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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Type 1 Diabetes

#1321 I Don't Understand... Arden Four

Scott Benner

Scott and Arden discuss financial literacy, focusing on topics like taxes, retirement savings, and budgeting.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
OmniPod, welcome back, friends to another episode of The juicebox podcast.

Arden and I are back today with another episode of I don't understand. Today. We're going to talk about money, interest, savings accounts, taxes, stuff like that that Arden doesn't understand. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D drink, AG, one.com/juice box. T 1d, exchange.org/juice, box. Go there. Now, join the registry. Take the survey. Takes about 10 minutes. They're going to ask you questions. You know the answers to they're looking for people who have type one diabetes. They're looking for people who are the caregivers of someone with type one diabetes, and you have to be a US resident if you fit the bill, take the survey. T 1d exchange.org/juice, box. They take your questions, they take your answers, they smush them all together, and then they use that information to move type one diabetes research forward. You want things to get better, go take the survey. T, 1d exchange.org/juice, box. All right. All right. You ready for the main event? Here comes

this episode of The juicebox podcast is sponsored by cozy Earth. Cozy earth.com use the offer code juicebox at checkout to save 40% off of the clothing, towels, sheets, off of everything they have at cozy earth.com today's podcast is sponsored by us med. US med.com/juice box. You can get your diabetes supplies from the same place that we do. And I'm talking about Dexcom, libre, OmniPod, tandem and so much more us, med.com/juice, box, or call 888-721-1514, okay, so you tell me that it's my decision what we're going to talk about today. Yeah. Okay, so I'm looking at the list this

Arden Benner 2:18
whole conversation. I'm blind too. I can't see anything. I took my glasses off because my headphones squeeze them so, so everything is blurry. Yeah, and if you're making any, like, facial movements or I can't see them, just so, you know,

Scott Benner 2:30
do it? Should I turn my camera off? Or no,

Arden Benner 2:32
no, I'm just letting you know. Okay, so

Scott Benner 2:34
I have two. I'm down to two. I'm gonna let you pick between two. Should I? No, that

Arden Benner 2:40
is not what I just said.

Scott Benner 2:43
All right. Well, the one is like a thing you said you don't understand, and I don't know if you have the energy to really dig into it. Do you have the energy to dig in?

Arden Benner 2:51
I'll never have the energy to dig in. So pick one of them. Okay,

Scott Benner 2:55
I have to be honest with you, I never understand what you mean when you say, I don't understand money, what

Arden Benner 3:03
does that mean? It means I don't understand money.

Scott Benner 3:07
I don't I don't understand what you mean when you say, I don't understand money. What about money? Don't you understand everything? Okay?

Unknown Speaker 3:18
I don't.

Arden Benner 3:20
I don't understand how you're not picking up what I'm putting down right now. Okay, so

Scott Benner 3:25
I'm not, like, you can't possibly mean I don't understand the the relationship between giving someone money for goods or services, or, do you mean that?

Arden Benner 3:36
Like, I don't understand, like, how, like, realistically, how you're supposed to get a job and save enough money for everything that you need. I don't understand all of the different accounts that money is supposed to go into. I don't understand retirement funds. I don't understand how to pay your taxes. I don't understand literally anything about money. So I've decided I will be marrying someone, and they will, in fact, have to take care

Scott Benner 4:01
of that. Okay, so let's go over this, because I think these are things you can understand

Arden Benner 4:05
when I'm when I'm at a point in my life where I'm making enough money that I, like, really need to figure my out. Like, I just want you to know that if I'm not in a relationship with another person, you will be getting a call, and you're gonna have to figure out my money for me.

Scott Benner 4:23
Well, what if you What if you lose money because you're not paying attention to it, or you let somebody help you and turns out to be a jerk and takes all your money? That's all we're talking about right now. We're

Arden Benner 4:32
talking about the fact that I don't even understand it. I probably wouldn't know.

Scott Benner 4:35
Okay, so I'm making a list here, taxes, accounts, retirement savings bills. What else? Yeah,

Arden Benner 4:44
I'm, I'm not doing multiple podcast episodes on this. No, this is we're talking about it right now. Yeah, all right, I'm

Scott Benner 4:50
just putting that out there. Okay, what else? Say that again. I don't even know. I

Arden Benner 4:57
did say it, Dad, what

Scott Benner 4:58
about like? Like? Loans. You understand a loan?

Arden Benner 5:02
Yeah, you get some money. They pay it back to you. Like, interest, loans, I don't really get, okay,

Scott Benner 5:09
interest, um, even how to get a job, how much money you need? Yeah,

Arden Benner 5:17
just like, that doesn't make sense. Like, how are people making enough money to live?

Scott Benner 5:21
Okay, how do people make enough money to live? Well, people make, obviously, all different kinds of money, but I think, yeah, but still, I think that big picture, people who live without going into debt just tailor their lives to the amount of income that they have. Like, most people do that. But like, Do you know how people

Arden Benner 5:47
will say you should make little charts or whatever, and like, like you're spending and how much you're spending, you know, a month in like, kind of whatever, that whole thing,

Scott Benner 5:57
what would that little chart be called? You know, starts with a B, starts with a B. Sounds like budget. Like, yeah, people, people make a budget to, like, see how much money they have coming in, what all their bills are. The chart, I know what

Arden Benner 6:11
about I know what a budget is, okay. What do you mean? It sounds like a budget? Well,

Scott Benner 6:15
no, I thought you were trying to get to budget, but you didn't know the word no. I was

Arden Benner 6:19
trying to get to the point that I've never actually met a human being who does that.

Scott Benner 6:23
Okay, well, and, like,

Arden Benner 6:27
not just because I'm, like, 20, like, it's not like, oh, like, my 20 year old friends don't do it. Like, I've met their families. I've met other like, I don't know a single person who actually does that. And if you're not doing that, how you actually know also, how about this? How about people who say they don't have money and then they whip out, like, $400 and buy stuff.

Scott Benner 6:47
Diabetes comes with a lot of things to remember, so it's nice when someone takes something off of your plate. Us, med has done that for us. When it's time for Arden's supplies to be refreshed, we get an email rolls up and in your inbox says, Hi, Arden, this is your friendly reorder email from us. Med. You open up the email. It's a big button that says, Click here to reorder, and you're done. Finally, somebody taking away a responsibility instead of adding one us. Med has done that for us. An email arrives, we click on a link, and the next thing you know, your products are at the front door. That simple, us, med.com/juice, box, or call 888-721-1514, I never have to wonder if Arden has enough supplies. I click on one link, I open up a box, I put this stuff in the drawer, and we're done. Us. Med carries everything from insulin pumps and diabetes testing supplies to the latest CGMS like the libre three and the Dexcom g7 they accept Medicare nationwide over 800 private insurers, and all you have to do to get started is call 888-721-1514. Or go to my link, usmed.com/juicebox, using that number or my link helps to support the production of the juicebox podcast. This is from a listener. Thank you for introducing me to cozy Earth. For my birthday, I bought stuff to update my bed sheets, comforter and a blanket. It honestly made our lives better. My husband and I used to have a conversation in quotes every single morning about who pulled the covers so far to their side, or how we were too hot or too cold. That never happens. Now, both of us sleep better and more comfortably, and don't get me started on the clothes you all should just try one piece. Take this as a sign to go to cozy earth.com and use the offer code juice box at checkout. When you do, you'll save 40% off of your entire order. Doesn't matter how many sheets or towels or clothing pieces, items, whatever you call clothing, however many you put in your cart, you're going to save 40% when you use the offer code juice box at checkout. Okay, so you've known people, Oh, I know this story. You know people who are always like, I don't have money, I don't have they cry poor right at every turn. We're getting into an Uber I can't help we're at dinner. I can't pay like that. And then suddenly, when they want something, there's plenty of money for it. Yeah, it's crazy. Maybe that's how they're saving the money by not paying for the little incidentals. And then they, they, you know, these 510, $20 add up for them.

Arden Benner 9:28
That's a different story.

Scott Benner 9:29
I'm just saying that is a different story. Okay, so let's start with this, because you're going to get a job at some point in your life, right? God, I hope so. Okay, let's hope that happens, and then they're gonna pay you. We don't know how much, not really important for the conversation. Do you understand how that's gonna happen?

Arden Benner 9:51
Yeah, I'll get this degree. And pray I understand. I

Scott Benner 9:55
meant when you physically have a job and it's time for payday. Do you know what happens? They pay me like. What are you talking about? I'm saying, Do you real? Do you know how that like, if somebody said to you, okay, like, you know, it's time you work here now, you know they're probably going to want to direct deposit into your account, or they're going to hand you a physical check. There's only, like, one of two ways it's going to happen. Yeah, I understand that. Okay, all right, so you have to have a bank account. Wait, let

Arden Benner 10:17
me. Let me rephrase my question. I understand how life works. Dad, I don't understand how money works. I know that you have to hand someone a check. Don't need to help me with that. I don't understand retirement funds, how that money adds up, like, that whole thing, like, I don't get it. Okay,

Scott Benner 10:36
perfect. So first, let's go over this. When you get paid as a US citizen, as the taxpayer. Here's what's going to come out of your check. You are going to pay federal income tax. You're going to pay a state income tax in most states, there are some states where they don't have that you're going to pay a tax to Social Security, a tax to Medicare, a local tax, sometimes Employee Benefit deductions, like if you have a 401 K and you're funding it, the money will come out of your check before you get paid. That's called pre tax money. So you're able to save $10 if you put $10 into a 401 k, the entire $10 goes into it. You're not taxed until you close out the 401 K and take the money out. If you take it out sooner than before you're retired, then they'll tax more of it. If you wait till you're retired, they'll tax less of it. If you have life insurance, health insurance, that all will come out. If your health insurance is through, the company will come out there. If you work in a union situation, that you may pay union dues from your taxes too. Now I'm going to just say here at the 2024, rate, uh, let's, let's like, what's the what's an amount of money? Like, what's what do most people make? Like, what's an average amount of income for people? I just want to pick an average Hold on a second also,

Arden Benner 11:53
like, I don't understand

Scott Benner 11:56
how people can buy houses anymore, okay? Because where do you get all that money from? Where

Arden Benner 12:02
do you get all that money from? The market's only going up, and all the people who are starting to buy houses now are probably people who are, like, in their 30s, right? Starting a family. At the rate we're going, they probably don't have enough money to buy houses. So is that going to change? Like, our house is not going to be a thing as frequently as they used to be. Is it going to be more apartment living? Like what homeownership

Scott Benner 12:27
will be down is what you're wondering? Yeah, is that true? We're going to get to that because that's probably happening already. So I put in $63,000 as an income. Because I asked, you know, what's the average US salary? It gave me $63,000 so for the 2024, brackets, for a single filer, you'd pay 10% on income, up to $11,000 12% on income up to between 11,040 4000 these are like, I'm not saying the exact numbers, 22,000 on income, between 44 and 95 so for a person making $63,000 a year, The first 11,000 is taxed at 10% you pay $1,100 to the federal income tax. Payment from the first 11,000 the next portion is taxed at 12% or $4,047 so those, the remaining portion is taxed at 22% that's the amount over 44,000 which is $4,025 so a person who makes $63,000 a year will pay $9,172 in federal income tax. So take your 63k and subtract nine grand right off the top. You don't have that anymore. Okay, so hold on a second. So we're gonna say your job is $63,000

Arden Benner 13:40
and you lost. I get this. So then what do you do? Oh,

Scott Benner 13:46
I see. All right, hold on a second. I'm gonna keep going. So we have the number. You're gonna lose about $4,000 in Social Security tax. You're gonna lose about $1,000 for Medicare, excuse me, Medic, yeah, Medicare and, and and there's going to be a state income tax like, here's an example. Like, Texas has a zero state, Florida has 10% so it could be anywhere in there. So we're just, we'll, we'll ignore that for now. But you make $63,000 you live in Texas, you really only have 50 grand. Now, are you going to put money into your 401, K to try to save for the future? Maybe you are. I don't know how much that's going to be. That comes out of the 49 as well. You know, what would people say normally, is, you put in as much as you can. Some people put in 2% people put in some companies match up to a certain percentage. So like, some companies will tell you, like, hey, put in up to 6% we'll match up to 6% so if you put in 6% of your income pre tax, which over here would be, I don't know how much, like 3600 a year. Then they'll put in 3600 as well. And we'll get to how that, like adds up over time. So now you got $50,000 and what you're saying is, I'm out of college. I got 50 grand. I'm making a year. I don't have any money saved. How am I supposed to save up? Enough money while I'm renting somewhere to put a down payment on a house, right? Because, if you're like, what the Yeah, I'm hearing you. Because you have 50, say, you have 50 grand apartments at this point, rank, like small apartments range anywhere from, you know, a few $100 a month, depending on where you are, all the way up to, I've seen 1600 $1,900 a month in some like metropolitan areas, right? Yeah, around here in New Jersey, I think you're gonna easily pay $1,500 a month for a one bedroom apartment, yeah? So then the idea is maybe you'd go to a two bedroom apartment and pay $2,000 a month and then split that with somebody, and then now for a roommate. Now you got 1000 gone, but it doesn't matter. Let's say you're paying, let's just say you're paying $1,000 a month, which would be cheap for rent. So I got your 49 so good.

Arden Benner 15:49
I don't understand how, like, how 10 prices go up for things, but the wage doesn't go up. How is that allowed?

Scott Benner 15:58
Why don't incomes rise at the rate of inflation. You

Arden Benner 16:04
know, I understand inflation. I'm just saying, like,

Scott Benner 16:06
how come, that's allowed. How come? How come? Yeah, allowed. It's a free market. I took $12,000 off for rent. You're down to $37,000 now. You planning on driving a car? Yeah, okay, if you were to buy a car, like a new car that costs $50,000 that's a lot, but let's so let's say less, but let's just say 40,000 let's say you have a $40,000 car, $40,000 car loan. Right now rates are at like, 6%

Arden Benner 16:38
Oh, like, rates and like, Oh, someone else take care of it. When I was you can get, like a financial advisor, right to help you with this stuff, and they'll help you figure this out, right? Then you got to pay them. Yeah, but you have to pay them. It's so ridiculous. What about the fact that I learned, like a couple years ago that when you have a child, when you go to the hospital, have a child, you have to pay, like, an outrageous amount of money to make

Scott Benner 17:04
the because the hospital's a private organization. It's a company, yeah, what the like? So a $40,000 car loan at 6% and I spread it over seven years to make the payment as low as you could is. It says 84 months. So they're going to charge you a VIG interest on the money to lend you the 40 grand, right? Also, they're not going to just give you 40 grand. If the car is worth $40,000 they're going to expect you to put down a down payment of about $4,000 probably. So let's say you go to buy this $40,000 car after your first year. Now you got to give them four grand. So your 37,000 goes down to 32 33,000 and let's see what the payments are on this. So you're gonna pay on $40,000 I should have said 36,000 but on $40,000 you're gonna pay $584 a month for 84 months, and pay back 49,000 total dollars on the $40,000 you borrowed to buy a $40,000 car at today's interest rate of 6% from a bank, you're actually going to pay $50,000 for the car, 40,000 to the car company, 10,000 to the bank. They'll lend you the money. It's going to cost you about $584 a month. Yeah, see, I'm not following, okay, what part all of it? So it's just like, I Oh, okay, what part didn't you follow? Yeah, I

Arden Benner 18:32
just told you all of it.

Scott Benner 18:33
There's a company that makes a car Ford, okay? They tell you, it's cost you $40,000 you walk in, then you go, I want that $40,000 car, please. They say, Okay, you're gonna think of us $4,000 they say, Okay, fine, give us $40,000 and you say, I don't have $40,000 and they might say to you, well, go to a bank and try to borrow $40,000 from them. So let's say you go to your bank and they agree to give you $40,000 first of all, you don't own the car. The bank does. The bank buys the car and lets you drive it while you're paying them for it. See, I

Arden Benner 19:07
hate that. It's not great. Just give me the car.

Scott Benner 19:12
It's your car. You'll drive it every day, trust me, if you crash it into somebody that's on you, not the bank.

Arden Benner 19:17
Sometimes you ever just think about all this stuff, and you're just like, literally, we're on a floating rock, and we're all gonna die pretty soon. So just, honestly, just,

Scott Benner 19:27
that's all. It's just stop, drive a car.

Arden Benner 19:30
Yeah. Like, what are we doing?

Scott Benner 19:32
So you would like it if the people at Ford Motors showed up didn't, like, ask you for any money for their car, and maybe in in exchange, you could work in a town where the people at Ford work, and if they needed food, you'd give them food, and if you needed a car, they'd give you a car. Vice versa, the people who made the seats would give the like we'd all trade for everything. I mean, then your whole life would be making the the seats for the cars to give to Ford so that some. Anybody else would give you food so that, like, you know, I mean, like, it would be,

Arden Benner 20:03
I understand we need money, you know, because we aren't great at everything. We know how to do everything. Other people know how to do things that we can't do, and we need their help, and therefore we need something that is going to force them to help us. And, you know, whatever, I

Scott Benner 20:16
get that under something to get people out of bed in the morning. So, yeah, money,

Arden Benner 20:21
right? But sometimes I'm just like, guys come on. Like, if someone needs to go to the hospital and they can't go because they can't afford it, it's just like, guys come on. Like,

Scott Benner 20:32
that sucks, right? So you think maybe it would be nice if healthcare was somehow subsidized by the government, that's a whole different problem. Okay, so let's go back to your car. Now, it's $584 a month, every month, but you only make So let's kind of go backwards a little bit. You only make $63,000 a year. Yes, okay, now what if I have children? Yeah, you shouldn't do that, probably. So you have children like, what? What am I going to do? So keep in mind that this $63,000 you you're gonna lose, we gave like the full number that you'll lose every year in taxes, which is 9000 for the Fed, 4000 for Social Security. So 910, 1112, 1314, probably about 15 grand, right? But you gotta split that up over 12 months. So if I take 15,000 divided by 12, it's 1250 so I take the 63,000, divided by 12, you're going to make about $5,200.50 cent, $5,250 a month. Then we're going to, like, take out, like, let's just say 1200 for taxes. So you're really going to bring home $4,000 a month, or $1,000 a week. Of that you're going to pay. This is why you're not going to end up with a $40,000 car. But of that, you're going to pay $584 for the car. Now you're down to $3,400 and we said maybe $1,000 for rent. Now you're down to $2,400 you're gonna a car is gonna need gas. Gas is expensive. Let's say you gotta drive to work. Let's take out $400 for gas and auto insurance. Now you're down to $2,000 now, were you planning on eating? No.

Arden Benner 22:15
Not anymore, not so like,

Scott Benner 22:20
also, you have a fair amount of medical needs, you know, you're gonna absolutely have to get your health insurance from the company. I assume that's gonna cost, I don't know about, probably three or $4,000 a year. So hold on a second. Um, let me just take 3000 divided by no but also

Arden Benner 22:40
to get like, good insurance, you need a good job. Yes,

Scott Benner 22:44
there are a lot of companies that give you crappy insurance, and that's so then,

Arden Benner 22:49
let's say I can't get a job like that. Great right away. Then you have to, you have to pay more, even though you're making less. Basically, yes, I just

Scott Benner 22:57
took out $250 for health insurance payments a month, but that's just to have the insurance that took you down to 1800 then you're actually gonna have to spend the money to get this stuff. So, but let's skip that for now. We'll go back to the medical stuff. How much do you think you're gonna need for food a month?

Arden Benner 23:12
God, I don't know. Wait, so off topic. But like, say you have a kid, right? And that kid wants a toy, yeah? But I want a pair of shoes, I have to give him the toy. He

Scott Benner 23:23
teach the kid to shoplift the shoes because the toy is cheaper. Okay, I don't know what you're gonna do there. We're down to $1,816 a month. We have to take out your food.

Arden Benner 23:32
Wait, why are you skipping past the real question?

Scott Benner 23:34
I think you have

Arden Benner 23:35
to buy the kid a toy. It's a choking hazard. I would never do that.

Scott Benner 23:39
How much do you think food costs for one person a month? How much does How much do not? Does do groceries cost for an American, adult monthly? $200 200 Oh, honey, I don't think that's gonna even get you a bag of beans. 300 a low cost plan is 250 to 300 a moderate cost plan 350 to 450 a liberal, like a liberal, like you're spending more is 500 to 600 let's say we put you in the middle and we take out $350 a month for groceries. Now you're down to $1,466 you've got leftover. I don't know what your medical stuff is going to cost. I know what we put out every year for it. It's a lot, but let's just take a number. Let's take $5,000 and divide that by 12 and say that your medical costs are $416 a month. This is round. I'm going to now remove that. Okay, so now we got the car, the gas, the car insurance, the rent, the food, the medical insurance, the taxes and the medical supplies. You have $1,000 left. How much are the shoes? Probably $1,000 now let me ask you, go ahead. Are you gonna have a pet by any chance?

Arden Benner 24:59
Chance? Oh, that's what I was gonna say. I was gonna say, what if I have three chameleons? Then you gotta buy crickets. I actually don't want that was a joke. Go ahead. Well, no, I'm not gonna have a pet because of this. You're

Scott Benner 25:12
definitely not gonna have a pet. A bag of dog food that we buy is like 40 bucks, and when Indy was alive, we needed two a month. Now we're using less, because basil's tiny. I mean, do you get your nails done? How about how about your eyebrow threading? What's that

Arden Benner 25:28
cost? So serious,

Scott Benner 25:30
I need to do that. So personal care, hygiene, makeup, it's like 12 bucks for Eyebrow threading. I'm taking that off minus 12. Are you planning on getting your hair cut?

Arden Benner 25:39
Yeah, I'm I'll be broke by the time this is over, I'll be in debt. Well,

Scott Benner 25:44
then that's what ends up happening, is that, is that eventually people use a credit card for something, and then,

Arden Benner 25:51
yeah, let's throw in there a Mrs. Degree. You're

Scott Benner 25:55
gonna get an Mrs. Degree. Yeah, that's, this is how it's going. Keep in mind, we have not gone over household goods, like cleaning supplies, kitchenware, furnishings you don't have. Yeah, I

Arden Benner 26:08
know. So, okay, so you're proving my point. I don't understand. I don't get it. How is it? How does that work? Well,

Scott Benner 26:13
I think what most people do is, when they start off, people give them furniture to get started if they have, like, friends or family, like, usually, sometimes your mom will be like, oh, yeah, I was thinking of getting a new sofa, which is code for, if I give you my sofa, will you take it? Because I don't really want a new sofa, but I don't want to offer to buy you a sofa. So, like, maybe you'll get stuff from people to get started with, but you're missing, like, we still haven't hit like, internet. Do you want to watch television? Yeah, I

Arden Benner 26:39
understand. I don't.

Scott Benner 26:40
I'm gonna take out.

Arden Benner 26:41
I get it. I don't need this interview. I'm just saying, right? It's ridiculous. Yes,

Scott Benner 26:47
you're gonna be, I don't under, yeah, I

Arden Benner 26:48
don't understand how you're supposed to do all this, and then how you're supposed to retirement fund. You're also supposed to have an emergency fund.

Scott Benner 26:56
Like, yes, what do they say your emergency fund should be? This people probably laugh out, I think they say the equivalent of two months of your pay. Hold on, how much money do they? Whoever they is, suggest you have

Arden Benner 27:14
people who are going to steal it from you. Emergency Fund,

Scott Benner 27:17
yeah. Then on top of that, you got to deal with the rest of the world trying to take your money. Everyone's going to try to take your money. Every phone call you get that you don't know of it's somebody who thinks that they is trying to get your money. Emergency Fund guidelines, three to six months of expenses. Oh my. So if you with what we just did here, three months of your expenses would be $12,000.06 months would be 24,000 and that's, you know, in case you lose your job, in case there's something like that happens, if you have, yeah, it's ridiculous. Yeah. So your questions are, what Go ahead.

Arden Benner 27:51
I guess my questions are to men between the ages of 20 to 24 if

Scott Benner 27:59
you're looking for a girl who needs insulin, you've got good health care. I

Arden Benner 28:05
don't know what question. I just don't get it. I just don't understand you're supposed to do. It just makes sense to me. So I will

Scott Benner 28:10
say this, when mom and I were first together, we did not make very much money, but it was a different time. Obviously, I'm old now. I'm 53 when mom and I got married, I was like, Are you sure you're 53 I'm 100% sure there that right now I'm 53 and if I was born in 71 and married in 96 so 8190 I was 25 when I got married, and back then, I think I made $20,000 a year and mom, but

Arden Benner 28:39
Is that, like, a different amount of money now, like, what would Yeah,

Scott Benner 28:43
let's see, what is $20,000 income in 1996 equivalent to it's gonna go through, like, the inflation cycle. Give you like a reasonable answer here, $40,000 that's crazy. Yeah, so if mom and I both made 20, which is about what we were like doing back then, then that would be the same as two people living together right now, making 80. And then we were married for a handful of years, before mom got pregnant with coal, and then it all started. Now we when we were first married, we lived in an apartment. It was a one bedroom apartment at a fireplace. It was the last fireplace I've ever had in a place I lived. Oddly, we paid just under $1,000 a month for it. It was very expensive. Back then we were probably, I don't remember how much we were making, but if we were making 40 and then we were paying taxes, and maybe we had, maybe we had, like, 35 after taxes. We did have health insurance. We were paying for that. We did try to put money in our 401, K, it wasn't a lot. Then we paid for the the apartment, food we you know, we had some, like, we'd go out some. Times, and, you know, to dinner or to a movie or something like that, that money was going but back then, a movie cost like $5 for a ticket, maybe, I mean, like, popcorn was a couple bucks. And

Arden Benner 30:10
so it's like, what 16, $17 for a ticket and go to a movie. Yeah, sometimes

Scott Benner 30:15
it's 20. They're like, do you want the screen to be bright 20? You know what? I mean, like, you want to, do you want us to project it through a tinfoil? Well, for that, we can do it for 15 So, yeah, so that's the problem. Is that everything is going to cost money, and kids are exponentially expensive, like they get more and more expensive the longer they're alive. That's tough. And healthcare is tough. People sometimes don't take their kids to the doctor because they can't afford it. People are rationing insulin because they can't afford it. Like, there's all kinds of stuff going on. So your question is, how am I going to get by? Is that right? And forget, get and almost forgetting, like, how do I save money and have extra and maybe try to succeed? But like, how am I going to live? That's everybody's question. So is that what you mean when you mean when you say I don't understand money? No, not really, but like, you know, you want to go understand

Arden Benner 31:08
I don't understand anything. So I couldn't even ask the questions, because I don't get it.

Scott Benner 31:12
Okay, here's one for you. Let's say that you put $2,000 Am I gonna have to add and subtract? I'm gonna do it for you, $200 a month in a 401 K, and let's like, be generous and say it makes 5% a year, which would be crazy if it did that. But okay, makes 5% a year. So I put in $200 a month into my 401 K and it makes 5% a year. How much would it make in the first year, first decade, and in 25 years? Sometimes chat GPT messes this stuff up, but let's take a look, see what it gives you. Puts out the formulas like it's doing something. So there's an interest rate, okay? And that interest compounds, which compound interest is something I have to admit, I understand about enough to say that I know how it's piling up, but to describe it would not be within my purview. So it looks like, right now, it's just explaining to me what it's doing. So here are the amounts you're good.

Arden Benner 32:23
This is not, this is completely like, off topic, but continue what you're talking about.

Scott Benner 32:28
After the first year, if you put $200 a month in, you might you'd approximately have $2,466 it says after 10 years, you'd have about $31,000 and after 25 years, you'd have approximately $119,000

Arden Benner 32:46
so okay, but then what that's 20 years later? So $119,000 is equivalent to, what $80,000

Scott Benner 32:52
you'll still be able to go to a movie,

Arden Benner 32:56
maybe one movie with popcorn.

Scott Benner 32:58
Oh, wait, yeah, with inflation, what is 119,000 worth in 25 years? By the way, anybody who's not using chat GP is he like this? Chat GPT like this. It really is valuable for stuff like this. It makes mistakes, but you just kind of have to run your eyes over

Arden Benner 33:17
it and hope for the best. But it's great for dating Chad. GTP, I'm

Scott Benner 33:21
saying to the point of the conversation to have $119,000 in accumulative savings 25 years from now. It says the approximate worth of it in today's dollars is $56,000 that's crazy. So you'll have to save $119,000 to have the buying power of $56,000 in 25 years.

Arden Benner 33:42
Yeah. So it's, yeah, there's no point. All right, I got it.

Scott Benner 33:45
You think what that teaches you is, don't save money? No,

Arden Benner 33:48
it just teaches me to, I don't know, jump off a bridge or something. Now, here's my question. Go ahead. This is what money and like all that makes me think of, like the 1% and like all that, whatever, how is now, this sounds kind of insane, but I'm actually kind of surprised that our world isn't like The Hunger Games, or like divergent or like those dystopian sort of things, because, like, I feel like at some point we're gonna all be like, I don't know. You know what I'm saying. Well, I want to make sure, are you looking up what the Hunger Games is right now? No,

Scott Benner 34:23
I'm what I'm asking is, is the poorest person in the United States is equivalent to the richest person where? So the point of it is, is that the poorest person here probably is living significantly better than most people on the planet?

Arden Benner 34:35
No, I understand that, yeah. But I'm just saying, like, I think it's interesting that our world isn't split up, like, I don't know, like, I feel like that's like, such a thing that could happen

Scott Benner 34:46
is that people would say, what's the point of this? Like, why am I trying so hard if I'm gonna be poor at the end, or if I'm gonna be poor the whole time? Like, that feeling,

Arden Benner 34:56
no, you didn't listen to a thing. I just said, Say it again. Well, do you. Know what the Hunger Games and Divergent series are?

Scott Benner 35:02
Yeah? There's like, all right, I got her, so it's that girl from the Okay? And they got different towns, right? They have different districts. And those people have different, like, jobs within the society,

Arden Benner 35:16
yeah? So like, district one is like luxury or something. District 12 is like coal mining. There's like, district eight is textiles, like that whole thing. But each district goes in, like, the number of, like, how much money they make, basically, okay. And then in divergent it's like they're split up into factions. So there's like, erudite Amity, Abnegation, candor, like all that. They kind of, like split the world up. And I think it's so interesting that our world isn't really split up like that, but like,

Scott Benner 35:45
what is it not just sort of differently

Arden Benner 35:48
it? I mean, it is, but it's not inhumane. I guess the way that

Scott Benner 35:54
we it depends on what group you're in. I guess how you feel about it. Well, yeah. I

Arden Benner 35:57
Well, yeah. But I hear, you know what? I

Scott Benner 35:59
mean, yeah, an example. It just says here, I'm

Arden Benner 36:02
just saying this because I'm saying, like, I feel like, as the years go on, money gets so, like, you either have it or you don't have it, and at some point isn't that gonna just, like, divide the world in half?

Scott Benner 36:14
Probably already has. It says here that a person making $14,000 a year, annually in the United States. So that's making $1,000 before taxes, and they're probably taxed at a fairly low rate, but that makes them wealthier than people living in places like Sub Saharan Africa and Southeast Asia, where incomes can actually be significantly lower than that, and poor people in the United States still often have, not always, of course, but often have basic amenities, some sort of healthcare, some sort of education, etc. And that's not true in other places. All right, so what's a poor college student like you supposed to do? You take any comfort from the fact that most people end up okay. Think they work it out.

Arden Benner 37:03
There's a difference between they end up okay, and they end up happy.

Scott Benner 37:06
You think happy is money?

Arden Benner 37:09
I mean, like, comfortable is money, right? I mean, there's a lot of people aren't comfortable. They're just, like, making it well,

Scott Benner 37:17
there are plenty of people who wake up, make money, give it away. It's gone by the end of the week and they start over again. There's some people who don't make it to the end of the week

Arden Benner 37:24
with the money that they have. Yeah, that's not comfortable. Are you what? Yeah, no,

Scott Benner 37:28
I'm saying, I don't think that's I think that definitely means not comfortable. But are you joking? Like, does it make you think about marrying somebody when you don't want to? No, I would never do that.

Arden Benner 37:39
I'm just saying, making jokes. I

Scott Benner 37:41
know I know I just didn't want, I didn't know if it, if it felt pressuring like that. Do you think people pick the thing they study at school based on how much money they're trying to make? I mean, some people, yeah, that's a shame. It's probably how we end up with people who don't like, like their job, what they're doing, knowing they're doing, care, just trying to keep their job. Well, chat,

Arden Benner 38:01
whatever you're using right now. Let me. Let me put it down, because it's like, helping, like, med students cheat through school. Oh,

Scott Benner 38:11
so you're telling me, five years from now, I'm gonna get a doctor who's like, let me just ask my phone real quick. Yeah, yeah. How do you know that's happening?

Arden Benner 38:18
Because I see videos of it online everywhere. Kids in like, lecture halls, like, supposed to be learning, like, biology and this and that, and they're just using chatgtp to do, like, do their quizzes and stuff.

Scott Benner 38:28
Do you think that's going to matter? Do you think it's gonna have a big impact? Yeah. I mean, I imagine it will, too. I'm just wondering what you

Arden Benner 38:37
think. Yeah, you know, I most of the world is just idiots. So yeah, I do think that. And then if idiots feel like they have the right to do something intelligent, like become a doctor,

Scott Benner 38:48
so you're saying, What if someone who does not have the capacity? I

Arden Benner 38:53
think that we live in a world where people think they can do anything now, and I don't like that. I don't like that. You want everybody to know their limits. Yeah, they I know my limits. Get me a lane like, Listen, I'm not. I'm not trying to go to school for finance to help you guys out. Because, look at me, I don't know. You get it. I don't know. I don't get it. Not my thing. So, so you would like people stay in

Scott Benner 39:20
their lane, yeah? But you think people have a feeling like I could get anything accomplished now because I can, I've help in my pocket. Oh, 100% Wow. Interesting. You're seeing that right now at school.

Arden Benner 39:32
I mean, I've been seeing it since I was, like, in high school, and of kids I went to high school with who are doing stuff, and I'm like, Oh, my God, that person would probably pull on a push door, like I can't believe that they're gonna slice someone open one day. Is that a thing you often say? Because that's hilarious. That's how I feel. Oh, okay, pull on a push door is just how I feel. They're just that type of person. Okay, let's

Scott Benner 39:58
go back. Do you. So you understand taxes now. No, but listen,

Arden Benner 40:04
it's a great conversation we had. What

Scott Benner 40:06
about like you understand about how you save for retirement? Or like through a 401, k, for example.

Arden Benner 40:10
No, I know that. I just, you know what I think I'm learning. I don't want to do all of this. Okay,

Scott Benner 40:15
so you would like to not be involved in these things. Yeah,

Arden Benner 40:20
I might need someone to take care of this, from anyone who enjoys money. You know, all those fun I don't believe

Scott Benner 40:25
most people enjoy talking about this stuff. I think it's just the people that do. I take care of the money here, and I don't enjoy it. Well, yeah, but you have a podcast. Some people go to school for like, finance and Oh, economic. Oh, I see people who, like, love, like talking about numbers and money, will probably enjoy it. Yeah,

Unknown Speaker 40:44
so let's let them do it. Is

Scott Benner 40:46
that a tinder question? Do you enjoy money, not making it? I mean paying the bills, like physically writing out checks and going online and sending payments? Do you see, do you understand?

Arden Benner 40:58
Like to ask, I just like to ask people about their health insurance, honestly?

Scott Benner 41:01
Do you ask them that? Yeah, of course, I do. Do you understand how like credit ratings work? Oh, no,

Arden Benner 41:08
let's not do that. Okay?

Scott Benner 41:11
Because if you have poor credit, it decreases your borrowing power. Yeah. And then, instead of paying 6% which would be a good rate for a car loan, as of today, you could end up paying much more where we have that whole thing is so confusing, I don't understand it at all. Know how much credit card rates are right now?

Arden Benner 41:28
Oh, I actually just learned about this. Go ahead.

Scott Benner 41:32
Doesn't mean I know. Let's go with I feel

Arden Benner 41:35
like it's like between like seven to 12%

Scott Benner 41:37
18 to 25% APR. Oh, damn, which is nuts, right? So if I bought a $2,000 item on a credit card and could only afford to pay $40 a month in payments on an account with a 25% APR. How

Arden Benner 42:14
long? Oh, my God, could you do this any slower would

Scott Benner 42:18
it take to pay off the 2000 I'm asleep. This is gonna flatten your brain, by the way. So it's not you go out and you're like, I need a bed and a dresser and this and that, and I spend two by the way, good luck in a bed and a dresser and a mattress and everything for $2,000 but let's just say

Arden Benner 42:37
that happens. Good luck. It's gonna be ugly too. Well that might be true and ugly now, so

Scott Benner 42:44
also this thing told me there's an error, because the monthly payment of $40 is too low to even cover the monthly interest charge. So if you paid $40 a month on $2,000 to 25% you would never pay it off. You'd have to pay at least 4167 so let's say I pay 50 a month. Pardon, credit cards are maybe the worst decision you could make. You'd rather not have something than buy it on credit like this. Trust me, it will and

Arden Benner 43:16
could honestly, really you're supposed to start building your credit score though.

Scott Benner 43:19
Yeah, so you borrow money and pay it back immediately, like, I wouldn't put anything on a credit card. I couldn't pay off at the end of

Arden Benner 43:27
the month. You have to have that. So then how am I supposed to?

Scott Benner 43:30
Yeah, well, you're gonna, you're screwed. I haven't. I'm an adult, but like, you know you're, you're and a lot of people still can't. I'm just lucky that, like, we have two incomes, and we can do that, you know what I mean. But there are plenty of people who do this, and it is crazy. With a monthly payment of $50 it would take approximately, do you want to guess in

Arden Benner 43:50
years or months? Because, no, because I don't know what we're saying right now,

Scott Benner 43:53
if you paid $50 a month to try to pay back a $2,000 purchase on a credit card that was at 25% interest you would pay for seven years and three months to pay off the $2,000 that's 87 months And already 87 times 50 is $4,350 on 25% interest, you're gonna pay back the 2000 once over plus 350 you're gonna pay more than double the amount that you that you and where do you find out what happens when you buy a house? How much do you think a house car? You

Arden Benner 44:35
see what I'm saying when I'm like, oh my god, like, what am I supposed to do with my life?

Scott Benner 44:39
Yes, but doesn't this just tell you that the way society works is that you jump into the pool, you get a job, you buy a house and a car on credit. You make your payments every month, you try not to get cancer and you die at the end. Yeah, but for a young girl like me, Dad, it kills you. What about a How much do you think a house cost? Let's just say a $200,000 house. I just say $200,000 mortgage.

Arden Benner 45:04
I think that's, I think that's way below the average house price.

Scott Benner 45:08
It very well, maybe. But I'm saying, what about a $200,000 mortgage? I would

Arden Benner 45:12
say the average house price is probably $600,000

Scott Benner 45:16
what if I know average home cost in America. Google says median prices are Wow. It gives it state by state, but 354 30, Arkansas, 250 so I'm low, even for Arkansas. No, no disrespect to Arkansas. So let's go. Oh,

Arden Benner 45:37
I'm in a little disrespect. I'll

Scott Benner 45:38
put a lot of people listen from Arkansas. They're lovely people. $400,000 I'm sorry, mortgage at and let's see what the average interest rate is, average

Arden Benner 45:48
where, even, honestly, where is Arkansas on a map? I'm going to be so honest. All right,

Scott Benner 45:52
it's down to the left of Texas Near as I can, or of Tennessee. I think you

Arden Benner 45:57
know what? That's unfair to them, because you know Texas, that whole area, like, when you're looking at a map, you're only really looking at Texas. All right, hold on. So I'm

Scott Benner 46:06
doing $400,000 mortgage at 7% and meanwhile, I'm gonna look at a US map. No, I'm looking at the map. Yeah, it's right. It's to the west of Tennessee, is it not? I don't know. My phone won't load. All right, let's see, did you Did we say Arkansas? Yeah, yeah, I got it right. Well, I cursed. I didn't mean to curse. I knew it. I knew where Arkansas Wait Are we not supposed to curse on here. You can curse if you want, but now Rob has to cut it out. Oh, I've done it a lot. Arkansas, yeah. Oh, interesting, yeah, that whole

Arden Benner 46:39
little area right there. I've never thought about before, how

Scott Benner 46:43
much do I have to put down on a $400,000 mortgage? I mean, I think it's 20% like, is that what they want? Generally, 20% if you bought a $400,000 house, they'd ask you to put about $80,000 down just to get the loan. So then you're going to be financing $320,000 Does

Arden Benner 47:10
anyone live in New Mexico? Yeah,

Scott Benner 47:14
who I there's people listening that live in New Mexico and Arizona. And have you ever

Arden Benner 47:19
actually met someone who lives in New Mexico. I've met people who live in Arizona, but what about New Mexico? No never met them. I've

Scott Benner 47:25
interviewed people from New Mexico. How do you know that's true? Because they'd say, I live in New Mexico. They say that they do All right, ready? So you have a $400,000 house. You want to buy it, you have to hand them $80,000 in cash. So this is back to your question about, are people going to be able to buy houses? So if you make $63,000 a year, if you make $63,000 a year and live on a shoestring budget that, like we discussed earlier, and are able to save $500 a month, then it will take you about 160 months to save $80,000 and that is 13 years. So yeah, yeah, I guess that isn't gonna work out. So if in 13 years, saving $500 a month, you could save up $80,000 then you could give that $80,000 to a bank to buy a $400,000 house, which 13 years from now will probably cost more like $3 million then the 80,000 won't be enough

Arden Benner 48:27
and feel like I'm listening to a car commercial. Yeah.

Scott Benner 48:31
Well, you asked if you could buy a house, the question so the answer is, no, no.

Arden Benner 48:35
I didn't ask. I said, I can't I

Scott Benner 48:37
would think then the way this is happening is that people, young

Arden Benner 48:40
people are either inheriting their parents homes. They're either getting

Scott Benner 48:44
homes from family members. Maybe parents are giving them money as down payments. Maybe people are are co signing on loans and helping. I don't know. I mean, listen, like I said, we made 20 and 20, which apparently now is like 40 and 40. I couldn't buy a house back then. So the way we were able to buy a house, I'm happy to share this with people, is that mom and I bought a condominium, right? So we found a condo that was basically about the same amount of money every month as our apartment. We bought that thing. I think it was worth, I don't remember how much, not a lot. And somehow there was a was like a housing boom in the first two years that we lived there, and the value of the condo went up so much that we sold it took the money that we made from the sale and put it down on the house like so we couldn't afford a down payment. We just got lucky. We buy a condo. The value of the condo went way up. We sold the condo, took the extra money from the sale, put it down on a house, started over again. That house was a box, like it was terrible house, and I mean literally terrible, but it had a little bit of land. And we thought, okay, so now we have some land. And one day, maybe we can just build another house there. And that is what we ended up doing. But it took us the better part of 15 years to do that. Took a long time. I don't know, 15 years? Yeah, you don't, but you do gotta live, no. So what are you saying? You don't. You'd like to skip all that stuff in the beginning.

Arden Benner 50:20
Someone just make me famous. Like, honestly,

Scott Benner 50:24
but even that, like, fame nowadays, I

Arden Benner 50:26
know you have to be, like, a list celebrities, yeah, yeah.

Scott Benner 50:30
Fame's not the same as it used to be. I have a measure of fame, and that's meaningful. You don't get out of here. I do, but like, so some, some other people do too. Like, they just, they have, like, low level, like, you know, bubble fame, like, inside of it, to ruin the world. It has, yeah, do you know who said this would happen? Oprah Howard Stern,

Arden Benner 50:53
I almost got it honestly.

Scott Benner 50:55
Yep, I remember him saying, everybody can't be famous. I had to work really hard to be

Arden Benner 51:00
this famous. It's a terrible, terrible idea. Yeah,

Scott Benner 51:03
everyone has some measure of fame. Now, not everybody, but a lot of people

Arden Benner 51:07
do. Some people have to be above other people. It's just how it has to go. Why does it have to be like that? It just does. Has to be like that. Unless, Listen, I'm not one of the people who's above other people, and I wish I was, but I'm not, and I accept it, and I see how it is. And you know, even

Scott Benner 51:23
those people, it doesn't last for like, here, I'll name some people for you. Do you know who Hillary Swank is? I know her name, yeah. But that's it. She was incredibly famous at one point. Not, not anymore, even fame. The Fame is very fleeting. There are people right now that all of you are listening to and you flip by on your Instagram, or you're talking and ticking or whatever, and you go, I know that person. Oh my god. They're so famous. And six months from now, you won't see them anymore. They're famous so fleeting. It goes so quickly.

Arden Benner 51:53
I can't relate to that, because my whole like, Tiktok is like edits of like, terrible television shows.

Scott Benner 52:00
So I just like, I don't even know terrible television show edits. I

Arden Benner 52:04
don't actually know what's going on in the world. I just know what was going on in the world, like 10 years ago when the TV show came out.

Scott Benner 52:10
Gotcha All right? Well, you understand money any better now? No, you understand how you're gonna make your way in the world today with everything you've got, taking a break from all your worries sure would help a lot. This is the opening theme song to cheers. Wouldn't you like to get away? Do you know this one at all? I wish it would stop. Okay, you don't know the song at all. Gotcha, you're gonna leave school in a couple of years. Probably have to go to grad school, right? You can have all that cost of going to school. No, not grad school. No, oh, you're gonna go to, you think you might go to law trying to go to law school? Yeah. Okay, so you're gonna get your your undergrad, then

Arden Benner 52:51
maybe go to how long is grad school? Do you know how long grad school is? Can be

Scott Benner 52:55
one to two years, and sometimes longer, depending on what you're going for, because law school is three to four How long is law school? I just said, Hold on a second. I'm doing so no, I'm,

Arden Benner 53:07
you know, I'm about the same. You know, you can trust me and chat you to trust

Scott Benner 53:11
you. I'm building to an idea. What does it cost? All right,

Arden Benner 53:17
I'll just sit here and let it happen. I guess

Scott Benner 53:20
so a public law school with in state tuition could cost you between 20 and $40,000 a year. A public law school out of state could cost 30 to 60,000 a year, and a private law school is going to cost between 40 and $70,000 a year. So you're going to pay somewhere between 90,200 $1,000 to go to law school, then you're going to get out of law school. Owe somebody that money, and if you're lucky, get a job, but probably not say that. It'll probably take a year to get a job, at least get it at some point, but you have to pay the loan while you're waiting for the job. You don't know about this. Oh, we're gonna Arby's or something. I don't we've got the meats. I know what you're saying. You didn't have to do that. Why not? I'm trying to get a job. I'm trying to get a job getting an Arby's commercial gig. You think I could be the voice of the Arby's people?

Arden Benner 54:09
No, my God, I would turn the television off anyway.

Scott Benner 54:13
So now you're gonna get out right and you're gonna but now listen, what's happening right now is that

Arden Benner 54:18
just start a small business where I, like organize my fridge. It's what people do. Yes, we've also like a thing now, like, you can just do that. Wait,

Scott Benner 54:27
you're gonna start a small business to organize your refrigerator. Yeah, you see

Arden Benner 54:30
those women online who just wear, like Pilates clothes and organize food in their fridge and clean their countertops and put like little beads for like laundry into like jars, and they make money. Wait.

Scott Benner 54:42
They go to like, other people's homes and do this. No, they do it in their own home. They

Arden Benner 54:47
take a video of it, they put it online, and they make money. They don't make that much money. And in the background, they're like, Okay, guys, so today we're going to I'm like, oh my god, shut up.

Scott Benner 54:57
I happen to know how much money some people. Will make for doing influencer stuff, and it is a shockingly low amount of money. I know what they still make in I think it's ridiculous. I don't think it's enough to pay for law school, is what I'm saying. Now. I'm just trying to also, if you think about this, you're gonna have this undergrad degree when, when you're about, like, what? 2220

Arden Benner 55:18
Oh, don't. Don't tell people that I well, they that I've ruined my life. So

Scott Benner 55:22
you're gonna be 22 or 23 you're gonna still have three years of school. You're not gonna be like, you're gonna be like 27 when you take the bar. Yeah, I

Arden Benner 55:30
know I've thought about it. I don't want to talk about it to be fair, from 27 is it that much different from being 26 No, it's not. No, I

Scott Benner 55:37
don't think that's not what I was gonna say. What I was gonna say is, what if, at the same time you're like, spidey senses. Tell you you should make a baby. That happens to ladies?

Arden Benner 55:45
I don't think I'm gonna make a baby. Yeah, I don't know what happened. So many problems. It's gonna be like a mutant. Well, what'll

Scott Benner 55:51
be wrong with it?

Arden Benner 55:52
I don't know. There's just a lot wrong with

Scott Benner 55:54
me. You won't understand money. For certain, it'll be like, What is this? And

Arden Benner 55:58
everyone's got, like, depression and anxiety nowadays, so just whatever, throw my problems at someone else's problems. Oh, god, you're

Scott Benner 56:04
afraid that if it's gonna come out, you're gonna meet a boy with depression and anxiety, and then you're gonna have type one diabetes and like, Hashimotos. I don't have Hashimoto I'm sorry, hypothyroidism. And then that all gets mixed together, and then the baby comes out, and it's got all those problems. Yeah,

Arden Benner 56:20
it's like, Jack Jack from The Incredibles, but it's not cool.

Scott Benner 56:24
It's the other version of Jack Jack. Also Jack Jack's not really the cool version, isn't he, like a monster.

Arden Benner 56:29
He can, like, turn into, like, the devil and all this. But, you know, he's a superhero. My kids just gonna, like, have a lot of medical issues.

Scott Benner 56:37
I think they're gonna make another Incredibles movie. I mean, they should. It's

Arden Benner 56:41
the best Pixar movie. Is it? What's the most overrated Pixar movie? I have my answer.

Scott Benner 56:47
Wally, no, okay,

Arden Benner 56:50
everyone's gonna hate my answer.

Scott Benner 56:52
Hold on. Oh, you don't like it. No, I

Arden Benner 56:54
don't dislike it. It's just overplayed.

Scott Benner 56:58
Finding Nemo No, ratatouille. Ratatouille. Ratatouille is good, solid.

Arden Benner 57:05
It's a good movie, and it's been ruined for me.

Scott Benner 57:08
They pushed a down your throat too much.

Unknown Speaker 57:10
Yeah,

Scott Benner 57:11
they do. I will never forget watching Bugs Life first run in a movie theater and sitting there and thinking, Oh, my god, is this what animation looks like now, this is amazing. That was that long ago. What do you think of that? I don't have a lot to think about on that one. What's your favorite Pixar movie? It just told you the incredible. It's not inside out. I

Arden Benner 57:33
do like inside out. Wait, actually, let me look at the Pixar movies real quick. I'll

Scott Benner 57:37
tell you what's this. Is how we're going to end this episode by ranking the Pixar movies list all Pixar

Arden Benner 57:43
films. My God, can you stop with that thing over there? Just google them yourself. Hey,

Scott Benner 57:49
I mean, I could just Google Pixar films. I'm gonna go through them and I'll tell you how I feel about them. Okay, I have them in order. I don't have them in that order. Go ahead. All right, first,

Arden Benner 57:59
let's talk about, we said The Incredibles. That's the best picture. If y'all say that just right away, cars I've never cared for the cars movies you don't like the cars, I've just never cared for them. No, okay. Oh, another great movie, right? I would say right behind the Incredibles, Monsters, Inc. Monsters Inc, is a great movie, all right,

Scott Benner 58:24
no one talked that way about it. Um,

Arden Benner 58:27
the Toy Story movies, you know, I would say if there was like, a list, they'd be right in like, the middle, which I guess is a low for some people, but it's like, Ah, God, was there, like, five of them. Now, like,

Scott Benner 58:37
I've had enough, there's three. Hasn't been there's not there's four, wait, there's Oh, there's four. My God, there is Toy Story four. Have I seen Toy Story four?

Arden Benner 58:45
Yeah, I had, like, the shits really bad that day we were at the movie theater. How you remember Toy Story four? I do. It was in the summer, and I just remember like, oh, I had my period, and I had the shits, and I also drank a slushie, and everything was going terribly, and I missed, like, kind of the end of the movie. And I came back and Little Bo Peep was like, kissing Woody. And then we went home, and I, all I could think was, like, what just happened?

Scott Benner 59:12
Little Bo Peep was kissing Woody, huh? All right. Oh, what? What else you got there? Um,

Arden Benner 59:17
Finding Nemo. Great movie. Probably more so the top of the list. Oh, I don't know what I'm clicking on over here. Oh,

Scott Benner 59:26
can I go through them in like, year order?

Arden Benner 59:30
Yeah, you know what I'll give you like a thumbs up, thumbs down, neutral.

Scott Benner 59:33
Toy Story, neutral. 1995 Bugs Life, 1998 neutral, I like bugs, life, Toy Story, 299 I'm neutral about all the toy stories, Monsters, Inc, 2000 Oh, one thumbs up. Finding Nemo thumbs up. Incredibles, double thumbs up. Cars, thumbs down. Ratatouille, neutral. OmniPod Wally. Wally

Arden Benner 1:00:02
is also overplayed. So I'll just do like, but it's a, it's a great movie, but overplay. So I'll do a neutral

Scott Benner 1:00:07
for that one. Up. Up is great. Thumbs up. People met Sanj in the first episode of this. With you for a moment. She loves. She on the phone in it. She is on the phone in it. Yeah. My god, she's she's like, she's just, like, she's like, just, she's like, she's like, Yo all I heard you say was, No, you shouldn't plug your Instagram because I couldn't hear her. And then then she's like, I just wanted to let you know that I just messaged you a tick tock. You should check out my comment because you're gonna love it. And that's it. And she's gone up is really good. But Sanj cries

Arden Benner 1:00:40
a lot. Sanj cries every single time she watches up every single time. Toy Story,

Scott Benner 1:00:44
three neutral cars, two thumbs down, brave. Okay, you know what

Arden Benner 1:00:52
very controversial, Merida is one of my favorite princesses. Okay, so, but I really don't love the movie, but I love when she's like, I'll be shitting for my own hand. I'm like, yeah, yeah, Merida. And then she like, turns her mom into a bear. And I'm like, well, why'd you do that? But so that's neutral for

Scott Benner 1:01:15
me. Monsters University, thumbs up. Inside Out, thumbs up. The Good Dinosaur I've never seen that. Yeah, I have to tell you, I took hold of that I remember, and it wasn't a favorite for mine. Finding Dory. Thumbs up. I do like Finding Dory cars three,

Speaker 1 1:01:34
but I just, I don't care for these cars, movies, cocaine.

Scott Benner 1:01:41
I don't like Coco. Okay, everyone likes Coco, and I don't like Coco. The art and it's awesome. It looks awesome. I know I just don't like it Incredibles two better or worse than Incredibles,

Arden Benner 1:01:54
one worse, but not bad at all. Still, a thumbs up. Then Toy Story four is next. My experience for toy. Story four was a thumbs down, but I give the movie a

Scott Benner 1:02:03
neutral. Okay. Now here, this is going to be interesting. Movie, not good, but Tom Holland said it on, oh, onward. I didn't like that movie. Yeah, it wasn't good. Uh, soul, remember soul? Oh, I'd

Arden Benner 1:02:19
love soul. Thumbs up for soul. Here's

Scott Benner 1:02:20
what I don't know about soul. I really loved it too, but it came out during covid, right? So we were all just like, please. Something happened. And then Pixar was like, Here, we'll give you a brand new movie you can watch in your home. And we were like, thank I

Arden Benner 1:02:33
think, I think soul has one of the best quotes from a Pixar movie. Really find it. Okay, yeah, I'll find it. Keep going. Okay. Uh,

Scott Benner 1:02:40
Luca. I didn't like Luca. Is Luca, the one where the boy is the fish and everybody's Italian, yeah, I love that.

Arden Benner 1:02:49
But also, I watched Luca the day after we put Indy down. So I, you know, maybe that wasn't a good idea. I

Scott Benner 1:02:54
really enjoyed Luca. Try watching it again. We're gonna get a lot of smoke for this next one. Have you? Have you seen turning red? Oh, I've

Arden Benner 1:03:03
seen that. Oh, I hated that. You didn't like it. No, she has diabetes. I don't care. It was terrible.

Scott Benner 1:03:09
I didn't see. Oh, wait, I may be. I've seen bits and pieces of it. So something about hockey, right? Like the girl plays ice hockey, that's,

Arden Benner 1:03:15
that's an inside out. She plays hockey.

Scott Benner 1:03:18
Oh, then turning red. I've

Arden Benner 1:03:19
never seen, guess you have, I've seen it. God, you know what? It was so bad. I forget what it's about. Okay,

Scott Benner 1:03:25
I do love the little short where they eat the dumplings. That's good. I don't know what that's called either light year. I've never seen Have you seen light year? I don't know what that is. It's a Buzz Lightyear film. Oh, with Chris Evans.

Arden Benner 1:03:38
No, never seen it. I

Scott Benner 1:03:39
haven't seen that. I realized um, recently that Chris Evans is much shorter than I thought he was. He's beautiful, elemental, Elementals. Oh, terrible, is it? I've never seen it, yeah. And then there's one called Elio that's not out yet. I don't

Arden Benner 1:03:59
know. Okay, okay, ready? This? This is the um, yeah, go ahead. This is the quote from um, from Seoul. So he's talking outside to like an older woman. I think that she might like work at the place that he's, I don't know something like that. And she says, I heard this story about a fish. He swims up to this older fish and says, I'm trying to find this thing they call the ocean. The ocean says the older fish, that's what you're in right now. This says the younger fish. This is water, but I want is the ocean. But the way that she says it in the movie, and like with the conversation they're having, is probably, I want to say one of the best Pixar scenes ever. You probably just

Scott Benner 1:04:37
freaked out everybody who's listening, who really pays attention to the podcast, because I very frequently try to get them to read a college commencement speech called, this is water. It starts with that parable. Was it actually? Yeah, oh, I

Arden Benner 1:04:54
didn't know that. Yeah. That's like my favorite Pixar scene. Yeah, I was, I remember I was watching, I put on soul. Last year at school, when I was I just wanted to die, honestly, there never go to SCAD. But I was sitting in my bed thinking about how much better life could be, and I put so long because I was like, this is, like, one of those sad but uplifting, but like, whatever movies I put it on. I'm sitting in bed, I'm writing something, and she said that, and I just started crying. And I was like, OmniPod, get me out of here.

Scott Benner 1:05:23
I have you never seen me give a little book to people as a graduation gift. Give the book to everyone but me, yes, because I can give it to you when you

Arden Benner 1:05:30
graduated from college, yeah, but now I've set that back 17 years, so Well, I'm gonna

Scott Benner 1:05:34
give it to you when you get your undergrad. But it's called, this is water. It starts with that parable. Oh, wow, that time my frontal lobe will be developed too. Yeah, you're gonna understand interest and compound interest and everything. Yeah, all right, this was good. I love you. I'm glad we got to see each other for an hour. Okay, I'm

Arden Benner 1:05:50
not going anywhere, and we could still talk after this. Yeah, I

Scott Benner 1:05:52
know, but I've got other things going. I've got texts here from clients, and I gotta, I gotta work, I gotta be I got a life here.

Arden Benner 1:05:59
Oh, okay, I guess I'll just go. Then

Scott Benner 1:06:03
the hell. Oh, that's just what it is. Plus we, I mean, how much of this do you want people to listen to you talking about? I'm not saying that they have to listen to this. No, I'm saying it's an hour and eight minutes long. We gotta, like, it's time to end. Yeah, I

Arden Benner 1:06:14
know I thought we were done. Are we not done? We've been recording the whole time? No, yeah. But I thought, like, oh, it was over. Now just say talking.

Scott Benner 1:06:20
No, no, we're done. But I do want to say this real quickly before I stop the recording, so we're not done. Oh, my God, right. The short, some of the short movies by Pixar are excellent. And the one that sticks out my head as just enjoying it the most, Jerry's game for the birds. And there's one is

Arden Benner 1:06:39
Jerry's game, the little chess match. Yes,

Scott Benner 1:06:41
I really, let me look I also really like one man one man band is

Arden Benner 1:06:46
that? I That's like they, they don't speak in that one, right? They don't speak in a lot of them.

Scott Benner 1:06:56
Like when they took the Luxo Jr out of the beginning of the Pixar movies, I was disappointed, like, the lamp that comes bouncing in, I

Unknown Speaker 1:07:03
take care.

Scott Benner 1:07:05
Yeah, I don't. I didn't like, oh,

Arden Benner 1:07:07
I have, no, I don't have any pitch. So that was terrible.

Scott Benner 1:07:10
And BA, oh, I think was the one where they make, Oh, I like lava, lava, yeah, where the island, like falls in love, right?

Arden Benner 1:07:18
Oh, the one man band, yeah, I like that one.

Scott Benner 1:07:22
Did you say Jerry's game? Yeah, yeah, I like that one. There's this one short, but I can never remember the name of it. I

Arden Benner 1:07:30
really don't know what it's called. I don't know if it was Pixar, but it's about, like, this man and this woman, and they're like, sitting on a bench, okay? And like, I remember, like, he has a briefcase or something, and his papers fly everywhere. Okay? I saw it when I was, like, nine years old. I can I'll never be able to, like, I don't remember what it was. It's

Scott Benner 1:07:53
called Paperman. Paperman, it was released in 2012 and premiered before the movie wreck. It Ralph. Oh, maybe it did. Yes, it was paper man, yeah, I've never, I don't know if I know it. How did you chat? GPT, oh, my god. How

Arden Benner 1:08:10
did you find that

Scott Benner 1:08:11
I chat GPT, the following man and woman on bench, papers fly Pixar. Paper man was released in 2012 and premiered

Arden Benner 1:08:20
before meeting the girl of his dreams on a commuter train. Office worker uses a fleet of paper airplanes to get her attention after spying her again in a skyscraper window.

Scott Benner 1:08:29
Have I ever seen that one? I don't think I've seen I don't know,

Arden Benner 1:08:32
but I was like, nine, and I was like, Oh my God, that's adorable. You

Scott Benner 1:08:36
like that one? Well, you can watch it on the on the YouTube if you want Disney plus YouTube. All right, I don't know if you can YouTube it or if you can YouTube people's reviews of it. Why would I want to do that in what world I know? Yeah, I'm gonna have to, like, I'll go to Disney plus. I'm gonna watch it today. That's what I'm gonna do when I'm all done. All right, say goodbye. Okay, goodbye.

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#1320 Good Puddin'

Scott Benner

Barb, diagnosed with type 1 diabetes at 44, shares her family's extensive history of autoimmune diseases.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, welcome back to another episode of The juicebox podcast.

Look at this. Barb is 64 she was diagnosed at 44 that's 20 years since she was diagnosed. She also has OmniPods. Has type one. Interesting. He was diagnosed and he was 10. Sorry, I just read this to you. I don't know if you realize it or not. She's with she's a twin. Look at that. It's interesting. Celiac and hypothyroidism the family, other autoimmune stuff runs rampant through her family history. Well, I guess we're gonna find out all about it now, aren't we? Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40% at cozy earth.com when you place your first order for AG, one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink. AG, one.com/juice box. Of course, if you have type one, or your child has type one, and you're a US resident completing the survey AT T 1d, exchange.org/juice box would be greatly appreciated. This show is sponsored today by the glucagon that my daughter carries. G vo hypo pen. Find out more at gvoke, glucagon.com. Forward slash juice box. US med is sponsoring this episode of The juicebox podcast, and we've been getting our diabetes supplies from us med for years. You can as well. Usmed.com/juice box, or call 888-721-1514, use the link or the number, get your free benefits. Check and get started today with us. Med this episode of The juicebox podcast is sponsored by Medtronic diabetes, and later in this episode, we're going to be speaking with Heather, who will talk about the importance of education and understanding the impacts of hyperglycemia. Medtronic diabetes.com/hyper diabetes.com/hyper.

Unknown Speaker 2:24
Hi. My name is Barb.

Scott Benner 2:26
Barb. How are you?

Barb 2:27
I'm well, thanks. Good morning.

Scott Benner 2:29
Good morning. And you're an audio engineer. Is that correct? You're

Barb 2:35
not quite remember, fake it till you make it. Tech person here, yeah,

Scott Benner 2:40
you're doing you're doing well now where you sound terrific. So let's see what we want to know. How old are you? How old were you when you were diagnosed? All that stuff.

Barb 2:50
I'm 64 years old. I was 44 when I was diagnosed. So 20 years you have to tell me if you want the story, because it's that will take a while in and of itself. I have a two boys. One is type one. I'm one of 12 kids, large, large, extended family. Wow.

Scott Benner 3:13
How many kids do you have?

Barb 3:16
I have two. They're now 27 and 25 and the 27 year old was diagnosed with type one when he was 10. When he was

Scott Benner 3:25
10. Are there other autoimmunities in your family? Did your husband have anything or on his side or

Barb 3:30
Well, Scott, my whole story is around the fact that I'm one of 12 kids. I'm a twin, right in the middle of the pack. It's it's kind of fun and games. When I go to the doctor and they ask, what, tell us your family history, and I say, how many days do you have lots of autoimmune issues within my family? I'm the only sibling with type one, but we have a niece with celiacs. We have several hypothyroidisms. We have showjourns. We have what else, an aunt with lupus, so it's been kind of somewhat rampant, and Barbie makes your Irish Catholic close German, Catholic German. Okay, all right. You know, when I was small, Scott and my older brothers and sisters friends would make that comment. You know, Catholic, right? I had no idea what they were talking about. And now I do,

Scott Benner 4:27
yeah, you didn't know that they thought your parents were building an army for the Lord.

Barb 4:34
Exactly. I

Scott Benner 4:35
don't even know. I don't even know if it's that sinister. I think, I think the Catholic Church is just like, make more babies. We need people donating. So, hey,

Barb 4:43
yeah, that's, that's another podcast, T, 1d, in the Catholic Church. So my mother was type one. She was diagnosed at exactly the same age I was. Well, we think 44 she was one of nine children, and on her side. The family, there are at least 14 known type one diagnosis. Geez, really, really.

Scott Benner 5:07
And she said to herself, you know what I should do? I should make 12 babies.

Barb 5:11
You know, Scott, I don't.

Scott Benner 5:14
They didn't see it that way, did they? No, no, I

Barb 5:17
don't. I don't know that she knew. Because, you know, that's part of one of my messages to the world today is talk within your families about your type one diagnosis. You know, I was figured out that I was 12 when my mom was diagnosed. I don't remember her diagnosis. I put a call out to my living siblings to say, who remembers mom's diagnosis? Nobody. Nobody remembers how it happened. We think she was pregnant, or soon to be pregnant with her last child at 44 and she spent, you know, the rest of her life taking one dose of insulin a day, testing with urine strips the entire time. She died in 1998 At what age she died at age 69 pancreatic cancer. Okay,

Scott Benner 6:11
so unless you can get type one diabetes from a intercourse injury, I don't know how to guess what happened to your mom, but that seems most likely to me, that lady was probably having sex or cooking. You know what? I mean,

Barb 6:25
exactly, exactly, a lot of cooking. Oh,

Scott Benner 6:29
my God, there's so many kids, but that's really your it's a great message, honestly, because even modern day, the times I say like, oh, like, some I'll say, is it in your family? And they'll go, No, my cousin has it. I'm like, is that not in your family? Like, what are we talking about? Like, that's, that's in your family. But people still don't think about it that way all the time. It's interesting, right?

Barb 6:51
Yeah, and I wasn't diagnosed till after she passed, so I never, ever had a conversation with her about it, yeah, unfortunately, right, you

Scott Benner 7:01
know, but that's part of what, how she did it, right? Like, she went to a doctor and somebody said to her, this is what happens. You take this shot now, and she's like, just show me how to do it, because I got to get back to make him, you know, like, I'm busy and so, like, and it was not, never even spoken about. So you went back to your siblings, by the way. You said, living siblings. How many of them aren't

Barb 7:20
a brother and a sister have passed away. My brother passed away first of undiagnosed source of kidney disease at the age of what was Jim, 6263 and my younger sister passed away in 21 of stomach cancer, oh my gosh, yeah, it's not a, it's not a pretty picture, genetically in our family. But so we, we, there's 10, there's only 10 left. Yeah,

Scott Benner 7:52
you guys can only, you guys can only play basketball against each other now,

Barb 7:55
oh my gosh, yes. I

Scott Benner 7:57
do want to hear a little more about that remembrance you have of realizing, like we grew up with mom who had diabetes, and it was never spoken about.

Barb 8:04
All I remember, and my childhood memories are fairly scant as it is, but all I remember is we lived on a small dairy farm, kind of in the well, small dairy farm, and she would go out into a little anti way back door area to take her shot every day. I mean, when I think about what she did and didn't do, and she, you know, she, she had a ringer washer so she would, you know, on laundry days. And I learned this because I now have her medical notes, but only as far back. It wasn't to diagnosis, but the since, like 79 I think I have, but on her notes, it will say, you know, took 31 units of humologue. First. It was NPH, then Humalog, but only 29 on laundry days. You know, fascinating, right?

Scott Benner 9:02
Figure that out. Yeah, I get lower on laundry days, so I'll take less insulin. Yeah,

Barb 9:07
yeah, yeah, long periods of time between when she would see the doctor, between pregnancies, of course, you know, and she was done being pregnant when she had the diabetes. But, you know, I read some notes. You know, it was three years since she had been into the doctor. So, you know, she was self managing and living unbelievably, I remember a couple episodes of low blood sugar. It was never a thing, you know, nothing to get too excited about. Go take mom some juice, or it was very when I think back, you know, I'd give anything to just have a conversation with her of and to empathize. Boy, that must have really sucked. Yeah,

Scott Benner 9:51
she's in another level of alone because all those people around you, but you're not sharing it with them. The medical community is not real valuable at that point about it. This episode is sponsored by Medtronic diabetes. Learn more about hyperglycemia at Medtronic diabetes.com/hyper

Speaker 1 10:09
Well, Hi, I'm Heather lackey. I am a wife and mom. I have two children that are seniors in high school, and I've had type one diabetes for 34 years. And I'm a dietitian and a diabetes educator. You know, I'm the Director of Global Medical Education. I lead a team of clinicians that are developing content.

Scott Benner 10:31
How do you feel when your blood sugar's high? Irritable,

Speaker 1 10:34
thirsty, hungry.

Scott Benner 10:37
What do you enjoy most about your job? See

Speaker 1 10:40
education working. See people thriving. That's kind of the fuel that feeds, you know, my fire.

Scott Benner 10:48
What would you like to see community members talk about more hyperglycemia

Speaker 1 10:51
is the critical thing, right? That leads to short term and long term complications. Hyperglycemia is the greatest unmet need in the treatment of diabetes currently, and I think that that's where technology can help if

Scott Benner 11:07
you're having trouble with hyperglycemia and would like to talk to other people in the diabetes community. Check out the Medtronic champions hashtag, or go to Medtronic diabetes.com/hyper if you take insulin or sofony ureas, you are at risk for your blood sugar going too low. You need a safety net when it matters most, be ready with G VO, kypo pen. My daughter carries G vo kypo Pen everywhere she goes, because it's a ready to use rescue pen for treating very low blood sugar in people with diabetes ages two and above that, I trust low blood sugar. Emergencies can happen unexpectedly and they demand quick action. Luckily, jivo kypopen can be administered in two simple steps, even by yourself in certain situations. Show those around you where you store jivo kypo pen and how to use it. They need to know how to use GVO kypopen before an emergency situation happens. Learn more about why GEVO kypo Pen is in Arden's diabetes toolkit at gvoke, glucagon.com/juicebox, gvoke shouldn't be used if you have a tumor in the gland on the top of your kidneys called a pheochromocytoma, or if you have a tumor in your pancreas called an insulinoma, visit gvoke, glucagon.com/risk, for safety information. That's a lot to take on by yourself. But I mean, honestly, it sounds like she was, I mean, it sounds like she was more than capable of doing that, because, I mean, Jesus, like she was doing everything except, I mean, I don't know, I was going to say milking the cows, but she might have been doing that too, right?

Barb 12:43
She did some milking of the cows, bailed hay. She worked at a supper club on the weekends. She was, we call her small but mighty, you know, she was a force. She

Scott Benner 12:54
worked at a supper club on the weekends, like cooking or serving or something.

Barb 12:57
Server loved it, yeah? Well, we, we think she loved it because it, you know, got her out of the house. She

Scott Benner 13:03
loved it because your dad wasn't there with his pants off. That's why she was like, I need a break. I'd rather bring strangers food.

Barb 13:17
All right, I'm sorry and so but part of the challenge of kind of weaving together family history is the long span between the oldest and the youngest, and the fact that, you know, my oldest sister was a you'll love this was a nun for a while, ended up leaving before she took her final vows, but so she was out for A couple years of high school at a nunnery. And, you know, the older siblings as they left, everybody left home after high school, you know, there was no hanging around. There was no space. I would imagine somebody needed that bed. Yeah, so we all have different memories of what home was like and what, to be honest, we all grew up very independent, you know, we, we were all into kind of our own self care, and kind of still are. I mean, we're kind of, so

Scott Benner 14:10
it's a function of having that many kids, right? You just can't, like, you can't take care of all them. You can't make sure every one of them's doing, you know, exactly. Well, it's almost like, look, you're alive and you're competent. You got to get out of here. Like, I need the space I need, the time I need. I have two kids, and I feel overwhelmed by making sure they're okay. It's so I don't I get that I really do, like, it makes sense, did it feel like you were ignored? Or is that just how it was?

Barb 14:36
You know, it was, it was a matter of reality. I think that, you know, I always joke with friends that we just, we don't have a Hallmark card family, you know, I go look, you know, I'd look at Father's Day cards. Well, no, he didn't really teach me to ride a bike. Or, you know, I didn't have that kind of personal relationship with my parents. What? Is it bad? I don't, you know, it's just what it was. It was, what it was. We were, you know, we grew up to be very independent. We're amazed that we all turned out fairly okay. You know, all went to, you know, pretty much have all been to some type of post secondary, myself on down. Everybody went to college. I mean, it's pretty remarkable, advanced degrees, you know, the whole nine yards, so they did something, right? No, no,

Scott Benner 15:29
yeah, I'm not, it's funny. I hope that doesn't sound like this. I'm not saying anything's wrong with it. I'm just, it's, I'm interested in the human part of it, beyond that, like, obviously, they did the things they were supposed to do. And beyond, if you guys all went to school and, you know, etc, took, you know, know how to take care of yourselves. But I'm saying like, on a personal human, like little girl inside of you level, was it lonely, or was there no ability to be lonely because of the people? But there's a difference. Absolutely

Barb 15:54
it was lonely, absolutely okay,

Scott Benner 15:58
because you don't have contact and time with your parents, really, right? Yeah, right. So which one of your like when I say to you, oh, they cared more about there's a name that pops in your head, right? Well, here's

Barb 16:12
the deal. I was a twin. Right in the middle of the 12 there were six boys and six girls. Dad's joke was six of one half a dozen of the other. And so the twins got a lot of attention, right? Because we were an anomaly, kind of unusual. They take us places, right? Because we were the twins. I think at different times, we all had some shining moments. I, you know, I see these great photos. The three oldest were, were girls, my three oldest sisters, moms sewed clothes for all of them, and they're dolls, and they just look adorable. And then two boys showed up, and, you know, again, not as

Scott Benner 16:51
much fun with the clothes.

Barb 16:55
And then the, you know, two more of us showed up. So I think it, I don't think of any one of us as as really, but being twins, I think just because we were different, right? Like we got to hold the Merry Christmas and the family photo at the front of the gang, which I'm sure you're going to want to

Scott Benner 17:14
see. But you, you were the FA you, you guys were famous for being twins in the family, basically,

Barb 17:18
right? Yeah, right. I think we got a little more attention because of that, nothing we did.

Scott Benner 17:24
Who's a better story than that's number seven? Yeah?

Barb 17:29
Well, and you'll love this, because at my when you say number seven at my dad's funeral, we all wore numbers, I bet, yeah, simply because, you know, again, many of us had moved out of town, and so people knew which one we were.

Scott Benner 17:44
Do you have closer relationships with siblings that are closer age to you, and then the people on the ends feel like they're not as related?

Barb 17:54
There is some of that. What I found personally is because I got married older and had kids. As an older parent, I have somewhat more in common with some of my younger siblings who have kids closer to the age of my kids. Sure, you know, as you know, as a particularly as a stay at home dad, you kind of gel with those who have kids the same age as yours. So there's some of that. And so it's changed through the years, yeah, but there always seemed to be somebody, you know, if you needed something, you could go down the line and decide who you wanted to talk to that day. So

Scott Benner 18:32
Barb, my wife and I just had this experience the other day we were out. What were you doing? I think we were buying, like, hanging plants for outside. I don't know how you guys order your diabetes supplies, like CGMS, pumps and testing equipment, but at our house, we use us Med, and I'm gonna walk you through the entire process right now. I'm looking at the email from us med. It says it's time to refill your prescription, dear Arden, please click the button below to place your next order, then you click the button that was it. Two days later, I got this email, thank you for your order from us. Med. We wanted to let you know that your order, and it gives you an order number was shipped via UPS ground. You can track your package at any time using the link below, and then there was a link, and then it showed up at our house. Now I'm going to walk you through the entire chain of events. On the 29th which was the Saturday I clicked on the email on that Monday, the first, I got an email that said the order had been sent. Four days later. On the fifth, the package arrived. If you can do it easier than that. You go get it. But if you can't us. Med.com/juice, box, or call 888-721-1514, get started today with us. Med, get your diabetes supplies the same way we do. And we bumped into this woman who we remember because. Our kid played baseball with coal and, like, as children, not not in, like, college or something, as children. And we had a nice conversation about selling our houses and moving out of town and all the stuff that you talk about when you're in your 50s, right? My wife and I remarked to each other, when we walked away, like, how valuable that was, because she's ahead of us, and she could kind of tell some stories about what she was thinking at the time, and then we realized, like, she's eight years older than we are, but we know we only know her because our kids are the same age. That's the exact same point you were just making. Like, I have nothing in common with this woman. She's lovely, and I spent a lot of time staring at her, like on a grassy field, but like, I wouldn't have known her if she didn't have a child the age of my son. That's a thing that happens to us a lot, because we were younger when we got pregnant the first time. It's very interesting. So okay, so you've got the diet, your mom's got it. We don't know about it really. It's it's an interesting story about how she lived with it, but it's not like you're not functionally understanding what's happening to or anything like that. Give me the time frame there, like, what year was it when she was diagnosed? You know, she

Barb 21:05
was diagnosed in 1972 Wow. At age she died into in 1998

Scott Benner 21:13
8292 she only she made it like 25 or so years with diabetes, maybe 27 right? Okay, right. Did she do that management style? One shot a day her whole life. Did she ever come around to something else?

Barb 21:27
Never. I'll be damned to my knowledge, she did end up in a nursing home toward the end of her life. So I don't know if they managed her differently then, but all the doctor's notes I have are that she was on this, you know, one shot of she went from animal insulin to the humulin. There's one. This made me chuckle. And I should, I should have read these notes. I read them a long time ago when I was first diagnosed, and I just pulled them out again. One of the notes say that she's recorded as saying that three of her grandparents? No, it says all four of her grandparents had diabetes

Scott Benner 22:06
of some kind. They just called it diabetes, though, right? But

Barb 22:10
you know, who? Who would have known that we I just learned in the last few years that all of was it all of my grandparents, or three of the four, have Christmas, birthdays again, you know family lore that

Scott Benner 22:23
you think somebody would have said, would think? You think somebody would have shared they were too busy. They were milk. Your dad was milking something 2020, hours a day. And then I love that you're old enough that we can joke about this. And,

Barb 22:40
oh yeah, I'm way old, so yeah, oh my

Scott Benner 22:45
God, that's fascinating. You have three grandparents that were born on Christmas Day. It's not a thing

Barb 22:48
you knew. That's correct. Never talked about, never talked about, I think everybody

Scott Benner 22:53
who feels like they're ignored by their family modern day should listen to this and be like, Oh my God. They don't even know this. And

Barb 22:59
I, and I our second son was due on Christmas, and I had known, I found this out, and I thought, Oh, he's destined, right? But I willed him out on the 22nd

Scott Benner 23:08
so your family has sex once a year. That's not possible for your parents. They had to be doing it at least a couple times,

Barb 23:16
and there was a crib in their room. Scott,

Scott Benner 23:18
wait a minute, what's the what's the nine months on that? What's nine months before Christmas?

Barb 23:23
Is it Mother's Day? It's December, January, February. So I guess it's

Scott Benner 23:27
Valentine so colder when we can't be outside as much

Barb 23:31
and farming, you know that, that, that Iowa stuff, you

Scott Benner 23:35
don't have as much light. So, oh, I see.

Unknown Speaker 23:39
I do that too.

Scott Benner 23:40
I see what's going on. No, no, yeah, no, I see what's going on. Like Mother's Day. Valentine. Hey, Mother, what would you like for Mother's Day? How about nine months of carrying a baby? I prefer a locket.

Barb 23:57
Yeah, in more ways than one, right?

Scott Benner 24:01
You hilarious. It's fantastic.

Barb 24:03
Okay, yes,

Scott Benner 24:04
oh, that's so funny. Okay, so let's, let's maybe fast forward a little bit here. So are you were diagnosed before your son? That's correct. Okay, what do you remember about your diagnosis? Oh, I've

Barb 24:17
told the story quite a few times. So my kids were eight and six years old. I was at home at the time and just started a new work gig. I woke up one day, literally, I think it was I woke up one day and I couldn't see across the room. It was, it affected my eyes first. So I took myself to my optometrist, and he examined me, and he said, Oh, this is kind of rare, but I've seen this before, and you have an infection in your eyes. And of course, my first thought is I, and I said, my mother was a type one diabetic. Is it diabetes? It's not. Diabetes, not

Scott Benner 25:00
diabetes. You have a rare infection. Okay,

Barb 25:02
so, and at the same, you know, I'm five seven, about 120 pounds at the time, and I'm, this is going to be a refrain, okay, so you don't have diabetes. So he gives me some drops. Doesn't do a thing. My eyesight is getting worse. He sends me to an ophthalmologist in town, who says that I do indeed have this eye infection. I said, Doc, my mom had type one about the same age. You're not diabetic, which made me feel good, right? Yeah,

Scott Benner 25:34
I just have a horrible eye infection. I

Barb 25:37
didn't want to be diabetic, right, of course. So my eyesight continues to get worse, to the point I had just started this job where I was doing some travel. I will never forget I had a huge bottle of water that I took in the car with me. I had gotten contacts. Had never, hadn't I had laser surgery back in 2000 hadn't worn contacts for years. Was in contacts for my distance vision, and I had reading glasses so and at the time, we were looking at maps and stuff in the car. I'm like, juggling eyeglasses and water, and I was a mess. So this goes on, and he's about ready to prescribe some pretty serious eye drops, like there could be some kind of big side effects, yeah. And I thought, okay, in the meantime, I have this. I have this. Now. Have this raging sore throat. I haul myself to my internist, and I said, you're going to do two things, you're going to test me for strep, and you're going to test my blood sugar. Guess what? She said, You're not diabetic. So they take my they do it. I had a raging throat infection, and my a 1c. Was 14, Jesus and and the nurse calls, and she said, I'm surprised you're standing up. And I said, I'm surprised too. And of course, guess what? The next thing was, well, it must be type two, right? Yeah, I'm five 700 and now I'm down. I was down. Oh, that was the other thing. I had all the classic symptoms. I had lost so much weight, I could barely find clothes to fit me. I was, look, I was wearing like, size twos, and I was not a size two, but I was, you know, I was a mess. So they first dealt with me as as type two. Metformin didn't do a thing. She kept saying, you know, you can't be type one. I said I could be so I took myself to an endocrinologist at a bigger city close by, and indeed was found to have type one. And so, you know, my family all sent me D gifts.

Scott Benner 27:56
You got a bunch of gifts? Yeah, I got a bunch

Barb 27:58
of gifts. But, you know, and to be honest, yeah, it was hard, you know, I didn't want to have diabetes. But on the other hand, my vision came back, and, you know, I started putting on weight. But it was hilarious. They were sending me to nutrition classes, and I was the only type one in the room with all these type two folks. And it was crazy stuff. So anyway, and then two years later, my my boys and I have a different story. They said that that I tested them regularly. I think they asked me to test them, you know, they'd see Mom Perkin herself. That's how I remember it. We'll get mad on the next call his test, his blood glucose was like 253, my first thought was not, it's not diabetes. My first thought was, oh, so. So the story gets better. So I take him to the pediatrician. He's not diabetic. It must be hormones. He's now 10 years old. 10 must be hormones. I said, I don't think so. So once again, he had gone to a swim camp at a college nearby, and, oh, in the meantime, I took him to my endocrinologist, who happened to be, you know, he could do pediatrics, so they did the glucose tolerance. In the meantime, he went to the swim camp, and he remembers getting this call from from us, saying that he had type one. And his only memory is the coach at the swim camp came over and said, buddy, I have diabetes, and the sugar free pudding is really good. In the meantime, he's doing okay, because he's, you know, he's active and he's swimming and he's early, right? That we've caught it early. We go down to a children's hospital. That's, that's another story, because they sent it. They wanted us to be admitted to the hospital. Well, there's no room in the hospital. We're sitting in the lobby, which was health. People in lots of ways, because we saw lots of children in much more despair than my son. My son felt pretty normal at the time, so that was a good lesson for him to look around and say, hey, I can do this. And eventually they came down, saw my log, saw that, you know, I kind of knew what I was doing, and pretty much sent me home. And so ever since then, we've, we've really kind of been the self managing type ones. How does

Scott Benner 30:26
that work for you? Barb, what are your outcomes like?

Barb 30:28
Day to day? Outcomes are pretty good. I tell my son, still tell him to do as I say and not as I do, because I tend to be less disciplined about myself and more about the parenting, end of it. But our outcomes are we? We think we're doing fine. I tend to be in the sixes. He tends to be in the mid, mid, lower sixes. So we're both on Dexcom and OmniPod. He now lives in England. No, which is very interesting. That's another story. Jolly good. Yeah, Jolly good. So it's been but to be honest, got he and I have had these stories. You know, our our experiences with endocrinologists have just been not unlike anything you haven't heard. I've heard this on many of your podcasts. All I want them to say when I go in is, how can we help you? How can we help you? Because I've been managing every day for the last 365 days, how can we, or the last, you know, whatever it is, every six months? How can we help you? Instead, they're looking at charts and numbers and come back with an they what they think of as the answer. And I'm like, You didn't ask me, like, what's going What can you didn't ask me anything. So we kind of Matt and I used to joke that we would be, like, telling them things. And I've been able to do that even more now that I've, you know, become the social media maven that I am with the juice box and other I tell you, the the things I have learned being online is heads and shoulders over anything, anything I've ever gotten in a doctor's office. Yeah, you know, we looked at the sugar, surfing stuff. We took their book. They started handing that book out to other patients. I said, you know, there are other things too. You know, they were just grabbing hold of things, the misinformation we've been given. It's just been kind of, I'm still in awe. Isn't the right word, because that has a positive connotation. But I'm just so disappointed that the medical community hasn't embraced those who live with type one diabetes in a way that would be educational and best practices with the right outcomes, right? And I know you know all this. You know they're worried about liability and they're worried about but you know to to I would often find things out through the years, and I'd be like, Well, why didn't I know that then, why didn't, why didn't somebody tell me that? And things have changed, right? You know, we were early adapters of Dexcom and had it with the big needle and the syringe and, um,

Scott Benner 33:15
I'm fascinated Barb, that you don't really need to tell people that much for them to be able to figure it out like, I think, where the where the medical community can go wrong sometimes, is thinking that they have to give you an absolute map step by step. It has to be verifiable and correct, and it'll work every time the way we wrote it down here, for every person that's ever lived. You really just need to tell people things like, hey, you know what? This is how insulin works. You should try adapting that to your life. Here's how food impacts your insulin. Here's how insulin impacts your food. Here's 10 tools that'll you know, you'll probably use over and over again, pre bolusing, for example, little if they're not big ideas, I feel like it's a thing. I hate to say a toolbox, because it sounds trite. You do. You're giving them a toolbox full of tools, and you're saying, like, Look, everything you need to live is in this toolbox. I can't tell you exactly when to use them, but I think if I told you what all these tools do, you could have an experience and think, oh, I should have used this screwdriver today. Like that would have worked here. And then eventually, a couple of months into it, you reach for the screwdriver when you need it. You don't wonder what I should have been doing. Does that make sense? Absolutely

Barb 34:26
and but don't you? You know, I was listening to a podcast earlier today, and I thought, don't you get nervous when you seek comments on the Facebook page and hear things in a podcast where people are totally like someone was asking where to find the transmitter, like, where on their body, was it? And I thought, how do people manage when there isn't even a base? Level of here are the facts. Like, here you

Scott Benner 35:03
call nine out of 10 medical supply companies. They don't even know what they're sending you, right, right? And they do it all day long with a few things. And you'll say, hey, I need, like, back with g6 you'll be like, I need sensors and then a transmitter show. So they go, Oh, no, you can only have two of them a year, or something like that. And you be like, wait, no, I use one every 10 days. No, no. It says, here. I'm like, No, you're looking at the transmitter. Oh yeah, you're right. Like, yeah, okay, so if no one knows, then they can't tell somebody. And then you get home, and all you have to go on is, this doesn't seem like it's going right, but then they take that from you sometimes by telling you, oh no, you're doing great. You're doing great. So you go home and you have all these experiences that in your gut feel like, I don't think this is what should be happening to me. But then the doctor says, no, no, you're doing terrific. Don't worry about it. And 81 See, that's great. And then you go, Oh, I'm doing great. And then when you're 64 you're in a home, you know what I mean? And then it's too late, and then no one left the blame. So I, my gosh, I, by the way, I don't want to go backwards, but your mom was in a home in her 60s.

Barb 36:08
Well, she had pancreatic cancer. That was mostly what put her there. Yes,

Scott Benner 36:13
Barb, my point was going to be, how amazing is it over the last two generations of what 60 years old looks like, oh, you know what? Tell me about

Barb 36:22
it, because I mirror her diabetic diagnosis. I'm hoping that I won't mirror her pancreatic cancer diagnosis right at 68 so I've looked very closely at the differences in our lifestyle, and there's really no markers yet for pancreatic cancer that we are aware of. So, you know, my doc, my internist, and I have a plan that at around 6667 I'm going to have some acute pain, that they're going to have to do a, you know, whole series of imaging tests for just to try to get ahead of anything that might show up.

Scott Benner 36:58
Is there a way to look before a pain comes,

Barb 37:02
that's what I mean. We're gonna make up the pain. Oh, I

Scott Benner 37:04
see I hurt. Run a scan. That's a good idea. Look at you. Barb. I just this is gonna sound self serving, but it really isn't. It's just it's apropos of the conversation I was I was in a retail situation the other day, and there's this girl working there, and she's having a conversation with me and someone else that's there about how people think she looks really young all the time, and she's in college. And I looked there, I was like, well, you really do look like you're in high school. And she's like, I know. And I said, Well, you know, it's not. And she talked about how it's not very fun for people to think you're younger than you are. And I said, Well, that's now when you get older, you're gonna think it's terrific. And she kind of got what I was saying, but not so much. And I said, let me I'll give you an example. I said, How old do I look? And I said, Be very honest, we'll never see each other again. Who cares, right? And she's like, you could see her struggling. She wanted to say one thing, but she was gonna say younger. I was like, Don't say younger, just because you think, like, I don't want to hurt anybody's feelings, I said. And she goes, you're in your late 30s. And I was like, ah, early 50s. And she was like, wait what? And then you could see, like, genuine, like she wasn't being nice anymore. She was like, What the hell are you talking about? And I said, that's what I'm talking about. Like, when you're older, it'll be great if you look younger, but at 52 I think back on my father, he looked 52 and that's not just from my perspective. I can see pictures of him. If I showed you a picture of my dad at my age, you'd think he was 20 years older than me. It's really, I mean, really something. So I don't have a lot of like, I know the cancer thing is worrisome, but as far as the diabetes stuff goes, you're not in the same world as your mom was, you know, absolutely, yeah, and your son's gonna do better, even, absolutely, he already does. So yeah, and he already does because he's got a different perspective on it than you do. Even you're probably tainted a little bit by your mom's perspective, I would imagine, you know, and you know, along

Barb 39:01
those lines, Scott, I'd like to say that, and I've said this to other parents, I have never, ever been concerned about my well being as a diabetic. Never meaning

Scott Benner 39:15
like, well being, like, Well,

Barb 39:17
okay, so you know, you you, you you see a lot of stories of parents kind of just so much living in fear for their kids, and I think I've often shared that, because I'm in control, right? I even, and I've never been a teenager or young adult, but you know, my husband traveled a lot. I never, ever felt afraid to be alone. Have you ever had a scary low? I've had, I've had two scary lows, and they were both precipitated by alcohol. Mm, hmm. So you know, didn't eat. So I know what that feels. Right? But I'll also share when my son went to college, and I was always afraid for him, because I didn't have control over him, right? You know, I've that self efficacy. But when he went to college, he went about six, seven hours away. He didn't wear a Dexcom at the time. He was a he was on a debate, speech and debate team, and competed nationally, and didn't want any one more thing to think about with buzzers and beeps and alerts and vibrations. So, you know, bides me, and I said, you know, how do you want this parent child thing to go? And he said, Mom, you're six hours away. I need to create my own village here, of people, yeah, and I will never forget that, because, and he used that village a couple times, you know, he was sick that boy, they brought him, you know, they took the reins. Not every kid is lucky to have that kind of group. But it made so much sense to me that, you know, if I got even, if I was on a follow up, six, you know, the only thing I could do was call 911, right? And I get that people do that, but I often say, you know, knowledge is power, knowledge is power. Knowledge is power. And the more we can equip ourselves and those we love with knowledge. That's that you know goes back to sharing information and being informed and talking to people and sharing the fact that you're diabetic with those closest to you. It just makes so much sense to me, because it, I don't know, it gives me a sense of control. Yeah,

Scott Benner 41:39
now I understand. I also think you've there's to some degree, some luck involved, that you haven't had a situation that sticks to you. You know what? I mean,

Barb 41:49
absolutely, yeah, I totally agree with that.

Scott Benner 41:53
I also think the way you grew up, like, even if it happened, you'd be like, Oh, I was expecting to die, so that's okay. Like, I mean, you grew up in another time. You know what I mean, yeah, yeah. Actually your parents, by virtue of what they did for a living and where they lived, you almost had an experience growing up that was a generation behind your actual generation, if that makes sense, right? Yeah? So yeah. You have like a you have, like a 1940s attitude about life. There you

Barb 42:19
go. You do, right? We did have an outhouse until we were born in 1960 Yeah, that's my point. You know? Yeah,

Scott Benner 42:25
things don't seem as bad when you're not in the in the snow. You know what I mean.

Barb 42:32
So the other thing I wanted to talk about is this study going on at the University of Chicago. You remember that precision, T, 1d, Does that ring a bell at all? I

Scott Benner 42:42
mean, I remember it from your notes that you put here that you wanted to talk about it. So is it good? Can

Barb 42:46
I talk about that? Oh, my god, yeah. Wait, do

Scott Benner 42:49
you think that I stopped people from talking? Do you think I'm over here going, Nope, move on. We'll edit that out later.

Barb 42:54
No. But you might have a you might have a plan of some. Oh, my

Scott Benner 42:58
God. What would that look like I, you know, it's funny. I got this note from somebody the other day that was really touching about how she was in the Yeah, waiting room at the endos office, and another person in the waiting room overheard her get bad advice from the medical staff. And so this woman followed her outside, stopped her and said, Hey, listen, what they just told you is not even close to being right. So if you would be willing to give me your cell phone number, I'm going to text you something that I think would help you. And she texted her the, I think the bold beginning series in the podcast, yeah, you I just read this. You saw this post? Okay, great, yeah, so, and then I put that up because, I mean, honestly, like, I wanted to thank the all the healthcare workers out there who do grab people in hallways and whisper juicebox podcast into their ear, which happens a lot. And you think, Well, Scott, how do you know about that? It's because the Facebook group asks you when you're coming in. The private group asks you when you're coming in. How you heard about this? That group collects 150 new people about every three days. And on the intake forms, someone pulled me aside in a doctor's office and told me about it comes up five to 10 times every three days. And so I wanted to, like, put a thank you out into the world to those people who are spreading, you know, good information whispering in people's ears and everything. And the responses that came back in that post from other people talking about how they found the podcast, I found myself thinking, you have to understand, like I have to think about, I have to think about the podcast from a lot of different perspectives, and one of them is from a marketing perspective, and I see people out in the world, you know, trying to pimp their diabetes coaching stuff, and they're like, look, I got a review. Look, look how good bill did on my plan. That cost him $3,000 because I charged him 600 a month, and it took him a year to get it right. And like, you know, like in there, they use it as a review. And I think you. I wonder how infrequently they get those reviews, because I only see the posts every couple months. If I were to put up a social media post with a positive response from a listener, I could probably do it every four hours. And that's not about me. That's about it's about how well the podcast seems to work for a lot of people, and then the only thing that makes me think is I'm not getting it into enough people's hands, like if it works that well, or such a large percentage of people who intersect it, how come I'm not finding a way to help more people like that? It makes me feel badly. I know that sounds weird, but like good feedback makes me feel bad, but only on one level, and like that kind of marketing level, on a personal level, or my pride about what the podcast does, etc, show on that all makes me feel amazing. I didn't expect that much feedback in that post, and as I read through of it, some of it made me cry, like I actually read something from this one guy named Ricky, I think. And he was talking about the advice they got from doctors and how his kids life was going very poorly. And then one day, because they timed some stuff badly at a birthday event, his kid had to, like, skip having a piece of cake with everybody, because he was afraid he was going to stack the insulin. And that led him to look for other advice. And now he's talked about how well his daughter was doing, and that made me cry, like I was like, Oh, my God, I think I saved that kid's life, you know. And I try not to think about it like that very often, but every once in a while, like I let myself live in it for a second, because the truth is, is I do the same thing day in and day out. Like last night was Sunday, my family, my my wife and my daughter went out around one o'clock, and they're like, do you want to come? And I'm like, I'm gonna work. And then I got done at midnight last night, and I was working on something that may or may not turn into content for this podcast. I don't even know yet, but I need, sometimes I need motivation, like, you know what I mean, so I used your success to fuel my desire, if that makes sense, to keep going. I don't know why I shared that.

Barb 47:23
Well, no, I It's, I totally get it, and I, I have to tell you. So I had two letters to the editor published in the New York Times. Those are my, you know, little stars on my nice wall, and they were around covid. I think my first one was about six feet of kindness. It's a great little read. But anyway, I had read something a couple years ago that was dissing social media and how awful it is, and so they didn't print it, unfortunately, but I had written a letter to the editor saying, Hold on. You know, here is what social media has meant to me and my son with type one diabetes is that we can connect with a worldwide community who have the same condition that we do, who have tried multiple things that we learn from each other. I mentioned the juicebox podcast, and I thought, you know, this is to me, it is what I always bring up when, you know, particularly around parent groups, dissent, social media and, oh, you know, all the crap that's out there and the metaverse. And I said, I'm telling you, my life would be, it would not be nearly as fulfilling without the and particularly around type one the community that I have found on social media. So kudos to you. You know, I followed you when you were Arden's day. So, you know, oh, you're just reading the blog. That's how I first came into it was Arden's day, and so when this juice box stuff, explode it. You know, I'm sending it to my son and all this stuff, if anything, it's kind of overwhelming to me. Now, you know, the plethora podcast, I feel like there's not enough hours in the day, and so, you know, you pick and choose and listen to what's useful. But I truly think that talk about a toolbox. Scott, you know, you have the juicebox toolbox. I can't even say that quickly, juicebox toolbox.

Scott Benner 49:28
I started to make more content at first, because I had too many advertisers. And I was like, Oh, everybody wants to advertise on the show, but I only have this one episode every week. And I was like, I struggled with it. I was like, I asked my wife, I wrung my hands for six months, would people be okay with two? What if I put two up a week? Would that be too much? Would they upset? And then as two was okay, and then people during covid Were like, you could put up more, you know? And I'm like, Okay, here's three, you know. Here take three stories and a management on Thursday. I was like, you know? What? Am I doing? I'm like, do you know I have right now, I'm sitting on 70 episodes that are done and ready for you, but right right now, and that's constant for me. I constantly have a backlog of about 70 completed episodes. And I, you know, I get done interviewing, I'm going to have this experience with you 20 minutes from now. We're going to get done and I'm going to think I should just put barbs out tomorrow. Like, like that, can't sit and wait. Like, what a great story about blah, blah, blah, blah, blah, right? But then I realized, oh no, you know what? You thought that last week five times, when you recorded five times, keep going in order. Keep going in order. It's not I mean, I'm grateful that there's ads on every episode. That's nice and it's great. And I appreciate you all helping me send my kid to college and stuff like that. Like, that's all fantastic, but that internal feeling I have that this is this information, people need this information. Like, it has to get out there so they can hear these stories, so more people can have these experiences. And I can't just have one thoughtful story with Barb in May. You know what I mean? Like, there's got to be more, because the person who was lucky enough to hear you that when your episode came out, there'll be another person that comes along that needs your story, but it came out a year ago, and they're not going to go find it probably. So I need more. Like, I realized it just needs to be a faucet, and people can drink from it when they when they're thirsty, but the information needs to be flowing the whole time, and the information is episodes, and so it's a lot of work, but I think it's the best way to support people, because every because the truth is Barb, if I was in charge, I would just get you all together and I go look, listen to this series, then that series, then this series. And here's 100 stories from people with diet that have diabetes that will fill in all the gaps for you. Just go listen to those and you're done like you, and you don't need me anymore. There's no way to get people to do that. So instead, I just keep providing it and hoping that people trip into it and then get caught up in it, listen and get what they need out of it, because they don't know they need it until after they have needed Yeah. Well, well, yeah. Well, not even till they need it. They don't know they need it when they need it, they don't they didn't know they needed it till after they have it. And then they say, I wish I would have found this three years ago. I wish this would have been here when I was diagnosed, the woman who told me this morning that she found the podcast and listened to an episode and was like, Oh, that's good, and got what she needed out of it, but then didn't go back to it, and then years later, went back to it, and then had that sinking feeling of, oh, I wasted years of my life like that kind of stuff, so I just create non stop like you and I are recording today. I'm not supposed to even record on Mondays, but I'm looking at next Monday, and for some reason, I'm recording twice next Monday. So you're like, it's a draw for me. And I just, I feel very good about it, like I feel very good about putting the information out there and letting people tell their stories, finding new ways to tell the stories, finding new ways to pop the information out, because people's desire to hear things changes over time. Like there's always going to be people who like podcasts long form, but a 23 year old's not going to listen to a story with a 64 year old for an hour, right? Likely, you know what I mean. And so like, I'm designing, like, shorter form content for them and and like, I wish you could see this whiteboard here. If I was 10 people, I'd be putting out four episodes a day. I'd have so much content. And but instead, I just think, well, I'll get as much of this done before I burn out. You know what I mean this I can.

Barb 53:43
Have you ever thought about billboards on interstates? I don't. I don't know. It doesn't matter, just with your, you well, you talked about trying to reach more people, you know, just with the website or the the

Scott Benner 53:54
way you're going to reach people in this space is word of mouth. It's the only way it works, and then that person who hears about it has to hear about it either enough or be in a situation where they're so desperate that they're going to try a podcast to learn about their diabetes. That's really the truth. Yeah.

Barb 54:14
I mean, for personally, the OmniPod five podcast was was invaluable. I mean, I had no training, like, you know, and talk about insurance companies, you know, they couldn't figure out why I needed insulin and the OmniPod. It's just ridiculous. For like, you know, here we'll give you this, but we won't give you this that goes along with it. But that was the series that got me started, yeah, in my little you know, but

Scott Benner 54:44
everything comes with a trade off, so or time commitment that you don't know about, like that, OmniPod five Pro Tip series, which is just three episodes, started three years before OmniPod five was available, I started talking to the person that I worked with at Omni. Omnipodity pod. And I said, hey, when OmniPod five comes out, the biggest problem you'll have is if people don't know how to use it, like, right? They're going to need to know how to set it up. They're going to need to know how to use it because if they don't, you're going to slap it on them. My daughter uses an algorithm. I know that the algorithm, it's not magical, you know what? I mean, like, you settings have to be, right? Yeah, you need to understand some things. If they don't understand that, they're going to put on OmniPod five, their blood sugar's going to jump around. It's not going to come back like, you know, like Skynet is controlling it. And they're going to go, This thing doesn't work. And then they're going to go online and go, I tried OmniPod five and it doesn't work. I was like, so you're going to have to give people good information. Well, that's hard to get a company to do not just OmniPod, but it's not their job to as crazy as it sounds, to train you on how to use the device. That's your doctor's job. And we know the doctor isn't going to know about the pump and if they even know about it, we know they're not going to know how to set it up correctly, because if they did, they would have been able to help you with all your other stuff, which they couldn't help you with. So I have to have those conversations for years with my person about, like, I think this is important. We should actually take time and put together a thoughtful couple of episodes that'll explain things. And then in the middle of that conversation, she just went to another company, she left, and then the next guy comes in, and then I gotta start over again with, hey, you know, I know you just started this job, and you're probably overwhelmed and trying to learn your job and everything, but this is important, and I start over with him and and he's the type one. I don't know if he'd be okay with me sharing that, but I just did. He's a title. He did. He shared it. No, you don't know who I'm talking about. My content, not the person on the episode, right? Okay. And so he's like, No, I I think you're 100% right. And then he developed, he put his team on developing those episodes along with me. And then we must have spent, God, we must have spent six or eight months developing that content behind the scenes. Wow. And so the amount of time that went into it, when it all is said and done, I made about four cents an hour to make those episodes. Like, no kidding, it's, it ended up being a labor of love. Like, there was the money just, was not even, you know, it's just, it's just ad money. It's, it wasn't even, like a lot. But I was like, this is really important. Now, here's the trade off. You know, no one from, like, tandems ever been on my podcast. They don't reach out to me. They don't touch me because I look like I'm connected to OmniPod, but I say to them, I'm like, OmniPod just buys ads on this podcast, like I don't have another business relationship with them, like, you could come on and talk about your pomp. I'd love that, but doesn't happen. So then when you tell me the OmniPod five Pro Tip series was really valuable for you. I think, Oh, that's great, but I'm letting down people who are using control IQ,

Barb 57:48
yeah, you know, which is another great system. Yeah, exactly. But

Scott Benner 57:53
I but it's not my fault. They won't come to me like and I say it on the podcast once more, because I know that you listen, because they all, by the way, I know you're all listening. Most of the companies have someone tasked to listen to the podcast, actually. So it's someone's job to listen to my podcast, probably at every one of the diabetes manufacturers that exists. And so, like, they hear me saying it, I'm like, come on. Like, I'll talk about your thing. Like, let's go. And then they just never do it so, and I'm not picking on tandem, like, but like, there's other companies too who are just, they're scared to reach out because they think that I'm, like, attached to Dexcom. Like, I'm like, I finally, this year, got another CGM company to advertise. And I'm like, Well, maybe that will make them understand, oh, the

Barb 58:37
ever since, yeah, yeah, that, yeah, you're really lucky. You know, I equate what you're doing with my decision. I was in higher ed administration, so I worked for one college at a time, and a lot of times I wanted to be a high school guidance counselor so that I could work with all the colleges all of the time. Yeah, and be more useful, right? To that young woman who was a junior in high school who's having a hard time, but no, my job was to sell the one college, right? But I think the position you're in is

Scott Benner 59:09
invaluable. I hope I'm trying to do the best with it. I can, like, every once in a while I'll get crap from somebody online. It's like, you know, you take ads and I'm like, Well, I mean, I gotta, I can't. It's free, you know, I gotta eat right? And by the way, you, you know, you don't pay for it, like, you know, rock and roll, like it's free, listen to it, or don't, like, I don't know what to tell you, I actually hear people like, uh, there were two ads on that episode. I'm like, like, I wish I could leave reviews for listeners. Sometimes I'm like, It's not fair. You're allowed to leave a review for me. I'm not allowed to leave one for you, like, like, shut up. It's free. Skip past it if you don't want to listen to

Barb 59:47
it's so fun. Yeah? But hey, can I ask about your closed loop system?

Scott Benner 59:51
Yeah, but we got to do the Chicago thing. Which do you want to Yeah,

Barb 59:55
let me just ask a quick question. Have you? I've never gone that route. Out and part of it. DIY, have you ever right? Yeah, have you ever had folks? Well, no, because you're using the dash right.

Scott Benner 1:00:09
Arden uses dash pods with IEPs right now. Okay, yeah. And g7 g7 Dexcom, okay,

Barb 1:00:17
so there's no problems with warranty. You know, I get concerned about the regulations, and if I run into trouble, you know, I'm just sitting here by myself.

Scott Benner 1:00:29
What's your concern? Like say, I'm

Barb 1:00:31
used if you try something goes wrong, I guess I just go back. Goes wrong. How? You know, that's a good question, because obviously there's the online community to ask questions. But if I, if something happened to me, using that, there's nobody culpable except for me, right? I guess that's it. Maybe I don't have enough confidence in myself. Who do you okay, we can. We can

Scott Benner 1:00:56
move on. No, no, let's dig into it for a half a second. What is your concern that if something happens, there's no one to ask a question of, or if you drop dead, you can't sue somebody. What is it you're worried about?

Barb 1:01:07
Yeah, maybe the Latin a part of the latter. You know, when you just in terms of something comes, comes on, goes wrong, that, you know, there's but, yeah, it's just my, my laziness, more than anything to not look at.

Scott Benner 1:01:21
Listen, I'm not here to sell anything to anybody. A Do It Yourself algorithm is literally code that you download off the internet and build yourself into an app that controls your insulin pump and and speaks to your your CGM. That's it. You might as well have built it yourself with with popsicle sticks. It's yours. You

Barb 1:01:39
know what I mean? Yeah, and the dash pods are different from the classic OmniPod pods. Is that?

Scott Benner 1:01:46
Right? The arrows pods, the the original ones, yeah, I don't actually think they're going to be available much longer, if they even are any. So that's not

Barb 1:01:54
what you use. You use dash pods. Dash pods, yes, okay, I was going to give you my arrow spots, okay? And if

Scott Benner 1:02:01
your dash pods like, like, let's say you're using a like, a DIY system, and you fill a pod up and 12 hours later, it it errors. For example, you don't get the call OmniPod up until and have them send you another one. Yeah, right. You're in a different game. Now, if you're doing that, yeah,

Barb 1:02:19
and maybe that's more of what I think about is, you know, just having ready. I'm such a I always have backup supplies, partly because my son's on the same system. So I've always been backups. Oh, I forgot one thing Scott that I think is, again, the social media piece of this world is two situations where my son was in kind of an emergency situation, and once in England and once in Chicago, and both times it was because I reached out Online, people stepped up and it was solved. I mean, how often does that happen? He was in he was in England. Had was on business in England, they were still testing for covid. He unfortunately, it was at the end of the covid thing. He tested positive before boarding his plane home. So he had to stay for 10 days in the airport hotel, and he had not packed enough supplies. Okay, so he's in England, right? I'm like, Well, you have insulin, right? Yes, well, go get some syringes, put double mask and or get some delivered to you. They would not, because he didn't have an NH card, they he could not get syringes. So now I'm thinking, okay, eventually, you know, through reaching out online, we found someone. Did

Scott Benner 1:03:47
you do that? Where did you do that? Oh no, no, Scott,

Barb 1:03:51
I don't, I don't even remember, to be able to give you credit, but

Scott Benner 1:03:55
oh no, I don't mean that. I mean like I see it so frequently. It's fascinating how quickly somebody will step up and help somebody else. I mean, what?

Barb 1:04:03
How cool is that, even at the base level of, you know, here are the pros. That's huge. I think that's huge. Anyway, I had to share that because, you know, as the mom,

Scott Benner 1:04:15
yeah, no, let me say this, though, because I didn't say this when you were talking about the benefits of social media. Social media not different than anything else. It's just how it's wielded, right? I take the opportunities I have by having people follow on certain places, like listening to the podcast, or, you know, coming into a Facebook group that's now feel like, I think today, actually just went over 50,000 members. Like it's a responsibility, like, right? And then you can do what you want with it, like, it's almost like a gun. I can go hunting with it, you know, rob a bank with it. And so I've chosen to take this opportunity I have and try to do something good with it. And I know there's people who don't hunt. Who are, like, well, weird analogy, but I've never hunted either. I'm just saying it's all in what you do with it. Now, if, if I was a bad actor, I could look at those 50,000 people and be like, I wonder how many different ways I can get money out of these people, right? Like, instead, I just go look, here's the advertisers. If you can support them, that's great if you don't have a need for it. Like, right on, like, I'm not asking you to, like, get a Dexcom to help me. I'm saying, if you're gonna get a Dexcom, could you use my link, right? Like, that's all I'm saying, and that helps support me and keep me going. Now, there's, you know, times when you do something else, like, we're actually considering doing a cruise for listeners right now. I

Barb 1:05:38
saw that. Yeah,

Scott Benner 1:05:40
I think that might happen, actually. And you would think, Oh, here it is. Now he's gonna cash in. Well, I just had a meeting with the person who's running it, and it turns out that after this whole thing's over, and I spend five or six days on a ship and two days flying in and out and everything, the likelihood that I will make eight cents is very little like, hopefully the cruise will pay for itself. And I was like, All right, whatever. It's fine. You know what I mean? Like, I, you know, it's like, that's like, it's a thing people seem to want, and I think they would like it, and so I'll do it. But if you think when it's over, I'm gonna be like, Scrooge mcducking in a pile of gold, you got that wrong, you know? Like, I don't want you think I'm not bad off, like, I make a I make more than a reasonable amount of money to do what I do, like, but it's not like, there's not like, millions of dollars falling out of every like, like, pocket when I put my jacket on or something like that. But I think people, I do think people think that sometimes,

Barb 1:06:37
no, I and I, you know, the people want to be around those you know. Look at the adult. I'm sure you're familiar with the camping camps for adults, right? The

Scott Benner 1:06:50
I forget, but yeah, and,

Barb 1:06:52
you know, I even asked my Endo, actually, the first three endos I had here, could you give my name to all of your other adult type ones to connect with me. Yeah, you don't have to give me their information. But can you give them mine? Because I really want to start a group and I don't know how to reach people. Can't do it. No,

Scott Benner 1:07:13
it's It's HIPAA, and they didn't want to do it themselves. No one wants to be involved in anything.

Barb 1:07:18
We had a great school nurse when we moved to Ohio, and my son was in eighth grade, and she took it upon herself to put together a group of T 1d, families. It was fabulous, but she was a registered school nurse. You know, now they contract with all kinds of folks, but she she she made a huge difference to us when we made the move and were able, and we still have contact with many of those families. Yeah, I think, I think people want to be around others who get it. You know, it's like sending your kids to T 1d, camp, right? No, it's,

Scott Benner 1:07:54
it's terrific. And somebody's got to, you know, make that overture, and make the and build the thing. And you have to, you have to realize, like, when you were said, you wrote, you read the blog, like I didn't have, like, I wrote that blog for absolutely for free for years, like nobody, I didn't have an ad. Like nobody gave me any money. I just thought it helped people. And I was, I had some free time, and I thought, well, this is good. I'll do this. You know, I trust me. I know plenty of people. You said something nice about the podcast earlier, and it stuck in my head like I didn't say it out loud, but if I would have listened to people back when I started the podcast, it wouldn't even exist. Like I had prominent people in the diabetes space say you cannot tell people how you manage your daughter's diabetes, like they know how to live well, but they don't tell other people about it. Instead, they write you blog articles about how scary and sad it is, and we're all here together, and I've got your back and like all that, like not unreasonable stuff, but it's all like preying on your emotions. And meanwhile, that person's running around with a five, four, a, 1c, and could exactly tell you how to do it, and won't open their mouth and say one word about it, you know? And so because they don't have the balls to talk about it out loud and and I get that like I even understand not wanting to do it, but you know, you don't realize there are some people in this space that you think of as like Mary Poppins, and they're not Mary Poppins. It's just interesting. And I'm sure there are plenty of people who don't like me, and that's all well and good. All I can tell you is that I get up every day, I make this podcast all day long, and I see how many people it helps. And it's my goal to make it bigger. It's my goal to make it bigger because I think it'll help more people. I There's no space for me. I can't get any more ads like, you know you mean like, I'm I'm capped out as as far as I think how well I can do with this like, I think it is what it is now, and now it's about keeping it going and meeting more people and helping more people and spreading the word so that I can, you know, shut this microphone off one day in the future and feel like I did as much as I could. So that's what I'm shooting for here. Well, thank you. No, please. You have to thank me. Everybody's there's people paying me. You don't have to worry about i. Yeah, it even makes me feel weird to hear you say, thank you. And I don't know why, because I genuinely, I don't want you to or need you to. I just I don't want people to feel the way I felt when my daughter was diagnosed.

Barb 1:10:13
Well, you're just a brother by another mother, Scott, because you know, we're probably related.

Scott Benner 1:10:19
You think so,

Barb 1:10:21
given my extended family. Probably, you're

Scott Benner 1:10:23
probably related to everybody. I'm related to you and Genghis Khan. I think you know so exactly, oh my gosh, is the thing in Chicago? Let's finish with that. So there's a study in Chicago. I

Barb 1:10:37
can't remember where I saw this. It was on. It may have been on your page, but someone mentioned this study. Never heard about it. See, I was a person who when my son was diagnosed, I was really put off by the fact that there was no questioning about anything. And I thought, How in the heck are we ever going to figure out where this comes from if we don't ask those newly diagnosed any questions about history or environment. You know, I just thought there could be somebody out there who could come up with something. So anyway, when I saw this study, it's called precision genetics for type one diabetes, they are looking to identify genetic mutations that drive T, 1d Okay, and they, I don't know if you've heard of these mutations, they say T 1d is a frequent feature in patients with mutations. And I don't know what these means, a, i, R, E, F, O, x, p3, and stat one. Recent studies suggest that T, 1d patients with certain mutations may be able to have their disease reversed with targeted therapy. So there's studies trying to accelerate this precision medicine. And it reminds me of cancer treatments. You know how they're doing immunotherapy? I don't know if you know, but they're trying to do more targeted treatment based on the kind of cancer you have, what it reminds me of so t1, ds apparently have certain mutations, and they're trying to identify that. What's the name of the study? It's called precision genetics, or type one diabetes. The website is precision T, 1d, all small letters. Dot, u ofchicago.edu.

Scott Benner 1:12:24
Okay. Precision genetics is an emerging field that aims to tailor medical treatment to individual genetic profiles. In the context of type one diabetes, precision genetics focuses on, hold on, too much scrolling. It's going faster than I can read. On understanding the genetic factors that contribute to the onset, progression management of disease. Here are some key points about precision genetics for type one. This is from chat GPT four. Oh, yeah, predisposition, identifying markers, genetic personalized risk assessment, tailored treatment plans, prevention strategies, research and therapeutic development, challenges and ethical considerations, etc. Yeah. I mean, it sounds like a like something that's being researched, and they're trying to figure out if they can use this precision genetic technology to help people with type one so exactly

Barb 1:13:11
and so, you know, I'm always looking for things where this huge family of mine with this obvious genetic disposition to type one could be useful. So, you know. So my son and I have done it. It's very easy to do. They send you, there's an interview, a very short interview, where they answer questions and tell you about the study and blah, blah, blah, and they send you a sample kit to collect saliva. It's done through a saliva collection that you mail back and that's it. There's nothing you do in person. I mean, I did go out to Boston to Are you familiar with the UMass program? Denise, I went out to Boston and tried to get into her stuff. That's an interesting study too. It's using a long term. It was a drug that was used to treat TB. Does this ring any bells at all? So, oh, it's fossman lab. Does that ring a bell at all?

Scott Benner 1:14:10
Yeah. So she was on the podcast years ago. And listen, she's one of a lot of different people going after a, you know, a specific idea, but right at some point, like, I can't, I'm glad people are out there doing research, but I can't have every person out there who's like, I wonder if this is the thing. I'm going to spend 25 years trying to figure it out. Like, if you figure something out, let me know. But like, I can't, I can't talk,

Barb 1:14:35
no, and she's been going at it forever. Yeah, right, right. She's a great, yeah, really. But anyway, I don't know where this position obviously, I'm hoping that any work a research group like this comes up with could help in perhaps identifying more markers, or, you know, any foresight I think is valuable. Again, knowledge is power, right? So anyway, I don't. Know if people know about this, but I thought it would be worth sharing for anybody who wanted to get in on the fun. Thank

Scott Benner 1:15:06
you. Listen. We started off with your microphone and finished well with your story. So I think this was a good use of our time. Yeah.

Barb 1:15:13
Can you hear me? Testing, hello, hello, Barb. Oh, I lost you. Oh,

Scott Benner 1:15:20
it's that. It's that Ohio internet, apparently, yeah, Dave Chappelle is using all of it up, probably,

Barb 1:15:26
yeah, they're putting fiber out in front of my house as we speak. So, oh, no kidding, very It very well could be,

Scott Benner 1:15:34
just gonna say, It's possible we're about to get cut off. But hold on one second for me, we're done. But let me say goodbye to you privately Hold on a second.

Prolonged hyperglycemia can lead to serious health problems and long term complications. Learn more at Medtronic diabetes.com/hyper, this episode of the podcast was sponsored by Medtronic diabetes. The conversation you just enjoyed was brought to you by us. Med, us. Med.com/juice, box, or call 888-721-1514, get started today and get your supplies from us. Med, a huge thank you to one of today's sponsors, gvoke glucagon. Find out more about gvoke hypopen at gvoke glucagon.com. Forward slash juice box. You spell that, G, V, O, k, e, g, l, U, C, A, G, o, n.com, forward slash juice box. If you or a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective. The bold beginning series from the juicebox podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginning series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698 in your podcast player. Or you can go to juicebox podcast.com and click on bold beginnings in the menu when you support the juicebox podcast by clicking on the advertisers links, you are helping to keep the show free and plentiful. I am certainly not asking you to buy something that you don't want, but if you're going to buy something or use a device from one of the advertisers, getting your purchases set up through my links is incredibly helpful. So if you have the desire or the need, please consider using juicebox podcast links to make your purchases. Thank you so much for listening. I'll be back soon with another episode of The juicebox podcast. The episode you just heard was professionally edited by wrong way recording, wrongwayrecording.com. You.


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#1319 Secret Chinchilla

Scott Benner

Maddie, a 19-year-old college student with PCOS, acid reflux, low B12, low iron, and reactive hypoglycemia.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
OmniPod, Hello friends. Welcome back to another episode of The juicebox Podcast. Today,

we'll speak with Matty. I'm going to do something different here today. Tell you a little extra about Maddie than I normally would in the open. She's a 19 year old college student who has PCOS, acid reflux, low B 12, low iron, talking about anemia, and she has something called reactive hypoglycemia. She doesn't have diabetes, but she does love the podcast because of how much it helped her. But that's not what most of this episode is about. Today. We pick through maddie's problems and try to come up with an answer for her, because her doctors are letting her down, and she's away at college and things are degrading. You're gonna hear a lot of problems that Maddie has, that a lot of you might have too. So don't just be like, Oh, they don't have diabetes, so I'm not listening today. Please don't do that. Okay, this one's good. You're gonna like it also. It's got a great title. Please don't forget that nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. I'd also ask you to check out the private Facebook group juicebox podcast, type one diabetes on Facebook with over 53,000 members. It's the place to be. Today's podcast is sponsored by the insulin pump that my daughter has been wearing since she was four years old. OmniPod. Omnipod.com/juicebox, you too can have the same insulin pump that my daughter has been wearing every day for 16 years. The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and of course, at touched by type one.org check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes, touched by type one.org

Maddie 2:07
I'm Maddie. I do not have diabetes, but I think I share a lot of experiences with people that do. And this podcast has helped me a lot. It helped me, especially my freshman year of college. I'm now a sophomore. I go to a school in the southeast. I'll just say it. I'll probably say it. I go to us. I'm very proud of it.

Scott Benner 2:30
You go to see I like how you're like, I'm just gonna say it. Then you just give me two letters, University of Florida, Florida, okay? And you're, what do you like 20? I'm 1919. Okay, wow. Okay, well, I'm 53 so I feel very old, and I'm wondering if we're gonna understand each other at all, although I can I do okay with Arden, I guess like keeping up with things. She like, sees and things. So we'll see what happens here. Okay, so Maddie, let's first just get this out of the way. Do people call you Maddie or Madeline Maddie? Okay, you did not grow up in a house covered in vines. Is that correct?

Maddie 3:10
I did not. All right, excellent.

Scott Benner 3:12
Do you have any idea what I'm saying when I say that?

Maddie 3:16
Um, no,

Scott Benner 3:17
I don't. Excellent. That's excellent. I'm not gonna, oh, wait,

Maddie 3:19
is it like a book, like the book,

Scott Benner 3:21
you don't know the little like, she lives in a house covered in vines, Madeline. You know that? Yeah,

Maddie 3:27
yeah, yeah. Except my mom was always adamant that it's Madeline, and so she tried to separate me from that book as much as possible, even though it was felt the right way when I went to France.

Scott Benner 3:38
So I don't know, Oh, I see your mom. Your mom had a problem with the pronunciation of the book title.

Maddie 3:43
You're not Madeline. There are three E's, all right, you are Madeline, more

Scott Benner 3:46
like Madeline Khan, who's probably another person you don't know. I do not know. Awesome. Okay, so now that we've substantiated that I'm old and you're not, we'll move forward. What do you mean? The podcast has helped you, but you don't have diabetes. Who has diabetes that you know?

Maddie 4:05
So I have reactive hypoglycemia, and it can present very similar to the of the lows that a type one would have, especially in the beginning. It hasn't been bad recently, because I've just kind of figured out my body, but for a while it would be like, I'm fine, nothing's happening. And then all of a sudden, don't know where I am, shaking, sweating, busy, confused. And that was really scary. I had a lot of really scary moments, and I see an endocrinologist, which I really struggled with. I didn't know, like, what to do. Like, it's very daunting.

Scott Benner 4:42
Okay, so now we're into something I don't really know too much about, so I'm gonna have to pay very close attention to what you're saying. I'm gonna sit up. I actually just, I just realized it's like, oh, I just can't, like, sit back on this one. I don't I'm not gonna know what the hell she's talking about. Do you have any other medical issues?

Maddie 4:56
Oh, yeah.

Scott Benner 4:59
All right. Maddie, hold on a second. Good list them off for me. Do them like,

Maddie 5:03
I say that I'm not like, I'm not like, a cancer patient, like, I'm not, I'm fine, like, but I have, I've had, or have, pretty much every basic deficiency. I'm on B 12 right now. I'm on iron. I've always been borderline anemic. I'm actually not right now, I had low sodium at one point, so pretty much, oh, I pass out a lot. I'm just, I tend to be a very passyati kind of person. I have other hormonal issues. I have polycystic ovaries, pretty bad acid reflux, which you wouldn't think would affect my lows, but it means that I pretty much anything medically that happens to me, I just start throwing up, which is not helpful. Yeah.

I mean, I think, I think that's it. I might have to look through my medications and make sure I covered everything.

Scott Benner 5:54
Hold on a second. You're 19 years old. You pass out a lot. You have PCOS, other hormonal issues, acid reflux, A, B, 12 deficiency, your anemic. What else? What's the thing? What's the thing? The with the low blood sugar, called reactive

Maddie 6:10
hypoglycemia. Okay, it's what it sounds like. It's basically, I tend to run low a lot of the time, like before I started paying attention. I I usually lived in the 70s and 80s, just like, all the time, regardless of, like, if I ate, but also if I have something that's really high in simple carbs, my pancreas will be like, Oh, this is awesome. Like, I love carbs. And then I'll spike up way high. For a non diabetic, for my experience, I go up way high, and then I will shoot down low, like way too low. So okay,

Scott Benner 6:44
so blood sugar goes up, your body overreacts, crashes you

Maddie 6:48
low. Yeah, okay, pretty much

Scott Benner 6:50
do your parents have any medical issues?

Maddie 6:53
Not blood sugar wise. I'm trying to think my dad's adopted, so I don't really know, on that side, he's good himself, but I'm sure, like, it would be great to know, like, what the women in his family have. My mom, she's always been, she's been a fainter to, like, again, borderline anemic, like, not quite enough to be like, Oh my God, you're, like, so anemic. Like, we need but just enough to be like, Yeah, that's probably a problem. But it will let it sit, and then it's, it's just like that for her whole

Scott Benner 7:23
life. Okay, so, and what do they do for you? For this,

Maddie 7:26
I wear Dexcom, and that is, like the main thing that helps me. I've been, I've been on a CGM. I started May of 2023, I talked to dietician. Sometimes I had one appointment, and he was like, you should try CGM. And that's kind of how it started. And then, yeah, just kind of, I don't know, I nobody's

Scott Benner 7:48
trying to fix it for you, right? They're just, they're giving you a CGM so you don't fall and hit your head, yeah, to deal with it, yeah. Okay. All right. Hold on. Can we go through some things? Yeah? All right, so because then we'll get back to why you've listened to a podcast about diabetes, so that. Diabetes, so that'll be later, yeah, or how a 19 year old finds a podcast about diabetes. I That's not the point right now. Hold on a second. Let's go through a couple of things. How are your dietary habits? What do you eat? Be real. Like, let's be honest. Okay? Like, so, like, my daughter goes to college. I mean, did you have Panera Bread yet today? Or is that still has to happen?

Maddie 8:23
That's so embarrassing. That's what I had for dinner. Of course. Yeah. And I

Scott Benner 8:27
understand what's happening to you. Don't worry. But I mean, like, are you taking vitamins? Don't lie. I know you're not. Maddie, just say I'm not. Yeah,

Maddie 8:35
yeah, I'm not. I'm taking, I'm taking what my doctors tell me, I take iron and stuff like that. But I don't, I don't go out of my way.

Scott Benner 8:43
Do you know about I don't go out of my way to like, you know, try to supplement myself, but that's fine. Hold on a second. Oh God, this is Maddie. At any point during this conversation, if it feels like this is very personal, it's probably just some of my frustration with Arden coming out at you. So don't worry about No,

Maddie 9:01
I'm very frustrating. I get it.

Scott Benner 9:05
Do you try to name your episode? I'm very frustrating. That's wonderful. All right. So listen, is it fair to say, in the course of a month, how many times do you eat a fresh vegetable?

Maddie 9:17
Well, I'll say I'm pretty good about that. I like, like, a little tomato, a little bag of cherry tomatoes as a snack. Okay, I'll mess with that. That's

Scott Benner 9:27
what we're calling, that's what we're calling fresh vegetables with tomato. Well, I

Maddie 9:31
know it's technically a fruit, but like, No, I'm

Scott Benner 9:33
saying, like, like, you're saying that there's been a couple of tomatoes on your salad, and you don't push them aside to get to the croutons. This is true. Yes, okay, all right, so, but you haven't had broccoli in the last, I don't know, four weeks?

Maddie 9:46
No, probably not. I like broccoli, but no. Okay, and when

Scott Benner 9:50
you have a salad, does it have, like, bacon bits on it and oil? Actually,

Maddie 9:53
no, I my go to salad is a Greek salad, but with no olives, so it's probably not. Really a Greek salad. I like all the stuff except olives,

Scott Benner 10:02
so a ham and cheese sandwich without the bread, is that? What you're saying? My

Maddie 10:06
sister is worse than me. I don't know why she don't

Scott Benner 10:10
move the goalposts. Maddie, you've got a whole life.

Maddie 10:13
I need you to get this. My sister eats pizza without sauce, so just know that I'm the normal one right now.

Scott Benner 10:18
But what's on a Greek salad? Feta cheese

Maddie 10:21
lettuce. Obviously, I usually go pretty heavy on the feta tomatoes. Cheese

Scott Benner 10:26
tomatoes, is there like, like, ham or any kind of meat in it?

Maddie 10:30
That's one of my less proteiny meals. Yeah. Okay,

Scott Benner 10:34
so basically, it's cheese and lettuce. Is that what we're talking about? And

Maddie 10:39
you got onions and tomatoes, and I don't know what they're called, the yellow pepper things that tanara puts on them.

Scott Benner 10:47
Okay, well, let's just call them banana peppers. Yeah, sure, okay, and then okay, and you'll have one of those salads. How frequently?

Maddie 10:57
That's a more that's a more frequent meal for me. I'd say, like, once or twice a week. Okay, so like, you

Scott Benner 11:04
got up this morning. What did you eat? I

Maddie 11:06
was stressed about my presentation, so I did not eat, which actually is a very interesting part about my blood sugar that I would like say, go ahead. I don't know that that was not meant to be aggressive. I'm gonna say this now.

Scott Benner 11:20
Did you think you came off aggressively just now? I would I understand what you mean? You were like, Oh, I don't want to forget to say this, right? So go ahead, the OmniPod five automated insulin delivery system is available now and waiting for you@omnipod.com forward slash juice box. OmniPod five is the only tubeless, automated insulin delivery system that integrates with the Dexcom g6 CGM, and it uses smart adjust technology to automatically adjust your insulin delivery every five minutes, helping to protect against highs and lows without multiple daily injections. OmniPod five is also available through your pharmacy, which means you can get started without the four year Durable Medical Equipment contract that comes with most insulin pumps, even when you're currently in warranty with another system to get started today, go to omnipod.com, forward slash juicebox. Now, for those of you who aren't in the market for an automated system, but still want an insulin pump, and love the idea of tubeless you're looking for the OmniPod dash, head over to my link, omnipod.com forward slash juice box. While you're there, you'll be able to learn everything you need to know about the OmniPod five and the OmniPod dash, and you can also find out if you're eligible for a free 30 day trial of the OmniPod dash. My daughter, Arden, has been wearing the OmniPod since she was four years old, and she just turned 18. That is 14 years of wearing an OmniPod every day, and it has been nothing but a friend in this journey with insulin. Because the OmniPod is tubeless. You can wear it while you're showering, swimming or participating in your favorite physical activity. It's a big deal to not have to disconnect from a tubed pump to do those things. Head Over now to omnipod.com forward slash juicebox to find out if you're eligible for that free 30 day trial of the dash to learn more about the dash or to learn more about the OmniPod five, get started today. OmniPod five, full safety and risk information, as well as a list of compatible phones and clinical trial claims data are available at my link, and at that same link, omnipod.com forward slash juicebox. You can also find terms and conditions for that OmniPod 30 day trial.

Maddie 13:43
Yeah. So one thing that my endos say is, like, Are you skipping meals? And like, I will be so for real with you. I'm 19. Yes, it happens that being said, when I go extended periods without eating, my blood sugar looks like I am the healthiest person in the world. It is a flat line. It looks beautiful. It is the moment that food is thrown into the equation that makes things get absolutely insane. Like, I won't go low from not eating, I will go low from eating, which is kind of the scary part to me.

Scott Benner 14:16
I'm assuming that's part of what the reactive hype is in reactive hypoglycemia. Yeah, yeah, exactly. Okay, so we'll dig into that a little more. You and I, we you and I might end up on chatgpt or Google or something together in a second. But like, because, again, I mean, not a doctor, but so although it doesn't sound like doctors are helping you, how long have you had an acid reflux for?

Maddie 14:39
So I don't know, because I didn't really, as a kid, like I thought it was, like everyone just had burning a lot in their throat, like, I did not realize that that was an abnormal thing. I'm sorry. I'm gonna I just thought it was like that for everyone. Yeah, so since you were little, you've had it. I don't know if I. Was little, but I my first memories of having it, I would say it's a hurricane. I'm trying to think which one. That's how I measure my time in Florida is hurricane.

Scott Benner 15:10
Are you on a proton pump inhibitor? Now

Maddie 15:15
I'm actually not, no. So you have reflux. Oh, wait, no, no. Is that like? Is that, like, um, like,

Scott Benner 15:21
Tums or but something over, but something, yeah, prescribed.

Maddie 15:25
I am okay, oh, sorry. No, don't

Scott Benner 15:26
be sorry. It's a who? Why would they call them that?

Maddie 15:29
I don't know, because that I'm for context. I'm a biomed engineering major, so, like, I kind of know a little bit, but, like, that's a weird name for that. I did not make, but yeah, I'm on, I always say lanzoprazil, but it's like omnipodrazole, yeah.

Scott Benner 15:45
But just for your edification, a proton pump inhibitor. Inhibitor is a medication that, like, reduces the production of stomach acid, yeah, okay. Are you on one of those, like, daily? Yes, okay, and that helps?

Maddie 16:00
Yeah, it's actually weird. I've it's been worse lately because I started the B 12 injections very recently, and that kind of messed with it, but it's calmed down again. But, yeah, I started that around 16, so I guess three years.

Scott Benner 16:15
Okay, so you've been on it for how long? Say that again? I'd say, I think three years, three years, you know, some of the long term risks of being on that include vitamin B 12 deficiency.

Maddie 16:27
I do. And it's actually funny, because no one mentioned that to you. Nobody's

Scott Benner 16:32
gonna tell you anything. Like, even when it

Maddie 16:34
came back, you know, like, I came back, God, I can't remember the normal range, but I was quite low. I think it was like, We want you to be at the minimum 300 I was at like, 80. It was quite like, it was low enough for my doctor to be like, okay, injections. Pick these up tonight. I looked it up, and I was like, Damn, that would have been nice now. Like, yeah. Also,

Scott Benner 16:56
like, it's not, I think it can block the absorption of iron too.

Maddie 17:01
I'm sure I can. So

Scott Benner 17:02
when did you start your iron issue?

Maddie 17:04
I've always had issues. I've always like, I remember when I was in middle school I started, I would just black out randomly and

Scott Benner 17:13
ebbs and flows. Have you ever had an iron infusion?

Maddie 17:16
I actually haven't. And I made a post on the Facebook because I was just I was so frustrated, my ferritin came back at like,

Scott Benner 17:23
I think four. No, you need an iron infusion. Yes.

Maddie 17:27
And you commented that, did

Scott Benner 17:29
I was I there? Look at me. I'm a man of the people. No, you were Maddie. I'm everywhere and I'm nowhere. At the same time I like the shadow. Now you can't have a ferritin level four and expect to live a reasonable life, you're not absorbing all right? Listen, I am not a doctor. Maddie, this is not advice, okay? But I don't think you're absorbing your nutrients, and you're probably not taking in that many to begin with. So if you're having an absorption problem, which is a thing that I live with my whole life, right? Then you get deficient in the your anemic. It makes you pass out. So the anemia, let's put the passing out on the anemia. Okay, and you're taking iron supplements, but your body's pro not absorbing them, and even if they could, bringing up a four ferritin with a freaking iron supplement, you're gonna, like, you're gonna not be able to hit before you're gonna get your ferritin higher. Like, are you constipated with these things? I'm sorry, I'm asking you, surprising. No, no, no, um, that's okay. Surprisingly, no, okay. Also, I think there's something else you have going on that could cause diarrhea. So maybe they're balancing each other out. The proton pump inhibitors could make you, give you diarrhea or constipation, nausea, stomach pain, gas, dizziness, headaches. You got any of that

Maddie 18:49
dizziness and headaches, but like, it's one of those things, and that's honestly part of why I started listening to the podcast, is I have so many things that make me exhausted and pass out and confused and disoriented, etc. That like, I have to have, like, spidey senses to know, like, am I low What did I eat today? Is it a bad blood pressure? Oh, yeah, I have low blood pressure too. Forgot about that one.

Scott Benner 19:17
Well, yeah, but that could come with the anemia. Yeah, yeah.

Maddie 19:21
It's like, I have to have bitey senses to know what exact problem in this moment is making me feel terrible. And honestly, I've gotten better at it like I feel like, for a college kid, I am more aware of my body than I would expect myself to be. Okay,

Scott Benner 19:40
but we don't want this for you. No, it's not great. It's not great. Are you? Do you drink enough liquids water for a

Maddie 19:47
normal person? Yeah, for Florida, probably not. I'm also, right now, I'm outside a lot. I'm in marching band, and so definitely not enough for that marching

Scott Benner 19:57
band. You're like, you know what? We need? Let's give the pass out girl a baton and see what happens. All right, listen, low blood pressure in you, right? Could be linked to several of your conditions. I am. So here's what I'm doing while I'm talking to you at the same time. So I've gone into chat GPT, and I've told it about you, right? And as your have, you never done this, actually,

Maddie 20:19
no, well, I've done it with my Snapchat, AI, but it just told me, man, you need to take better care of yourself. And I was like,

Scott Benner 20:26
okay, Jesus, all right, hold on a second, B 12. Deficiency and anemia, both can lead to fatigue and weakness. We know that they can also cause low blood pressure. The body may not have enough red blood cells or oxygen to adequately maintain your pressure. I'm gonna say right off the bat, if you go to your doctor and say, Hey, Jack up my iron. I want an iron infusion, right? I think most of this goes away for you. Now, the problem's gonna be is that if you can't get in these nutrients that you need through food, it's gonna come back again. Yeah, and if you're having a problem with your digestion somehow. So that's what was happening with me. And I know what happened to me isn't necessarily what happened to you, but I'm hearing a lot of me and you okay? So if I started taking a GLP Med, which slowed down my digestion, and now I'm absorbing my nutrients better, wow, right? Is there any chance, I can't believe we're we're rooting for this. Is there any chance that you're overweight and you could get a GLP medication to try? Actually, I'm

Maddie 21:26
not, damn. I

Scott Benner 21:28
mean, good for you. So I'm not. No, no, it's okay, like, but now I'm not saying that would, actually would do it for you. I'm just it's what happened for me. You need to find a way for your nutrients to get absorbed. Which is which, in my mind, is what's not happening for you. So the stomach acids been, like, six years or no, it's been your whole life, acid

Maddie 21:51
reflux, I'm not really sure, but I've always my first reaction to everything has been puking, like, since I was a kid. Like, if I was allergic to something, I would be throwing up all night, like, like, an excessive amount of just like any minor problem, even if it had nothing to do with my stomach, I would immediately start

Scott Benner 22:09
vomiting. But the burning in your throat, you remember from being a kid too, yeah, I'd

Unknown Speaker 22:13
say probably, like

Scott Benner 22:16
1011 so for most of your life, or half of your life you've had too much stomach acid. It's probably messing up your digestion. How does hold on? Here's our question, ready? How does acid reflux? I can't believe you haven't tried this yet. You're 19. Reflux.

Maddie 22:39
Impact,

Scott Benner 22:42
B 12 and acid reflux and this treatment of medications, but yeah, we know the proton pump inhibitor stops it. Stomach acid is crucial for breaking down food and making certain nutrients bioavailable, particularly with B 12 and iron. Stomach acid helps release it from the proteins in the food than a protein called in Jesus. What does that intrinsic factor produce in the stomach binds to the B 12, allowing it to be absorbed in the small intestine. Certain Iron Stomach acid is also important for converting dietary iron, especially non heme iron, from plant sources, into a form that can be absorbed in the intestine. So if you're okay, so for someone like a 19 year old with existing B 12 deficiencies in anemia, low blood pressure, long term use of proton pump inhibitors can worsen the nutrient deficiencies, further aggravating symptoms like fatigue, dizziness and fainting. That tracks. Yeah, that sounds like what's happening to you. So, because listen, if you're gonna wait for a doctor to fix this for you, Maddie, you might as well go throw yourself into one of those Gator infested puddles along the side of the road. Okay? Because that's not gonna happen, right? You need, I think, is, an iron infusion, right? Because you're gonna get your energy back. You're going to get your iron up. You're going to etc. You're taking B 12 Hal like orally, or they give it to you in the juice. They juice you up in the veins. They juice me up. Okay, so let's get them to juice you up with the B 12 and the iron. Get everything up where it belongs. Try to stop the proton pump inhibitor for a little while, and then eat very well to see if your body can keep absorbing the nutrients from the food. And maybe, maybe, maybe you get lucky and it

Maddie 24:37
doesn't come back. Yeah, I'm with you. I'm totally with you. Maddie,

Scott Benner 24:42
back to how you eat like a like a monster for a second. Okay, has this been your whole life? What do you mean? I mean, if you had more Doritos or asparagus in your life, probably Doritos, okay. Do you think of yourself as a healthy eater?

Maddie 24:59
No, I. Why I think I think deep down, I think I'm healthier than I think I am. But that's

Scott Benner 25:06
the funniest thing anyone's ever gonna say to me. I don't even know what that means. Can we parse that sentence deep down, I think I'm a healthy, healthier eater than I think I healthier eater, eater. What did you say? I say it again.

Maddie 25:20
Okay, so I feel like there's two levels of thinking. It's like, My my, like, go ahead. Okay, okay, hear me out here. I'm an engineering major. This is for engineering right now. I feel like I have the, the like, primary brain that, like, says stuff that comes out of my mouth, but then, if I like, if, if I think deeper, there's, like, the deeper part of my brain, and like, in the primary part, I'm like, Oh no, I eat like crap. I'm 19, but I think I try my best. And considering that, like being so for real, I have no energy to cook all the time. If I'm given the choice between go and take a nap or eat and not feel hungry anymore, I will choose take a nap because I'm tired all the time.

Scott Benner 26:03
Well, listen, there's no doubt I have felt the way you feel. It's horrible. Has it changed your personality yet? I think so. Yeah. Like, are you harder to get along with? Or, like, have a shorter fuse, or anything like that. Yeah, yeah. To be

Maddie 26:18
candid with you, I do. I have diagnosed depression anxiety, too. But I think the depression, it's it's hard, because I I've been in a place where I it was not my, like, physical health, it was my mental health. That was like, I was so severely depressed I couldn't get out of bed. And I think since coming to college and just functioning as an adult for the first time, I have gotten to places with my health a few times now where, like, I have the fatigue part and not the mental part, and the the cognitive dissonance of that. It's a lot. It's a lot.

Scott Benner 26:54
Hey, how long? How old were you when you felt depressed the first time? Or anxiety,

Maddie 26:57
anxiety, I want to say, like middle school depression when I was 15, it was I remember, like very much, when it started.

Scott Benner 27:07
Okay, we're gonna read the Internet together. Several of your health issues, such as B 12, deficiency anemia, reactive hypoglycemia, hormonal imbalances and even acid reflux, can contribute to or exacerbate depression and anxiety. And here's how each of them may do that. B 12 is crucial for brain health, and deficiency can affect mood and cognitive function. Low levels are linked to symptoms of depression, confusion, memory problems and anxiety. B 12 is involved in producing neurotransmitters like serotonin and dopamine, which regulate mood. A lack of B 12 may result in reduced production of these chemicals leading to mood changes. Anemia, iron deficiency and fertile levels, anemia leads to fatigue and reduced oxygen flow to the brain, which can cause cognitive impairment, low energy and mood swings. Many people with anemia experience feelings of depression and irritability due to constant fatigue and weakness. Low fertile levels can also lead to brain fog and feelings of being mentally drained, which can contribute to anxiety and depression. Depressive symptoms so far, this is you, oh, yeah, yeah. Fluctuating blood sugars levels can cause rapid changes in mood and energy, and low blood sugar or hypoglycemia can lead to anxiety, irritability and even panic like symptoms, when the body experiences a drop in glucose, the brain perceives it as a stressor, triggering and releasing stress hormones like adrenaline, which can make someone feel jittery or anxious. That tracks, oh, yeah, PCOS can cause significant hormonal disruptions, especially with estrogen, progesterone and testosterone, which can impact mood regulation. Many women with PCOS experience higher rates of anxiety and depression, possibly due to both the hormonal imbalances and the stress of dealing with physical symptoms like your regular periods, acne and weight gain. Do you have your regular periods or acne?

Maddie 28:51
Oh yeah, acne, not as bad, but yeah, my period since obviously, that's another thing. It screws up my blood sugar. It screws up me emotionally. It I used to miss school. Like, since I was like 13, I would miss way more school. I'm

Scott Benner 29:08
not suggesting this. I'm asking, have you taken the pill for this? Yes, are you down?

Maddie 29:13
I've been on it for a couple years. It helps. Yeah, actually, this is what a time to be recording this. I'm getting my IUD in on Friday. Oh,

Unknown Speaker 29:21
congratulations, but yeah,

Maddie 29:25
that's gonna be fun. Tara,

Scott Benner 29:27
will you have a party? Or is that different? I don't understand exactly. Will you and your friends get together and celebrate?

Maddie 29:33
My mom said she'll come pick me up if I want her to. So, I mean, you know, oh,

Scott Benner 29:38
after the Oh, are she making you walk to it? No, no,

Maddie 29:41
no, no. She was like, I'll come and because she just got hers changed, like last month, and she was like, Oh yeah, once you haven't had kids for 15 years, that's a lot worse. So she was like, I'll drive you everywhere.

Scott Benner 29:53
Do you think it's possible that your mom is hearing this right now and thinking, oh good, yeah, go on a podcast and tell people about my IUD. 300%

Maddie 30:01
I don't think I ever told her that I was recording this, but I have to say, Good, all of us. I think I'm definitely the most straightforward in my family. But like, I don't think any of us really have anything to hide. Cool, no, excellent.

Scott Benner 30:13
All right, hold on. We're gonna keep going. Acid reflux and digestive issues. Chronic discomfort from acid reflux can lead to stress, anxiety, sleep disturbances, which could worsen your mood. The ongoing discomfort and dietary restrictions associated with acid reflux can impact mental well being. Do you find yourself eating things you know won't upset your stomach,

Maddie 30:33
not really okay? The medicine takes care of that, and it's very much something that I think about now, of like, I'm not going to have the crutch of like, medicine that makes it go away forever, because the studies that come out, and I haven't looked into it too much, because I am in this thing called College that takes up most of my capacity, I know that they are not the greatest thing to be taking for your entire life, so I do think about it, but okay, I Don't really act on it. People

Scott Benner 31:01
with digestive issues sometimes experience gut brain connection, where the chronic gut problems like reflux may contribute to emotional distress, and then the low blood pressure can cause fatigue, dizziness, fainting. Again, these can make you feel helpless and anxious. Now here's the question, what if she got a iron and B 12 infusion stopped thing

Maddie 31:28
or, like, What the hell is wrong with her blood sugar? Don't even worry. I had this just with

Scott Benner 31:32
that too. Hold on, yeah, well, you haven't gotten to that yet. Really stop the PPI. And so what would we do? We jack up your iron, we jack up your B 12. We take away the proton pump inhibitor and use an additive digestive enzyme

Unknown Speaker 31:55
at meals. Let's

Scott Benner 31:56
see if it can put all these twos and twos together and come up with

Maddie 31:59
four. It's like, it's, it's one interconnected web of just like, being tired and feeling awful, but they don't quite connect. There's like, a like, there's one weird piece, no,

Scott Benner 32:10
no. It feels like, it feels like you're like, it feels like I knocked you over and I'm squirting a fire hose at you, and you're like, uh. And when you roll away from the fire hose. Someone squirt you from another fire hose from the other side. Like, no, stay there, and then they start throwing sandbags on top of you. And you know what I mean? Like, you know, you're just like, I have this wrong with me, this wrong with me, this wrong with me. I'm always tired, my foggy, I'm passing out. I'm blah, blah, blah. Like, I just think that it's possible. And this is based completely on, and I want to be very clear, because you're 19, I barely got through high school. Do you understand I am not I have no no no training in this whatsoever. I just have a lot of conversations with people, and I have my own problems. And as I'm like, and maybe I'm wrong, I could be 1,000,000% wrong, but the way you feel, could easily have to do like, like, you're like, Oh, I pass out all the time. But what if, like, your irons just so low? Like, look, my iron was once my Fert was once nine, and I bent down to pick something up in my kitchen and almost fell on my head. Like, seriously, right? And then I literally was two weeks away from a doctor's appointment where they were going to give me an infusion. But I couldn't wait that long, so I just went to the emergency room, and I was like, Look, I'm going to die before I get to this infusion. They gave me a little bit of it. It changed my life. Then they gave me the rest of it at the the appointment, because you got to go to a hematologist, right? And you go in there and you're like, look, here's all my Jimmy's like, as everything is wrong with me, can you please jack up my my ferritin, right? Please, please, please, please, please, please, because here's what I think is going to happen. And the doctor's going to listen to what you and I have been talking about right now, and they're going to go, Yeah, that's a reasonable thing to consider. Let's do that. And then you're going to say, you know, you're probably at the same infusion center. You can probably go back and get your B 12, get all of your, you know, all your supplementation that's impacting these problems, Jack back up. Now, what's the next problem? You've been on this proton pump inhibitor for six years, so you're not absorbing anything, and they're trying to over like, basically what they're doing is, is they're blocking the absorption of your iron and your B 12 with the proton pump inhibitor. And then they're just going here, take a bunch of supplementary iron and and we'll, we'll inject you with B 12 once in a while. That's not working for you, like you're not dying, but you're not living either. You know what I mean? Yeah. And now, why wait? Good. Say whatever you want to say.

Maddie 34:39
One way that I've described it is, like, you know, those, like, those splash pads, where, like, if you if there's a bunch of little sprinklers, and if a kid, like, steps on one of them, it'll stop spraying, but the other one will go like crazy, higher. It feels like that all the time, like I just, I gotta pick my battles. I. Yeah,

Scott Benner 35:00
I think that that's just going to leave you with a lifetime of Whack a Mole, like, just hitting the thing that's Yeah, and I don't think that's going to be good for you, because I don't think you're going to get anywhere with that. So the reason I brought up the digestive enzyme is then, like, maybe if we ease the the burden on your body of getting your food through you for a while, I wonder if it wouldn't tamp down your stomach acid, and then I don't know how to suggest why my GLP got, oh, why don't we just ask the machine? Why does GLP stop reflux?

Maddie 35:35
So sorry, my cat is playing with a bag, and I don't know how to make him

Scott Benner 35:39
stop. You have a cat at college?

Maddie 35:41
I do. He's my best friend.

Scott Benner 35:44
Oh, that's so sad. I mean, that's so nice. Okay,

Maddie 35:47
okay, okay. Full disclosure, I am a dog person, but this cat like attached himself to me, and he acts enough like a dog where I'm like, Okay, this is fine.

Scott Benner 35:58
I don't understand. Oh, you have an apartment. You're not like, in a dorm. Oh, yeah. Oh, I'm like, how did you get a cat into a dorm? Although my son in his freshman year of college texted us one day and goes, Yo, there's a guy on our floor with a chinchilla.

Maddie 36:15
I think it was a chinchilla. I think my friend's Ra had a secret chinchilla. And I was like, You're literally the one inspecting yourself. Like, how do you have like, what

Scott Benner 36:24
Maddie, do you know what your episode is going to be called?

Maddie 36:28
What secret chinchilla that's amazing. Well, it's

Scott Benner 36:32
so good. Oh, okay. Glps, people are like, Wait, he's 53 and she's 19 or vice versa. GLP, one, medications commonly used for type two diabetes and weight management can help her management can help reduce acid reflux in some people, but here's how slows down the rate in which the stomach empties food into the small intestine. The slower gastric emptying reduces the volume of food and acid in the stomach at any given time, which can lower the pressure on the lower esophageal sphincter. Ooh, that's sexy, the Les and reduce the likelihood of something stomach acid backing up into the esophagus, so it slows down the digestion, which takes the pressure off the sphincter, which leaves that thing stay closed, and then that reduces the idea of the acid backing up into the esophagus. Because, by the way, this is also very important, because you could get something you could get something called Barrett's esophagus, by the way, which is, could be precancerous, I think is pretty Yeah, you don't want esophageal cancer, that's for sure. GLP, medications promote the feeling of fullness, leading to smaller meal sizes, since larger meals are the major trigger for acid reflux. Do you eat a lot of big meals? Yeah, and

Maddie 37:40
it's kind of, it's a self feeding problem, because one thing that will happen is I am so exhausted all the time that I have to kind of delegate all of my energy into a few hours. And so I'll have, like, a couple snacks, and then this big, like, actually decent meal, and then that'll be my day. GLP,

Scott Benner 38:01
medications are often used for weight loss, losing weight especially, right? You don't have a weight issue, though, right? No, does that mess you up eating healthy? Like, are you a thin person? Yeah,

Maddie 38:12
yeah, yeah, I'm thin.

Scott Benner 38:13
So my question is, So Maddie, the reason I'm asking is is, my question is, do you see yourself in the mirror and then think thin, I'm healthy, so how I'm eating must be okay.

Maddie 38:23
No, it's actually, it's a lot. It's, this is a great point that ties back to my blood sugar, because when I look up the issues that I'm having, and even when I go to the doctor, sometimes, even if it's not intentional, the way that they speak to me, the connotation is always you are on a path. You are you are eating terribly, and you need to be perfect all the time, or else you are going to probably get type two, which you know happens, especially with PCOS. It's very much like you're doing a bad job eating, and you are doomed to be an adult who's struggling with their weight and with their eating for the rest of their life. That's kind of the vibe I get, especially when you look up reactive hypoglycemia. You look it up on social media. This is one thing that I found it's a lot of like middle aged women that are like, Do you have a hormonal imbalance? Do you feel like you're fat? Here's my weight loss solution, to balance your hormones and not have reactive hypoglyce Like it's you don't see anyone my age with this issue.

Scott Benner 39:30
You don't see a lot of 19 year girls like, Oh, guess what I have but you have PCOS, see? So the GLP can help with the PCOS too, yeah, but you don't need it, and they don't microdose it yet from doctors in a way that might be helpful, although, have you tried tried Metformin for the PCOS? I haven't

Maddie 39:49
been brought up. No one's no no one's suggested it. But I think one of the concerns is, since I do, my blood sugar just tends to. Run lower. I think one of the concerns is that it would bring it even lower, and then I'd be more kind of teetering on the edge of low all the time. Yeah,

Scott Benner 40:09
so we haven't gotten to that yet. I'm still working through this whole thing. Also, it's hard for me to work through it because I'm an idiot, but I'm trying so like, but what we, what we've learned from the GLP thing, right? Is ways that glps Because we don't. We're not saying, take a GLP. We're saying, How does GLP stop stomach acid? Maybe we can find ways so it looks like smaller meals would be one for you, okay? And then, of course, avoiding some of the foods that you know do that, which we'll get to in a second, but so you can decrease acid production so smaller meals is what I take out of this for you, because you don't need to lose weight. So eating more frequently, smaller meals during the day could help with acid reduction for you. So that we've that we've got, yes, reactive hypoglycemia can be an early indicator for type two diabetes in some individuals, if it's related to insulin if it's related to insulin resistance, and that's

Maddie 41:04
one thing I don't really know. Like, my doctors have never really mentioned it, I need to be more assertive in my appointment that it's like, you know, you know how it is.

Scott Benner 41:16
Like, how would you be more assertive?

Maddie 41:18
I just, I don't know. They, they kind of they come in. Here's my experience with the Endo. And this is maybe getting off topic, but I don't know this is, this will kind of explain why I

Scott Benner 41:27
think we're on topic. Go, you're fine, yeah,

Maddie 41:32
I I come in and I'm like, Hey, I've been having this. They run through my Dexcom, they look at some of my worst days, and they go, this looks bad, but I don't know, maybe, maybe you didn't think or prick enough, maybe it wasn't accurate enough. And they look at my overall trends, and they go, Well, you don't look like you have diabetes. And I'm like, No, I didn't think I had diabetes. And they say, Okay, well, you're a skinny girl. You're probably not eating well, you're probably not eating enough. Eat more and stop partying. You know, that's kind of that's what I get. And I go, Oh, well, I could be doing better, so I guess, yeah, and I don't really fight for myself, because you

Scott Benner 42:15
just 19 year old girl. Are you partying a lot?

Unknown Speaker 42:19
No, okay.

Scott Benner 42:20
They just assume you are because you're in college.

Maddie 42:22
It's just they tell you, you know, eat better. Be good, you know, bad pretty much,

Scott Benner 42:32
you know, yeah, they just say a bunch of shit that's not helpful, yeah, yeah. And they don't really talk it through, okay, yeah, all right, so we've fed a lot of information so far into chat, GPT, and I told it when we started to remember you, so that we could keep talking about it, right? And I can actually, like, I can send this to you when we're done, if you, like, like, every but so I said, Could any of her other issues be the reasons for her reactive hypoglycemia? Says the PCOS is often associated with insulin resistance, which can cause, which can cause the body to overproduce insulin after meals. The overproduction can lead to blood sugar dropping to low after eating. So PCOS, yes, hormonal fluctuations can affect insulin sensitivity. If our hormones are out of balance, her body might struggle to regulate blood sugar. Anemia, while anemia itself doesn't cause reactive hypoglycemia, fatigue and weakness from anemia could mask earlier signs of low blood sugar, making hypoglycemia more noticeable. So it what it what that's saying is poor oxygen circulation due to anemia may also exasperate the feelings of weakness into so you might feel so crappy all the time that it's stopping you from realizing your blood sugar's getting lower to do something about it before it's happening. That's where it's saying anemia could exactly

Maddie 43:47
that, like frame that and quote that. That's why my doctors say, you know you're not going low that often, but when I do, it is catastrophic, and now I can see it. And now someone can be like you need to eat now you're 50, because otherwise I just let through it and it would,

Scott Benner 44:04
you know it, because you always feel crappy, so you don't notice it right away. Yeah,

Maddie 44:08
okay. And then I'm at the point where I'm in public, disoriented, and it's scary. It's really scary. B

Scott Benner 44:16
12 is essential for healthy nerve function and metabolism. Deficiency can lead to nerve dysfunction, which could affect how the body senses or responds to changes in blood sugar levels, possibly making her more vulnerable to hypoglycemia symptoms or slowing her response to them. And then the PPI, the proton pump inhibitors, can reduce the absorption of certain nutrients like magnesium, which play a role in glucose regulation over time, this could contribute to metabolic disturbances, which issues with blood sugar control, though, the link between PPIs and reactive hypoglycemia is less direct, acid reflux and the use of medications might impact nutrient which could Okay. All right, so here's what I think, if you were my kid, you. I would first say thank you for going to a state school. I'd be very excited about

Maddie 45:04
that. Thank you. Oh, yes, it's so much cheaper. Yes, yes.

Scott Benner 45:07
That would be the first thing I would say to and then I would say this, I think we need to get your iron up, your B 12 up, and get you off of this acid reflux medication for a little bit. I don't want you to suffer from acid reflux, and I know there are a lot of reasons, very good reasons, why you want it to stop, but it feels to me like you're 19. Now, when you were 13, they put you on a proton pump inhibitor, right? And most of your problems have started since then.

Maddie 45:41
Is that right? I thought about it like that, like, yeah, yeah.

Scott Benner 45:43
Because prior to 13, were you passing out? Prior to 13? No, okay, did you have and

Maddie 45:50
to clarify, I I had acid reflux. I didn't really start. I started a PBI. I think 15 or 16. Okay,

Scott Benner 45:58
all right, so about three. Okay, so let's, let's. So let's timetable this for Mr. Don't worry about the exact date. Let's just think about what came first. Yeah, so what came first? What was your first problem, period, growing

Maddie 46:11
up and stuff. So I think in hindsight, I would say probably the acid reflux.

Scott Benner 46:16
Okay, so acid reflux comes first. When do you start getting your period? 13. Are they bad? Right away. Yes. Okay. So then you start losing iron from the from the heavy bleeding, right? Okay, so now the iron starts to go away as the heavy bleeding happens, but it takes them three years to put you on the proton pump inhibitor. By then, your iron super low. The proton pump inhibitor takes away the acid, but it's also blocking you from reabsorbing any iron and what else. When does the passing out start around, when

Maddie 46:59
I got my first round, when

Scott Benner 47:01
you got your first period, has it gotten worse, better or stayed the same?

Maddie 47:05
I don't know. I It's always, it's all, it's ebbs and flows. I mean, sometimes I'll have a month where, you know, a few times a day I'm if I stand too fast, I gotta sit back down. I don't usually have a grand. I'd say a grand passing out episode is probably, like, once or twice a year.

Scott Benner 47:24
And is that from low blood sugar, or is it from like, like, low energy,

Maddie 47:30
all of them, it depends. All right.

Scott Benner 47:35
Okay, so what came first the chicken or the egg? What came first was the tough period, the acid reflux, the tough periods, kind of come at the same time your iron probably gets low from the bleeding. You can't reabsorb it, because it's just, it's just listen, between you and me, taking an iron supplement a day is not going to build you back up from a four ferritin like it just, it's going to take for ever. Okay, so yeah, and then you just bleed again. It doesn't matter, you know what? I mean, you're like, I gotta let and it's gone. So, yeah, okay, so the PCOS is the crux of a lot of your issues, right? Because that's a hormonal disorder that can cause insulin resistance, irregular periods, metabolic issues, hormonal imbalances, are probably related to the PCOS. Anemia is probably related to the bleeding, and then you can't get back from it because of the bleeding. And the proton pump inhibitor, the B 12 is probably the proton pump inhibitor. When's the first time they started giving you b 12? When did they notice that I was

Maddie 48:36
never tested for it until I kind of had a breaking point recently, like a few months ago, I had a lot happened last semester, my spring semester wild. And so I came in and I was like, I don't know if I'm depressed or if I'm just exhausted, but something needs to happen. Some change needs to happen. And so she was like, Okay, well, up your antidepressants, and that helped a little bit. And she was like, I also, when I do this, I want to test for deficiencies. That's when she saw my ferritin was low, and it's been low before, just no one did anything about it. And she was like, Okay, let's start working on that. And then after that, after we started on that, she was like, I also want to check your B 12. And so she checked my B 12, so I started injections for that a month ago, like,

Scott Benner 49:21
okay, not, they didn't talk about the iron at that time. You can get her to give you iron. What kind of doctor is she?

Maddie 49:27
It's actually the college is student health care. She's a,

Scott Benner 49:31
I think, a PA. Dear God, no, we need to get you to a to a physician. Okay, hold on a second. Not that nice lady that works at the Okay, all right, hold on a second. Do you eat a lot of spicy food or other things that can cause because I'm trying to think about how also, by the way, you can't just, like dead stop a PPA, I think you have to go off them gradually. So be careful about that. Okay, yeah, yeah. But, but, do you eat a lot of spicy foods or anything like that? Yeah? Spicy,

Maddie 50:00
not really acidic, yes, although, honestly, this is not. People do not believe me when I say this. I used to be like a coffee addict, and college has actually weaned me off. I have a lot less coffee and soda than I used to, because

Scott Benner 50:13
we want you off of spicy foods, caffeine, citrus, chocolate, alcohol, fatty or fried foods.

Maddie 50:19
Yeah. Can you do that? The best a college student can,

Scott Benner 50:22
Maddie, here's what I really I do try. Here's our plan, yeah, iron infusions. Keep up with the B 12 infusions. Get off the PPI. Avoid spicy foods, caffeine, citrus, chocolate, alcohol, fatty and fried foods. Use a digestive enzyme at your meals, which you can buy over the counter to help, like, get your digestion, like, rolling, um, get your magnesium built back up, and see if you don't feel better in a month after doing that, which I definitely think you could do. I also might use, you know what slippery elm is? I don't, all right, it's just an over the counter, like, like, you know, it's like a crunchy supplement kind of a thing, but it kind of coats your insides, your esophagus, your stomach, that whole lining it'll help your eye, your poop is, how do you Oh, my God, I'm so sorry. Maddie, how do your poops come out? Are they messy, or are they nice? Informed that, okay,

Maddie 51:17
this is one thing I'm very proud of. I have so many stomach issues with like, growing up, my poop has always been wonderful, regular, good, texture, wonderful, all right,

Scott Benner 51:27
good, good, but it this slippery elm with a could help coat your insides, you know, coat your esophagus, your stomach lining to protect you from acid while we're figuring out if we can eliminate your acid some different way, because I think in my heart, again, if you were my kid, I think that the proton pump inhibitor is causing a lot of your other problems. I believe that, and then we need to impact your PCOS somehow. Maybe the PCOS is the founder of the feast in the beginning. You

know what I mean? Yeah, yeah, yeah, I'm

with so now that's a bigger problem, because modern medicine doesn't seem to give a about women who suffer with PCOS. No, it doesn't.

Maddie 52:07
Yeah. Same thing with women who have deficiencies and pass out. It's like, Damn, you don't eat that well. And, you know, yeah,

Scott Benner 52:15
I hear you a lot of times. They're just like, if you Has anyone said to you yet? Like, Oh, you might grow out of this. Christ, no one said that yet? No, no, no, no, no, a lot. Oh, they say it a lot. Yeah, that's a very common thing to say to women about hormonal stuff, like, oh, or this could change after you have a baby. Has anyone said that to you yet?

Maddie 52:33
Yes, no. My favorite was my endo was like, Yeah, this, this hypoglycemia, like you're having episodes, like we would usually see in a kid, but you're not a kid anymore. You're 18 now, and that's weird. Okay,

Scott Benner 52:47
that was it. Good luck. I hope you don't die. Would you be willing to try inaccetal inactivel At first, I'm gonna send you a link to something on Amazon. This is ridiculous. I can't believe this is what we're doing on a podcast, but okay, I only have your text on my burner phone that's not connected to what I'm googling. Give me a second. And also, no offense to anybody who thinks they have my phone number

Maddie 53:10
but you don't. I was gonna, I was gonna hit you up. You

Scott Benner 53:14
definitely can. I will not answer. Love it. No, that's not true. I might answer the doctors

Maddie 53:19
aren't going to do it. And this isn't even a hate on doctors. They don't have enough time. They got

Scott Benner 53:25
more time than you think. Let's see. I'm sure I'm tired of that excuse. All right, so I just texted you something called avacitol. Okay? It's a powder you can buy over online. It's a little expensive. I'm not gonna lie to you, can look at other versions of it if you want, but this is the one that my daughter used you take. I think you start with like again, read the instructions, okay? But it's another thing you're not going to get a lot of instruction from. So here's what my daughter's endocrinologist told us. Tart, start with two scoops a day. If you get diarrhea, try a scoop and a half. If it doesn't go away, go down to a scoop. Okay, so you're gonna want to read about it. Okay, and don't just take it, because I told you, obviously, but I want you to look at it all right. A lot of women have a lot of luck with PCOS symptoms being curbed with this stuff. Seriously, like you'll you will see people online say, I couldn't have a baby, I started taking this and I got pregnant. Okay, so give it a shot if you want see how that goes to curb your hormonal issues, get your doctor to give you an iron infusion. Tell them that you have heard that a 70 ferritin is the absolute bare minimum for a woman of menstruating age, okay, yes, okay. Tell them that, because they're gonna say that you know 30s, okay, or 20s, okay. Tell them, yeah, you you try living my life like that. I want you to Jack my iron up so that we can see what's gonna happen. I want my iron. Jacked up. I want my ferritin higher. I want you to keep going with the B 12. I'm going to take ovacetol for my PCOS. And I'm also going to make these changes to my eating, right? Yeah, and I, and I'd like to be taken off the proton pump inhibitor so that I can start absorbing my nutrients through my food. And then you're going to take a vitamin every day. Maddie, I don't care that you're in college or that you're 19 or that it's not fun. This is me talking to Arden, not to you, so don't take this, like, the wrong way. Okay, all right, and I think you're a different person in two months, if we do all this stuff, I think you're naming a baby after me. One day, one day, I get a text and it's like, Hey, I know this is your burner phone, but it's Maddie. And here's a picture of little Scott. Okay, I married. I'm 29 and blah, blah, blah. Oh, wow, wow. Yeah. Okay, all right. Also, no reason to have a baby that early. Do whatever you want, though. Now we want to find you a nice multivitamin. Okay, to be taking. There's a lot of good ones. I'm gonna trust you to do that on your own. Don't buy it at the grocery store, okay, get something made by a nice company and take it every day the amount you're supposed to not if it says take two, I took one that none of that. Okay? Every day a multivitamin. You're going to let your body absorb those nutrients. That way. You're going to grow and learn to eat better as you get older, and you're going to get out of college where they're not being assaulted all the time, where a world where Panera bride is considered high eaten, okay, like so. And any of you who are listening, Panera Bright is not good for you. I know they sell salads that doesn't make it healthy, and if Panera Bread is listening, don't sue. I'm sure your stuff is great for people. And if

Maddie 56:39
they if they are listening, give me a gift card, because I will disregard

Scott Benner 56:43
right away and I'm broke. Listen, I'm sure there's a way to eat well, there like but that big cookie that looks like a pumpkin with that sugar on top is probably not part of it. And you know, you're washing your salad down with that cookie. So what are we arguing about right now?

Maddie 56:58
Anyway, I love Panera. I'm very passionate about Panera.

Scott Benner 57:03
I'm very passionate about Panera. Also, what else you guys love? Chick fil A

Maddie 57:09
I feel like I'm like, I'm being roasted right now. Yes,

Scott Benner 57:13
yes. This is usually when Arden goes. I feel attacked. So, okay, so you know what we're doing, or do I need to write it down for you?

Maddie 57:21
No, no, I get the plan. No, I'm with it.

Scott Benner 57:24
Okay, tell your mom. First of all, say, Mom, I need, here's what I figured out. And hold on a second. I need this entire conversation repackaged to share with a 19 year old,

Maddie 57:43
including a path of action.

Scott Benner 57:52
Also this stuff's either going to take over the world or save us. I'm not sure which yet.

Maddie 57:56
Yeah, I, I think take over the world. But it's great. It's great. Well, it hasn't.

Scott Benner 58:02
The first time I did this, I use chatgpt, and I talk to it because I'm not good with the typing. And so I'll be like, Hey, I'd like to have a conversation right now about my health issues. And then I tell it as much about it as I can remember about myself. And then I started saying that this happens to me. What do you think? And like, I'm not saying it's right, but it does hold all the ideas and then keep them in mind when it's answering. I think I've heard, I think I heard Mark Cuban recently say, think of AI as, like, a really smart friend who remembers everything you've spoken about when it answers yes. And I think that's how I feel about it, mostly not that it's always right, or that it can't make mistakes, or, you know, call the wrong thing, sometimes it gets confused, etc. It is putting out a an absolutely like a plan for you right now. Okay, that's wonderful. Give this to me so I can share it

Maddie 59:04
all right. What else? Why did you come on the pie? How

Scott Benner 59:07
the hell did you find the podcast? I

Maddie 59:09
actually remember it very well, like the exact sequence of events. About a year ago, I was in fall semester of college. I'm in marching band, which is, I love it, but it's a bunch of standing around, and sometimes adrenaline. And, you know, it's, it was wonderful for my blood sugar. It was really, it wasn't that sarcasm. And I was having lows, and I have always been fatigued, and so I just sleep through them. And so I would wake up with 70,000 Dexcom alerts, and I was struggling. I was like, I don't know how to fix this. I am like, deep in this hole, and I don't I have no one to talk to about this. I now have friends that are type one, but at the time, I didn't, and I was like, I don't know what to do. And if I you. If I go online, it's advice for this is not a nice way to put it, but it's advice for moms that think they're fat, that have hormone issues. It was so frustrating. And so I looked up everything until I went crazy. And eventually I was like, I don't know how to deal with my lows, and I feel so alone. And so I started listening to the podcast. I looked up low blood sugar, and I found episodes of this. And even though, you know, I'm not taking insulin, I'm not on a pump, I'm very interested in that part of it, and the part of it about management and just kind of the rawness of like this podcast does not expect me to be a perfect person this, by the way, you should like, pay me like, this is an ad

Scott Benner 1:00:43
right now. Hey, it's an ad to people who are already listening. What are you talking about? You got to go find people. Hey. But, I mean, I think your generation is confused, all right, I can't pay you for telling people who already like the podcast. To like the podcast, I'm being nice about

Maddie 1:01:03
something very good.

Unknown Speaker 1:01:07
I don't even know what you're saying. Seriously,

Maddie 1:01:08
I had no one to talk to about my lows, and it is very isolating. You know, no one. It's like, Oh, I know when I don't eat and I get shaky. And I'm like, That's very sweet, but no, you don't. You don't. It's

Scott Benner 1:01:24
not the same as what's happening to you. Are you saying that? Basically, you're like, look, I have a real problem here, and while this podcast probably can't fix it, at least I'll be surrounded by understanding people while I'm listening. Yes, yeah, yes. And you can feel a little comforted and not alone, and find a sense of community, even though this isn't really your community, but it's as close as you can find.

Maddie 1:01:48
Yeah, and through that, I have found, I actually found another girl my age, a little bit younger, that has it via social media and talking about dexcoms and stuff.

Scott Benner 1:01:59
Oh, wow, that's great.

Maddie 1:02:01
I honestly, I don't listen to the podcast as much anymore. It kind of served the purpose that it needed. For me. I

Scott Benner 1:02:07
completely understand the Facebook group, though. Oh

Maddie 1:02:10
my God, I am on a thing constantly.

Scott Benner 1:02:13
Excellent. That's awesome. That's great. Yeah, I don't think it can't be all things to all people, but I think that when you need it and it's there, it's pretty awesome. Yeah. Okay, I just had chatgpt Send me a document, which I forwarded to you. Okay, but between you and I, again, I think this is a fairly straightforward event. This is slowly getting off the proton pump inhibitor. This is you getting an iron infusion, not iron supplements. And do you know how to tell the doctor about that? It's it's going to take forever. I have heavy periods. Any gains that I make are wiped out by the period next month. I really need to get my iron up so that I can feel better. I think it's going to clear up my anxiety, maybe even some of my depression. It's going to help me with energy, mental focus. I think that's going to help me to be able to eat better, because I'll have more time, which I think will impact my my acid reflux. Here's my plan for foods I'm going to avoid with my acid you know, to help with the acid reflux, I'm also going to add a digestive enzyme to my meals to help my digestion go a little smoother in the beginning. I'm hoping to get off of that. I'm hoping I don't have to use that forever. I'm going to use some sort of an acetal to try to address my PCOS symptoms, which I think will help balance out my hormones, which I think will make my periods better, which I think will lessen my bleeding, which will help me keep up my iron but until then, I might need these iron infusions every six months till I get all this together. If you say that to a doctor and they don't understand or disagree with you go, you don't know what you're talking about, and then go to the next person, okay, but I think you want to have this conversation, probably with your endocrinologist, but you're going to end up needing a hematologist to give you the iron infusion. Okay, yeah, yeah. Don't not do this.

Maddie 1:04:01
No, and I definitely, I that's something I'm working on this year. I think my freshman year of college in a lot of ways, but part of it was my health. I had to survive. And I'm working on fighting for myself. You

Scott Benner 1:04:15
know, I understand the problem is that there's too much going on to do this thing. But this is, this is you putting on your air mask before you sit you look to the person next to you. Okay, yeah. Like, if you do these things, your life gets I'm going to tell you right now, just the iron infusion in the short term will change your life. Okay, no, no, no, please. You will be a different person. And the reason that I have no trouble spending all this time talking to you about this on a diabetes podcast with a person who doesn't have diabetes, etc, and then people are going to say, oh, Scott, you never talk about diabetes. But yes, I do. The reason is, is because this thing that is happening to you, I see overwhelmingly happen to people in an autoimmune community to begin with. So this is going to help a lot of people. And by the way, a lot of ladies get horrible periods that nobody helped. Them with and then they have all these other things, and then they just think they're just tired. You know what I mean? Oh, I'm tired because I have kids. I'm tired because I'm older. I'm tired because I didn't eat. Well, like, no, no, this is probably what's happening. You gotta, you gotta see the bigger picture. You know what I mean, yeah, okay, what did I just say that you needed to know about avastatal? Oh, a digestive enzyme too.

Maddie 1:05:20
Yeah, that I know nothing about, yeah,

Scott Benner 1:05:22
uh, thorn labs makes a nice one, and pure encapsulations makes a nice one. Look on Amazon for so you can see it, then you can buy it wherever you can get. Just make sure you're getting the real thing and that it's, um, you know, you're not overpaying for it. I'm going to send you a link to one of them on Amazon, just so you can see what I'm talking about. So you have the ovacetol powder. You've got the digestive enzymes. You have the word document from that we want your ferritin. Okay? Ferritin above 70 minimum, but it should be higher, but we want higher and take a good multivitamin every day. And by good, I mean by a good company, okay? Again, foreign labs makes a nice one. We use your mom going to pay for this? Oh, yeah.

Maddie 1:06:21
Is she okay? Yes, no. Seriously, like, I am very, very lucky. My dexcoms is one thing that, again, pick your battles. My insurance is awful. I have to pay a lot of money to wear one. And,

Scott Benner 1:06:34
well, I'd like to see a world where you don't need one.

Maddie 1:06:37
Yes, and I'm getting closer. Oh, I'm getting closer. I think

Scott Benner 1:06:40
you get your hormones straightened out. It's possible this goes with it

Maddie 1:06:46
right, or at the very minimum, because this is what my endos say. And I'm like, I'm not physically able to do this. If I could feel myself going low before I get to 55 I wouldn't need a Dexcom. But I'm getting to 55 and I'm like, oh, yeah, maybe I don't know where I am right now. Like, I don't feel it at all.

Scott Benner 1:07:06
I hear you. I hear you. And so maybe these things actually help with that too. Yeah, yep. Maddie, as far as I'm concerned, you are one good doctor's appointment away from feeling better. If I was there, I would fight for you in those doctor's appointments. You're gonna have to do it yourself. Get the mom to do it with you too. And I'm gonna say this too, you've done a thing here today that doesn't usually happen. You made an episode with me. I'm gonna rush through and put up really quickly, because I want you to be able to listen to it damn because I think it's gonna help you. So I'm gonna send this off to the editor today. I'm gonna tell him to do this one first, and I'm going to try to put it up next week or the week

Maddie 1:07:42
after. I know it's because I'm great, I'm great TV. Everyone loves me. Maddie, listen,

Scott Benner 1:07:46
Let's not get crazy. It's so that you. I just want you to be able to share it with your mom so she understands where you're coming from when you start jibber jabbering her about to her like, Mom, I went on a podcast. This old man told me that he thinks I should get an iron infusion, and you're in, your mom's going to be like, Oh, honey, come home. We didn't realize you were so unsafe at school. Okay? So

Maddie 1:08:03
we don't know. This is right up my alley. This is right up my alley. Oh,

Scott Benner 1:08:07
this. This fits for you. I think so. Okay, listen, even if you're not listening to the diabetes stuff anymore, go back into the feed and find the I don't understands with Arden, I think you'll enjoy them.

Maddie 1:08:20
Okay, I've listened to a couple with her, and I feel like, I feel like we'd get along.

Scott Benner 1:08:26
I'm sure you would, but we're doing a new series right now. It's Arden and I talking about things she doesn't understand. So we've done so far, so far, we've done how fingernails grow, what blind people see. Those are out. You're soon going to get ones about like she doesn't understand money. We talk about being

Maddie 1:08:46
judgmental money. I don't understand money. Okay? Being

Scott Benner 1:08:50
judgmental. What did we record yesterday? God, yesterday we did. Hold on. Let me pull up my list. I record so many podcasts. I swear to God, I don't under I don't remember anything. Oh, internal monolog. When you're thinking, can you do hear a voice? Oh, yeah, you do. And if I asked you to close your eyes and picture an apple, can you picture it?

Maddie 1:09:16
You know, I can't. That's crazy. Well, I'll take it a step further. I actually also have synesthesia, so I read letters in color, and it happens when I read cheat music too. Really,

Scott Benner 1:09:26
I don't hear an internal monolog, like, Arden's like, when you think, what do you hear? I'm like, I don't hear anything, but I know the words are there. She's like, I don't understand. I'm like, I don't understand that you hear

Maddie 1:09:36
something. Yeah, it's like, it's like, me, but different,

Scott Benner 1:09:40
super interesting. So check those out, because that's her and I, by the way, I sent her back to college with a microphone. So now we, like, get together once a week and we're recording them. I love that. It's fun. Okay, Maddie, I'm gonna let you go. You have to go learn some more, and probably sleep. You're probably exhausted, and by the way, sleeping doesn't help you at all. Right? No, no. Know you wake up just as tired as when you went to bed. Yeah, yeah. I feel so bad for you, honey. This happened to me, and I know, I know what it is, and it's really terrible. And so the iron infusion is step one. You should call your mom right now and say, I need to get an iron infusion. Help me get an iron infusion? Yeah, okay. And call her mommy and tell her you love her, because the she'll probably just do it. No, she

Maddie 1:10:22
knows. She knows I'm asking for something. If I call her mommy,

Scott Benner 1:10:26
I know we all know, but it still works. So just do it. All right, hold on. One second. We're done. You were great.

Maddie 1:10:32
Thank you. Yeah. Thank you so much. Oh, of course, it's

Scott Benner 1:10:35
my pleasure.

I'm OmniPod five sponsored this episode of The juicebox podcast. And to get rid of your fomu, go to omnipod.com/juicebox. That's omnipod.com/juicebox. No more fomu. I don't want you running around with a fear of missing out on OmniPod. This episode was sponsored by touched by type one. I want you to go find them on Facebook, Instagram and give them a follow, and then head to touched by type one.org where you're going to learn all about their programs and resources for people with type one diabetes. Hey, kids, listen up. You've made it to the end of the podcast. You must have enjoyed it. You know? What else you might enjoy? The private Facebook group for the juicebox podcast. I know you're thinking, Oh, Facebook, Scott, please, but no. Beautiful group, wonderful people, a fantastic community juicebox podcast. Type one diabetes on Facebook. Of course, if you have type two, are you touched by diabetes in any way? You're absolutely welcome. It's a private group, so you'll have to answer a couple of questions before you come in, but make sure you're not a bot or an evildoer. Then you're on your way. You'll be part of the family. Thank you so much for listening. I'll be back soon with another episode of The juicebox podcast. The episode you just heard was professionally edited by wrong way recording, wrongwayrecording.com, you.


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