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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Type 1 Diabetes

#1339 I Don't Understand... Jenny Four

Scott Benner

Jenny doesn’t understand why everything you can eat is called food.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Here we are back together again, friends for another episode of The juicebox podcast.

Jenny's back, and today we're going to talk about what we call food in another episode of I don't understand. Please don't forget that nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. If you are the caregiver of someone with type one diabetes or have type one yourself, please go to T 1d exchange.org/juice, box and complete the survey. This should take you about 10 minutes and will really help type one diabetes research. You can help right from your house at T 1d exchange.org/juice, box. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D drink, ag one.com/juice box. If you're looking for community around type one diabetes, check out the juicebox podcast. Private Facebook group. Juicebox podcast, type one diabetes. But everybody is welcome. Type one, type two, gestational loved ones. It doesn't matter to me, if you're impacted by diabetes and you're looking for support, comfort or community, check out juicebox podcast type one diabetes on Facebook. This episode of The juicebox podcast is sponsored by Medtronic diabetes, and later in this episode, we're going to be speaking with Heather, who will talk about the importance of education and understanding the impacts of hyperglycemia, Medtronic diabetes.com/hyper, this episode of The juicebox podcast is sponsored by cozy Earth. Cozy earth.com use the offer code juicebox at checkout to save 40% off of the clothing, towels, sheets off of everything they have at cozy earth.com. Jenny, welcome back. We're going to do another I don't understand today. Yay. Today, we're going to pick from your list again, and we think we're going to blend together two of your ideas off the list. But basically we're going to talk about food cool. So we'll start with your I don't understand you said. I don't understand why we call everything that we put in our mouth and eat food, which I took to mean you guys are eating some stuff you shouldn't be eating. And let's find out what that is so. But what was your big idea like? And also, let's be clear, you were traveling. You had a lot of free time. You were thinking about this, you got yourself upset,

Jennifer Smith, CDE 2:44
like, well and in travel, what? What do you see, especially when you're traveling in an airport or on an airplane, what do you see?

Scott Benner 2:55
It's all prepackaged, like frozen stuff that they heat back up again, stuff I can take in a bag with me, and also it's four times the cost it would be if I bought it somewhere else. That's what I know,

Jennifer Smith, CDE 3:06
absolutely 100% but it's the I guess. What brought it to mind was the convenience factor. I understand we're busy. People are busy in today, but, you know, I grew up thinking about food is something that I put in because my body needs nourishment, right? It's a basic necessity of life, just like water is, yeah. And so as we've moved on in ages, more and more products have come to market, but that quote, unquote, food that we put in isn't always nourishing our body the way that we're supposed to be nourished. We may be getting calorie value from it, which our body works, but is it really providing all the nutrients that our body requires?

Scott Benner 3:57
I don't know some, right, but not all, because they do pump that stuff full of like, I mean, they say they full of vitamins, but I don't you know what I mean. Like, you don't know. You're wondering over and you're like, there's vitamin B in this. Like, you don't even mean, like, that kind of an idea, yeah, right. It's funny too, because I'm making a supplement. I'm making a short series. I don't know if I told you this or not, but I went out to the Facebook group and I said, I don't care how crunchy it is or weird or anything, tell me every supplement you take. And I ended up, wow, ended up with a list of like, 88 things that people use, right? So I'm like, Well, what am I going to do with this list? So what I basically did was I, you know, I go to the internet and I say, like, you know, I don't know, vitamin D, and I get a breakdown of it. This is what it does. This is what you know. This is what this is what you can hope to get from it. Here are things you might want to be cautious about. Here's how it's generally dosed. And in like a five minute episode, I talk about vitamin D. And then I went to the next one and the next one, the next one. And what I thought was people can listen and decide for themselves if this is something they want to look more. We're into, but I find myself saying almost in every one, like, make sure you're getting a high quality vitamin. So I just was thinking, like, how high quality could it be if I'm putting it into, like, some processed food? Because I have to be able to say it's got some value nutritionally Correct, right? And

Jennifer Smith, CDE 5:16
that's why, you know, again, from a legal standpoint, products that have been really, really processed, meaning they took all the nutrient value out of them in the processing, then they have to be labeled as enriched and fortified, right? Because what they took out to be able to provide some nutrition value, they have to add back. And then your question is 100% valid. What does our body do with something that's been synthetically added back to replace what was naturally there in in the beginnings of what was really food, right?

Scott Benner 5:52
Probably not much. It's my expectation. You know, at Christmas last year, I bought a candy cane from this guy that makes them by hand, right? Yeah. So there was not like, you know? So I'm like, Okay, I wonder what a handmade candy cane tastes like. And I got it, and it was fine. It was good. It wasn't super excited or anything, but at least when I ate it, what I knew was, this is an indulging thing here. I'm not joking myself into believing that there's something in this candy cane that is gonna, like, benefit my overall health or well being, no, right, right? This is just sponge sugar mixed with whatever the hell else it is, yeah, and that's it. I'm taking your point, right? Like, things are packaged up in a way where you're like, Well, this is food, right? But, like, a cheeseburger from a fast food place is not you going to the grocery store buying beef and making your burger, making a burger yourself. And I'm trying to use something that's, you know, whether you make it yourself or not, like, this is not an incredibly healthy decision one way or the other. But like, still, in our minds, it's, they're both cheeseburgers, so they both have the same thing. And we think of them, I think, generally speaking, like it's the one we made ourselves. And so if you kind of extrapolate that out to Lunchables, for example, or something like that, or like lunch meat, is there a world where you'd ever go to a deli counter and buy like, sliced turkey or ham or something like that? The podcast is sponsored today by the place where I kept my oh gosh, my sheets, my towels, some of my clothing, a lot of the things that I stay warm or comfortable with, cozy earth.com I'm wearing a pair of cozy Earth joggers right now. I've recently gotten another pair in a different color. I sleep on cozy Earth sheets. They are so comfortable and soft and temperate, temperate, meaning I'm never hot or cold, which is really saying something, because my wife loves to turn that giant fan on, but they keep me nice and warm without making me, like, sweaty or moist. You know what I mean? You don't want to be moist while you're sleeping. And then, of course, the waffle towels I use every day to dry off my bits and parts after I've showered. Cozyearth.com, use the offer code juice box at checkout to save 40% off of your entire order. I'm not saying 40% off of one item. I'm saying 40% off of everything you put in the cart. Cozyearth.com, use the offer code juice box at checkout. This episode is sponsored by Medtronic diabetes. Learn more about hyperglycemia at Medtronic diabetes.com/hyper

Speaker 1 8:27
Well, Hi, I'm Heather lackey. I am a wife and mom. I have two children that are seniors in high school, and I've had type one diabetes for 34 years, and I'm a dietitian and a diabetes educator. You know, I'm the Director of Global Medical Education. I lead a team of clinicians that are developing content. How do

Scott Benner 8:50
you feel when your blood sugar's high? Irritable,

Unknown Speaker 8:52
thirsty, hungry.

Scott Benner 8:56
What do you enjoy most about your job? See

Speaker 1 8:58
education working. See people thriving. That's kind of the fuel that feeds, you know, my fire.

Scott Benner 9:06
What would you like to see community members talk about more hyperglycemia

Speaker 1 9:10
is the critical thing, right? That leads to short term and long term complications. Hyperglycemia is the greatest unmet need and the treatment of diabetes currently, and I think that that's where technology can help if

Scott Benner 9:25
you're having trouble with hyperglycemia and would like to talk to other people in the diabetes community. Check out the Medtronic champions hashtag, or go to Medtronic diabetes.com/hyper

Jennifer Smith, CDE 9:37
we go to a place that actually has do I buy sliced I don't eat it. My kids don't eat it. My husband does eat turkey and chicken. But I go to a place that's actually farm. Oh, okay, so there. So we have some place here that supplies stuff. I know where it came from. I could go visit the farm if I really wanted to. Yeah, I know what went into the product, and I know that that's. From a standpoint of everybody's availability, that's not everywhere. I get that entirely at a deli. You still have options your grocery store. You've got options in different deli cuts and different brands and things like that. And I think in terms of what I view as what should be called food, it should have the least amount of processing in the least amount of ingredients, right? If you're getting deli chicken, what's in it? Can you read all the ingredients? How long was it? You know, you know what I'm saying? Yeah,

Scott Benner 10:28
I do a thing where I just get, I'll get a turkey breast from the store, and then I'll either bake it or smoke it and then slice it myself. But I listen, I'm nowhere near where you are on all this. And I don't mean that, like, pejoratively, but like, I look at deli meat, I'm like, That can't be good. Like, do what I mean. Like, it feels like it's been pressed together and it's just wrapped in plastic, and they unwrap it and they cut it and they put it back in, but they don't cover it up. But I'm like, Ah, well, that seems wrong to me. Oh, yeah, yeah. And I just remember somebody telling me at some point that, like, salt and nitrates, or something, was very high in deli meats. And I was like, Okay, well, I'll try to avoid that then. But you can look at that and just think it's Turkey, right? Yeah, right, yes.

Jennifer Smith, CDE 11:12
So we've been, you know, all along, I think we have set up a we've set up the equation for people to incorrectly or understand that broad term of food, because we don't get we get math in school, we get how to read. We get, you know, basically, how to understand science, etc. But what we really should be getting as humans is a baseline of education from kindergarten through at least High School of Nutrition, what is

Scott Benner 11:48
food? Why am I? What is food? Why?

Jennifer Smith, CDE 11:50
What physiologically happens? You know, kindergarten, you learn the food groups as the grades go on. What are the nutrients? What does that do in your body? Like your understanding of vitamin D, right? Is it a quality source? What does it actually do in your body? Why do I need it? I think we'd have a healthier overall society if we really understood food and its purpose in our body.

Scott Benner 12:15
But you made such a good point a moment ago, like the availability for people. So I just looked up like, why do we process food preservation, safety to eliminate microorganisms, convenience, taste and texture? Who knew that processing can improve the taste of certain foods by adding ingredients like spices, sugars or fats and changing the texture? Food processing methods can change the texture of foods, making them more appealing or easier to consume, I have to tell you. I'm sure I've told you this in the past, but when my kids were little, I used to buy them frozen chicken nuggets, and then one day, I was like, What am I doing? Like, why don't I just buy the chicken and cuddle up myself and make my own nuggets and texture, like the texture my son bit into it, he goes, this isn't chicken. And I'm like, Oh, my God, that's crazy, like that. That's chicken. It really is. And he goes, that's not what this tastes like, like the feeling in his mouth. So it can, you know, if you process it, it says you can fortify it, concentrate nutrients from mass production to feed large populations, cost effective cultural and traditional practices like pickling and fermenting, but that's not what we're talking about. Of course, the drawbacks are nutrient loss, additives and preservatives, and then highly processed foods often contain little nutritional value and may contribute to poor health. So so what starts out as let me see how old I can sound here. My grandmother used to buy tin cans of Charlie's chips. Do you know what that is? So I don't know what she would get. Okay, oh, boy, man, I guess I'm pretty old. Okay, here we

Jennifer Smith, CDE 13:50
go. Either that or your grandmother did different things. I

Scott Benner 13:53
don't know. I know, you know, like the idea of, like, a holiday popcorn tin, like, you know, like, right? So when my grandmother went to the store to buy potato chips. Her potato chips came in one of those bins from a company, and they were called like, Charlie's chips. And I'm okay betting, if I could go back into a time machine, I would learn that Charlie's chips were potatoes, salt and fried and grease. And I'm probably right. And now, because this was good, this is the 70s, right? So, I mean, maybe not, but my expectation is that somewhere along the way, that's how my grandmother ate a potato chip the first time, and then eventually it became what it is now, right? And so when you stop and think about like, even like a like, I'm just gonna say like, a very popular Nacho chip, will say that, right?

Jennifer Smith, CDE 14:38
That's a good way to say, what a yes, very kind. We all know.

Scott Benner 14:42
Everyone who's been on this planet knows that if you lick whatever that is off that chip, you're like, This is so good. I don't even know what this is, right? But I bet you, if you broke it down, like, in our minds, we're eating a corn chip with some like flavor on cheese on Yeah,

Jennifer Smith, CDE 14:57
they think it's cheese, right? It says nachos.

Scott Benner 14:59
Cheese on the bag, and so, but that is not what you're eating. You're not eating my grandmother's potato chip with a little bit of cheese on it, or something like that. And so over time, that's happened to everything. Yes, yeah, everything, yeah, really, even to the point where, you know, even the people will tell you I would I was overseas, and I heard somebody say recently, it was overseas, and I had a peach. I picked a peach off a tree, I ate a peach, and I bought I bit into it, and I thought, This isn't what a peach tastes like. So, like, even our fruit and everything's modified in one way or another, right? Because it's the yield, right? But how much of that is about the size of our country, because this takes us into your other I don't understand, which is, why does the US allow ingredients that other countries will will outlaw,

Jennifer Smith, CDE 15:51
right? And I think that you actually the peach story reminds me, years ago, for an anniversary, my husband, and I went to France, and it was a little like grocery store, like around the corner, and we went and we got a couple of things, and one of them was yogurt. And I opened the yogurt and it looked different, and I tasted it. And we ate yogurt so much while we were there. It was the tastiest yogurt, honest. It's the peach story, really. It was, my goodness, like, this is not Americanized yogurt, and it tasted like just really good. I don't know what the difference in it, but it was really, you cannot, and I don't really eat very much dairy now. So maybe there are some things that are on the market that are similar enough, but I mean, it was very different. And so that brought in that other thought, like, I don't understand why, despite having smaller populations in in area Europe, is still a really big place.

Scott Benner 17:01
It's not, they're not feeding 20 people, right? They're still, they have a they're smaller and they have a smaller population, but they still have to cover their population with the size of their industry. So, right? So understand,

Jennifer Smith, CDE 17:13
no, it could be, but then why are we like, don't we want our US people to Healthy People, right? Do you know that's my problem. You're confusing

Scott Benner 17:25
someone sitting on the board of directors somewhere is like, How much money are we making this month with right? Yeah, it's like, everything else. Listen, social media is a great example, right? Like, you know, because you and I, before we started recording, Jenny was listing out her, gripes with her gripes with the world I don't

Jennifer Smith, CDE 17:43
understand. Yeah, and listen,

Scott Benner 17:45
the first time you open up Instagram or Tiktok, you go, Oh, wow, my God, this pictures are everybody blah, blah. The 10th time you do it, you're like, Ah, I'm good. Like, you know what I mean? Like, I've seen this already. So how do we up the ante to keep you coming back to the app? I think that's what happens with the food as well, right? Like, let's just keep upping the flavor. Put more fat in it, more sugar, more salt. Like, so that you're just like, oh my god, this is awesome.

Jennifer Smith, CDE 18:08
Those are the top three, if you look into any food science. I mean, there are, there are lots of different books all about it, right? Supersize Me, all of those different options to look at. They focus on those three ingredients, sugar, salt and fat, yeah, and the food industry has figured out how to marry them to the point that they are addicting. Yeah.

Scott Benner 18:29
Do you want me to tell people the thing you told me that we looked up to see if it was true, and it looks like it might be sure that in 1988 Philip Morris bought Kraft Foods. Acquired Kraft Foods, a major food conglomerate. So, uh, so basically, a tobacco company that made cigarettes was like, Hey, let's buy a food company. And a couple years earlier, it looks like RJ Reynolds bought Nabisco, yep. So then there's reasons that it might make sense, you know, for the for them to diversify like that. Obviously, they had to shift away from tobacco because it was becoming less, you know. And

Jennifer Smith, CDE 19:07
do you, I mean, if you really think about it, then do you really want? Are those the people that you want putting quote, unquote, food in your mouth? Well,

Scott Benner 19:15
they're money people. It's hard, but that's what. But they're money people. When you stop and think about like they were in the cigarette business. They had something that, you know, they made that was really addictive. And they were probably like, hey, people aren't smoking as much. They're not going to stop eating. Why don't we shift over here and keep going? And obviously, it worked out pretty well, absolutely, for them, but not for us.

Jennifer Smith, CDE 19:39
Yeah, right. Look at the health of our country, right, right. We've got phenomenal emergency care. But why? It's because as a nation, we've continued to get sicker and sicker, and That's atrocious for all of the knowledge that we have. But

Scott Benner 19:52
then they'll just but then that same money will probably just go buy like a healthcare system,

Jennifer Smith, CDE 19:56
sure, and new medications and new things. Put band aids on the problems that could easily be fixed by people just eating an apple. Yeah.

Scott Benner 20:05
So we went, we went on, by the way, if you're listening and this is your life, don't, but don't get mad at us. Like, I mean, like we're not blaming you. This is the situation. Like, I mean, honestly, I thought you said it a minute ago. I think it's worth repeating, convenience, cost, you know, etc. Society is set up like this to support this kind of food. Now you can't just to just dash off and go, I'm not going to be involved in this anymore. Like you. People probably don't have the knowledge of where to start. You grew up with your mom making food that she grew like, so you have some I did knowledge about it, right and how to handle it. You're predisposed to do those things. But if I just asked you to, you know, if you didn't grow up that way, and I just asked you in your 40s to just shift all of a sudden, like, Hey, Jenny, go start making your own yogurt. All you need is a goat. And you'd be like, Hey, listen, what happens? Happen? Sorry, you know? Like, Oh, I

Jennifer Smith, CDE 21:00
did years ago, actually, I bought a yogurt maker after I did you were laughing. Although we have toyed with buying our own chickens, and just because we can have chickens, but we've not done that. No

Scott Benner 21:16
doubt in my mind that you've thought about buying chickens, not at all.

Jennifer Smith, CDE 21:22
They have the best eggs. They're fresh. They're always there. You know, I

Scott Benner 21:25
would love that. Listen. We went on an, I said, on the podcast, so people might know. But like, we went on a family vacation for the first time in years recently, and we went off to, like, a warm location on an island, and just sat around for a week, and my kids came, Kelly, myself and my son's girlfriend, and we got home, and we weren't home for like, 48 hours, and my son goes, Hey, you know, the entire time we were on that island, I got up eight, went to the bathroom, everything was as normal as could be, and I'm home 24 hours, And my stomach's upset, like, just like that. He's like, he's like, it's the food, right? Because he's like, 24 he's like, right? Like, am I seeing this correctly? And I'm like, Yeah, I don't know exactly how, but I think so, yeah. So especially

Jennifer Smith, CDE 22:15
if the food on the way home. Travel wise, again, you know, as we started out talking about travel, food is really hard on your system. Travel, in and of itself, is hard on your system. Most people get dehydrated when they're traveling, especially through flight. So absolutely, he was right.

Scott Benner 22:32
I remember the first time that I said to you, like, I don't understand when you're on a long car trip and you stop for gas, you don't get food. And you were like, No. And I was like, Well, where does the food come from? You were like, I bring it from home. I was like, oh, fascinating.

Jennifer Smith, CDE 22:46
He looked at me, like, how the crazy lady, that's

Scott Benner 22:50
such a good idea. But no, yeah, so Cole's, Cole's input was from his own personal experience. Was even though we were eating in restaurants every day, usually, but we did shop at the grocery store. But in fairness, the grocery store there was insanely expensive, I'm sure, but still, he's like, my stomach was like, great the whole time we were there. And he's like, I got home and like, he's like, I'm not eating crazy stuff, in my opinion, and I don't feel well all of a sudden. And so, I mean, it's, Listen, I'm not a doctor, right, and or anything, but it's got, it's got to be this. It's what's in the food. Like, we're all and then we run around patching up problems. And, and I grew up in this, you know what I mean? So, I mean, I was, like, really broke growing up. So we ate, like, garbage food, like whatever was available, stuff and, and I actually grew up with people who thought that, like, you know, some of that packaged food, which I'm sure in that time, a lot of people thought they saw it as, like, amazing. They were like, sure, you know what? I mean, like, there's a cookie. It comes in a bag. You don't have to bake it Isn't that insane, you know, like, that kind of thing,

Jennifer Smith, CDE 23:51
or TV dinners. Let's bake it in aluminum foil and,

Scott Benner 23:55
oh my god, yeah, the turkey with the fake gravy and the fake stuffing. See, now you said that, and I'm like, Oh, why don't they make those anymore? Those were good. Right away. I was like, Oh, awesome. I remember those. The gravy, like, yeah, the gravy was, like, thin. You'd like, whip it up a little bit try to make something happen. The potatoes were, like, hard

Jennifer Smith, CDE 24:18
potatoes, no, sort of what they were, but, but you'd put some butter

Scott Benner 24:22
and salt and pepper on and you're like, This is passable.

Jennifer Smith, CDE 24:26
But I remember the first time I had potatoes at a friend's house. I had gone for dinner, and her mom was also was not. She wasn't the cook that my mom was. She did the best that she could, you know, but she had mashed potatoes, and I tasted them and I ate them because I was very polite that just, you know, I was raised that way. And I came home and I was like, Mom, I don't know what you do different with your potatoes, but we had potatoes that were supposed to be mashed potatoes. They were like, they were like, wet and sort of like they were, they were just. Really, really soft. Yeah, do they go? They were probably boxed powdered potatoes, water powdered potatoes. Like, are you seeing my mom? Like, chop them up, boil them, smash them, you know, blend them up, whip them with the beater, and put butter and, yeah, with our mashed potatoes,

Scott Benner 25:15
maybe even a little sour cream in there to reach them. Listen, I'm going to tell you right now you've now again, this is really interesting. You have, like, fired off young broke Scott memories, those box mashed potatoes. If you made them thicker, if you didn't put as much liquid in, they were awesome. But I know they're not. I know if you gave it to me right now, I'd be like, I don't know what this is. I don't want this. But as a kid, growing up, I don't know, like, it's right, it's one of my memories. Listen, we say this all the time here. I don't know if we say this. I don't know if I've ever said this on the podcast or not, but my wife like she eats well, because we're older now and she understands. But if you asked her to go pick the things that really fire off the memory centers for her. It's like she grew up in a trash can, like, the stuff that really like, she's like, Oh, this. Like, I'm seriously, like, listen to this. So I won't tell her, like a garbage person, like, she she, if you left her to her own devices, she'd be like, Oh my God. And she'd say things that you'd be like, those aren't real foods, but it's the stuff she remembers from being a kid, sure. You know, I guess it just sticks to I have some stuff here. I asked chatgpt Why the US allows food additives that other countries have outlawed. It says, I'm curious. Some reasons might be regulatory framework differences,

Jennifer Smith, CDE 26:35
but right there, right there, regulatory framework differences, right there is Europe. Does it better? Because the citizen, I just feel like, the citizens are like, I'm not eating this, and we don't want our citizens eating this. Why do we want our Americans like, don't we care about each other?

Scott Benner 26:53
Yeah, the two so the two entities, the FDA and the EFSA, use different criteria and processing for evaluating food additives. The US tends to rely more on industry provided safety data, and has a high and has a they wouldn't lie about this, that has a higher threshold for banning substances, whereas the EU often applies what they call Precautionary Principle, meaning that substances can be banned if there's even a potential for harm, even if the science isn't definitive,

Jennifer Smith, CDE 27:20
right? So they're all the food, food colorings,

Scott Benner 27:23
yeah. Well,

Jennifer Smith, CDE 27:24
so the easy one, what you're

Scott Benner 27:25
just hearing here is there's a referee. And in Europe, the referee goes, I'm going to side on the side of the people eating the food, and our referee goes, I'm going to side on the side of the people making the food. Now, why could that be? Well, because lobbying in an economic interest. The Food and Chemical Industries in the US are powerful and have significant influence over regulatory processes through lobbying. So they're making the food and the rules about how the food is okayed

Jennifer Smith, CDE 27:53
and who's lobbying for your food. Who did you say from 1988

Scott Benner 27:57
Yeah, it might be, or it could be a an old tobacco company. I mean, what a cookie company. I guess you're right. Like,

Jennifer Smith, CDE 28:07
I just, I just want people to be smart. That's just it. I want

Scott Benner 28:10
everyone to know that. Before we started recording, Jenny told me she made her own baby food for her kids. I did.

Jennifer Smith, CDE 28:18
So I was eating it anyway. What's right? I mean, why?

Scott Benner 28:21
No. But I mean, like, you know, you got put on the right first foot as a kid, and you stuck with it. Also, you stuck with it, probably a little bit because of how you were raised, but also, I think, because you got diabetes too when you were a kid, so it was probably easier on you to eat real food too, right? I mean, listen, there's no doubt that a lot of the conversations that people have, you know, in the Facebook group and everything, they're like, I mean, they're eating stuff that I'm like. If you ate something different, this would definitely be easier. Now, I'm not into telling people how to eat, because of all the things that we've listed here, you know, finances and, you know, I mean, they could be addicted to it by now, like, you know, whatever. Like, there's 1000 reasons why people are eating the way they are. I want them to be able to cover their food well with insulin and not, you know, correct compound issues. But the truth is, the you know, the simpler the food, the simpler the ingredients, the simpler the bolus things should be as well,

Jennifer Smith, CDE 29:14
for the most part, correct, absolutely. And you know, there is no lie in that there are food deserts. And when they talk about food deserts, we're not talking about there's no food available. But in the beginning of this, like defining the word food, right? There's truly no real food available in a food desert, there are things that provide calories, fats, proteins, sugars, yeah, but are they really providing quality in which food in itself should provide? Yeah, no, it's

Scott Benner 29:49
back to your original point. Like, I don't understand why we're allowed to call all of this food, right, right? Because it's not. It's not, there's nothing. It's food ish, maybe, right? Right? But, yeah, but you're saying that there are people who live in places where their only option for breakfast is Captain Crunch or something like that, and right, you know, and their stuff is everything they're able to buy is boxed or processed. It's easy to say, like, I mean, listen, it really is easy to say, don't buy anything in a bag or a box. You'll probably be better off. But how are people supposed to accomplish that when the world's been now set up this way for them? So that's really probably the biggest thing. Is that in Europe, where we're talking about, in other places, their lives are set up differently, differently. And it's true. Like, if anybody who works with anybody who works in America and has an office overseas, you'll hear them complain, like, man, they take off a lot. Or, like, you know, when they go on fake hair, they have a baby. Like, in Canada, like, I work with this lovely woman who, like, I met and, like, we were starting to build up a rapport, and then she's like, Well, I'll see you next year. I'm having a baby. I'm like, What shit? Yeah, like, she just get

Jennifer Smith, CDE 30:54
a baby. Here, they get a year maternity leave in Canada, and then they will reserve your at least. When I was working with a couple of people who I worked with for pregnancy in Canada, a year maternity leave paid at least to some degree, and they will reserve your job for you unpaid for another year following that. Yeah,

Scott Benner 31:14
no, it's it. Listen, my wife was riding the train right up until, like Cole was coming out, trying to save up time to be with the baby after he was here and but my point is, is that if their society runs differently, then maybe they have more time to come home and make chicken nuggets out of a piece of real chicken, is my point. Yeah? So it's, he can't blame any like, it's not, it's not a blame game. It's like, it's no, it's the way we set the country up, is it put us in a situation now, right?

Jennifer Smith, CDE 31:42
I guess what made me really think about it as a like I don't understand, is hoping to bring to light that there are some things that maybe people can start to think about right in considerations, especially if you have the ability to do so, the smallest little changes can lead to another change can lead to some improvement. And we're all talking about diabetes management here. The simpler the ingredients, the less the ingredients, the more they're real food ingredients, yeah, honestly, everybody wants it to be a bit easier and less cumbersome to navigate. Blood sugar after food intake.

Scott Benner 32:20
Yeah, and you hear so many people with type one talk about, like they have digestion issues, and we've talked about that before, but like, you know, is it because you're trying to digest, you know, sweeteners cardboard that's in something like, I mean, listen this artificial colors and sweeteners, some food additives that are banned in other countries, such as certain artificial dyes and sweeteners remain widely used in the US due to their low cost and long established use. While these ingredients have raised health concerns like links to hyperactivity in children and cancer risks, the FDA maintains that they are safe at current consumption levels, but it goes on here to talk about it just picks a certain ingredient to make a point with, and it just struck me, brominated vegetable oil. Bvo is an emulsifier in some sodas. Now, I bet you, when you drink a soda, you think, well, the liquidy parts water, that for sure, unless it's brominated vegetable oil, like it's banned in Europe, but allowed in the US, despite concerns about its effects on health, it's approved. Its approval has not been reversed, in part because the industry lobbying and slow regulatory response. So you know, every time you pay a soda company, they take a couple for themselves and a couple to fight about so they can keep selling you more soda. I listen, I'm I'll have a soda sometimes, and I know when I'm drinking them, I'm like, This is not good for me. But I sometimes see people go down the soda aisle in the grocery store and they have so much soda in their cart. Like, yes, and I'm not one of those people, but you, like, part of you, just wants to grab them and go, please don't. Please don't, yeah, yeah. Like, that can't be right. You know what I mean, the

Jennifer Smith, CDE 34:00
biggest time that I see, very big carts full of soda or that type of thing? It's usually around the time of the big sporting events, right, where you're celebrating the Super Bowl, or some big sporting celebration, the Fourth of July, any of those things where, you know you got to drink something, heaven forbid, you would just drink water because it's so hard to find.

Scott Benner 34:28
Well, I want to, I want to stick up for other people. Water sucks. You know why? Because it tastes like nothing, but. But my point is, but, but to not joke about it. There's an example of, like, I need to be hydrated, right? And a glass of soda is not going to hydrate me the same way an equivalent glass of water would, right? But like a baby, I'm like, but I want it to taste good. And by the way, if we had more time, we could relate that back to your thought, which was, hold on, it's not going to. Yeah. Why are we? Jenny was off on a tangent earlier. Why are we afraid to feel emotions? How come people think they always need to be happy,

Jennifer Smith, CDE 35:09
like, happy to the nth degree?

Scott Benner 35:14
I'm putting that on myself about the about, like, water, like, just drink it and shut up. And now you're not thirsty anymore. Go on your business. Take a nice pee. It'll be over. Here's some other examples of additives allowed in the US, but banned elsewhere. Potassium bromate, which is used in bread products in the US, but banned in the U EU, Canada and other countries, due to concerns about carcinogens. So keep in mind too, even bread like I have a bread maker, I'll make bread in it goes bad pretty quickly because there's no preservatives in it, but it does not taste like whatever bread from a store tastes like at this point. Do you know what I mean? You know? I don't know. It's completely different. RBGH, recombinant bovine growth hormone is allowed in the US for dairy cows to increase milk production, but banned in the EU and other regions because of its potential health risks for the cows and the humans. And then something here I can't even azo dicarbonide, carbon carbon amide, a dough conditioner used in bread in the US, but banned in Europe and other countries due to its links to respiratory issues. So when I make bread, it's flour, salt, butter, a little bit of sugar.

Jennifer Smith, CDE 36:34
I use yeast or no, yes,

Scott Benner 36:36
yeast, that's it. That should be it. I think that's the five ingredients. I don't have a dough conditioner in it called azodicarbanamide. No, so, all right, so why are we allowed to call this stuff food? Jenny,

Jennifer Smith, CDE 36:50
right? Did we answer my question that these aren't they're not food.

Scott Benner 36:55
I mean, I think we I don't want to sound like a conspiracy nut, but it sounds like to me that the answer is money.

Jennifer Smith, CDE 37:02
Regulatory being fed by the

Scott Benner 37:05
money. Seems like money's the answer, but, but, yeah, so companies listen. Companies own stuff. They want to make more money. They find ways to do this. Now, the other thing is, you wonder, like, how many scientists did we have to, like, hire until somebody figured out that recombinant bovine growth hormone made cows make more milk. I don't know. I don't know what the other well, I'd love to hear the other side of the argument, like, what's the other side? Like, where are we going to get enough cows to make milk? Yeah, also, I would imagine this, let me I'll sound old again for a second. There are nine different types of milk in my grocery store, like, nine different brands from different companies. I bet you, if it wasn't so easy for me to grab milk that when I poured it, I would take exactly the amount I was going to use and no more. Come on, everyone's like, filled up their cereal bowl, eating their cereal when they're done. Like, there's a big pool of milk at the bottom right. Like, that was extra milk you didn't need. Jenny doesn't need cereal, but if she did, she'd understand what we were talking about. Were talking about. My point is, is that I want things to be readily available for everybody, but maybe there's that feeling of it's there so I can have more of it, or I can waste it like there's nothing special. You know what I mean

Jennifer Smith, CDE 38:16
that could be and, you know, commodity food, obviously, right? I mean, a lot of the public school systems get, sort of their food comes from more commodity types of options, so that it's not as expensive to feed. Thankfully, we have public school food systems, because there would be a lot of kids who wouldn't get one or even two meals a day, unfortunately, right? They're needed. I see the other side of it entirely. I do, but I my bigger picture is, why can't we just clean it up for everybody? Like I just, I don't understand how we can think that it's okay to keep things so unhealthy. People are getting rich in a way, yeah, by keeping other people sick,

Unknown Speaker 39:05
yeah? And it makes

Jennifer Smith, CDE 39:07
me really sad,

Scott Benner 39:08
yeah, or on just the wrong path that eventually catches up to them, right? Yeah? No, I listen. I can remember, like, crystal clear. I went to the grocery store with my grandmother once, and she died when I was 13. So I was pretty young. This is a long ass time ago, is what I'm saying, like, 40 years ago or more. And she's just going through the aisle, and her ice cream that she liked was there. She was so excited. And I was like, I couldn't understand why she was so excited. I said, Why are you so excited? And she goes, Oh, they don't always have it, so I don't get it that often. And I was like, okay, but now there's like, I don't know how long a grocery store aisle is. I mean, it's got to be a couple 100 feet, right? Don't you think? I mean,

Jennifer Smith, CDE 39:50
I don't even know. I have no idea. I haven't I know what you're talking about.

Scott Benner 39:55
In my grocery store there is a full aisle of just ice cream, yes.

Jennifer Smith, CDE 39:59
And bars and cakes and cookie ice cream, and in a six

Scott Benner 40:03
foot tall container, a couple of 100 feet long, from 40 different companies, ice cream, it's always there. It's never not there. It's always full. As a matter of fact, if you take a couple out, somebody runs out, shoves a couple back in,

Jennifer Smith, CDE 40:16
and you'll notice that they're not all called Ice Cream, because illegally, they can't be. Did you know that? Yeah, no, I know there's a difference between dairy treats and ice cream. Dairy treats

Scott Benner 40:27
that sounds like a cow fart when you go to the movie theater and you go to put butter on your popcorn. It's called buttery flavored topping.

Unknown Speaker 40:37
Yeah, it's

Speaker 2 40:38
oil. Oh, and it's not good

Scott Benner 40:44
oil. It's not like the cheese dust on that very famous, like chip where you're like, you know what? This might be giving me cancer, but this is awesome. It's not like that. It's like, you put it on the popcorn. You go, Oh, I just ruined $900 worth of popcorn with this oil.

Jennifer Smith, CDE 40:59
See, if you're like, Jenny, you take a big bag with you, and you have your own popcorn in the bag, and nobody checks it anymore. My

Scott Benner 41:05
wife makes fun of me when I do that. Oh, I

Jennifer Smith, CDE 41:07
do that. That's like, I put my I put, you know, drinks in there too, like, water bottles. I'm like, there's no reason they just paid like, $80 to come to these movies. We're not buying, not

Scott Benner 41:17
gonna buy $50 worth of, uh, popcorn and water bottles of water. No, all right, Jenny, listen. I don't know the answer, other than I think the answer is money, and people trying to make money. But I'll tell you this, if you hear this and you get upset by it, I'm very, very clearly not, like I don't talk about political stuff on the podcast. But you know, people have power, but they only have power when they're united and in day groups. That's right. If you are waiting for five people in a boardroom to decide that your health means more than profits, you might want to wait on someone else. Yeah,

Jennifer Smith, CDE 41:52
that's right, yes, you will be out of luck. So make your own choices, your labels, yeah,

Scott Benner 41:59
and eat like Jenny. Just make, you know, push up carrots and give me your babies or whatever. My God, all

Jennifer Smith, CDE 42:05
right, pretty easy in a blender, you know.

Scott Benner 42:09
Anyway, I appreciate this very much. Thank you.

Prolonged hyperglycemia can lead to serious health problems and long term complications. Learn more at Medtronic diabetes.com/hyper this episode of the podcast was sponsored by Medtronic diabetes. Huge thanks to cozy Earth for sponsoring this episode of The juicebox podcast. Cozy earth.com use the offer code juicebox at checkout to save 40% off of your entire order. If you're living with diabetes, or are the caregiver of someone who is and you're looking for an online community of supportive people who understand. Check out the juicebox podcast, private Facebook group. Juicebox podcast, type one diabetes. There are over 41,000 active members, and we add 300 new members every week. There is a conversation happening right now that would interest you, inform you, or give you the opportunity to share something that you've learned. Juicebox podcast, type one diabetes on Facebook. And it's not just for type ones, any kind of diabetes, any way you're connected to it, you are invited to join this absolutely free and welcoming community. Are you starting to see patterns, but you can't quite make sense of them? You're like, Oh, if I bolus here, this happens, but I don't know what to do. Should I put in a little less? A little more? If you're starting to have those thoughts, if you're starting to think this isn't going the way the doctor said it would, I think I see something here, but I can't be sure. Once you're having those thoughts, you're ready for the diabetes Pro Tip series from the juicebox podcast. It begins at Episode 1000 you can also find it at juicebox podcast.com up in the menu, and you can find a list in the private Facebook group. Just check right under the featured tab at the top, it'll show you lists of a ton of stuff, including the Pro Tip series, which runs from episode 1000 to 1025 Alright, kids, we're done. We're at the end. Just do me one last favor if you can, if you could please, if you have the need or the desire for something that one of the sponsors is providing, please use my links or my offer codes. They help the show so much, and that means me, you're helping me to make this podcast every day. You're helping me to support the private Facebook group do all the things that I'm doing. I'm not asking you to buy something you don't want or something you don't need. But if you're going to get one of these items, use my links or my offer codes. They help me a ton. Thank you so much for listening and for supporting. I really do genuinely appreciate it. I'll be back very soon with another episode. The episode you just heard was professionally edited by wrong way recording wrong way. Recording.com Do.


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#1338 The Facts of T1 Life

Scott Benner

Sierra shares her experience raising 5-year-old Harper.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
We're all together again, friends for another episode of The juicebox podcast.

My notes say that Sierra is 32 years old. She's the mom of a type one. Her daughter Harper had a glucagon incident. We're going to talk about that at some point. Sierra's dad had type one as well, but she didn't know a lot about it. This is a good one. You're going to like this. Oh, wow. And look at this. Sierra has a really kind of cool job. Well, you'll find out about that in a second. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D drink. Ag one.com/juice, box. Are you an adult living with type one or the caregiver of someone who is and a US resident, if you are, I'd love it if you would go to T 1d exchange.org/juice, box and take the survey. When you complete that survey, your answers are used to move type one diabetes research of all kinds. So if you'd like to help with type one research, but don't have time to go to a doctor or an investigation and you want to do something right there from your sofa. This is the way t 1d exchange.org/juice box. It should not take you more than about 10 minutes. I'm having an on body vibe alert. This episode of The juicebox podcast is sponsored by ever since 365 the only one year where CGM, that's one insertion and one CGM a year, one CGM one year, not every 10 or 14 days ever since cgm.com/juicebox this episode of The juicebox podcast is sponsored by us Med, usmed.com/juicebox or call 888-721-1514, get your supplies the same way we do from us med. This show is sponsored today by the glucagon that my daughter carries, gvoke hypopen. Find out more at gvoke glucagon.com. Forward slash juice box.

Sierra 2:19
My name is Sierra. I'm the mother of a type one diabetic. Her name is Harper, and she was diagnosed just after her second birthday.

Scott Benner 2:30
How old is Harper now?

Unknown Speaker 2:32
She's five now? Oh, wow.

Scott Benner 2:35
So three years so far, yes,

Sierra 2:37
she was diagnosed on New Year's Eve in 2020, so middle of covid,

Scott Benner 2:44
Sierra, your connection is a little janky. All of a sudden. I wonder why that is. You're you're dipping in

Sierra 2:50
on a mountain, so that might have something to do with it.

Scott Benner 2:54
Oh, well, that we can make allowances for also. Siri. Just thought I said Siri when I said Sierra. So I guess I'm gonna have to be careful about that. Does that happen in your house a

Sierra 3:05
lot? I don't actually have Siri, so I don't have a problem. But if I did, I'm sure I would,

Scott Benner 3:09
yeah, okay, so how high up on that mountain are you? Well, I

Sierra 3:13
can just tell you I am in Crater Lake National Park right

Scott Benner 3:16
now. Oh, this is not where you live. Then you're vacationing. Oh,

Sierra 3:20
no, I work here, but I don't live here and work here like many people do, so I commute in and commute out

Scott Benner 3:28
every day, like on a jet plane. Or how do you get in and out? Believe me, if

Sierra 3:32
there was like, a transportation device that I could just, like, step into and appear here, I would totally use it. I actually have a two and a half hour commute each morning that I spend a lot of time listening to

Scott Benner 3:43
you, but you make $8 million a year, so it's all worthwhile, right? I totally wish I'm trying to understand why you have a five hour daily commute that you're okay with. So

Sierra 3:54
I started my career with the association that I work with at the other park that we work out of, which is the Oregon caves National Monument. And I actually live in the town just outside of Oregon caves. And when my boss retired, I took her role, and I've only been in this position for a year now, moving just hasn't made sense, and I can do a lot of work remotely, so I don't have to come over here every day. It just kind of depends on the timing of the season and what's happening as far as operational changes and seasonal changes, all

Scott Benner 4:34
you had to say was, I'm a hippie. I would have understood if that's what that's I

Sierra 4:39
crossed my mind to introduce myself as a hippie, because I kind of live in a hippie community.

Scott Benner 4:45
Just said, Scott, I'm a hippie. I'm helping the world, man. And I would have been like, okay, yeah, that's right. Keep the green. My car runs on biodiesel that I make out of old vegetables.

Sierra 4:56
I'm not that much of a hippie. Well,

Scott Benner 4:59
then, yeah. Yeah, then Stolen Valor, then Sierra. You have to try harder, darn it. I'll work. Okay, so we'll all remember that you're at the top of the world while you're talking. And we'll, we'll be accepting, okay,

Sierra 5:10
surrounded by snow and beautiful views.

Scott Benner 5:13
Well, you know, it's funny how this happens to me all the time, like things happen in bunches, and it's not on purpose. But yesterday, I recorded with somebody from Australia, and we had to do kind of a similar talk in the beginning for people listening, like, look, there's going to be some glitches in the audio here, but she lives on Mars, and, you know, there's like a, like a tiny string that goes under the ocean, and that's what she's talking on. So let's all like, you know, be under. My mind

Sierra 5:36
was blown when I learned that the continents were connected by wires in the ocean, it's just so crazy to be still.

Scott Benner 5:44
I assume that most people thought I made that up, and then heard you say it too, and was like, Oh my God, is he right about that? It's a real thing. People cabling under the water. It's fantastic. Yeah, yeah. Who thought that that was a good idea? And then I like, when people in their house, they're like, I don't know if I know how to change out this screen door. I'm like, I bet you could figure it out. Anyway. So Harper was diagnosed about three years ago. Normally, we'll tell a bunch of stories and etc and ask you stuff, but you have, like, a specific story, so I like to get to them a little faster when that's the case Absolutely. But let me just learn a little bit before we jump in. So two years old, any other type one in the family, any reason for you to think there would be a diagnosis. So

Sierra 6:26
my dad had so many health issues, but he passed away when I was really young. So I don't have a full like list of what he had, but I do remember him carrying insulin and needing injections. And he would always tell us, if he passed out or became unresponsive, or anything along those lines, that we just needed to get him sugar as soon as possible. We thankfully

Scott Benner 6:52
telling me your dad had type one diabetes, but you never spoke about it that way. I

Sierra 6:56
don't know exactly I asked my grandmother after Harper was diagnosed, and she shook her head at me, and she was in her 90s and wasn't as coherent as she had been, so she she told me no, and his siblings tell me that he didn't have type one, but I like We still have his case that he carried his syringes and vials in.

Scott Benner 7:24
Yeah, so hold on. How old are you now?

Sierra 7:25
I am 32

Scott Benner 7:27
you're 32 your dad passed. How long ago?

Sierra 7:30
When I was eight,

Scott Benner 7:31
he definitely had type one diabetes. What? I

Sierra 7:35
think, too, but he had several surgeries, and he was in a really crazy the car accident while he was working for road construction in California. So I'm not sure if it was like typical onset type one or if he had organ damage that caused type one.

Scott Benner 7:53
Before we move forward, I have to ask you a question about your voice. You sound like the third female character on a sitcom, who's the sexy but too cute to be sexy friend with freckles. The way your voice breaks and cracks. Does it always do that? Are you doing it on purpose? It does okay.

Sierra 8:10
It's me.

Scott Benner 8:11
It's fine. I There's no problem with it. I just You literally like, I feel like you're five, three freckles, dark hair, bob haircut, and you're standing behind the other two actors, and you're just waiting to deliver your line where everybody's like, Oh my God, she's adorable. Like, like, are

Sierra 8:26
you looking at my Facebook page right now? Because you're like, literally, I'm five, two and three quarters, but give dark, nailed it. I do, and it's a bob cut. Hey,

Scott Benner 8:35
Sierra, we talked about this before we started recording. But I swear to you, I don't know what you look like. Tell people what we were talking about before we started recording. Oh, gosh, I don't remember about the Oh, Jesus, here you ruined that.

Sierra 8:49
Oh, you can read people. I'm so sorry. I'm nervous.

Scott Benner 8:53
That's fine. I haven't made you not nervous yet. In seven minutes, I'm slipping. Okay. So, um, yeah. Like we were talking prior about, like, my wife, who does not say a ton of kind things to me, not because she's mean, but because we've been married for a really long time, and she's probably out of stuff. I

Sierra 9:07
recall the conversation. Yes, you are a people reader, and the fact that you can, like, pick out my description is a little creepy.

Scott Benner 9:16
I am so proud of myself right now, like there's a part of me that wants to say, if you take insulin or Sulfonyl ureas, you are at risk for your blood sugar going too low. You need a safety net when it matters most, be ready with G voc hypo pen. My daughter carries G voc hypo pen everywhere she goes, because it's a ready to use rescue pen for treating very low blood sugar in people with diabetes ages two and above that, I trust low blood sugar emergencies can happen unexpectedly and they demand quick action. Luckily, jivo kypopin can be administered in two simple steps, even by yourself in certain situations, show those around you where you. Or GVO kypopen and how to use it. They need to know how to use GVO kypopen before an emergency situation happens. Learn more about why GEVO kypo Pen is in Arden's diabetes toolkit at gvoke, glucagon.com/juicebox, gvoke shouldn't be used if you have a tumor in the gland on the top of your kidneys called a pheochromocytoma, or if you have a tumor in your pancreas called an insulinoma, visit gvoke, glucagon.com/risk for safety information. Hey, Sierra was coming on to tell a glucagon story, but you don't get it now, because this is a perfect episode. And just end it right here, but we'll move forward. But anyway, I don't, I swear to you, I don't know what you look like. I don't think I've ever seen you. If I did, I didn't know it. And you just feel like that character, like the girl that came into the facts of life a few years into the run. That's who I picture. Oh my god, that is who I'm picturing. Hold on a second. I'm not familiar with that. You're young. You don't know the facts of life. Hold on facts of life. Freckles. Is that going to get me there? If that gets me there, I'm going to be really amazed. Uh, no, that just gave me a lot of people with freckles. Hold on character. With dark hair and freckles.

Unknown Speaker 11:23
Come on, Scott.

Scott Benner 11:25
Do it. Do it. She's not here. Oh, man, that pisses me off. Now I look like an ass. You know what I'm saying, because I was so close. Hold on a second. I'm gonna go one more time. Cast, okay, and then we can move on. Do you know George Clooney was in the facts of life? I

Sierra 11:41
am so out of touch with TV. Oh,

Scott Benner 11:43
it's from the 80s.

Sierra 11:44
I'm a hippie. Remember? Oh, you

Scott Benner 11:46
didn't have a TV. You guys were just like, your parents were just like, smoking outside, and you were like, that whole thing was happening. Yeah? Hold

Sierra 11:55
on, sometimes my dad had long hair and braids. Your Dad, wait,

Scott Benner 11:59
your white father had braids, yeah,

Sierra 12:03
and, and he was raised super Mormon, so like a clean cut, shaven student tie. He got away from that as fast as he could.

Scott Benner 12:12
Okay, I'm never gonna think of this actress's name, but there's literally a, I have a girl in my head that I think you look like, All right, I'll figure this out maybe, and put it at the end, but I'm not gonna bore people right now. People are like, hey, jackass, her daughter had a seizure and they needed glucagon. Can you get to it please? And I'm like, anyway, okay, so it sounds like there's diabetes in your background. Is there any other autoimmune in your life?

Sierra 12:37
My siblings have thyroid issues, and I don't know of any others my aunts, there's type two and thyroid that I know of for sure.

Scott Benner 12:49
Are you sure you don't have a thyroid issue?

Sierra 12:53
So funny, you asked that.

Scott Benner 12:55
No, it's not funny. Hoarseness is a symptom of hypothyroidism. Oh, well,

Sierra 13:01
okay, so I had some labs done less than a year ago, and my thyroid was over three, and I was put on some I don't remember the name of it, but it was a thyroid medication. And then it went up over four and then I cut out monster energy drinks from my day to day life, and started drinking a lot more water, and my thyroid levels came down, and my doctor refused to refill my thyroid medication. And then I was assigned a new primary, and she ran new laps, and now I am in normal ranges. What's the range? I know it's under two good because I listened to you. Thank you. Reduced

Scott Benner 13:51
thyroid hormone levels can lead to my ex edema, causing the vocal cords to swell, which affects their vibration and sound production. Interesting.

Sierra 14:00
This has been my whole life, though. I mean, that doesn't mean that that hasn't been a thing my whole life, but the

Scott Benner 14:06
doctor who believes that stopping drinking Monster Energy Drinks makes thyroid hypothyroidism go away. Did he palpate? I'm assuming it was a guy, because it doesn't feel like a thing. A woman would say, did he palpate the thyroid? Did he feel for lumps, goiters, nodules? Nobody's

Sierra 14:21
ever touched it, except for at my annual exam, and that was back in November.

Scott Benner 14:28
Did they say they felt nodules or anything on your thyroid? Oh, I would maybe, if I had insurance, if I was a person like you had insurance, I might say, Hey, is my hoarseness have anything to do with my thyroid? Could I get a scan? And I might ask to get my thyroid scanned. I

Sierra 14:43
actually have an appointment coming up, so I will ask for that, because I never thought of it. Thank you. Relating to sound. Thank you, yeah,

Scott Benner 14:49
no, no, no, I was thanking myself. I don't know what just happened there. I was like, literally giving myself credit, without saying why. That's okay. I have to be honest with you. So that just popped into my head. I was like, wait the horse voice, like I didn't know it first, and the our conversation brought it up to the top of my mind. So anyway, good luck with all that. I would definitely test your daughter, though.

Sierra 15:11
Yes, yeah, she gets, um, her let, well, we had her labs called in, but we have to drive an hour and a half to get them done. So we've been,

Scott Benner 15:19
yeah, well, everything's fine. You should actually get a helicopter, although I think that just killed the president of Iran, and if he can't get a decent helicopter, I'm not sure how you're going to so All right, so the kid gets diabetes. How do we figure that

Sierra 15:30
out? Typical onset, she was drinking a lot of water, peeing a lot, peeing so much. I actually posted on a local mom's group asking about like, recommendations to reduce the heavy wedding and, like, we saw how much water she was intaking, so the how much coming out made sense, but we just didn't understand, like, what was going on. And I was the kind of person that would Google symptoms and learn that I was dying, and, you know, Dread stuff, to figure out that it really wasn't actually happening. And I don't know why, but for some reason, I just didn't Google her symptoms, maybe because covid was in its throes and everything was going to kill you. So she she started out with the heavy wedding. She had been recently potty trained like consistently every night she did not wet the bed, and then she started like overflowing, so we put diapers back on her at night. The mom's group that I posted on suggested that I put in diaper liners that are basically like maxi pads that you stick in, and it adds additional absorption to the diaper, and she was filling those up and her diaper and still overflowing. Gosh,

Scott Benner 16:48
I don't think anybody's ever said the word maxi pads on the podcast, so I think you, you might have just done a first for us. Thank you. I

Sierra 16:55
just did a fist pump because yes, have to get a first. That's

Scott Benner 16:58
kind of like an old word, isn't it?

Sierra 17:00
It is kind of, yeah, but I want you to imagine, like, the biggest ones you can think of, because that's what they were like, okay, she started getting really tired, and she was sleeping through the night, which I was stoked about. I was like, bragging to my sister how my two year old was sleeping through the night, and I was getting all this awesome sleep. And I called her doctor, I listed the symptoms that she was experiencing, I asked them what they thought, and they hesitant to have her come in because of covid. So they told me that if she developed a fever or started vomiting, then they would want to see her, but for now to just hold off and see where it goes. We kept an eye on her, and we were doing home projects, DIY and just trying to stay busy. And she day before New Year's Eve at really late in the evening. So I was like, Okay, I'm gonna call her a doctor first thing in the morning. And then the next morning, she started the Kumul breathing. She was panting and Barry looked over Jake. She barely woke up. She would wake up and drink water and go right back to sleep. And so I called her doctor, and they were like, you know, you don't call unless something is wrong. So why don't you just come in this afternoon? So we got ready, packed bags, hit the road got there, like, as soon as we walked into her doctor's office, her pediatrician was like, We need to get a urine sample, which was really simple because of how often she was peeing. So they brought a little potty training toilet into the room, and we sat her down, and

Scott Benner 18:40
she was like, no problem. Here you go.

Sierra 18:41
Yeah, yeah, exactly. She pulled that sucker up and they dipped it, and then they came back in and told us that she either had pneumonia or type one diabetes that we needed to head to the nearest emergency room without stopping. We were not to get lunch, we were not to do anything, just go. And so we kind of discussed which emergency room made the most sense, and they told us to go to the one that had the pediatrician unit. They told us that they were going to call ahead, and that would actually put us closer to the airport, because they suggested that we would be getting flown to Portland, Oregon, to oasa, O, H, s, u. And so we hit the road and we drove the next 45 minutes to the hospital. And I just actually learned this last month that we went to the wrong emergency room. We went to the one that was actually closer to the airport, but not the one that had their pediatrician unit. So we went inside, we stood in line to register, and we were like, You guys are expecting us. We're pretty sure our daughter has diabetes. And they were like, just kind of shrugged, and

Scott Benner 19:51
no, we don't know who you are, lady, yeah, and

Sierra 19:56
it all makes sense now, but for the past three. Years, I was like, Why did they treat us like that? So we sat in the waiting room for what felt like forever. They finally called us back, and it took them forever to get IVs put in, because she was so dehydrated and so little too yeah, they finally got some labs drawn and they confirmed and her blood sugar was like, 458, it really like, I hear these diabetes diagnosis stories where it's like, off the charts, and I think it's because she was probably still in honeymoon at the time, yeah, going

Scott Benner 20:31
back and forth. My favorite part of the story is when you're telling all your friends, like, Oh, my kid sleeps. I'm getting so much sleep. And she's like, laying there in DKA, probably like, yeah,

Sierra 20:40
looking back, looking back, looking at pictures from that timeline, like her eyes are so sunken and she's so like she looks sick. How did you how did we miss it? But it when it's in front of you, you just don't see it. They told us that we would be flown to Portland. They didn't tell us where. They just said Portland. They said that we were waiting for one of two pediatric jets that service Oregon and Idaho, and the one that was available was about four hours away. And so they, they told me that I would be able to fly with her. And so I looked at my partner cliff, and I, I was like, go home, pack an overnight bag, get what we need, and then come back, and then you'll drive up, and I'll fly with her. And so he runs out, and he leaves, and it's just, I'm like, laying on a gurney with Harper on top of me, and they're trying to get IVs put in, and they're trying to do all of these tests and things in there. It's just not working for them. He gets back and like, right before he walks in the door. I'm not sure what their Mercy Flight staff. I'm not sure what their official titles are, their

Scott Benner 21:53
life, their life flight employees, but I don't know what exactly you were talking about. Yeah, yeah.

Sierra 21:59
So the EMTs, I guess that go on the plane. They were at the hospital. They were strapping Harper onto a gurney to get a ride in the ambulance over to the jet, and they were that's when they told me that I couldn't ride with her because of covid. Cliff walks in, we tell her goodbye, and then we run out because it's a four hour drive. Excuse me, sorry, you're fine. It's a four hour drive from Medford to Portland, normal driving speeds. But when you're racing a jet, you don't drive normal driving speed.

Scott Benner 22:35
Is that how it felt? You were like, I gotta get there before the jet. Yeah, that's amazing. So

Sierra 22:39
we hadn't eaten anything all that whole day. So we, like, ran through a drive through really quick, and then we hit the road. And staff on the jet were really great. They let us know as soon as they landed. They kept into contact with us from every step that they took, because it was like, I think it was like an hour and a half light from from where they were to where they took her, and they let us know when they transferred her over to the hospital. And then the hospital staff started calling us, and they were like, where are you right now? And I would like, tell them the exit number or the mile post. And they're like, You need to slow down,

Scott Benner 23:16
making great time. Yeah,

Sierra 23:18
yeah. And we're like, Um, no. They're like, well, like, you need to make it here in one piece and alive. And we're like, we know, but we're also going to make it there as fast as we can. So, so we made it there two days in the NICU, and then we spent another two and a half days in the ICU. And her a 1c was over 15 and,

Scott Benner 23:45
um, jeez, was it really Today's episode is sponsored by a long term CGM. It's going to help you to stay on top of your glucose readings the ever since 365 I'm talking, of course, about the world's first and only CGM that lasts for one year, one year, one CGM. Are you tired of those other CGMS, the ones that give you all those problems that you didn't expect, knocking them off, false alerts not lasting as long as they're supposed to. If you're tired of those constant frustrations, use my link, Eversense, cgm.com/juicebox to learn more about the Eversense 365 some of you may be able to experience the Eversense 365 for as low as $199 for a full year at my link, you'll find those details and can learn about eligibility ever since cgm.com/juice box, check it out. You've probably heard me talk about us Med and how simple it is to reorder with us med using their email system. But did you know that if you don't see the email and you're set up for this, you have to set it up. They don't just randomly call you, but I'm set up to be called if I don't respond to the email, because I don't trust myself 100% you. So one time I didn't respond to the email, and the phone rings the house. It's like, ring. You know how it works? And I picked it up. I was like, hello, and it was just the recording was like, us, med doesn't actually sound like that, but you know what I'm saying. It said, Hey, you're I don't remember exactly what it says, but it's basically like, Hey, your order's ready. You want us to send it, push this button if you want us to send it, or if you'd like to wait, I think it lets you put it off, like a couple of weeks, or push this button for that, that's pretty much it. I push the button to send it and a few days later box right at my door. That's it. Us. Med.com/juice, box. Or call 888-721-1514, get your free benefits checked now and get started with us. Med, Dexcom, OmniPod, tandem freestyle, they've got all your favorites, even that new islet pump. Check them out now at usmed.com/juice box, or by calling 888-721-1514, there are links in the show notes of your podcast player and links at juicebox podcast.com to us, med and all the sponsors, yeah, wow. Yeah, that's something.

Sierra 26:06
It is. I'm gonna take a sip of water, really,

Scott Benner 26:09
yeah. Hey, listen, while you're sipping water, I'm gonna send you something through the messenger. That's who I imagine you look like. So for people listening, I was imagining Pamela, pretty, Pamela. Pamela Adlon. I know her as an adult from California cation, and it didn't even occur to me that the girl from Californication is was the little girl from facts of life, but it is. It's the same person. Anyway, she talks like you in my estimation or my memory, which then made me think of what she looked like, and that's why I described you. It's just bizarre that you actually fit relatively that description.

Sierra 26:47
Yeah, I'm not as petite, but yeah, that's very similar. She's

Scott Benner 26:54
an actress. She's not allowed to eat. I mean, the Fair's fair. Also that lady's 57 right now. So I don't know what she actually looks like right now. I'm gonna, I'll find out anyway, that's what I was thinking of. And apparently, made a crazy living. If you go to her IMDB page, doing voiceover work and cartoon stuff,

Unknown Speaker 27:15
that's cool. Yeah,

Scott Benner 27:16
you're working too hard. You could be voicing like, you know, a cartoon.

Sierra 27:21
Hey, maybe being on your podcast will get my voice out there.

Scott Benner 27:25
Can you imagine if she finds out about this? She's like, Why was I mentioned on a diabetes podcast? Doesn't make any sense at all.

Sierra 27:34
Oh, too funny. I'm

Scott Benner 27:35
not kidding you. Though she works consistently in animation, she is probably shoveling money into her bank account. I'll be damn why are we working so hard here? I know, seriously. All right, all right. So now we're at the hospital. I'm gonna fast forward you a little bit, right? So we're at the hospital. Everything you know happens the way it happens. I imagine you guys get home, what's your management like at home? So I want

Sierra 28:00
to mention that at the hospital, we had an incredible team who reminded us over and over again that there's more to it than what we're going to be learning okay, and that things are going to be fluid and that they're going to change, and that the next time that we see them, We will know more about diabetes than they do. So I'm thankful that we ended up where we ended up, even though it was the wrong Hospital and the wrong pediatric wing and NICU. But since then, our our pediatrician has actually had another type one onset, and she sent them there instead of to OHSU, like she had intended to send us originally,

Scott Benner 28:43
interesting. Well, you ended up in the right place, then, yes, exactly,

Sierra 28:47
good. So we came home, we were MDI. We were finger sticking our don't die. Advice was to bolus her after she ate. We were supposed to carb count, give it to her, and then allow her to eat for 30 minutes. And then once she was either finished, if she finished sooner than 30 minutes, then we could bolus her, but if she was still kind of munching, she could Munch for a full 30 minutes. And then after that, we would remove any additional carbs and bullet her for what we estimated that she actually ate.

Scott Benner 29:24
So every meal was a 300

Sierra 29:28
blood sugar. Yeah, okay, at least Yeah. I was actually reviewing my my chart notes prior to the meeting to kind of see where we were then. And it was like, I was constantly calling the hospital and telling them that she was like, 366 and not coming down. And the advice was pretty regularly, well, don't correct until the four hours has passed, and give the insulin its chance. And it's I mean by bolusing after the meal, we weren't giving the insulin its chance at all. We. Were giving the food and the carbs such a head start that there was no catching up, right? We didn't have a Dexcom. We had a one month follow up that we in January. We went to back to the office in Portland in person, and they gave us a sample Dexcom and transmitter. So we got a little peek into what was happening, but only for 10 days, because we didn't know what a restart was at the time, I got to see what was happening with our blood sugars and how crazy roller coaster they were, because they told us that we could see patterns on paper. But I'm not that kind of a visual person, and I just couldn't see it until it was on the Dexcom. And then it was like, Oh my goodness. I had been on different diabetes groups on social media, and I started seeing conversations about pre bolusing and the insulin action time and all of those things. So we started dosing half of what we were giving her before she ate. And I don't know that we were really giving it enough time, but we were still dosing her before, and then we were dosing her after. And I remember this conversation with one of the mail in medical supply offices, yeah, and I told them that we were doing between 10 and 12 injections a day, and he was just like, wow, that's a lot for a little one. And it was just like a punch in the gut, because, like, I didn't want to, but it's what she needed.

Scott Benner 31:37
So you have this process that you go through where you're like, This is what you guys told us. Here's what we're figuring out by listening to other people. And that, of course, requires more injections. I do not feel good about poking my two year old this many times. And then you get better and better results. And then the response from the doctor is, wow, you're jabbing her a lot.

Sierra 31:57
Well, he wasn't a doctor, he was just a medical the medical supply, sorry, customer service, dude, yeah, but yeah, that was exactly

Scott Benner 32:04
yeah, okay. And then how did, and that hits you, how? Like, guilt. Oh, yeah, yeah, I would imagine, were you able to push past that, or did you stop injecting as much? Did it push you off of it? No,

Sierra 32:16
not at all. I was like, well, she needs what she needs, and her health is my priority, not, not your opinion, so

Scott Benner 32:23
yeah, or how badly I feel when I'm stabbing a two year old, because I I tell you what I've I firmly remembered what that felt like. And it's, it's not, it's just not fun, like, you know, like you're with little legs, and you grab them with your hand, and then you kind of have to hold them still, and you're pinching, and they're like, get away. And it's just terrible. I told that story before, but like, I can remember, like, running after Arden with, like, a needle in my teeth. Yeah, that's how

Sierra 32:51
it was with Lantis. She did not want the Lantis shot. She knew that one was gonna feel different. And yeah, she would, she would fight us on that one. The meal injection, she adapted too quickly. And she learned how to count to 10 so fast, because we were counting to 10 every time we gave her an injection, she

Scott Benner 33:10
just started talking about, I don't know something bigger, you know,

Sierra 33:14
I know

Scott Benner 33:16
quantum physics or something. Oh, she

Sierra 33:19
is so smart already. But, I mean, if I had that kind of mental capacity for sure, listen, you

Scott Benner 33:26
still think it's a good idea to drive that far to work. So I mean, you're not learning at all.

Sierra 33:35
I'm learning from you. Listen, meanwhile,

Scott Benner 33:37
what I should really be saying is you should all find jobs that are farther away from your home so that you can listen to my podcast more, because that would make me more successful, that I want more than anything. No, no, seriously, what I wanted is for you guys to be happy. This is going to be weird. Arden calling in Hold on a second. Okay, haven't done this in a while. Face Time. She may have just finished her. You have more than an hour, by the way, if we go over, okay, let's see what happens here. Hey, you're gonna be on the podcast. Is that okay? I don't know if you want to put this on the podcast. You don't want this to be on the podcast. Just listen to this real quick. Okay, well, let, let's let Sierra here, but I'll have Rob bleep it out. Okay, okay, I don't care. Um,

Speaker 1 34:25
so I, like, literally slept in because I haven't slept for like, two days, and I wake up and I'm like, let me check my emails, because mom said there's a package for me. And I'm like, looking. And do you remember a couple days ago how I told you they sent out this survey, and I filled the survey out, and I just like it on the school, okay, so apparently, with all the surveys that the school does too, like you can, like, win, like you like, win a prize if, like, your name is picking a raffle and

Scott Benner 34:52
I want a projector, seriously,

Speaker 1 34:55
yeah, it just got an email about it, and the girl in charge texted me. Good afternoon. Your survey response was chosen as last week's prize winner. You can pick up your projector from Bradley Hall. It's ready whenever you are front desk. We'll

Scott Benner 35:08
have it nice. So do you think they're trying to pay you off? I

Speaker 1 35:12
don't know, but the survey I was like, terrible, terrible, terrible, probably worse, terrible. And I just want to protect it from the school. Maybe I should start saying well, listen,

Scott Benner 35:25
either they gave you the projector to try to shut you up, or they appreciated your honesty one way or the other, you got a new projector. That's so funny. Well, good for you. Do you have any classes left? Or you just have to do the thing today? What thing you have to do a presentation? Yeah,

Speaker 1 35:43
that's my omnipodence left. I have that at five, but I have to go like, a half hour before, because we have to, like, practice or something. But I'm gonna start cleaning up

Scott Benner 35:51
my room right now. Okay, I set a higher target for you overnight, but it's over now, just so you know. Okay, all right. Well, I love you. Congratulations on your new projector. Call me later when you get it so I can say it. Okay,

Unknown Speaker 36:05
bye.

Scott Benner 36:09
So in case any of you are wondering if that's my daughter or not, by the way, Rob, you can leave all that in. She doesn't care that she won the projector. She loves the the funny part of it where she would be in the in the survey, and yet she won the projector. It's hilarious. All right, Sierra, I'm sorry about that. Could you hear that? By the way, I could Yes.

Sierra 36:28
It reminded me of like, when you give a one star review on Google and the company comes back and is like, Wait, we'll give you this. If you change your review,

Scott Benner 36:35
would you like a coupon? They were like someone give that girl a projector. She was way too articulate in this response, because she wrote, she read to us what she wrote, and it was not good about one specific instructor.

Sierra 36:51
Really. You have to be honest, or they don't know that. They need to change it. Sarah,

Scott Benner 36:55
listen, every person who sent a kid through college knows there is a semester or a class where you're thinking to yourself, I just paid an obscene amount of money for my kid to Google and YouTube things.

Sierra 37:06
I took a class at a local community college, and I felt like I wasted my time because of how many personal stories he told. Yeah, it was just a waste of time and a waste of money during

Scott Benner 37:18
covid, the teaching went down so significantly at my son's school that I called to complain, and the dean actually said to me on the phone, yeah, the quality of the education right now is not as good, but you'll still have the diploma when it's over, and you can trade off that, my gosh, like he literally said, and trade off that, it's a good school. Use our name, get a job. I'm like, won't he need to know how to, like, actually do the thing? And they were like, they were like, covid. I love how covid was an answer for everything. Like, we don't really have to educate you covid. Keep paying. Covid. Okay? All right, listen, so the kids getting the the MDI treatment. How does she manage now? Now

Sierra 38:03
she's OmniPod five and g6 Okay, and her last a 1c was 6.60

Scott Benner 38:09
good for you with a five year old. Yeah, fantastic. It's hard. No, no, no kidding. Seriously, good job. What kind of glucagon Do you carry

Sierra 38:18
now? We have the is it back? Semi, yeah,

Scott Benner 38:23
back. Semi. I like when people I like when people call it back. Squimmy, yeah, it's my favorite one. I

Sierra 38:29
had to, like, stare at the box and get the letters in the right order. So

Scott Benner 38:33
this is the nasal glucagon with the powder.

Sierra 38:35
And we just switched to that because she is starting kindergarten in the fall, and we want her to have the easiest option on her. Okay, we also have the G voc hypo pin now, because of you, when we had, is this a good time to transition into the glucagon story? Are

Scott Benner 38:54
you producing? Don't worry, I got you keep going. She

Sierra 38:59
was diagnosed New Year's Eve, and then on February 1, so just barely a month, we had the Dexcom. It was screaming that she was over 300 I think our settings were to repeat the high alarm every five minutes. And it was just like overwhelming, how much it was screaming. So I decided to give her a correction dose, which we had been very specifically told not to give nighttime corrections, because they were worried that she would go low at night and that we would be sleeping and wouldn't catch it. Because prior to getting the Dexcom sample, we were still in the waking up at 3am checking her blood sugar and going back to sleep. Some nights, we would do more finger sticks, just to like, if it was a higher activity day, we would keep better track. I opted to give her a correction, and she was at 300 when my. Her their correction and I gave her a unit which was actually less than what our correction factor was. I should have given her a unit and a half, and then we laid down. And I don't sleep when she's not in range. I'll lay down, but I like, can't turn off. So I was, I understand, yeah. So I was watching the Dexcom, waiting, watching, waiting, watching, and she's sleeping at some point below started alarming, and so we tried to wake her up, and we tried to give her carbs, and she just wasn't responding, because she was at that point in her sleep where you just couldn't get her out of it. And so we were trying to wake her up. We were sitting her up. We were like, moving her around, just doing anything that we could to try to get her to be coherent. And we were putting her juicebox straw in her mouth and trying to get her to drink it, and she just wouldn't. And she got down to 46 and I had called the on call endo at that point. Well, prior to that point, their sense of urgency in the situation just wasn't there because it was an emergency in our living room. Yeah, we were panicking and trying to get her to wake up, and she was crying and just upset. And they were just like, okay, why'd you do what you did not

Scott Benner 41:35
now, that's not what we're talking about now, exactly. And

Sierra 41:39
at the time we had the red case Lily, you mix it before you inject it, they were just like, go ahead and give her the glucagon. And I'm like, in full panic. And I have to mention that I have been through Incident Command training through work,

Scott Benner 42:00
and didn't help you that day. No, training is

Sierra 42:03
great until you're in it, and it's your child, and it's an emergency, and

Scott Benner 42:09
that needle looks like it'll go halfway into her leg. Like, you know what I mean? Like, it's like, a big needle. Yeah, huge,

Sierra 42:15
yeah. So they told me to mix it, and so I did, and then she tells me to only inject half of it, because she's so small and I don't know where my brain was, other than fight or flight mode, but I mixed the glucagon, I pulled it into the syringe, and then I sprayed half of the glucagon mixture all over our living room. Wait,

Scott Benner 42:45
like on an old TV show,

Unknown Speaker 42:47
yeah?

Scott Benner 42:53
This is your big moment. You're like, I'm on Grey's Anatomy right now,

Sierra 42:57
yeah, so that was how I got the syringe to only have half of the glucagon in it.

Scott Benner 43:03
I'm glad you find that as funny as I do, by the way, hilarious visual. You're like, hold on, okay, there we go. Did you tap it? Too? I bet you tapped it.

Sierra 43:13
I don't remember that detail, but yeah, so, so then I injected the other, the remaining half, and the woman on the phone tells me to put the remainder in the fridge in case we need it later. And I'm like,

Scott Benner 43:27
that's gone.

Sierra 43:28
I don't have any more.

Scott Benner 43:31
I also yelled clear before I did it. I don't know why.

Sierra 43:37
Oh, that needle, though. I just I remember the resistance that she had in her thigh to that needle compared to the insulin injection needles. It was just so different and so big. And they tell they warned us that it was going to burn, and so like she's screaming, because the injection is so different, and then the solution is painful, right? But it did its job, and her blood sugar came up, and she ended up back in the three hundreds. We had another glucagon kit on the hand, so it wasn't like we were completely out, right, but we just didn't have the open one anymore. And I

Scott Benner 44:18
can try to get it off the floor, but I think it's also on the sofa, so everywhere. By the way, the most on brand thing you've said this whole time is my partner cliff. I was like, of course, he's your partner. And like, just the Oregon screaming from you, Sarah, but, like, but, um, but, but, but, what was the post mortem. Like, when you guys talked about it, we've

Sierra 44:42
talked about it a few times, and we were both just, like, in so much fight or flight that neither one of us really knew what to do. And he was trying to console her and, like, get her to wake up and get her to drink juice while I'm on the phone with the on call indo not get. Using the response that I'm expecting. We actually didn't even call an ambulance after we injected the glucagon, which was part of our training, was glucagon ambulance, and then, yeah,

Scott Benner 45:12
did you do glucagon mushrooms? I might have done that like Jesus Christ. Let's go commune in the woods. This is weird.

Sierra 45:21
My goodness, that probably would have been what I needed at the time.

Scott Benner 45:26
Well, listen, at this point, I think there's some major institutions that you can get rid of this PTS day with mushrooms at

Sierra 45:33
just open. Oh, I'm

Scott Benner 45:35
sure they're going to be on every block in Oregon. Don't you worry. It's

Sierra 45:38
it's going to be just like the dispensaries every every half block. Did your

Scott Benner 45:43
dad ever yell at you? Come on in and get high. We'll get rid of it. There's a therapist here. Meet bill.

Sierra 45:50
He'll sit in the room with you. He's gonna talk

Scott Benner 45:53
through your trauma. Don't worry. Bill looks high too. No, he's not. It's fine. Okay. That's terrible. Listen, I have been through a glucagon incident twice.

Sierra 46:06
I have listened to them and they have made me cry. Yeah, no, I

Scott Benner 46:10
bet you they do. They make me cry. What I think about them? We've never actually used it, though. It's just always the irony of it. It's like we've always kind of gotten out of it right before, yeah, but we would have used it the first time, but I couldn't even figure out how to put the lily needle together. It's so complicated. It's not though, but it is when somebody's screaming at you, your kid's gonna die, that's different. Get what I mean? So we had gone

Sierra 46:33
through training both of our moms how to use the glucagon, and we're like, it's really simple. You just follow these instructions on the case. It's not simple in the moment at all. Tell

Scott Benner 46:44
me about your professional training for stuff. What were you saying earlier?

Sierra 46:49
We have gone through Incident Command training. I'm first responder CPR certified through work. When I when my career was at the Oregon caves, we would occasionally have cave emergencies that we would need to respond to, and being in a cave environment, underground and also in a very remote area with limited services, we needed to know how to respond in those emergency

Scott Benner 47:13
situations cave, what was happening? I might have helped you. Yeah,

Sierra 47:17
put put me at work, and I've got my head on straight. Listen

Scott Benner 47:20
to commiserate with you for a second. I have been in burning buildings. I have seen and worked around dead bodies. I've seen a live woman after a car accident folded in half under the dashboard of a car that we had to extricate her from, and when my kid had a seizure, I couldn't figure out how to put that thing together

Sierra 47:39
either. It's such a different situation. It's when it's not somebody who's connected to you. I can keep my head on straight, and I can stay calm, and I can call the shots. But when it's in my living room at midnight with a screaming two year old, that's my screaming two year old. Yeah? No way,

Scott Benner 47:56
yeah. I try to imagine, like, the president United States can't get Netflix to work. You know what I mean? Like, it's probably like, like, three hours earlier, they were ordering an airstrike on something, and now they're like, I can't find this new show on Netflix. Like, like, that's how I felt. Like I was like, because when it was over, I'm like, That's not who I am, you know, am I ugly? My wife was super focused, so she was good, you know, actually, had she had four hands, I'm assuming we would have got the LUCA got it.

Sierra 48:23
I wonder if Cliff had been in charge of it, if you would have sprayed it across the room. Probably.

Scott Benner 48:34
What a ridiculous sight. Anyway, she was okay. Afterwards. You didn't even go to the hospital. It

Sierra 48:38
was fine, right? No, we didn't. We didn't go to the hospital. She had some stomach ache from it. Yeah, she didn't actually vomit afterwards. They what they didn't tell us about was, and I actually haven't okay. I haven't listened to all of your recordings. I've listened to a lot, goodbye, but I haven't heard anybody else mention this either. Is the fact that the glucagon can deplete your liver from its glucose stores, right? And so there were follow up lows for like, the next two days we were constantly like, we got to a point where our endo told us not to bolus for meals, and we reduced our Lantis because her body was just storing the glucose instead of her blood sugars becoming a roller coaster.

Scott Benner 49:29
Interesting. Yeah, I believe this is mentioned in episode 789, important things to know about Chivo, kypophand, and probably in the remastered pro tip, 1014 glucagon low BGS. But yeah, like so the stuff in the needle is not the stuff that makes your blood sugar go up. It's the stuff that makes your liver go Oh. You need glucage in here and take it like it releases it from your liver. And as a matter of fact, you can maybe get away with shooting glucagon twice in a number. Urgency, but there's going to be diminishing returns as you go forward,

Sierra 50:03
right? And that's they did kind of tell us that, like, once you use glucagon, you can't exactly use it again on such a small person, so

Scott Benner 50:13
small. I mean, how big could her liver be? You know what? I

Sierra 50:17
mean? Yeah. I mean, she was just such a tiny little thing, then she still is the follow up after that was just like low after low after low, and we had to change our insulin to carb ratios. We had to change everything and just go back to bolusing after the meal, because the glucose just wasn't there for the insulin to combat anymore. In that time frame,

Scott Benner 50:43
the liver size of a human female at two years old can vary, but on average, typically weighs 300 grams. The dimensions of the liver in a young child can be roughly six to eight centimeters in length. How about that? Not crazy? All this stuff crazy. Yeah, by the way, chat, GPT four. Oh, amazing. I don't know if it's gonna take over the world or not, but until it does, I love it. If it goes to Skynet later, I'll be like, I was wrong, but for right now,

Sierra 51:11
right now,

Scott Benner 51:12
right now, it's legit. Do you think it'll play this recording as it laughs later, as it's crushing our skulls with its metal feet. Probably not,

Sierra 51:21
I hope not. If it's crushing us,

Scott Benner 51:25
it'll be like, I remember when this guy on a podcast said this, and it'll just play it outside anyway. Sorry, it's okay. Sorry, sorry, you went through all that. It sounds like, believe it or not, I feel like you held you handled it really well. I mean, we went to the hospital after the first seizure when she was two. We felt like we didn't need to, yeah, but we gave into the like, well, they told us to, and we did it. And then the next two hours were like, just we sat in the hospital and, like, why aren't we here? Like, you know, I mean, like, so even the people in the hospital we're like, you probably didn't have to come. We're like, well, great, right? Thanks.

Sierra 52:04
Thanks for that. We

Scott Benner 52:04
have this crappy meter and these needles. This is all we have. Like, we don't know what we're doing. You know what I mean, it was 2000 and, like, six, you know what I mean? Point is, I take, you know, I wish we didn't go in that scenario, and I can see where, where you would you know, can I ask? Was she? I know she's only two, so this is why I asked. Was she altered in any other way in the days after? Did you notice her like anything different about her personality? Nothing

Sierra 52:33
that stands out? I just remember that she didn't, she wasn't her. Okay? I guess I should take that back and say that she wasn't herself following up, but nothing that was like extreme. I think it was more like she was recovering from

Scott Benner 52:47
a sickness, yeah, like run down or beat up or something. Yeah, exactly. Arden was really weird after her last one for a couple days, like melancholy, almost. And I don't I never knew if it was psychological or if it was physical or a mix of it, right? But at 18, 1718, years old, she slept in our bed for like three nights afterwards.

Sierra 53:09
I don't blame her. Yeah, that's where I would want Harper and I mean, like, prior to diagnosis, she was learning how to sleep in her own bed, and then I just got her back in her own bed, like, last month, oh,

Scott Benner 53:24
you put her, like, in a nest in your room,

Sierra 53:28
yeah, yeah, till she started kicking me. And now she's no,

Scott Benner 53:33
Listen, kid, this is all well and good, but now I've got a bruise, so you've got to go. I just, I just imagine you building an eagle's nest in the corner of your room, in your tree house that I imagine you live in, if you live in a tree house,

Sierra 53:47
there are some amazing tree houses in the state.

Scott Benner 53:50
What I love about the upper Northwest is that when you make up ridiculous stuff, somebody goes, no, that's here. We have

Sierra 53:59
that. That's true. Yeah. Also,

Scott Benner 54:00
I have to take a couple screens with you so the people try again. Can you be more ridiculous? But I don't know. California's giving alcohol to like homeless people now, so I don't know what's going on. I have to hit you guys once in a while, so the Canadians feel good about how I talk to them. So yeah, I'm still sure they have pet penguins, and they just don't want to tell us, you can take it. It's excellent. Good for you. Yeah, yeah. You seem like one of those tough hippies, not like the sensitive ones. Oh, people are like, there aren't just two kinds of people. And I'm like,

Sierra 54:36
in my head, there are, yeah, it's simpler that way. And

Scott Benner 54:40
in Canada, people have pet penguins. And if you don't like it, don't listen to the podcast. I don't know what to tell you. I also know there are no penguins in Canada, but go ahead, what I would

Sierra 54:50
have a pet penguin if I was allowed to. They smell. But who would I mean? You just have to take care of it, right?

Scott Benner 54:57
Jesus Christ. Okay, my God. My. Dog is so old. I'm like, is this over yet, buddy? Like, are we done? Like, you get up in the morning. He's like, hey. And I'm like, Oh, one more time. All right, let's do it again today. His leg just feels like it's gonna fall off him. And like, Oh, my listen. I want to be clear. It's horrifying. It's so sad. But he is, like, over 16 years old, wow. And you're just like, man, it's all right. Like, you his, he's completely like, cataract over. He's incontinent. He's now his hip. And I'm just like, you look at him. You want to be like, Dude, you gotta, you gotta just, just give up. Like, it's over. You

Sierra 55:40
know what I mean? Like, just go lay in your doggy bed and go to sleep, buddy, the worst

Scott Benner 55:44
thing in the world, because it's gonna be me. Sierra, it's gonna be me when it when the time comes, someone's gonna look at me and say, You gotta do it. And then I'm gonna be the one crying at the veterinarian's office and talking to him and like, I, you know what I mean? Yep,

Sierra 56:03
I actually, I had a childhood dog who she lived to be about 16 years old, and it got to a point where it was like, okay, her quality, quality of life isn't there anymore. So we are lucky enough to have a local veterinarian that will come to your home and do it instead of you having to go into the office.

Scott Benner 56:22
It's the worst thing, like, and, I mean, I don't mean to make light of it, because I'm certainly not, but it's just like, it's, I don't know when to do it, yeah, like, you know what? I mean,

Sierra 56:33
it's such a hard decision to make, and it really sucks when you are the one who has to make that decision and make that phone call and set the appointment. It's all just awful. Yeah, I hate it all, and I

Scott Benner 56:44
want to take it all. I don't want it to be my wife. I don't want her to have to live with it like, I want it to be me, like, you know what I mean, but I like, that's big picture thinking, like, small picture thinking I just look at him, like, if you could just close your eyes, that'd be great, you know, because so peacefully. Yeah, please. Meanwhile, Arden comes home in like, three or four more days, and she knows how bad he is, and she's just like, is Indy gonna be okay till I get home? And we're like, yeah, sure, it's gonna be fine, you know? So we're trying really hard to get him to her return, which is even, that's even another strange thing, like, I don't know why people have kids, because you have to think about all this stuff you don't even like. Is it better for the dog to be put to sleep when she's not here, or when she is here, or like, like, I don't know, like, you know what I mean. So it's gonna work out the way it works out. I guess I don't know why we got through that off of, oh, because pet penguins. Yeah, if the penguin was gonna die, I'd be like, Oh, the penguin died. I think I'd be Oh, I

Sierra 57:39
think it would be so heartbroken. I love penguins. OmniPod,

Scott Benner 57:42
you love penguins. Have you ever seen a penguin? Cute?

Sierra 57:45
They are so they're so awkward on land, and then they are just like, so smooth in the water, and they can fly. They just have to be underwater.

Scott Benner 57:54
I know otters are cool too. Otters are really cool. Yeah, I don't know if that's not what we're talking about, though, but otters are fascinating to watch, like swim and pop out of the water and do apparently, they're very nasty animals.

Sierra 58:04
Oh, we have river otters here. I've seen them a few times in the wild. Yeah, they're

Scott Benner 58:10
apparently not pleasant. Oh, well, I like them. Beautiful to watch, beautiful to watch, hard to interact with.

Unknown Speaker 58:17
Yeah, yeah. I

Scott Benner 58:19
think I just described my wife. Oh, I can't wait to get a review about that. One more misogyny from this guy says his wife's like a river otter. Every once in a while is here. About every six months, I get somebody who can't hear sarcasm, and then I get a review from them. They always make, by the way, those always make me laugh the most. I'm like, Oh, wow, you've misunderstood that significantly. That's crazy. But whatever Are we done talking about this? Do you have any other details that I have not drawn from you?

Sierra 58:55
Since that incident, we learned how to get her to drink juice while she's sleeping, instead of having to wake her up and force her into being coherent, she has had severe lows since, not many, but one time she was awake and coherent, and she was telling me that she felt weak and shaky. And so we did a finger stick, and she was at 26 Wow. And we were able to give her some marshmallows and some juice boxes, and she was able to rebound on that one on her own. And looking back on the glucagon situation, I don't think that we necessarily needed it. I think we were just so new and so panicked that we just took the don't die advice and did what we could. Yeah, it was definitely dramatic, but I look back on it now and I laugh. And I just was recently listening, and I heard that, not scared, prepared episode. And I just, I love that so like as we move in and transition into her. For riding a school bus and being taken care of by school staff. That's my plan. Is to be prepared and not be scared.

Scott Benner 1:00:06
Good for you. Oh, I think it's probably the only way to live honestly and honestly, even with this conversation, I don't know another way to talk about this except joke through it and make stupid. Like, if I actually had you come on here and tell, like, a somber story about this. Like, first of all, I don't think anybody would listen to it. And secondly, if they listened to it, when they got to the end, they'd feel like, you know, throwing themselves in front of a bus. Like, I don't want people to feel that way. Like, I want them to know like, this could happen, and you need to be ready. And here's how it works, you'll probably be fine. Like, get in there. Like, you know what I mean, like, and try not to think about it every day, because you can't live like that either. You know you can't. Yeah, that's why I appreciate when people share these stories seriously like, you know, I keep doing them whenever somebody offers one, just because I think that. You know, it's important to be knowledgeable and not scared, but it's also important to be honest about what it's like and in the moment, it's terrifying, it is horrible. Yeah, yeah. There's no way to sugarcoat it. Like you think someone's dying in front of you and you feel like you have a split second to change it. Yep, yeah. So yeah. And

Sierra 1:01:14
a simple decision in that moment could take you the wrong direction.

Scott Benner 1:01:19
It's hard, yeah, yeah. Oh, no, we'll make it. I don't need this, and that's why I can't begrudge you shooting it then later saying, like, oh, we probably didn't need to do that. I say to that, Oh, well. Like, you know, better safe than sorry in that situation for sure. You know absolutely yeah, but I've talked about this on a couple of others, but you know, I did this in person. Talk one time. There's like, three, 400 people there. They were adults who either had diabetes or were the the spouse of somebody with type one. And they were more newly diagnosed, some of them, but not all of them. And when I brought up glucagon, no one knew what it was like. They didn't know what it was. They didn't have it in their house. They wouldn't know how to use it if they had it, like they were they were like, wait, what? Some people were like, What happens if your blood sugar gets too low? Like, they didn't even know. And I think, like, it's incumbent upon somebody to talk about it once in a while, you know? So, yeah, I appreciate you doing this all the way from, like, whatever mountaintop you're on right now.

Sierra 1:02:16
I'm on a volcano.

Scott Benner 1:02:17
Are you really I am I imagine you make $25,000 a year and you're living off of bread crumbs. Is that true or like, do people do people like? No good. You're being paid reasonably.

Sierra 1:02:28
I'm being paid I wouldn't drive two and a half hours if it wasn't worth it. Is

Scott Benner 1:02:32
it one of those jobs nobody else wants, so they have to pay you more? No, no. Okay, it's

Sierra 1:02:37
It's the great association we fund the education in science here. Nice. I find a lot of pride and joy in it, and I've always loved to be outside. So to get to be paid, to be in a situation where I get to be surrounded by beautiful wilderness, I couldn't ask for a better situation.

Scott Benner 1:02:54
I hope your end doesn't come at the hands of a bear. But other than that, that's really nice. Okay, so

Sierra 1:03:00
before, before you let me go, you got a bear story last I guess it was two winters ago. It was the first snowfall of the winter, and I was the first person at the office at Oregon caves, where I was working at the time, and I decided that I was going to go on a solo hike. It's just a one mile loop up and over the cave, but I found bear tracks in the snow, and I started to follow them. And then my like sense of self awareness popped up, and I realized that I didn't want to die by the paws of a bear. And I turned around and went back. What

Scott Benner 1:03:38
in the hell made you not go the opposite way the paws of the bear.

Sierra 1:03:42
I wanted to see a really clear print in the snow, like they were just kind of like kicked around, like it had come onto the trail and turned around. So the prints weren't like that crystal clear paws and toes kind of look. So I like started following them initially, to get a picture of a better paw print.

Scott Benner 1:03:59
You weren't doing this for a photo for Instagram.

Sierra 1:04:02
I'm not even on Instagram. It was just my own personal self.

Scott Benner 1:04:07
How long did you track the bear before you thought to yourself, oh, I probably shouldn't track a bear. It

Sierra 1:04:12
was probably within like, 10 feet of the trail, and that's when I was like, I don't want to actually die today. It was just a black bear. But still, yeah, I'm

Scott Benner 1:04:21
sure that would be comforting when it was slicing your throat open. Oh, look, it's only a black bear.

Sierra 1:04:30
I could take a black bear.

Scott Benner 1:04:31
I'll just punch him in the groin like it would be like a Bugs Bunny cartoon. He'll probably run away. Listen as I make fun of you, I've told this story on the podcast before, but I had somebody do something to me in traffic once, when I was young and I was on a motorcycle, and I got so mad that I pulled off this side of the road and through traffic, went after the person, like, I don't know what I was thinking I was gonna do. They almost killed me, and they did it on purpose. And when I was maybe two width of a car. Away, the driver disappeared and then popped back up from their glove compartment and pointed a Glock at me. Oh my gosh. And I still took more steps after I realized it was a gun, yeah. And I think about that all the time, like, why didn't I just stop? Like, what is

Sierra 1:05:16
just going and your brain was like, stop.

Scott Benner 1:05:18
And by the way, I'm not like, I don't know. I was only gonna yell at him, like, Do you know what I mean? Like, I'm not I listen. I know myself. I physically couldn't manhandle a person to begin with. Like, like, I wasn't like, you know, I just wanted to be like, my god, what are you doing? You almost killed me. And it was crazy. What I was doing. Make no mistake, it was also the early 90s. You were allowed to be crazy, then it didn't really matter. There's no rules. Like, there is now, like, right now, they'd be like, he's insane. Put him down. I'm like, that's how we all acted in the 80s, just so you know. And so it wasn't just me, no, no, no, but yeah, I saw that gun, and I was, like, my brain registered gun, like, enough that I knew what kind of a gun it was, yeah. And I kept going at like, toward like, forward. And then I went in my and then my conscience hit me, and I put my hands up, and I went, sorry. And I just backed away. Oh, my goodness. I feel like that's what happened to you when you realized I shouldn't be tracking a bear, you went like that, yeah, oh, I gotta go. What am I doing?

Sierra 1:06:17
This is not a smart decision. Abort.

Scott Benner 1:06:21
I'm an idiot pretty much, yep, no wonder I couldn't figure out that glucagon. Jesus, God, moron. You and I could have a podcast together. You're fantastic.

Sierra 1:06:37
Thank you.

Scott Benner 1:06:38
You're welcome. I'll never have you back on No, I'm just kidding. I try not to repeat guests. That's all I meant. Yeah, you were really lovely, and I appreciate you doing this and retelling what I'm sure is a difficult story to help people. So thank you very much. Sincerely. Is very kind of you.

Sierra 1:06:58
Thank you. I appreciate it, of course. Hold

Scott Benner 1:07:00
on one second for me,

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#1337 T1 College Athletes from Dexcom U

Scott Benner

Bri and Nicholas talk about playing in college with diabetes.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon MusicGoogle Play/Android - iHeart Radio -  Radio PublicAmazon Alexa or wherever they get audio.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Welcome back, friends to another episode of The juicebox podcast.

I have two guests today, Brianna and Nicholas. They're both college athletes who are part of the Dexcom U program. Dexcom U remains the only nil program dedicated to supporting college athletes with diabetes. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your health care plan when you place your first order for ag one, with my link, you'll get five free travel packs and a free year supply of vitamin D drink. Ag one.com/juice, box. Don't forget to save 40% off of your entire order at cozy earth.com. All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40 percent@cozyearth.com if you're looking for community around type one diabetes, check out the juicebox podcast. Private, Facebook group, juicebox podcast, type one diabetes. But everybody is welcome. Type one, type two, gestational loved ones. It doesn't matter to me, if you're impacted by diabetes and you're looking for support, comfort or community, check out juicebox podcast. Type one diabetes on Facebook. This episode of The juicebox podcast is sponsored by the insulin pump that my daughter wears, OmniPod. Learn more and get started today with the OmniPod dash, or the OmniPod five. At my link, omnipod.com juicebox. The juicebox podcast is sponsored by touched by type one. This is my favorite diabetes organization, and I'm just asking you to check them out at touched by type one.org, on Facebook and Instagram. Today's episode of The juicebox podcast is sponsored by Dexcom, makers of the Dexcom g7 and g6 continuous glucose monitoring systems, dexcom.com/juicebox,

Brie 2:15
hi. My name is Brie Carrasquillo. I'm a 22 year old female athlete in the women's lacrosse team at the University of Oregon. I'm originally from Long Island, New York. I currently live in Alberta, Georgia. I just finished up my last four years playing lacrosse at Yale University, and I've been living with T 1d for almost five years now, five

Scott Benner 2:33
years. And we have another person with us here today. Who else is here? Yeah,

Brie 2:37
we have a fellow Dexcom U athlete with us here today, Nikki. Nikki,

Scott Benner 2:41
tell me a little bit about yourself. Hi

Nicholas 2:42
everybody. Yeah. I am a 20 year old originally from Phoenix, Arizona. I'm now a student athlete, a cheerleader at the University of Notre Dame. I'm a junior and I'm a poli sci and finance double major, and I've been living with type one diabetes since the age of 10. Wow.

Scott Benner 2:59
And Bre, you went to Yale. What are you in grad school now?

Brie 3:03
Yes, yeah, I just finished at Yale. I got my Bachelor of political science, and now I'm taking my fifth year and doing a one year's Master Master program in journalism at organizations. How

Scott Benner 3:13
many jobs do your parents work? Four? Five jobs? Yeah, definitely a couple. All right, listen, Bria, if I start asking Nick too many, like cheering questions. You'll have to just run me over. But I I'm gonna I have some I want to know if he's ever dropped the person, if he's dropped the person on himself. I want to hear a lot of things, okay, but I want to know first about being an athlete with diabetes. Sabri, were you diagnosed right as college started? Is my math right there.

Brie 3:39
So I was actually diagnosed right after my first year at Yale. So that was we were about six games in my freshman season, and then covid kind of came out of nowhere. We all got sent home, and about a month or two after that, I started presenting like pretty textbook symptoms once I was home, and then I took a gap year from there to kind of manage it.

Scott Benner 3:59
Had you been sick before that? No, are there other people in your family with autoimmune issues like type one celiac hypothyroidism, stuff like that?

Brie 4:08
No, I have a brief history of celiac disease in my family. But apart from that, no one that I know has type one

Scott Benner 4:14
diabetes. Okay, and Nick, how old were you when you were diagnosed?

Unknown Speaker 4:17
Again, I was 10 years old.

Scott Benner 4:19
10. Oh, he's got you there. Bree, okay, do you have any other autoimmune issues?

Nicholas 4:23
I personally do not know, and I don't have any family history either. So crazy.

Scott Benner 4:27
Okay, my son was playing baseball during covid, and it pretty much ruined his college experience with sports. So Bree, what did you do for that year when they shut you down? How did you stay in shape? Yeah,

Brie 4:38
so at the beginning it looked like a lot of, you know, at home, YouTube video workouts, you know, just trying to, like, eat healthier and get in shape naturally. It's like, you know, I wasn't sure at the moment whether or not I was going to take a gap year. Ultimately, the Ivy League decided they weren't going to play in the 21 season. So I took a gap year. I was, I had a couple internships going, and then, you know, pretty quickly into that. About two months, and like I had mentioned, I started presenting symptoms with diabetes, so I had to take a little, you know, workout, hey, it is for a bit. So

Scott Benner 5:07
Nick, when you're diagnosed, I'm assuming your parents are very helpful and involved. Is that, right?

Nicholas 5:13
Oh yeah, yeah. My parents are my biggest supporters, and my mom actually works for JDRF now, and she's been by my side the whole time and helped me along the way.

Scott Benner 5:21
Wow, now, did you have a CGM when you were diagnosed? It was too long. Was it? I'm trying to do the math. My daughter got hers when she was maybe five or six, and she's 20 now. So so they would have existed when you were diagnosed, right?

Nicholas 5:35
Yes, I believe they did. My endo actually had the approach of like, let's start with the basics. So we started with, you know, with insulin and needles and CGM, or not CGM glucose pricks, you know, that with the meter. And so we started at the basics. And once I got comfortable with that, we moved on, you know, to the insulin pump and to the Dexcom CGM. Okay,

Scott Benner 5:56
so you had the experience of having your family help you, and then moving off to college, right? And Bree, you had the experience of being diagnosed during covid, then having to go back to college, and your parents probably didn't know very much about it when you left. So where I'm guessing, Nick got a lot of support in the way of having people who understood what he was going through. You probably didn't have that as that, right,

Brie 6:19
correct? Yeah, I was lucky. I was 18 at the time that I got diagnosed, so I still took my I still ended up going to the children's hospital anyway, just because I wanted my parents to, you know, be in the room while I was administering my first insulin shot. But, yeah, no, it was completely, you know, foreign to myself and my family. So it was kind of, we were all learning at the same time, but

Scott Benner 6:39
you were probably wearing a CGM when you left for school. The Dexcom g7 is sponsoring this episode of The juicebox podcast, and it features a lightning fast 30 minute warm up time that's right from the time you put on the Dexcom g7 till the time you're getting readings. 30 minutes. That's pretty great. It also has a 12 hour grace period so you can swap your sensor when it's convenient for you. All that on top of it being small, accurate, incredibly wearable and light. These things, in my opinion, make the Dexcom g7 a no brainer. The Dexcom g7 comes with way more than just this, up to 10 people can follow you. You can use it with type one, type two or gestational diabetes. It's covered by all sorts of insurances. And this might be the best part. It might be the best part alerts and alarms that are customizable, so that you can be alerted at the levels that make sense to you. Dexcom.com/juicebox, links in the show notes, links at juicebox podcast.com, to Dexcom and all the sponsors. When you use my links, you're supporting the production of the podcast and helping to keep it free and plentiful. My daughter is 20 years old. I can't even believe it. She was diagnosed with type one diabetes when she was two, and she put her first insulin pump on when she was four. That insulin pump was an OmniPod, and it's been an OmniPod every day since then. That's 16 straight years of wearing OmniPod. It's been a friend to us, and I believe it could be a friend to you. Omnipod.com/juicebox, whether you get the OmniPod dash or the automation that's available with the OmniPod five, you are going to enjoy tubeless insulin pumping. You're going to be able to jump into a shower or a pool or a bathtub without taking off your pump. That's right, you will not have to disconnect to bathe with an OmniPod. You also won't have to disconnect to play a sport or to do anything where a regular tube pump has to come off. Arden has been wearing an OmniPod for 16 years. She knows other people that wear different pumps, and she has never once asked the question, should I be trying a different pump? Never once omnipod.com/juicebox get a pump that you'll be happy with forever.

Brie 9:00
Correct? Yeah, my endo in Atlanta, they were very big on getting me set up on the technology, so I spent a couple months doing the glucose finger pricks. And then we like, All right, let's transition you to the Dexcom. CGM now,

Scott Benner 9:12
do either of you, or both of you, share your Dexcom follow with anybody at school?

Nick go first. Yeah, I

Nicholas 9:22
do. I share my follow with both my parents at home, and I also share it with my athletic trainer slash coach. So just in case, you know, I'm on the sidelines and something's wrong, she's able to, you know, see it on her phone and be able to communicate what it is to me too, right?

Scott Benner 9:38
Okay, so she watches you while you're playing.

Nicholas 9:42
Yeah, you know, in case anything's like, majorly low or majorly high, she's not tracking it all the time, but she has her phone on her so, you know, if it beeps on her phone, she's able to tell me something important.

Scott Benner 9:52
Give me a second, is playing the right term when you're cheering, like, how do you think? Because it's a sport, right? But I didn't see what I mean. Bri, I didn't want to be. Like, while you're, like, doing the thing. So how do you refer to it?

Nicholas 10:03
I, you know, I get caught up saying plain, but I think it's technically supposed to be cheering. And like, you know, we're cheering all the time, if you see us on this island. So I like the word cheering. It's kind of like a, you know, a hype verb, you know, it's a great, you know, personality trait to have. So yeah, and

Scott Benner 10:20
Bri, how do you stop yourself from whacking people with that stick? Like, you know, like, when it get I'm being serious, when you when you get frustrated, and like, you're just a little behind them, like, half a step, how do you not reach out just go, like, ankles. Like, you know what I mean? Like, please tell me

Brie 10:33
about that. Yeah. I mean, I guess, you know, women's lacrosse is technically not a contact sport, so you have to keep that in mind when you're playing. You know, the men's game is entirely different. But, you know, I think just what I'm the rule has changed pretty much every spring. Oh my God, I didn't even know that rule existed now, you know, getting a green card or something. So you just have to be mindful of, you know, you have to meet there's a certain level of discipline that you have to, you know, maintain, to not aggravate your coaches or your other teammates around you.

Scott Benner 10:57
I hear you. I know neither of you play field hockey, but I always wonder why they don't make that stick longer. You know what I mean, like, because they're always like, but you know what I mean, like, then they wouldn't have to bend over. But that's not really neither here or there. Nick, would you consider what you're doing aerobic while you're cheering pretty? Is running around, right? She's not really lifting weights, but you're lifting things. But are you moving to like? Is one of you? I'm trying to decide if one of you is doing aerobic exercise running around, and one of you is doing anaerobic, like, lifting, and if that's impacting your blood sugar differently, yeah, that's

Nicholas 11:28
a great question. I actually grew up playing soccer, so I grew up running all around the field, and doing cardio is a main part of my sport, and that actually, I took my pump off, and that caused my blood sugar, you know, to, like, stabilize because I was doing so much cardio, but I also wasn't getting insulin, you know, every five minutes. But it's actually the opposite. With cheer I keep my pump on because, because I'm lifting so much and not, you know, running around the sideline as often, I actually have to keep my pump on for my blood sugar, not to to go higher during my sport. Was gonna say, Do you ever have to bolus while you're doing that? Yeah, I usually, usually, I'm able to maintain the basal, and the basal is able to keep my blood sugar low. But, you know, there's at times, normally, like during the halftime of a football game, we kind of get, like, a little bite to eat. And I definitely bull us both for the meal and for kind of my blood sugar too, if it ever goes high,

Scott Benner 12:17
okay, then, Bree, how about you? How do you manage while you're playing,

Brie 12:21
yeah, so I initially started out on the OmniPod pump that I would just have connected to my Dexcom, and then kind of, I think, you know, given that I'm, like, almost five years, not quite, I've still been kind of up and down, riding the honeymoon out. So I switched off of the OmniPod, and now I'm just like MDI whenever I need it. So whether it's like, you know, after practice and my glucose levels go high, just can give a quick shot between that and lift or something. But, yeah, I'm currently using MDI.

Scott Benner 12:50
Oh, wow. So you're, you don't think you've reached what might one day be your kind of like, natural need for insulin yet?

Brie 12:57
Yeah, not yet. I just recently met with my endocrinologist here at Oregon, and they were like, you're, you're in like, partial remission, is what they referred to it as. So I'm not my insulin requirements are very low at the moment, and I'm, you know, hoping they stay that way for for as long as I can ride that out. But yeah, for right now, it's MDI. I

Scott Benner 13:14
mean, I'll knock on wood for you on that one. That'd be cool. Thank you. Okay, so what about you Nick? What kind of pump do you

Nicholas 13:20
use? I use the T slim, and I use the closed loop system with the Dexcom CGM two, and it's wonderful control.

Scott Benner 13:26
IQ, yes, yes, sir. Okay, I didn't ask Bri, all right, is anybody at school following you?

Brie 13:34
Yes, yeah. So I have my athletic trainer, my dietitian, a couple of my teammates, and then my family and my sister from home as well. They're all following me. I think it's been huge, from what I've noticed, just being the distance. I don't have a ton of family out here, so they're able to track and follow. And that just gives me peace of mind as well, whether it's like overnight or in practice or something, my daughter

Scott Benner 13:55
gave her roommates, just like the 55 the low alarm in case there's like a real problem, but didn't want to bother them with everything else. But she just transferred. So my daughter just left Georgia, and she's at, I'm not sure if she wants me to say where she's at now, she's at a different university now, and she no longer has a classic roommate, so she's in a dorm situation. But they have apartments inside the dorms, and their doors lock when they close every time, and she's in a single so I was wondering if you guys were sleeping with another person in your room. Have you talked to your friends about glucagon? How do you guys handle all that at

Nicholas 14:30
school? Yeah, absolutely. I so my sophomore year. Last year, I was in a quad, so I had three other roommates, and at the beginning of the year, I showed them, you know, the glucagon, and I told them, If there was ever an emergency, that they would have to use this type of, like I called it, kind of like a pen, but, you know, there's instructions on the box, and I show them how to do it. And I have to be honest, you know, if I I'm a heavy sleeper, so I would be beeping throughout the night, and some of them. Were light sleepers, and they'd wake up before me, and they'd like, shake me awake. Or I have a really obnoxious ringtone for my mom, so in case of an emergency, when she calls, it's like, danger, danger. And so that wakes them up too. And if I don't wake up, they wake up and they help me out. So they my roommates have been incredibly helpful throughout this whole process. Do

Scott Benner 15:21
you have GVO, kypo pen? Is that the glucagon you use?

Nicholas 15:24
I'm not quite sure. The technical name, it's the one in the yellow box. Oh, do you have, yeah, I

Unknown Speaker 15:29
don't know. Is it this one?

Nicholas 15:31
No, I think it's another design, different

Scott Benner 15:33
one. Okay, and how about you? What do you have?

Brie 15:36
So I use the vaccine, the nasal, yes, yeah, the inhalable, yeah, which, luckily, I haven't, you know, had any type of scares like that come up yet. Knock on wood. But yeah, I've educated, like my parents know about the bepsimee, you know, close friends, whether that Yale or out here, I've introduced my roommates to it. And I guess I'm the same way with Nick. Like I'm a very heavy sleeper. So I will sleep through the lows in the high like, I just don't hear on my alarm. But my roommates will sometimes, and they can like, I'm right next door to them, and they can knock me like, wake me up and be like, Avery, like, I think your alarms going off. Yes, they're aware of my actually, one of my housemates, her stepdad is, is a type one diabetic, and he's also, like, very athletic, into the Ironmans and stuff. So she kind of knows. I didn't have to introduce her to that whole spiel. So yeah, that's been very comforting.

Scott Benner 16:24
She probably thinks you're following her. You know what? She's like everywhere I go. So I want to switch gears, but I'm going to come back to being at school. So Dexcom University, like, how do you get involved in that? And what is it you do for it? I'll Can I start with Brianna?

Brie 16:39
Sure. So with the Dexcom you Athlete Program. I had originally reached out to Dexcom, I think, via DM Like, it wasn't even, like, nio related. I just kind of was like, Hey, I was just diagnosed. I This was, like, at the start of covid. So I was like, this is very isolating. Like, I know no one. Do you have any resources? Or, like, is there any like, can you take me somewhere on your website that I can, like, connect with other people? Because at the time, it was just like, so new and forwards, like my whole family. And I was just like, this is, you know, this kind of sucks. And they got back to me pretty quickly, and they were like, Oh my gosh. Like, it's, you know, it's great that you're a college athlete. Like, we'd love to help you. Would you want to join this program that we're thinking of, like, it's called Dexcom you, you get to be a Dexcom warrior. And, yeah. And then from there, we set up a couple of zoom calls. I met with the team, and just kind of ran through what that process was going to look like with them. And it's been, I'm going into my third year with them, so that process has been going great. So

Scott Benner 17:31
is that, is it like a social media thing? Are you actually meeting other athletes? What do you do?

Brie 17:37
Yeah, it's a little bit of both. You know, there, it's a couple of social posts here and there, like, we just recently launched season three of Dexcom news. So we all, like reposted that video I've done like a media day, quote, unquote, with some other Dexcom you athletes a couple summers ago, and we all went out to Chicago, and we did, you know your like, standard media day shoot with, like, the smoke and lights, and that was really cool. And then I've gone out by myself. Most recently, I was out at Disney and Coronado Springs at the children with diabetes convention, and that was cool. I was able to just hang out at the Dexcom vendor share my story to like younger children with T 1d and parents, and, you know, friends of kids with T 1d so yeah, and then it, you know, also looks like interviews as well, just kind of hearing that, yeah, wherever I'm able to promote awareness or education around T 1d

Scott Benner 18:28
would you say that you're pretty open with your diabetes away from Dexcom you as well? You hide your devices? Or are you pretty comfortable than being

Brie 18:38
out? Initially, I used to, just because I kind of fell victim to that stereotype of it being like a shameful diagnosis. And then I think working with Dexcom has definitely helped me, like, put myself out there, especially like on Instagram saying, you know, to say, hey, like, this doesn't have to be something that you're you could be afraid of or that you have to hide. So I, like, even in my, like, graduation photos. I had it like, right on the back of my house, because I was like, this is a part of me now. So people, people should know that that's like, my identity and Nick,

Scott Benner 19:06
when you're dropping people and they're reaching for to save their lives, do they ever grab your devices and tear them off? That's a great question. Nick, I love it when you tell me I've asked a great question. By the way, feeds my ego in a way that you just can't imagine. I'm like, is a great question. I feel so good about myself invalidating it. Go ahead.

Nicholas 19:26
Yeah, so I there's been on occasion that, you know, stunt doesn't go the way you want to. And, yeah, I've had my CGM knocked off a couple times. Dexcom is great at, you know, replacing it pretty, pretty instantly. But to answer your question, it does happen sometimes. I gotcha, you're

Scott Benner 19:41
not telling me if you've ever dropped a human being, have you ever dropped a human

Nicholas 19:46
being? I, you know, I don't know what to consider a drop. You know, stunts don't always go as successful

Scott Benner 19:51
as ends with a girl in a dress. Cursing is what I'm assuming a drop means like, is that about what it is like?

Nicholas 19:58
Nope, nope. Cursing. But. Maybe the silent treatment. Like, what did you just do? Yeah, how

Scott Benner 20:03
do you play like and what do you like? What's the difference between your fault and their fault? Like, you know what I mean, like, how and who tells like, I have so many ques. Did you wait stop? I'm just asking you too many questions. But did you do like, now, pretty look, my kid played college baseball. I know you guys have probably been doing what you do since you were little, and your parents are hundreds of 1000s of dollars in the debt for travel, lacrosse and every other thing, but, but, so you went to Bri you played in tournaments, right? Yeah, like constantly. When did you know you were going to play in college? Two questions. When did you decide you wanted to play in college? When did you know it was actually going to work

Brie 20:42
out? So growing up on Long Island, like La Crosse in the northeast, was just like, I mean, that's like a hot bed. I was playing travel with the Long Island yellow jackets, and that's like, a huge name for colleges. And so it was pretty evident by like, the end of like, middle school, I was like, okay, yes, I want to play in college. Like, this is something I'm gonna, you know, put basketball for, you know, run winter track for, but use it, kind of, for trading purposes. So I had made that verbal commitment spring of my freshman year, which, like, essentially meant nothing, but, you know, other than, like, bragging rights, but yeah, that's got it was, it was early on. I was, like, probably 14 at the time.

Scott Benner 21:19
Were you tall at that point?

Brie 21:21
Like I was, I was growing. Yeah, I was definitely one of the taller ones.

Scott Benner 21:25
Yeah, I'm trying to figure out, because, I mean, as a freshman, they don't like, why would in Yale said yes, when you were a freshman, are you super smart? Bri, let's not make Nick feel bad, but, but go ahead. I

Brie 21:36
like, like, I'm average. I don't

Scott Benner 21:39
know, so Nick, I'm gonna ask you a question that I'm gonna bounce back to breathe in. Do you think that I don't know how to put this? Did shearing get you into a better college than you would have gotten into? Like, I because, I mean, it works that way, right? Like, you know, you get a little extra bump for being an athlete. So did that work out for you? So

Nicholas 21:58
my, my journey's a little bit different. I had mentioned earlier I played soccer all throughout my childhood, and I actually did not come into college knowing that I was going to cheer. So I, like, came into if you told me, like, when I stepped on campus that I was going to be a college cheerleader, like, within the semester, I would have told you, you're crazy. But I got recruited, kind of three weeks into August, and was handed a QR code by like, a upperclassmen who'd come from my high school at Notre Dame. I'm like, This sounds cool. I looked more into it and started stunting, which is, you know, when you throw your partner in the air. And I thought, you know, once I started stunting, I'm like, This is even more awesome. And all the, you know, amenities and things that comes with the student athlete was, uh, was great as well. So I'm like, I should really try this. And I did, and I've, you know, never looked back since, but I actually didn't, it didn't help me at all in the admissions process. I wish it would have, but I

Scott Benner 22:52
was gonna say, you're getting shaken down. Hear this break. You're making out way better than he is. My goddaughter was a flyer at Louisville. Oh, very cool, yeah. And until she was there, I didn't realize how competitive it was.

Nicholas 23:04
Yeah, was she, was she co Ed, or was she all girl?

Scott Benner 23:08
I think she started out on the team, like at the I don't know how to I don't know all the words so. And then I think eventually she got hurt, and she had to stop doing it. Okay, yeah. I think throwing a pound of person is probably dangerous. But wait, wait now. Bri, did you do you know Nick, have you ever bumped like, Were you with him at Chicago during smoke day or anything like

Brie 23:27
that? No, no, actually, this is, like, our first time meeting. Okay, yeah. So

Scott Benner 23:31
isn't it bizarre that he learned to do this in college? Can you imagine if you showed up at Yale and you were like, all right, I got the stick. Where's the ball? Tell me what to do. That's Nick. How quickly did it take you to be like, proficient at it?

Nicholas 23:43
Yeah, that's a great question. See, good

Scott Benner 23:46
job. Yeah. Bri hasn't done it, but it's fine.

Nicholas 23:52
It's it's taken, it's taken a bit of time where, as a team, you know males, you know kind of cheering in high school isn't as popular as, let's say, some other sports, so we actually really it's an investment for our team to kind of recruit guys as they're in college and get them up to speed and proficient with the sport. But I like to think our team's great at doing it, and they coached me really, really well. And you know, by my sophomore year, I was traveling, like to away games with the football team and and doing everything that I could with Notre Dame cheer squad. So Bree What's

Scott Benner 24:25
it feel like when that ball hits you? Like it happens sometimes, right? Like it comes across. It's yeah,

Brie 24:32
it's yeah, it's happened more than once, unfortunately, but yeah, no, I I've been in practice like I've gotten hit with shots in the head, and luckily, no concussions, at least yet I have, I've never had a concussion, but, you know, it's not fun. It's, I mean, the ball is like,

Scott Benner 24:45
this big cruising pain right when it hits you. It is, yeah,

Brie 24:49
I can't imagine what it's like for goalies who are getting pelted like every other

Scott Benner 24:53
shot. I don't even understand. Do you wear much protection? Because you guys really don't wear, you wear, like, shin pads, and, no, yeah. We

Brie 25:00
just have, we have a mouth guarding goggles and, I mean, I can't tell you how many times I've seen, like, nose. I've had teammates, like, break their like, fracture their noses. Yeah, there's been a lot of, one too many entries next,

Scott Benner 25:12
but I've never been, yeah, helmet seems annoying, but, I mean, but Nick's got more protection than you do. I don't understand

Brie 25:19
what's going on. Yeah, I have no idea. I they're going to change those rules eventually, because, I mean, with it being non contact, it's, it seems quite the opposite. Yeah. What

Scott Benner 25:29
are you in grad school for?

Brie 25:30
I'm studying journalism right now. Journalism. So

Scott Benner 25:32
you started with like, polysign. You went to journalism?

Brie 25:35
Yes, yeah, they had. The University of Oregon has a pretty solid school of journalism and communications, and it was one year, and I was like, that's perfect. Like, I plan on going to law school after so I was like, I can do something in the meantime. Have some like, I've always loved, like creative writing, but I've never learned, like journalistic type of writing, and like reporting is, like, kind of outside of my comfort zone. So I thought that doing something different would be super helpful.

Scott Benner 26:02
I was joking earlier, but breeze that does have three jobs. I didn't know you're going to law school, so when you guys are studying, let me ask you first Nick when you're studying, when you show up a class for a test, something like that. Something gets your kind of adrenaline going. How quickly do you stay on your Dexcom? Like, when does like? Is it walking to class? Is that when you sit down and realize I'm not prepared for not that you guys wouldn't be prepared. But you know what I mean, like when you're like, a little panicked about the test, do you see rises from adrenaline for schoolwork?

Nicholas 26:29
I do? Yeah, I usually see it about 15 minutes to 20 minutes like, into a test. We have accommodations here at Notre Dame through Sarah Bay program. So I actually usually test in my own separate room, and if I ever fall low or fall high, and I can't really think clearly, I can always ask them to, you know, stop the clock and for me to treat my blood sugar, and then, like, resume the test later. So they're really helpful with that, and I'm able to test like an environment that suits me. What's the

Scott Benner 26:57
number? Right? There's got to be a number where you get like, a little cloudy and and do you notice it in academics? And do you notice it in sports? And I'll give you my example. While my son played in college, my daughter stopped playing sports when she was like, I don't know, 14 or 15, maybe. But when she was 12, she was playing in a Little League World Series semi round. Her blood sugar would like, you know, they get jacked up, and the adrenaline would come. Her blood sugar would go up, and then I would notice that her foot speed would decrease over about 180 to 200 and I was wondering if you guys saw any deficits like that with higher blood sugars. I was gonna ask Brianna first, because she's running. Oh, yeah, but she's running. But you also might not be getting high because of that as well.

Brie 27:41
Yeah, yeah, I've had different encounters. It varies. Also, I know that the weather impacts, like, the time of the year that I'm playing, like, for example, when I'm playing with Team Puerto Rico, we're typically playing in the summers, because that's just how our like, tournaments will work. And I'll notice, like, there's been events where it's the style of play is also different. At the national level, it's very it's like, straight conditioning, so you're just running back and forth. And I normally play attack, I'm not running the length of the field, but in sixes, you are. And so when you're playing at that speed, I noticed that my I'm a lot more insulin resistant, and I'll I've never, I've never had to come off the field and, like, inject, but during those times when I'm playing, I'm like, way more cognizant of that, because there has been instances where I'm like, I've no, I'm like, I genuinely have no idea what's going on. Like, I feel dizzy, I have a headache, like, I gotta take myself off, um, I don't notice that it makes me physically slower, like, in terms of, like, my feet, and maybe it does. I think I'm just so in my head, and I get really cerebral in that moment. But, yeah, definitely in the warmer weather, I noticed that when I'm running around, but electrical will go a lot higher than

Scott Benner 28:41
two then do you feel foggy at all when you get higher or nauseous, or anything like that?

Nicholas 28:46
I do. I feel like I get foggy in the head, kind of around the, like, upper two hundreds, if I ever go to like lower 300 so I, you know, try and prevent that. I definitely feel that with cheer to just like your ability to focus when you're kind of in the air, like with your partner stunting. It gets a little foggy, but it's, it's something, you know, I always keep my pump on me, so I always try and not be as high, and I, like, prefer low or like, I attack the high, right? You know, on occasion,

Scott Benner 29:15
I always say I'd rather stop a lower falling blood sugar than fight with a high one. It just seems easier. So Nick and I'm going to translate this to Brien a second, but I'm assuming your mom had, your mom and dad had, you know, eight good years of deciding what healthy looked like for you right before you left for college. So you left with probably a fairly stable a 1c goal that you guys were meeting. And then you get to college, how do you decide what your new goal is? Like, it did it change? Was it hard for you to maintain what was going on when you had more help? Like, how did you navigate all of that?

Nicholas 29:52
Yeah, absolutely it so our goal never changed. It was hard to navigate at the beginning of my freshman year, just because, like, I stopped soccer. And picked up cheer, which is, like a different type of sport. I was living on my own, you know, we had access to the dining hall and all different types of foods. It wasn't the normal, you know, my mom's cooking at home, and so it was, it was a big transition, for sure, but I was able to, like, you know, get accustomed and comfortable to it towards the end of my spring in my freshman year, and now I feel very comfortable as a junior. You know, I know what to expect, and it's always been, you know, the same goal, but now it's more realistic for me to accomplish that you

Scott Benner 30:29
actually do it. Let's talk about the food for a second. Briano, it's just not great at college, right? Like hits you harder than when you're eating cleaner at home, greasy or fattier, the high stick to you longer to use more insulin at school than you do when you're at home. Yeah, that

Brie 30:44
was one thing I noticed, especially when I returned to my sophomore year at Yale, navigating the dining hall was incredibly difficult. I actually ended up going briefly. I was on like, a low FODMAP diet, so I worked really closely with the dining hall at Yale, and they would just be able to prepare me with, like, the correct because sometimes the menus, you know, the ingredients, some ingredients are missing, or, like, the carb counts are wrong for the servings, like the little nutritional Info Cards weren't necessarily super accurate. So I'd work really closely with the dining hall staff to be like, you know, I just want, like, plain chicken with, like sweet potatoes and like rice, or, like, whatever it is. And I'm like, just, like, if you give me X amount, like, one cup of this, one cup of this, like, I can calculate the carbs, because at that at that time, initially, like, I was so sensitive to, like, my insulin requirements and, like, being resistant and stuff. So I just was, like, very granular on my approach to carb counting. And then my senior year at Yale, and now my my year here. I'm living off off campus right now, I'm in a house, so that's been nice just to be able to, like, buy the food that I want prepare, the prepare the meals that I want to prepare, and now everything is kind of like, planned ahead and a little bit more scripted that way. So it makes managing a lot easier.

Scott Benner 31:56
Yeah, my daughter's freshman year, she ate in the dining hall, and it was hard. There was one time she texted me in the first couple of weeks, and she's like, I promise you, I am bolusing. And I was like, Okay, I said, What are you eating? And she goes, it's broccoli. I don't understand what's happening it. Just then you realize it's cooked in oil. And like, there's a reason it tastes good. And it's also got more processed food at school than you might ready. You know, used to at home, then her sophomore year, we got her, speaking of accommodations, we made them give her a room that had its own little like kitchen in it, and that made such a big difference in her blood sugars. Was really awesome, actually. I want to know. I'll start with you, Nick. I want to understand because you know, both ways, you know, using a Dexcom, you know, not using it like, can you tell me some of the places where not having a Dexcom would impact you, like, what do you think of when you think of losing it?

Nicholas 32:46
Of course, the first thing I think of is my sleep at night. I think that's the biggest thing for me, because when I have a Dexcom, CGM and my you know, all my parents are following it, like people in my dorm are following it, I feel a lot more comfortable being able to sleep at night, knowing that if something were to go wrong, Dexcom would alert me if I'm low or high, or maybe, like, my pumps malfunctioning, something of that sort, where, you know, if I didn't have the Dexcom CGM at night, like what my parents and I did when I was a lot younger, was we would test like Every hour to maybe every like two hours. And you know, that's such a tired, sleepless night to do that, even if it's only for two minutes, it's definitely a real challenge. So I've definitely caught up on hours of sleep with Dexcom, and that's the first thing to come to my mind. Yeah,

Scott Benner 33:35
I'll tell you that sleep for me, when my daughter got a CGM, like, it just changed. It changed my life. I was, I didn't realize how bad off I was actually, because sleep's that sort of thing that you don't notice it at first, and it gets slowly worse and worse and worse, and then you're exhausted. Don't realize you're exhausted. You know that kind of thing happens. Bri How about you? What like when you think, no. CGM, what do you think? Oh, no. That would mean,

Brie 33:56
yeah. I think for me, it's been part of my diabetes identity. Pretty much ever since I was diagnosed, like, having the Dexcom CGM has just, like, helped, even just from like, a confidence perspective. So I think the days were like, you know, if it falls off and I'm not able to get a replacement, or, you know, it expires, I don't have a backup of my bag, I'm like, Oh my God. Like, sometimes I'm like, Oh my gosh, what do I do? Like, I'm like, I'm, like, super reliant on the Dexcom, which is, which is helpful, and it's awesome. I mean, I of course, always make sure I have like, the meter and the like, strips and stuff in my backpack, just in case. But I think just from a peace of mind perspective, it's also like, you know, my mom will be like, Why don't I get your readings? And I'm like, I don't, I don't know, like, my bluetooth is off right now or something. So it's just like, it's nice to have, like, a comfortability standpoint, and even to, like, Nick was saying for for sleep, like, I would have it connected to this app that will, like, call you. So it's like, lasting a ringtone. It's like, in the middle of the night and I'm low or something. So yeah, it's definitely like, part of I would say it's like, plays a huge role in, like, my identity and who I am is, like an athlete with diabetes. Do. Either

Scott Benner 35:00
of you ever have moments when you just wish your parents couldn't see it? How do you handle that Nick's laughing? Let him go first. Yeah,

Nicholas 35:08
there's definitely times where you know, like, maybe you're sick, or maybe, like, your pumps not working properly. I I feel like shame when my blood sugar's like, high for too long. And like, you know, my mom definitely sees it, and I have to be like, Mom, I promise like, I'm I'm bulletin like, we have a, we have a fast acting insulin now, and times where that happens too. So, but yeah, you know, you just have to deal with it. And honestly, it's a type of accountability, like the next time you're just that much more persuaded, I guess, or influenced, to do better for for your parents. Nick, are you telling

Scott Benner 35:39
me that the overwhelming feeling is that you feel like you're letting like you're letting somebody down, or yourself down like you do? You feel like you're letting your mom down because she's had ashamed, right? Like, what's that feeling?

Nicholas 35:49
Yeah, no, it's I, you know. It's not like she's gonna be like, mad or disappointed in me. It's just that, like, I, you know, you know you can do better, and with your parents doing so much for you, it's just kind of like you feel a little disappointed in yourself that you weren't able to deliver the same thing. Have either

Scott Benner 36:06
of your parents ever sent the Find Your iPhone sound when they when you didn't answer their text? Have you ever had that experience smiling and laughing? Yeah, okay,

Brie 36:16
yes, no, I have had that experience. Have you ever

Scott Benner 36:20
gotten a text that says, Please don't make me send to find your iPhone sound to you, because I think I've sent that text

Brie 36:26
once or twice. Do

Scott Benner 36:28
you guys, either of you know the podcast

Brie 36:32
Brianna? You do? Yeah, yes, yeah. I'm actually juicebox. Podcast was like one of the first, like one of my first resources that I looked into for my mom's co worker, Heather. She's like, she's also type one, and she's like, it live. Think she listens to your podcast, like, religiously. But I just remember because my mom was trying to help me navigate the process too, and she was like, Oh my gosh. Like, Heather recommends juicebox, and so I have listened to a couple of your episodes. So I was like, I was super excited. So I'm like, somewhat familiar with it, but, yeah,

Scott Benner 37:03
let's say hi to Heather. Nick. Do you know it too? That's not possible. Like, you guys are young. Like, listen, I made this podcast for my daughter. Like, I'm not gonna lie to you, I basically, I was like, if I make a podcast where everything's explained that one day when I'm gone, she can go back and listen to it, and she'll like, like, right? She never listens to it. She's on episodes. She won't listen to those episodes. So, like, have you,

Nicholas 37:24
Nick, heard it? So kudos to the Dexcom marketing team, because they gave us, like, a cool briefing doc about your podcast. But also, I called my mom saying, okay, you know I'm doing well, like, I'm going to be on this podcast. I think it's called the juicebox podcast. She's like, What? Like, I've been listening to that since day one. She's like, most of my advice to you comes from that, oh. I'm like, oh. So she's like, Uncle Scott,

Scott Benner 37:49
here, Nick you understand, there we go. Yeah, all your success, I'm not gonna take credit for it, but, I mean, I will later tell other people how I saved your life. How do you talk to other people? Like, if I brought you right now a couple of seniors in high school who were gonna go, you know, off to school and play a sport. What do you think you would tell them? Like, I'm not gonna say, like, Give me three things, but like, anything that you can rattle off your head that, like, really seems like knowledge, because a lot of parents listen to this and their kids are playing sports and hoping to play in school too. And yes, like, with some of these devices, I don't know if you noticed, like, some professional, like, field goal kicker last weekend stepped up to kick a field goal, and he had like, an OmniPod on one arm and a g7 on the other arm. And I was like, Look at this guy. Go. And so I'm just wondering, like, what? What would you tell somebody if they asked you for advice? Nick, you want to go first?

Nicholas 38:36
Yeah, absolutely. I think the first advice I would give them is the best thing to do is communicate with everyone around you. I've always had a really positive experience with my coaches. I'm communicating to them both in soccer and in cheerleading, and so that's my first bit of advice. Like, communicate with your teammates, let them know what's going on. Communicate with your coach, because sometimes in a game, you know, you may have to be like, subbed out quickly, or like, grab, you know, grab the fruit snacks and Skittles to treat a low, you know, that's, that's probably my first bit of advice. The second is, you know, I think it's, I think it's a great challenge to have, because I think you're that just that much more prepared. You know, when you're going into your sport, like, for cheerleading, like, I'm not so worried about, like the starts I'm hitting, as I'm worried about my blood sugar, whereas, like, my teammates are worried about, you know, if they brought, like, the proper tape, right? And so I feel like I'm that much prepared, like in soccer, like my teammates, like, would be forgetting their shin guards and, like, bringing them to games, whereas, like, I can't forget like, my, you know, glucagon or Skittles or or glucose meter. And so I'm definitely not going to forget my shin guards at that point, you know. So, so I just feel like it's, you're just that much more prepared. And we actually, with Dexcom u we were able to go to this really cool sports camp over the summer in San Diego where there was both, like, professional athletes there, and then college athletes part of Dexcom, you and then even younger kids, just, you know, kind of you. Trying out every sport, and everybody had diabetes there. And so it was a really cool experience, just to kind of see people from all levels. And I even got advice from the professional athletes there in terms of, like, how to interact, like, with the athletic trainers and really take your sport to the next level with type one diabetes. So it's, you know, I can give advice, but I can also, I'm taking advice all the time. It's

Scott Benner 40:20
a great answer. Nick, and I'm not just saying that because you earlier said I asked a good question. Brando, how about you?

Brie 40:27
Yeah, I'd say my biggest thing is probably to practice patience. That's something that I'm like, historically, a very immaculate person, just beyond the context of diabetes, just like school, lacrosse, whatever it is. I think being able to practice patients has been so helpful for me, but also for the people around me that are managing my diabetes. Like, they understand, you know, if my mom's looking at my glucose levels and like, I'm slightly higher than normal, like, she knows now not to probe and be like, are your levels high? And I'm like, you know, clearly I'm not in a good mood. Clearly I'm not in a good mood. Like, give me, like, a couple minutes to, like, refocus and get my mental state back, you know, yeah, and check. And then I think also, just like learning to embrace the struggle that's like dealing with it in right, basically, right at the start of my collegiate career, I was, like, so bogged down, like it took a really big mental toll on me. And I was like, I don't know how I know I can still play lacrosse, but, like, I don't even know what that transition back to the field is going to look like. And everyone around me was just so supportive, being like, You're so strong, like you put up with, like, being an athlete, playing pretty much every sport, growing up that like this is just, you know, another, like, minor piece of adversity that you can 100% overcome. And so I think learning to embrace the struggle and kind of, like Nick said, I think it it holds you more accountable, like you see, you hold yourself to a higher standard. You know, there's like that natural set of discipline that just kind of grows with you as an athlete, but also as someone managing a chronic illness. And so I think when you're able to use that discipline and accountability, you can actually apply it to your sport, but also know that, like, you still have those attributes from playing sports and being an athlete that you can apply to your

Scott Benner 42:07
diabetes. Yeah, I was gonna that's another great answer, actually, but I was gonna use the word lucky, because I can't find a better word, but you guys are lucky and you don't realize it. And I've had the experience of interviewing 1000s of people, right? And when I find people who are in their late 20s who didn't have a lot of success with their management in college, the statements usually run in two different ways, like either I was diagnosed really early, and my parents took care of everything, so I didn't even know what I was doing when I got to college, and I was scared to tell my parents I didn't know enough, I went C went up. My variability got worse before I knew it. My health was an issue. It took me a long time to get it back together again. Or you hear people who are were in brief situation like, look, I was diagnosed in college. No one was even there to help me. I didn't know what I was doing, and I had these same problems. And then it can take them years and years and years to get through life and graduate and do all the things they want to do to make the space to actually come back and and look at diabetes again and put it into a position where it can be a healthy existence for you. And both of you guys seem to have, like been able to avoid that, and good for you, by the way, but I think it probably has a lot to do with playing sports, like, right? Because you can't do what you guys do with vacillating blood sugars, with super highs, with being low all the time. So yes, it puts it on your plate of things that you need to understand if you want to keep doing the thing you're doing. But my last question, then, for both of you is, and how do you make the space for that? Like, how do you not in the middle of, like, a three hour study session, just mute your phone and be like, I can't, I can't do this right now. Like, how do you make space for diabetes in a life that's already would have been over full if you were just college students, but now is over full plus a sport. And I'm speaking from a position of understanding. Like, I know what my son's schedule is like playing baseball. So like, how do you, how did you get it to fit in without making you crazy?

Nicholas 44:03
Yeah, absolutely that. That's a great question. Nick and I

Scott Benner 44:08
are going to be friends after this. Go ahead.

Nicholas 44:11
So I think it's really like, you know, it's another like, I'm sure breeze used to this too, with being at such a great like, academic university, and then being a student athlete, and then, you know, wanting to have a social life on top of that, and like, just interacting with different clubs. And you know, there's, there's a million things you want to do here, and you have to be if you want to accomplish your dreams, or if you're so, you know, inspired and motivated to do one thing, you have to take care of your diabetes, or it's going to get the best of you, you know what I mean, and you have to be on top of it. And so I think, you know, I, like, came into University of Notre Dame, like, knowing that I wanted to do great academically and do this club, and I joined cheerleading. And so I got so inspired. And so, like, happy to do what I was doing every single day that, you know, managing my diabetes. 90s was just like, a goal and something I became proud of because my great, like, my blood sugar's great, like, I'm gonna go do what I love to do. It is another, like, roadblock or challenge, but in that way, like, it prepares you even more. But it's also like, you know, like, if you're really motivated about accomplishing a goal, like, you know, you can go through 20 roadblocks to get to that goal, and you'll always keep doing it, because it's, it's something that you want to do. So I think, like, my main message is, like, if you know, like what you want to do, and and you love what you do, and you love your sport, and you want to do well at it, like, control your diabetes, because that's your goal, and nothing should stop you from doing that. Do you

Scott Benner 45:36
think Nick a follow up question is, do you think that playing sports your whole life gives you that ability to do that thing, because it's, it's for a person who doesn't do it. I mean, and there's one thing to like, play for fun, right? But like, when you really are digging down and you're thinking, like, I'm gonna go in college and do this, I don't know if everyone understands the amount of time and effort you put into something. So even as a kid, you're managing your time much differently. Like, do you think you think you were predisposed to be able to do well at this because of that? Absolutely,

Nicholas 46:04
I think sports serve you so well in life, and, you know, and being able to have, like, a competitive drive and and competing for something that you want to achieve, and that's, you know, the same thing with diabetes, right? Like, if you're training, you know, to be a college athlete, and you're doing more than the average person's doing in your sport. It's kind of the same with diabetes, right? Like you need to you're doing more to be great at your sport, but it's just that much higher of a person that you have to be in order to do that. So I think sports are a great way to, like, really enhance that competitive drive and allow you to achieve that goal. And I've, you know, played sports my whole life, and, you know, I think that's aided me and having that drive,

Scott Benner 46:45
right? Brianna, how about you?

Brie 46:47
Yeah, I mean, I feel pretty much the same way. I think, you know, you know, coming into college, there's that there's going to be that balance, if you want to make it as even as you can, between the sports, between the academics, between, you know, having a balanced social life. And I think for me, you know, coming in and having, like, a almost a full year under me in college, I was like, okay, I can do this. I'm acclimated, you know, and then you get hit with the diabetes diagnosis, and, you know, your next three years look entirely different. But I think with that, like, it's a learning process, but it's the same way that, you know, you pick up a stick for the first time and you're like, my gosh, I'm awful at this. Like, I can't catch and throw. This is so embarrassing. Yeah, and then you, you know, takes you a couple months, it takes you a year, and then you're like, oh, wow, this is actually so fun, because I put in the work behind it, and I'm seeing the results. And I think, you know, it's the same way when you step onto the field, like, exactly what Nick was saying. Like, as a lacrosse player, you're treated it's a spring sport, but you're training full year round. You know, with your diabetes, like, there's, there's no you can't just take a day off. Like, you can't just be like, I'm just not going to look at, you know, my CGM not going to look at my glucose numbers today. Like, that's just not an option. And it's the same way, like, you want to be successful on the field, you have to do the things that will translate to those outcomes, being able to be confident in, like, having a structure routine every day. I think being able to have, like, I think the biggest thing coming from sport is having, like, a strong mental psyche. I think that's really, really bolstered my ability to be like, okay, like, all I have to do is control the controllables and understand also and be mindful that, like, my numbers aren't going to be perfect every day. You know, I'm not going to go out and have the perfect game. I'm not going to I might go three for five on my shots or something like, I'm not not everything is not going to fall into place exactly how you want it. And so being mindful in that sense, has definitely helped me. But I think for sure, being an athlete has allowed me that level of discipline that I can apply to my diabetes. And, you know, just trusting myself in managing it, I

Scott Benner 48:36
think just showing up on campus probably having been the best, whatever player you were before, and then getting to another place where that's not true anymore, if you can get there, absorb that and keep going, it's a big deal at a young age, like I, I watched my son go through it, and it's a it helps you as you become an adult, too. It really does, like you can have thick skin, you know,

Unknown Speaker 49:00
absolutely? Yeah,

Scott Benner 49:01
I wish we had more time. If we did, I would ask you about dating with diabetes, because I am interested in whether or not that makes things difficult, of how people treat you and etc. But maybe we'll have to have you guys back some time and do it another time. Sounds good. We'd

Nicholas 49:14
love to be back.

Scott Benner 49:15
You guys got class today. You got to go, like, do

Brie 49:17
stuff. Where are you headed? Bert, I have no I actually don't start until the 30th with classes, but I have my first lacrosse meeting later today, so that I'm writing for newspapers. So I've got some some training meetings and stuff here and there. But, yeah, just gearing up for the start of the

Scott Benner 49:34
fall. Good luck. That's awesome. How about you,

Nicholas 49:36
Nick? We are gearing up for a really cool game day against Notre Dame versus Louisville this weekend. You know, we have a couple alumni tailgates, and we've got a few like run through practices. So it's going to be, it's going to be rainy tomorrow, actually, here in South Bend, so that'll be fun, but, yeah, preparing for a game day. So that's the rest of my day. All right. Well, good

Scott Benner 49:54
luck to both of you. It's awesome. You guys are really your parents. Must be incredibly proud of you. You know, I'm proud of you, and I've. And you're for like, 45 minutes. You guys are really doing it. It's harder than people would give you credit for. I don't think, I don't think anybody should try to say how difficult it is to be a college athlete with type one diabetes, but there's no doubt in my mind that it isn't easy. So good job, both of you. I'm really, really think it's awesome what you're doing. Thank you.

Nicholas 50:18
Thanks, Scott. Yep.

Brie 50:19
Thank you so much, Scott, for your time. Appreciate it.

Nicholas 50:21
Yeah, thanks for having us on. Oh,

Scott Benner 50:23
it's my pleasure. You guys were great.

This episode was sponsored by touched by type one. I want you to go find them on Facebook, Instagram, and give them a follow, and then head to touched by type one.org where you're going to learn all about their programs and resources for people with type one diabetes. Today's episode of The juicebox podcast is sponsored by the Dexcom g7 which now integrates with the tandem T slim x2 system. Learn more and get started today at dexcom.com/juicebox, dexcom.com/juice, box. If you'd like to wear the same insulin pump that Arden does, all you have to do is go to omnipod.com/juice box. That's it. Head over now and get started today, and you'll be wearing the same tubeless insulin pump that Arden has been wearing since she was four years old. If you or a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective. The bold beginning series from the juicebox podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bold beginnings series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698, in your podcast player. Or you can go to juicebox podcast.com and click on bold beginnings in the menu. When you support the juicebox podcast by clicking on the advertisers links you are helping to keep the show free and plentiful. I am certainly not asking you to buy something that you don't want, but if you're going to buy something or use a device from one of the advertisers, getting your purchases set up through my links is incredibly helpful. So if you have the desire or the need, please consider using juicebox podcast links to make your purchases. Okay, well, here we are at the end of the episode. You're still with me. Thank you. I really do appreciate that. What else could you do for me? Uh, why don't you tell a friend about the show or leave a five star review? Maybe you could make sure you're following or subscribe in your podcast app, go to YouTube and follow me, or Instagram. Tiktok. Oh gosh, here's one. Make sure you're following the podcast in the private Facebook group as well as the public Facebook page you don't want to miss. Please do not know about the private group. You have to join the private group as of this recording, it has 51,000 members in it. They're active, talking about diabetes, whatever you need to know, there's a conversation happening in there right now, and I'm there all the time. Tag me. I'll say hi. The episode you just heard was professionally edited by wrong way recording, wrongwaverecording.com. You.


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