#1319 Secret Chinchilla

Maddie, a 19-year-old college student with PCOS, acid reflux, low B12, low iron, and reactive hypoglycemia.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
OmniPod, Hello friends. Welcome back to another episode of The juicebox Podcast. Today,

we'll speak with Matty. I'm going to do something different here today. Tell you a little extra about Maddie than I normally would in the open. She's a 19 year old college student who has PCOS, acid reflux, low B 12, low iron, talking about anemia, and she has something called reactive hypoglycemia. She doesn't have diabetes, but she does love the podcast because of how much it helped her. But that's not what most of this episode is about. Today. We pick through maddie's problems and try to come up with an answer for her, because her doctors are letting her down, and she's away at college and things are degrading. You're gonna hear a lot of problems that Maddie has, that a lot of you might have too. So don't just be like, Oh, they don't have diabetes, so I'm not listening today. Please don't do that. Okay, this one's good. You're gonna like it also. It's got a great title. Please don't forget that nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan or becoming bold with insulin. I'd also ask you to check out the private Facebook group juicebox podcast, type one diabetes on Facebook with over 53,000 members. It's the place to be. Today's podcast is sponsored by the insulin pump that my daughter has been wearing since she was four years old. OmniPod. Omnipod.com/juicebox, you too can have the same insulin pump that my daughter has been wearing every day for 16 years. The episode you're about to listen to was sponsored by touched by type one. Go check them out right now on Facebook, Instagram, and of course, at touched by type one.org check out that Programs tab when you get to the website to see all the great things that they're doing for people living with type one diabetes, touched by type one.org

Maddie 2:07
I'm Maddie. I do not have diabetes, but I think I share a lot of experiences with people that do. And this podcast has helped me a lot. It helped me, especially my freshman year of college. I'm now a sophomore. I go to a school in the southeast. I'll just say it. I'll probably say it. I go to us. I'm very proud of it.

Scott Benner 2:30
You go to see I like how you're like, I'm just gonna say it. Then you just give me two letters, University of Florida, Florida, okay? And you're, what do you like 20? I'm 1919. Okay, wow. Okay, well, I'm 53 so I feel very old, and I'm wondering if we're gonna understand each other at all, although I can I do okay with Arden, I guess like keeping up with things. She like, sees and things. So we'll see what happens here. Okay, so Maddie, let's first just get this out of the way. Do people call you Maddie or Madeline Maddie? Okay, you did not grow up in a house covered in vines. Is that correct?

Maddie 3:10
I did not. All right, excellent.

Scott Benner 3:12
Do you have any idea what I'm saying when I say that?

Maddie 3:16
Um, no,

Scott Benner 3:17
I don't. Excellent. That's excellent. I'm not gonna, oh, wait,

Maddie 3:19
is it like a book, like the book,

Scott Benner 3:21
you don't know the little like, she lives in a house covered in vines, Madeline. You know that? Yeah,

Maddie 3:27
yeah, yeah. Except my mom was always adamant that it's Madeline, and so she tried to separate me from that book as much as possible, even though it was felt the right way when I went to France.

Scott Benner 3:38
So I don't know, Oh, I see your mom. Your mom had a problem with the pronunciation of the book title.

Maddie 3:43
You're not Madeline. There are three E's, all right, you are Madeline, more

Scott Benner 3:46
like Madeline Khan, who's probably another person you don't know. I do not know. Awesome. Okay, so now that we've substantiated that I'm old and you're not, we'll move forward. What do you mean? The podcast has helped you, but you don't have diabetes. Who has diabetes that you know?

Maddie 4:05
So I have reactive hypoglycemia, and it can present very similar to the of the lows that a type one would have, especially in the beginning. It hasn't been bad recently, because I've just kind of figured out my body, but for a while it would be like, I'm fine, nothing's happening. And then all of a sudden, don't know where I am, shaking, sweating, busy, confused. And that was really scary. I had a lot of really scary moments, and I see an endocrinologist, which I really struggled with. I didn't know, like, what to do. Like, it's very daunting.

Scott Benner 4:42
Okay, so now we're into something I don't really know too much about, so I'm gonna have to pay very close attention to what you're saying. I'm gonna sit up. I actually just, I just realized it's like, oh, I just can't, like, sit back on this one. I don't I'm not gonna know what the hell she's talking about. Do you have any other medical issues?

Maddie 4:56
Oh, yeah.

Scott Benner 4:59
All right. Maddie, hold on a second. Good list them off for me. Do them like,

Maddie 5:03
I say that I'm not like, I'm not like, a cancer patient, like, I'm not, I'm fine, like, but I have, I've had, or have, pretty much every basic deficiency. I'm on B 12 right now. I'm on iron. I've always been borderline anemic. I'm actually not right now, I had low sodium at one point, so pretty much, oh, I pass out a lot. I'm just, I tend to be a very passyati kind of person. I have other hormonal issues. I have polycystic ovaries, pretty bad acid reflux, which you wouldn't think would affect my lows, but it means that I pretty much anything medically that happens to me, I just start throwing up, which is not helpful. Yeah.

I mean, I think, I think that's it. I might have to look through my medications and make sure I covered everything.

Scott Benner 5:54
Hold on a second. You're 19 years old. You pass out a lot. You have PCOS, other hormonal issues, acid reflux, A, B, 12 deficiency, your anemic. What else? What's the thing? What's the thing? The with the low blood sugar, called reactive

Maddie 6:10
hypoglycemia. Okay, it's what it sounds like. It's basically, I tend to run low a lot of the time, like before I started paying attention. I I usually lived in the 70s and 80s, just like, all the time, regardless of, like, if I ate, but also if I have something that's really high in simple carbs, my pancreas will be like, Oh, this is awesome. Like, I love carbs. And then I'll spike up way high. For a non diabetic, for my experience, I go up way high, and then I will shoot down low, like way too low. So okay,

Scott Benner 6:44
so blood sugar goes up, your body overreacts, crashes you

Maddie 6:48
low. Yeah, okay, pretty much

Scott Benner 6:50
do your parents have any medical issues?

Maddie 6:53
Not blood sugar wise. I'm trying to think my dad's adopted, so I don't really know, on that side, he's good himself, but I'm sure, like, it would be great to know, like, what the women in his family have. My mom, she's always been, she's been a fainter to, like, again, borderline anemic, like, not quite enough to be like, Oh my God, you're, like, so anemic. Like, we need but just enough to be like, Yeah, that's probably a problem. But it will let it sit, and then it's, it's just like that for her whole

Scott Benner 7:23
life. Okay, so, and what do they do for you? For this,

Maddie 7:26
I wear Dexcom, and that is, like the main thing that helps me. I've been, I've been on a CGM. I started May of 2023, I talked to dietician. Sometimes I had one appointment, and he was like, you should try CGM. And that's kind of how it started. And then, yeah, just kind of, I don't know, I nobody's

Scott Benner 7:48
trying to fix it for you, right? They're just, they're giving you a CGM so you don't fall and hit your head, yeah, to deal with it, yeah. Okay. All right. Hold on. Can we go through some things? Yeah? All right, so because then we'll get back to why you've listened to a podcast about diabetes, so that. Diabetes, so that'll be later, yeah, or how a 19 year old finds a podcast about diabetes. I That's not the point right now. Hold on a second. Let's go through a couple of things. How are your dietary habits? What do you eat? Be real. Like, let's be honest. Okay? Like, so, like, my daughter goes to college. I mean, did you have Panera Bread yet today? Or is that still has to happen?

Maddie 8:23
That's so embarrassing. That's what I had for dinner. Of course. Yeah. And I

Scott Benner 8:27
understand what's happening to you. Don't worry. But I mean, like, are you taking vitamins? Don't lie. I know you're not. Maddie, just say I'm not. Yeah,

Maddie 8:35
yeah, I'm not. I'm taking, I'm taking what my doctors tell me, I take iron and stuff like that. But I don't, I don't go out of my way.

Scott Benner 8:43
Do you know about I don't go out of my way to like, you know, try to supplement myself, but that's fine. Hold on a second. Oh God, this is Maddie. At any point during this conversation, if it feels like this is very personal, it's probably just some of my frustration with Arden coming out at you. So don't worry about No,

Maddie 9:01
I'm very frustrating. I get it.

Scott Benner 9:05
Do you try to name your episode? I'm very frustrating. That's wonderful. All right. So listen, is it fair to say, in the course of a month, how many times do you eat a fresh vegetable?

Maddie 9:17
Well, I'll say I'm pretty good about that. I like, like, a little tomato, a little bag of cherry tomatoes as a snack. Okay, I'll mess with that. That's

Scott Benner 9:27
what we're calling, that's what we're calling fresh vegetables with tomato. Well, I

Maddie 9:31
know it's technically a fruit, but like, No, I'm

Scott Benner 9:33
saying, like, like, you're saying that there's been a couple of tomatoes on your salad, and you don't push them aside to get to the croutons. This is true. Yes, okay, all right, so, but you haven't had broccoli in the last, I don't know, four weeks?

Maddie 9:46
No, probably not. I like broccoli, but no. Okay, and when

Scott Benner 9:50
you have a salad, does it have, like, bacon bits on it and oil? Actually,

Maddie 9:53
no, I my go to salad is a Greek salad, but with no olives, so it's probably not. Really a Greek salad. I like all the stuff except olives,

Scott Benner 10:02
so a ham and cheese sandwich without the bread, is that? What you're saying? My

Maddie 10:06
sister is worse than me. I don't know why she don't

Scott Benner 10:10
move the goalposts. Maddie, you've got a whole life.

Maddie 10:13
I need you to get this. My sister eats pizza without sauce, so just know that I'm the normal one right now.

Scott Benner 10:18
But what's on a Greek salad? Feta cheese

Maddie 10:21
lettuce. Obviously, I usually go pretty heavy on the feta tomatoes. Cheese

Scott Benner 10:26
tomatoes, is there like, like, ham or any kind of meat in it?

Maddie 10:30
That's one of my less proteiny meals. Yeah. Okay,

Scott Benner 10:34
so basically, it's cheese and lettuce. Is that what we're talking about? And

Maddie 10:39
you got onions and tomatoes, and I don't know what they're called, the yellow pepper things that tanara puts on them.

Scott Benner 10:47
Okay, well, let's just call them banana peppers. Yeah, sure, okay, and then okay, and you'll have one of those salads. How frequently?

Maddie 10:57
That's a more that's a more frequent meal for me. I'd say, like, once or twice a week. Okay, so like, you

Scott Benner 11:04
got up this morning. What did you eat? I

Maddie 11:06
was stressed about my presentation, so I did not eat, which actually is a very interesting part about my blood sugar that I would like say, go ahead. I don't know that that was not meant to be aggressive. I'm gonna say this now.

Scott Benner 11:20
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Maddie 13:43
Yeah. So one thing that my endos say is, like, Are you skipping meals? And like, I will be so for real with you. I'm 19. Yes, it happens that being said, when I go extended periods without eating, my blood sugar looks like I am the healthiest person in the world. It is a flat line. It looks beautiful. It is the moment that food is thrown into the equation that makes things get absolutely insane. Like, I won't go low from not eating, I will go low from eating, which is kind of the scary part to me.

Scott Benner 14:16
I'm assuming that's part of what the reactive hype is in reactive hypoglycemia. Yeah, yeah, exactly. Okay, so we'll dig into that a little more. You and I, we you and I might end up on chatgpt or Google or something together in a second. But like, because, again, I mean, not a doctor, but so although it doesn't sound like doctors are helping you, how long have you had an acid reflux for?

Maddie 14:39
So I don't know, because I didn't really, as a kid, like I thought it was, like everyone just had burning a lot in their throat, like, I did not realize that that was an abnormal thing. I'm sorry. I'm gonna I just thought it was like that for everyone. Yeah, so since you were little, you've had it. I don't know if I. Was little, but I my first memories of having it, I would say it's a hurricane. I'm trying to think which one. That's how I measure my time in Florida is hurricane.

Scott Benner 15:10
Are you on a proton pump inhibitor? Now

Maddie 15:15
I'm actually not, no. So you have reflux. Oh, wait, no, no. Is that like? Is that, like, um, like,

Scott Benner 15:21
Tums or but something over, but something, yeah, prescribed.

Maddie 15:25
I am okay, oh, sorry. No, don't

Scott Benner 15:26
be sorry. It's a who? Why would they call them that?

Maddie 15:29
I don't know, because that I'm for context. I'm a biomed engineering major, so, like, I kind of know a little bit, but, like, that's a weird name for that. I did not make, but yeah, I'm on, I always say lanzoprazil, but it's like omnipodrazole, yeah.

Scott Benner 15:45
But just for your edification, a proton pump inhibitor. Inhibitor is a medication that, like, reduces the production of stomach acid, yeah, okay. Are you on one of those, like, daily? Yes, okay, and that helps?

Maddie 16:00
Yeah, it's actually weird. I've it's been worse lately because I started the B 12 injections very recently, and that kind of messed with it, but it's calmed down again. But, yeah, I started that around 16, so I guess three years.

Scott Benner 16:15
Okay, so you've been on it for how long? Say that again? I'd say, I think three years, three years, you know, some of the long term risks of being on that include vitamin B 12 deficiency.

Maddie 16:27
I do. And it's actually funny, because no one mentioned that to you. Nobody's

Scott Benner 16:32
gonna tell you anything. Like, even when it

Maddie 16:34
came back, you know, like, I came back, God, I can't remember the normal range, but I was quite low. I think it was like, We want you to be at the minimum 300 I was at like, 80. It was quite like, it was low enough for my doctor to be like, okay, injections. Pick these up tonight. I looked it up, and I was like, Damn, that would have been nice now. Like, yeah. Also,

Scott Benner 16:56
like, it's not, I think it can block the absorption of iron too.

Maddie 17:01
I'm sure I can. So

Scott Benner 17:02
when did you start your iron issue?

Maddie 17:04
I've always had issues. I've always like, I remember when I was in middle school I started, I would just black out randomly and

Scott Benner 17:13
ebbs and flows. Have you ever had an iron infusion?

Maddie 17:16
I actually haven't. And I made a post on the Facebook because I was just I was so frustrated, my ferritin came back at like,

Scott Benner 17:23
I think four. No, you need an iron infusion. Yes.

Maddie 17:27
And you commented that, did

Scott Benner 17:29
I was I there? Look at me. I'm a man of the people. No, you were Maddie. I'm everywhere and I'm nowhere. At the same time I like the shadow. Now you can't have a ferritin level four and expect to live a reasonable life, you're not absorbing all right? Listen, I am not a doctor. Maddie, this is not advice, okay? But I don't think you're absorbing your nutrients, and you're probably not taking in that many to begin with. So if you're having an absorption problem, which is a thing that I live with my whole life, right? Then you get deficient in the your anemic. It makes you pass out. So the anemia, let's put the passing out on the anemia. Okay, and you're taking iron supplements, but your body's pro not absorbing them, and even if they could, bringing up a four ferritin with a freaking iron supplement, you're gonna, like, you're gonna not be able to hit before you're gonna get your ferritin higher. Like, are you constipated with these things? I'm sorry, I'm asking you, surprising. No, no, no, um, that's okay. Surprisingly, no, okay. Also, I think there's something else you have going on that could cause diarrhea. So maybe they're balancing each other out. The proton pump inhibitors could make you, give you diarrhea or constipation, nausea, stomach pain, gas, dizziness, headaches. You got any of that

Maddie 18:49
dizziness and headaches, but like, it's one of those things, and that's honestly part of why I started listening to the podcast, is I have so many things that make me exhausted and pass out and confused and disoriented, etc. That like, I have to have, like, spidey senses to know, like, am I low What did I eat today? Is it a bad blood pressure? Oh, yeah, I have low blood pressure too. Forgot about that one.

Scott Benner 19:17
Well, yeah, but that could come with the anemia. Yeah, yeah.

Maddie 19:21
It's like, I have to have bitey senses to know what exact problem in this moment is making me feel terrible. And honestly, I've gotten better at it like I feel like, for a college kid, I am more aware of my body than I would expect myself to be. Okay,

Scott Benner 19:40
but we don't want this for you. No, it's not great. It's not great. Are you? Do you drink enough liquids water for a

Maddie 19:47
normal person? Yeah, for Florida, probably not. I'm also, right now, I'm outside a lot. I'm in marching band, and so definitely not enough for that marching

Scott Benner 19:57
band. You're like, you know what? We need? Let's give the pass out girl a baton and see what happens. All right, listen, low blood pressure in you, right? Could be linked to several of your conditions. I am. So here's what I'm doing while I'm talking to you at the same time. So I've gone into chat GPT, and I've told it about you, right? And as your have, you never done this, actually,

Maddie 20:19
no, well, I've done it with my Snapchat, AI, but it just told me, man, you need to take better care of yourself. And I was like,

Scott Benner 20:26
okay, Jesus, all right, hold on a second, B 12. Deficiency and anemia, both can lead to fatigue and weakness. We know that they can also cause low blood pressure. The body may not have enough red blood cells or oxygen to adequately maintain your pressure. I'm gonna say right off the bat, if you go to your doctor and say, Hey, Jack up my iron. I want an iron infusion, right? I think most of this goes away for you. Now, the problem's gonna be is that if you can't get in these nutrients that you need through food, it's gonna come back again. Yeah, and if you're having a problem with your digestion somehow. So that's what was happening with me. And I know what happened to me isn't necessarily what happened to you, but I'm hearing a lot of me and you okay? So if I started taking a GLP Med, which slowed down my digestion, and now I'm absorbing my nutrients better, wow, right? Is there any chance, I can't believe we're we're rooting for this. Is there any chance that you're overweight and you could get a GLP medication to try? Actually, I'm

Maddie 21:26
not, damn. I

Scott Benner 21:28
mean, good for you. So I'm not. No, no, it's okay, like, but now I'm not saying that would, actually would do it for you. I'm just it's what happened for me. You need to find a way for your nutrients to get absorbed. Which is which, in my mind, is what's not happening for you. So the stomach acids been, like, six years or no, it's been your whole life, acid

Maddie 21:51
reflux, I'm not really sure, but I've always my first reaction to everything has been puking, like, since I was a kid. Like, if I was allergic to something, I would be throwing up all night, like, like, an excessive amount of just like any minor problem, even if it had nothing to do with my stomach, I would immediately start

Scott Benner 22:09
vomiting. But the burning in your throat, you remember from being a kid too, yeah, I'd

Unknown Speaker 22:13
say probably, like

Scott Benner 22:16
1011 so for most of your life, or half of your life you've had too much stomach acid. It's probably messing up your digestion. How does hold on? Here's our question, ready? How does acid reflux? I can't believe you haven't tried this yet. You're 19. Reflux.

Maddie 22:39
Impact,

Scott Benner 22:42
B 12 and acid reflux and this treatment of medications, but yeah, we know the proton pump inhibitor stops it. Stomach acid is crucial for breaking down food and making certain nutrients bioavailable, particularly with B 12 and iron. Stomach acid helps release it from the proteins in the food than a protein called in Jesus. What does that intrinsic factor produce in the stomach binds to the B 12, allowing it to be absorbed in the small intestine. Certain Iron Stomach acid is also important for converting dietary iron, especially non heme iron, from plant sources, into a form that can be absorbed in the intestine. So if you're okay, so for someone like a 19 year old with existing B 12 deficiencies in anemia, low blood pressure, long term use of proton pump inhibitors can worsen the nutrient deficiencies, further aggravating symptoms like fatigue, dizziness and fainting. That tracks. Yeah, that sounds like what's happening to you. So, because listen, if you're gonna wait for a doctor to fix this for you, Maddie, you might as well go throw yourself into one of those Gator infested puddles along the side of the road. Okay? Because that's not gonna happen, right? You need, I think, is, an iron infusion, right? Because you're gonna get your energy back. You're going to get your iron up. You're going to etc. You're taking B 12 Hal like orally, or they give it to you in the juice. They juice you up in the veins. They juice me up. Okay, so let's get them to juice you up with the B 12 and the iron. Get everything up where it belongs. Try to stop the proton pump inhibitor for a little while, and then eat very well to see if your body can keep absorbing the nutrients from the food. And maybe, maybe, maybe you get lucky and it

Maddie 24:37
doesn't come back. Yeah, I'm with you. I'm totally with you. Maddie,

Scott Benner 24:42
back to how you eat like a like a monster for a second. Okay, has this been your whole life? What do you mean? I mean, if you had more Doritos or asparagus in your life, probably Doritos, okay. Do you think of yourself as a healthy eater?

Maddie 24:59
No, I. Why I think I think deep down, I think I'm healthier than I think I am. But that's

Scott Benner 25:06
the funniest thing anyone's ever gonna say to me. I don't even know what that means. Can we parse that sentence deep down, I think I'm a healthy, healthier eater than I think I healthier eater, eater. What did you say? I say it again.

Maddie 25:20
Okay, so I feel like there's two levels of thinking. It's like, My my, like, go ahead. Okay, okay, hear me out here. I'm an engineering major. This is for engineering right now. I feel like I have the, the like, primary brain that, like, says stuff that comes out of my mouth, but then, if I like, if, if I think deeper, there's, like, the deeper part of my brain, and like, in the primary part, I'm like, Oh no, I eat like crap. I'm 19, but I think I try my best. And considering that, like being so for real, I have no energy to cook all the time. If I'm given the choice between go and take a nap or eat and not feel hungry anymore, I will choose take a nap because I'm tired all the time.

Scott Benner 26:03
Well, listen, there's no doubt I have felt the way you feel. It's horrible. Has it changed your personality yet? I think so. Yeah. Like, are you harder to get along with? Or, like, have a shorter fuse, or anything like that. Yeah, yeah. To be

Maddie 26:18
candid with you, I do. I have diagnosed depression anxiety, too. But I think the depression, it's it's hard, because I I've been in a place where I it was not my, like, physical health, it was my mental health. That was like, I was so severely depressed I couldn't get out of bed. And I think since coming to college and just functioning as an adult for the first time, I have gotten to places with my health a few times now where, like, I have the fatigue part and not the mental part, and the the cognitive dissonance of that. It's a lot. It's a lot.

Scott Benner 26:54
Hey, how long? How old were you when you felt depressed the first time? Or anxiety,

Maddie 26:57
anxiety, I want to say, like middle school depression when I was 15, it was I remember, like very much, when it started.

Scott Benner 27:07
Okay, we're gonna read the Internet together. Several of your health issues, such as B 12, deficiency anemia, reactive hypoglycemia, hormonal imbalances and even acid reflux, can contribute to or exacerbate depression and anxiety. And here's how each of them may do that. B 12 is crucial for brain health, and deficiency can affect mood and cognitive function. Low levels are linked to symptoms of depression, confusion, memory problems and anxiety. B 12 is involved in producing neurotransmitters like serotonin and dopamine, which regulate mood. A lack of B 12 may result in reduced production of these chemicals leading to mood changes. Anemia, iron deficiency and fertile levels, anemia leads to fatigue and reduced oxygen flow to the brain, which can cause cognitive impairment, low energy and mood swings. Many people with anemia experience feelings of depression and irritability due to constant fatigue and weakness. Low fertile levels can also lead to brain fog and feelings of being mentally drained, which can contribute to anxiety and depression. Depressive symptoms so far, this is you, oh, yeah, yeah. Fluctuating blood sugars levels can cause rapid changes in mood and energy, and low blood sugar or hypoglycemia can lead to anxiety, irritability and even panic like symptoms, when the body experiences a drop in glucose, the brain perceives it as a stressor, triggering and releasing stress hormones like adrenaline, which can make someone feel jittery or anxious. That tracks, oh, yeah, PCOS can cause significant hormonal disruptions, especially with estrogen, progesterone and testosterone, which can impact mood regulation. Many women with PCOS experience higher rates of anxiety and depression, possibly due to both the hormonal imbalances and the stress of dealing with physical symptoms like your regular periods, acne and weight gain. Do you have your regular periods or acne?

Maddie 28:51
Oh yeah, acne, not as bad, but yeah, my period since obviously, that's another thing. It screws up my blood sugar. It screws up me emotionally. It I used to miss school. Like, since I was like 13, I would miss way more school. I'm

Scott Benner 29:08
not suggesting this. I'm asking, have you taken the pill for this? Yes, are you down?

Maddie 29:13
I've been on it for a couple years. It helps. Yeah, actually, this is what a time to be recording this. I'm getting my IUD in on Friday. Oh,

Unknown Speaker 29:21
congratulations, but yeah,

Maddie 29:25
that's gonna be fun. Tara,

Scott Benner 29:27
will you have a party? Or is that different? I don't understand exactly. Will you and your friends get together and celebrate?

Maddie 29:33
My mom said she'll come pick me up if I want her to. So, I mean, you know, oh,

Scott Benner 29:38
after the Oh, are she making you walk to it? No, no,

Maddie 29:41
no, no. She was like, I'll come and because she just got hers changed, like last month, and she was like, Oh yeah, once you haven't had kids for 15 years, that's a lot worse. So she was like, I'll drive you everywhere.

Scott Benner 29:53
Do you think it's possible that your mom is hearing this right now and thinking, oh good, yeah, go on a podcast and tell people about my IUD. 300%

Maddie 30:01
I don't think I ever told her that I was recording this, but I have to say, Good, all of us. I think I'm definitely the most straightforward in my family. But like, I don't think any of us really have anything to hide. Cool, no, excellent.

Scott Benner 30:13
All right, hold on. We're gonna keep going. Acid reflux and digestive issues. Chronic discomfort from acid reflux can lead to stress, anxiety, sleep disturbances, which could worsen your mood. The ongoing discomfort and dietary restrictions associated with acid reflux can impact mental well being. Do you find yourself eating things you know won't upset your stomach,

Maddie 30:33
not really okay? The medicine takes care of that, and it's very much something that I think about now, of like, I'm not going to have the crutch of like, medicine that makes it go away forever, because the studies that come out, and I haven't looked into it too much, because I am in this thing called College that takes up most of my capacity, I know that they are not the greatest thing to be taking for your entire life, so I do think about it, but okay, I Don't really act on it. People

Scott Benner 31:01
with digestive issues sometimes experience gut brain connection, where the chronic gut problems like reflux may contribute to emotional distress, and then the low blood pressure can cause fatigue, dizziness, fainting. Again, these can make you feel helpless and anxious. Now here's the question, what if she got a iron and B 12 infusion stopped thing

Maddie 31:28
or, like, What the hell is wrong with her blood sugar? Don't even worry. I had this just with

Scott Benner 31:32
that too. Hold on, yeah, well, you haven't gotten to that yet. Really stop the PPI. And so what would we do? We jack up your iron, we jack up your B 12. We take away the proton pump inhibitor and use an additive digestive enzyme

Unknown Speaker 31:55
at meals. Let's

Scott Benner 31:56
see if it can put all these twos and twos together and come up with

Maddie 31:59
four. It's like, it's, it's one interconnected web of just like, being tired and feeling awful, but they don't quite connect. There's like, a like, there's one weird piece, no,

Scott Benner 32:10
no. It feels like, it feels like you're like, it feels like I knocked you over and I'm squirting a fire hose at you, and you're like, uh. And when you roll away from the fire hose. Someone squirt you from another fire hose from the other side. Like, no, stay there, and then they start throwing sandbags on top of you. And you know what I mean? Like, you know, you're just like, I have this wrong with me, this wrong with me, this wrong with me. I'm always tired, my foggy, I'm passing out. I'm blah, blah, blah. Like, I just think that it's possible. And this is based completely on, and I want to be very clear, because you're 19, I barely got through high school. Do you understand I am not I have no no no training in this whatsoever. I just have a lot of conversations with people, and I have my own problems. And as I'm like, and maybe I'm wrong, I could be 1,000,000% wrong, but the way you feel, could easily have to do like, like, you're like, Oh, I pass out all the time. But what if, like, your irons just so low? Like, look, my iron was once my Fert was once nine, and I bent down to pick something up in my kitchen and almost fell on my head. Like, seriously, right? And then I literally was two weeks away from a doctor's appointment where they were going to give me an infusion. But I couldn't wait that long, so I just went to the emergency room, and I was like, Look, I'm going to die before I get to this infusion. They gave me a little bit of it. It changed my life. Then they gave me the rest of it at the the appointment, because you got to go to a hematologist, right? And you go in there and you're like, look, here's all my Jimmy's like, as everything is wrong with me, can you please jack up my my ferritin, right? Please, please, please, please, please, please, because here's what I think is going to happen. And the doctor's going to listen to what you and I have been talking about right now, and they're going to go, Yeah, that's a reasonable thing to consider. Let's do that. And then you're going to say, you know, you're probably at the same infusion center. You can probably go back and get your B 12, get all of your, you know, all your supplementation that's impacting these problems, Jack back up. Now, what's the next problem? You've been on this proton pump inhibitor for six years, so you're not absorbing anything, and they're trying to over like, basically what they're doing is, is they're blocking the absorption of your iron and your B 12 with the proton pump inhibitor. And then they're just going here, take a bunch of supplementary iron and and we'll, we'll inject you with B 12 once in a while. That's not working for you, like you're not dying, but you're not living either. You know what I mean? Yeah. And now, why wait? Good. Say whatever you want to say.

Maddie 34:39
One way that I've described it is, like, you know, those, like, those splash pads, where, like, if you if there's a bunch of little sprinklers, and if a kid, like, steps on one of them, it'll stop spraying, but the other one will go like crazy, higher. It feels like that all the time, like I just, I gotta pick my battles. I. Yeah,

Scott Benner 35:00
I think that that's just going to leave you with a lifetime of Whack a Mole, like, just hitting the thing that's Yeah, and I don't think that's going to be good for you, because I don't think you're going to get anywhere with that. So the reason I brought up the digestive enzyme is then, like, maybe if we ease the the burden on your body of getting your food through you for a while, I wonder if it wouldn't tamp down your stomach acid, and then I don't know how to suggest why my GLP got, oh, why don't we just ask the machine? Why does GLP stop reflux?

Maddie 35:35
So sorry, my cat is playing with a bag, and I don't know how to make him

Scott Benner 35:39
stop. You have a cat at college?

Maddie 35:41
I do. He's my best friend.

Scott Benner 35:44
Oh, that's so sad. I mean, that's so nice. Okay,

Maddie 35:47
okay, okay. Full disclosure, I am a dog person, but this cat like attached himself to me, and he acts enough like a dog where I'm like, Okay, this is fine.

Scott Benner 35:58
I don't understand. Oh, you have an apartment. You're not like, in a dorm. Oh, yeah. Oh, I'm like, how did you get a cat into a dorm? Although my son in his freshman year of college texted us one day and goes, Yo, there's a guy on our floor with a chinchilla.

Maddie 36:15
I think it was a chinchilla. I think my friend's Ra had a secret chinchilla. And I was like, You're literally the one inspecting yourself. Like, how do you have like, what

Scott Benner 36:24
Maddie, do you know what your episode is going to be called?

Maddie 36:28
What secret chinchilla that's amazing. Well, it's

Scott Benner 36:32
so good. Oh, okay. Glps, people are like, Wait, he's 53 and she's 19 or vice versa. GLP, one, medications commonly used for type two diabetes and weight management can help her management can help reduce acid reflux in some people, but here's how slows down the rate in which the stomach empties food into the small intestine. The slower gastric emptying reduces the volume of food and acid in the stomach at any given time, which can lower the pressure on the lower esophageal sphincter. Ooh, that's sexy, the Les and reduce the likelihood of something stomach acid backing up into the esophagus, so it slows down the digestion, which takes the pressure off the sphincter, which leaves that thing stay closed, and then that reduces the idea of the acid backing up into the esophagus. Because, by the way, this is also very important, because you could get something you could get something called Barrett's esophagus, by the way, which is, could be precancerous, I think is pretty Yeah, you don't want esophageal cancer, that's for sure. GLP, medications promote the feeling of fullness, leading to smaller meal sizes, since larger meals are the major trigger for acid reflux. Do you eat a lot of big meals? Yeah, and

Maddie 37:40
it's kind of, it's a self feeding problem, because one thing that will happen is I am so exhausted all the time that I have to kind of delegate all of my energy into a few hours. And so I'll have, like, a couple snacks, and then this big, like, actually decent meal, and then that'll be my day. GLP,

Scott Benner 38:01
medications are often used for weight loss, losing weight especially, right? You don't have a weight issue, though, right? No, does that mess you up eating healthy? Like, are you a thin person? Yeah,

Maddie 38:12
yeah, yeah, I'm thin.

Scott Benner 38:13
So my question is, So Maddie, the reason I'm asking is is, my question is, do you see yourself in the mirror and then think thin, I'm healthy, so how I'm eating must be okay.

Maddie 38:23
No, it's actually, it's a lot. It's, this is a great point that ties back to my blood sugar, because when I look up the issues that I'm having, and even when I go to the doctor, sometimes, even if it's not intentional, the way that they speak to me, the connotation is always you are on a path. You are you are eating terribly, and you need to be perfect all the time, or else you are going to probably get type two, which you know happens, especially with PCOS. It's very much like you're doing a bad job eating, and you are doomed to be an adult who's struggling with their weight and with their eating for the rest of their life. That's kind of the vibe I get, especially when you look up reactive hypoglycemia. You look it up on social media. This is one thing that I found it's a lot of like middle aged women that are like, Do you have a hormonal imbalance? Do you feel like you're fat? Here's my weight loss solution, to balance your hormones and not have reactive hypoglyce Like it's you don't see anyone my age with this issue.

Scott Benner 39:30
You don't see a lot of 19 year girls like, Oh, guess what I have but you have PCOS, see? So the GLP can help with the PCOS too, yeah, but you don't need it, and they don't microdose it yet from doctors in a way that might be helpful, although, have you tried tried Metformin for the PCOS? I haven't

Maddie 39:49
been brought up. No one's no no one's suggested it. But I think one of the concerns is, since I do, my blood sugar just tends to. Run lower. I think one of the concerns is that it would bring it even lower, and then I'd be more kind of teetering on the edge of low all the time. Yeah,

Scott Benner 40:09
so we haven't gotten to that yet. I'm still working through this whole thing. Also, it's hard for me to work through it because I'm an idiot, but I'm trying so like, but what we, what we've learned from the GLP thing, right? Is ways that glps Because we don't. We're not saying, take a GLP. We're saying, How does GLP stop stomach acid? Maybe we can find ways so it looks like smaller meals would be one for you, okay? And then, of course, avoiding some of the foods that you know do that, which we'll get to in a second, but so you can decrease acid production so smaller meals is what I take out of this for you, because you don't need to lose weight. So eating more frequently, smaller meals during the day could help with acid reduction for you. So that we've that we've got, yes, reactive hypoglycemia can be an early indicator for type two diabetes in some individuals, if it's related to insulin if it's related to insulin resistance, and that's

Maddie 41:04
one thing I don't really know. Like, my doctors have never really mentioned it, I need to be more assertive in my appointment that it's like, you know, you know how it is.

Scott Benner 41:16
Like, how would you be more assertive?

Maddie 41:18
I just, I don't know. They, they kind of they come in. Here's my experience with the Endo. And this is maybe getting off topic, but I don't know this is, this will kind of explain why I

Scott Benner 41:27
think we're on topic. Go, you're fine, yeah,

Maddie 41:32
I I come in and I'm like, Hey, I've been having this. They run through my Dexcom, they look at some of my worst days, and they go, this looks bad, but I don't know, maybe, maybe you didn't think or prick enough, maybe it wasn't accurate enough. And they look at my overall trends, and they go, Well, you don't look like you have diabetes. And I'm like, No, I didn't think I had diabetes. And they say, Okay, well, you're a skinny girl. You're probably not eating well, you're probably not eating enough. Eat more and stop partying. You know, that's kind of that's what I get. And I go, Oh, well, I could be doing better, so I guess, yeah, and I don't really fight for myself, because you

Scott Benner 42:15
just 19 year old girl. Are you partying a lot?

Unknown Speaker 42:19
No, okay.

Scott Benner 42:20
They just assume you are because you're in college.

Maddie 42:22
It's just they tell you, you know, eat better. Be good, you know, bad pretty much,

Scott Benner 42:32
you know, yeah, they just say a bunch of shit that's not helpful, yeah, yeah. And they don't really talk it through, okay, yeah, all right, so we've fed a lot of information so far into chat, GPT, and I told it when we started to remember you, so that we could keep talking about it, right? And I can actually, like, I can send this to you when we're done, if you, like, like, every but so I said, Could any of her other issues be the reasons for her reactive hypoglycemia? Says the PCOS is often associated with insulin resistance, which can cause, which can cause the body to overproduce insulin after meals. The overproduction can lead to blood sugar dropping to low after eating. So PCOS, yes, hormonal fluctuations can affect insulin sensitivity. If our hormones are out of balance, her body might struggle to regulate blood sugar. Anemia, while anemia itself doesn't cause reactive hypoglycemia, fatigue and weakness from anemia could mask earlier signs of low blood sugar, making hypoglycemia more noticeable. So it what it what that's saying is poor oxygen circulation due to anemia may also exasperate the feelings of weakness into so you might feel so crappy all the time that it's stopping you from realizing your blood sugar's getting lower to do something about it before it's happening. That's where it's saying anemia could exactly

Maddie 43:47
that, like frame that and quote that. That's why my doctors say, you know you're not going low that often, but when I do, it is catastrophic, and now I can see it. And now someone can be like you need to eat now you're 50, because otherwise I just let through it and it would,

Scott Benner 44:04
you know it, because you always feel crappy, so you don't notice it right away. Yeah,

Maddie 44:08
okay. And then I'm at the point where I'm in public, disoriented, and it's scary. It's really scary. B

Scott Benner 44:16
12 is essential for healthy nerve function and metabolism. Deficiency can lead to nerve dysfunction, which could affect how the body senses or responds to changes in blood sugar levels, possibly making her more vulnerable to hypoglycemia symptoms or slowing her response to them. And then the PPI, the proton pump inhibitors, can reduce the absorption of certain nutrients like magnesium, which play a role in glucose regulation over time, this could contribute to metabolic disturbances, which issues with blood sugar control, though, the link between PPIs and reactive hypoglycemia is less direct, acid reflux and the use of medications might impact nutrient which could Okay. All right, so here's what I think, if you were my kid, you. I would first say thank you for going to a state school. I'd be very excited about

Maddie 45:04
that. Thank you. Oh, yes, it's so much cheaper. Yes, yes.

Scott Benner 45:07
That would be the first thing I would say to and then I would say this, I think we need to get your iron up, your B 12 up, and get you off of this acid reflux medication for a little bit. I don't want you to suffer from acid reflux, and I know there are a lot of reasons, very good reasons, why you want it to stop, but it feels to me like you're 19. Now, when you were 13, they put you on a proton pump inhibitor, right? And most of your problems have started since then.

Maddie 45:41
Is that right? I thought about it like that, like, yeah, yeah.

Scott Benner 45:43
Because prior to 13, were you passing out? Prior to 13? No, okay, did you have and

Maddie 45:50
to clarify, I I had acid reflux. I didn't really start. I started a PBI. I think 15 or 16. Okay,

Scott Benner 45:58
all right, so about three. Okay, so let's, let's. So let's timetable this for Mr. Don't worry about the exact date. Let's just think about what came first. Yeah, so what came first? What was your first problem, period, growing

Maddie 46:11
up and stuff. So I think in hindsight, I would say probably the acid reflux.

Scott Benner 46:16
Okay, so acid reflux comes first. When do you start getting your period? 13. Are they bad? Right away. Yes. Okay. So then you start losing iron from the from the heavy bleeding, right? Okay, so now the iron starts to go away as the heavy bleeding happens, but it takes them three years to put you on the proton pump inhibitor. By then, your iron super low. The proton pump inhibitor takes away the acid, but it's also blocking you from reabsorbing any iron and what else. When does the passing out start around, when

Maddie 46:59
I got my first round, when

Scott Benner 47:01
you got your first period, has it gotten worse, better or stayed the same?

Maddie 47:05
I don't know. I It's always, it's all, it's ebbs and flows. I mean, sometimes I'll have a month where, you know, a few times a day I'm if I stand too fast, I gotta sit back down. I don't usually have a grand. I'd say a grand passing out episode is probably, like, once or twice a year.

Scott Benner 47:24
And is that from low blood sugar, or is it from like, like, low energy,

Maddie 47:30
all of them, it depends. All right.

Scott Benner 47:35
Okay, so what came first the chicken or the egg? What came first was the tough period, the acid reflux, the tough periods, kind of come at the same time your iron probably gets low from the bleeding. You can't reabsorb it, because it's just, it's just listen, between you and me, taking an iron supplement a day is not going to build you back up from a four ferritin like it just, it's going to take for ever. Okay, so yeah, and then you just bleed again. It doesn't matter, you know what? I mean, you're like, I gotta let and it's gone. So, yeah, okay, so the PCOS is the crux of a lot of your issues, right? Because that's a hormonal disorder that can cause insulin resistance, irregular periods, metabolic issues, hormonal imbalances, are probably related to the PCOS. Anemia is probably related to the bleeding, and then you can't get back from it because of the bleeding. And the proton pump inhibitor, the B 12 is probably the proton pump inhibitor. When's the first time they started giving you b 12? When did they notice that I was

Maddie 48:36
never tested for it until I kind of had a breaking point recently, like a few months ago, I had a lot happened last semester, my spring semester wild. And so I came in and I was like, I don't know if I'm depressed or if I'm just exhausted, but something needs to happen. Some change needs to happen. And so she was like, Okay, well, up your antidepressants, and that helped a little bit. And she was like, I also, when I do this, I want to test for deficiencies. That's when she saw my ferritin was low, and it's been low before, just no one did anything about it. And she was like, Okay, let's start working on that. And then after that, after we started on that, she was like, I also want to check your B 12. And so she checked my B 12, so I started injections for that a month ago, like,

Scott Benner 49:21
okay, not, they didn't talk about the iron at that time. You can get her to give you iron. What kind of doctor is she?

Maddie 49:27
It's actually the college is student health care. She's a,

Scott Benner 49:31
I think, a PA. Dear God, no, we need to get you to a to a physician. Okay, hold on a second. Not that nice lady that works at the Okay, all right, hold on a second. Do you eat a lot of spicy food or other things that can cause because I'm trying to think about how also, by the way, you can't just, like dead stop a PPA, I think you have to go off them gradually. So be careful about that. Okay, yeah, yeah. But, but, do you eat a lot of spicy foods or anything like that? Yeah? Spicy,

Maddie 50:00
not really acidic, yes, although, honestly, this is not. People do not believe me when I say this. I used to be like a coffee addict, and college has actually weaned me off. I have a lot less coffee and soda than I used to, because

Scott Benner 50:13
we want you off of spicy foods, caffeine, citrus, chocolate, alcohol, fatty or fried foods.

Maddie 50:19
Yeah. Can you do that? The best a college student can,

Scott Benner 50:22
Maddie, here's what I really I do try. Here's our plan, yeah, iron infusions. Keep up with the B 12 infusions. Get off the PPI. Avoid spicy foods, caffeine, citrus, chocolate, alcohol, fatty and fried foods. Use a digestive enzyme at your meals, which you can buy over the counter to help, like, get your digestion, like, rolling, um, get your magnesium built back up, and see if you don't feel better in a month after doing that, which I definitely think you could do. I also might use, you know what slippery elm is? I don't, all right, it's just an over the counter, like, like, you know, it's like a crunchy supplement kind of a thing, but it kind of coats your insides, your esophagus, your stomach, that whole lining it'll help your eye, your poop is, how do you Oh, my God, I'm so sorry. Maddie, how do your poops come out? Are they messy, or are they nice? Informed that, okay,

Maddie 51:17
this is one thing I'm very proud of. I have so many stomach issues with like, growing up, my poop has always been wonderful, regular, good, texture, wonderful, all right,

Scott Benner 51:27
good, good, but it this slippery elm with a could help coat your insides, you know, coat your esophagus, your stomach lining to protect you from acid while we're figuring out if we can eliminate your acid some different way, because I think in my heart, again, if you were my kid, I think that the proton pump inhibitor is causing a lot of your other problems. I believe that, and then we need to impact your PCOS somehow. Maybe the PCOS is the founder of the feast in the beginning. You

know what I mean? Yeah, yeah, yeah, I'm

with so now that's a bigger problem, because modern medicine doesn't seem to give a about women who suffer with PCOS. No, it doesn't.

Maddie 52:07
Yeah. Same thing with women who have deficiencies and pass out. It's like, Damn, you don't eat that well. And, you know, yeah,

Scott Benner 52:15
I hear you a lot of times. They're just like, if you Has anyone said to you yet? Like, Oh, you might grow out of this. Christ, no one said that yet? No, no, no, no, no, a lot. Oh, they say it a lot. Yeah, that's a very common thing to say to women about hormonal stuff, like, oh, or this could change after you have a baby. Has anyone said that to you yet?

Maddie 52:33
Yes, no. My favorite was my endo was like, Yeah, this, this hypoglycemia, like you're having episodes, like we would usually see in a kid, but you're not a kid anymore. You're 18 now, and that's weird. Okay,

Scott Benner 52:47
that was it. Good luck. I hope you don't die. Would you be willing to try inaccetal inactivel At first, I'm gonna send you a link to something on Amazon. This is ridiculous. I can't believe this is what we're doing on a podcast, but okay, I only have your text on my burner phone that's not connected to what I'm googling. Give me a second. And also, no offense to anybody who thinks they have my phone number

Maddie 53:10
but you don't. I was gonna, I was gonna hit you up. You

Scott Benner 53:14
definitely can. I will not answer. Love it. No, that's not true. I might answer the doctors

Maddie 53:19
aren't going to do it. And this isn't even a hate on doctors. They don't have enough time. They got

Scott Benner 53:25
more time than you think. Let's see. I'm sure I'm tired of that excuse. All right, so I just texted you something called avacitol. Okay? It's a powder you can buy over online. It's a little expensive. I'm not gonna lie to you, can look at other versions of it if you want, but this is the one that my daughter used you take. I think you start with like again, read the instructions, okay? But it's another thing you're not going to get a lot of instruction from. So here's what my daughter's endocrinologist told us. Tart, start with two scoops a day. If you get diarrhea, try a scoop and a half. If it doesn't go away, go down to a scoop. Okay, so you're gonna want to read about it. Okay, and don't just take it, because I told you, obviously, but I want you to look at it all right. A lot of women have a lot of luck with PCOS symptoms being curbed with this stuff. Seriously, like you'll you will see people online say, I couldn't have a baby, I started taking this and I got pregnant. Okay, so give it a shot if you want see how that goes to curb your hormonal issues, get your doctor to give you an iron infusion. Tell them that you have heard that a 70 ferritin is the absolute bare minimum for a woman of menstruating age, okay, yes, okay. Tell them that, because they're gonna say that you know 30s, okay, or 20s, okay. Tell them, yeah, you you try living my life like that. I want you to Jack my iron up so that we can see what's gonna happen. I want my iron. Jacked up. I want my ferritin higher. I want you to keep going with the B 12. I'm going to take ovacetol for my PCOS. And I'm also going to make these changes to my eating, right? Yeah, and I, and I'd like to be taken off the proton pump inhibitor so that I can start absorbing my nutrients through my food. And then you're going to take a vitamin every day. Maddie, I don't care that you're in college or that you're 19 or that it's not fun. This is me talking to Arden, not to you, so don't take this, like, the wrong way. Okay, all right, and I think you're a different person in two months, if we do all this stuff, I think you're naming a baby after me. One day, one day, I get a text and it's like, Hey, I know this is your burner phone, but it's Maddie. And here's a picture of little Scott. Okay, I married. I'm 29 and blah, blah, blah. Oh, wow, wow. Yeah. Okay, all right. Also, no reason to have a baby that early. Do whatever you want, though. Now we want to find you a nice multivitamin. Okay, to be taking. There's a lot of good ones. I'm gonna trust you to do that on your own. Don't buy it at the grocery store, okay, get something made by a nice company and take it every day the amount you're supposed to not if it says take two, I took one that none of that. Okay? Every day a multivitamin. You're going to let your body absorb those nutrients. That way. You're going to grow and learn to eat better as you get older, and you're going to get out of college where they're not being assaulted all the time, where a world where Panera bride is considered high eaten, okay, like so. And any of you who are listening, Panera Bright is not good for you. I know they sell salads that doesn't make it healthy, and if Panera Bread is listening, don't sue. I'm sure your stuff is great for people. And if

Maddie 56:39
they if they are listening, give me a gift card, because I will disregard

Scott Benner 56:43
right away and I'm broke. Listen, I'm sure there's a way to eat well, there like but that big cookie that looks like a pumpkin with that sugar on top is probably not part of it. And you know, you're washing your salad down with that cookie. So what are we arguing about right now?

Maddie 56:58
Anyway, I love Panera. I'm very passionate about Panera.

Scott Benner 57:03
I'm very passionate about Panera. Also, what else you guys love? Chick fil A

Maddie 57:09
I feel like I'm like, I'm being roasted right now. Yes,

Scott Benner 57:13
yes. This is usually when Arden goes. I feel attacked. So, okay, so you know what we're doing, or do I need to write it down for you?

Maddie 57:21
No, no, I get the plan. No, I'm with it.

Scott Benner 57:24
Okay, tell your mom. First of all, say, Mom, I need, here's what I figured out. And hold on a second. I need this entire conversation repackaged to share with a 19 year old,

Maddie 57:43
including a path of action.

Scott Benner 57:52
Also this stuff's either going to take over the world or save us. I'm not sure which yet.

Maddie 57:56
Yeah, I, I think take over the world. But it's great. It's great. Well, it hasn't.

Scott Benner 58:02
The first time I did this, I use chatgpt, and I talk to it because I'm not good with the typing. And so I'll be like, Hey, I'd like to have a conversation right now about my health issues. And then I tell it as much about it as I can remember about myself. And then I started saying that this happens to me. What do you think? And like, I'm not saying it's right, but it does hold all the ideas and then keep them in mind when it's answering. I think I've heard, I think I heard Mark Cuban recently say, think of AI as, like, a really smart friend who remembers everything you've spoken about when it answers yes. And I think that's how I feel about it, mostly not that it's always right, or that it can't make mistakes, or, you know, call the wrong thing, sometimes it gets confused, etc. It is putting out a an absolutely like a plan for you right now. Okay, that's wonderful. Give this to me so I can share it

Maddie 59:04
all right. What else? Why did you come on the pie? How

Scott Benner 59:07
the hell did you find the podcast? I

Maddie 59:09
actually remember it very well, like the exact sequence of events. About a year ago, I was in fall semester of college. I'm in marching band, which is, I love it, but it's a bunch of standing around, and sometimes adrenaline. And, you know, it's, it was wonderful for my blood sugar. It was really, it wasn't that sarcasm. And I was having lows, and I have always been fatigued, and so I just sleep through them. And so I would wake up with 70,000 Dexcom alerts, and I was struggling. I was like, I don't know how to fix this. I am like, deep in this hole, and I don't I have no one to talk to about this. I now have friends that are type one, but at the time, I didn't, and I was like, I don't know what to do. And if I you. If I go online, it's advice for this is not a nice way to put it, but it's advice for moms that think they're fat, that have hormone issues. It was so frustrating. And so I looked up everything until I went crazy. And eventually I was like, I don't know how to deal with my lows, and I feel so alone. And so I started listening to the podcast. I looked up low blood sugar, and I found episodes of this. And even though, you know, I'm not taking insulin, I'm not on a pump, I'm very interested in that part of it, and the part of it about management and just kind of the rawness of like this podcast does not expect me to be a perfect person this, by the way, you should like, pay me like, this is an ad

Scott Benner 1:00:43
right now. Hey, it's an ad to people who are already listening. What are you talking about? You got to go find people. Hey. But, I mean, I think your generation is confused, all right, I can't pay you for telling people who already like the podcast. To like the podcast, I'm being nice about

Maddie 1:01:03
something very good.

Unknown Speaker 1:01:07
I don't even know what you're saying. Seriously,

Maddie 1:01:08
I had no one to talk to about my lows, and it is very isolating. You know, no one. It's like, Oh, I know when I don't eat and I get shaky. And I'm like, That's very sweet, but no, you don't. You don't. It's

Scott Benner 1:01:24
not the same as what's happening to you. Are you saying that? Basically, you're like, look, I have a real problem here, and while this podcast probably can't fix it, at least I'll be surrounded by understanding people while I'm listening. Yes, yeah, yes. And you can feel a little comforted and not alone, and find a sense of community, even though this isn't really your community, but it's as close as you can find.

Maddie 1:01:48
Yeah, and through that, I have found, I actually found another girl my age, a little bit younger, that has it via social media and talking about dexcoms and stuff.

Scott Benner 1:01:59
Oh, wow, that's great.

Maddie 1:02:01
I honestly, I don't listen to the podcast as much anymore. It kind of served the purpose that it needed. For me. I

Scott Benner 1:02:07
completely understand the Facebook group, though. Oh

Maddie 1:02:10
my God, I am on a thing constantly.

Scott Benner 1:02:13
Excellent. That's awesome. That's great. Yeah, I don't think it can't be all things to all people, but I think that when you need it and it's there, it's pretty awesome. Yeah. Okay, I just had chatgpt Send me a document, which I forwarded to you. Okay, but between you and I, again, I think this is a fairly straightforward event. This is slowly getting off the proton pump inhibitor. This is you getting an iron infusion, not iron supplements. And do you know how to tell the doctor about that? It's it's going to take forever. I have heavy periods. Any gains that I make are wiped out by the period next month. I really need to get my iron up so that I can feel better. I think it's going to clear up my anxiety, maybe even some of my depression. It's going to help me with energy, mental focus. I think that's going to help me to be able to eat better, because I'll have more time, which I think will impact my my acid reflux. Here's my plan for foods I'm going to avoid with my acid you know, to help with the acid reflux, I'm also going to add a digestive enzyme to my meals to help my digestion go a little smoother in the beginning. I'm hoping to get off of that. I'm hoping I don't have to use that forever. I'm going to use some sort of an acetal to try to address my PCOS symptoms, which I think will help balance out my hormones, which I think will make my periods better, which I think will lessen my bleeding, which will help me keep up my iron but until then, I might need these iron infusions every six months till I get all this together. If you say that to a doctor and they don't understand or disagree with you go, you don't know what you're talking about, and then go to the next person, okay, but I think you want to have this conversation, probably with your endocrinologist, but you're going to end up needing a hematologist to give you the iron infusion. Okay, yeah, yeah. Don't not do this.

Maddie 1:04:01
No, and I definitely, I that's something I'm working on this year. I think my freshman year of college in a lot of ways, but part of it was my health. I had to survive. And I'm working on fighting for myself. You

Scott Benner 1:04:15
know, I understand the problem is that there's too much going on to do this thing. But this is, this is you putting on your air mask before you sit you look to the person next to you. Okay, yeah. Like, if you do these things, your life gets I'm going to tell you right now, just the iron infusion in the short term will change your life. Okay, no, no, no, please. You will be a different person. And the reason that I have no trouble spending all this time talking to you about this on a diabetes podcast with a person who doesn't have diabetes, etc, and then people are going to say, oh, Scott, you never talk about diabetes. But yes, I do. The reason is, is because this thing that is happening to you, I see overwhelmingly happen to people in an autoimmune community to begin with. So this is going to help a lot of people. And by the way, a lot of ladies get horrible periods that nobody helped. Them with and then they have all these other things, and then they just think they're just tired. You know what I mean? Oh, I'm tired because I have kids. I'm tired because I'm older. I'm tired because I didn't eat. Well, like, no, no, this is probably what's happening. You gotta, you gotta see the bigger picture. You know what I mean, yeah, okay, what did I just say that you needed to know about avastatal? Oh, a digestive enzyme too.

Maddie 1:05:20
Yeah, that I know nothing about, yeah,

Scott Benner 1:05:22
uh, thorn labs makes a nice one, and pure encapsulations makes a nice one. Look on Amazon for so you can see it, then you can buy it wherever you can get. Just make sure you're getting the real thing and that it's, um, you know, you're not overpaying for it. I'm going to send you a link to one of them on Amazon, just so you can see what I'm talking about. So you have the ovacetol powder. You've got the digestive enzymes. You have the word document from that we want your ferritin. Okay? Ferritin above 70 minimum, but it should be higher, but we want higher and take a good multivitamin every day. And by good, I mean by a good company, okay? Again, foreign labs makes a nice one. We use your mom going to pay for this? Oh, yeah.

Maddie 1:06:21
Is she okay? Yes, no. Seriously, like, I am very, very lucky. My dexcoms is one thing that, again, pick your battles. My insurance is awful. I have to pay a lot of money to wear one. And,

Scott Benner 1:06:34
well, I'd like to see a world where you don't need one.

Maddie 1:06:37
Yes, and I'm getting closer. Oh, I'm getting closer. I think

Scott Benner 1:06:40
you get your hormones straightened out. It's possible this goes with it

Maddie 1:06:46
right, or at the very minimum, because this is what my endos say. And I'm like, I'm not physically able to do this. If I could feel myself going low before I get to 55 I wouldn't need a Dexcom. But I'm getting to 55 and I'm like, oh, yeah, maybe I don't know where I am right now. Like, I don't feel it at all.

Scott Benner 1:07:06
I hear you. I hear you. And so maybe these things actually help with that too. Yeah, yep. Maddie, as far as I'm concerned, you are one good doctor's appointment away from feeling better. If I was there, I would fight for you in those doctor's appointments. You're gonna have to do it yourself. Get the mom to do it with you too. And I'm gonna say this too, you've done a thing here today that doesn't usually happen. You made an episode with me. I'm gonna rush through and put up really quickly, because I want you to be able to listen to it damn because I think it's gonna help you. So I'm gonna send this off to the editor today. I'm gonna tell him to do this one first, and I'm going to try to put it up next week or the week

Maddie 1:07:42
after. I know it's because I'm great, I'm great TV. Everyone loves me. Maddie, listen,

Scott Benner 1:07:46
Let's not get crazy. It's so that you. I just want you to be able to share it with your mom so she understands where you're coming from when you start jibber jabbering her about to her like, Mom, I went on a podcast. This old man told me that he thinks I should get an iron infusion, and you're in, your mom's going to be like, Oh, honey, come home. We didn't realize you were so unsafe at school. Okay? So

Maddie 1:08:03
we don't know. This is right up my alley. This is right up my alley. Oh,

Scott Benner 1:08:07
this. This fits for you. I think so. Okay, listen, even if you're not listening to the diabetes stuff anymore, go back into the feed and find the I don't understands with Arden, I think you'll enjoy them.

Maddie 1:08:20
Okay, I've listened to a couple with her, and I feel like, I feel like we'd get along.

Scott Benner 1:08:26
I'm sure you would, but we're doing a new series right now. It's Arden and I talking about things she doesn't understand. So we've done so far, so far, we've done how fingernails grow, what blind people see. Those are out. You're soon going to get ones about like she doesn't understand money. We talk about being

Maddie 1:08:46
judgmental money. I don't understand money. Okay? Being

Scott Benner 1:08:50
judgmental. What did we record yesterday? God, yesterday we did. Hold on. Let me pull up my list. I record so many podcasts. I swear to God, I don't under I don't remember anything. Oh, internal monolog. When you're thinking, can you do hear a voice? Oh, yeah, you do. And if I asked you to close your eyes and picture an apple, can you picture it?

Maddie 1:09:16
You know, I can't. That's crazy. Well, I'll take it a step further. I actually also have synesthesia, so I read letters in color, and it happens when I read cheat music too. Really,

Scott Benner 1:09:26
I don't hear an internal monolog, like, Arden's like, when you think, what do you hear? I'm like, I don't hear anything, but I know the words are there. She's like, I don't understand. I'm like, I don't understand that you hear

Maddie 1:09:36
something. Yeah, it's like, it's like, me, but different,

Scott Benner 1:09:40
super interesting. So check those out, because that's her and I, by the way, I sent her back to college with a microphone. So now we, like, get together once a week and we're recording them. I love that. It's fun. Okay, Maddie, I'm gonna let you go. You have to go learn some more, and probably sleep. You're probably exhausted, and by the way, sleeping doesn't help you at all. Right? No, no. Know you wake up just as tired as when you went to bed. Yeah, yeah. I feel so bad for you, honey. This happened to me, and I know, I know what it is, and it's really terrible. And so the iron infusion is step one. You should call your mom right now and say, I need to get an iron infusion. Help me get an iron infusion? Yeah, okay. And call her mommy and tell her you love her, because the she'll probably just do it. No, she

Maddie 1:10:22
knows. She knows I'm asking for something. If I call her mommy,

Scott Benner 1:10:26
I know we all know, but it still works. So just do it. All right, hold on. One second. We're done. You were great.

Maddie 1:10:32
Thank you. Yeah. Thank you so much. Oh, of course, it's

Scott Benner 1:10:35
my pleasure.

I'm OmniPod five sponsored this episode of The juicebox podcast. And to get rid of your fomu, go to omnipod.com/juicebox. That's omnipod.com/juicebox. No more fomu. I don't want you running around with a fear of missing out on OmniPod. This episode was sponsored by touched by type one. I want you to go find them on Facebook, Instagram and give them a follow, and then head to touched by type one.org where you're going to learn all about their programs and resources for people with type one diabetes. Hey, kids, listen up. You've made it to the end of the podcast. You must have enjoyed it. You know? What else you might enjoy? The private Facebook group for the juicebox podcast. I know you're thinking, Oh, Facebook, Scott, please, but no. Beautiful group, wonderful people, a fantastic community juicebox podcast. Type one diabetes on Facebook. Of course, if you have type two, are you touched by diabetes in any way? You're absolutely welcome. It's a private group, so you'll have to answer a couple of questions before you come in, but make sure you're not a bot or an evildoer. Then you're on your way. You'll be part of the family. Thank you so much for listening. I'll be back soon with another episode of The juicebox podcast. The episode you just heard was professionally edited by wrong way recording, wrongwayrecording.com, you.

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#1318 Defining Diabetes: Frozen Shoulder

Scott and Jenny define frozen shoulder.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends and welcome back to another episode of The juicebox podcast.

Jenny's back, and we're going to do another defining diabetes episode today. Today's topic is frozen shoulder. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. A diabetes diagnosis comes with a lot of new terms, and you're not going to understand most of them. That's why we made defining diabetes. Go to juicebox podcast.com up into the menu and click on defining diabetes to find the series that will tell you what all of those words mean, short, fun and informative that's defining diabetes. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juicebox at checkout. That's juicebox at checkout to save 40 percent@cozyearth.com if you're a US resident who has type one, or is the caregiver of someone with type one, you can write from your right, from your couch, right from your phone. You can add your help to type one diabetes research by completing the survey AT t1 dxchange.org/juicebox this episode of The juicebox podcast is sponsored by Medtronic diabetes, and later in this episode, we're going to be speaking with Heather, who will talk about the importance of education and understanding the impacts of hyperglycemia, Medtronic diabetes.com/hyper, Jenny, I'd like to define, I don't Is it frozen shoulder when it's related to T, to T, 1d or is it? It is? It's still called that. Okay.

Jennifer Smith, CDE 1:55
Well, it is. Yeah, same thing.

Scott Benner 1:58
What is it? How do you see it like clinically?

Unknown Speaker 2:03
So it's, it's not an it's

Jennifer Smith, CDE 2:07
not an injury, right? This is something that can develop, again, from an inflammatory nature, which we know that type one diabetes especially calls to a lot of different inflammatory types of things, especially depending on what blood sugar levels look like. Frozen Shoulder isn't something that you know within six months of having type one or a diabetes diagnosis that you're going to all of a sudden have. It is something that develops kind of over over time, right? Another name for it is adhesive capsulitis, yeah, and like, there's another word beside capsulitis. It's a heat adhesive. Capsulitis is another term which you might hear from the doctor, again, similar that you may not understand what it means. They're referring to frozen shoulder. That's what it's talking about. And it's the shoulder joint like that, that area that is supposed to give you fluid range of motion. It's sort of supposed to move around like a ball joint, almost. Ball Joint kind of moves your shoulder forward and up and down and back and forth. You don't have just one motion like you do with your fingers, right? Yeah. And that inflammation kind of in that area gets worse and worse and worse over time, and it impacts the movement. And remember, all of our joints also have sort of fluid in between them, and that fluid starts to get kind of, I guess, gummed up, so to speak, along with the inflammation. And so it the inflammation gets, over time, worse and worse, and then your shoulder starts to have loss of loss of range of motion. Essentially, I

Scott Benner 3:43
have here a condition characterized by stiffness and pain in the shoulder joint typically develops gradually and can progress through three stages. The first stage is the freezing stage. During that stage, any movement of the shoulder causes pain, and the range of motion starts to become limited. The stage can last from six weeks to nine months, the age two frozen stage, pain may begin to diminish during this stage, but the shoulder becomes stiffer and the range of motion significantly decreases. This stage can last from four to 12 months, and then the thawing stage. During the final stage, the shoulder's range of motion begins to improve, and this stage can last from six months to two years. It says the exact cause of frozen shoulder is not well understood, right? But it's more common with people and with diabetes and other systemic conditions like hypo and hyperthyroidism. It could also occur after a shoulder injury or surgery, so the treatment for it is, I've only ever heard of people going to doctor's offices and they very painfully move the shoulder around. Is that horrible? Like, what is have you ever heard of people going through that and then that's not the right thing to do or something? But like, treatment of frozen shoulder typically involves physical therapy to improve range of. Pain Management and medications of cortico steroid injections, surgical intervention to release the tight capsule surrounding the shoulder joint in trying to reduce function. But I've heard people, I don't want to say exactly, but I've heard people tell stories of like they go to the doctor, and the doctors like they they're moving the shoulder, and they describe it as very painful.

Jennifer Smith, CDE 5:21
It is very painful. I mean, usually, this

Scott Benner 5:25
episode is sponsored by Medtronic diabetes. Learn more about hyperglycemia at Medtronic diabetes.com/hyper

Speaker 1 5:34
Well, Hi, I'm Heather lackey. I am a wife and mom. I have two children that are seniors in high school, and I've had type one diabetes for 34 years, and I'm a dietitian and a diabetes educator. You know, I'm the Director of Global Medical Education. I lead a team of clinicians that are developing content. How do

Scott Benner 5:57
you feel when your blood sugar's high? Irritable,

Speaker 1 5:59
thirsty, hungry.

Scott Benner 6:03
What do you enjoy most about your job? See

Speaker 1 6:05
education, working. See people thriving. That's kind of the fuel that feeds, you know, my fire.

Scott Benner 6:13
What would you like to see community members talk about more hyperglycemia

Speaker 1 6:16
is the critical thing, right? That leads to short term and long term complications. Hyperglycemia is the greatest unmet need in the treatment of diabetes currently, and I think that that's where technology can help if you're having

Scott Benner 6:32
trouble with hyperglycemia. And would like to talk to other people in the diabetes community, check out the Medtronic champions hashtag, or go to Medtronic diabetes.com/hyper,

Jennifer Smith, CDE 6:44
initially, they start with a lot more conservative treatment, right rest it use some, sometimes pain medications to kind of help ease some of the pain symptoms. Some treatments actually don't recommend many pain medications because they think that they may be counter to the actual healing process, but a lot of it often decreases your ability to do the normal exercises that you may have been doing right which, in terms of diabetes management, may be a shift, then to your insulin sensitivity and how your blood sugars are managed, and All of those things. Do

Scott Benner 7:21
you see it with older type ones who've maybe lived through management situations that aren't as good as what is like? This is a thing we should see less of moving forward, if we're lucky, or is there no way to

Jennifer Smith, CDE 7:34
expect? Quite honestly, again, it's usually, I don't know if your resource references like an age or a number of years in terms of just diabetes, but it does tend to be people who had diabetes for a longer period of time, which is, you know why I said you wouldn't necessarily see this within six months of a diagnosis with with diabetes overall, I know that they don't typically like to do surgery. But sometimes that's a kind of a last resort, from what I understand. Yeah,

Scott Benner 8:08
I asked what the pathway to frozen shoulder is for a type one, and it says chronic hyperglycemia, inflammation, microvascular changes, neuropathy, other autoimmune factors reduce physical activity and comorbidities, such as thyroid or cardiovascular okay,

Jennifer Smith, CDE 8:26
it's very painful. Yeah, yeah,

Scott Benner 8:29
that's what I've heard. I mean, the people have explained it to me. It's just no joke, and it's constant. And, you know, another one of those things that makes you feel like, Oh, I'm never gonna get past this idea. But,

Jennifer Smith, CDE 8:41
well, I think what goes along with that truly is that you don't think too much like who thinks about the movement that their hands do all day long to do the baseline of just your daily activities, right the shoulder is involved in a lot of that, any carrying or moving or just doing, you know, making yourself a sandwich could be reaching to a certain place in the refrigerator or on the cupboard, or reaching for a glass, and if every movement is pain,

Scott Benner 9:07
yeah, even just holding the weight of your arm up is hanging from your shoulder, right? There's just, it's tough. Okay, I just wanted to cover it so people understood what it was. And we, we do have a couple of minutes here, so I'm gonna say that you know prolonged high blood sugars, the chronic low grade inflammation that can come with type one diabetes. Diabetes can change the small blood vessels, reducing blood flow to connective tissues, where blood flow can impair the healing and maintenance of these tissues, contributing to stiffness and fibrosis, which is thickening and scarring, neuropathy, nerve damage caused by diabetes, uncontrolled blood sugars, not just, not just having diabetes, other autoimmune factors that actually, oh, also target connective tissues in the shoulder, contributing to the inflammation. And let's see, reduce, of course, if you can't exercise. Then you're not using it as much. And then, like I said, other comorbidities, like thyroid and and cardiovascular, it lists here so,

Unknown Speaker 10:08
you know,

Scott Benner 10:10
stable blood sugars, yeah, yeah, don't stare at

Jennifer Smith, CDE 10:14
which is, right? I mean, those are all the things that people are like, Well, gosh, I already do that, right? Well, okay, then move your body, stay active, keep your blood sugars well managed. Those are the goals in terms of preventative and that's kind of as much as anybody can really do.

Scott Benner 10:32
Yeah. So what kind of a doctor do you see for this, if you have it now,

Jennifer Smith, CDE 10:36
I would expect it's an orthopedic type of doctor that you would see if there are some strengthening types of exercises, probably PT or even OT, maybe therapy services that you end up using in order to find, you know, OT, especially for finding ways around doing things the way that you were normally doing them, until things are healed and PT may be giving you some of the strengthening exercises once you're able to get back to some light movement, using that, you know, to keep strengthening. And I mean, a big piece of this is also circulation, yeah, so keeping blood circulating and flowing kind of starting to rebuild any muscle in the area that's kind of started to, I hate the word, because it sounds almost like you're dying, but atrophy, so, right? Like muscle needs to be used in order to stay healthy, and so anytime you've got a period of inactive muscle, you have to do some light things to get it back up to par. Okay,

Scott Benner 11:35
yeah. Also, it says rheumatologist might be helpful. You could be in a position where you need a pain management specialist, but generally speaking, you know, it's suggesting an endocrinologist to help you get your blood sugars in line, an orthopedic, a physical therapist, rheumatologist and pain management so there. Well, I hope none of you have that. If you do, I hope you can get treatment for it. Because, like I said, every every description of it has never been good when I've heard it. So thank you. I appreciate it. Of course,

prolonged hyperglycemia can lead to serious health problems and long term complications. Learn more at Medtronic diabetes.com/hyper this episode of the podcast was sponsored by Medtronic diabetes, if you or a loved one was just diagnosed with type one diabetes, and you're looking for some fresh perspective. The bold beginning series from the juicebox podcast is a terrific place to start. That series is with myself and Jenny Smith. Jenny is a CD CES, a registered dietitian and a type one for over 35 years, and in the bowl beginnings series, Jenny and I are going to answer the questions that most people have after a type one diabetes diagnosis. The series begins at episode 698, in your podcast player, or you can go to juicebox podcast.com and click on bold beginnings in the menu. Hey, you listened all the way to the end. You might want to know more about the juicebox podcast. If you do go to juicebox podcast.com scroll down to the bottom and subscribe to the juicebox podcast newsletter. Each week, you'll get a rundown of the shows from the past week, just in case you missed something and you think, Oh, I would have loved that now I know. Thank you so much for listening. I'll be back very soon with another episode of The juicebox podcast. If you're not already subscribed or following the podcast in your favorite audio app, like Spotify or Apple podcasts, please do that now. Seriously, just to hit follow or subscribe will really help the show. If you go a little further in Apple podcasts and set it up so that it downloads all new episodes. I'll be your best friend. The episode you just heard was professionally edited by wrong way recording, wrongwayrecording.com. You.

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Donate

#1317 Lots to Digest

Peggy is a D mom of a young type 1. We talk diabetes and digestive health.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon Music - Google Play/Android - iHeart Radio -  Radio Public, Amazon Alexa or wherever they get audio.

+ Click for EPISODE TRANSCRIPT

---

DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome back to another episode of The juicebox Podcast.

I'm speaking with Peggy today. She's the mom of a child with type one diabetes who is nine years old. He was diagnosed in April of 2023 there's no other type one in the family, but they do have some bipolar, and today we're going to talk a lot about digestion issues and type one diabetes. Nothing you hear on the juicebox podcast should be considered advice medical or otherwise, always consult a physician before making any changes to your healthcare plan. If you're looking for community around type one diabetes, check out the juicebox podcast. Private Facebook group. Juicebox podcast, type one diabetes, but everybody is welcome. Type one, type two, gestational loved ones. It doesn't matter to me, if you're impacted by diabetes and you're looking for support, comfort or community, check out juicebox podcast, type one diabetes on Facebook. Guys, summer is overs, Fall is here, and you are going to need some sweatpants, sweatshirts, new sheets and towels. Go get them@cozyarth.com and save 40% off of your entire order when you use the offer code juicebox at checkout, and don't forget to take that survey AT T 1d, exchange.org/juice, box. I'm waiting for you to get over there. Head over now, only take a couple minutes. Today's episode of The juicebox podcast is sponsored by OmniPod and the OmniPod five learn more and get started today@omnipod.com juicebox. Box. Tickets for the 2025 juice cruise are limited. I'm not just saying that they actually are limited. We have a certain window to sell them in, and then that's it. Juicebox podcast.com, scroll down to the juice cruise banner, click on it, find a cabin that works for you and register right now. You are absolutely limited by time on this one. I'm so sorry to say that it sounds pushy, but it's the absolute truth. Juice cruise 2025 I hope to see you there. We're gonna get a tan, talk about diabetes and meet a ton of great people who are living with diabetes. It's kind of gonna be like floating diabetes camp, but you won't have to sleep in a log cabin. You'll get a tan, and it's not just for adults or kids. It's for everybody. Hi, I'm

Peggy 2:27
Peggy, and I'm a mom of a type one diabetes child who is nine years old. We live in the Midwest, and he was diagnosed last year in April. So I'm happy to be here. I'm

Scott Benner 2:41
happy to have you. Let me fish out a marker for my whiteboard. I cleaned my desk up, which was a huge mistake. My first question is, how long ago was he diagnosed?

Peggy 2:51
He was diagnosed, April 13. 2023,

Scott Benner 2:56
okay, so just about a year, yeah, just slightly over a year, okay, yeah, yeah, at eight years old at that point. Okay, any other type one in your family?

Peggy 3:08
No, well, I pause and say, my first cousin's child, so yes, but not, you know, first tier relatives, right?

Scott Benner 3:20
How about other autoimmune stuff, like celiac, thyroid,

Peggy 3:24
not that I'm aware of, of course, after diagnosis, as a mom, I did all the research and asked all the questions and trying to figure out the why, and as far as I know, like not his grandmother or grandfather, or, you know, aunts and uncles or anything like that. Okay,

Scott Benner 3:41
okay, different tier in the family line, bipolar, yes, yeah, no, yes, interesting. Okay, I'm gonna keep asking that question. Okay, I don't know what answer we're gonna come up with. I think I assume that paleontologists in the future listening to the podcast will be like this guy was onto something in the early 20s. Oh, I guess. Who knows why that

Peggy 4:05
is not one I had thought of. But, yeah,

Scott Benner 4:07
okay, inflammation. Ah, inflammation. That's what a lot of conversation around bipolar and inflammation, which just made me ask it one day, and then I kept asking it, and people keep saying yes. So I'm confused if we met at at the touch by type one conference in Orlando. How do you live in the Midwest?

Peggy 4:24
How do I live in the Midwest? Well, yeah, born and raised here, and when my son was first diagnosed, I craving community. And while I had my cousin's child with type one, no one else knew anything about it. I mean, I was confused. My family was confused. And in the profession that I'm in, I'm actually a counselor, and one of the things I teach my clients is community is really important, whatever your needs are. And so I was practicing what I preached. I reached out all over Facebook with one. One tiny Facebook group that my cousin had recommended, and then got lots of recommendations, and I'm on all kinds of groups now, so, and one of the things that I did was, where can I meet people in person? Like, eyeline is great, but where can I meet people in person? And I saw this free conference, you know, four months post diagnosis, and it was in Orlando, and I was like, let's go, let's go. Like, let's let's figure out who our people are. Learn as much as we can. And I love the touch to one type one in Orlando, because there was a kid section, and this is a big transition for me as a mom, but really, he's a little eight year old boy who none of his friends understand what's going on, and I wanted to just build community for him. And he did. I mean, he did go to type one diabetes camp the first year. I was so proud of them, but just wanted to keep growing our community. So because the conference was free, I just, you know, obviously had to pay for airfare and hotel, but it was, it was the trip. And who doesn't love Florida, right?

Scott Benner 6:05
It's nice and warm,

Peggy 6:06
even in August. I mean,

Scott Benner 6:08
did you do other things while you were there? Did you just come into the car? We did, yeah, good, that's good. Yeah. We

Peggy 6:13
did tons of fun stuff. We went to the beach, you know? We drove to Cocoa Beach. We tried lots of new restaurants, and went swimming a ton, and we met the most incredible people. And I was actually just texting with one of the moms this morning. She has turned into my practically daily check in on just life stuff. And I'm so grateful I went, because really, she's absolutely amazing. She's my closest person I talk to all the time, and she's in Arkansas. Oh,

Scott Benner 6:42
that's fantastic. So you met somebody at that conference that you are still close with right now. More than

Peggy 6:48
Yes, she's my more that yes, she was my dearest, dearest friend. Oh, that's fantastic. She listens to, yeah,

Scott Benner 6:55
the people at touch by type one, I think will be touched by that as well. That's really cool. So okay, so you go there. Did you have expectations beyond community? Do you think you're gonna learn something, or you just, were you really just throwing yourself into it?

Peggy 7:09
Well, you were there, so I wanted to meet you. I was excited about that. So community, meeting you, that was my biggest struggle.

Scott Benner 7:18
So you knew the podcast already?

Peggy 7:20
I did know the podcast already. Yep, all right, yep.

Scott Benner 7:23
Was I okay? You were awesome.

Peggy 7:26
Yeah, you were hilarious. And, you know, it's, it's great seeing your face in person, in real life, and then hearing your voice. It was, it was really cool.

Scott Benner 7:34
I'm glad. Yeah, I have to tell you, there's a fair amount of pressure that comes with that whole, like, somebody thing, you know, you're like, Oh, I wonder what they'll think, or you kind of don't want to, I guess my biggest thing is actually specific to, like, your situation. Like, I think people travel to these like, can you imagine if you got there and you were just like, oh, this is horrible. Like, I would feel so, yeah, I feel so bad about dragging you into it. You know what I mean? Like, even though it was free, I'd be like, I'm so sorry, but Oh, that's good to know. So you knew the podcast prior to that. So had you been managing with ideas from the podcast already? Today's episode of The juicebox podcast is sponsored by OmniPod, and before I tell you about OmniPod, the device, I'd like to tell you about OmniPod, the company, I approached OmniPod in 2015 and asked them to buy an ad on a podcast that I hadn't even begun to make yet because the podcast didn't have any listeners. All I could promise them was that I was going to try to help people living with type one diabetes, and that was enough for OmniPod. They bought their first ad, and I used that money to support myself while I was growing the juicebox podcast. You might even say that OmniPod is the firm foundation of the juicebox podcast, and it's actually the firm foundation of how my daughter manages her type one diabetes every day. Omnipod.com/juicebox whether you want the OmniPod five or the OmniPod dash, using my link, let's OmniPod know what a good decision they made in 2015 and continue to make to this day. OmniPod is easy to use, easy to fill, easy to wear. And I know that because my daughter has been wearing one every day since she was four years old, and she will be 20 this year. There is not enough time in an ad for me to tell you everything that I know about OmniPod, but please take a look omnipod.com/juicebox I think OmniPod could be a good friend to you, just like it has been to my daughter and my family.

Peggy 9:39
Yes, very I mean, as much as you can four months in, right? I mean, there's so much information overload, but even just basic steps, like, I'm going to share a story about my son. So at the type one conference, touch by type one conference, there was a kids section, and you were the speaker at the kids section. And one of the questions that you had asked was, besides food, what you know will raise your blood sugar. And my son raises his hand. Was all excited to answer the question, and said, adrenaline. And your response was, how did you know that? And he said, Well, my mom listens to juicebox podcast, so yeah. So it was really great to learn even more. I think we went to a I went to one on, like self care and like the caregiver and hearing other parents about what they're doing, because I was in like, crisis mode. Man, still four months in, and I was not sleeping. Well. Is pink. This was still kind of working, so lots of lows and just confusion about what the hell right. Because, I mean, I went out with, you know, this information from medical people who I trust, and I am like type A, wanting to like A plus B equals perfection. And realized very quickly that the information I was getting was not working for my child, and I needed to find a different way of doing things very, very quickly, because it was making me sick Peggy, that

Scott Benner 11:13
quickly in the first four months, the things you were being told you'd take them home, and what were the outcomes like?

Peggy 11:21
Oh my gosh. I mean, super high highs and super low lows, like, scariness, where I just panicked all the time, I mean, and it was, you know, Basil was too high. So and again, all this language that you're learning, like, what is a basal, what is a, what is a bolus? You know, I was using language like, short term, long term, because he was MDI in the beginning, even, even MDI, like, what the heck is MDI? So it was a lot of information. And so a lot of huge, huge spikes from within seconds. You know, I remember one time calling the on call emergency Endo, because he went from like 320 double arrows down to like 60 in a matter of nine minutes. I mean, it was incredible. And again, this was in the beginning. So, I mean, it was just way too much of all the insulin, but basil was too high in the beginning. So he was, I mean, six, seven lows at night, yeah. And, you know, the endo would say things like, well, once you administer the the the basal, there's no going back, you know, so the middle of the night, just treat the lows. I mean, that's like the advice I was getting. So it's like, Well, shouldn't the advice be lower your basal tomorrow. You know, like, why am I waiting three days to lower the basal? I don't know. It's just, it's terrible.

Scott Benner 12:49
It doesn't make sense. Terrible advice, yeah, especially in that storm that you're having, like, it's like, you want to see I did this. It worked. That's good advice. Now, check we do that, what's the next thing? And instead, everything seems wrong, and probably honeymooning, right? Yes,

Peggy 13:06
yeah, very much. So, I mean, I know that now, but I remember even the word honeymooning and thinking honeymooning, this is hell. Like I thought honeymoons, I've never been married, but, like, I thought honeymoon was like this bliss of, like, easy love. And this was, like, yeah, my living fucking nightmare.

Scott Benner 13:27
Hell, it is real. I've always said that. Like, why did they name it that? Like, why? Like, I guess, because everything's good in the honeymoon, and then it gets worse afterwards. Is that the idea, but? But that's not the point, though, because, because I do think you're right. I think people think honeymoon, and they think, like, beach happy? Like, like, yeah. You're like, that's like, oh, the honeymoon. And you're like, No, this is not happy. I don't feel like I'm on a beach. This is No, yeah, I feel like I'm in the water knocked over by the waves, exactly like

Peggy 13:59
drowning. That's a perfect example. I felt like I was drowning, drowning with information, drowning with like, nobody understanding, and having to be in charge of everything, like educating the school system, educating his teacher, educating his soccer coach. Like it was

Scott Benner 14:15
a lot. It's a lot. It still is a lot. Oh, of course. But it's a lot if you're if you're tuned in and interested and able, it's a lot. I always think about the people who were just getting by, like no one knew, but they were, like, low key, not great parents, but it was working out and everything. You know what? I mean, don't put a ton of effort in, like it was, they were skating, and it was working, and the kid's easy, and then all of a sudden, ton of information, ton of responsibility, life and death, and then, then what, like all, what are you gonna shift on a dime, you know, and go be a different person. It's,

Peggy 14:47
I know, it's a lot so hard.

Scott Benner 14:50
How did your son handle it? Looking back? Well, gosh, you know, I.

Peggy 15:01
Oh, it's hard to think about going back. Sorry, no, you're fine. I didn't mean to go so, oh

Scott Benner 15:06
no, it's okay. It's okay.

Peggy 15:08
It's no, it's okay. It's just, it's, it's still only been a year, but, you know, he had had, I mean, this kind of ties into the digestive enzyme, so it's actually kind of perfect for, for, I don't years before diagnosis, he was having a lot of stomach issues and gastro, random vomiting and all kinds of stuff that no one could figure out what was going on. And I did allergy testing, I thought it was like a milk allergy pediatrician put him on Oh, and constipation was the other thing. Put him on MiraLAX and put him on Prilosec, and then had a celiac test and an upper endoscopy and all this stuff for years beforehand, and no one could figure out what was wrong. They thought they knew what was wrong, right? They said acid reflux and constipation, because he doesn't drink enough water. And I just knew when my mom got like, this doesn't seem right, you know, like, and that was my gosh. I wish I could think back, I don't know, maybe three years, maybe even four. I mean, even as an infant, he had vomiting from formula. And, you know, looking back now all these years thinking like, God, was there an allergy to formula? And then, I don't know, who knows? You can't blame yourself, but yeah, let me

Scott Benner 16:30
tell you this to make you feel better, that for years, they would tell us, Oh, Arden must have acid reflux or something, because she'd be constant. Well, I'm so, by the way, Arden, if you're listening to this as an adult, I apologize, but when Arden was young, she'd have four, five days of constipation and then one horrible like diarrhea, like release, yes, right, yes, yeah, that was him, and then that was him,

Peggy 16:57
and it was got his diagnosed, yes, Yeah. And there would be moments of like, oh gosh, finally. And then he would like, not eat for a little while because, and they'd say, Well, he said eating because he's constipated. So when he first got diagnosed, quite frankly, I mean, of course, he was traumatized because he had, you know, the blood draws and the needles, and he was scared, but within 24 hours of being in the hospital, he felt so much better. He was still very sick, but he was going to the bathroom. He was just, you could see the color back in his face. Mom,

Scott Benner 17:31
I have diabetes, but I just took

Peggy 17:35
a great you know what I mean? Like, he and I had, I was traumatized too, but also a sense of relief. Like, Oh my god, this is what I've been saying for years. Like I knew something was coming. I knew something big was going on with my kid, and now I know,

Scott Benner 17:50
did it get regular at that point, or was it just? No, it just was good for a minute and then went back again. Yeah. Okay, yeah, yeah.

Peggy 17:57
So, yeah. So back to your original question was, how did he respond? And I think both of us were traumatized and relieved for the first France, I don't know, right for answers, for this reason, right? And then, and then the stomach pain started again. You know, we're home from the hospital, we're trying to get into a routine, and the stomach pain was happening, and constipation was happening, and then we've got up and down blood sugars. So I'm like, trying to figure it all out. And so I went to the internet for answers, and came upon the juicebox podcast, and started listening to the episode that you talked about Arden and her digestive enzymes, and all the the regimen that that you guys had found that really worked for her. And I was like, this is related to diabetes. I mean, it just clicked with me, like, boom, I have to get this product in my hands. So I immediately went online, ordered it, and it has been life changing,

Scott Benner 19:01
life changing, and so, so tell me, I mean, I almost can't remember everything that we tried, to be perfectly honest, like going through it, but, but, you know, for context, we were up to Arden had a scope, and a doctor told her she had gastroparesis, and when we said, Whoa, no, wait, like her blood sugars are really well managed. And he goes, Well, I don't think it's from diabetes. And I was like, Well, don't use that word around people with type one diabetes. It's scary. You know what? I mean, like, he's, he's, he's, like, why? I just mean, she has slow digestion. And I was like, okay, you know, he put her on this, like, gastroparesis diet, which was horrifying. Like, you know, just not a thing you'd want to do your whole life. And she did it like, she's, like, all right, I'll do it. And we did it for a solid month, and nothing, not one thing changed about this, like, constant pain in her stomach, like, couldn't go to the bathroom, like, this whole thing. And I've told. Story before, but I want to tell it here. I went to a local health food store because at the end of this first month with this diet, Arden looked at me one day and she said, I don't care if it hurts. I want a cheeseburger, like, like, let's go. And I kind of used it as leverage, because we had done, I mean, fairly something fairly invasive, like having her scoped and everything. It did not bring her an answer. She was at the point where she goes, Oh, doctors aren't going to help me. This is my lot, right? And so totally. So I said, I'll get you the cheeseburger, but we're going to stop at the health the health food store first, and we're going to just, like, try to get a digestive enzyme to go along with it. And she's, like, whatever, if I get a cheeseburger. It's fine. And I went there, and I talked to a lady who I love. I can't tell what her European descent is. She just sounds like a witch to me when she's talking, which is fantastic. And she's got a very great hippie vibe to her. And she talked to Arden for a while and talked to me, and she put this digestive enzyme in our hands, and she's like, start with this. And we were like, okay, Arden popped two of these things in the car while we were picking up the food, and she ate the cheeseburger, and she said later, like, my stomach doesn't hurt the way it usually does, but then she did not go to the bathroom. So like, days went by and stomach didn't hurt when she ate, but was not eliminating. And so I went back to the witch doctor, and I said, I said, Hey, here's what's going on. And she goes here, and she says, take these magnesium oxide, these will make you go to the bathroom. I was like, right on. And so I was like, Arden, the lady says it's gonna make and, you know, gave her one. And sure enough, like, the funny thing is, is that days went by and I kept waiting for to come to me, I know. And finally I just was like, I said, All right, I gotta ask you, like, are these magnesium oxides working? And she goes, Oh yeah, I went to the bathroom days ago. I just didn't want to tell you. And I was like, anyway, so that's it. Now she does not even do it all the time anymore. It just it got her through like a, like, a situation. Now I still like, so then I like, watch her, and I'm like, God, I have a lot of these issues. And so I was like, let me try the digestive enzyme. Now, all of a sudden, I could go to restaurants I couldn't go to before, or something like that. Like, I started testing them. I just, like, going places. I was like, I was like, I said to Kelly, I'm like, What's that restaurant that always makes me sick to my stomach? And she said, I don't want to say the name of it. And, and I was like, Okay, I'm like, let's go there today. And I was like, I'm gonna go take, I'm gonna take two of these digestive enzymes, and I'm gonna eat. And, no kidding. Like, I didn't get nauseous, my stomach didn't, like, flip over, like, anything like that. And then I had to add the magnesium oxide as well. Now, moving forward, it got to a weird place where, without the magnesium oxide, I wasn't going to the bathroom, but I also wasn't having like, formed bowel movements anymore, like it was and I was happy to be going and being on a cycle, and I felt like everything was better. I had this, like, gut guy, come on the podcast, and he just talked to me for, like, it's not out yet, and he talked to me for like, 45 minutes, and I'm still waiting for more testing, but he listened to everything I said, and then he was like, oh yeah. Slippery elm bark. And I was like, and I'm like, what now? So, so, no kidding. So he goes, I'd like you to try slippery elm bark. Is that right? Let me make sure that's right. I take it every day, and now I don't know what the hell it's called, so no, that's it, slippery elm bark. And I just buy a very like, inexpensive one on Amazon. I think they're like, 4000 milligram. Let me find it for you so I make sure I tell you the right goddamn thing. Hold on a second. We go to my recent orders and type in Elm that should bring it up pretty easily. Yeah. I buy something from Horbach, H, O, R, B, A, A, C, H, slippery elm bark, 4000 milligrams per serving 200 capsules, $9 right? So listen, Peggy, wait here. So I was at the situation now where I was not rushing to the bathroom, I could hold, like I my bowel movement till I wanted to go, which is a thing I used to hear people talk about, and I was like, whoa. Magically, I didn't do that right. And I could do that even though, like I said, my eliminations were not like, in a way that I was like, Oh, this seems solid and good. But I was like, happy because no pain. My digestion was working. I was absorbing my nutrient side this one side effect. I thought, Oh, I guess I'm this is what I'm gonna deal with. I talked to the guy. I ordered the slippery elm bark. I pop two of them in with my next meal. I take them when I eat. I don't know how to take them yet. I don't know if it's two or if it's one, like, it's not a kind of thing where. They tell you, two days later, I just had a solid bowel movement, and I was like, What in the hell just happened? Like, you know what I mean, like, so it just apparently, just kind of coats your insides. I don't understand why that would matter. He also moved me, and this was specific to me, so I wouldn't want anyone else to do this. But when I said I had some reflux still. He moved me to an enzyme, a digestive enzyme that has HCl in it, which is hydrochloric acid. I think so. I grab Thorn, beta tine, HCl and pepsin, digestive enzymes for protein breakdown in absorption, 225, capsules, I put on a little weight of a couple of pounds, but not, I don't think in an unhealthy way. I think I'm just going to the bathroom on a like a more reasonable I think I'm actually retaining some nutrients. I'm having to rejigger how I eat and everything like that, to fit. Bit. But anyway, he then sent me a urine test, which I have to actually do today, and then I'll get the results back from that. Then we're gonna sit down and talk again, then the episode

Peggy 26:09
will come out, so I can't wait to hear about it. Yeah, do they do? You know, do they do those have anything for kids? Because here I am. I'm like, God, my kid could use that too. You know? Like, I

Scott Benner 26:21
just talked to the guy, he sent me. I mean, it's a thing I'm paying for, like, you know, it's like a $300 test. I'm gonna pee in a jar and mail it somewhere. It's like, it's for the podcast. It's for me too, but it's for the podcast. So I can probably write it off on my taxes next year, but, but nevertheless, I'm just really interested to learn more. And here's the crazy thing, and this I'm really sorry for, because I definitely don't think I've ever said this on here. But my son has a similar digestive system to me, and I had been like, you know, doing all the like he was in the same spot. Because I was like, hey, try this, try that. Maybe it's this, maybe it's that. And like, he online, he'd be like, that, none of this stuff is helping me. And I'm like, okay, but I just sent him a text one day and I said, Cole, I'm like, just try this slippery elm bark. I said, just one time. Just try it for a day. And I'll tell you what. Man, he went off for the weekend last weekend, and I watched him go in the kitchen and grab that thing and take it with him. Wow. So I was pretty

Peggy 27:24
you know what's working? He's not going to tell you, maybe, but he's going to show you right come

Scott Benner 27:28
right out and set it. But I because it's weird, like dad. I yeah, he's in his 20s. He ain't looking for that conversation, I don't think. But he and I are both going to the doctor next week, not the gut guy, but our actual doctor, just for our yearly checkup. So we're going to be discussing all that with her. But anyway, so what happened for your son? Tell me how it worked

Peggy 27:46
for him. That's amazing. So I use the brand that Arden had used, so the pure encapsulation. They do have a children's line, which, by the way, continues to be out of stock, and I blame you and the juicebox podcast, because every time I get on a subscription, I'll get two and then they're like, sorry, we're out. What the heck they were out for, like, six months. I

Scott Benner 28:14
just really like, I don't need to be they need to be a sponsor. I don't know if you're accustomed to the term Gird your loins, but I just tensed up when I said the name of that slippery on bark out loud, because I was like, I cannot get

Peggy 28:27
that. Oh, my God, I know. Yeah, you say it out loud and there's going to disappear. That's what's happening to me right now I'm out. So, yeah, go ahead.

Scott Benner 28:34
But what did it do for him? Oh, God,

Peggy 28:36
changed his life so and now he asked for it, yeah, and if he doesn't take it before he eats, like, if we're out and about, um, my stomach hurts. I didn't and I said, I'll say, oh shoot, I forgot the digestive enzyme. So what it did is, it's his stomach doesn't hurt anymore. He would get severe stomach pain, like, I would have to pick him up from daycare sometimes before type one diagnosis, and I'd give him because I thought it was reflux. Like, here you go, buddy. You know now it's like, he can eat whatever he wants within reason, right? And he doesn't get stomach pain, he doesn't vomit, he doesn't have gas. He's like, digesting his food in the way that his body is supposed to be doing. On top of that, I did also start doing because I noticed I just the digestive enzymes first, and it was helping with not having stomach pain, but he wasn't pooping exactly like you said. And instead of doing MiraLAX, like the pediatrician said, because that was making him miserable, I'm doing chewable calm, digest, calm, magnesium for him at night. Okay? He has a bomb of it every single day. The calmest night is a nice product. It is a nice product. Yeah, it's easy, and he it tastes good. You know? He's not, like, ew. This is gross because I've tried other ones, and he's like, I am not and he can't do capsules yet, right? He's only nine, so I. Mean, I've tried, because when the Drupal digestive enzymes was out, I purchased the capsules, even though it's not recommended for children. So he couldn't get up down. I tried. We tried over and over and over and over again. We practiced with other things, and it gets like stuck in his he can, okay, it's probably just, I might, I might try again. It's been a while. Yeah,

Scott Benner 30:22
I have to tell you, it's, it's really interesting. I'd like to read this to people. I just went to chat GPT, and I said, What is the pancreas role in digestion? Chat GPT says the pancreas plays a crucial role in digestion by producing enzymes that help break down food in the small intestines. These enzymes include pancreatic amylase, which breaks down carbohydrates into sugar. Pancreatic lipase breaks down fats into fatty acid and glycerol. And pancreatic proteins breaks down proteins into amino acids. These enzymes are released into the small intestine to help with the digestion of carbohydrates, fats, proteins, allowing the body to absorb essential nutrients, and I say this thing out loud on my Facebook group, and Holy hell, a firestorm of people who are like, my stomach has been hurting for 20 years like I got notes from people that said, hey, my stomach hurt. I actually one lady's like, sticks in my head. My stomach has hurt for 35 years. It doesn't hurt today. Thank you. That's all it said. And I was like, Oh my God. Like, back to your original point of, like, getting all this information like no one ever just says to you, hey, if your stomach hurts, try a digestive enzyme in the endos office. Crazy, yeah, what he

Peggy 31:37
did was he referred me back to the gastroenterologist. You know, he's like, Oh, you've seen this person. Why don't you go back to her and talk to her? So we did, and she did some stool testing and and whatever and everything, you know, like pancreatic because it was testing, I told her we were taking the enzymes. What was it? The enzymes, right? But he wasn't it was because of the poopings. But that's why we're back. I've

Scott Benner 32:01
heard you have gastroparesis. You have celiac. You know, as soon as your stomach hurts, they go, celiac, just like, celiac, right? Not to say you couldn't, but like, bang, right, to that. And then they do the testing, and you go, I don't have any markers for celiac. And they go, silent, celiac, okay? And, you know, I'm like, All right, and then it's, it's gastroparesis. Like, how many people are running around now think they have gastroparesis that don't have it? I have no idea, you know, like, I mean, I'm sure many of you do. But that, again, not the point. The point is, is that this is a simple over the counter thing you can try, and you'll know if it works fairly quickly, so very quickly, and it's not gonna hurt you if you didn't need it, like so and the other thing, well, they'll say, Oh, you gotta get probiotics. Got probiotics. You know how many fcking probiotics Arden took. Didn't do anything. I took them. She took them. I forced them on my son. He took them. Dad, nothing changed. Same. Yeah. Try this. Try that. Same. Yeah. So who cares, like, if it's pancreas related because you have type one diabetes, or if it's just how you're built, or whatever. Like, such a simple fix. I mean, fantastic. I know, yeah.

Peggy 33:10
I mean, yeah, I was really angry at the medical community. Like, how do you not teach people these things and offer solutions, rather than put your hands up in the air, like, Oh, we don't. The tests say nothing. So why

Scott Benner 33:25
does the vaguely Russian Eastern Block witch know and you don't know? Like, I mean, seriously, yeah. I mean, she's, by the way, a lovely woman just has a great accent I don't understand. Like, I really don't. And the other thing is that it's in this health food store that when you get in there, smells weird, and everybody's like, in Birkenstocks, and it's strange and everything. And, like, I'm not listening. If you got Birkenstocks, it's fine with me, but I'm just, I'm trying to paint a picture. You know what? I mean? Like, it's a it's a real kind of, like, incense. It's a hippie place. And if you walked in there, off the street, never having any intersection with this idea you're gonna walk in and go, Okay, what is this? Exactly right? Like, I'm not doing this. Like, I'm not taking bee pollen. I don't know what you know, like, you know, like, and, and I don't know. I just said BEE POLLEN just seemed like something someone would take if they wouldn't. It's crazy that a mainstream doctor wouldn't say, hey, you know, your pancreas is also in charge of so much about digestion. That's

Peggy 34:25
the thing. Is, when we were, when he was first diagnosed, the only information I was taught and thought for a long period of time was that the pancreas produced only insulin. You

Scott Benner 34:38
didn't even know what else it did. Yeah,

Peggy 34:40
I didn't know what else it did I mean, and I'm still learning, like there's so many things it's it's a lot to learn, and I know they can only tell us so much, but based on what I've talked to other moms and other families about and online, how much the i. This is impacting people, and they're getting the same message as I am. I'm really lucky that I learned about it so quickly, and I can't tell people enough, even if I have friends that have kids that are having stomach issues or constipation or whatever, that are not type one, I'm like, you literally need to buy digestive enzymes and magnesium. Like, I don't care what your doctor said, 60s,

Scott Benner 35:19
and you're handed out Quaaludes to people they're like

Peggy 35:25
and maybe it works for some people. I'm not saying, I don't want to say anything

Scott Benner 35:28
bad about No, it's not magic. If you have listened, you might have a lot of a lot of different issues that are not going to be touched by this, but if this is your issue, you will know quickly. Hey, chat. GPT, the human pancreas, I asked it, what are the functions of the human pancreas? The human pancreas has both endocrine and extracurricular functions. Endocrine functions, the pancreas contains clusters of cells called the isolates of Langerhans, which produce hormones that regulate blood sugar levels. The main hormone produced by the isolates are the insulin and glucagon. Insulin helps lower blood sugar levels by promoting the uptake of glucose into cells, while glucagon raises blood sugar levels by stimulating the liver to release stored glucose. Now number two, exocrine function, the pancreas produces digestive enzymes that are released into small intestines to help break down carbohydrates, fats and proteins in food. These enzymes include amylase for carbohydrates, lipase for fats and various for proteins. Dysfunction of the pancreas can lead to conditions such as diabetes mellitus and pancreatic insufficiency. So but Bada bing, like, I mean, like, it's not possible. A doctor doesn't know that, especially an endocrinologist, and I can't understand how you could stand in front of them say My stomach hurts for 35 years, and they go, Oh, you have CELAC, no, I don't. Oh, you have this. No, I don't. Oh, I guess your stomach hurts. That's it. This is not the next step fascinating. So I know,

Peggy 36:55
I know it's so frustrating, and I'm I, I'm glad that you know we're talking about it, because I think that's what's missing, is, you know, this piece, it's not just about the insulin and glucagon, it's, it's all the other things. And it's crazy. It can impact growth. It can impact because my son is on the smaller side, yeah. And so I was trying to find answers with that too, and they keep telling me, and I'm still not convinced that there isn't something else going on, but that's another story. You know, he's on the growth curve. He's on the growth curve. It's like, okay, I understand that, but he's like, significantly smaller than other children. Well, let

Scott Benner 37:29
me say this, then, what's his TSH, what is that? It's the thyroid stimulating hormone. They should test this thyroid. Oh, they

Peggy 37:38
have, I don't know the number, but it's within normal range. Don't

Scott Benner 37:43
worry about the normal range. Like, figure out the number, okay. Like, okay. And let's say, I guess they're going to tell you the normal range is somewhere between. I don't know what the low the low range is, but then the high range is up, 1010, hold on a second normal range for ths agent adults is typically between point four and four. Okay, so what I'll tell you, based on conversations I've had and experiences I've had personally, is that when you start getting over two and you have symptoms, you should probably treat the symptoms with the medication, and then, so I don't know what his is. I might be, you know, completely off, but I'll, I'll share this with you that Arden was the smallest kid in her school. I mean, the teeniest person. Okay, we I forget how old she was when we finally figured out she had thyroid, we pushed treatment very quickly because my wife had had it, and they wouldn't treat her, and it caused her a lot of problems. We got her onto Synthroid really quickly. And today, Arden's going to be 20 in a couple of months. Arden's five seven. She's five seven. Wow. The best way I can explain this to you is that a handful of years ago, after having played softball for this for this guy as a coach for six or seven years, Arden saw this man again when she was like 16, and my wife bumped into him in a store. They were talking, Arden was around the corner at a different aisle, and Arden came back, stood behind my wife, because my wife was engaged in a conversation, kind of politely, stood behind her for a while, and when the conver when the conversation died down, the gentleman asked my wife, who is this you're with? Oh, wow, yeah. He did not know it was Arden. And that's how much like different she was like, she was like, five, one weighed nothing. Was so skinny, and now today, she's a good weight, and she's five seven. And I think it's because we gave her the wow. I think it's because she got that so,

Peggy 39:56
yeah, he's in like the 13th percentile for. For height and 20th, maybe not even 20th for weight, weight and height are really on the low end. Does

Scott Benner 40:10
he have any of the hypothyroid symptoms? Geez, hair loss, fatigue, weakness, sense? He

Peggy 40:17
did a diagnosis. I mean, all that sounds like type one diabetes, sensitivity

Scott Benner 40:20
to cold, dry skin, dry hair, constipation, muscle weakness, depression, anxiety, memory problems, puffy face, elevated cholesterol. These are all like

Peggy 40:33
memory problems, cholesterol, memory I always say, I always, I keep on saying it's diabetes thyroid?

Scott Benner 40:42
Does he have trouble? Does he not get rested after he sleeps? Sometimes, that's one of them. That's a big one.

Peggy 40:50
He slept for 11 hours last night and was grumpy this morning, like he hadn't slept a full night.

Scott Benner 40:56
Yeah. So there's part of me that thinks, you go find out what his TSH is, and you're gonna see it's like three, like, it's like three and a half or something. So it looked green on the Yeah, on the thing. But I'm telling you, if it's over to something, you know, I forget exactly, I have a great episode about it with Dr Benito. I can give you the the Yeah, that'd be great. Yeah, you can listen through it anyway. How else? Like, what else is going on with diabetes? Like, what have you guys figured out? How's it going? All that stuff?

Peggy 41:29
Well, I mean, it's, it's going, right? I mean, we're, like, I said earlier, that's, we're a year into this. It's different every day we he's on the OmniPod five and the g7 he started with the g7 and so I'm in manual. I'm saying I'm in manual mode because I do all the work, right? And I'm having, recently, I'm having a lot of problems. Again, me, I he is, but I am with higher numbers than I would like, because I don't know if it's tunneling. Nico, hi. Nico was the one who told me about tunneling on Facebook, and so I've been trying all the things for tunneling, because it's like, there is no reason for his numbers to be. I mean, I'm, I shouldn't say, no reason, but I it's just like all there's so many factors, right? But that is the one that I feel like keeps happening because it'll his ratios and insulin sensitivity, factor, and all the things are working for like, 24 hours, and then it stops working, and it's driving me crazy. So, you know, and giving them more and more and more and more on the on the app is isn't working. So I'm changing out his pod earlier, and I've tried skin tack, I've tried underlays, I've tried overlays, I've tried I called OmniPod, and was like, help like, this keeps happening to my kid, you know, and I'll take it off. And it's not usually a cannula, it's, I've been cannula once, and they recommended the liquid just around the triangle part. So that's the last thing I'm gonna try. And then I just be like, I need to try a different pump or something. It's driving me nuts.

Scott Benner 43:06
So it's pulling you think it's pulling away? Or do you think

Peggy 43:10
he's very active? Yeah, he fiddles with it. If you know what I mean, he'll, it'll be on his arm, and he'll be watching TV, and be like, or it's on his stomach, and he's stop touching your pod, you know? So it moves a lot. And he's very active. He's running around. He plays soccer. And I think it's just not staying put, and it doesn't, you know, oh, I tried to a grip shield. I mean, I've tried all the things. So he's and if I don't put it right on the right way, it just kind of wheels

Scott Benner 43:38
right. So he's lean and thin too. Yes, very lean. You don't have a lot of, like, flat, bigger spaces to put it on. I don't. It doesn't work better anywhere on his leg,

Peggy 43:47
stomach. He won't do the leg. Ooh, I we did the leg once. I had to, I mean, we had to take it off. He just screamed and screamed. It was so painful.

Scott Benner 43:56
It hurt. The sight hurt. Okay, you get the muscle. Maybe I

Peggy 44:00
must have. I must have. And that was in the beginning of when we started, which I think we started in, like August. Has

Scott Benner 44:07
he put a weight on something? Yes, not

Peggy 44:09
a lot. The doctor's pleased, yeah,

Scott Benner 44:13
well, I mean, you could try the leg again, because it sounds like on the stomach, because he's got, there's more surface area. It's not flexing as much, so you're probably seeing it like rock on arms, is what I'm guessing, right? Yeah. I mean, you turn it on the stomach, like you could have the cannula facing the belly button, then the next time, have it face away, and then on and so you get like, four different sites on, at least on either side of the navel. Yeah, yeah.

Peggy 44:38
And we do, I do the stomach as much as possible. But then, you know, he gets adhesive reactions and inflammation where the cannula goes in. So it's like a hard, bumpy thing, and so he gets, it's really painful, yeah, so he'll ask, you know, can we leave my stomach alone for a little while?

Scott Benner 44:55
Okay, I mean, listen, you could, do you think he would use a tube pump? Maybe? I don't know it's, I don't know.

Peggy 45:03
I don't know. We'll see, we'll see. I'm gonna keep, you know, experimenting. I mean, I the two pumps is, you know, I don't know why I'm so like, against it. It's just, it's so convenient. This OmniPod is so convenient. It's easy within. I mean, now we're a year into this, and I can we, he actually does a lot of it now, because I want to teach him how to do stuff. Obviously, we can fill it, change it. I mean, in less than two minutes, you know, and boom, we're out the door, you know, so quick, and it's easy. So

Scott Benner 45:33
I don't know how I would sell a tube pump. Darden, like, I don't think she'd, I don't think she'd bite, honestly,

Peggy 45:39
I don't think he would either.

Scott Benner 45:42
So you think so it's tough. I think she just loves the form factor of it too much. Oh, before I forget, Dr Benito is in Episode 413 it's called thyroid disease explained, and she is just a font of information.

Unknown Speaker 45:58
And thank you. Yeah.

Scott Benner 45:59
So if you really want to understand thyroid, listen to that one I do and and then go check the tests and see because, like, no kidding, it could not be this at all. But there's a world where I've been told Arden's TSH was six, and they said we don't treat it at this number at six every every, every, every symptom. And they're like, We don't I had to, I had to force them to do it. Wow, absolutely forced them to do it. And then early on, we figured out, like, Arden's uptake is not great, so she has to take a t3 as well. And we had it right then she had a problem, and they blamed the t3 when it wasn't the t3 so then she had to live another year, exhausted, until we finally stupid. Went through so many things till we got back to them, going, Oh yeah, it's probably the t3 and then eventually, eventually, I got her to a good I got her to Dr Benito, actually, who managed, she manages my Arden's coals and my wife's thyroids. That's fantastic. Oh, good, good. So, yeah,

Peggy 47:07
well, yeah. I mean, I think it I mean, that's another thing to talk to, you know, to remind people that are listening today, like, keep advocating for yourself. Like, if something doesn't seem right about yourself, or your kids, just keep advocating for yourself, trust your gut. We are taught, I don't know if it's worldwide or it's an American thing, we're taught to trust the medical people with without questioning them. Yeah, right. I was that person, and I still believe they are the experts, right? Like, I want to go to the experts. They know their stuff, but if something doesn't fit with you and something doesn't feel right, like this doesn't seem like the right thing. Keep asking, keep doing research. Talk to moms, talk to other dads, like talk to other people that are dealing with the same thing, because we're living this day to day. Yes, they got their medical degrees, but they're not living this day to day. Or most of them aren't right, like some are to a D, but I don't know, just keep asking, don't you don't have to just blindly trust what people are saying. You're in charge of your health. You're in charge of your kids health. And just keep looking for the answers, because it's out there. Yeah,

Scott Benner 48:13
I think too it's important to remember, like simple things, your stomach's not supposed to hurt. You're not supposed to be exhausted all the time. You can come up with reasons why, oh, I have a young child, or I have that's all fine, but there are plenty of people with young kids that are not exhausted, and there are plenty of people who eat really crappy food and their stomach doesn't hurt, and they eat good food in their stomach doesn't hurt, and everywhere in between. You are not supposed to be agitated all the time. You're not supposed to be anxious all the time, like, there's, there's reasons why thyroid, for example, could help you with those things. Like, my son's first symptom with hypothyroidism was his personality changed, and my wife's did too. I thinking back all the way back to when I actually joked with the doctor at one time, I was like, Look, I now have a whole dog in the backyard. Case I have to kill this lady. Like, like, like, she was, like, she was a problem, you know what I mean, and then that thyroid medication helped her with that. Like, so like, you know, your hair's not supposed to fall out, right? If it does, don't make up an excuse for it. Just, trust me, it's not supposed to fall your blood sugar is not supposed to be 60, and then 350 and then 60, and then 300 that's not just diabetes. Like these are things that there are quantifiable, knowable solutions to, right and to have. If a doctor looks in the face because I don't know, then they're the wrong doctor. Exactly. You got to dig in more. And you know, I just told somebody last night. I didn't Am I didn't ask me anything on Facebook last night. So sometimes when I'm working, I answer, I like, sit at two keyboards. I work at this one, and then I answer questions on that one, and this one person said, like, you know, I'm so afraid for the doctor to, like, yell at me about, like, changing insulin. And I didn't know another answer. I just said I didn't. It's time to pull up your big girl pants and get in the fight. Like, this is, this is what this is like. It just is, if you don't, if you're not adjusting your insulin, and you have type one diabetes, I don't know how you're I don't understand insulin. I think it goes,

Peggy 50:15
I mean, I Yeah, I hear that a lot too. And I think, and I do get intimidated by my Endo. I mean, it sort of feels like the person that like, is giving my child life saving hormone, like, I don't want to piss him off, right? But I also I'm not taking it right, like he a lot of times, and I see some food too well, he'll say stuff. And I'm like, Okay, thank you, right? Like, can I have my prescription? I'm I'm gonna go home and do what I need to do. I mean, so it's not about again, we're taught to they're the experts. We're supposed to do what they say, and within reason, we listen to what they say, but you're living every day. You get to go home and make your own decisions. You don't have to follow it if it's not working, if it's not working, and they're not going to be supportive, figure it out. Yeah, there's a middle

Scott Benner 51:01
ground between blindly. There's blindly listened and there. And if listen, if everything's great, then who cares? Then right on. But if you're seeing problems, you know, you can't skip over maybe the information I'm getting isn't good. That's right, that's just the first and people skip right over that part, and then you end up looking, you know, around blind corners forever for an answer to something. And you, you the answer is right in front of you, just not paying attention to it. You know, like I they're, I've talked to people privately and on here, running around with TSH is in the eights. They are. They clearly have hypothyroidism. Doctors will not give them medication, that's it. And they're like, Well, I don't know what to do. And I'm like, how do you not know what to do? Go find another doctor, right? And don't just switch and then get in there and hope, call another office and say, look, here's my situation. My doctor is resistant. If I switch to you, will you help me with this? Like, make them tell you they're the way they handle these things before you go through the whole process of leaving a doctor and going to another one because you don't want to. I've heard people switching, get to the next doctor, get the same crappy answer again, and then, and then they just, it takes the ass out of them, and they don't have the the energy for it anymore. You know what? I mean? I was

Peggy 52:20
just gonna say, there's a lot of emotional energy that goes into making a doctor's appointment, finding a good doctor. So I get why people don't do it immediately, take a break, you know, and then, you know, reevaluate. You don't have to do everything all at once, but there's no excuse for not doing it, in my opinion. Just telling you, if

Scott Benner 52:39
you're having a heart attack and you ran to an emergency room, you said, I'm happy. Room, you said, I'm having a heart attack. And they said, We don't believe you. I don't think you would just sit on the floor and die. I think you would try to get to a different emergency room. And I don't see this as much different, but, but that's that, that, that um, weariness in the middle. Listen, last night I went grocery shopping with my wife. She opened up the freezer section to grab a box, and the box had a big dent on top of it. I saw her look at the box and think, I don't want the dented box. I'm gonna get the one behind it. She pulled it forward. The next box was dented. And even though the third box wasn't, she gave up and took the

Unknown Speaker 53:14
second dented box.

Scott Benner 53:17
Isn't that so interesting? She was like, I don't want the dented box, but not bad enough to go through two of these to get to the third one. And then she grabbed it. Now, later, I made fun of her, and she said, I didn't notice that the third box wasn't dented. I was like, why didn't you look like, this was important to you? Like, in this little micro cosmos, she had decided no dented box. But then once it got a little hard, she's like, Ah, she took it out of boxes. Yeah. So when that's the world, I don't know how you it's going to be hard to fight through bad doctors and like to pick through the boxes till you get the right one. But you have to, like you just you have to, you have to, it's your health or somebody else's health, right? And take it for me, a person who feels 1,000,000% better today than I did 12 months ago. It's very, very worth it, very it's

Peggy 54:03
super worth it. Oh, absolutely. It's totally worth it. Yeah, well,

Scott Benner 54:07
Peggy, I this has been really wonderful, but I feel like we've covered everything, so I don't want to, I want to drag you through. Are you comfortable that we got to everything? Yeah, I think so, yeah, right. Oh, that's excellent. I really, I really appreciate you doing this. Just, I want to make sure we didn't miss anything. Nothing else you want to talk

Peggy 54:22
about? No, I just wanted to make sure people knew about the digestive enzymes, the magnesium. I got to tell my story about my son and meeting you. And very nice, really, this digestive times,

Scott Benner 54:35
digestive enzymes, and if you can't poop, magnesium oxide. Magnesium, very, very important, not citrate, because there's 1000 different kinds of magnesium. There's glycinate citrate, wildlife, magnesium oxide, yeah, and that that should make you put oxide, yeah, you ain't pooping on that. I don't know something happened.

Peggy 54:58
Are you gonna be a. Touched by type one in Florida again this year. I don't think I'm supposed, can you not tell

Scott Benner 55:04
us the date of it, but I definitely will be there, and I was, I gotta save the date email already so

Peggy 55:11
we got the email as like, participants. It just doesn't say who's coming. Oh

Scott Benner 55:15
yeah, I don't think, well, they don't want to say in case it falls through, like, because people have problems, they get sick, sometimes, stuff like that, when they're going to come and speak. But yeah, no, I'm, I'm I already got to save the date. I love that trip. I think it's great. I love the I think they do such a wonderful job. Honestly, they really do and it's not people are going to be like they advertise on the show, but that's not why they buy an ad on the show. They buy an ad on the show because it gets the word out. I mean, because look as people from Arkansas go to their thing, right? And they find out about, I'm from the Midwest, yeah, it's my friend Marissa is from Arkansas, yeah, yeah. They're just a fantastic organization. They help people with type one. They put a great, a great event on once a year in a beautiful hotel, like it was beautiful, yeah, yeah. Really, just wonderfully done. I'll say with deference to a lot of lovely people that I've met locally that have set up JDRF events. It's the best diabetes event I've ever been to. So, oh, wow. It was my

Peggy 56:11
first one. So I'm glad to hear that. I mean, I've had JDRF events, but yeah, that it was really it's worth another trip down to Florida. We're planning on it beautiful,

Scott Benner 56:19
beautiful time. All right. Thank you so much. Yeah. Thanks, Scott, great to talk to you. You too.

A huge thanks to OmniPod, not just my longest sponsor, but my first one. Omnipod.com/juicebox if you love the podcast and you love tulip insulin pumps, this link is for you. Omnipod.com/juicebox, I was looking for a way that we could all get nice and tanned and meet each other and spend some time talking about diabetes. How are we going to do that on a juice cruise, juice cruise 2025 departs Galveston, Texas on Monday, June 23 2025 it's a five night trip through the Western Caribbean, visiting, of course, Galveston, Costa, Maya and cosmel. Why do we need to be there? Because during the days at sea, we're going to be holding conferences. You can get involved in these talks around type one diabetes, and they're going to be Q and A's plenty of time for everyone to get to talk, ask their questions and get their questions answered. So if you're looking for a nice adult or family vacation, you want to meet your favorite podcast host, but you can't figure out where Jason Bateman lives, so you'll settle for me. If you want to talk about diabetes, or, you know what, maybe you want to meet some people living with type one, or just get a tan with a bunch of cool people. You can do that on juice cruise 2025. Space is limited. Head now to juicebox podcast.com and click on that banner, you can find out all about the different cabins that are available to you and register today. Links in the show notes, links at juicebox podcast.com I hope to see you on board. I want to thank you so much for listening and remind you please subscribe and follow to the podcast wherever you're listening right now, if it's YouTube, Apple podcast, Spotify, or any other audio app, go hit follow or subscribe, whichever your app allows for, and set up those downloads so you never miss an episode, especially an apple podcast, go into your settings and choose, download all new episodes, whether you have a podcast or a band. Rob at wrong way recording can help you wrong wayrecording.com. If you're newly diagnosed, check out the bold beginnings series. Find it at juicebox podcast.com, up in the menu in the featured tab of the private Facebook group, or go into the audio app you're listening in right now and search for juicebox podcast, bold beginnings. Juicebox is one word. Juicebox podcast, bold beginnings. This series is perfect for newly diagnosed people. You.

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