#1265 Snap, Crackle, Pop

Adrienne was diagnosed with Type 1 diabetes during her pregnancy. She also has a Bipolar II diagnosis, which she isn't convinced is correct.

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Scott Benner 0:00
Hello friends and welcome to episode 1265 of the Juicebox Podcast

today's an interesting episode with Adriana, she's 29 years old the mom to a little boy. And she was diagnosed with type one diabetes about 19 weeks into her pregnancy with him back in June of 2022. Since then, she's gotten a bipolar diagnosis, which she doesn't particularly agree with. You're going to hear our entire conversation and then after that, another conversation I had with her later, so she finished recording with me and then thought of other things that she wanted to say, I let her come back on to complete her record. Nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan. Don't forget, if you use my link drink ag one.com/juice box you'll get a free year supply of vitamin D and five free travel packs with your first order. And if you go to cozy earth.com and use the offer code juice box at checkout, you're gonna save 30% off of your entire order. And if you'd like to help with type one diabetes research and you're a US resident who is a type one or the caregiver of a type one, all you have to do is go to T one D exchange.org/juicebox. Join the registry and complete the survey that should take you about 10 minutes, your answers are going to help T one D exchange.org/juicebox podcast. This episode of The Juicebox Podcast is sponsored by hungry route. The easiest way to eat healthy, hungry route.com/juice box. today's podcast is sponsored by touched by type one check them out on Facebook, Instagram, and at touched by type one.org. If you're looking for an organization who's helping people with type one diabetes, you're looking for touched by type one. Today's episode is sponsored by Medtronic diabetes, a company that's bringing people together to redefine what it means to live with diabetes. Later in this episode, I'll be speaking with Jaylen, he was diagnosed with type one diabetes at 14. He's 29. Now he's going to tell you a little bit about his story. To hear more stories with Medtronic champions, go to Medtronic diabetes.com/juicebox or search the hashtag Medtronic champion on your favorite social media platform.

Adrienne 2:27
Hey, my name is Adrian. I'm 29 years old, a mom to a little boy who is almost a year and a half and I was diagnosed type one at 19 weeks pregnant with him in June of 2022.

Scott Benner 2:38
Let's go Hold on a second. Could you start in hot? So you're in 2022 You're pregnant?

Adrienne 2:46
I am here's my first and only child, okay. And I was actually supposed to be going into the OB office to have the gender reveal ultrasound. But I walked in and they had mistakenly booked me for a regular doctor's appointment. And my doctor was not on staff that day he was at the hospital delivering and so they asked me if I wanted to see someone else that was on the team that day. And I you know, I was kind of irritated by it. But I was like sure might as well. So I went in and saw a nurse practitioner who was great, but standard procedure for any doctor's appointment there at the OB is to do a urine sample before you're seeing. So a nurse came in and she's like, you know, we saw something that kind of flagged us and your urine we want to check your sugar. So she did a finger poke and I came back like 391 I think it was and I could see she was concerned. So she poked again. And she's like, okay, we're just gonna check to be safe. And my second pick was 457. So she left and unfamiliar face poked back in and it was the nurse practitioner who never bothered to introduce herself. She said, What did you have for lunch today? That was where her first words to me so that well we did break the ice and sheepishly admitted that I had given into a pregnancy craving for Taco Bell. So that was great. But she said that her blood sugar had she eat and Taco Bell probably wouldn't have been over 120 And so that was her way of telling me that I was diabetic. She said that they didn't think it was gestational it was too soon into my pregnancy for that to have developed was her gut instinct, but they were going to send me home over the weekend to check before and after meals, that type of thing. So I basically just broke down crying there in the office asked zero questions and left there with no idea what I was doing. But they had me monitor over the weekend. And things kind of just rolled from there and thankfully my partner works in pharmacy so he was able to bring home all of the supplies I needed that same day was able to kind of push things through pretty quickly. So that's how the story started. And

Scott Benner 4:42
long story short, your baby's name is chalupa? Is that correct? Right.

Adrienne 4:46
That's exactly right. No, his name is Lucas. Oh,

Scott Benner 4:49
does anybody know what chalupa means? Like? Is that a real word? Is that like a word that like Taco Bell made up? Right.

Adrienne 4:55
That's a good question.

Scott Benner 4:56
I'll figure that out while you're telling me about everything that's happened. Oh, no, it's a real food. Several specialty dishes of south central Mexico. Okay, thank you. I thought maybe it was a marketing word. You said, That's how she told me I had diabetes. She didn't say to you, you have diabetes. She just said, that's not what my blood sugar would do. And I'm super healthy.

Adrienne 5:17
That's how she led off was that, you know, that's not how her sugar would have responded. But she said, You know, I think you are a type one diabetic. Unfortunately, this is not something that goes away. You know, I had heard of gestational diabetes. I wasn't super familiar with it. And I, you know, just kind of, I guess, asked again, that was my only question was, are you sure this is not gestational? It's not going to go away when he's born. And she said, No. And at that point, I pretty much just couldn't pull myself together enough to even ask her any questions. And she just apologized for having to break this news to someone that you know, she had never even met before. She was super sweet. But that was a shock. Nobody in my family has type one. No autoimmune that we're aware of. I do have a type two grandfather. So you know, familiar with that side of it. But type one was pretty new to me.

Scott Benner 6:04
No autoimmune at all. Ra celiac.

Adrienne 6:07
My grandmother had on my dad's side, a gluten intolerance, which she says is going away. So

Scott Benner 6:15
how old is she?

Adrienne 6:17
She just turned 80.

Scott Benner 6:19
My friend, Mike, he's gone now. But his grandmother when we were growing up in the in the last 10 years of her life, she poundcake and smoke cigarettes. What away? She just did not eat food anymore. Get up in the morning, have a piece of pancake, smoke a cigarette? And then that's just what she did all day long. I just wonder if maybe she stopped eating gluten didn't realize that the gluten thing is going away. Right,

Adrienne 6:42
right. Well, she did avoid it for some time. And now she says she can have little bits and not be bothered by it. So good for her.

Scott Benner 6:50
Yeah, I stay alive long enough. Yeah. Well, okay, so that's interesting. But I have your notes here in front of me. So it's a little unfair. But do you have anything else going on besides the type on post

Adrienne 7:02
type one diagnosis actually also received a bipolar two diagnosis? This was last August, and I am still not 100% settled into that. A lot of things about it do make sense, with, you know, my my history, but I haven't fully embraced that, I guess quite yet. I'm still navigating treatment and trying to find something that alleviates symptoms. Yeah, we're still in the throes of that. So yeah,

Scott Benner 7:29
I asked because if you listen to the podcast, you've heard me say this now. You know, when I started saying to people, is there any other autoimmune in your family? Eventually, people like they rattle things off? Like you just did it? You're like, I didn't ask about type two. But you said, oh, you know, somebody has type two. A lot of people would go, Oh, and I have my uncle's bipolar. Like they were just thinking of things that were, you know, wrong with people. And then they in their family and they would blurt them out. And my god, like, that's one at a time somebody said, My uncle's bipolar. I was like, What the hell is going on? You know, like, and I always wonder if it's not an inflammation issue, like autoimmune inflammation, that kind of mix. It's I mean, I obviously barely got into high school. So I don't know. But it's, you know, anecdotally, a lot of people say bipolar to me. So Right. Yeah, that's interesting. Yeah. And was that your whole life? Like, did you like you said you there were signs what were the signs growing up? I'd like to introduce you to your partner in eating healthy, hungry route. The easiest way to eat healthy hunger route has the best fruits, vegetables, premium meats, kids snacks, soups and stews, baked goods, and so much more hungry route.com/juice box. You can save hours of planning, shopping and cooking by letting hungry route deliver food you'll love right to your door and hungry route is here to support your fueling goals. Do you need more vegetables less sodium hungry route can make that happen? If you're ready to dig in, use my link hungry route.com/juice box links in the show notes links at juicebox podcast.com. This episode is sponsored by Medtronic diabetes, Medtronic diabetes.com/juice box. And now we're going to hear from Medtronic champion Jalen. I

Speaker 1 9:15
was going straight into high school. So it was a summer heading into high school was that particularly difficult? Unimaginable. You know, I missed my entire summer. So I went I was going to a brand new school. I was around a bunch of new people that I had not been going to school with. So it was hard trying to balance that while also explaining to people what type one diabetes was. My hometown did not have an endocrinologist. So I was traveling over an hour to the nearest endocrinologist for children. So you know, I outside of that I didn't have any type of support in my hometown. Did

Scott Benner 9:48
you try to explain to people or did you find it easier just to stay private?

Speaker 1 9:53
I honestly I just held back I didn't really like talking about it. It was just it felt like it was just an repeating wreck. Where I was saying things and people weren't understanding it. And I also was still in the process of learning it. So I just kept it to myself didn't really talk about it.

Scott Benner 10:07
Did you eventually find people in real life that you could confide in. I

Speaker 1 10:12
never really got the experience until after getting to college. And then once I graduated college, it's all I see, you know, you can easily search Medtronic champions, you see people that pop up and you're like, wow, look at all this content. And I think that's something that motivates me started embracing more, you know, how I'm able to type one diabetes, Medtronic

Scott Benner 10:32
diabetes.com/juice box to hear more stories from the Medtronic champion community, I

Adrienne 10:40
guess, early to mid teens, I started having issues with depression and anxiety. So I've been treated for that since I was in my teens. But with bipolar two, there are more stretches spent in depressive periods, then there are in hypomania. So the difference between type two are bipolar two and one, you don't quite reach the full heights of mania. So you're maybe irritable or anxious, restless type of thing, but you're not just totally off the rails experiencing things that bipolar one usually would. And again, it's more time spent in depressive episodes, but you know, you live your life, like everything is revolving around the problems that you're having. And I have found just some selfish things, I guess about myself in the way I've lived in the past and just kind of disregarded what might be going on with the people close to me, when I myself am dealing with something. Everything else kind of just shuts off, which is embarrassing to even talk about. But then I'm worried that this is just going to talk sound totally scattered, because this is pretty new to me. Like I said, I'm I'm still not even fully convinced that that's what's going on. Okay. There are things about the diagnosis that, like I said, makes sense just about my personality and the way that I have lived but haven't found a treatment yet, that is super helpful. So I'm not fully convinced that that's what's going on. But they said that something like bipolar two could be triggered by the type one diagnosis, you know, being a traumatic event could also have been pregnancy. I do really notice though, that when my blood sugar is on a roller coaster, my mental state follows. So I think that's pretty normal for people with, you know, high sugars to have your inability or you know, just to not be themselves. So it's hard for me to kind of differentiate what may actually be bipolar versus just, you know, the things that go along with type one. Yeah,

Scott Benner 12:33
I don't have bipolar and my personality ebbs and flows with my daughter's blood sugar. So that's, yeah, that's fair. Yeah. Long depressive episodes. What does that look like? Like day to day?

Adrienne 12:45
Well, so this is actually another interesting element, they diagnosed me as rapid cycling bipolar two, so I can I can swing from, you know, it seems like one minute to the next, but I'll have a lot of ups and downs within a day. I think that the actual guidelines for diagnosing bipolar two, rapid cycling would be like four, or five depressive episodes in a few months, which to me doesn't seem that rapid. No, not at all. Because I like I'm sitting over here thinking I'm swinging you know, one side of the pendulum to the other multiple times of days. So

Scott Benner 13:20
Adrian, what's that look like? Is it like, oh my god, the world's ending? Everything is Terrible. Let's go climb Mount Everest, I just want to die. You guys want to try it? Like Like, is it like, sorry? Oh, hell, no, I just jumped to the. But like, is it like that is it just like, like, up, down, up, down, up, down like big swings like that, it

Adrienne 13:41
is big swings, I can go from like, I'm trying to think of just an example here, I wake up in a completely awful mood, you know, usually it's a crying baby that jolts you out of bed. So there's there's that it's a way to start the day. But you know, I'll walk into you know, take them out of the crib and we can have a restart, be totally snuggly, and you know, just head downstairs and something can set me off. It can be you know, the dog tripping us up as we go down the stairs, or just something that, you know, didn't get put away from the night before. And it just totally sends me into this spiral of oh my gosh, I'm not gonna get anything done today. Like, look at all this stuff that's got to, you know, happen around me and I'm working full time from home while also caring for the toddler and you know, most of the household stuff kind of defaults to me, I know you've had that experience in your life. But it's just a constant feeling, I guess, of being buried under the things that you see need to be done. When something good happens in your life that you know it can can really increase or better your mood, but then the slightest thing can really tip you off. And I feel terrible for my family because I know that I can be difficult to live with. I feel like my partner walks on eggshells. Oftentimes when he comes home because he doesn't know what version of me he's gonna get. But I keep telling myself that this is just a crazy period of time. I have lots of new things going on with the baby and the new diagnosis. You know, type one, I'm still navigating that there were no pre pregnancy settings to default back to and my insulin needs are constantly changing still. And

Scott Benner 15:14
can I ask a question here, if you had your thyroid checked, so,

Adrienne 15:17
because of you, I had actually requested some more in depth thyroid panels pretty shortly after I got diagnosed. type one, and they ran another panel just last week, actually. So I just got those results back and everything looks pretty normal. My TSH is like right on the border of low like the the low end of the scale, and I know this different app can be one second, by

Scott Benner 15:45
the way, you should see my notes in front of me 29 Bipolar question mark diagnosed during pregnancy thyroid question mark bleep

Adrienne 15:56
oh, gosh, okay, I

Scott Benner 15:58
had to make the note, Adrian because I got really panicked that Rob would take out the whole sentence and I really just wanted the word out not the whole sentence.

Adrienne 16:04
It's so funny. No,

Scott Benner 16:07
it's chalupa real. That's one of my other notes. I don't know why you people listen to

Adrienne 16:14
I do. I can't remember it yesterday. I was listening to it was an older episode and cut. I was in tears. Scott. You had me cracking up? I'm

Scott Benner 16:21
gonna have to go hilarious. Yeah, no, you really are. No.

Adrienne 16:25
I gotta say, too. I found the podcast. My first night in the hospital. I spent three nights in the hospital after I was diagnosed. And I pretty much went without any good information straight from the doctors because I was getting so much conflicting information. I went to Reddit, which I know you have mixed feelings on.

Scott Benner 16:44
No, no, no. Let's be clear, because that's not good. I love Reddit. I just don't go there. That's all the people on Reddit are very nice to me. I love you all. Don't let this lady speak for me. I don't say anything bad about you. Do not get me in trouble on Reddit. Adrian, what are you doing?

Adrienne 16:57
Oh, sorry. No, no, I thought maybe I had heard once that just weren't maybe weren't sure what the platform was.

Scott Benner 17:05
I don't want to say there was one time No, no, we won't talk about that. Anyway, the people on Reddit are really kind and they always are telling people about the podcast. I'm being genuine and sincere. Yeah, they are

Adrienne 17:15
absolutely wonderful. So that I was actually referred twice to the podcast in my first post, and I had cross posted my initial inquiry into a few different subreddits. But Heidi's pottery and you'll one one night, and they both said you have to listen to the Pro Tip series. And so the first episode I heard was newly diagnosed or starting over.

Scott Benner 17:35
So that makes you upset. It

Adrienne 17:37
is it's no not in a bad way. At

Scott Benner 17:40
all, let me know. Just kidding. Actually, Adrian, it would be great for the podcast, if you had a big mood swing while we were recording, but I don't.

Adrienne 17:50
You're in for a treat.

Scott Benner 17:52
So people reached out and they found you. That's amazing.

Adrienne 17:55
Yeah, they responded to my post. And you know, everybody just had the best words of encouragement and it was a lot of No Hey, sorry, you're invited to this crappy club arrived. But it is a great community and they could not sing your praises highly enough on there just was so so grateful that they pointed me your direction. Because honestly, like I said, with the the mixed info I was getting at diagnosis, your podcast was such a pillar of consistency and solid info that I could tell was really impacting people just from the Facebook group. I was in that really quickly as well. The community there is just unmatched. So so grateful. You're

Scott Benner 18:35
doing Who am I thinking? Yo, MTV Raps and Heidi song, what am I doing? Heidi's pottery? Oh, okay, thank you Heidi's pottery,

Adrienne 18:43
and Yo, 119119

Scott Benner 18:47
I really, I genuinely appreciate all kind you guys are and that you were sharing with me? Look what you did for a drink. It's really amazing. I would have never found you that way. You know? Yeah,

Adrienne 18:56
it's a it's a big world out there for sure. But just super grateful that they happen to see that post and, and come up listening to you. Yeah.

Scott Benner 19:06
Obviously, you're making the post because you need help. And I'm gonna I guess let's dig backwards a little bit. You came out of the hospital with what was your understanding of diabetes leaving the hospital or even in there?

Adrienne 19:16
They mostly were just trying to stabilize my sugar's I wasn't like, off the rails 91 See at diagnosis was only 8.9. And so they thought that it must have been the pregnancy that kicked it off. My agency wasn't high enough for it to have been something before that. And so they sent me straight to like labor and delivery. And so that's where I was being treated. They seem to have I mean, and I would never be able to tell the difference obviously at that point, you know, whether they knew much about type one or not. They seemed to they got my sugar's down, I you know, was vaguely briefed on how I would be handling things with both short and long acting insulin when I left. I never gave myself an injection at the hospital. They did it each time. And then the only education I really got was my OB coming in to check on me and my actual doctor in the middle of the night he came in at like two in the morning, I had just fallen asleep not that long before. He was talking about my lifespan and all the complications that were gonna happen while you're walking out of a dead sleep to tell me these things. And so that was the impression I had of type one when I left. The hospital was like this doom and gloom thing he did say, you know, there's some technology now that helps with management. But basically, this is where you're headed. That was really awful. And then I was referred to an endo, who works within the hospital system there. And she, Okay, I gotta, I gotta rewind a little bit. So when I found your podcast, you know, I started hearing all this about Dexcom and Omnipod. Those were the two, the two things that stuck in my brain. And so then I left there, really urging my teams to help me get this technology. And I was set up with a virtual visit with a diabetes educator. A couple of days after I was released from the hospital. When we logged on, she said, Oh, you know, I was really hoping you'd be here in person, because I wanted to set you up with a Dexcom. And I just about came out of my skin. I was like, I will be there in 15 minutes. You know, please let me come in, don't get

Scott Benner 21:18
the guy on the phone said that word. Right. You're like, I heard the guy on the podcast, say that word. Yes.

Adrienne 21:24
Yeah, I need that. Yeah, I will be there. And she's like, okay, yeah, I'll wait for you. And I could not believe that I figured she was going to reschedule me and you know, make me wait for this. But so we got that set up. That was great. And then, after seeing her, I finally got connected with the endocrinologist. And I asked her pretty much immediately about getting on a pump. And she said, It's too much for you to learn right now. I don't think you can do it. And I was like, at listen, I will tell you what I can or can't learn, you know, my main concern now is not killing this baby. Like, they don't even want you to get pregnant as a type one, unless you're a onesies below a certain level. And I went into pregnancy, not even knowing that I had this. And so I'm panicking thinking that I'm going to harm my baby. I just want all of the tools that are available to me. And so I really pushed on Omnipod. And she was not going to do it. And so I went back to my diabetes educator. And, you know, she had kind of given me the impression that she thought I could I could handle this information, you know, that I was catching on kind of quickly. And I credit the podcast with that, by the way. She Yeah. She said, Okay, well, I'll see what I can do. I'll put some notes in and, you know, we'll, we'll talk to the Endo. And that never happens. She didn't put notes in my file, but I had reached out to insolate you with their insurance coverage check. And they reached out directly to my Endo. And before I knew it, I had a prescription on file at Rite Aid for the entrepot. Five. And where did this even come from? Because my endo never approved it. I never talked to her about it again, all I did was ask about my insurance coverage. So I don't know what happened there. But yeah, I ended up on the Omnipod. Five within a month of diagnosis. I think I think insolate for that because I you know, I couldn't get anywhere with my doctor. Yeah.

Scott Benner 23:11
I mean, it's not uncommon, like, you know what, you bumped into there. And that person didn't know you? They didn't How much time do they have with you when they said I don't think you can handle this.

Adrienne 23:22
I was in her office for probably 20 minutes. But the only reason for that was because she just kept talking over me and talking over me talking over me and I, I left they're so frustrated and discouraged. You know, this person is she's not hearing my questions or my concerns. Like, I know, there's there's also the element of you don't even know what to ask, because you don't know what information you don't have. But it seems like she just was looking down on me, I guess because I didn't know what I was talking about. And like she just had

Scott Benner 23:54
diabetes at that point. Eight seconds. Right? Yeah. A little over a week. Right? Of course, you know, and she's not asking you questions. She's, she's just pontificating. Pretty

Adrienne 24:06
much. And I got the the typical, you know, 15 carbs to treat a low was on a sliding scale before insulin, and they had started me on mph, which eventually got changed, thankfully, because I didn't have a great experience with that. I feel like I'm just talking circles now.

Scott Benner 24:23
No age. Are you doing great. Are you really worried that you're not doing well? Well, I

Adrienne 24:28
was mostly worried that the story wouldn't even make sense. I feel like there's so many elements I've just been jumping around. Not at all. Don't

Scott Benner 24:34
worry about I'm following you perfectly. Well, don't worry about that. Yeah. Okay, so they get your pump. Did you get a CGM at the same time or no,

Adrienne 24:44
no. So I was on a roll. I had the Dexcom about six days after diagnosis and then the Omnipod five a month after and after I got the prescription for the Omni pod. They actually had an alert come out for a shortage of Omnipod vibes and so I was supposed to be going in for my pump training in a couple of days. And so I was waiting on. It's like a provider who delivers your prescriptions, I guess it's alto pharmacy and they were supposed to be delivering Omni pods. Then I got an alert that they were in short supply. So I spent a long time on the phone with the pharmacy and this poor girl. She was just so wonderful. I told her like, I'm about to leave town. I'm supposed to get my pump training right before I go, you know, is there any way I can I drive and pick these up somewhere. And she's like, well, it looks like there's a pharmacy. This place was three hours from my house. I'm just gonna do it. I drove and I picked them up. That was my first box. Wow, that's, yeah, got the training.

Scott Benner 25:41
My parents picked me up to adopt me in during a tropical storm. They said it was like a hurricane. And I always felt like that meant some thing like that. They probably really wanted me. But now I look back as an adult. And I'm like, it's probably the only baby they got offered your life one way. What is this pumpkin to do? It better be special. I

Adrienne 26:05
was so so glad to be able to even pick it up. I don't care about the drive. But ya know, that was that was great. And I've actually since switched from Omnipod five on the dash now and I'm looping with Android APs.

Scott Benner 26:19
Oh, look at you. Did you move into Dexcom? G seven. Are you still with G six?

Adrienne 26:22
I'm still with G six. But yeah, I just started looping. Right before Christmas. Christmas Eve actually was my first day on the dash. So that's Did you say you do it so far. I EPS Android EPS. Yeah. Who

Scott Benner 26:35
did you set up yourself?

Adrienne 26:37
So I set up the Nightscout through T one pow. And then I built built a PS on my own? Yeah. Good for you. Yeah. Awesome. Awesome. Instructions. Yeah,

Scott Benner 26:47
no kidding. I am. I let somebody helped me, but still. Thank you, Mike. I wish I did. Yeah, no, no, I there's a part of me that knows for sure. I wouldn't do it. Right. But it's working astonishingly well for Arden. Really great. Really? Yes. So and she's using it with G seven, which is nice, too.

Adrienne 27:06
How is she liking g7

Scott Benner 27:08
It's smaller and easier to swap. I think that's what she knows about it. So it's what she gets. Arden really doesn't dig nuts and bolts into diabetes. Like she knows how to do it. She knows how to handle like I've not seen she's been in college now for a year and a half. I haven't seen one circumstance come up that she hasn't handled well. Like really, really good and outstanding. Yeah. But she's she's not wanting to talk about it a lot. She doesn't want to sit around and talk about IVs. Even if I come up to her, I'm like, Hey, we have to do this. Because of this. She goes, Okay. I'm like, do you understand? She goes yeah, and I'm like, okay, but it's not dismissive. It's just she's not looking to conversate around. That's fair. Yeah. Yeah, there's nothing about me. I don't talk about it either. Which is probably weird for people to hear. But I don't. I don't find myself talking about diabetes very frequently.

Adrienne 27:55
I imagine you spent so much time doing it on the podcast probably doesn't leak into your personal life.

Scott Benner 28:00
I'm tucked out on it. I'm good. I've had enough. I've had enough conversations. I want to, I want to, I want to make sure this timeline is right. So how far along are you when you're diagnosed? Tell me again, late 19 weeks, 18 weeks now I'm gonna do some quick math. That's like five months. And you're probably impressed off. So did that. But don't think it's great. Yeah, thank you. It's actually four months in three weeks. But so five months, you still have month 678. You still got four to go. And you're on a pump pretty quickly, six weeks. So you do a pump at a CGM for the last three months of your pregnancy? And where did you get your a one C two during the pregnancy? So

Adrienne 28:45
I started at 8.9 that diagnosis and by the time I gave birth, I was 5.4. Which I don't know if that's actually good or not, because it seems like a huge drop in that amount of time, which I know is not good for you. But my sugars were so much more in control. I was proud of myself, my team was impressed with what they were seeing with the graphs, and I just could not have done that with a podcast. I

Scott Benner 29:14
well. Oh, well. I'll let you say something nice about me in a second. But I was gonna say that as much as I don't know the actual ramifications of you bringing it down that quickly. I think for the baby. It's the step I would have thought I would have said, Hey, let's get it down. You know, because we're growing a baby here.

Unknown Speaker 29:29
Right?

Scott Benner 29:30
Did you change your diet? Was there any more Taco Bell after that? No,

Adrienne 29:35
no more Taco Bell, although so this is kind of another interesting element too. I feel like the type one diagnosis really messed with my relationship with food, which I'm sure you hear all the time, but not in the way that I would expect. So I did control myself better during the pregnancy for baby's sake, but holy cow after he arrived. Self control abilities really just plummeted. So, I found that the the foods that I was figuring out the Bolus for the best were the worst foods for me, you know, things that I would just try and fail, try and fail until I finally figured them out. Like I have to know how to Bolus for a decent amount of fries. So you know, things that I just, I don't want to give up. Like, I'm more inclined to eat the things that I know I shouldn't have now that I know that I shouldn't have them, you know, almost like I don't, I don't want to be told you know that I can't do something food was a really big, I don't know, I'm a foodie, I love I love the experience of eating and I'm French fries as a terrible example to demonstrate that but I would miss that you know, and so it's really important to me to know that I can maintain, you know, a normal sense of

Scott Benner 30:45
well listen, anybody who's ever bitten into a properly cooked french fry with crispy and salty on the outside and squishy and potato in the middle is not gonna that's a good example. I think so i

Adrienne 30:57
think so probably not as good as a chalupa, but we'll go with it. Yeah.

Scott Benner 30:59
Did you know by the way, in 1997, Taco Bell ran a commercial with Chihuahua named Gidget. And, and I think

Adrienne 31:06
you know, Taco Bell.

Scott Benner 31:07
Yeah. So say that again. You know, Taco Bell. The reason I bring it up is because when I remembered I remembered a secret or Taco Bell. And I don't know any Spanish at all. I just wonder how it stuck in my in my head. Like, how did I get quitter? Oh, right, but not the yo. So anyway, I'm upset with myself over that one. Do you think now 97 You know that one? 2007 2000. So that's 30 years ago.

Adrienne 31:33
Did it run longer than 97? I wonder because I definitely remember the Chihuahua.

Scott Benner 31:37
It's huge on YouTube. Like legitimately, like, almost like this is the commercial. It's a little chihuahua. He's like running through the street. And then he sees another shoe ally falls in love. And then what happens tolerance passes by.

Okay, so here's the premise. That Chihuahua is running down the street. There's another Chihuahua, a lady Chihuahua, who's looking at him with love. But he rolls right buyer to a guy eaten a taco and then says what he says. My kind of dog bites what I'm seeing from you, is you would probably give up love for a taco.

Adrienne 32:27
I might, I might

Scott Benner 32:30
see you ended up getting very good at bolusing for things that you're like healthwise, I shouldn't be doing this. But hey, look how good I am at boys and for it.

Adrienne 32:37
Well, I think I've gotten better at bolusing for those things. I don't know if I've gotten good at it. But I did figure out there's a sandwich from Panera that I have nailed. You know, things like that staples that I crave often. Like, I gotta figure that out. Because I don't know if I'll make it without having that in my life. So here we are.

Scott Benner 32:57
What's the Bolus for the sandwich? What do you do? So I

Adrienne 33:01
actually have to drag that out. And so I'll tell you, I haven't eaten that Panera sandwich. Since I started looping. I'm having trouble with the extended carbs and getting those to work right, with APS but still working it out. But when I was on Omnipod, five, it was an extended Bolus for like two and a half hours. And I would do about 60% upfront and the other 40% dragged out. My carb ratio is one to 12 Currently, I don't know what it was at the time, but

Scott Benner 33:28
you're in manual at that point with Omnipod. Five. I

Adrienne 33:32
never stayed in automated mode after Okay, so Oh, because you couldn't while you're pregnant. Right? Right. Yeah, just wasn't tight enough. Right

Scott Benner 33:40
control. So I was gonna say cuz you said extendable. So I was like, that's gonna confuse people. You cannot do an extended Bolus and automation with sorry, don't be sorry. Be apologizing. And I'm, I'm cleaning it up. Don't worry. You're good at that. Yeah. So you're like doing a heavy extended Bolus on this sandwich. You've got it all figured out. It's working well for you. Do you Pre-Bolus it?

Adrienne 34:00
Oh, yeah. Yeah. And that I think postpartum has been a huge hang up for me the Pre-Bolus. Because if, if I do Pre-Bolus Oftentimes, I'll get distracted by something else and then totally forget to eat and then I'm tanking. Or sometimes it's like, oh, shoot, you know, I forgot to Pre-Bolus and now I know I'm going to skyrocket. So it's, you know, adding that extra extra amount onto the front end of the Bolus and hoping to even it out later.

Scott Benner 34:28
Are you finding it difficult to be a mom? I

Adrienne 34:32
am i i love it. I would not trade it for the world. That little boy is just my pride and joy. But yeah, it's been hard. the postpartum period was really rough. And I feel like with the type one diagnosis, you know, this sounds selfish, but I feel like I got robbed of a very happy time in my life. Of course, the pregnancy was perfect. I didn't really have morning sickness. I think I got I got sick twice over the whole pregnancy. You know, most of the The downsides that you hear about carrying a child just didn't apply to me and it should have been a really joyous time in my life if not for this. And same thing with the first year of his life. You know, I, like I said, I had no pre pregnancy settings to go back to for my pump had no idea what my needs would be. I have no idea. If I was honeymooning. I'm sure I probably was. But my requirements change.

Scott Benner 35:24
Yeah, you might have caught a little bit of a break while you're pregnant in the honeymoon, but still a heavy usage because of the hormones I imagined. And then you have the baby and you don't need as much but you don't have any frame of reference for how to go back. Right?

Adrienne 35:35
Exactly. Yes. It's like starting from scratch. Yeah. Twice, eight, six months.

Scott Benner 35:39
Yeah, yeah. While you're supposed to be celebrating this, this, this thing that may be coming in instead, you're Listen, I'm not a lady. But I've been married to one for a long time. I would imagine that getting really bad news during a time when you're so flooded with hormones is probably extra difficult. It

Adrienne 35:58
was bad. It was bad. I ended up back on antidepressants after having like a total meltdown in my OBS office. Like alright, but I feel like he kind of wanted to just wash his hands. And he's like, Well, we'll get you taken care of and we'll see how this goes after you give birth but we're

Scott Benner 36:14
gonna get this one. Hi. So she stopped yelling. Right?

Adrienne 36:19
It was like yelling. Crying,

Scott Benner 36:21
I would imagine. Yeah, like devastated. No, yeah, absolutely.

Adrienne 36:25
Yeah. Cuz you're, you're afraid for your kid and you're afraid because this, you know, same guy who is now like, Okay, well, we'll start John, something he was the one that came into my hospital room in the middle of the night was telling me how my life was gonna be shorter. And I was gonna have all these these problems down the road.

Scott Benner 36:41
How much shorter? Did he tell you? This is ridiculous.

Adrienne 36:45
I don't think he gave me an amount. He just basically told me that type ones are known to have shorter lifespans, especially women. He said, I don't know why that is because I feel like when I googled that after, I didn't see anything

Scott Benner 36:58
like that, but probably knew one lady that died. Yeah, yes. You

Adrienne 37:02
know, aside from that experience, he was the most amazing doctor, I really loved him. So that was that was really bizarre to me.

Scott Benner 37:09
But there's one day when when he ignored the fact that I was pregnant for the first time having a baby super excited, all of a sudden found out I have an incurable disease, and then started thinking about my own health, and the baby's health. And the fact that I didn't know what I was doing. And all the joy was stripped out in my moment. And then he's like, Hey, by the way, you're probably gonna die sooner now. Right? Yeah. I don't know why that didn't go. Well, Adrian, this It's baffling.

Adrienne 37:36
Ya know, oh, my gosh.

Scott Benner 37:40
Is Wrong with everybody? Let's say you were gonna die sooner. Let's just say that that's true for a second. We can't hold on to that information for a little bit. That has to come out today.

Adrienne 37:53
My friend, yeah. Figure it out.

Scott Benner 37:55
That guy is not married. Or if he was that lady left him.

Adrienne 37:59
His appears happily married with a couple of kids. Yeah,

Scott Benner 38:04
I don't know why what she's putting up with at home or What? What? Maybe he's got common sense at home that he doesn't have when he's sitting with you. Also, you look young. I know. You're not young. I know. You're 29. But I know what you look like. You look young, like even that you would think would would like I don't know, like garner a little bit of like, fatherly care from the guy or something like that. Like, you know, you're gonna die sooner. To weird place to start, you know?

Adrienne 38:29
No, yeah, really, as it is. Wow.

Scott Benner 38:32
Yeah. What are you gonna do? Exactly. So, so I'm sorry. So baby comes flying out. That all goes great. But then Besides, your insulin needs changing, you get hit with postpartum how quickly? Does that happen after the birth? And how long does it stick with you for and what was it like?

Adrienne 38:49
Well, I would say within a couple of weeks, I noticed a big change in myself. And my partner took I think he took about a week and a half after the baby came my boss so it's, you know, funny enough, he is actually type one himself and he was in the car with me the day that I got called in to come to the hospital after I had monitored my sugar's you know, that weekend after the initial doctor's appointment? Yeah. So he heard me reading off my numbers to the nurse, and he had no idea what had been going on. And when I hung up the phone, he said, that sounds like blood sugar. And that doesn't sound very good. And I was like, geez, no, thanks. He has been a great resource for me. But all that to say this company that I work for is about eight men. And there's no precedent for what happens when a female employee needs to take maternity leave. And so when he found out I was pregnant, he's like, Well, what do you think? And I said, Well, I think standard in the US is 12 weeks. And he said, Oh, I was you know, thinking more like three weeks. Oh,

Scott Benner 39:49
you bring the baby to the office right after you have it and keep working place.

Adrienne 39:54
Well, thankfully, I work from home. And so they they were flexible. They met me at eight weeks, but Even still, I mean, anybody who's had a baby would say, that's just not enough time, especially when you're navigating all this new stuff. And I would say within a couple of weeks in, to circle back to your question, I started noticing, like I said, a change in myself, it was a really lonely period. You know, when your partner's gone during the day, you're now responsible for caring for this small human, you have no clue what you're doing. You know, you're navigating this new disease at I breastfed and nursing dropped my sugar a lot. And so I was having scary lows. I remember my partner coming home from work, and I was just completely out of sorts. I don't remember where the baby was somewhere safe. He was either in his crib, or maybe sleeping in his swing or something like that. But my partner found me just kind of wandering around trying to put on this baby carrier sling thing that I had, and I was not making any sense, you know, he was totally sweaty and shaky, and just not, you know, I didn't want to eat anything. But this poor guy he has put up with a lot, you know, that fell in love with me. I mean, he didn't know what he was signing up for, you know, he has a son from a previous marriage who just turned 16. And he had not been planning on having any more kids. And so our son Lucas was a

Scott Benner 41:20
blessing to us. Yeah, fries blessing, but it happened after a wedding. No. Do you guys go out to a movie try to have dinner? Thought it would be safe. What happened? No,

Adrienne 41:29
no, just, uh, we're, we're still not married yet. That's that's down the road. But I actually found out that I was pregnant on a business trip. That was the shock. So

Scott Benner 41:38
hey, guys, I'm gonna need 12 weeks off and about a year. Right? Yeah, surprise.

Adrienne 41:44
No, but right after we found out we were pregnant, pretty much. You know, within a couple of months, I got this diagnosis. And now he's not responsible for me. But he's encumbered with all of my alarms. And you know, whatever nonsense I'm dealing with on a bad sugar day. You have concerned about that? Well, I mean, the alarms kept me up all night, every night, up until birth, pretty much. And now you know, baby's awake in the night, my alarms are still going off. Like he he gets the backlash from when I'm frustrated by sugars. You know, every time I'm high or super low, I feel like I'm failing, which is extra scary to me, because I'm worried that my son is going to get it. That's really heavy on my brains. I've been paranoid about that since since I was diagnosed. Even just last night, actually, my son had been drinking a lot of water. And he ended up throwing up in the middle of the night, which he hasn't done. You know, they split up when they're young, young. But yeah, in terms of actually getting sick, I had never seen that from him. And I just about lost my mind last night. We were checking his sugar, he was beautiful 72. But I find myself checking often, and I'm afraid of every sickness that comes into our house, because I don't want that to be what kicks it off for him. Just hyper, hyper aware. I'm

Scott Benner 43:05
about 23 years ahead of you, on my race to the grave with you, pretty far ahead of you. The best thing I could say, and the thing that I found very comforting and helpful throughout my life and raising kids and your childhood as type one. And, you know, my son has hypothyroidism. So does my daughter, you know, like, I've got health issues around me. I would just tell you that worry is a waste of imagination, that you absolutely have no idea what will or won't happen in the future. And you're using up your your capital now on worrying about something that might never happen and probably won't ever happen. But if it is to happen, I want you all charged up and ready to go when we're actually when there's actually a fight to fight. You know what I mean? Yeah, I know, that's not as easy said. And as easy said is done. But wait, I got that. I just get that back. Who cares? You know what I mean? I know it's, you know what I mean? It's a saying you all know what it means. It's you know, but it's absolutely true. And you will figure it out one day, so don't dilly dally get into it. Because you can't spend any time pre planning and worrying are not the same things. That is like you can you know what to do, right? If this happens, I'll test his blood sugar. Other than that, you'd never think of it again. People get sick. There's nothing you can do about it. That is very true. Yeah, you are not in control.

Adrienne 44:28
I believe that. I've seen that the last couple of years.

Scott Benner 44:32
And neither am I. I hate to pile on with the make you feel bad questions, but you're not married. And you got the baby. And a year ago, you weren't bipolar and had type one diabetes. And do you worry about that? Do you ever like look at the door at 505 and go hey, ain't coming back. Or like, you know, like,

Adrienne 44:53
worried that he's voice totally. Yeah. Well, I mean, yeah, that the thoughts have been They're for sure I feel, like I said, I felt like I became a burden when this happened, and especially, you know, with the, I never want my son to listen to this, and feel like oh, man, you know, my parents weren't expecting me or, you know, they're not happy. I'm here. But Adrian,

Scott Benner 45:14
if this podcast still around, when Lucas is old enough to listen to podcast, I am going to be such a successful podcaster that he'll just be thrilled that he was mentioned on my amazing show that's been running for 30 years. Don't worry about a plan for

Adrienne 45:28
that plan for it. Okay. I believe it. The thought has been there. Absolutely. A lot of this is now what he's signed up for.

Scott Benner 45:34
Yeah. I mean, I don't see how somebody wouldn't think that like not that you're like, actually thinking this guy is going to bail me. But I mean, like, like, what's

Adrienne 45:40
the appeal to staying for him? Well,

Scott Benner 45:42
I'm assuming you love you. That's not my point. My point is like, from your perspective, why would you not wonder about that? Like, that's not worrying? That to me seems like, Ah, okay. Well, I could see how this could end up happening. Now, once I've thought it through. I would voice it to him. And then I would like, I wouldn't worry about it again. Yeah. Because I think the worst thing you can do is in your heart, hold out even 10% of an idea that like there's going to be another shoot, it's going to drop, and then because it always I think it stops you from being completely present in your relationship. If you're worried the person is always going to leave you. That's absolutely, yeah, you're right. 23 years ahead of you. Well, I

Adrienne 46:24
won't have long to catch up to you.

Scott Benner 46:26
Oh, no. Yeah, you and I should be dying right around the same time, according to him. So right on your tail, Scott. I'm very good now. So I'm gonna live forever.

Adrienne 46:35
Excellent. Yes. You're probably dropped

Scott Benner 46:38
dead next year. And people go oh, remember when he said he was 10? He was gonna live forever.

Adrienne 46:43
Too many chalupas?

Scott Benner 46:44
I've never I don't do the Taco Bell.

Adrienne 46:48
It's good for you. I don't get it shouldn't shouldn't. Yeah, I

Scott Benner 46:51
don't get the whole you have it out there. Right. Is one of the shoe from the house somewhere. I live in a fancy place. No, I mean, I could be at a Taco Bell in five minutes if I catch one light. But I drive past that every day. And I'm like, I don't understand what you people are doing it. They're so good for you. For you. I really don't.

Adrienne 47:09
It's sometimes you just need something greasy and awful. Yeah, I don't

Scott Benner 47:13
have that. I don't have that feeling. greasy. Makes me feel unpleasant in my belly.

Adrienne 47:18
Yeah,

Scott Benner 47:19
yeah. You're right about that. So anyway, all right. What are we going to do? Adrian, we got, we got all of our problems laid out in front of us, we're doing pretty well with the diabetes, you're learning the algorithm or to get rid of some of those lows. So you can you know, sleep through the night, stop those alarms from going off. But what about the rest of it? How are you managing? I mean, you said they put you on some sort of antidepressant, but did you stay on it?

Adrienne 47:40
Well, I'm on something different now. So I was on the antidepressant through the pregnancy, and then through breastfeeding, because that's, you know, what has been studied to be safe for nursing women. But since then, they have put me on a different medication that's sometimes used to treat bipolar two, but it's actually a seizure medication. So I'm at the therapeutic dose of that. And some days, I feel like it helps some days I don't. So I really don't know if that's the meds or if it's just a better day, if that makes sense. I'm still navigating. And my last appointment I had with the psychiatrist, I was actually really low blood sugar wise, and just was pretty worthless for actually making any headway during the appointment. So that kind of put things on pause. So I'll meet with her again, in another month or so. I see her about every month, in another month or so. Yeah, we don't we don't meet every month. Okay. It's actually kind of hard to get in with her. There's a shortage of mental health professionals.

Scott Benner 48:36
Firing the Yeah, I think COVID might have done that. Yeah, I believe everybody a reason to need one and enough time to figure out how to do it. So yeah, a problem. Wow. I can't believe that as frequently as you can get in. It's

Adrienne 48:52
pretty crazy. And it's worse. I guess now with OB GYN is out here. People are talking about not being able to get in to see anybody you know that they're calling until October or November, which is obviously not an option if you're pregnant now, you know, so I thought

Scott Benner 49:07
you get here in October. That's where do you live in the woods or something?

Adrienne 49:12
I live in western Washington. So I'm on the west side of the Puget Sound.

Scott Benner 49:20
Region, Canada in the ocean. I hear what you're saying. Pretty much you got no, you're stuck. You better learn how to be an OB on your own. Do you think you'd ever have another kid?

Adrienne 49:30
Right now? No, I think I think we're good.

Scott Benner 49:34
I'm fine. Yeah, everything's fine.

Adrienne 49:37
You've seen that picture. The dogs sitting in the Burning Room? This is fine. Everything's fine.

Scott Benner 49:45
No one worry. You know, it's funny when my son was in, like kindergarten, he had this principle. And I used to joke that she was a great politician because if you came to her and said the building is on fire and the kids can't get out, she'd be like, don't worry about it. We've seen this before. We'll take care of It like, you know, she's like on that level. She passed away last week and I thought I could stop that one. No, let's hear her spin this.

Adrienne 50:10
Oh my gosh, I'm

Scott Benner 50:11
just teasing. She's like a eulogy.

Adrienne 50:17
Would you speak at my funeral? Scott, when I'm sure

Scott Benner 50:19
I'll never forget the day, I met Adrian. Oh, Jesus, what a mess. Do you have a lot of hope? Like, are you hopeful about your direction? Do you feel like you're focused and have the help around you that you need to get where you want to go?

Adrienne 50:37
I have such a great support system. I feel really, really blessed. And I feel guilty even complaining about any of this stuff. Because man, I know that there are people out there who are navigating a lot worse, alone. And so I do feel like I have hope I have got a great family in my corner. Nice. I'm really happy with my care team. Now I have changed. endocrinologist and my my endo now is actually type one herself, which is amazing. That has changed a lot about the way we approach there. And just her her understanding of where I'm at. And her her willingness to help me. I was shocked that she actually loops. I can't remember if I even said that. She loops herself. And so it was funny. I was actually trying to be covert in my, my my chart message to her when I was asking about switching from the Omnipod five to the dash. Like I think I'd like to lean towards some you know, tighter control and you know, more in depth settings or something. And I put like a winky face because I didn't know if I was supposed to talk about looping since it's not FDA approved. I didn't want that in her system. She wrote back she's like, do you mean that you want to loop? And I'm like, Well, now I feel like a weirdo for

Scott Benner 51:45
talking about it. Now. I

Adrienne 51:48
don't know what that is. Yeah, no, but that's, that's been wonderful. She's amazing. And yeah, just like I said, my family has been great through all of this, my mom especially, she lives a couple hours for me, but she has done everything she can to learn about type one and what's going on, I do feel like she has probably the best understanding of anybody in my family, she really dove in with me. And, you know, it's such an onslaught of new information that makes no sense in the beginning. And, you know, I probably buried her with all of my venting and complaints. But she's, she's been great. She gets it in. really grateful to have her in my corner, too. Yeah.

Scott Benner 52:27
I'm sure if you keep going the way you're going, you're gonna you're gonna find your way to the other side of it. You know, I mean, my wife had postpartum after she had call. Like, she was like, completely disconnected from him for a little while. Yeah, in the beginning, like he looked like, like furniture. Her I think, you know, like she knew, you know, the baby, and I love the baby and all that stuff. But she just she felt disconnected for a while. Until I heard

Adrienne 52:52
that. Yeah. That alone gives you feelings of guilt. Because you know, you're you're supposed to feel one way about this baby that's here now. And you know, to not have that right off the bat is really hard. Sure. Did she come out of it fairly quickly. Yeah.

Scott Benner 53:05
I mean, it wasn't. It wasn't too too long. And but she also had, you know, I don't know, like, I wonder too. We never were checking her thyroid back then. And I don't know that we even knew what to look for back then. You know, but she then after having Arden lived with, like, untreated hypothyroidism for years, but I don't know if it was, you know, what the situation was prior to that we look back sometimes to a couple of things that happened before. And some of her symptomatic stuff matched my son's before we figured out about his hypothyroidism, which is probably Hashimotos Oh, wow. And you wonder, like, how long was something like that impact? They may? And you know, like, how much effect does that have? If your TSH is two by the way? Did you ever figure out what it was in the paperwork?

Adrienne 53:50
I totally spaced on that until you started talking about this again, I just pulled it up. It's point 665.

Scott Benner 53:54
Your TSH is great. Yeah. So the normal

Adrienne 53:58
range point five, five to 4.78. So it's like right on the low end. And I don't know if I should push for that.

Scott Benner 54:06
I mean, if you don't have a problem with your thyroid that low TSH shouldn't be

Adrienne 54:10
an issue. Well, they said it was visibly enlarged my thyroid Oh,

Scott Benner 54:14
do you maybe have hyperthyroidism? That's

Adrienne 54:17
what I'm thinking this so they had some nodules that they weren't concerned about when they did the last ultrasound or thyroid ultrasound, I guess is what they do. But they didn't feel the need to explore that further. TSH is on the lower side, but the three T four looks great. Oh,

Scott Benner 54:33
yeah, I mean, I would want somebody paying closer attention to it because of just some of the symptoms that come with thyroid problems. I'm gonna yank up hyperthyroid symptoms.

Adrienne 54:45
I'm insanely sensitive to heat, like night sweats, out of control, which really piqued or I guess raised a red flag for me because that's something pretty new. I'd say within the last couple of months that is just really become a problem. So that's why I had asked again for that thyroid panel. This last week when they were doing my UNC and we'll see what she says I have an appointment with her in a couple days. So let's do

Scott Benner 55:09
a hands up yay or nay ready? nervous, anxious or irritable. Yay. All three hyper activity you may find it hard to stay still and have a lot of nervous energy. Occasionally mood swings. Yeah. difficulty sleeping. Yeah. Feeling tired all the time. Absolutely. Sensitivity to heat. Yes. Muscle weakness.

Adrienne 55:34
Not so much. You

Scott Benner 55:35
gotta pay too much. Not really know there's the a lot. Yes, he?

Unknown Speaker 55:41
Yes.

Scott Benner 55:42
Do you make the thin poopy diarrhea?

Adrienne 55:44
Not super often. No.

Scott Benner 55:47
Have you had a loss of well is gonna say a loss of interest in sex. You found out you were pregnant. on a business trip to a guy you're not married to I bet you that got rid of your interest. And we

Adrienne 55:56
had we'd been together for a decent amount of time prior to that. It's not like a one night stand. You

Scott Benner 56:01
probably have a back now on your side of the bed. Keep that thing over there. But do you have a loss of interest in sex? I do not. enlarged thyroid gland. Yes. excessive sweating. Yes. Loose nails.

No, any hives? No. Loss of hair. Yes.

You lost weight.

Adrienne 56:21
I fluctuate. I fluctuate.

Scott Benner 56:24
I mean, I go find a rock solid. Endo to take care of this for me.

Adrienne 56:29
I absolutely trust my current Endo. I just wonder if when she sees the actual lab results? She would think yeah, there's no reason to pursue this. I'm hoping not. I said with Kelly they you just pushed it right until they actually tried the meds for

Scott Benner 56:43
her. Here's what I might say. At the moment. I have a lot of symptoms that people are telling me are bipolar two that also match thyroid issues. Let's not be treated me for something I don't have. So this thing is a lot more controllable than the other thing. Why don't we find out if this is what this is first? Because I mean, can you imagine if you I mean I don't know. Again? Hand to god, I almost didn't make it through high school. But can you imagine? Can you imagine if you're being treated for bipolar two and what you have is a thyroid dysregulation

Adrienne 57:17
that would be absolutely wild and a huge relief, I think. Right?

Scott Benner 57:22
And so like especially because it all came on at once. Right? Right. You know after the baby and a lot of times ladies thyroids go pop snack or crack snack up. What am I trying to say? Crack? What am I trying to say? Pop? Snap, Crack. Crack Snapple pop? Is that it? Holy shit. I might have Bipolar to a lot of times thyroid issues. Yeah, go pop after pregnancies. Right? Yeah, true. I mean, what are the odds that you got bipolar two, and your thyroid exploded? At the same time as you got type one diabetes?

Adrienne 58:03
That's what I'm thinking just a hot mess over here. Wow. I really would love for it to be thyroid.

Scott Benner 58:08
I would love to be right about this. And I mean, a for you and your happiness. Sure. But I mean, B for me, because I would look like a master diagnostician. I wouldn't be a BA. I'd be like Dr. House. Except with a Paul. Absolutely. Yes. Yes. He's British. You know, the actor.

Adrienne 58:27
You have a good accent? No, I

Scott Benner 58:28
can't do it. But he he did an American accent on the TV show. So it doesn't matter. I'm good. Yeah. Yeah.

Adrienne 58:33
I'm impressed with their ability to do that. Sometimes.

Scott Benner 58:36
I hear what you're saying. Sometimes they're okay at it. Wow. I can't remember the rice krispies commercial, but I know the Taco Bell one.

Adrienne 58:46
That's interesting. It's a sign I think you're supposed to eat there.

Scott Benner 58:49
I think I'm supposed to start drinking caffeine. Yeah, my brain firing a little faster. Snap, Crackle pop. Right. Snap crack. That's exactly right. Who can we call the episode Snap, Crackle pop.

Adrienne 59:01
Please do.

Scott Benner 59:02
I don't see why we couldn't because we can't call it so. By the way, a thing you did not say you wanted to do just the thing I said out loud. All right. Let's get that out. Yeah, let's be clear, in case your kid doesn't have listened to this one day. Your mom's a face to face lover. Don't worry about it. That's an appropriate Adrienne.

Unknown Speaker 59:22
You're fine.

Scott Benner 59:25
Oh, no, I figured you were cool a while ago. Don't worry about it. Well, Jesus Christ, what a mess. Alright, I want this fix. And I want it I want a report back in six months. Is that fair? That's

Adrienne 59:38
fair. Yeah, I will let you know about the thyroid. Seriously.

Scott Benner 59:41
I would love to know Like honestly, whether it's the cause of all your issues or not. It needs to be well regulated, so that you can at least eliminate those possibilities because even people with well regulated thyroids seem see ups and downs with the symptoms throughout their life. Sure, you know, it's not a it's not a perfect system? For sure. Yeah, I don't know. I want to know more about this seriously, will you keep in touch for me? Yeah, I would love that. Alright, is there anything we haven't talked about that we should have?

Adrienne 1:00:11
One thing that I did mean to include that I didn't. And this, I think just speaks to the importance of advocating for yourself. So I have seen all across Reddit, all throughout the podcast, the Facebook group, but the general consensus was to not trust an emergency medical setting with your type one care. And so

Scott Benner 1:00:33
Oh, my news is freaking out.

Adrienne 1:00:37
Oh, yeah. No, no, I mean, I had already come to that conclusion. But this was just really eye opening. And it's been great. I love love that whistleblower Colvin? Oh, yes. But they totally lost my train of thought. So my OB, I had asked him, you know, what happens with sugar control when you go in to deliver because they actually induced me a couple of weeks early, which I guess is common with type one, moms delivering babies. And he said, Well, normally, we put you on an insulin and glucose drip while you're there, and it would be in our care, just kind of hit the brakes. And I was like, I really, really would feel more comfortable. If I could do it myself. You know, I'm on this pump. Now. Can I you know, as long as I'm aware, and we're not doing like an emergency C section or something? Can I be the one responsible for my own blood sugar? And he said, Yes. When I got there to deliver, the nursing team was not aware of that. And so I didn't really bring it up at first. And then it was time for me to do a pod change. And they saw me filling my pod. Somebody came in and they're like, what's that? Yeah. So it explained to her and then she was all over me about my sugars. And I remember my mom had actually brought a Starbucks breakfast sandwich one morning, it's like, the second day I was there. And I had eaten that. And the nurse had said, Well, if your sugar goes above, you know, like, this one 110 or 120. I think it was 120. She said, I have to tell Dr. Swanson. And all right. So every time she would come in to ask me, I had been watching and my sugar was slowly creeping up. And I was at like, 136. And she came in and she asked me what the sugar was. And so we just like, This is terrible. But we lied to her. But I didn't want to give up control of my sugar. And I was like, Oh, we'll get it back down. And it was fine with sugars were great. I never went over 150 Anytime I was in the hospital, despite the the food that they bring, and they'd be arrived, no complications. He was a little over six pounds, his sugar was great. Couldn't have asked for a better delivery. But

Scott Benner 1:02:29
congratulations. I'm glad. I'm glad he was good. And I don't mind you lying about that. I think that's fine. I want to say this, though, with deference to my wife, who's lovely and nice of her to let me talk about her on hair, stuff like that. Before my wife's thyroid issue was diagnosed, and she was being medicated. I thought she was out of her mind sometimes. Like I was making plans on how to murder if I'm being on, like, not legally, like, I wasn't really like hyperbolically. I mean, I would literally think like, how am I going to like, explain to my kids that this is the lady I picked to make babies with, like, like, it was like that kind of like, ooh, like all over the place. And then she got the Synthroid. And like, in a week or two, it was just like all gone. I was like, Oh, wow, that's better. So and it was for years. Like I really thought she was like, cuckoo for Cocoa Puffs. There's a lot of cereal references in this one today. I don't know why exactly. But you sound like you eat the food. So you're down with what I'm saying? I do I do. Lady rolling into the hospital, the Starbucks sandwich or something else wrong?

Adrienne 1:03:35
Yeah. When I was there at diagnosis I had, I was actually sneaking food. Clearly, I had no idea what I what I was in for here or what I was dealing with. But yeah, it wasn't anything terrible. I had like a grocery bag that had some apples in it and some nuts. And like, you know, they had already dosed me for dinner and they left me for the night and I'm just sitting there snack and listening to the podcast, like totally uncovered fruit carbs. Yeah, things have changed. But

Scott Benner 1:04:02
I also know a woman local to me, who I definitely know wouldn't want me telling her her name. But like I've said this before, like she was known throughout this town as being like, I don't want to say the word but you know, the really bad one the word? Yeah, you know what I'm talking about. It's got four letters, and we don't use it very often. She for you know, years like to everybody was just the nastiest person and then smiling and then not like it was really strange. And then one day, she did an apology tour around the town and came and found everybody and said, Hey, I'm sorry, it turns out I had like undiagnosed Hashimotos. And, you know, I'm, I'm doing well now and I can only imagine how I must have been and I apologize, like literally. So that's amazing. I'm just saying. I mean, I know you were depressed when you were a teenager, but I mean, I go find five girls that weren't and you know, a lot of different conversation. I don't know. I'm super excited for you to find out.

Adrienne 1:04:57
I cannot wait to get into the Endo. That makes me also

Scott Benner 1:05:02
agent. Can I say something? I have no business saying? Sure. And I mean, this was love because I've interviewed a number of people with bipolar. And I really do. I've enjoyed every one of the conversations. I count some of them as friends. Like the whole thing. You don't have the vibe. Well, sorry. I know that's not technical, but there's a vibe and you don't have it. Interesting. Okay. So find out.

Adrienne 1:05:28
Yeah, me too. Me too.

Scott Benner 1:05:29
You feel why I cut you off.

Adrienne 1:05:31
You feel? No, I feel like I'm off my rocker a lot of the time. You know, just and I don't know if that's just because I'm hyper aware of how I'm probably coming off to the people around me now that I have this, you know, possible diagnosis in my brain? Yeah, I don't know. But I would be,

Scott Benner 1:05:49
by the way, if you have Bipolar to whatever, like I'm not saying like, try to avoid it if it's true. But no, I'm saying like, read out the other more obvious easier to figure out items before you jump to you know, that. Absolutely. That's all. Alright, I'm gonna let you go. You were terrific. I feel bad about what I said Mommy makes is a face to face lover that seemed over the line. And I'm definitely going to get a review. Listen, let me just say it right now. If you want to leave a review that said that was creepy or agent didn't deserve that or whatever, blah, blah, blah. It's fine. Just make sure you sign the review woke girl. Okay, we that's all just please. You know, you can't screw around anymore. Like, by the way, I'm fighting back. And I think a lot of other people are too. I don't know if you notice this in culture right now. But I think the pendulum swinging the other way. I think we're gonna get back to Saturday. What do you think of that? I'm hoping so. Yeah. Oh, it's coming. I can feel it. The wind is blowing in the right direction. Now, I think everybody's tired of pretending they're not thinking everything they're thinking. Anyway, that's a completely different story. And hold on one second. And I will say goodbye to you actually. Here's the thing I usually do when you're not being recorded. But for you. I'll do it when you're being recorded. Watch this. Adrian, thanks so much for doing this. I really appreciate it. Did I say anything that made you uncomfortable? Or is there anything you'd like to have come out of the episode? No,

Adrienne 1:07:15
I Well, I mean, maybe the comments.

Scott Benner 1:07:21
Were bleeping that all out. Don't worry. Aside from that. Yeah, yeah. No, I you understand I went for the most bombastic mood swing thing I could think of. Absolutely. Not that I think you're like, Wayne or something like that. You understand what's happening right now?

Unknown Speaker 1:07:35
I do.

Scott Benner 1:07:37
It's, what is it a week after we recorded

Adrienne 1:07:39
now? About a week and a half? I think Yeah. Okay.

Scott Benner 1:07:43
So I don't want to stifle you. So I'm going to say what I want to say at the end. That makes that a fair. But you contacted me a few days afterwards and tell people what you told me? Yeah.

Adrienne 1:07:54
So of course, as soon as we hung up, I was kind of going through everything that we had talked about. And in my I don't know if it was nerves for the podcast itself. We're not really sure what but just thought of a bunch of things that I had meant to say, points that were pretty important to my story, and at least my experience with the mental health side of things that we had discussed, and just wanted to make sure that I left the full story on the table and wasn't leaving anything out. So

Scott Benner 1:08:19
I asked you a question you felt like you didn't answer fully. Is that right? That's

Adrienne 1:08:23
right. Yeah, you had asked what a typical mood swing looks like. And I think that my go to example, on the spot was something about the dog tripping me as I went down the stairs, you know, kind of setting me off and making me angry. But that just seemed like such a superficial example, I suppose kind of a knee jerk answer to your question. And it's a lot deeper than that. So just kind of wanted to clarify and tell me about it. Yeah, so I guess what I should have left in there was that I am a pretty high strung person on a day to day basis. There's just kind of like a persistent tightly wound feeling in my chest. And it's not unhappiness in any way. It's just anxiety, just kind of jittery, that type of thing. And so without any sort of aid, that's my baseline. For me, it's kind of up or down from there. And the reason I decided to kind of reach out for help in the first place was a newly developed issue with anger and sudden outbursts that I was having. So I could swing from my normal state to an absolute rage over something that seemed insignificant, kind of what I had touched on before something small could totally started off. So it could be a basic miscommunication with my partner or a stubborn high blood sugar that I you know, hadn't been able to tackle, getting cut off on the highway, you know, being overstimulated from a sensory point of view. Sometimes it's just looking around at things that I can't get to because you know, I'm fighting a toddler and trying to work full time during the day. You know, things that normally I would have handled with ease. Suddenly, were becoming these five alarm fires that would physically affect me in the moment and then later spiral me into these unhealthy III thought patterns. So my vision would start to wave or go dark, when it would get angry, and my heart would race, you know, start sweating all these things, and it's momentary, but it was totally overtaking me, which was scary to look at those moments and realize that you're kind of out of control. And then it could go a couple of ways. You know, sometimes minutes later, it's, it's gone, and you just needed a minute to, you know, kind of freak out and bam, your day is back to normal, then you, you know, feel remorse for that anger or lack of control, it's scary to think of yourself that way. It's embarrassing the way that you act, and you get further from your family, your partner, you start to feel like a burden. And, of course, you figure out how to course correct and move on from there, but then you're, you know, kind of full of this self loathing for being difficult. And you just get down on yourself and wonder how long it'll be before the people around you. You know, just kind of get fed up with it, you get tired of yourself after a while. So, you know, it's hard when frustration over something small becomes, you know, something that snowballs into, you know, I can't believe I've been this way, and I'm not cut out to be a parent, my son's gonna hate me for acting like this, you know, just it turns into this, this big ordeal in your brain that that really just kicks you while you're down. And on the flip side of that, sometimes you can just stay elevated. And I think one of the main differences between bipolar one and two they say is that we don't reach that full blown euphoric mania. So when we're in an elevated state, you know, it's it's irritation or restlessness, I think an another element of that, that I kind of saw from my past when this diagnosis was first kind of brought to my attention was that in that hypomanic state, you can have this sense of self grandiosity. And so I was laughing, looking back thinking about all the times that I had this great idea, like, Hey, I'm gonna pick up this new hobby, or I'm gonna get graded this, this is the time that I'm going to make it in music, you know, the band is really going to take off this year, that type of thing. And I have spent loads of money on materials for new hobbies that I never gave a second look to. So there's like, unopened boxes of soap making supplies and stuff in my garage from like, four years ago. Because you just get on these winds of productivity, and you know, thinking that you're going to do something great. And then it just kind of falls to the wayside. Yeah, a lot of times that elevated state for me is, you know, a mode of rage cleaning of something has irritated me, I will just jump into binge cleaning mode. So those periods are probably my most productive, but also probably the most unpleasant for my family, I would think.

Scott Benner 1:12:30
What made you want to clear me because you gave an answer, right? Like, nobody would have listened to your episode and been like, Oh, she skirted the question, like so it was important to you, actually, when I got your email, and I don't want to be flippant about this, but I got your email. And I remembered at some point during the podcast going like, Well, I wonder if your thyroid thing is impacting your behavior? Maybe you don't have Bipolar, but when I got your email, I actually thought I know she has bipolar. Okay. Because Because every not every, but an overwhelming amount of people who I've interviewed who are bipolar. Follow up with an email telling me about the things they didn't say that they should have said, Oh, geez, it's very common for me. Like so. But is there a difference? Is there like, that kind of like manic like, oh, there's so many things. I didn't say I should have said things like blah, blah? Or did you just think I was trying to be honest. And I didn't give an honest answer. Like that was the part I couldn't tell about you. So I'm not sold that this is what's happening yet. That's why I wanted you to speak first, actually, because I kind of wanted to see what road you went down. No,

Adrienne 1:13:39
that makes sense. And I appreciate that. Because like I said, in the first time that I recorded with you, I am not even 100% Certain on the diagnosis. This is kind of new to me still learning about it. And you know, seeing what makes sense and what doesn't. When I first hung up with you, it was not so much a matter of not being honest about the story. It just was like all these things that had escaped my mind. And I had worked myself up so much for this, this chance to talk to you and to hopefully give back on a platform that has helped me so much it was like why and I don't want to leave holes in my story or maybe offend you know, other people who are in this, you know, mental health community by giving such a superficial or

Scott Benner 1:14:21
so you didn't have like a mad like, a mad dash feeling that you had to correct something. Well,

Adrienne 1:14:28
I did. And I don't know. Yeah, I mean, I wrote to you, I think I think it was just within a day or so. And it was

Scott Benner 1:14:35
quick. Yeah, it was quite surprised me when it came. I was like, Oh, here it is.

Adrienne 1:14:42
The most high maintenance person you've reported. Oh, no,

Scott Benner 1:14:44
no, I want to say no, not even close. I did an after dark episode once with a lovely woman like really lovely. And at the end of it, I made the mistake of saying like, well, if you want to hear it first, I'll let you listen. into it. Oh no. And months later, she and I were involved in an editing process that was I just thought, Oh, God, this is never gonna stop. And I didn't want to let her down, you know, but she'd get manic. And then she'd want a bunch of things fixed, and then show. And it's interesting, because everybody feels that way. There's not one person that doesn't record this podcast, and later in the day think, oh, you know what I should have said, but most people just go, No. And then that, then that's the end of it. Right? Right. But I also know the feet like I understand the feeling, because I'm a talker. And there's Listen, people who don't laugh at me, if in your car, I could turn this microphone on and talk for a full day. I just could, I know I could, I would get interested in what I was talking about, and dig through ideas. And, like, I know I could, but I also have the knowledge that I can do it again tomorrow. So if I'm in the middle of a conversation, and I don't bring something up, I think, oh, that's no big deal. The next time it comes up, I'll say it then. Because I have that opportunity. But you don't. This was your one shot to get your story out. So I feel that too. Definitely.

Adrienne 1:16:11
And I think well, first off, I don't think any of us would laugh or complain. If you were to turn on the mic and just talk for a day. It would be a treat

Scott Benner 1:16:18
my family like that. But I appreciate you. Thanks. Thank you.

Adrienne 1:16:22
Yeah, it just, it was more, I think, I guess more of not wanting to minimize this condition nicely, I guess, or offend the mental health community by you know, equating it to being annoyed with my dog for you know, tripping me on the stairs or something like that. I just really, that wasn't sitting well with me and I had left out, you know, the kind of the biggest part of this whole thing. You know, what made me seek the help to begin with was the sudden anger issues. I was having an Yeah, I'm not sure how I just totally skipped over that. I think, like I had indicated in my email. I just wasn't planning to spend as much time on the mental health portion of it just because the diagnosis was so new to me. Yeah, and uncertain, but I really appreciate you letting me know,

Scott Benner 1:17:05
I'm clarifying. I'm super happy to the one like my one, like reservation was like, oh, everybody's gonna send me an email. But like, I forgot to say something to and I'd be like, Alright, that's enough. Stop. So but, but um, I know I was happy to I mean, your emails like very well thought out and cogent I read it. And I was like, Okay, I see what she wants to do here. Like, that's, that's cool. We should definitely do it. The anger thing. And I have a couple of questions about it, if you don't mind. Okay, so anger, like, I understand, like zero to 100, for no reason. But then do you hang on to it later? Or does it dissipate?

Adrienne 1:17:39
I'm sorry, for my my Dexcom alarm here,

Unknown Speaker 1:17:41
don't be sorry. It depends, I

Adrienne 1:17:43
think on on what set me off to begin with, you know, I can think of a couple instances, just within the last probably five or six months or so. It's mostly in conversation with the partner, you know, you have a discussion about maybe something from the past that's come up that's a little bit heated. And you know, what, there? There's the specific example, what he was saying to me was not at all what I remembered him saying before, and I'm saying no, that's that's not what you told me, it's not what you told me. And eventually, it's like, something just snaps. And that's when all these, you know, visual disturbances started happening. And I can just feel this wave of angry coming over me. And that last, that last a while, you know, once that initial wave kind of passes, the residual feelings of just frustration, bitterness, stick around, until they're replaced with that, you know, kind of kicking yourself for a man, I was a real jerk. And you know what most of these people think. And I remember once took me probably three or four months before I even shared this diagnosis with my partner, it was kind of a harder one for me to swallow, just because I wasn't sure about it. But I remember after I had shared with him, conversation didn't really go very far. He didn't ask any questions was kind of like me throwing the information out there. And that's as far as it went. But a couple of weeks later, we were in, you know, sort of a disagreement. And he just said, I don't understand how you can flip from totally fine to fly it off the handle with no prompt, basically, how does this happen to you? And that was, that was tough to hear that was?

Scott Benner 1:19:17
Was this not Your? Your mo prior to recently? No,

Adrienne 1:19:23
not really. And that's kind of what made me question this diagnosis to begin with was because there's just so many big events that have happened in my life with the pregnancy with the diabetes diagnosis, you know, I just lost my dad. Three years ago, I was actually diagnosed the day before his birthday. But there was just a lot of large things happening in my life kind of that at one time, and I thought, Well, maybe it's just the stress of all that, you know, that's changing how I'm handling things. But it was not a point in my life where I wanted to see those changes in me, you know, it's more important now than ever to, to not be the person that To fly off the handle, you've got a young baby in the house. And that's just no way to be. But yeah, this is this is new to me.

Scott Benner 1:20:06
I'm gonna say something that feels like it's out of left field. And it might it might be, but I've been paying attention to this and picking through it for a few months now. Have you ever heard of the MTHFR mutation? I have not. So I think it's colloquially called the motherfucker gene. I think probably just because of the the acronym. Symptoms vary from person to person. And from variant a variant. If you do a quick internet search, you'll likely find many websites claiming the MTHFR directly causes a number of conditions keep in mind the research around it, and its effects is evolving. evidence linking most of these health conditions to the gene or currently lacking has been disproven. So it's one of those things that like, it might just be a bro science thing. Okay? Like, you know, I really don't know. But they say that something like 60% of us can't have like, have this problem where we can't I don't know if I'm gonna say this correctly. Even we can't methylate fully we can't methyl I forget exactly how the wording is, but that, you know, not being able to absorb this absorbed folate leads to cardiovascular problems, depression, anxiety, bipolar, schizophrenia, colon cancer, leukemia, chronic pain, fatigue, nerve pain, migraines, reoccurring miscarriages, and women of childbearing age pregnancies with neural tube defects like spinal, spinal bifida. And so the way it's treated is you just take a methylated vitamin that your body can pick up this folate, right? I am just like, I don't know, I'm so enamored by the idea of it. And I'm, I'm trying to pick through it a little bit because it can have other impacts to like digestion issues, and other stuff like that. And so many of these so many autoimmune issues. They have such similar, you know, symptoms, right. And I know that I could be 1,000,000% off like Adriana, seriously, I don't know what I'm talking about, okay. All I am is a person who has like 1000, you know, have conversations with people, I've probably, I mean, if I've recorded 1100 podcasts, and each of them are about an hour long. I've talked to people for a really long time and pick through their lives. And so many people talk about depression, anxiety, bipolar, on a type one podcast, I get it comes up a lot chronic pain, fatigue, people talk about migraines, like all this stuff. And I'm like, I wonder if like, Jesus, is it just something like this? Simple, you know. And so anyway, I bought a bunch of vitamins, and I'm spreading them out amongst a few people who I think might fit the bill a little bit. And we're just going to kind of see now you can actually get tested for it. It's like, yeah, you can get, like there's places online, you can get the test for like $89. And, you know, you could also have your doctor look at, I'm gonna use the wrong word. I'm gonna look closely. So I can say because you can ask your primary care physician to order the MTHFR blood tests for you. Although most insurance companies don't cover it, that type of gene test, it may leave you with a bill. There are places online that offer them. But there's this one thing you can test for homeo. Gotta watch this, I should have been ready to talk about this. Although I didn't know it was gonna come up actually. Just 23 me to help me if you have it. Oh, if you already have purchased 23andme test kit, you can log in to see your mth fr status by downloading your raw genetic data. Now, that's the thing where I heard 23andme stopped giving people access to their raw genetic data. Really? So I'm not sure if that's still I don't know if I have an account on this. I

Unknown Speaker 1:23:51
mean, yeah.

Scott Benner 1:23:57
As an added security measure, we're requiring that all customers choose a new password unique to 23 me reset your password I get well, this is fun to do on a podcast. Hold on. See if I can get through this pretty quickly. Send reset email. We've sent your email. Not air. Reset was pretty quick.

Adrienne 1:24:20
I was pretty sure you've been asked this but do you ever consider voice acting? Oh, did you?

Scott Benner 1:24:25
Adriana listened to me. Did you hear the dewdrop diaries episode? I don't think so. Okay, so gentleman comes on. Right? And his. He's the producer of a Netflix like animated series. And he was really great. I enjoyed talking to him. Actually. It's very interesting. His daughter is named Arden and she has type one diabetes. Oh my gosh, it's very there's a lot of similar like weird similarities, right? So we had to put in my username. And I said something I don't know if somebody online said don't like you should let Scott to a voice On the show, and he goes, Well, if we get a second season we will. Then he got a second season. I did not hear back.

Adrienne 1:25:08
Okay, he was paying down that door. I

Scott Benner 1:25:10
don't know what I would do with all that. Money. Yeah, but it does sound fun. I have to admit.

Adrienne 1:25:17
Yeah, I don't think so. Yes, totally let loose. Alright,

Scott Benner 1:25:21
so the problem when I use this password, other options, choose my own password. I don't mind when Apple like suggests like a 97 digit password, but sometimes it doesn't save it in the end, then I don't know what the hell it is afterwards. Wait, my new password is not long enough. All right, we're not doing this now.

Adrienne 1:25:47
Sorry to derail you.

Scott Benner 1:25:50
By mutation though. Yeah, me too. So I just wish that sorry. To 3d. Try to make up the password real quick. I've made up a password and song. I didn't know how to do it anymore. The machine does it for you now. When I grew up, not so uphill

Adrienne 1:26:11
both ways in the snow.

Scott Benner 1:26:12
Oh my God, for sure. Now they alright, I changed the password. Now. Enter your verification code. Oh, Christ. Jesus, remember, and please remember me I don't want to do this again. Once I get in there, and I don't have an account or something. Oh, I do have an account. Okay, now, how do I get to raw genetic data?

Hold on a second.

I gotta Google that right? For all genetic data can I get raw data from 23 you can access your alternate data is coming through me account using the bras bras browse raw data feature you can view brought over the hell is that? How come I don't just see that. But a tease this was almost I feel like I have to come through Family Tree View All DNA relatives, surveys and studies edit answers, publications, research over your health trades. My health and action plan. What the hell? What are your DNA book DNA relatives? I did this because I'm adopted. And I thought like one day like, obviously, somebody's gonna pop up that I'm like, Oh my God, look, I'm talking. It never happens. Like I'm, you know, the closest it's gotten is a second cousin.

Adrienne 1:27:25
If any family is something my my partner has actually adopted. Also, he did ancestry.com and was able to find some grandparents, uncle and his mom, but not reached out to anyone yet.

Scott Benner 1:27:38
I actually found a second cousin who was Facebook friends with a friend of mines daughter.

Adrienne 1:27:43
Oh, my gosh, you're kidding. Is that just because of regional locale idea.

Scott Benner 1:27:46
I reached out and I was like, Would you mind like bridging a gap here? And she's like, I'm not comfortable with that. I was like, Okay, wow. So yeah, that's okay. How in the hell view my profile? Yeah, that's my socks, traits, wellness. View All wellness reports. Can you search that? You can search it pause. I'm going to type in the MTHFR. In search your role genotype data? Oh, look at that. That was pretty easy. Search button kids, it works. Browse your genome data is raw, uninterrupted format, your A's or T's or G's or C's, you can search for specific genes, markers positions of interest. While there's a lot there's a ton of this MTHFR. How am I supposed to know what any of this means? This is an advanced view. Yeah, no. Marker, assembly position variants, your genotype. I'm clicking. Welcome to the reference report. I feel like I'm on that ride in the original Jurassic Park all the time. When stuff like this happens, then they're like, Hey, have you You remember when the little Anyway, the thing was talking to them? Very details. There's a lot of data here that I don't. And I'm not going to understand splice donor region variants.

Adrienne 1:29:20
On 23andme is blog they say that? The short answer is no they do not test for mutations in the Mt. FHR. Gene says that they include more than a dozen variants on their reports, but they don't have a report that specifically test for mutations. Whatever that means. Oh, the

Scott Benner 1:29:38
internet's let us down again. Sorry for the No, don't be sorry. It's not your fault. Whose cheese? Yeah, well, maybe we'll take this part out. Who knows? But I'm gonna find out more about it. Like I think I'm going to get the testing done like so because I was talking to a person the other day and we were like Googling around a little bit. And the next thing you know, we were talking about Ehlers Danlos And there seems to be a connection there, perhaps. And I was like, Oh, this is interesting. So I have a bunch of like, I have a bunch of information saved. And I have a note to myself to do an episode about it. So I'm gonna try and see what happens. But right it it just it's one of those things like, listen, is that the answer? Probably not. But the idea that you're in $89 test on the internet away from finding out that you can't process, you know, folate properly, and you just need a vitamin. You know what I mean? Like, that's, that

Adrienne 1:30:30
could be the missing piece. For some people.

Scott Benner 1:30:32
I hate that idea. Like that. I know, it's not going to be for most people, but like, I hate to do this for somebody. And we're just all sitting around and not doing anything about it. I hope that makes sense or not. No, that makes total sense. It's the way I feel when people don't take their thyroid medication correctly, or they don't use enough insulin. I'm like, Oh my God, there's just this tiny little thing to do. And you'd be so much better off. And you don't know about it. But I do. Like, I wish there was a way to get to those people all the time. Anyway, I'm going to figure this out. And then I'm going to talk about on the podcast at some point, but excited to hear what you learn. One, we'll see what happens unless maybe you're gonna you know, who knows you yell at somebody and they're gonna like, you end up in jail. Don't yell at anybody too loud. Okay. Try. You're the most conscientious person about their mental health that I've ever spoken to so far.

Adrienne 1:31:16
Yeah, well, thanks. I feel like you have no choice but to be now because you're just I think we talked about this last time we spoke but just afraid to step on any toes. You never know who you might offend. There's

Scott Benner 1:31:28
something about the way you approach this. And the diagnosis that don't go together for me, and I can't and that's very colloquial, I obviously don't know what the hell I'm talking about. But it just feels it feels weird to me somehow, if that makes sense

Adrienne 1:31:42
or not. It makes sense. Because I feel the same way. And I like I said, don't ever want to write this off. Or yeah, of course, belittle it in any way. It is. It's a it's an important thing. And I know a lot of people really

Scott Benner 1:31:54
struggle, of course, yeah, no, no, I agree. I'm just talking about between you and what I know of you so far. Anyway, if I figure something else about this, I'll let you know. Please

Adrienne 1:32:04
do. And then just to kind of close the loop, I I had an appointment with my endo a couple days after I last spoke with you. And I had told you I was going to run the thyroid stuff by her. And we had done some lab work prior to that appointment. And what she saw she wasn't really concerned with she said she would keep monitoring, but right now she didn't think thyroid would be behind any of this. So

Scott Benner 1:32:25
what was your TSH in the testing?

Adrienne 1:32:27
I think it was like point 661 Or something like that

Scott Benner 1:32:31
seems very good. So yeah, I'm sorry. It would have been nice if it was an easy answer. Yeah,

Adrienne 1:32:37
let's see. Yeah, keep keep working. But like I said, I really appreciate you taking the time to let me come back on and clarify and it's

Scott Benner 1:32:45
my pleasure. I'm glad you took the time. Thank you very much. That's awesome. It takes care of Scott to hold on one second.

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