Speaker 1 1:14:22
No, absolutely not. He's Matthew McConaughey. He doesn't know. His ego thrives on that. Oh, you think he loves it 100% okay, all

Scott Benner 1:14:33
I know about Matthew McConaughey is, I think his wife is hot. That might not even be true. That's just the thing. I think. Also, I'm a man, so this is pretty much how I judge the world. It's something I'm so sorry. Oh, she is, I'm looking, yeah, okay, very beautiful. Yeah. Certainly is. What are the man? There's a reason to be famous. That lady will talk to you. Goodness gracious, yeah, I should have, I mean, it wouldn't have helped. Anyway. Oh, here comes my call. I gotta go. All right. Well, have a good one. Thank you. It's nice to do this with you. Hold on one

second. Today's episode of The Juicebox Podcast is sponsored by the contour next gen blood glucose meter. This is the meter that my daughter has on her person right now. It is incredibly accurate and waiting for you at contour next.com/juice, box. Are you tired of getting a rash from your CGM adhesive? Give the ever since 365 a try. Ever since cgm.com/juice box, beautiful silicone that they use. It changes every day, keeps it fresh. Not only that, you only have to change the sensor once a year. So I mean, that's better if you're not already subscribed or following in your favorite audio app. Please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. Hey, what's up? Everybody? If you've noticed that the podcast sounds better and you're thinking like, how does that happen? What you're hearing is Rob at wrong way recording doing his magic to these files. So if you want him to do his magic to you wrong way recording.com, you got a podcast? You want somebody to edit it? You want rob you?

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