#460 Defining Diabetes: MODY Diabetes
Scott and Jenny Smith define diabetes terms
In this Defining Diabetes episode, Scott and Jenny explain MODY Diabetes (Maturity Onset Diabetes of the Young)
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Alexa - Google Play/Android - iHeart Radio - Radio Public or their favorite podcast app.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:00
Hello friends and welcome to Episode 460 of the Juicebox Podcast today is another in the defining diabetes series. It's short, it's sweet, and it's informative.
I've been defining diabetes here on the Juicebox Podcast for ever It feels like and I've done simple terms like Pre-Bolus a one c, Basal and Bolus. We also talked about honeymooning and things that people don't like to talk about. We've defined non compliant, brittle diabetes, and even talked about terms that are specific to the podcast like stopping the arrows trust will happen feeding insulin bumping and nudging. These episodes are chock full of good information. They're short and digestible. And if that wasn't enough, they're made even better with the presence of Jenny Smith, my friend and certified diabetes educator who helps me on these and the pro tip episodes. So today, Jenny and I are going to define Modi diabetes, Mo d y. While you're listening to that definition, with Jenny and I, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. were becoming bold with insulin.
If you enjoy this episode, look for the other defining diabetes episodes. Right there in your podcast player, you can just search Juicebox Podcast defining diabetes, and you will get a super long list of them. You can also find them at Juicebox Podcast calm and diabetes pro tip com. Speaking of websites, if you go to integrated diabetes comm you'll be at the place where Jennifer Smith works. There you'll learn things like Jennifer Smith has had Type One Diabetes since she was a child. Did you know that it's true over 30 years Jenny's had type one, she holds a bachelor's degree in human nutrition and biology from the University of Wisconsin. She's a registered and licensed dietitian and certified diabetes educator and a certified trainer on most makes and models of insulin pumps, and continuous glucose monitoring system. She also cheats at Scrabble. That's not true. I just never say anything bad about Jenny. And I thought that would be funny. But even as I said it, it felt wrong. Not gonna have a bunch of ads today just want to remind you to go to the T one D exchange, fill out their survey, help other people with type one diabetes, it is free for you, of course, because you're the one doing the thing. It is 100% HIPAA compliant. It is 1,000% anonymous. And if you want to remove your answers at any time, you can so easy thing to do. Why would you do this? Because the decisions that are made with your answers help people living with Type One Diabetes, all you need to be is a type one who's living in America, or the caregiver of a type one who lives in the United States. And you can go do this right now. T one d exchange.org. forward slash juicebox. Everyone who completes the survey is benefiting people living with type one diabetes, and you're benefiting the show a little bit too. So thank you for that. Okay, so we'll move on to the next one, which is Modi. So I can only recall he thought it was interesting. Yeah. Because this is even worse, right? I mean, more word like so maturity onset diabetes of the young. Mm hmm. See now Jenny, right off the bat. It says mature and young at the same time. These words don't go together. What does this know?
Jennifer Smith, CDE 3:50
And I've thought that myself, okay. I don't think I don't love Modi title or what it what it stands for, because you're right, mature and young. How do those go together really the diagnostic typical age. This is where it comes from is somewhere between about like 10, like pre puberty all the way through like the mid 40s. So your like kind of second decade through the fourth fifth ish decade of life is the typical diagnostic time period. Formally, okay. Okay. I've worked with only two people with Modi. Both of them I've worked with through pregnancy. Okay. And it's been really interesting. I mean, one who has had Modi she was diagnosed very early as a child with Modi had really good like, I guess, like tracking care in terms of like, you know how to manage. But it's a really, it's interesting because it's very rare. This is where Modi is similar, more similar to like that type two, in that there's not a, there's not an autoimmune component to it. So in, if you're checking antibodies, somebody with Modi may look, the type one, Ill, but they won't have antibodies
Scott Benner 5:25
type two. So this is just from Harvard health. But it says maturity onset diabetes of the young Modi is an inherited form of diabetes mellitus is caused by a change in one of 11 genes, up to 5% of all diabetes cases may be due to Modi. Just like other people, diabetes, people with Modi have trouble regulating their blood sugar levels. So like,
Jennifer Smith, CDE 5:47
and this is another I don't know if this is in your facts. But I remember reading not long ago, that I believe it's adults who are diagnosed with type one, almost, I think it's 80% of them have actual, like, Modi I would have to relook for that fact. But I, I'm sure it's struck me I was like, really, does that mean that a lot of people like walking around with like adult like, it was a really interesting fact, I'll have to look for it. Again. If I can find it
Scott Benner 6:23
says here that it's a it's a monogenic disease, meaning that it's caused by a single gene mutation. So you actually have a gene changes, one of 11 genes changes, it could be any number, any one of those 11. And now suddenly, I have all the same symptoms of somebody with Type One Diabetes. That's, that's kind of up. We'll just bleep that out later. But there shouldn't be multiple ways to end up with it should just be one way. How is it diagnosed a blood sugar test? So it's the same thing really like? So there could be tons of people who have this who don't know it, because it just it looks exactly like type one that would come autoimmune.
Jennifer Smith, CDE 7:06
It does. Oftentimes, though, and this is where proper diagnosis is really important. Because the different types of medication management for Modi differ depending on that genetic mutation, like the reason for their Modi really, some of them do very, very well, if diagnosed correctly, more so on oral medications and lifestyle change much similar to a type two, oh, and then there are some that do much better with other like insulin, may nessus, may be needed more similar to a type one, but they don't have they don't have that antibody component that would designate them truly as type one.
Scott Benner 7:52
No kidding. Well, that's weird.
Jennifer Smith, CDE 7:54
Yeah. And the other interesting thing is the C peptides, which sort of are a measure of your own pancreatic beta cell action, and like pop out of insulin, right, in someone with Modi, as well as with type two, they have normal range of beta cell action, they have normal range of C peptide levels, whereas in somebody with type one, their c peptide levels are below a normal level or almost undetectable.
Unknown Speaker 8:33
So
Scott Benner 8:33
I feel like if you tell me that we have described Modi completely, that we're going to take a little minute here and do this again with C peptide. Can you do that?
Unknown Speaker 8:45
Sure. Yeah.
Scott Benner 8:46
All right. Yeah. Do you think we did Modi? Okay.
Jennifer Smith, CDE 8:49
I think so. I mean, from the general of what we can give to people there are, there are very they're very few, I guess, good plate. I know that I think it's the University of Chicago that actually has a Modi tracking system so that you can actually they log patients who have diagnosed Modi, which is interesting. But yeah, I think in definition, I think we did a good job.
Scott Benner 9:20
Thank you. And it looks like something I just thank you. Like I said anything except the only thing I had listened to everybody listening knows the only thing I added to this was I said the Jenny, I think we should define Modi in one of the episodes Other than that, I've got nothing to do with this. But I did just Google Modi testing. And quest diagnostics is a laboratory that I think is all over America. And it's funny how they're starting to pop up because they describe all the testing they do. So there is a test for it. So a doctor can do a blood to draw that would tell you and they have a couple of little pieces of information it says Modi 2% of all diabetes cases. So they think there's a half a million people with AI with Modi and 90% of Modi cases are mis diagnosed type one or type two. Well, yeah,
Unknown Speaker 10:08
there. There it is. Yeah. Okay, something right.
Scott Benner 10:11
All right, cool. Huge thanks to Jenny for lending her brilliance to the Juicebox Podcast. Don't forget to check her out at integrated diabetes comm you can actually hire Jenny and she'll help you with your diabetes. Thanks also to all the sponsors that I didn't mention today. And what else, check out the T one D exchange a T one d exchange.org Ford slash juice box. Take the survey, fill it out, help people with type one diabetes help the show feel good about yourself takes a few minutes to do something nice. If you hold on for a second after the music, I'll go over where the diabetes pro tip episodes are. The defining diabetes episodes how you can listen in a podcast player if you're listening online and all the other stuff that new listeners and interested parties should know. So here's how it goes. If you want to check out the Omni pod, the Dexcom de veau hypo pen, T one D exchange touched by type one with a Contour Next One blood glucose meter, I'd appreciate it if you use my links. They're right there in the podcast player show notes. You can also find them at Juicebox Podcast comm where you can type them into a browser. And at the very end of this, I'll leave them if you want to hear them. But I imagine you're gonna shut it off before I say that. But still, I'll put them there for you. Now the diabetes pro tip episodes, for those of you who listen in a podcast player, they're right there. You can just search diabetes pro tip, and the words Juicebox Podcast and you're going to get them all. But you can also find them at diabetes pro tip.com. When you get there, you're going to see that they that the pro tip episodes begin at Episode 210 with an episode called diabetes pro tip newly diagnosed or starting over. And then they go on for their protests began back in February of 2019. And there was a new one put up as recently as March 5 2021. So it's a really great list of episodes that will help you manage your diabetes, the way you hear us talking about it here. And these defining diabetes episodes are also incredibly helpful. Right now the way diabetes pro tip comm is set up. If you scroll down a little bit, you can find those as well. There's also ask Scott and Jenny shows the latest episodes of the podcast. It's all right there. Actually. There's also links to places where you can listen through an app. So I know some people don't listen to a lot of podcasts. And this could be new for them. But you can listen in a free application. If you're on Apple, Spotify, amazon music, Google podcasts, Pandora, any apps that are available on Android, just keep in mind that podcast apps should not cost you money. So my links will take you to a number of apps that are free and work great. Otherwise, you can listen pretty much anywhere you get audio. If you're listening in an app now please like follow subscribe, whatever your app allows you to do. And you will get three new episodes of the Juicebox Podcast every week to choose from, even listen to them all. Listen to some of them. Whatever works best for you. If you're looking for people chatting about management, you should look no farther than the Facebook page for the Juicebox Podcast. It's called Juicebox Podcast type one diabetes. It's a private group. So you can talk freely. Go find that if you're looking for a 10,000 users now. It's a really terrific place to talk about using insulin, and all the things that come up when you have type one. I'm also on Instagram. I don't do much on Twitter, but it's there at Juicebox Podcast. And let me just say thank you one more time, it's the end of March 2021. This month, did 120% better than march of 2015. This was the most downloaded month in the history of the podcast. In fact, it had 15.38% more downloads than the previous month, February 2021. So let me thank you again for sharing the show for subscribing in a podcast app. And for generally just being the most supportive group of people I could ever hope for. I'll talk to you soon. I should be back in like two days with another episode. So hold tight. There's more coming
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#459 Marrying Diabetes
Kristen and Jay got married.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or their favorite podcast app.
+ Click for EPISODE TRANSCRIPT
**DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
I just want to remind you if you're looking for the Define diabetes episodes, or the pro tip series, they're all right there in your podcast player, just search defining diabetes. We're diabetes pro tip, you can also find them at Juicebox Podcast COMM And if you need a list of them and actually even if you want to listen online, diabetes pro tip.com is where you'll find them. Okay, a little more to do and then we'll get started.
This show is sponsored today by the glucagon that my daughter carries g vo Kibo pen. Find out more at G Vogue glucagon.com forward slash juice box. This episode is also sponsored by the Contour Next One blood glucose meter and you can find out more at Contour Next one.com forward slash juice box. There's a lot going on at that link. Don't make the mistake of not checking it out. You're going to get a great meter. That's incredibly accurate, easy to use. And there's a lot more at that link. I'm not kidding test strip programs, you may even be eligible for a free meter. Go take a look. Contour Next one.com forward slash juicebox.
Kristen 2:07
My name is Kristen and my husband Jay was diagnosed with Type One Diabetes in September of 2017.
Scott Benner 2:17
September of 2017, September 2018, a year and a half ish, right a year and a half ish. How long have you guys been married?
Kristen 2:25
We've only been married about a year but we've been together for 910 years.
Scott Benner 2:31
Okay. Do you mind me asking how old?
Kristen 2:34
I am. 25.
Scott Benner 2:36
Okay, so you guys met each other in kindergarten or something like that?
Unknown Speaker 2:40
Basically.
Unknown Speaker 2:43
That's so nice. Did you date in high school?
Kristen 2:46
Um, well, I was in high school. It was not in high school.
Scott Benner 2:50
I Oh, now I see what you're saying. Jay. Jay has robbed the cradle. Where was he? arcade at the mall when
Kristen 2:58
he was actually my brother's hockey coach. And his younger brother is the same age as my younger brother. And they introduced us.
Scott Benner 3:08
No kidding. Oh, Christine is a bit of a may December thing is J significantly older than Kristen. No,
Kristen 3:15
he's about two and a half years older than me. Gotcha. Okay.
Unknown Speaker 3:19
Yeah.
Scott Benner 3:20
We all have the picture. We see what's happening. Okay.
Unknown Speaker 3:23
Yes.
Scott Benner 3:24
Were you planning on getting married when he was diagnosed? Or was that not in the workshop? Yeah, we
Kristen 3:30
were engaged that December, December 2016. And then he got diagnosed in September.
Scott Benner 3:39
Is it possible that the fear of getting married gave your husband type one diabetes? Yes or no? Maybe
Unknown Speaker 3:46
could have been
Scott Benner 3:48
shocked this system? Yeah. Blood Cells jump up and was like, we have to stop this. And then they just stopped this pancreas instead. That's fantastic. Well, well, anyway. I'm sorry to hear about his diagnosis. But it's it's interesting that you're on the show and not him because you reached out to me. Yeah. And so we're going to kind of find out about your experience, I guess, being the, you know, being the wife and I guess even the, the be truth of a person with type one. So let's go back to when he's diagnosed first. Yeah. I imagine shocking. Were you? Were you a part of the process? Or did he do it on his own?
Kristen 4:28
I was Yeah, I was a part of the process. Jay, how had an insane fear of needles. I mean, he he had the flu shot as a kid and he passed out knocked his front teeth out. So he's, he was absolutely terrified of needles. And I think once he realized what was happening. He did everything in his power not to go to the doctor.
Scott Benner 4:58
No kidding. Do you you think do you think let me ask you a question do you think when he knocked out his two front teeth that's when he decided to play hockey because he just figured why not right like have nothing to lose
Kristen 5:10
right i would say yes but he probably started playing hockey at about three years old and that happened and he was
Scott Benner 5:17
i don't know he was lucky to have his teeth that long man nevermind
Unknown Speaker 5:20
yeah true
Scott Benner 5:21
yeah you think he kind of diagnosed himself and then when he really oh yeah it was going on he just didn't go to the doctor but was his plan do you think
Unknown Speaker 5:31
i don't
Kristen 5:32
know exactly i don't know if either of us really understood what diabetes really was or what type one diabetes was jay like had all of the symptoms he was drinking excessive amounts of water and losing weight but we boiled it down to we moved home from a different city and jay had different work schedule he started having different eating habits we're like this is great you're losing weight and you're drinking lots of water this is wonderful but when it got past a certain point i was starting to get confused and i'm trying to compete with how much water he was drinking i was baffled there was no way i could drink that much water
Scott Benner 6:24
well you know what they say work schedule changes you get thirsty right away so it's january genuinely amusing when you take the diabetes out of it how how many people because that we almost all do it start looking for just any other reason that it might be that really is something because because i guess it feels like if you don't know it's not real but yeah you know the longer you don't know the longer you're hurting yourself it is really like you know it's a lot like when we talk about blood sugar's here and people were like well my doctor said 180 was okay yeah and i didn't know and i always think like did you not look like you could have like the internet exists you could have just said hey what's an average blood sugar person doesn't have diabetes and then when it came back and told you like 85 you could have went huh yeah this isn't good this isn't right it but instead we go with what the doctor said or nobody tells me it's not real it's interesting it's understandable but it's interesting
Unknown Speaker 7:25
for sure
Scott Benner 7:26
so he so he heads off to the doctor with his with his extreme needle phobia from his flu situation by the way my son cole was about 11 i got him a flu shot and just out of the corner of my eye i saw him i think he was gonna punch the nurse reached out and grabbed his hands like we're doing and he's like i don't want this and i was like well you can't hit this woman because you don't want it like that's not how this works yeah did your husband come close to punching anyone at hospital
Kristen 7:52
um no no i know passing out but definitely had to you know go through routine when the needle was coming and need to cold cloth over my face it was all thing but
Scott Benner 8:09
it was just here as a christian at this moment grown man scared of needles covered his face so you're standing there thinking i could probably do better than this right is that what was
Unknown Speaker 8:19
like i know i'm
Scott Benner 8:21
trying a little harder to find the guy who's not afraid of this
Kristen 8:24
well i think we're both pretty bad i'm just as bad like fainter got to get the room with the bed when you go get your blood taken
Unknown Speaker 8:35
yeah it's just bad
Scott Benner 8:37
i hear you so that's interesting though because you're both in that situation so when when the first time you're in the room together and he's holding a pen or a needle or something like that or do you think you were both thinking like well who's gonna do this because it's not going to be me
Kristen 8:50
yeah it was it was pretty awful yeah
Scott Benner 8:54
tell me what happened was it like a three stooges comedy or
Kristen 8:59
it's a it's all kind of a blur i think the nurses had to do it initially he wanted to in the leg for the longest time and now he obviously had to move sites around and so making the back of the arm and i remember he had me he's like okay well you can try just one and i did it in the leg but i think i it was as if i was trying to stab him with
Unknown Speaker 9:23
the insulin
Scott Benner 9:25
like a horror movie were you jabbing yeah
Kristen 9:27
no no i'm purpose ended up being what i did
Scott Benner 9:31
i wouldn't imagine so there was cursing then or do you guys not curse what did i
Kristen 9:35
oh yeah we curse yeah he said that i would never be allowed to do it again but that changed a
Scott Benner 9:45
little does he know that you're gonna spend the most of the rest of your lives together and you're going to you're going to do far worse to him than to each other to be perfectly honest so you guys are close to your wedding date he's been dying he's been diagnosed with type one You're starting to understand that it's a lifelong disease, and you're getting the idea of what diabetes is.
Unknown Speaker 10:05
Yep. You
Scott Benner 10:06
said he lost weight. Did he lose a lot of weight? Like prior to the diagnosis? Like, was it a couple pounds or 20 pounds? or How was it?
Unknown Speaker 10:15
It was a lot of weight.
Kristen 10:17
The doctors have boiled down to Jay being able to wait so long from diagnosis because he burned through a lot of weight. By the time Jay had hit the hospital, he had lost over 200 pounds.
Scott Benner 10:33
Oh my God, that's amazing. So yeah, my gosh, so I'm wrapping my head. I just got I just, I don't know what happened. I just like fried a circuit for how long? How long was the weight loss? In like time months.
Unknown Speaker 10:51
In months,
Unknown Speaker 10:52
it was
Unknown Speaker 10:54
probably three or four years.
Unknown Speaker 10:57
Oh, no kidding.
Unknown Speaker 10:58
It was a long time.
Scott Benner 11:00
Was he willfully trying to lose weight? Or was he just like, Hey, this is things are finally going my way. Like, which which way was it?
Kristen 11:08
It was unsure. I mean, his job switched to like a night shift to a day shift and walking. Like miles and miles and miles per day. So
Scott Benner 11:22
part of him just thought my life's like my lifestyle. My lifestyle is changing. And I'm good. Yeah. And it's working for me.
Kristen 11:28
Yeah. But obviously once it reached like a certain certain weight he had lost there was obviously an issue.
Scott Benner 11:35
Yeah, I was just reading something the other day. That said, I think the number they put in the article was 20 pounds. Like if you lose 20 pounds, and you weren't, you weren't trying to lose 20 pounds, you have to go you have need to go to the doctor. But but so something about him having that weight to lose. Yeah, help them The doctor said Do you have any, like clarification on that? Because that sounds?
Kristen 11:57
Yeah, it was because he had more weight to burn through is
Scott Benner 12:06
so he kind of sustained him for a while while he was going Yes.
Kristen 12:10
That's kind of what they they've said or, or that is Pinker's was slowly slowly shutting down over the years, or else he would have been in the hospital sooner.
Unknown Speaker 12:19
Yeah. Okay.
Kristen 12:21
I don't exactly know when it started or when that that weight loss was actually him trying. Right.
Scott Benner 12:27
That's so yeah, it's hard to know, I guess.
Kristen 12:30
Yeah. And without knowing anything about it, now I look back. And obviously, things would have been done differently for
Scott Benner 12:38
now. You can't hindsight 2020 you can't you can't fault yourself for that. So it's been a year and a half or so. It has the weight stayed off of him. Um, well, when he got to the hospital.
Kristen 12:52
Jay was so so skinny. He needed? Oh, yeah. When he was on he was in the hospital for almost three weeks. And he gained I think 30 pounds in three weeks.
Scott Benner 13:06
Wow. That's crazy. I mean, it's not that crazy, honestly, aren't in game almost Arden gave him was three pounds overnight when she started getting insulin.
Kristen 13:12
Yeah, yeah. And the color came back to his face and the weight came back on you can see his ribs or his bones anymore. And to put into perspective, J is normally probably two to 25. And he's six foot two like he's a he's a grown man.
Scott Benner 13:32
He's a big guy. Right? So yeah. It's it's even more startling when you see somebody who you expect to be sort of big and sturdy to Yeah, get frail. have happened to a friend of mine when I was young, and his father cancer and his dad was like, six, four. And I just always remember him being this massive person. And then, you know, a few weeks before he passed away. It was just like, it hit me one day. I was like, Oh my God, look, it feels like he shrunk. You know, yeah, really something. So you guys get over the shock. And he I'm assuming this he get over his needle phobia? Or how does he end up getting his insulin?
Kristen 14:04
He got over the needle phobia. It did take a while there was a long time where I would be I'd have to tell him that I'm thinking about making supper. So you should start getting the needle ready. Because it would take 45 minutes to an hour for him to even give himself one needle. But I mean, it's not even an issue anymore. He's any is on the Omnipod now, so he doesn't even have to deal with that anymore.
Scott Benner 14:35
That's very nice back then was it sort of like trying to coax a child into swallowing like a pill or something like that? You
Unknown Speaker 14:41
know? Yeah, maybe.
Scott Benner 14:43
Were you ever like there'll be like happy time with Kristen tonight? If you could just go Did you ever just like get yours? So it seriously for second? Was it ever? I don't I don't know if irritating is the right word but from a distance. Did you ever look at him and think oh my mom like I just put the let's Go man, like, like, Did it ever affect you that way? Cuz because here's why I ask when you love someone who has type one, you your concern for them in a way that's not always transferable like you, they don't always want you to tell them. Yeah, you know, I'm concerned for you, I'm worried for you, I really want you to Pre-Bolus or something like that. Like, it's hard. Like, you don't know what to say sometimes what not to say. So sometimes you bottle the stuff up. Did you ever have a feeling where you were like, Oh, my God, this guy is just like not? Like, what's he doing? Or did he get over it pretty quickly?
Kristen 15:33
Uh, no, I tend not to bottle things up. I just say what's on my mind. with J. With getting over that needle phobia, we started this technique. And it was like, if you don't do it on the countdown to five, you're not going to do it. So he won't even start 54321. And in the needle went and it seemed to help. And
Scott Benner 16:00
just giving them a timeline.
Kristen 16:02
Yeah. And then he would do some and I would do some and we just kind of went back and forth, they would help to give them a little bit of a break. And that seems so long ago that I don't think it lasted too too long after he was diagnosed there. There was a bigger issues that came along after he was diagnosed that kind of made that a small deal.
Scott Benner 16:27
What were the bigger issues.
Kristen 16:29
So he started, what they called it at the diabetic clinic was hungry nerve syndrome. So they had never seen it before. And I guess because his blood sugar's dropped so quickly, and they must have been high for so long. his nerves, I guess they say like they're at the, at the top of your skin. So it was just an excruciating pain. And that lasted for, I would say three months, I had to take a leave of absence from work and be at home every day with him. But luckily, that has all subsided. He's still taking medication for it, but he is in a whole different life compared to
Scott Benner 17:27
that. So it did be did just didn't I guess stop at some point. But how long did it take to stop? And what's the pain all over his body?
Kristen 17:35
Yeah, so how he described it as as if he had second degree burns all over his body. He he felt like his his his chest, you couldn't touch him lightly, because it just felt like it felt really bad. I don't really want to use what he exactly said. Because I know there's children and exactly, it hurt a lot. And he couldn't wear particular clothing. He had to buy like a particular sheet and blanket and an t shirt.
Scott Benner 18:15
Listen, I'm all for helpful until it starts costing money. And then you should have told him look stand naked in the center of the room. You're not buying sheets. How long did it take for to pass?
Kristen 18:30
About three months? Until it subsided? And then now? Yeah, it was pretty awful. He I I never want anyone else to experience that. Or watch someone go through that. And what what are the doctors call it hungry nerves and drum. They said that because his blood sugar like when he was diagnosed, his blood sugar was 600 which listen to other people's interviews, it seems like that's relatively normal at diagnosis. is a once he was 14. And within three months, when we went to the doctor, his agency went from a 14 to a seven. So they think in dropping that. That's their best
Scott Benner 19:21
kind of confused is.
Unknown Speaker 19:23
Yeah.
Scott Benner 19:24
You know, it's funny, I was just speaking with someone the other day who was told by their doctor that their child was in experiencing like an incredible hunger that comes sometimes from getting your blood sugar stable and that it should Oh, and I just had never even heard that before. So Oh, yes. Another one for me that.
Unknown Speaker 19:42
Yeah,
Kristen 19:42
that's really it's a lot of the doctors are quite baffled because these issues don't normally come until like 20 years down the road. And there's no way Jay could have had diabetes for 20 years.
Scott Benner 19:56
So so when they hear nerve when they hear nerves in general or problems with nerves they think that that's from long term problems but in his situation it probably it's probably not from that it's probably just something else and it has never like reoccurred or anything like that no would you do with all the sheets and the clothes
Unknown Speaker 20:17
he still wears them
Scott Benner 20:19
i don't like waste crystals
Unknown Speaker 20:22
i mean
Kristen 20:24
the pain is still there but it has subsided to an extent where he can live a normal life
Scott Benner 20:31
that could just be the marriage you don't know feeling that constantly because i have i feel like i'm buzzing a lot of the days i'm glad that it's something that he can work with and it doesn't affect his day to day in the same way do you think he feels do you think he feels it but he doesn't experience it the same way anymore like he's accustomed to it or it just has lessened
Kristen 20:53
yeah that could very much be it he's um he's a tough guy he played hockey for years he played hockey with broken limbs and broken ribs broken wrist and
Unknown Speaker 21:11
sounds so bad to him i guess
Kristen 21:13
right i guess i
Scott Benner 21:15
so you're in you're in canada
Unknown Speaker 21:17
yes i am
Scott Benner 21:18
but you're not canadian are you i am are you really you don't sound good to me i just said that from your voice so where we're in canada are you from
Kristen 21:27
i'm in alberta so like above montana idaho
Scott Benner 21:33
help me for a second why am i why am i confusing your accent with european
Unknown Speaker 21:42
um i don't i don't know i don't
Unknown Speaker 21:45
know i'm an idiot okay
Kristen 21:47
well my like j is from newfoundland which is east coast of canada maybe i'm picking up some of their accents it's
Unknown Speaker 21:55
like i don't know
Scott Benner 21:56
i'm telling you for a second i thought jay got himself like a russian mailer and had it shipped to canada which is a warm up i guess if you're leaving you know russia but for most other people no one's looking to go above montana like imagine imagine everyone who's in montana right now there's somewhere north of you oh horrible so cold
Unknown Speaker 22:18
oh yeah so cool
Scott Benner 22:21
so you said in your note your this is very interesting because do you guys both listen to the show or is it just you
Unknown Speaker 22:27
it's just me
Unknown Speaker 22:29
what made you reach out
Kristen 22:31
um i think after the pain subsided and we were working really hard on the diabetes i was like this isn't right like we're not achieving the numbers of the correct like there's got to be a better way to do this and i just started searching and i i like podcasts and i googled type one diabetes and this was one of the first ones that came up
Scott Benner 23:04
so my quality seo is the reason you found the podcast like if another one would have popped up ahead of it do you think you'd be on a different podcast right now
Kristen 23:11
well i listened to a couple other ones but they just weren't as good
Scott Benner 23:16
i got bless you i it's wrong for me to say it but this is totally the best diabetes podcast
Unknown Speaker 23:23
it's true it's so true
Scott Benner 23:25
thank you your check is in the mouth i appreciate you so i've just brought up my conversion chart so that we can talk about type one in a way that'll be helpful so when you found yourself online googling for a podcast and found the best one on the internet i'm so sorry there there are people who don't hear sarcasm correctly and so sometimes i have to cover myself attempt just joking i'm not joking i think it's the best one so in this moment it wasn't sarcasm it was you'll pick up the sarcasm okay so when when you were like no we have to figure something out where was his average blood sugar sitting
Kristen 24:03
well he would go to bed pretty good about i actually have my conversion rate up to so i can say both for the canadians and americans so he would go to bed monday this was long time ago he go to bed at about a nine like a 160 and he was waking up out of 15 which is about a 270 and i'm like what is happening i have to figure this out and at that point we were just poking we got the libra which was okay it's not that not that great and then once we got that Dexcom we saw that he had the dawn effect and right around 3am his blood sugar was just going through the roof um but he was not achieving between that 70 to 140 range, which is a four to eight, nine. In my language. He was, I don't know, lots of to hundreds, three hundreds. It took a long, long time to get his blood sugar down from those numbers. Okay.
Scott Benner 25:16
And so was this when he was on? injections is still?
Kristen 25:21
Yep, he actually just switched to an omni pod in February. It has not been that long. Okay.
Scott Benner 25:27
Okay. Yeah. So you found the best podcast and you found the best insulin pump?
Kristen 25:31
Exactly. When I found the podcast, he was using the Libra. And I think it took me like two days of whistling to come home and say, okay, you're changing to the Dexcom. And well, as everyone knows, any change with any of the equipment is is a learning curve. And it's a big deal. And he was very resistant, then.
Scott Benner 25:53
Luckily, he had you to force him into it.
Unknown Speaker 25:56
Yeah, exactly.
Scott Benner 25:57
Let me say for a second, I joke constantly about being married, and my wife, and I'm sure if she ever listened to this, she'd probably just put a pillow over my face bombs. Yeah, but most of I'm being serious for a second. Most of the advancements I've made personally in my life, are because of my wife's intolerance of the jackass that I was when she met me. So if I, there are so many things about myself that are better now. Because because my wife said, This isn't good enough. We should be trying harder. Yeah. And I appreciate I don't know if that's just because she doesn't want to do the laundry. Maybe she's like, Look, you need to stay alive. I don't want to fold clothes. Maybe it's that maybe it's that's possible. Maybe she loves me. I can't tell it's hard to tell. But but but anyway, but seriously, sometimes you just need someone who has your best interests at heart who's willing to over to ignore your bullheadedness about something so that's really it's really nice of you because it's not easy. No and and I'm still haven't spoken about my friend Mike in any kind of real context on the show, and maybe I will one day but but Mike passed away a couple of weeks ago. And and I think he he could have used somebody like you to, to push them a little more. And he was very stubborn about his type on his whole his whole life. And I tried as hard as I could and wasn't really in the in the position and I know his wife tried but he needed somebody to to grab him by the maybe by the neck and tell him Look, let's just try this because I love you and let's try you know. Anyway, I'll find the courage to talk about Mike one day.
Unknown Speaker 27:41
Yeah,
Unknown Speaker 27:42
I'm sorry to hear that. Thank
Scott Benner 27:43
you very much. Geez, now I'm just like, he was just who's my best friend that I and I wanted to say that but I was afraid it's gonna make me cry. So I tried to move on to another thought. But now now I'm stuck for a second. I'll tell you what we'll put we'll put an ad here.
Kristen 28:00
Okay, that's okay.
Scott Benner 28:02
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You bring your husband this technology and you're like, Look, I'm listening to this podcast. And we're, you know, there's, there's more here for us like the we will find better tolerances. Was he resistant? Was he thoughtful about it? Did he push you aside?
Kristen 31:00
Yeah. We're both extremely stubborn and bullheaded. So we butt heads a little bit. And it's a hard balance, because I'm trying to boss him around, but be his wife. I don't know, I guess it's kind of my job. But
Scott Benner 31:20
I think your job is just to tell him he's wrong. He's underperforming, and he's not getting to have sex. I think those are really the things you're supposed to do. But what are you doing?
Unknown Speaker 31:31
Um,
Kristen 31:33
yeah, it just, I will come home. So excited every day and say something new that I learned on the Juicebox Podcast that he had to try. And we try it that night, and it would work and everything just started to work. And it started to click. And I i another reason that I use a podcast is because diabetes is so lonely and isolating. And I feel that and it can take over you a few but it but by using that Juicebox Podcast is like a community. And let me get over that. And, and also, let me help Jay in understanding like that I don't want him to ever feel super alone or super isolated, that I'm always I'm always here. And I like I have the knowledge and I understand. I don't understand what it's like to have type one. But I understand a lot about it and
Scott Benner 32:36
a lot of aspects about I feel the same way I there are times when I feel odd that you know that I'm the one who's talking about it when I don't have it. But yeah, but my my perspective of it is is no less, you know, important. I don't think I just I don't know what it's actually like to be the person. Right? What what kind of isolation? Can you describe the isolation? Are you able to put it into words? What happened when he was diagnosed?
Kristen 33:01
Yeah, um, well, we were on our own, we bought a house, like, five, six years ago now, like we were living our own life, we had our careers. And this happened and our whole world kind of came crashing down. Everything that we knew, changed. Jay, worked in a job where he was out in a field in the middle of nowhere. And in minus 40 plus 40. He can't do that anymore. That's too dangerous. There's just no cell service. There's
Unknown Speaker 33:44
it's just,
Scott Benner 33:46
you got you. You were worried about him? Was he worried about it? Or were you worried about it?
Kristen 33:51
I'm both really worried about it. I'm like, in remote areas where no one can reach you. So he hasn't been working since he'd got diagnosed, but we are at a point now where he will be going back but that was definitely hard. And then there was us learning about it, but us learning about it as at a very fast pace. And it's our everyday but everyone around us, all they know is just the very, very, very basic stuff. So it's not our support system was our family. But at the same time, they didn't have a clue what we were talking about.
Scott Benner 34:38
Right. So they're just nodding at you and yeah, looking a little sad for you. And yeah, saying things like, I understand. And that was difficult.
Kristen 34:50
Yeah, it was a lot of like, you're so strong and well, I don't think we have a choice here but but I understand like When something like this happens, you can be strong or you can not be strong. So I don't I'm trying to accept that as a compliment other than getting angry.
Scott Benner 35:10
I think that I understand what you're saying about not wanting to begin to get angry when people say things that don't quite fit what's actually happening, but you just had a break. They don't really know. Yeah, you know, and they are trying to be helpful. It just, it doesn't work out, usually. And I've listened. I've said it before. And I've taken flack over it in the past, because parents like to talk about how brave their kids are all the time. And I just think like, I mean, she I mean, it's brave, but they don't want to that's not like they saw it, they want to do it. Do you don't mean like brave, brave is brave is enlisting in the military when you don't have to write. Brave, right, if you you know, it's it's still brave if you if you get drafted, I guess. But the pinnacle of bravery is saying, There's no reason for me to be in this fight. But I'm going to get into it anyway, for reasons you get diagnosed with Type One Diabetes, it's not like you raise your hand and go, I'll take diabetes to someone else doesn't happen if you did that. That would be brave. What's you know, what's happening to you is strength. Its its resilience, like you are being hit with something hard, and you're and you're resilient. And that's amazingly, it's incredible. And it's not something that happens for everybody. That's why it's so remarkable when you see it, because we know some people are hit with the same thing that happened your husband and it crushes them. Yeah, right. And but you don't know why it crushed them. Maybe they didn't have the support system they needed or the understanding or the tools or the technology or the medication, or the insurance or all the possibilities, and how frequently, there's something happened with diabetes, that is absolutely like buries you in an avalanche. And you feel like you can't get out of it. And you go to your doctor and ask and they're just like, I don't know, like, we won't move this setting and see what happens. And it doesn't do anything. Yeah. Right. So And not only that, you're basically on Mars, because you live in Canada. So you're by yourself. I mean, I mean, when you picture when you said you bought a house I just pictured Santa is like castle, like just snow everywhere with a house right in the middle that you look at and think how do they get electricity? That thing?
Unknown Speaker 37:13
Exactly right, exactly.
Unknown Speaker 37:15
Am I really?
Unknown Speaker 37:17
It's a two storey igloo.
Scott Benner 37:21
Congratulations, a two storey igloo is absolutely going to be the title of this episode. Well done. Well done. That's spectacular. You were really honest, just now about how it felt? And it's Yeah, it's not good now. Do you think? I don't want to? I'm trying to figure out what to do. Do you think that not finding? Forget this podcast? Let's say you found let's say you just found nothing? Do you have a feeling for where you'd be right now?
Kristen 37:57
I'm probably not in a great place. The diabetic center here is probably as helpful as everybody else's few few examples. I mean, we have found a very good nurse practitioner at at the center. But this only happened when Jay got put on the Omnipod. But the information that they give is just so bad. I remember asking, when should we give the insulin before after the meal is like I'm confused. I don't understand what I'm supposed to be doing here. Or what Jay is supposed to be doing here and and they just do look at each other and kind of shrug their shoulders and go whenever you want. Really I'm like what? And now listening.
Scott Benner 38:47
It's the same good. Same thing I do with when I shave my cat today. No, not today. Doesn't work with insulin. It almost doesn't work with my facial hair. But I'm a stay at home dad. So I shave when I want to. It's like really one of the great perks of my job is that I don't have to shave every day. And by the way, I figured that out years ago, in the in the winter, I realized that the moms that I was mostly around with my kids when they were younger were wearing like sweat pants and weren't shaving their legs. And I thought
Unknown Speaker 39:18
I could do it. I
Scott Benner 39:20
thought if they don't have to shave their legs every day. There's no way I have to shave my face every day. Like we're all we're all in this fight together. So now I've become the laziest shaver ever. But that's amazing. So it didn't really matter when to give your insert it could have been before during after they gave you no guidance on that whatsoever.
Kristen 39:37
Apparently, apparently, yeah. And then they would be baffled why his blood sugar was at the 12 or 200.
Scott Benner 39:43
And so you were met with no answers like what would you be told? What would you be told in the beginning when you can you went in you're like look, we see 200 blood sugars all the time. What What should we do? Hmm.
Kristen 39:58
A lot of it was it's better to be high low this is this is better than being low isn't it i'm like okay we we have already been faced with what happens when you have high blood sugars no it's this is not the great the better alternative here i don't
Scott Benner 40:19
that's not an answer either
Kristen 40:21
no it's not and it makes me so angry and i remember there's some nurse practitioners who like my involvement and praise me and i know that drives me crazy because they'll ask his opinion and then they'd be like okay but let's talk to kristen because she has the good questions and it makes him so okay just
Scott Benner 40:42
sit there quietly while mommy figures this out you're gonna have to be careful there by the way you don't want that to turn into a situation where you are mommy you know you're not looking for that especially up in the cold so well do you guys so this had popped into my head earlier i didn't ask but now you brought it up so i'm gonna ask is there a way is it possible is i guess is my question is it possible that you're going to start helping him so much and do such a good job that he could get complacent and allow you to do it and not be as involved in it like is it because that's something parents think about a lot yeah but it sounds like that in the situation it could be similar and i'm not trying to get you divorced and careful how you answer but but it's an interesting conversation right like is it possible that you know i can put it into my own terms right i didn't get i didn't yesterday was a mess at my house at the timing of everything got messed up everything got pushed back and i did not get dinner made and when my wife came home she was she'd had a long day she was like in meetings constantly she had a headache she was tired she was gonna go out and exercise and i know she wanted to walk in the door and eat and there was no food there and she was irritated like to the point where like everyone started making fun of her behind her back like she was really upset and she got over it don't get me wrong but like there was an expectation there she was like i'm out i'm home and someone's gonna feed me and when it didn't happen she was like hey why is this not happening i wonder if your husband's has an expectation of like you'll take care of his blood sugar um
Kristen 42:21
i understand like why you might think that but no j is so on top of it he as like i am very involved in it is like a team effort but g goes on his own places that i'm not there and i'm just he has
Scott Benner 42:43
the same successes away without me from you that he does with you yeah it's just that you understand so you're you're more of like the conduit for the information yeah i listened to the podcast and then you come home and tell him the parts he needs to know
Kristen 42:59
yeah and he tries it or he'll say this is my blood sugar this is what i'm doing this is what i'm eating i'm thinking this what are you thinking
Unknown Speaker 43:07
gotcha
Kristen 43:08
and then we go off of that
Scott Benner 43:10
sounding board just he's yeah and let's let's brag for a second who's right more frequently you
Kristen 43:16
were i'm not going to answer that
Scott Benner 43:20
question everybody she's always right she's never been wrong once and save matt
Unknown Speaker 43:23
oh god
Scott Benner 43:26
listen if either of you knew what you were doing you'd move out of canada i'm just saying it's cold
Kristen 43:30
and it is very cool any sense to live there but it doesn't really doesn't it snowed here to two weeks ago
Unknown Speaker 43:39
in may
Kristen 43:40
yes yeah i like a lot of snow
Scott Benner 43:44
i'm sorry yeah is it is when it starts snowing do you just feel like oh my god i give up
Unknown Speaker 43:52
just cry just
Scott Benner 43:55
the snow snowing i know people on facebook from other places that flowers in their front yards and so nice and i hear all right well listen you have things you have that we don't have don't don't act like you have we don't have it it's fair's fair you have to freeze but you get alright i'm at a loss for what you get you get i'm sure there's something i think people in cold weather live longer
Unknown Speaker 44:22
i don't know
Scott Benner 44:24
not even true i freeze to death i may have learned that on a television show when i was 15 so it's possible that the people on the atm live longer because that's it
Kristen 44:35
i mean it gets like our average temperature in the winter time i don't know fahrenheit it's like minus minus 20 to minus 40 it's pretty normal for the wintertime it's freezing
Scott Benner 44:52
i just the other day i've been telling my wife recently we need to we need to retire somewhere i have very specific ideas i want it to be warm but not hot and not humid and i don't want weird bugs and and every time i say that people like say you're going to san diego i'm like i cannot afford san diego there's not another place and someone told me maybe northern texas but then i guess you get a little weird with like the bad like the you know the wind and the rain that like picks your house up and makes you see you know the wizard of oz so i don't know there's no good place the i think the key to life is to make enough money to live in warm weather places in the winter and cold weather places in the summer i'd like to probably angry yeah but i don't know how i'm gonna do that so i mean i guess i could call on the pod and like you know up my ad rate by 9,000% and that might help me but other than that i don't know what's gonna happen so okay so you switch so he's got dex now Dexcom g six or do you guys can't get you six in canada
Kristen 45:54
we cannot get the g six until maybe october or november
Scott Benner 45:59
do you have the five i have the five yeah still a fantastic meme sensor really really great so you have the g five and you Omnipod yeah did you get the new dash with the on the pod
Kristen 46:12
i don't know if that's out yet here either i tried to look that up and i cannot find this
Scott Benner 46:20
again you guys and being serious for a second having done the blog for so long the podcast canada has always last like they always it takes a long time for stuff to get there okay so but he's but he's pumping and how has that changed things for him it's biggest improvement you've seen i guess
Unknown Speaker 46:40
hmm um
Kristen 46:43
there's so many to lists i don't know if i can list all of them
Scott Benner 46:47
stream of consciousness then
Kristen 46:49
starters has a one c on friday we just went to his endocrinologist was 5.9 his a one c when he got diagnosed was 14 and since then have been between six seven and seven five on injections and then yeah with the pump 5.9 was the last one and just everything so having control of the basil rates is amazing
Unknown Speaker 47:23
it's the whole thing
Kristen 47:25
it's the whole thing the thing about living in alberta the thing is if you don't like the weather just wait a second because it could be 20 degrees which i think is like at one day and then the next day or during that day it could start snowing and drop to zero so the weather extremely affects jays basil rates so being able to have control of them is awesome in the winter time jays basil is 30% higher than the summertime
Scott Benner 48:03
juice
Unknown Speaker 48:03
it's yeah i've crazy
Scott Benner 48:06
a lot by the way that changing the seasons change their basil needs yeah and so are you saying colder needs more insulin
Kristen 48:14
yes and in the wintertime he also can't get out and golf every single second that he can whereas in the summertime is activity
Unknown Speaker 48:24
yeah
Scott Benner 48:25
yeah and when he has less activity he needs more Basal
Unknown Speaker 48:28
yeah for sure
Scott Benner 48:29
okay so you're a golf widow
Kristen 48:33
well he golf i drive the car
Unknown Speaker 48:36
you come along
Kristen 48:38
sometimes sometimes
Scott Benner 48:39
you guys thinking about having kids or no
Kristen 48:42
um yeah but i don't know how long until this podcast will go up it seems like three three to six months is kind of fair to say
Scott Benner 48:52
it's usually the that's usually how it goes we'll we'll there'll be a little baby by them
Kristen 48:57
well i'm hoping that's actually why i had to reschedule the podcast is that we're trying but we need a little help from from science
Scott Benner 49:06
so what you were gonna say you had to reschedule the podcast so you could have sex
Kristen 49:12
i guess that's kind of how it sounded but no
Scott Benner 49:14
we were trying i was like i can't do the podcast today we're making we're making
Unknown Speaker 49:19
sorry
Scott Benner 49:20
no no no please don't be sorry okay so yeah you did have to reschedule a recording this later than we were going to say you had like come you were going having conversations about ivf
Unknown Speaker 49:30
yes that's right
Scott Benner 49:33
i injections and everything are you underway are you still in the planning stages
Kristen 49:36
we are doing the testing at the moment and then in july we go and we decide what option we want to do
Scott Benner 49:47
hmm yeah no kidding yeah do you think you're gonna do you have any ideas
Kristen 49:52
um well there's two options there's a ui or there's ivf and whatever They kind of recommend to us as what we will, will do, I think. Okay.
Scott Benner 50:05
And yeah, and then it's you use the medications and then you go do what you're supposed to do and that makes is that right like that you we're not we're not talking about implanting things yet or are we talking about that?
Kristen 50:17
Yes, we are. IVF is like the implantation of the, the Blastoise light, which is the embryo one, day five, and I don't know too much about it, but I know pretty basic.
Scott Benner 50:29
Sounds like you're gonna know a lot about it. Yep,
Unknown Speaker 50:32
that's, that's true.
Scott Benner 50:34
There's a podcast about about IVF that you should try that I really I've heard a lot of good things about. It's called Matt and Dorries. Excellent Adventure. And excellent is eg GC LL. e. NT.
Kristen 50:47
I have actually listened to that. Oh, you know, that is awesome. How do I know? Yes, I
Scott Benner 50:52
know things about everything. Last night, I said something I said because you think you know everything. I was like, I don't think I know everything. But I mean, I'm right about this. You have tried that? You know, Matt's a television writer. Yeah. And his wife, I think is a journalist. Yeah, she
Kristen 51:08
works for BuzzFeed, I think which is like those elbows. videos you see on Facebook Like, DIY is I think
Scott Benner 51:16
BuzzFeed ruined blogging. Because nobody wants to read they're like, I just want to click through see some pictures video DiCaprio. watch a video at the end. Find out why that worms crawling out of that girl's cheek and then I'm back. But anyway, I've heard really good things about that podcast. So you've already listened to it all the way through. Okay.
Unknown Speaker 51:35
Yeah. It's awesome. Me?
Scott Benner 51:36
Yes. For the rest of you. I don't mind if you listen to other podcasts that aren't diabetes, as long as they don't get in front of mine in your listening list. And you definitely shouldn't listen to other diabetes podcast because I mean,
Unknown Speaker 51:47
it's true. What's the nice?
Scott Benner 51:50
Kristen just told you this is the best one. And believe me, she's from Canada. They don't lie about anything.
Unknown Speaker 51:55
No, we don't.
Scott Benner 51:57
And when she lie about not lying, probably not. Okay, well, I want to wish you luck. I hope it goes well. And that, you know, are you hoping for one or do you like when you start talking about IVF? Do you start thinking there could be more than one or how does that usually work? I don't know nothing about it. Besides,
Kristen 52:16
yeah. Well, their their goal is to only have one because there's a lot of risks with having multiples. But I mean, I'm still hoping for twins. I would love to have Yeah, one and done.
Scott Benner 52:29
Plus you're probably so lonely up there in the tundra. Then you're right yeah one to go gather like moose pelts. Yeah. And the other one could get firewood. You probably live in a sprawling metropolis. I I've just or maybe you don't. How is Alberta? Is it are you in the woods? Are you like, is it I? It's so much fun that I don't know anything.
Kristen 52:59
There's there's about in the city I live there's like 100 over 100,000 people are not a huge city, but we are right between place called Calgary and Edmonton. And they're, they're quite huge. Yeah. Yeah. Okay. The Oilers and the flames.
Unknown Speaker 53:16
That's how I knew it. Yeah.
Unknown Speaker 53:21
Yeah, and then. Yeah, no, all right.
Scott Benner 53:24
So Fine. You don't live in a tree or something like that? No, no, no. How would a tree even grow in that call, but I know nothing about how trees work. We
Kristen 53:32
have like evergreen trees. Lots of Christmas trees.
Scott Benner 53:35
We're lucky I understand this diabetes thing because if this podcast was about almost anything else, it would just be a lot of quiet. you going? I don't know how that works. That sounds horrible to me. This is the one thing I understand. Okay, so, uh, I mean, I like it. I like what you guys have got going. It's it seemed it seems healthy. It's supportive. It's obviously moving things along for him. Do you imagine there's a time where you he hits a rhythm and you guys just don't have to talk about this anymore?
Kristen 54:07
Yeah, that's that's what I'm hoping I'm hoping that it you don't have to talk about it as much or
Scott Benner 54:17
I don't want you to start having Munchausen thoughts like let's keep this diet like this blood sugar high so he needs me.
Unknown Speaker 54:23
No,
Scott Benner 54:23
I don't you don't sound like no, but but I'm saying the the other side of it is really like the goals got to be lessor diabetes conversations, you know, small, smaller part of your life. I just do what I do. I get to live my life. I don't have to think about diabetes as much. Absolutely. And that frees up time for you to to to raise little, your little Norse gods that you're gonna have. Right? Yeah. Because seriously, like, I listen, I can speak from from real experience. So there's been times when my whole day was about diabetes. Yeah, and I started figuring it out and it became less and less and less and now you know we talk about being bold with insulin and and then i tell people all the time like you'll find a rhythm and when you find your rhythm you're not as involved as much and i know people don't believe me that you know at first that you know a 70 to 120 blood sugar range doesn't make your Dexcom alarm constantly if you're using your insulin the right way but it's true yeah you know there's days that go by that i don't hear a Dexcom alarm ever and and that's got to be your goal and then i think after that kristen because you're right this will go up months and months after we recorded we're recording may i think that arden is going to continue on with the loop i've been using it and she's had it on for maybe four pods now so 12 days or so and i don't see why i would stop at this point you know and i'm learning a ton of stuff about the things that i talk about and how to how to make bigger you know better i guess decisions one of them i'll just i'll tell you what i'll share with you at the end i don't even have it fully formulated yet so you'll hear me months before you'll hear this with kristen i'll have sat down with i think i'm going to do another podcast with katy de simone that who's very involved in the looping world jenny smith and i are probably going to do a series about talking about how to loop so excuse me i can tell you that because you don't have a podcast about diabetes you won't rush to do it before me like some other people do when they hear me talking about social media but that's okay it doesn't matter you can do better i'm just gonna do like kristen said it's fine but seriously so one of the things we talk about all the time is like you know Temp Basal like you know i say you should up your basal rates at times when you need more you know when it's my carver like car beer like times right but when i watched this loop do things it's it's not so i you know gave arden you know her lunch Bolus when you and i were talking and almost immediately the loop increased arden's basil by like three times it was it went up to almost like six an hour yeah and then it just stayed there for like i don't know 10 minutes and then it went back down again and then it went back up and it's as she's eating i watch it push harder like you know i always give that example like put your hands together and press you know at the same rate i'm seeing it do exactly what i was trying to envision it's feeling more resistance from food and so it's pushing harder with the basil it's such a simple like idea and obviously we have it you know everyone listening has it figured out now about about the idea because we talked about it so much but to see it happen with that amount of insulin flip me out and i realized here's what i realized because of the artificial pump settings like you set your basil rate to whatever like what's your husband's basil right do you know is it
Kristen 58:11
yeah it's 1.2 1.2 an
Scott Benner 58:13
hour yeah and so when i tell you to double it to 2.4 that sounds like all the insulin in the world right it sounds like so much insulin and we only think of putting it up to 2.4 because that's how far the pump goes because the pump lets you double it to a you know 200% but with the loop there's a setting where you can say what's your maximum amount of basil you'll normally use and so when i first set it up i was like well for eight you know for basil rates like 1.4 or 1.8 i don't want it to go to all the way to like too high so i just sort of like doubled it i was like well you can go to two eight and then i realized they couldn't do what it wanted to do so yeah i pushed that thing way up to like seven i don't think it's ever used seven but there are times when it's like okay more pushing and then and then if it pushes too far it'll go down to zero it's just it's so great it's it's like watching my brain work on a screen
Kristen 59:12
wow i'm gonna have to look at look into it so
Scott Benner 59:14
insane it just it's and don't get me wrong there's things about it it is so counter intuitive in some ideas like there were times when i thought okay i have to change a setting obviously when i was getting it right in the first week or so yeah and my every instinct of what to change i was always wrong that was backwards if i thought turn that up it was turn it down if i thought turn that down it was turn it up until i really started to understand what the settings have you know control over what they're trying to accomplish and how it affects other settings and as soon as i got it all set my head i was like whoo this is pretty cool it doesn't it doesn't change what i think if you don't have
Unknown Speaker 59:53
no
Scott Benner 59:55
we can all keep doing what we're doing and i am definitely going to be able to speak Even more clearly about being bold because of what? looping but I will also say that in the future, I think that everyone who has a CGM at a pump who has access to something like this, it's going to it's at least very worth your, your time to try.
Unknown Speaker 1:00:18
Yeah, for sure.
Scott Benner 1:00:18
I'm gonna be an advocate of it going forward.
Unknown Speaker 1:00:22
Yeah, absolutely, I'd love to look at it. It's pretty cool. I'm
Scott Benner 1:00:25
looking at it right now across the room. It really did it, it, it totally cranked up her basil, then it dropped it back to nothing. And now it's got it at the normal level and her blood sugars. It's not as good as I would want it to be. But we're also on a new site right now. And I don't know how well the site works. We kind of moved around in her leg a little bit. But she's an hour, she's almost an hour passed when she gave herself the insulin, and her blood sugar is 121. And she's done eating. It's amazing thinks she's going to go down over the next 30 minutes. So you can kind of see the what it's predicting. But yeah, even that's neat. Like I'll like, I'll just at the end here, it's even cool because it shows you what it's predicting. And it's predicting, like three hours from now her blood sugar is going to be 40. Wow. But it doesn't mean her blood sugar is going to be 43 it means it's going to make adjustments between now and then to keep that from ever happening.
Kristen 1:01:22
Yeah, I've had to explain that. That very concept to so many people like, exercise makes Jay's blood sugar go down. But it doesn't mean he's gonna go low. Right? Yeah, just that so it doesn't.
Scott Benner 1:01:36
We make other decisions. Like, yes. It's like a time travel movie. It's like, it's like, somebody comes back from the future and tells you you're going to, you know, grow a unicorn horn if you go to Disneyland. Yeah. And so you just go, Well, I don't want a unicorn, so I won't go to Disneyland. And then it doesn't happen, right? Yeah. So this thing tells you Yes. Hey, you're gonna die three hours from now. But don't worry, we'll make adjustments. It'll stop that from ever being your reality. Really, really cool. So I'm sorry, like took up your time at the end of
Kristen 1:02:05
that? No, that's okay. I want to touch base quickly on what you said about increasing the basil and how you never thought about going over, like doubling it because your pump settings wouldn't let you and had to bump them out. With Jay's basil. It was very scary at the beginning. But during the nighttime when he has that domino effect and his blood sugar rises. I have or we have to triple his basil rate overnight.
Scott Benner 1:02:33
And how cool is it that you figure that out and had the man I say the loose testicles to do that?
Kristen 1:02:40
Yeah, it was a big deal. It was very scary. To do that. How
Scott Benner 1:02:45
does that sound? Hey, Jay, I'm gonna do something over here. If you don't wake up, I love you.
But seriously, how did you make the leap to do something it seemed that out of line with sanity.
Kristen 1:03:00
Um, well, it would happen night after night and I got sick of waking up, or one of us waking up one of us setting alarms at 2am 3am 4am just to look at the Dexcom to see what was happening and adjusting with with a Bolus when he was on injections. And when we got the pump I'm like, I'm just going to set up a bit like a basil program that starts running a higher basil one hour before it spikes every single night or over and over and over again. So I just started I did one 1.8 2.43 and it worked. Yeah,
Scott Benner 1:03:43
is it fair to say that you trusted that what you knew was going to happen was going to happen?
Kristen 1:03:48
Absolutely. And but then you have to think like the other things that affect Jays blood sugar that you probably haven't experienced that is like drinking alcohol. Then what do you have to do with that increased Basal rate and most times I just switch it back to the other one depending on if he had a fatty carb snack before bed.
Scott Benner 1:04:10
Yeah. And if he gets a little woozy you have to turn it down.
Kristen 1:04:14
It depends if he has like a couple drinks with supper. There isn't actually too much that I have to do. I say I mean we or him or whoever is doing it.
Scott Benner 1:04:27
I've made you feel self conscious about it now I'm sorry. You I didn't mean to I apologize.
Kristen 1:04:33
No, it's okay. Um, and but if he does have a night where he is drinking all night long with friends or we're out on holidays and we're drinking lots what they did tell us at the at the clinic compared to what we actually do at the clinic. They said when you drink alcohol don't shoot a single drop of insulin for any carb you eat. for supper any anytime you're drinking and before bed. Have a fatty carb snack like go get french fries with donald's pizza or anything like that if we decided to do that jay's blood sugar would be well in the three hundreds that's not going to happen i don't want when he drinks we just say screw diabetes today you're gonna drink
Scott Benner 1:05:22
what was the point of that did they just think because become unconscious you should say hi to be safe or they thought that yes that was what they were saying
Kristen 1:05:29
yeah i'm assuming i yeah any anything i don't i don't understand why they said that but what we actually do is when he is drinking and it's obviously different for every person but when he is drinking we shoot insulin for supper for all the snacks for all the meals so he's keeping in range and right before bedtime we go get like it's it's an excessive amount of carbs that he has to eat before bed like 120 140 carbs but fatty carbs and he has that at bedtime and i take off that increased basil for the dawn effect and he is steady the entire night and there's no lows and there's no highs and i mean it doesn't go over one 130
Scott Benner 1:06:20
yeah that's amazing and you figured that out on your own and that's really the goal is to tell people that there's a lot you're gonna have to figure out on your own so yeah you know
Kristen 1:06:30
and until you can be at a point where you don't talk about diabetes all the time you have to put in the work and you have to
Scott Benner 1:06:36
yes it's such an important idea yeah it's it's it's more work down for less work later exactly and your goal and your hope is it's more work now for almost no work later yeah and try to make this on most days kind of like transparent in a way that you just don't notice it alright christine you were fantastic it's such a good sense of humor i said so many horrible things about your life i said that i feel like you live in a new igloo i said something about moose testicles at some point i gave you i gave you a podcast recommendation for podcasts already knew about and i really thought i had they there i was like well i'm gonna say something really like great for her and she's like i've heard that i inferred that you were a russian mail order bride at one point and flowers what i'm saying have a good time
Unknown Speaker 1:07:33
i did thank you for having me
Scott Benner 1:07:35
of course we are you less nervous now than you were when we started yes didn't start well by the way everyone kristen had like technical problems that i think she was like starting to panic in the beginning and i was starting to hear a little panic in her voice but she really mellowed out and did a nice job and she had her conversion chart weather and everything yeah very nice kudos thank you so much out let me say goodbye and then hold on and i will say goodbye to you like a real person when we're not recording your voice a huge thank you to one of today's sponsors je vogue glucagon find out more about chivo hypo pan at g folk glucagon.com forward slash juice box you spell that GVOKE gl use c ag o n.com forward slash juice box thanks also to the Contour Next One blood glucose meter find out more at Contour Next one.com forward slash juice box and please allow me to apologize to kristin this episode along with a handful of others got lost in the system this was recorded a long time ago kristin i am so sorry it took this long to come out and for those of you listening who it may have felt a little disjointed timeline wise i apologize there too thank you everyone for listening for subscribing for telling someone else about the show i'll be back very soon with much more of the Juicebox Podcast
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#458 Cutting on Cam
Caitlin is 11 years old and she has type 1 diabetes
Get ready for a delightful hour with Caitlin followed by a few minutes with her mom.
You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio - Radio Public, Amazon Alexa or their favorite podcast app.
+ Click for EPISODE TRANSCRIPT
DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner 0:11
Hello friends and welcome to Episode 458 pieces and isn't sure I'm going with it. Hello and welcome to Episode 458 of the Juicebox Podcast. Oh, I was right I just checked. That's exciting. Today's show is with Caitlin, and her story is about much more than her age would indicate possible.
Please remember, while you're listening that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, please always consult a physician before making any changes to your health care plan, or becoming bold with insulin. I'd like to take this time to thank you for sharing the show with others as it grows and grows march was the most downloaded month in the history of the show. That has a lot to do with you sharing it. And I thank you. I'd like to thank you also for leaving the great ratings and reviews where you listen for subscribing, your podcast app for checking out diabetes pro tip calm as often as you do. That website gets ton of traffic, and I really appreciate it.
Oh geez, I meant to say the show just hit 3 million total downloads. And I had a big celebration here where I'm sitting, none of you were invited. I did not record it. But trust me, it was a whiz bang knockdown affair. And if you were here, you would have a good time. Thanks so much for helping me reach 3 million downloads. Looking forward to many, many more. This show is sponsored today by the glucagon that my daughter carries. g evoke hypo Penn Find out more at G Vogue glucagon.com forward slash juicebox. You can support Type One Diabetes Research and the Juicebox Podcast. Here's how the T one D exchange is looking for type one adults and type one caregivers who are us residents to participate in a quick survey that can be completed in just a few minutes from your phone or computer. These questions are very simple, they only take a few minutes to answer. You'll be contacted annually to update your information and other than that there's nothing to do. This is 100% anonymous, completely HIPAA compliant, and you'll never have to go to a doctor or to a remote site. This is a simple way to add data to type one diabetes research and help everyone living with type one. Just go to T one D exchange using my link in the bio or by typing in T one d exchange.org. forward slash juicebox. Click on join our registry now. Answer the simple survey. And you're all done. T one D exchange research has led to increased insurance coverage for blood glucose meter strips, changes in the American Diabetes Association's guidelines for pediatric a one c goals and they helped bring Medicare coverage to CGM devices. Check them out T one d exchange.org. Ford slash juicebox.
Caitlin 3:16
I am Caitlin Volk, and I am almost 11 years old.
Scott Benner 3:20
When is your 11th birthday?
Caitlin 3:22
May 30 2000. Oh, yeah,
Scott Benner 3:25
yeah, this year, right? Yeah. It'll also be may 30. In 2021 and 2020 to keep going.
Caitlin 3:34
Like the year of sport and everything.
Scott Benner 3:36
You do you want to say it
Unknown Speaker 3:39
was fine. What
Scott Benner 3:39
year were you born? 2000 992 1009. Wow.
Caitlin 3:45
Like in kindergarten, I think I was the last kid to turn six in kindergarten.
Scott Benner 3:50
Do you get like that birthday party like right before the end of the year?
Caitlin 3:54
No, my birthday is always the like second to last day of like, not the second class day, but it's after the spirit of the school year.
Scott Benner 4:04
After that you're not even in school when you have your birthday.
Caitlin 4:07
Yeah, only last year when I was in fourth grade. It was it was the first time my um, my birthday has been during the school year and it was the second last day of school.
Scott Benner 4:17
Did you do anything for it? Bring like food in or have a party? No.
Caitlin 4:22
We just all my friends were saying Happy birthday. And a lot of my some of my friends brought me gifts. And that was nice of them. And then and then I didn't go to the last day of school because we went to Disney for my birthday.
Scott Benner 4:34
That sounds like a better present. What was the best gift one of your friends brought you?
Caitlin 4:40
Um, candy from that line gave me the biggest like a huge bag and I was just digging through it and there's so much
Scott Benner 4:50
well done. Now what gift Did you get from those kids and you don't have to say who it came from, but that you thought Oh, I don't want this. I don't know. You don't know where We'll get to you will find your will find your center here, Caitlin. All right. All right. Tell me how old you were when you were diagnosed with type one.
Unknown Speaker 5:07
Um, oh,
Caitlin 5:10
I believe I was eight years old.
Scott Benner 5:12
Okay. And you're 11 now. So like, Well, almost 11, as we know, on the 30th of may 2020. Right. So like three years you've had type one.
Unknown Speaker 5:23
Yes.
Scott Benner 5:24
I'm not sure you have any brothers and sisters.
Caitlin 5:27
I have one brother. Who's my younger brother. He's very.
Scott Benner 5:33
He's very wide. I'm sorry. annoying. Oh, I'm sure he thinks you're annoying too. By the way. Did you know that? Yes. Are you annoying?
Unknown Speaker 5:41
A little bit?
Scott Benner 5:42
What does he do that bothers you?
Unknown Speaker 5:44
Um,
Caitlin 5:45
he's always like, every single time he does something he thinks is so cool. He goes Caitlyn, Caitlyn. Caitlyn. Caitlyn. Caitlyn. like trying to get my attention. I'm like, I'm in the middle of doing something. Like, tell me when I'm not doing something.
Scott Benner 5:58
Do you know why he does that?
Unknown Speaker 6:00
He just wants to show me what he did. How come? Why does,
Scott Benner 6:03
but why does he want to show you? I have no clue. You want me to tell you why he loves you. And he looks up to you. He thinks you're amazing. True. Like, it's true that you're amazing.
Unknown Speaker 6:15
I don't know about that. I
Scott Benner 6:16
just agreed pretty quickly. You were like, it is true that I'm amazing. No, I that's very likely What's going on? Is he he looks up to you. And you're his big sister. And he's probably really excited to show you something that he figured out.
Caitlin 6:29
Some things sometimes they don't understand him because he likes Star Wars and Legos. And he's like, so this the TIE fighter and this is the x wing fighter. And I'm like, sometimes he tells me things I don't understand. Like, I don't know what it is. Yeah, like they'll say like, this is a Baba Baba, like a character from Star Wars. I have no clue who this is. And I'm like, so wait, what? Who is this?
Scott Benner 6:51
I'm gonna tell you something. Now. I think it's gonna really help you. Okay. So I know this is weird, because you're 11 and I told your mom, I was gonna say anything weird to you. But we're five minutes and I'm gonna say something weird to you? Do you feel like boys? Do you think boys are your jam? Like one day when you're older? Do you think you'll date a boy? Or do you think you're thinking more about a girl? Or do you not know yet?
Unknown Speaker 7:12
Oh, no,
Unknown Speaker 7:13
you're not sure I don't want.
Caitlin 7:15
I don't want to do anything with relationships at
Scott Benner 7:17
all. Yeah, it's good. It's a good place weird. Of course it is. But let me say something to you if you should, at some point, as an older person, like, you know, when you're like 28, or something like that, meet a boy and have relationship with him. This feeling you're having right now. If not understanding what your brother is talking about. That's going to happen to you. Because we don't really change that much. Boys. Just we just get bigger and we have hair on our face. That's really the only and then he's still like there's still going to be like a 30 year old guy in your apartment talking about Star Wars just so you know. It's not gonna get any better than this. This is this is the end of it right here. So your brother's is preparing you really well for being in a relationship later. Trust me. He's gonna bother you and say stupid stuff to you that you don't care about. And you're gonna want him to be around because you like him, but you're not gonna really the rest of it. You just need to like last night for an hour before we went to bed. I tortured my wife while we were watching television. And why did I do it? I have no idea just makes this makes me happy to like pause pause the show and say oh my god Kelly. Did you see what just happened there? That's amazing. This great show. And she just stares the TV thinking in her head. Why did I marry this guy? Just want to watch the show. That's all I want
Caitlin 8:36
to do. I do that sometimes my brother annoy him see
Scott Benner 8:40
things impossible. He's telling you about Star Wars not because he likes you but because he's trying to annoy you. Yeah. I bet you it's not. I bet you
Caitlin 8:48
this morning this morning. He was annoying me a little bit. He was um so we got so since since the the virus going around we had to get computers like laptops for for us so we can do schoolwork.
Scott Benner 9:05
So don't hold that story for a second. Your parents bought you a laptop because of the Coronavirus.
Caitlin 9:11
Well, because the only computer so my dad has a computer that has cords and he can't move it. And then my mom has one which is the one I'm using. It's it doesn't have cords but she takes it around with her everywhere and she's going to be going to work throughout like all of this and I'm going to be with my grandparents and she takes the computer with her
Scott Benner 9:31
laptop. Yeah, Caitlin, this is Coronavirus is the best thing that ever happened to you is that
Caitlin 9:37
Yeah, but my mom but my parents they're like this is only for schoolwork related things only.
Scott Benner 9:42
Oh no, it's not Caitlin. You can do all kinds of stuff with it.
Unknown Speaker 9:47
So
Scott Benner 9:50
what do you think? What do you think you're going to do first when you like sneak around and like like you're going to shop for clothes or what would you love to do if you had full access to that computer?
Caitlin 9:59
Probably just play games. Yeah, play games that I play at school because there's a lot of games that are education that actually are nice and fun.
Scott Benner 10:08
Yeah, I would definitely I would say to your mom, Listen, I've been doing a great job taking care of this computer. And there's this educational game. I want to play with that be okay. She'll say yes to that. And that, yes,
Caitlin 10:19
we just heard this morning because we asked her this morning if we couldn't play something on there. I said, Sure. I told her all about it was like it's educational. It's math. It's fun, like something We play at school.
Scott Benner 10:34
Yes, this is this is how it starts Caitlin right here. So you got what did your brother get for Coronavirus? The same thing you got a computer to? Yes.
Caitlin 10:43
And I know he's gonna smash it because the last computer my mom had, besides the one I'm using, it was this big red one that she had for work. He he so my mom downloaded like Minecraft and Roblox on there for him because he doesn't have a lot of things that he likes to play with. Like, he has toys or whatever. But some of them, he's just not really into anymore. Like still keeps them. And so he um, he was playing I don't know what it was it was Roblox or Minecraft on it. And he, um, and I guess he got so mad at it cuz he every time he plays a game and he like dies or whatever, but it responds him he dies. And then he Oh, he gets so aggravated. And I'm like Cameron, if you're aggravated about it, put it down, like stop playing with it and put it down. And he goes, but I still want to play it and don't get aggravated about it just the game.
Unknown Speaker 11:36
You're saying?
Caitlin 11:37
Yes.
Scott Benner 11:39
He's ever bumped his head? Do you think he has any kind of a head injury or anything like that? Have your parents ever indicated to you that they didn't think he was you know, maybe as smart as you are? or anything like that? They were talking behind his back like that?
Caitlin 11:52
I don't get into their conversations ever.
Scott Benner 11:54
Where do you live? What part of the country? I live from Florida, Florida. And you don't get into your parents conversations?
Unknown Speaker 12:01
Sometimes, but not all the time.
Scott Benner 12:02
My kids seem to constantly be in my conversations.
Caitlin 12:06
I sometimes get into their conversations. I feel
Scott Benner 12:08
like we made a mistake when we were parenting when they were younger. And my I want to do you know, not allow them to have any, you know, opinion, but my wife was like, we have to let them think for themselves. It's like, Oh, this is gonna lead to problems. And then sure enough it did. They have their own thoughts. And they always want to interject them into the conversations. Do you have your own thoughts about things? Sometimes will tell me that when I was Oh, you got a story. Caitlin? Yeah, her box, go to your store.
Caitlin 12:38
My friends would always call me. Miss chatty Cathy, when I was in kindergarten, because I would chat so much.
Scott Benner 12:43
Maybe you can have a podcast one day?
Unknown Speaker 12:46
No, probably not.
Scott Benner 12:47
Why not? You haven't had or you're halfway there. True. Now you need a microphone. Couple other things I can get you set up. Can you imagine if you had a podcast? We just made fun of Cameron the whole time.
Caitlin 13:00
Do you think that would be a blast? I would have so much fun.
Scott Benner 13:06
All the stories you'd call it cutting on Cameron. Right?
Caitlin 13:11
I go to my mom after this and be like, Mom, I want to start a podcast right? Talk about
Scott Benner 13:15
camera and torture my brother, for everyone to hear. I bet you that'd be huge. I listen, if you end up doing that, that's gonna be on the Juicebox Podcast Broadcasting Network. I'm gonna fold that into the be one of our offerings. Okay. Okay, you could be my first other podcast. Can you commit to for a month? I don't know. Jeez, Caitlin. You're letting me down pretty quick here on this. Okay. Well, I take my offer back. So tell me something. What? What's your involvement with your diabetes? Like? Do you take care of it? Does your mom do you guys co do what you do with your dad cameras not in charge of it? I imagine.
Caitlin 13:48
Yes. He's not in charge of it at all. So sometimes he Um, so it's a mix between my parents and myself. So with the Dexcom, I'm linked, so it's my phone, linked up to it. Then my mom, my dad and then my grandma who's one of my grandmas who's a nurse practitioner, who studies some she she studies diabetes and other things. And so we're all linked up to that. So during the day while I'm at school, my mom, sometimes she'll text me and be like, hey, do a Temp Basal increase or Hey, do you a correction for this? Or hey, like either glucose tab, and I'll do it. And so during the they find here at my house, I'll I'll do some stuff and then my parents will do it. But at night, it's my parents because I never hear the alarms that night. It's tough to wake up in the middle of the
Scott Benner 14:41
night. It is so tell me this like if you were going to put your blood sugar right now.
Unknown Speaker 14:48
Oh, good question.
Scott Benner 14:49
That's not a good question. It's a pretty
Caitlin 14:51
taxing. I was texting my friends earlier. Like Wish me luck,
Scott Benner 14:55
because you're gonna be on the podcast. Did they wish you luck? Are they jealous?
Caitlin 14:59
Oh, They're like good luck. I'm not 126 Have you eaten today? Oh, yes, I had breakfast tonight. Before he told
Unknown Speaker 15:09
me what he ate.
Caitlin 15:10
I had a toasted croissant with egg and cheese,
Scott Benner 15:14
toasted croissant, egg and cheese and your 126 How long did you eat?
Caitlin 15:20
I around ate something.
Scott Benner 15:23
So it's been, it's been almost three hours. You're doing great. Yeah, you expect this to go up or come down.
Caitlin 15:30
My mom expected it to go straight up. So she knows a little bit more than I think she was intending to. For some reason today. She told me before I started this, she goes, we probably should have dosed more for this. And I'm like, What do you mean? We should have dose more for that? So I'm perfectly fine. Well,
Scott Benner 15:47
maybe you say to her lady, listen, I'm counting on you. And let's be more decisive. Right. But But okay, so you're perfectly fine. How high Did you get after you wait, was there a peak? Or did you stay kind of level?
Caitlin 15:57
Oh, I did kind of make a peak.
Scott Benner 16:01
You know where I went to?
Caitlin 16:04
I was, I'm okay, I'm going to eight. So I was at like, between the 80s and the 90s. And then it started to shoot up to the highest I got was 140. Some was like 144. And then it started to come down a bit.
Scott Benner 16:20
It just sounds like perhaps your Pre-Bolus was not quite long enough. Is that possible?
Caitlin 16:26
it? It does that a lot? Because when we first started it my mom listens to the podcast all the time. That's good.
Scott Benner 16:31
She should By the way, everyone should. And if and if anyone's listening right now, should they not subscribe to right in their apps? Yes. Yeah, right. Okay. I'm sorry, Caitlin.
Caitlin 16:42
My mom was listening to one of the one of your podcasts episodes. I don't remember which one it was. But the one I remember talking about Pre-Bolus thing was with Tommy, Tommy,
Scott Benner 16:51
I think it was actually called Tommy. But yeah, good.
Caitlin 16:55
And so she so when we, when my mom first heard of it, she was like, No wonder why she's picking up at school like he's going straight up. I should Pre-Bolus. So when I'd wake up, and my parents, I would tell him what I was going to eat in the morning, possibly cereal or like toast, I would, they would dose for it. And then I would like take a shower, get dressed, do whatever I need to do in the morning. And then I would come out and I'd be perfectly fine. Till them later on it. We stopped doing that. Because as I was getting a little older, I was waking up early, and like taking showers getting dressed and doing all that and then I would go out towards round seven go out and tell them what I was going to eat.
Scott Benner 17:36
So So you were Pre-Bolus Singh having good success with it. But then when you got to a certain age, you decided you wanted to be clean before you went to school. And that messed up your Pre-Bolus. What does that tell you about showering?
Unknown Speaker 17:50
Hello, I have no clue.
Scott Benner 17:54
Caitlin. So Alright, so now you're you're you're prepping in the morning. It's taking a little more time. And that time was when you use the Pre-Bolus. So have you fixed it? Because I'm assuming you figured out you need to Pre-Bolus right. Yeah, yeah. So what have you done to adjust your daytime, your morning ritual so that it works better?
Unknown Speaker 18:14
Yeah. I'm
Caitlin 18:18
just stayed the same. Until then. Sometimes in the morning. Like on weekends, I will wake up at a specific time. Like I it switches around. So sometimes if I wake up at like, seven in the morning, we'll Pre-Bolus and then I'll do something and then I'll eat sometimes if I wake up later. All right. When I wake up I want to straight eat.
Scott Benner 18:40
Yeah, well, what your mom, so. So five minutes before you and I started talking. Arden came wandering in here. And she's on our way downstairs because she's Of course going to school from my kitchen now. The Corona university we have downstairs in the area, and she's like, I'm hungry. And I said, Yeah, you look hungry. And she's like, she said, Can you make me something? I said that I can't. I'm about to record a podcast. And she's like, Alright, well, I'm just gonna have cereal then. I was like, Yeah, alright, so I said, you know, Bolus and then wait at least 15 minutes or until you have an arrow that's going down. And she was 120 when I told her that. Yeah. And so she did Bolus I'm looking at it here. I like to have Arden's graph up while I'm doing the podcast in case that comes up. And she's 109 right now, I don't know if she started out or not. But she had to Pre-Bolus and she looked at me when I was like you have to Pre-Bolus this is gonna be a mess. And she made a little face. Like, you could probably imagine the face was a little scrunched up irritated face because she just wanted to eat. And I said, and this is a quote from me, Caitlin, I said she made the face and I said, Shut up, right like that. And she didn't actually say anything. So then our little face tightened up a little more, and I'm like, get out of here and just Pre-Bolus. And, and everything's going right. And meanwhile, she's fine. You don't I mean, like, she doesn't want to wait, but it's not killing her. It's not changing. It's not making her upset. You need to wait. You can Yeah, you can do it.
Caitlin 20:16
With me sometimes, like, if I'm somewhere I'll get really hungry. Like, if we go to Disney, I'll get super hungry, because I've been walking or running or doing whatever that whole day, I'll get so hungry. And then my parents are like, okay, we're gonna Pre-Bolus and you're gonna wait. And I get so aggravated, because I'm like, one, I'm hungry. And to sometimes as I'm waiting for my blood sugar to go down, or for me to be ready to eat my like, my friends, because I like to go with my friends. I've seen them all eat, and I'm like, I just want to steal something and eat is
Scott Benner 20:50
there's only one little thing you have to change to make this all work. What is it, you know? Pre-Bolus before you get there, just think ahead a little bit more. That's all and even if it's just a little bit of insulin, because I hear what you're saying. Right? Like, you don't always know what you're gonna eat. Right? But let's say this, when you eat, do you ever eat and only need like a half unit of insulin? Don't you mostly need like a couple of units when you're eating? Yeah, right. So what if you just were like, Oh, let me just slip in a little bit of insulin here. So I get some of it going. And then we can go get the food, and then put in the rest of the insulin. And then I can start eating with my friends because I still have a little bit of a Pre-Bolus Yeah, it's a good idea. You know what I should do? I should probably record these ideas and put them on the internet so other people can hear them. Don't you think though?
Unknown Speaker 21:42
Yeah. Hey,
Scott Benner 21:43
what's it like living close to Disney? Is it just like a regular stop for you guys?
Caitlin 21:49
Um, we go, we go. Not really a lot. What we do go a lot a year, but it's always like, like months in between? Yeah.
Scott Benner 21:59
Well, you're not there every weekend. Yeah, yeah. But you know, for instance, most people listening go once every 10 years. You get to go cleanse you because it's near your house.
Unknown Speaker 22:07
Yeah.
Scott Benner 22:08
What's your favorite thing there to do?
Caitlin 22:10
My favorite thing to do is just go to the rides and meet the characters. That's the one thing I want to do every single time. What's the best ride?
Scott Benner 22:20
Well, let's go which one's the best and we'll work our way down.
Unknown Speaker 22:22
So many.
Scott Benner 22:26
Shut your eyes. Shut your eyes. We're at Disney. You're only allowed to go on one ride. Okay, what are you going on? There you go. See you. Later that falls, right?
Caitlin 22:38
Yes. I only went on it once in the ride on the wait line because we had a fast pass for it. I was so scared. I was like, Dad, dad. I don't want to go on this. Mom. Take me off. No. I even said I thought I was gonna puke. Because
Scott Benner 22:57
Do you think that part of what makes the ride great is the time you have to spend wondering about what's going to happen on the ride. Yes, yes. Right.
Caitlin 23:05
Because I because for some reason to me, when I go on a new ride, I think it's more scarier than it actually is. Tap here I thought it was gonna drop you from like the very top and you drop straight down to the floor. Right? So but really, we go on the we go on the smoother part of it, which I had no clue. We just went up and down, up and down halfway to the very top, like almost halfway to the very top and we just chopped down.
Scott Benner 23:31
This guy to scream. No. Did your blood sugar go up afterwards? Yes. You know why? nervousness? adrenaline? Yep. You know what adrenaline is?
Caitlin 23:43
Yeah, it's when you're like, freaking out nervous. Like, no, no, it's pumping.
Scott Benner 23:48
It could be anything. It could be like if you're excited to. Let's see if you can be excited, like in a sport. Do you play any sports?
Caitlin 23:58
Yeah, I don't know if dance is technically a sport. But yeah,
Scott Benner 24:01
listen, people are gonna tell you it is and if I don't say it is people are gonna get mad at me. But you know what I mean? It might not be I'm just kidding. Adrenaline is a hormone right? So it just big stress. Blood circuit eating eating increases like your rate of blood circulation breathing. The way carbohydrates are metabolized. It's prepping your body right to be like to like take off. Yeah, right like so it gets you all jacked up and then there's then there's nothing to do. So
Caitlin 24:32
my mom on Facebook, I was getting my ears pierced. And my mom was looking through her Facebook and I was there with her because she was showing me something. And I saw her posts and it was me have a picture of me to get route ready to get my ears pierced. And so it was me before and then she showed and then she showed the my blood sugar before perfectly fine. And then she goes and then it's the it's like the before and the after. It's my blood sugar, just shooting straight up. She goes, she was lying about herself being nervous because it's going straight up.
Scott Benner 25:06
Were you calm on the outside?
Caitlin 25:09
I said I was I was a little nervous but mostly calm.
Scott Benner 25:12
I was just like, in your face. It's not great. You know?
Caitlin 25:17
That's not my dad said it would be. It wouldn't be that bad. It
Scott Benner 25:21
hurt a little he lied to you so that you'd be comfortable. Yeah, you're starting to figure that out about parents.
Unknown Speaker 25:28
Gonna be like, it's gonna be fine.
Scott Benner 25:29
They told you like this Coronavirus is no big deal. Just you getting a laptop, right? Yeah, yeah. Do you think? Do you think that's true?
Unknown Speaker 25:37
sorta.
Scott Benner 25:38
I sort of think it's true. I sort of, I sort of, I'm like, I wonder what's gonna happen. Are
Caitlin 25:45
you very good. I'm very indecisive about things. You're 11
Scott Benner 25:50
Yeah, your brains like mush. It's not even a full brain yet. Yeah, you're doing really well, by the way for being 11 This is a good conversation. Yay. Yeah. Tell you. You want to tell me something? Yeah. All right. I was gonna say some but you go first.
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I just need to remind you to go to T one d exchange.org. forward slash juicebox. And check out all of the other sponsors of the podcast. They're all right there in the show notes of your podcast player links to find out if you're eligible for a free 30 day trial of the Omni pod dash or in there there's a link to learn more and get started with the Dexcom g six continuous glucose monitor. You can find out about touched by type one.org g Volk hypo pen, it's all there right there in the show notes. There's also links at Juicebox Podcast comm to check them all out. And don't forget while you're there, that Contour Next One blood glucose meter good test and with that Contour Next One, you're gonna love it. All the links again, aren't Juicebox Podcast comm they're in the show notes of your podcast player or you can just type them into your browser. I'm not gonna make you listen to them here. But just remember when you hear him on another episode, you know, I'd like to support the podcast I will get a meter I mean don't get it if you don't want to but check it out at least the meters freakin terrific. And the other stuff my god are you kidding me a free 30 day trial the Omni pod dash Can you imagine if you're eligible for that? Check it out. And the Dexcom g sex you just know to get that stop it. Elizabeth was just on the other day from touched by type one. You heard her she's delightful touch by type one.org. All right, let's find out what Caitlyn wanted to ask me. Thanks so much for listening, guys. I really do appreciate it joking aside, your support of the show is evident. And I really appreciate it.
Caitlin 28:43
You remember when you did the for dancing for diabetes that caught that? Call? Not conference that that talk. Orlando.
Unknown Speaker 28:52
Were you there?
Caitlin 28:55
Oh, you you remember when you're asking about what's your favorite food? And that was the first in the first girl you talk to? That was me. Wow.
Scott Benner 29:03
How long was that last year? The year before when? I was good last year. You're lucky. Yeah.
Caitlin 29:10
The only reason why we went there because she was like, I go mom. So why is the reason we're going to Orlando and she goes because Scott Benner is gonna be there and I'm super excited. And I'm like, Oh, she's so sweet. Yeah, it's I had never heard of you. At the time. Well, I'm
Scott Benner 29:26
48 year old guy doing a podcast about Type One Diabetes near 11. So that makes sense. Don't you?
Caitlin 29:32
My mom showed me your podcasts and I was like, I was like was like
Unknown Speaker 29:36
my mind is blown. Do you listen? Yes.
Scott Benner 29:39
Hey, can you do me? Can I pick showers while you take showers you listen to podcast real quick before we go and he do me a favor. Can you say everyone should check out touched by type one.org
Caitlin 29:52
everybody should. Everybody should check out touched by pipe one.org.
Scott Benner 29:57
That's great because Scott's gonna be speaking there in May. Again. Yeah, now I don't have to put the ad in this episode. Thank you so much. Everybody that was an ad Just so you know, I'm not paying Caitlin, but I am making money for saying that. So
Unknown Speaker 30:10
I subscribed so I'm good.
Scott Benner 30:12
Thank you. Sometimes there's episodes that are not good for kids. Does your mom make you skip those? Yeah, to like, you know, once or bad or not. Oh, she come tell you like, Hey, don't listen to this week's Oh, sometimes. Oh, one of them's coming up this week, by the way, just so you know.
Caitlin 30:31
So the only ones I listened to her the ones with kids? Oh, I know aren't gonna be that bad.
Scott Benner 30:37
Yeah, I don't think well, I'm different. I guess I talk to my kids differently than other people do. Maybe. But I don't think any of them are bad. Some of them are just maybe like topics that are. You know, you're not ready for yet. But you will be one day.
Caitlin 30:51
One of one of them that my mom told me not to do is the um, the after dark or whatever.
Scott Benner 30:57
Yeah. You told me don't listen to those ones. Did you? Did you like look at them and think maybe I'm gonna listen Anyway, I hope you didn't.
Caitlin 31:04
I looked at them. And I was like, Okay, I read the little bio. And I was like, No. Okay.
Scott Benner 31:09
So what was so there was one about smoking weed. So that one and one about, like, nope, yeah. And there was drinking and there was one about a person to had like a tough life.
Unknown Speaker 31:21
I was like, no, not during those. Yeah.
Scott Benner 31:23
The next one's gonna be about sex. Don't listen to that one either. Oh,
Unknown Speaker 31:25
yeah. Yeah. Okay, good.
Caitlin 31:28
So that's my favorite ones are the one of them is loop de loop. That one about melody. You liked melody? Yeah, I like that one. That was fun.
Scott Benner 31:37
Yeah. I thought that was a weird conversation. But it was. When it was over. I thought, I don't even know what we talked about. And then I listened back to it and edited it. And I still didn't even know we talked it out. But I was like, it's good. And people like it. So.
Caitlin 31:50
And also Megan makes peace number 294. That one's fun.
Scott Benner 31:54
Yeah. Do you like it? What do you like better when? Like, do you like when people say something that you're like, wow, I never thought of that before. Do you like hearing about managing diabetes? What's your favorite part?
Unknown Speaker 32:06
All of them.
Unknown Speaker 32:07
Thank you.
Scott Benner 32:10
Do you listen to any other diabetes podcasts?
Caitlin 32:14
Well, that's the only one that I know of.
Scott Benner 32:16
Right? That I know when there is really?
Caitlin 32:18
Yeah, yeah, there's there's other ones but they're like people. I don't know.
Scott Benner 32:22
Yeah. Those aren't real podcast. Those are something. This is the one you've got the right one. This is the only podcast that serves children episodes about smoking weed. Yeah, it's it's not really what it was about. By the way. Do you want me to tell you what it was about? Yeah. Okay, I won't one day when you're ready. You know, you can go check them out. Do you know I've never done any drugs in my life?
Unknown Speaker 32:50
No, I never knew I
Scott Benner 32:51
never once asked me if I drink.
Unknown Speaker 32:55
I'd say yes. I don't.
Scott Benner 32:57
Not at all. But not even a little bit. Yeah, like people just like, oh, I'll have a beer. I don't even do that. Yeah, not even a little. Nobody in my house drinks. Actually.
Unknown Speaker 33:09
My mom and
Scott Benner 33:11
ycm Creek. Are your parents alcohol? Should we need help?
Unknown Speaker 33:14
there? No. They don't do it a lot. But sometimes
Scott Benner 33:18
fancy places they will fancy places. Your parents like to get a little like, a little liquor. Like of it. Yeah, just get going a little bit. Plus, you're in Florida, there must be a law about drinking that right? I have no. Do any of your friends drink? No. Good. That's good. And if they did, hanging out with them, right. But if they if they started, you'd have to stop hanging out with them. Right?
Caitlin 33:42
Probably. I'd be like I'm not hanging out with that could
Scott Benner 33:45
be a difficult decision, but that'd be a good decision for you. So what do we need to know here? What kind of gear do you have for your diabetes? Are you shooting insulin with a pen? Do you have an air pump?
Caitlin 33:57
I have a Omni pod. Nice. I started with the syringe then then pen and then the Omni pod.
Scott Benner 34:06
What's been your favorite way so far? Omni pod? How come?
Caitlin 34:11
Because it's so part of the reason is because at school I have we have nurses. And so our lunch every single time It starts at a different time, like different grades sorts of different times. But what's hard is we always go outside first. So I'll have to come outside and then run to the nurse's office and and take insulin and with the Omnipod I don't have to go to the nurse I can just follow the line. I can just follow my line to follow the line to go into to go into the lunchroom and I just sit down with my lunchbox. My all my dad he writes the carbs on E right how many carbs it is on the bags of of them. Or if it's like a pack of goldfish it will say the carbs, add it all up and put it on Omnipod Wow.
Scott Benner 35:00
That's really great. And so that keeps you from having to go to the nurse's office and from having to inject while you're at school and things like that.
Caitlin 35:06
Yeah. And then it wastes a lot of my time for lunch because I'll get there and they're like, because sometimes I'll get there and my class has already started like all my all my whole classes already. They're starting to eat and I'm still like in the nurse's office still shooting insulin at me.
Scott Benner 35:22
Yeah, that's x plus you get the Pre-Bolus a little on the way to your lunch. That helps Hey, real quick Caitlin, if you could just say Find out more at my on the pod comm slash juice box that'd be great. You don't have to wait what I'm just joking. Do you want to do it it's my on the pod but even deep in your voice little bit go in. To find out more about the Omni pod and to get a free no obligation demo of the Omni pod go to my like that good.
Unknown Speaker 35:45
I can't remember.
Scott Benner 35:47
Nevermind. Hold on a second. I have to hear my voice. Do you think I got the Coronavirus? No, I don't think so be that I've been locked in this house for like a week and a half. Let somebody Yeah. What have you been
Caitlin 36:03
like to just? We went to Disney for a full week. So we were out of the house.
Scott Benner 36:06
Wait a minute. let's admit to that people are gonna get mad at you so far. People have liked you.
Caitlin 36:11
We record we were quarantined in the hotel room for five days. Because we were there. You were there. Because we were there for a whole week Friday to Friday of last week. And so the parks are only open so for us. The parks were only open for those two days because they closed Sunday afternoon. Okay. We had went there. So Friday, we went to Disney Springs. Saturday we went to where did we go? We went to animal kingdom and then we went to Hollywood and then we left. Then we went back after Hollywood. We went to Disney Springs because I guess they were closing that Monday. So we just went there, bought everything we needed to do and then for so we did part of Monday went back then that part of Monday, Tuesday, Wednesday, Thursday, Friday. We just stayed in the hotel room and left Friday morning. So you
Scott Benner 36:59
know it's interesting. So you live Friday morning, by the way anybody who gets Coronavirus in Florida it's Caitlin's fault. But wait, see you Friday morning on the 20th. Probably. Um,
Caitlin 37:11
it wasn't morning. It was after lunch.
Scott Benner 37:14
Was it last Friday, like just past weekend or the week before? The week before? It's the 13th so you know, you actually won't know. So you've been in your house since then.
Caitlin 37:25
Oh, yes. Since we came back. We've been stuck in the house for a little bit.
Scott Benner 37:28
Yeah, more days. You have to wait to see if you have Coronavirus. Did you know that takes two weeks to know if you have it or not? Oh, no. One more than what you're doing great. You probably don't.
Caitlin 37:38
Have you had some of us I've been coughing and everything but it's not too severe. Just like a little younger adult.
Scott Benner 37:44
Do you think I can tell you? The first time I saw yo yo Ma and concert was at Carnegie Hall. I've just had a lot of words you might not know. Yo Yo, yo yo ma is a cellist. He plays the cello. And Carnegie Hall is a very famous space. In New York City. There's that cough that's your Corona right there.
Caitlin 38:04
No, Mike. I was drinking water whenever I'm
Scott Benner 38:07
Coronavirus. Now. We're in Carnegie Hall watching yo yo ma perform. Okay. And there's a guy in the row in front of me a little to the right. And every time he started to play the cello, this guy would go. And then when he'd stopped playing the cello, he never that never happened. So I think that sometimes people can feel so much pressure to be quiet, or to not cough that they do it. Like kind of subconsciously.
Unknown Speaker 38:41
That's weird.
Scott Benner 38:42
Don't you think? That could happen? Because why? Why was he able to be quiet when he wasn't playing the cello? Yeah, right. He wasn't a jerk. He wasn't doing it on purpose. It was just as soon as he knew he had to be quiet. He couldn't help himself.
Caitlin 38:57
I bet you he was uh, I bet you that dude was probably a really good person, like a good like a person and really into music. Well,
Scott Benner 39:05
I don't think a lot of people end up at Carnegie Hall watching a cello if they're really into it. That's not something you go to by mistake. Yeah. I
Caitlin 39:11
mean, it was my mom decided she liked the cello. So we'll go there.
Scott Benner 39:16
Yeah, yeah, I don't think so. I saw. I also saw um, yo, yo, ma. Wow, it's been a long time already. No, I was just looking up. My tickets up here. Oh, isn't that weird? Like, I feel like I saw him last year around Christmas. But it was two years ago at Christmas play. Yeah, I bought a poster and had it signed and it's hanging up right here while I'm working. So I was there on November 29 2018. He played all six sweets of the Bach cello. It's beautiful. Do you want to hear? Sure. I don't think I'm allowed to play music on this. I think I'll get in trouble. Don't think I'm allowed to do that. By
Unknown Speaker 40:03
playing I can't hear it. I
Scott Benner 40:04
wonder if you can hear it. I don't even know if you can. I don't know how that works. I haven't turned it on yet. Caitlin.
Unknown Speaker 40:10
Oh, cool. I was gonna say if it's turned on, I can't hear you calm down for a second.
Scott Benner 40:14
You're very excitable. Yes. I'm gonna play it for you. I might have to mute it out on the like for people people listening might not be able to hear it, but you will be able to hold on a second. So I think you're going to hate this, but I'm I'm interested to find out.
Unknown Speaker 40:35
Is it going to be loud?
Scott Benner 40:36
I don't know. Okay, I've never done this before. Hold on. Wait. Can you hear it? No.
Unknown Speaker 40:46
I only hear you.
Scott Benner 40:48
It's coming through my headphones. Hold on tight. Could you hear it? You couldn't hear it? Dammit. All right. Anyway, my favorite thing,
Caitlin 41:15
the things we can't do on a podcast.
Scott Benner 41:16
Well, apparently I could do it. But I'd have to do a whole thing. Because I really don't know how I would do it if I've never tried that before. Anyway,
Unknown Speaker 41:26
something.
Scott Benner 41:26
The unaccompanied cello is my favorite instrument.
Caitlin 41:30
I kind of know what that is.
Scott Benner 41:33
Don't just that. It's like a giant violin. It's like a giant violin. Okay. But if you told me, Scott, you are going to be stuck on a desert island for the rest of your life. And you can only take one piece of music with you. I would take the cello makes me happy. And sometimes I start like getting a little teary eyed for no reason because some of the notes hit me like really deep in my heart. It's lovely. Maybe one day you will you will find it most likely not.
Caitlin 42:02
Yeah, I'm not very I'm not really a music person.
Scott Benner 42:06
Well, I'm you're gonna be dead anyway for the Coronavirus. But you know, so you have a very good sense of humor for an 11 year old by the way. So are you nervous about this stuff at all?
Unknown Speaker 42:17
diabetes, for diabetes, I
Scott Benner 42:19
was gonna say Corona and but didn't tell me what you're thinking about around the whole thing.
Caitlin 42:24
So I heard him I'm a little nervous about the Coronavirus because I don't know if I misheard this, but I heard it while we were at Disney. We were eating dinner and the newscast was on. And it said people with diabetes have a really good chance of dying if they get the Coronavirus. And I'm like, What? I walk out of the room. I go, mom, I think they just said this on the news. But I think they said if somebody would if somebody with diabetes gets the Coronavirus, they have a chance of dying and I'm like, I'm so nervous. Almost like nope, nope, not never going out. It's hotel room ever. But I did.
Scott Benner 42:57
Well, so here's what you would you know what you'll find out if you actually listened to the episode that I've done a couple episodes about Corona. And yes, people with diabetes are at an increased risk. But that takes into account the people who are maybe not in as healthy of a place. So I think that for someone like you who is young and otherwise healthy and whose blood sugar's don't go over 126 when they eat a croissant egg, and I think you're going to be okay, that doesn't mean you can't get it still. I don't think it means that you're more likely to get it because you have diabetes. I think it means that if you get it and you have diabetes, and your health is not good, it might be more difficult to fight off. But the truth is if you have diabetes and your health is not good in general, other illnesses are also harder to fight off. I also think that when the media says diabetes, they often mean type two diabetes.
Unknown Speaker 43:55
Yeah,
Scott Benner 43:56
that's what I was thinking never get a full explanation from them about Yeah,
Caitlin 43:59
just like diabetes Coronavirus risk of dying each one
Scott Benner 44:06
well you know what you shouldn't do probably you shouldn't go to like Tower of Terror during so where you guys just trying to sneak it in under the under the thing they're trying to get a little fun in before you're gonna get locked up. Yeah, yeah.
Caitlin 44:19
Because we were planning before before the Coronavirus was even like in the United States, we had already planned it. We were like, Oh, it's not gonna get in the United States at all. We were planning that whole week going to Disney. Like we had it all planned out like magic kingdom would be like Tuesday, and looking will be like Thursday. We had it all planned out until they until we got the announcement saying the night before we left. That before we left we got it. We got a like a notification from Disney saying that they were closing the parks Sunday off sudden like at 12pm 12am they were closing all the parks.
Unknown Speaker 44:57
You know my heart was broken
Scott Benner 44:59
or something Crazy. I just realized there's a person who listens to this podcast, who was also at touched by type one last year in the same room you were in where you asked your question. Who dances at? Animal Kingdom? She's a performer, Animal Kingdom. And that crazy?
Caitlin 45:19
I don't recognize very many people at Disney that I know.
Scott Benner 45:22
Yeah, you wouldn't recognize her. But that's what she that's her job right now. That's what she does. Oh, that's cool. Yeah, I thought so. So he just realized that he said, Okay, so what are your goals here for diabetes? When life goes back to normal? And you know, everything or even now? Do you want to be in charge of your insulin? Like, what is your desire around that? Do you wish your mom wasn't involved? Do you like your mom being involved? How do you like it? Like,
Caitlin 45:48
I like my parents being involved? Because a lot of the times, like at night, perhaps I can't hear you alarms. And I would never know. Like, if my parents weren't involved in this, I would never know that my alarms weren't going off.
Scott Benner 46:02
Do you get but what about during the day when you're awake? Would you like this start being in charge? Or? No?
Caitlin 46:09
I guess sometimes they'll be like, give yourself a correction. But then the, but then sometimes, they'll be like, give yourself a correction. I put my blood sugar and on the Omnipod. And there and it says not gonna give me anything. So I go like, What? How much do you want me to give me? How much do you want it to give me it's saying when I put the blood sugar, and it's not going to give me anything? But my parents still want me to give a correction. Because if I don't, it's still gonna go up.
Scott Benner 46:36
So it gets it doesn't get a little confusing when the when your pump says one thing and your parents say another thing? Yeah, yeah. Do you think? Let's see, do you want to go to college one day? Have you ever thought about that?
Caitlin 46:48
I do want to go to college, but I feel like I would want to go with my friend Sophie. Who's because we both want to be bakers. So thought why don't we go to like college for like coronary school. And also she's very like, at school. She's very strategic about my diabetes. She's like, She's like, Caitlin, your alarms going off? Are you alright?
Scott Benner 47:13
She pays attention to it for you.
Caitlin 47:14
Yeah. It's like she puts her friends before her almost. Oh,
Scott Benner 47:19
that's kind of nice. Does she? Does she do that with a lot of life or just with you in with a diabetes?
Caitlin 47:25
I have no clue. But she does that a lot. Like if we're like, if one of us like fallen were hurt and we're like bleeding. She'll, she'll be the first person zoom over like the flash and go. She'll be the first person over there.
Scott Benner 47:38
Which flashes your flash? kailyn. Which one? Do you like the best? Like the guy on the show? Grant Gustin I just say that you just say the flash, you don't have an attachment to it at all?
Unknown Speaker 47:49
No, I don't really I'm not into superheroes at all. Very nice. I'm
Scott Benner 47:53
looking at baking schools for you. Oh, hey,
Caitlin 47:57
Sophie and I were planning on starting our own bakery company called the Baker's to,
Scott Benner 48:04
like your own shop.
Caitlin 48:05
Yeah. But we were still planning on where we want to do it. We were thinking New York. Yeah, you already.
Scott Benner 48:14
You're already planning on leaving your parents?
Caitlin 48:18
Yep, yeah. But I'm not really leaving my family because a lot of my family lives up and on my dad's side. A lot of my family lives up in New York. So I won't be that lonely. Okay.
Scott Benner 48:29
Johnson and Wales has a campus in Miami. It's a good cooking school. They have Baking and Pastry Arts there. He tend to one faculty ratio. This is good. Alright, we'll write that down somewhere because you have a couple years so. Yeah. Right now you're just trying to get through middle school and stay away from boys? Pretty much. Yeah.
Unknown Speaker 48:54
almost about to go to middle school.
Scott Benner 48:57
Really? So what grade right now? You're in fifth grade? Yeah, Caitlin. I have been lulled into believing you're 32 years old while we're talking. Don't laugh. I wasn't kidding. Oh, you sound very like mature. Why are you the oldest? You're the oldest, right? There's just two.
Caitlin 49:20
Yeah, I'm the oldest of my brother.
Scott Benner 49:22
You boss him around a lot. Yes. Yeah. All the time. does it bring you a real pleasure to tell him what to do? Yeah, because my wife looks happy when she's telling me what to do.
Caitlin 49:32
Cuz when I tell him what to do. I feel like the adult.
Scott Benner 49:35
Oh, you like being in charge? Yeah, yeah. Caitlin, I think that's a psychological issue. But you're too young to worry about it right now. No, seriously, I am. When my wife's telling me what to do. She never looks happier than in that moment. She loves to. She also likes to be right. Do you like to be right?
Unknown Speaker 49:55
Sometimes, not all the time.
Scott Benner 49:57
Does it make you happy to be right.
Caitlin 49:59
It Because then I feel like I knew something that I knew was right. And I do that a lot.
Scott Benner 50:05
Yeah, you're right a lot.
Caitlin 50:07
Um, I, because sometimes we'll be late. Like, if we're doing like a fast pass or whatever, we'll be late for something. And I'll be like, and so my mom, like, we're almost about there. And then she'll be like, why don't we take another route? And I'm like, What if we take this route? We get there quicker. And then sometimes we'll be late for it. And then I'm like, Well, I was I was right. We should have done that.
Scott Benner 50:30
Is it more satisfying to be right? Instead of your parents or your brother? Like, who do you like to be right? More? Correct, then?
Caitlin 50:38
My brother, your brother? Cuz it makes me feel smarter than him?
Scott Benner 50:41
I gotcha. Well, you're older than him. So that makes sense. Right? Yeah. Gotcha. Is your dad very involved with your diabetes? Besides the the carbs and stuff around lunchtime?
Caitlin 50:53
Yeah, he's very. He's very old to it. Sometimes.
Scott Benner 50:58
It doesn't you like that they're involved?
Caitlin 51:01
Yes. I love that they're involved.
Scott Benner 51:03
Do you want them to be involved? forever? Yeah.
Caitlin 51:08
For long for it till I die.
Scott Benner 51:11
Well, what about this? Let's paint a picture, right? We get we get past this. We find some boy eventually, one day, like 20 years from now. And he stops talking about Star Wars long enough that all right, I can go out with this kid. And you're at home with him and you're married now and it's time to eat. You're gonna call your dad and ask him how to Bolus?
Caitlin 51:32
Well, first of all, I'd have to teach the boy I'm with I'd have to teach him how this works.
Scott Benner 51:36
You're gonna expect them to help you too.
Caitlin 51:38
Yeah, I would expect him. I mean, he's living with me.
Scott Benner 51:41
100%. That's good. I don't disagree with you. I was just asking. I think that one day, you should meet somebody who cares about your health and yeah, be willing to help. That's very cool. Wow. I think we've learned a lot here. Caitlin, don't you?
Unknown Speaker 51:56
Yeah,
Scott Benner 51:57
yeah. Have you said anything you wish you didn't say? I don't know. Remember when you admitted to spreading the Coronavirus from Florida?
Unknown Speaker 52:05
Oh, yeah. I kind of get that a bit.
Scott Benner 52:12
I'm not laughing at you. I'm just laughing. Have we talked about we missed anything? Is there anything you'd like to talk about that we haven't spoken about?
Unknown Speaker 52:21
so much? Um,
Scott Benner 52:27
what would you want other kids to know about diabetes? That kids that that have it that maybe you're struggling and like because you don't sound like you're struggling with it? You sound like you're pretty okay with this.
Caitlin 52:38
Um, don't be scared or nervous about it? Because you'll get through it. And you'll be perfectly fine. Once you're through it.
Scott Benner 52:49
You think people worry? Did you ever worry?
Caitlin 52:51
I did worry a lot.
Scott Benner 52:53
What was your concern?
Caitlin 52:57
Like it wasn't going to get it was going to get worse from where it was
Scott Benner 53:02
like your blood sugar's would just go out of control, and you wouldn't be able to fix them.
Caitlin 53:07
I have basically the whole thing. I just, I don't know why I got really nervous when I first thought of it. Because part of it was because I never liked needles. I was a little kid. And then figuring out I had to take shots every single day and prick my finger every single day. I was so nervous. I was like, I'm never I'm never gonna get anywhere from this.
Scott Benner 53:29
I've never met anybody who likes needles. But it's funny. It's funny when people talk about it. People are always like, I was one of those people who didn't like needles. And I always I never say it. I'm saying it to you now. Right. But I've never said it before. I always think are there people running around who enjoy getting stuck with needles that I don't aware of? Like, it's a it's a funny thing to say it's like, you know, it's like saying it's like, it's like saying, you know, I'm not one of those people who likes falling into a volcano. Yeah, no one likes. Okay, right. Right, right. But there's no one around. It's like, Oh, you know what my favorite thing to do is, I love to fall into a volcano. The best thing ever. You don't hear that. But everyone always starts with that, like, well, I'm just one of those people who doesn't like needles. I'm afraid of needles. Like, yeah, we all are afraid of getting something stuck into us. You don't I mean, I think it's the level of tolerance you have for it. So when this is all going on, when you're first diagnosed, and there's needles coming at you when you're like eight years old and everything, and does it feel like Do you remember how it felt? It's such a weird question for somebody. Yeah. But what does it feel like to get diabetes?
Caitlin 54:38
I was so scared because I thought that because I knew my life was my life was like turned upside down. And it was going to be stuck with me my whole life. And I just thought, okay, I didn't know I had no clue about the Dexcom and Omnipod and what they did. So I just thought you had to take shots and needles every single day and I would be living For this, I have been living with this for like, I thought I would be living it for like my whole life just doing shots and needle shots and needles without the Dexcom an omni pod, because I had no clue those two exist existed at the time.
Scott Benner 55:12
So just it's scary to feel like this is this is the rest of your life. And it's always like this. And is it better now the way it is now? For you?
Caitlin 55:20
Yes, it is very, very happy. And because I don't have to do that every single day. Now, how often
Scott Benner 55:26
do you think you get shots now? Do you still get a needle once in a while? Nope. Not at all.
Caitlin 55:32
Unless if my Omni pod fails, and we don't have an extra pod by mom will have a vial? My mom will keep a vial of insulin and syringes in the bags just in case something goes wrong.
Scott Benner 55:45
Yeah, but it doesn't end up happening very frequently to
Caitlin 55:48
that much. Unless if my unless of my we don't have to change the Omni pod. And the insulin went bad and like my blood sugar's keep going up after having like 50 units in me. She'll have that sometimes.
Scott Benner 56:03
What about tea? Um, how often do you end up testing with a meter?
Unknown Speaker 56:09
I'm
Caitlin 56:11
not very often sometimes when I go swimming, and I'll have to eat like, right when I get out my Dexcom it wouldn't link up to my, my phone. And we'll be eating like right when I get out. So I'll test their error or if my arm or if my Dexcom falls out, which did happen over though, over the last weekend. Okay. Oh, and I went to Disney.
Scott Benner 56:34
So if there's a some sort of a breakdown of the technology, you go back to it. Yeah. Do you ever just check to be sure I think Arden tests probably. I bet your heart and soul tests about 15 times a week. But it's usually clustered on days where the CGM is either newer or older.
Caitlin 56:57
I do sometimes because it my Dexcom it's sometimes it gets confused, it gets a little confusing because it will say I'm at like 45 double arrows down when I feel like I'm at 90. So we'll test there like if, like, it'll be like, my parents will be like, are you do you feel fine, because it says you're at 45 going down going down and I'm like, I feel fine. I don't feel dizzy or lightheaded.
Scott Benner 57:23
What happens when you test in a situation like that?
Unknown Speaker 57:27
Um,
Caitlin 57:28
I'll test I'll see where I'm at. If it's different, we'll calibrate it or unless if it says it's different, but then it the arrows it show it's starting to come back up. And we won't do anything about it. But if it says it's still at 45 going down for like, for like the past like 15 minutes, and it's still going like that we'll calibrate it.
Scott Benner 57:50
Here. Yeah. There's all kinds of different opinions about how when to calibrate or not calibrate. CGM people are very passionate about those conversations. But I hear what you're saying. I think when there's a discrepancy, or when you don't feel the way it says it's always a good idea to test right away. It's the best thing. It really is. Are you thinking about? Or do you even know anything about like, we use the Omni pod. So do you know anything about the Omni pod horizon? The idea of like, one day, there'll be like a little computer program. That'll that'll tell your palm how much insulin to give you and have you and your mom ever spoken about that?
Caitlin 58:31
I think my mom has talked about it, but I don't really know. It's not something you're playing right now. But I do know she I think she was talking about word like Dexcom and Omnipod. We're going to we're coming together or like conjoining some at some point.
Unknown Speaker 58:49
No, no. Oh, that's it.
Unknown Speaker 58:51
Yeah. My mom says that's horizon. So yeah,
Scott Benner 58:53
there's something you guys are talking about. That's cool. That'll be like a year from now when you're like gonna be 12. You know, in on May 30 2021. That I remember your birthday. Yeah, you have to be impressed. You don't know that about me. She'd be impressed. But then an hour later, I know your your birthday is may 30 is a huge deal for me. Just so you know. I'm incredibly not good at remembering. Almost everything.
Unknown Speaker 59:22
Same here.
Scott Benner 59:23
It's weird. It's weird that I'm the one doing this podcast. It's even weird to me. Like when I start talking about diabetes, and people are like, Oh, that's great. I'm like, Huh, how did that end up being? such a weird thing? I should probably be. I don't know what I should be doing for a living. I don't think it's though. I didn't think it was gonna be this though. What do you want to do? I mean, the bakery thing is a real thing. I want to do that.
Caitlin 59:46
Yeah, that's something I'm planning on doing. Because my family Smith, because some of my family does baking like my great grandma. She bakes a lot. And sometimes for like parties. I'll do something with my mom.
Scott Benner 1:00:01
I went to baking school for three years when I was in high school. I couldn't make bread like you know, somebody makes a loaf of bread. I can make 150 loaves of bread at a time. What I know how to bake for like an industrial sized bakery. That's what I learned to do. Because I didn't want to go to high school. So I went to baking school, and it split my time. That's probably probably not something they do anymore. And it wasn't a good idea. I should have went to high school just so you know, these mad baking skills that I don't get to use very often, although I'm going to use them today because Arden wants cookies. That was that was what was told to me last night that I needed to make chocolate chip cookies today.
Unknown Speaker 1:00:42
Cookies.
Scott Benner 1:00:44
Do you like cookies, though? A little bit. You'd like them when they're thin and harder or puffier and softer.
Caitlin 1:00:52
Like a mix of them, because sometimes they'll be hard or softer. You really don't. cuz sometimes you can never determine if it's like that because sometimes they'll be puffy, but hard or thin but soft. They can change people are giving you puffy but hard or thin but soft cookies. Those
Scott Benner 1:01:10
people do not know what they're doing and baking cookies. Okay. You take a bite, you make a little face, you put it down. Very, very judgmentally. Okay, then you just push it into the trash and let them know with your actions. You have crappy cookie, and no one wants to eat this. It's so easy to do the right way,
Caitlin 1:01:32
then, I mean, the only reason why I like both of them. I mean, it's just a chocolate chip cookie. I mean, if you give me a cookie, and it's light, and it's puffy, but hard. I'll still eat it. I mean, it's a cookie.
Scott Benner 1:01:42
Caitlin's like any chocolate chip cookies a good cookie, Scott,
Unknown Speaker 1:01:45
any cookies. Good.
Scott Benner 1:01:46
All right. Listen, I was thinking it might be interesting for a second. Could I talk to your mom for the last couple of minutes? Okay, yeah. Hey, wait, Caitlin. Wait. Yeah, I really enjoyed talking to you. I want to tell you by Did you have fun doing this?
Unknown Speaker 1:02:00
Yes.
Scott Benner 1:02:01
Do you have any idea what we talked about? Anything like if I said to you right now, what's the little blurb gonna say? In your episode? Do you have any idea what it's gonna say? No, I don't either. I don't think that we talked about whatever. We talked about whatever. Yep. All right. Thank you so much for doing this. I really appreciate it. I hope. I hope you don't have the Coronavirus. I don't. Right. Good girl. Let me talk to your mom. Okay.
Hello. Okay. We're still recording. Can you put the headphones on for a second? Yes.
Unknown Speaker 1:02:40
All right. Oh, goodness.
Jessica 1:02:44
Got cords wrapped around everything. Can you hear me?
Scott Benner 1:02:48
What did you do to that girl? Why is she like 35 years old?
Unknown Speaker 1:02:51
I don't know.
Scott Benner 1:02:54
Either you or your husband like that?
Unknown Speaker 1:02:56
Ah, no.
Scott Benner 1:02:59
You're not like she she's the most responsible person in the house? Sometimes? Yeah, definitely. I'm just like, I'm talking to her. And at one point, it occurred to me I'm like, gosh, she's 11. Yeah, I really is, when you sent me a note, I want you to know that your note has mimicked a number of them that I've gotten over the years from people are like you don't understand. My kid is so good at talking. And so mature, and some of them are but some of them aren't. And yours really, really really is. Like, she's just like, right on. I'm like, Hey, is there anything we shouldn't have talked about today? Like, what do you think anything? She's like, I probably shouldn't have said that. We went to Disney. I was like, Wow, she even knows. Oh, my God. I was like, I just thought I thought Wow, she's even aware of that. Like, didn't even like she has like she was able to like, think back over the hour and go, Oh, you know what, I wish I wouldn't have said this. Right. But I said that. She was like funny without being mean about her brother. She was real. Were you listening the whole time?
Jessica 1:04:05
A little off and on. I had to make a couple of phone calls to insurance companies and make sure you know, we get supplies, and all that good stuff. So in between calls, I was kind of like, poking my head at the door. She did
Scott Benner 1:04:16
a terrific job. She was really really good. It was excellent. I'm glad Yeah, no kidding. She does want you to be involved with her diabetes care for her whole life.
Jessica 1:04:25
her entire life. So I must live for ever. 100,000
Scott Benner 1:04:29
more years. She has to go Yeah. And if she does get married, although relationships are not something she's thinking about. If she does get married, the boy is going to have to understand her diabetes. She said she's gonna have to teach it to him.
Unknown Speaker 1:04:46
Cuz she won't do it.
Scott Benner 1:04:48
You're like, yes. You think she's looking for for a different caretaker?
Unknown Speaker 1:04:52
Yes, that's that's probably what it is.
Scott Benner 1:04:55
She said she enjoyed bossing her brother around. She likes being right sometimes. She said, I told her my wife loves being right. She there's nothing more than my life. My wife enjoys them to tell me what to do at work, right? She just she's in her element in those moments. Yeah, it was really she was really delightful. Yeah, it was really nice. I don't know, when this will be out. But I think because we talked about Corona, I'm probably gonna have to push it up and have like, two years from now, like, you know what I mean?
Jessica 1:05:32
Wait, it's not gonna make sense to a lot of people. Or maybe it may,
Scott Benner 1:05:35
or the bigger problem would be six months from now, you know, everyone's dead. And we're joking around about curl, right?
Jessica 1:05:43
Not anymore. I know. We're like, I'm like, Oh, it's probably not funny. It was funny. In the moment when we were there. You know, Friday, we get up there Friday, mid afternoon. And we're like, What's good? Why is I mean, Disney Springs was empty. Because I believe everybody was at the parks. But there was no word of closures of anything. As far as we knew, I mean, we were on vacation time. So I wasn't watching the news, I wasn't paying attention to anything I was, you know, it's interesting, getting a family of four packed up to leave for seven days. So, and my friend was the same way. She had her family of five, she was packing up, you know, to prepare and everything like that. And we get up there, we're enjoying our time, you know, and all of a sudden, you know, we're, I'm looking at my phone, I was like, Oh, this is a little more real than what I thought. And I work I you know, working 50 plus hours a week, you know, outside of the home, so I don't have the TV on hardly ever. So it was I was like, Oh, my first down minute. I'm like, Oh, this may be more real than I anticipated.
Scott Benner 1:06:52
We it's funny. I was talking about this with Kelly a little bit too, that. Just the idea of it. It's just that if we wanted everybody to know right away, the federal government would have had to step up and be like, that's it. Everybody get into your houses turn on your television will explain to you why. When you let it trickle out like this, there are people who are more connected to the news, less connected to the news. Some people who are working so much are just like you got busy. And so like, Is it fair to say that a week and a half or two weeks later, if you knew what you knew now, do you think you would have went to Disney?
Jessica 1:07:25
No, no, not at all. Not at all. I mean, why we brought plenty of hand sanitizer because, you know, there was a run on hand sanitizer. We couldn't keep it on the shelves in the store. I just everyday somebody would come and ask your hand sanitizer. I was like, Oh, we haven't gotten any in in two weeks. You know, I'm not sure exactly. You know, you soap and water. And don't touch things. You know,
Scott Benner 1:07:45
that that's not even enough to make you think like, I wonder why people are asking now have they come in and been like, do you have any zombie guns? Why is everyone asking for a zombie gun?
Jessica 1:07:56
I may have turned on the news that
Scott Benner 1:07:59
hold on. That's the third guy they asked about zombie booby trap. Let me just find out what's going on here now. Right? Yeah. Now it's it really is interesting how it gets how slow rollout? Everyone, it's because you see people on Facebook. You know, there's different levels of virtue signaling going on around around Corona around life in general. But that idea of like people like to say smart things to make sure you know, that they know like that, you know, because who are you really telling on Facebook, the five people who follow what you're saying? What are you exactly fixing the world by making sure that Patti and Karen know about the the Coronavirus, like they haven't figured you know, but but so everybody's doing that thing. And I always think like, you know, there are people who don't know, they just aren't paying attention. If you need any more, you know, backing for that, right? Let's see, let's just do this, like how many people voted in the 2016? election? You'll see why I'm doing this in a second. 2016 United States presidential election simple. How many people are well listen, it's easy to do this way. Right? It looks like one person got 65 million votes. One person got like 62 million votes. Okay. What's that, like? 130 140 million people. Right. Right. Now, let's Google this. How many people live in the United States. So there are 327 million people in the United States given that they're probably not all a voting age. It does seem kind of suspect that only about 140 of the 140 of the 327 voted like so. There's just some people just aren't even like concerned with the presidential election for example, or now. You know, I don't listen to the weather. Right. I know people who constantly know The weather and I am forever walking outside being surprised by the weather. I opened the door on my golf training.
Jessica 1:10:07
Where we are there is no point in listening to the weather. It's it's gonna rain. It's not gonna rain. It's you know, Florida.
Scott Benner 1:10:13
I'm just my point is there's things that people, you know, tend to care about things that people tend not to care about. Everybody's different I because you didn't, as she was telling me that you guys were there. I did not imagine that you were the kind of people who were like, Huh, there's a really good reason for us not to do this. But Screw it. We're going anyway. Like, I know you well enough online to think that that's not who you are, right? Oh, no, no, not at all. It's it's just it's interesting to watch it all go. So let me ask you before I let you go on, do you have more?
Unknown Speaker 1:10:43
Oh, yeah. Yeah. All day.
Scott Benner 1:10:46
You're like, I have nothing but time Scott later, we're gonna play poker for potato chips.
Jessica 1:10:51
Exactly. I you know, I had her do a lesson plan, you know, for the week that she's gonna be with my mother in law. You know, her and my son are going to be with the mother in law for the rest of the week to do school lessons and you know, a sense of normalcy as you as you call it, during less. So hopefully they'll follow through on it.
Scott Benner 1:11:10
Just you know, she might not be willing to go because I told her she still got four more days before she knows if he has Corona or not.
Jessica 1:11:16
Right? she does. She does.
Scott Benner 1:11:18
She might be like, no one's coming in this house. And I'm not leaving Jessie. But how does she do with her type one with her diabetes stuff? Are you bring me in for an 11 year old? Are you pretty happy with how she handles it?
Jessica 1:11:32
Oh, very, very amazingly. Well, I know she she does. You know, as an 11 year old as a child, she does tend to, you know, fight on some things. But she would fight me on something else. If it was not diabetes. So and those are the times when I just kind of okay, I take over. And I do I do most of the care for her. But I rely heavily on her to do it. At school. Yeah. And we don't do that communication where you do with Arden at lunchtime, she just doesn't have that time she she is almost embarrassed to pull her phone out and be like, Hey, Mom, it's lunchtime. What do I need to dose. So we've come up with writing the carbs down on it used to be a piece of paper, but she we found that she wasn't eating everything. So we just write it on the packages, and she adds it up what she's going to eat. And if she decides she's gonna eat more, she'll dose a little more so that that tends to work for us. So I like that a lot.
Scott Benner 1:12:31
I obviously, just the more
Jessica 1:12:33
you don't follow cards,
Scott Benner 1:12:35
the more fluid just throw that insulin in and go ahead and eat. Let's see what happens.
Jessica 1:12:39
Yeah, we do that when it's not like pre packaged or anything. We'll just be like, Oh, that looks like
Scott Benner 1:12:45
sound like you're doing terrific. You really do. I appreciate. She's like she's like, there's episodes my mom tells me not to listen to and I was like the ones about the weed in the drinking. She goes yeah. I said, Did you listen to her not listen to them. And she goes, I didn't. She's like, but I did read the descriptions. I was like I said, well, there's one coming out about sex pretty soon. Please don't listen to that one. She sucked. Okay. Yeah, she was really good. Like, she just was terrific. I'm assuming you're very proud of her because she was. Yeah, she was excellent. Cameron apparently is a mindless pain in her ass that only wants to talk about Star Wars. Just so you know. When I told her one day, she'll be married to a man who's a mindless pain that only wants to talk about Star Wars. Is don't expect too much growth out of boys. Just see it now. Yeah, we're gonna, we're gonna pretty much be the same, just taller. So yeah, well, I really appreciate you guys doing this. And I just want to say thank you to you as well.
Jessica 1:13:43
Thank you for allowing us to come on. I mean, I was not expecting I told her. I was like, Caitlin, I'll send this email out. But do not expect a response anytime soon. Don't expect you know him to say yeah, I'll do it or anything like that. So when I got the reply, I was like, Oh, okay. She held up her end. And I will tell
Scott Benner 1:14:01
you this, like, in all honesty, episodes with children don't do as well. There are people who you know, will say, like, give us skip it because they're just like, I don't wanna hear a kid talk for an hour. But I think those people are making a mistake number one, but number two, for every person who doesn't want to hear if there's somebody who wants to hear it. And so there's that's her story. Still someone's story, right? And she's still a person with type one. And I think people need to hear it. I mean, she told me something she learned from Tommy's episode. Yep. Right. And
Jessica 1:14:33
she wanted to hit she wants to hear more from kids. And that's why she was like, I want to go on mom. If Tommy can do it, I I can do it.
Scott Benner 1:14:40
Well, I'm glad and I hope a bunch of kids hear her and then they're motivated to Pre-Bolus or pay a little closer attention. You know, whatever it ends up being, just to know that there's another person out there like them who's, you know, at Disney and doesn't want to Pre-Bolus because their friends are you know, and she's told me she's like, sometimes my friends are eating and I can't eat and I'm just doesn't like it. Yeah. So
Jessica 1:15:03
we try to catch it beforehand. But you know, when you're in the moment, it's like oh, no.
Scott Benner 1:15:07
easy to forget.
Jessica 1:15:08
Yes, it is. That's when we go a little heavier on the insulin.
Scott Benner 1:15:12
Sounds like the wind. The croissant went very well this morning, I thought
Jessica 1:15:15
Yes, it did. I'm amazed at myself. I'm still trying to tackle that croissant.
Scott Benner 1:15:22
And I got it this time. We're still Arden had cereal this morning with what I'm gonna call not quite enough. Pre-Bolus but she's at 150 so she's doing okay. You know, it's like a giant I don't know. And she didn't measure it. I don't know how much he ate. I don't even know what kind of cereal it was to be honest. I was already talking to Caitlyn.
Jessica 1:15:39
Yeah, so probably a bunch.
Scott Benner 1:15:41
Yeah, just hit her with a big sledgehammer full of insulin and let her eat the cereal.
Jessica 1:15:45
There you go. I that's where I've come down to I was like, you know it, we'll figure it out. It will. Sometimes it's gonna be a little more sometimes it's gonna be a little less she she does good with measuring things out. I'm like, you don't have to do that. She's like, No, I want to I said okay, and she measured off the cereal and it's like, that's a snack. Like no it for a little more on there. But yeah, she she does very well with you know, dosing and things like that.
Scott Benner 1:16:14
It really sounds like it it really does. It's very cool. Well, congratulations, you have a lovely family. As long as you guys all don't
Unknown Speaker 1:16:21
die of Coronavirus Coronavirus,
Scott Benner 1:16:22
I think you're gonna have a lovely life.
Jessica 1:16:27
You got to be light hearted with us. You can't take everything too seriously. You don't have to live your life normally. Listen, I
Scott Benner 1:16:33
have to tell you, I think joking aside, I think this is an incredibly serious thing. But it is not gonna stop me from trying to stay light hearted about it or because we're trapped in our house. Like what Brian would get what point is not going to be all like Lord of the Flies in here. So, you know, people are being cool. Right now we're found, you know, we've had to tell my son a couple of times, because he'll he goes fishing for like, Yo, I was gonna go play basketball or something like that, like that. We're not or, you know, I heard the other day, my friend wants to come over and help me put my clothes away from college. And I went, yeah, she's not coming. So you know. I guess he's doesn't realize he's 20. So it's perfect. Right? Because we haven't gotten to that conference. Or maybe he just likes a free place to live and doesn't want to rock the boat. I don't know. Exactly. But he hasn't like pushed back. Because I think he knows it's serious, too. You know?
Jessica 1:17:20
Yeah. So now let's just follow the rules for a couple couple more weeks and
Scott Benner 1:17:24
hopefully help some people not get sick. Exactly. Exactly. Wish you a ton of luck. Oh, thank you. Yep. And I will talk to you soon.
Unknown Speaker 1:17:32
Yep. Thank you. Have a good day. You too. Bye. Bye.
Scott Benner 1:17:38
A huge thank you to one of today's sponsors, GE Vogue glucagon, find out more about chivo hypo pan at G Vogue glucagon.com Ford slash juice box. you spell that GVOKEGL Uc ag o n.com. forward slash juice box. Since it got thrown into the episode, checkout touched by type one.org. And all the other sponsors there's links right there in your show notes and links at Juicebox podcast.com. Wasn't Caitlin delightful. I mean that from the bottom of my heart. I enjoyed our conversation together so much and I hope you did too. I'll be back next week with much more of the Juicebox Podcast. See you soon.
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