#1759 Boston Croissant Party - Part 1
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Anais, a scientist in the biotech industry, details her daughter Lira's first year following a Type 1 Diabetes diagnosis at age six.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner (0:0) Welcome back, friends. (0:01) You are listening to the Juice Box podcast.
Anais (0:13) My name is Anais, and I am the mom of a type one diabetic child. (0:18) I have two daughters, seven and four and a half. (0:21) And so my diabetic daughter is the one that just turned seven today. (0:24) It's her it's her birthday.
Scott Benner (0:28) I am here to tell you about Juice Cruise 2026. (0:32) We will be departing from Miami on 06/21/2026 for a seven night trip going to The Caribbean. (0:39) That's right. (0:40) We're gonna leave Miami and then stop at Coco Cay in The Bahamas. (0:44) After that, it's on to Saint Kitts, Saint Thomas, and a beautiful cruise through the Virgin Islands.
Scott Benner (0:50) The first juice cruise was awesome. (0:52) The second one's gonna be bigger, better, and bolder. (0:56) This is your opportunity to relax while making lifelong friends who have type one diabetes. (1:01) Expand your community and your knowledge on juice cruise twenty twenty six. (1:06) Learn more right now at juiceboxpodcast.com/juicecruise.
Scott Benner (1:11) At that link, you'll also find photographs from the first cruise. (1:16) Nothing you hear on the juice box podcast should be considered advice, medical or otherwise. (1:21) Always Always consult a physician before making any changes to your health care plan. (1:29) The episode you're about to enjoy was brought to you by Dexcom, the Dexcom g seven, the same CGM that my daughter wears. (1:38) You can learn more and get started today at my link, dexcom.com/juicebox.
Scott Benner (1:44) The podcast is also sponsored today by Omnipod five. (1:47) Omnipod five is a tube free automated insulin delivery system that's been shown to significantly improve a one c and time and range for people with type one diabetes when they've switched from daily injections. (1:59) Learn more and get started today at omnipod.com/juicebox. (2:03) At my link, you can get a free starter kit right now. (2:06) Terms and conditions apply.
Scott Benner (2:07) Eligibility may vary. (2:09) Full terms and conditions can be found at omnipod.com/juicebox.
Anais (2:14) My name is Anais, and I am the mom of a type one diabetic child. (2:20) I have two daughters, seven and four and a half. (2:23) And so my diabetic daughter is the one that just turned seven today. (2:27) It's her it's her birthday.
Scott Benner (2:28) Oh, happy birthday.
Anais (2:30) Thanks.
Scott Benner (2:31) Very nice. (2:31) Say your name again.
Anais (2:33) Anais.
Scott Benner (2:34) Anais?
Anais (2:35) Mhmm. (2:35) Yeah.
Scott Benner (2:36) You know, when an old man sits down at his computer and his eyes are still blurry, it looks like your name's Anos. (2:41) Right?
Anais (2:42) Yes. (2:43) Yeah. (2:43) So I sat It's a French name. (2:46) I I am French. (2:47) So Yeah.
Anais (2:47) That's
Scott Benner (2:48) I didn't think it was from Ohio. (2:52) I sat down, and everything popped up in front of me. (2:55) And, you know, everyone's heard me complain before. (2:57) My eyes don't adjust as quickly as I'd like them to anymore. (3:00) And all I thought was, oh, this better not be a prank.
Scott Benner (3:04) No.
Anais (3:05) No. (3:05) It's my yeah. (3:06) There's supposed to be two dots on the I. (3:09) But Oh,
Scott Benner (3:09) that would have helped.
Anais (3:10) But yeah. (3:11) It would have helped tremendously. (3:12) I I see I see that now. (3:14) Anyway,
Scott Benner (3:16) I appreciate you doing this. (3:17) Thank you very much. (3:18) So okay. (3:18) Let's talk about those kids for a second. (3:20) They're how old again?
Anais (3:22) Seven is my, diabetic. (3:25) She just turned seven today. (3:26) Mhmm. (3:27) And I have she has a little sister. (3:28) She's four and a half.
Scott Benner (3:29) Seven and four and a half. (3:31) Okay. (3:31) Do you have any, I don't know, autoimmune stuff? (3:35) Do you have hypothyroidism or scissor celiac in the family line, anything like that?
Anais (3:39) Yes. (3:40) So I actually did did a little bit of research. (3:43) So I don't, but I do have a cousin who is type one diabetic, and I also have, apparently some remote cousins that do have celiac. (3:52) So I think it's it's coming from my side. (3:54) It's my it's my DNA that I might be responsible.
Scott Benner (3:58) You know, it was it was my my inclination to yell at Jacuzz, but I don't remember if that's the right word or not.
Anais (4:03) Yes. (4:04) No. (4:04) Good job. (4:05) Yes. (4:05) Yes.
Anais (4:05) Exactly.
Scott Benner (4:06) It would have been right?
Anais (4:07) It would have been totally right.
Scott Benner (4:09) Oh, damn. (4:10) You know who's gonna be so mad at me, Isabelle? (4:12) She's you know, because I always tell her I only know one French word. (4:16) I always tell her whenever she says something to me in French do know who Isabelle She helps me run my Facebook group.
Anais (4:20) Oh. (4:21) And Okay.
Scott Benner (4:22) She's she's French. (4:23) Like, she's always like, you would love French. (4:24) You have to learn French. (4:25) It's so, what does she tell me? (4:27) It's a poetic language.
Scott Benner (4:28) It speaks the way you think. (4:30) It would fit really well. (4:31) And I'm like, I can't learn French. (4:33) And she's like, no. (4:34) No.
Scott Benner (4:34) No. (4:34) You could. (4:35) And I I one day said to her, Isabelle, I took three years of French in high school, and all I know for sure is means nine. (4:43) And so sometimes she'll write to me in French, and I will just respond back, means nine. (4:49) That's all I know.
Scott Benner (4:50) But but now why do I know that's from a movie, isn't it?
Anais (4:54) Yeah. (4:54) A book and and maybe a movie. (4:56) I don't know if they if they've done a movie out of that.
Scott Benner (4:59) Oh, I have to I have to figure out where I know that word from now because because trust me, I don't know it from French class anyway.
Anais (5:07) Three years. (5:08) You have some foundation, though, I feel like.
Scott Benner (5:10) You guys are all so sweet. (5:12) She did the same thing. (5:13) She's like, no. (5:13) No. (5:13) You could do it.
Scott Benner (5:14) I could help you. (5:14) I'm like, no. (5:15) I you don't know my mind. (5:17) I could not Yeah. (5:19) If I get bored at the end.
Anais (5:20) So it's from it's it's it's from a writer named Zola. (5:23) I think you can you can check it out.
Scott Benner (5:25) Yeah. (5:25) But I wonder where
Anais (5:26) cool story.
Scott Benner (5:27) Okay. (5:27) Alright. (5:28) Alright. (5:28) I'll I'll check. (5:29) Look at me learning things early in the morning.
Scott Benner (5:31) Where are you at, by the way?
Anais (5:33) You mean, low low local
Scott Benner (5:35) Physically, where do you live? (5:36) Yeah.
Anais (5:36) Oh, I'm in the Boston area.
Scott Benner (5:38) In Boston. (5:38) Okay. (5:39) What do have? (5:40) Like, a job? (5:40) Why are we doing this so early in the morning?
Anais (5:42) I do I do have a job. (5:43) Yes. (5:44) Yes. (5:44) I do. (5:47) I work for a living.
Scott Benner (5:48) Everyone we're talking to a gainfully employed person who speaks at least two languages. (5:53) How fancy.
Anais (5:53) I do. (5:54) I I work in in the biotech industry, like, half of Boston, I felt like.
Scott Benner (5:58) Oh, I was gonna say, yeah. (5:59) No wonder Boston. (6:00) Yeah. (6:00) Somebody's trying to get my wife to move to Boston about every five minutes, it feels like.
Anais (6:05) It's it's a great place. (6:06) It's a great place
Scott Benner (6:07) to live. (6:07) Cold to me, but okay.
Anais (6:09) It's cold. (6:09) Yeah. (6:09) It's it's, yeah, it's very cold right now.
Scott Benner (6:12) I've been there. (6:12) It was, it was nice the time I was there. (6:14) Actually, I guess I can say this. (6:16) I believe I'll be there in a couple of months.
Anais (6:19) Oh, okay. (6:20) That's cool.
Scott Benner (6:20) Wait. (6:21) What a great place to say this thing that I'm not sure if I'm supposed to say or not.
Anais (6:25) Oh, well, you you don't have to say anything revealing. (6:28) Maybe you can just tease it out and be like, hey. (6:30) I might be in Boston, and then just stop there and see what what happened.
Scott Benner (6:33) I how about this? (6:34) I might be in Massachusetts Oh. (6:37) Giving a talk, and I might be running a giveaway that lets some of the listeners come, hear the talk, and take a tour of something.
Anais (6:52) Okay. (6:53) That sounds really cool.
Scott Benner (6:55) Alright. (6:55) Let's see if that happens or not. (6:57) Yeah. (6:57) Oh, I hope it does happen. (6:59) Actually, I remember the meeting I was in now, I really hope that happens.
Scott Benner (7:02) Oh, okay. (7:02) Alright. (7:03) Sorry. (7:03) So this this, these little girls, I'm sure they're adorable. (7:06) Are they born in in Boston?
Scott Benner (7:09) Are they Bostonites? (7:10) Or are they
Anais (7:10) Oh, yes. (7:11) Definitely. (7:11) Yes. (7:11) They they're born in The US, and, they're very much, from Boston.
Scott Benner (7:16) Okay. (7:16) They don't speak French?
Anais (7:18) They do speak French. (7:19) Yes.
Scott Benner (7:19) Oh, are you married to a Frenchman?
Anais (7:21) I am not. (7:22) I'm married to a a person, a man that grew up in Chicago and that has a nice Midwest accent.
Scott Benner (7:28) Oh, yeah. (7:29) Your parents must be devastated. (7:31) Am I right? (7:34) I thought you didn't answer that. (7:35) Yeah.
Scott Benner (7:35) Your parents are pests. (7:37) Right? (7:40) Sorry. (7:40) Anyway okay. (7:41) So what's the first signs of the diabetes?
Scott Benner (7:43) How do you see it coming on?
Anais (7:45) She started drinking tons of water and having accident at night, which was super unusual. (7:50) And at first so we we had just been on a trip to Portugal. (7:54) So it was super hot, and she was drinking a lot of water, but it was super hot outside. (7:59) Then we came home, and I kind of continued. (8:02) And after a few days, I was like, this this this seems not right.
Anais (8:05) So I called the pediatrician. (8:07) I was like, hey. (8:08) She drinks a ton of water. (8:10) She's having this accident. (8:11) Maybe it's a UTI.
Anais (8:13) Like, what do you think? (8:14) And she's like, well so it was I called on Saturday, and she say, well, we have a a doctor on call. (8:19) Why don't you just go tomorrow, so Sunday morning, just to get her checked out? (8:23) Because that doesn't seem right. (8:25) And so we went to the pediatrician on the Sunday morning and then did the whole thing.
Anais (8:30) They test their urine. (8:32) Then the doctor comes back in the in the little area where she was checking her, and she had, like, a glucometer in her hand. (8:41) And I was like, oh, this doesn't seem good. (8:44) And she's like, I'm gonna test her her, blood sugar just to be sure, and, of course, it was reading high. (8:50) So she sent my daughter name is Lira.
Anais (8:53) She sent her to play, in the playroom, and she's like, I'm pretty sure she has diabetes. (8:59) I'm gonna call ahead to the ER. (9:01) You're gonna go home, pack a bag, and then you just go straight there. (9:04) And you're gonna be there for, like, three or four days. (9:06) And I was like, what is happening to me right now?
Anais (9:09) This is not how my Sunday was gonna unfold.
Scott Benner (9:12) But it's the weekend.
Anais (9:14) Yeah. (9:14) I was like, what? (9:16) And then I'm like, I don't know. (9:17) I was in shock. (9:18) I think I was kind of, like, in the days.
Anais (9:19) Like, I, you know, packed my kids, drove back home, called my husband. (9:23) He was at soccer with the the little one. (9:26) And I was like, hey. (9:27) Lira's diabetes, and, I'm gonna drive her to the ER now, and we're gonna be gone for three days. (9:32) And he's like, what?
Anais (9:33) What's going on? (9:35) And yeah. (9:35) So so we just drove to, to Boston Children, and they they were ready for us. (9:41) We arrived. (9:42) They did hold the tests.
Anais (9:43) She got on an IV immediately, and then they gave her insulin a little bit later. (9:49) And, yeah, she was and then it was kind of, like, three days of trying to learn how to to keep her alive, really.
Scott Benner (9:57) Tell me again. (9:58) How long ago was this?
Anais (9:59) It was, about a year ago. (10:01) She was diagnosed on at the October, like, three days before Halloween last year. (10:06) And so, yeah, it was about a year ago.
Scott Benner (10:08) Does it feel very fresh to you in your heart right now when you're talking about it?
Anais (10:12) It's all fresh. (10:14) But at the same time, I feel like this year was just so much it was just crazy. (10:19) It was so much learning. (10:20) It was kind of a roller coaster. (10:21) So it feels like very fresh, but also I felt like I've changed so much in a year that yeah.
Anais (10:28) But I still I felt
Scott Benner (10:30) It feels like it happened five years ago.
Anais (10:32) Yeah. (10:33) It does. (10:33) And at the same time, when I talk about it, I'm like, oh. (10:36) You know, I have, like, this little butterfly in my stomach, and I'm like, yeah. (10:39) That really was a rough day, rough few months really, though, at the beginning.
Scott Benner (10:43) But Yeah. (10:44) Yeah. (10:44) I wonder does your so sound weird to people who maybe don't know people from France, but I wonder if your your upbringing maybe helps a little bit because I'm I'm right to say that it's a little more stoic. (10:55) Right?
Anais (10:56) It it is. (10:57) Yeah. (10:58) It is. (10:59) But I yeah. (10:59) I I don't know if it I I think I'm not really the kind of person that panic, but I do it comes out later.
Anais (11:08) Like, I think I was really hungry for a long time. (11:10) Mhmm. (11:11) And I had to deal with entrance. (11:13) We can talk about this, but I was, like, a very angry person on the phone and was like, this is weird. (11:18) This is not me.
Anais (11:19) Something's wrong with me. (11:20) Like, I'm really angry. (11:22) You know?
Scott Benner (11:22) You know what? (11:23) This is super interesting. (11:24) I just did a thing for I I think I'm just gonna say the name of the company. (11:29) I just did a thing for Cardinal Health. (11:31) Okay?
Anais (11:32) Mhmm.
Scott Benner (11:32) Where Yeah. (11:33) I I spoke to the entire organization to try to, you know, humanize some stories that I've heard on the podcast Yeah. (11:42) So that people working there don't just feel like they're moving stuff around in boxes because they don't have any context for diabetes. (11:48) Right?
Anais (11:48) Mhmm.
Scott Benner (11:49) And that's I mean, I spent I spent two days doing that, like, you know, meeting with people. (11:54) I and I just had a phone call with somebody yesterday to find out you know, figure out more ways to to do it. (11:59) They're very focused on helping their staff understand diabetes. (12:05) And they they just they want from customer service to the top. (12:08) They want these people to really understand what it's like to live with diabetes type one and type two Mhmm.
Scott Benner (12:13) So that people can be more empathetic. (12:16) You know? (12:16) And and then you just the the way you just kinda put all that, like, made me made me remember, like, that what I've been telling them is, you know, when you're on the phone with somebody and you say to them, like, you know, oopsie made a whoopsie, you know, that your thing's not gonna be there on time. (12:33) You're not talking to a regular human being. (12:36) You're talking to someone who's married, has two kids, has a job in biotech, and on top of that, whose kid's blood sugar last night at 2AM did this.
Scott Benner (12:45) She thought they were it was possible somebody was gonna pass out. (12:48) Their lives are terrible. (12:50) They were just in a museum on Saturday where they had to change an insulin pump behind a tarp.
Anais (12:54) Yeah. (12:55) Yeah. (12:55) Right.
Scott Benner (12:55) They've been arguing about what best fix a low fixes a low blood sugar. (13:00) They're worried that their CGM doesn't work right. (13:02) And, you know, and CGM is the only thing keeping them alive they feel like, and they have regular lives on top of all that, and it's all churned up. (13:09) And there are people living with autoimmune issues. (13:11) So some of them might have anxiety or blah blah blah.
Scott Benner (13:13) Right? (13:13) And you're on the phone with them telling them not only is the thing that they think is keeping them alive not gonna be there when they think it is, but you don't even really understand why that's important.
Anais (13:22) Yeah. (13:23) That's exactly right. (13:24) I think this is such a great yeah. (13:26) This is ex I mean, you sum it up very well.
Scott Benner (13:29) And I said, and then some lovely woman is gonna start yelling the f word at you, and you're gonna think she's the problem. (13:36) And and and right?
Anais (13:37) I've never done that, but but yes. (13:39) But I I had you know, I really it was taking a lot of discipline not to, honestly, in some some moments.
Scott Benner (13:46) And then you hang that phone up and you start what? (13:48) You you start questioning yourself? (13:52) Today's episode is brought to you by Omnipod. (13:54) We talk a lot about ways to lower your a one c on this podcast. (13:58) Did you know that the Omnipod five was shown to lower a one c?
Scott Benner (14:02) That's right. (14:03) Omnipod five is a tube free automated insulin delivery system, and it was shown to significantly improve a one c and time and range for people with type one diabetes when they switch from daily injections. (14:15) My daughter is about to turn 21 years old, and she has been wearing an Omnipod every day since she was four. (14:21) It has been a friend to our family, and I think it could be a friend to yours. (14:25) If you're ready to try Omnipod five for yourself or your family, use my link now to get started.
Scott Benner (14:32) Omnipod.com/juicebox. (14:35) Get that free Omnipod five starter kit today. (14:37) Terms and conditions apply. (14:39) Eligibility may vary. (14:40) Full terms and conditions can be found at omnipod.com/juicebox.
Scott Benner (14:46) You can manage diabetes confidently with the powerfully simple Dexcom g seven. (14:52) Dexcom.com/juicebox. (14:55) The Dexcom g seven is the CGM that my daughter is wearing. (15:00) The g seven is a simple CGM system that delivers real time glucose numbers to your smartphone or smartwatch. (15:07) The g seven is made for all types of diabetes, type one and type two, but also people experiencing gestational diabetes.
Scott Benner (15:15) The Dexcom g seven can help you spend more time in range, which is proven to lower a one c. (15:21) The more time you spend in range, the better and healthier you feel. (15:24) And with the Dexcom Clarity app, you can track your glucose trends, and the app will also provide you with a projected a one c in as little as two weeks. (15:33) If you're looking for clarity around your diabetes, you're looking for Dexcom. (15:37) Dexcom.com/juicebox.
Scott Benner (15:41) When you use my link, you're supporting the podcast. (15:43) Dexcom.com/juicebox. (15:46) Head over there now. (15:48) And then you hang that phone up and you start what? (15:50) You do you start questioning yourself?
Anais (15:51) Yeah. (15:52) I mean, I think, you know, again, like, it's I think it's more like not being understood. (15:57) It's like you have a lot of stuff going on, and then this is you're just, like, a name on the list asking for something. (16:03) And they're just trying to do their job, but it's just yeah. (16:07) It's frustrating sometimes.
Anais (16:08) And I I think I never had to before, I never had to deal with the health care system to to that degree. (16:14) And I was not prepared to face how complicated it can be even though we have a great insurance, even though we have, like, a lot of resources. (16:23) Like, it still it still really sucks. (16:25) And so I think it it could be a lot easier. (16:29) It could be a lot easier.
Anais (16:30) And I think it's great that you're doing this because a little bit more empathy would go a long way, I think, for sure.
Scott Benner (16:36) I said yes to the whole thing because, I mean, I realized that that's act I mean, they're they're selling, you know, devices to people. (16:44) They're you know? (16:45) Mhmm. (16:45) But at the same time, I I saw them as another line of defense in this whole thing. (16:50) Yeah.
Scott Benner (16:51) You know? (16:51) So I then, anyway, we'll see how it goes. (16:53) The there are sponsors already that US Med buys ads on the podcast, but, yeah, that's how they thought of me for it. (16:59) But instead of just going off and doing the job, you know, I I thought, let me put some real effort into this and see if we can turn this, like, large group of people into advocates. (17:09) So Yeah.
Scott Benner (17:10) Anyway, that's what I
Anais (17:11) That's awesome. (17:11) Hopefully, it works out. (17:12) Even if there is only one person that is just a little bit nicer and accommodating, I think he might make someone's day. (17:18) So Yeah. (17:18) I think that's a great idea.
Scott Benner (17:20) Awesome. (17:20) Now to your point about health care, I'm gonna I wanna I wanna find out all about the first year of of this diagnosis because it's fresh in your head. (17:28) But let me tell you this first so that I can tell you where I'm at. (17:32) Two weeks ago, my sister-in-law called me, and she's like, hey. (17:37) Your brother doesn't feel well.
Scott Benner (17:38) And, like, I know he's been talking to you the last couple days, and I haven't heard him bring it up once. (17:42) I just wanted you to know. (17:43) So she's ratting him out for not feeling good and not telling me. (17:46) Right? (17:46) And I have a strange situation with my brothers where I basically raised them.
Scott Benner (17:51) So I'm sort of their dad and their brother at the same time.
Anais (17:55) Mhmm.
Scott Benner (17:55) And so she explains to me how he feels, and I pressure her to take him, you know, to the doctor. (18:03) And he's had the chills, and he's been sweating, like, through his clothes at night, and his knees hurt, and his elbows hurt. (18:10) He's got pain in his thigh, and, like, it's getting worse. (18:13) And she feels like he almost looks like he has the flu, but he doesn't, like, this whole thing. (18:17) And it's not going away.
Scott Benner (18:18) He's felt bad for four weeks, she tells me.
Anais (18:20) Four weeks. (18:21) Wow.
Scott Benner (18:21) Yeah. (18:22) So I said, okay. (18:23) We'll get to the doctor. (18:23) So she gets him to the doctor, and he runs a bunch of blood tests and tells him, you know, you probably have a virus or something.
Anais (18:31) Mhmm.
Scott Benner (18:32) And, you you know, last Yeah. (18:34) Set well, thanks. (18:36) Last Saturday in the morning, I'm in the shower, and my brother calls me. (18:41) And I'm like, well, this is weird. (18:42) Like, I I answer the phone.
Scott Benner (18:43) I'm like, yeah. (18:43) I'm so sorry. (18:44) I'm in the shower. (18:44) Can you hear me okay? (18:45) And he's like, Scott, I just got my labs back.
Scott Benner (18:48) Will you please look at them? (18:49) And I was I said, sure. (18:51) So he sent them to me, and I did what any good person would do. (18:54) I fed them right into ChatGPT because I don't know what the hell they mean. (18:57) Yeah.
Scott Benner (18:58) I mean, everything's whacked. (19:00) Like, he is showing, like, severe infection or cancer. (19:04) Like, it's it's like Oh, wow. (19:05) That's where he's at. (19:06) Right?
Scott Benner (19:07) So I said, you know, I said, Brian, I think you need to get to urgent care because your doctor's not gonna like, they're not in the office today. (19:13) Right? (19:13) He said, no. (19:13) I said, go to urgent care. (19:14) You probably need an antibiotic.
Scott Benner (19:17) So he goes to urgent care, calls me an hour later, and he goes, well, I'm in a wheelchair. (19:22) They're pushing me across the parking lot to the hospital. (19:24) And I was like, what? (19:26) He goes
Anais (19:26) Wow.
Scott Benner (19:27) They looked at me, took my vitals, and said, we are not comfortable with this. (19:30) Took me to the ER. (19:32) He spends the afternoon in the ER. (19:34) My lovely wife and I are out that day. (19:36) If you must know what we're doing, we're shopping for bras.
Scott Benner (19:39) Not for me.
Anais (19:40) Very very important.
Scott Benner (19:41) She's lost she's lost weight in her you know, she had to go get more bras. (19:44) And so, like, we're out shopping and hanging out and everything and and having lunch. (19:49) We're doing a thing. (19:49) Like, we're pretending we know each other. (19:51) We're doing some stuff, and my brother starts texting me.
Scott Benner (19:53) I don't have Lyme disease. (19:55) I don't have this. (19:55) They gave me a scan. (19:57) I don't have cancer. (19:57) I'm like, awesome.
Scott Benner (19:58) Like, great. (19:59) You know, good news. (19:59) Blah blah blah. (20:00) And he gets down to it. (20:01) And I'm like, well, where's the infection?
Scott Benner (20:03) They said they can't find an infection with the labs. (20:06) And I said, okay. (20:07) I said, what are they gonna do? (20:08) And he goes, they're sending me home. (20:11) And I was like Oh.
Scott Benner (20:11) With an antibiotic? (20:13) And he goes, nope. (20:14) And I said, a steroid pack? (20:15) And he goes, nope. (20:16) And I was like, with anything?
Scott Benner (20:17) And he goes, nope. (20:18) They told me to go to rheumatology. (20:21) And I said, well, what about now? (20:23) Like, right now? (20:25) And he goes, nothing.
Scott Benner (20:27) And so I got, I texted him, and I was like, man, listen. (20:30) I'm not a person who says just, like, sprinkle antibiotics and everything. (20:33) I was like, but I'd ask for it. (20:35) You know? (20:36) So he asks.
Scott Benner (20:37) They turn him down. (20:38) And then, he texts me back, and I text him. (20:40) I said, maybe get a steroid pack. (20:42) And then the nurse practitioner says, who are you texting with? (20:46) And she he goes, it's my brother and my sister-in-law.
Scott Benner (20:49) What are all these questions coming from? (20:50) So he says, look. (20:51) You know, vaguely, my sister-in-law has a, you know, a a science background. (20:56) She works in medicine, you know, tangentially, and my my my brother has a podcast. (21:03) They were probably like, oh my god.
Scott Benner (21:05) Right? (21:06) As they should be. (21:07) One of those. (21:08) Oh my god. (21:09) The guy thinks he knows something.
Scott Benner (21:11) And, anyway, like, so I said I so we pushed, and I said, ask her if a steroid pack would hurt you. (21:16) Because he's in pretty bad pain too. (21:18) Yeah. (21:19) And they give him the steroid pack. (21:21) Comes home.
Scott Benner (21:22) First day, he feels a little better, but second day, it's not helping as much. (21:26) So yesterday, which is Tuesday, this whole, like, little charade has played played through.
Anais (21:31) And So it's two weeks later. (21:33) Right?
Scott Benner (21:33) Well, no. (21:33) It's a week a week since he's been in the like, four days since he's been in the hospital, two weeks since he's gone to the doctor the first time.
Anais (21:39) Wow. (21:40) Yeah. (21:40) That's crazy. (21:40) Right? (21:41) Okay.
Scott Benner (21:41) And so I'm like, alright. (21:42) So I text him yesterday while I'm recording. (21:44) I'm like, hey. (21:44) What'd your doctor say? (21:46) And my poor brother is like, I'm at work.
Scott Benner (21:50) You know? (21:50) Like, I don't I couldn't contact the doctor today. (21:52) I don't have that kind of time. (21:54) And I said, you feeling any better? (21:56) He goes, no.
Scott Benner (21:56) I feel worse. (21:57) Now my brother stands on a factory floor for twelve hour shifts and Yeah. (22:02) Runs a giant piece of machinery. (22:05) And Yep. (22:05) And I'm like I'm like, Brian, this is crazy.
Scott Benner (22:08) I'm like, you need help. (22:10) And he's like, I know, but I gotta go to work. (22:12) He messaged his g his GP through his app. (22:16) My brother is going to call you. (22:18) I want you to talk to him.
Scott Benner (22:19) He basically gave me, like, you know, a little HIPAA roundabout. (22:24) So I get on the phone and explain the whole thing to the person on answered the phone who did a wonderful job and then passed me off to the nurse who did a wonderful job. (22:34) And I got my brother in yesterday afternoon, and he got a, besides a an antibiotic a course of antibiotics, he also got, like, a starter. (22:43) Like, they did, like, a deep muscle shot of something to get the antibiotics moving. (22:48) Okay.
Scott Benner (22:48) I'm telling you all of this because what that thing as we were paying attention to it from a distance and listening to what people were saying, what we learned in the end was this is crazy because what I what I what I forgot to tell you, the way we get from Saturday to Tuesday is that on Sunday, his doctor does call or Monday, his doctor calls him back and says, go back to the ER. (23:10) This is Monday afternoon.
Anais (23:12) Yeah.
Scott Benner (23:12) And my brother goes, do want me to go back to the same ER that told me they wouldn't help me? (23:16) And the guy goes, I think you have a bacterial infection. (23:20) Go back to the ER. (23:22) Mhmm. (23:22) And my brother goes, why don't you give me an antibiotic if you think I have a bacterial infection instead of sending me back to the ER that nobody's gonna help me at?
Scott Benner (23:30) And the guy goes, just go back to the ER. (23:32) So my brother did that on Monday. (23:34) They ran the No. (23:35) No. (23:35) They ran the same labs and then told them the same thing and then treated him and kicked him out.
Scott Benner (23:40) That's how we got to yesterday to that's how we got to Tuesday. (23:43) Right? (23:43) I'm sorry. (23:44) Missed this. (23:44) I missed a step.
Scott Benner (23:46) So what we what we learned I'm so disappointed in myself. (23:49) My storytelling is usually so right on. (23:51) And so what we've learned yesterday as he leaves the doctor's office because the doctor the last thing the doctor says to him before he puts the injection into him is, you know, I could get in trouble for this. (24:03) My brother goes, what? (24:04) And he said, your diagnosis does not point to needing an antibiotic.
Scott Benner (24:09) And that's when the whole thing just started to make sense. (24:13) On a paper, for the insurance or for the business, my brother didn't code out to antibiotics.
Anais (24:21) And so they can code it. (24:22) Yep. (24:23) Yep. (24:23) Yeah. (24:23) That's that's messed up.
Scott Benner (24:24) Everyone thought he needed them. (24:27) The ER, he now realizes, by the way, woman was talking thought he needed them. (24:31) The doctor, we now know thought he needed them because he sent him to the hospital the second time saying, you have an infection. (24:38) You need this. (24:40) But he was too much of a and excuse me.
Scott Benner (24:42) I know you're a person with a French accent, so it's gonna make me feel bad saying this. (24:47) But the doctor was too much of a to do it himself. (24:50) Right? (24:50) So he tried to put it on the hospital. (24:53) And then when the hospital wouldn't do it a second time, they ignored him again when he was messaging.
Scott Benner (25:00) And it wasn't until I got on the phone and browbeat them into helping him that they did it.
Anais (25:05) Yeah. (25:06) It's I mean, you really have to advocate for yourself, I feel like.
Scott Benner (25:09) Well yeah. (25:10) I mean, and it's beyond advocacy. (25:11) If that's a that's a real story. (25:13) I swear to god I didn't make a word of it up. (25:15) Right?
Scott Benner (25:15) Like, so one, two physician's assistants and a doctor in a hospital, that's three people, and his GP, four people are willing to look at him and go, well, if it gets worse, we'll help you. (25:26) But right but right now crazy. (25:27) The the the chart in front of me says you don't get this even though they all thought he needed it. (25:32) So Yeah. (25:33) Good luck.
Anais (25:33) Yeah. (25:33) That I'm I'm hopefully, he's he's better now.
Scott Benner (25:37) I haven't talked to him yet today. (25:38) He could be dead. (25:39) I'm not gonna lie to you.
Anais (25:40) Okay. (25:40) I hope not. (25:41) I really
Scott Benner (25:42) hope I think somebody would have texted.
Anais (25:43) So Oh my gosh. (25:44) Yeah. (25:44) Yeah. (25:44) He probably will know.
Scott Benner (25:45) I'll check on him later.
Anais (25:46) He's fine. (25:47) He's fine.
Scott Benner (25:47) Yeah. (25:47) He's also you know, it it's embarrassing because he's also 49 years old, and his brother's calling his doctor's office. (25:54) But he's just he's just an I don't know how to put it. (25:57) Like, he's a little more of a people pleaser than I am. (26:00) Yeah.
Scott Benner (26:00) Right? (26:01) And I wasn't mean. (26:02) I wanna be clear. (26:02) I I just found somebody who would actually listen, and then I was persistent.
Anais (26:07) Yeah. (26:07) I think it's persistence. (26:09) But, you know, this is something that I learned, like, over the past year is, like, I never really had to do this because, you know, like, when when you feel fine and you go to the doctor once in a blue moon, like, you nothing really it doesn't really matter. (26:20) But, like, when you have when you have a bacterial infection, when you have diabetes, it matters, and you have to be sometimes a little pushy or persistent, like, we wanna we wanna call it.
Scott Benner (26:32) Yeah.
Anais (26:32) And doing it in a nice way is a learned skill, I feel like, that I'm still working on.
Scott Benner (26:37) I did it very kindly. (26:39) But to your point, if they would've caught me fifteen years ago, I would've just I would've been a lunatic. (26:45) Would have been like, help my brother. (26:46) What are you doing? (26:47) I lost my, temper once when my mom was living in an assisted facility recovering from her cancer surgery, and she kept getting a UTI.
Scott Benner (26:57) And I just like, I was on a phone call one day, and I I yelled at people. (27:03) Like, my brother was in the room. (27:04) My brother was like, well, thanks. (27:05) That was very comfortable. (27:06) And I was like I think I said something like, if my mom dies because you guys can't figure out how to clean her up after she uses the bathroom, I said, I swear to God, I'm gonna sue each and every one of you.
Scott Benner (27:20) And I am not telling the story that my mom died from not wiping properly. (27:25) I was like, you have That's insane. (27:26) I'm like, come on everybody. (27:29) You know? (27:29) Like and I did lose my temper that day.
Scott Benner (27:31) But but this, I just got on the phone, and I I laid out my brother's weekend when I got to the nurse, and I was like, so come on. (27:37) Between you and me, what's he need? (27:39) She goes, I mean, he needs an antibiotic. (27:41) And I was like, right. (27:42) And I said she goes, but it's not up to me.
Scott Benner (27:44) And I was like, no. (27:45) I know. (27:45) I'm like, but I'm on the phone asking you, please don't put this down. (27:49) Make sure he gets helped. (27:51) And then she and then she did that.
Scott Benner (27:53) And so, like, I just found I just got to a person who was reasonable who would help.
Anais (27:57) Yeah. (27:58) Yeah. (27:58) That that's key also. (28:00) Yeah. (28:00) The person on the other side.
Scott Benner (28:01) So what what's happened over the last year that's that's given you this perspective already? (28:06) Like, has this been a problem this first year? (28:09) How how's it going?
Anais (28:10) Well, yeah. (28:11) I mean, I think the entrance piece, like, figuring this out was was tough, just, like, making sure that we had the supplies that we needed. (28:19) And, you know, sometimes people want to be helpful, and they send the prescription to the wrong place and know you have to call. (28:25) And and, again, like, when you're busy, like your brother, you don't necessarily have, like, the extra thirty minutes to spend waiting for someone to pick up the phone and fix your prescription problem. (28:36) So I think we we we figure out a lot of stuff like that.
Anais (28:40) Like, you know, we go to a local pharmacy because they are, like, just really nice. (28:44) They get they're on top of their stuff. (28:46) We don't do, like, the big box chain except for some some of the tech that we get from from one of those, like, mail in order pharmacy. (28:55) But, like, figuring this out, like, took a while because we you know, the first time I went to the to the pharmacy to pick up insulin, they just, like, threw the insulin on the counter, not even, like, refrigerated. (29:04) Like, I was like, well, I need a high spec to take it home.
Anais (29:07) And turns out you probably don't need a high spec for the ten minutes you're in the car, but I didn't know that at the time. (29:12) And I was, like, freaking out. (29:13) I was like, why? (29:13) There is no cooler. (29:14) Like, you're not giving me and they were just so very careless.
Anais (29:18) And so I was like, I don't want to go to this pharmacy. (29:21) I want a pharmacy where I feel like they're treating me as a person, not as, like, a, you know, one customer or one you know?
Scott Benner (29:28) Yeah. (29:29) Isn't it interesting? (29:30) Thing. (29:30) What that points out to about all the little new things that you don't have context for.
Anais (29:35) Yeah.
Scott Benner (29:36) Like, yeah, they hand you the insulin, and you're like, no. (29:38) That should that's supposed to be refrigerated. (29:40) And now you're in a panic. (29:41) I'm gonna take it home. (29:42) It's not gonna work for my daughter.
Scott Benner (29:43) There's gonna be a cascading Exactly. (29:44) Cascading problems, you know, like, you're and the person behind the counter is, an 18 year old who's, you know, maybe in art school, and you're just like, hey. (29:54) Write this in this thing, and she's like, lady, I don't know.
Anais (29:56) Yeah. (29:57) Exactly. (29:57) No. (29:57) It's totally true. (29:58) And so so there is a lot of things like that that you're like, okay.
Anais (30:01) Does this matter really right now? (30:03) Do and kind of learning that balances. (30:06) It took a little bit of time. (30:07) But no. (30:08) But, I mean, the we're doing great.
Anais (30:11) So, actually, I discovered your podcast because our diabetes nurse, she's amazing. (30:17) And, you know, after getting out of the hospital two weeks later, we had this visit, and she's like, hey. (30:23) You should you should check out this podcast. (30:25) Like, this guy, he he puts up episode. (30:27) I think that could be helpful.
Anais (30:28) Like, it's it's nice to hear other people perspective. (30:32) And I'm like, okay. (30:33) And the first episode I listened to was the story of this nurse at school that I don't know how many units she gave to that poor kid, but it was, like, a crazy amount of number where she had to do, like, three different injection.
Scott Benner (30:45) Oh, Anise, that was not a good that was not a good episode for you to start with.
Anais (30:49) Yeah. (30:49) So that was my first episode, but you know what it did to it? (30:52) So and then I just sent my kid to school. (30:54) Like, it was, like, this whole ordeal to find a phone and get her Dexcom connected, whatever. (30:58) And I listened to this driving to work, and I was scared.
Anais (31:03) But then you it made me laugh so hard. (31:06) Like, the the reaction that you had in this mom, she was so funny. (31:10) And I was like, I can really I'm I'm loathing about this. (31:13) This is insane. (31:14) And I had to stop on the side of the road because I was loathing so hard.
Anais (31:17) I think it was like a laugh cry kind of situation. (31:20) And I was like, oh, I can laugh about this. (31:22) So it's gonna be okay. (31:24) You know? (31:24) Like, it's we're gonna be fine.
Anais (31:26) Like,
Scott Benner (31:26) let's You just made my day. (31:28) Like, I thought I was happy that your microphone was clear, but now I'm really happy. (31:32) By the way, she when she got on, was like, oh my god. (31:34) Your microphone sounds great. (31:36) Thank you so much.
Scott Benner (31:36) But no. (31:38) No. (31:38) No. (31:38) Like, this is this is awesome because that's my intention. (31:43) And that that it worked out like that is fantastic.
Scott Benner (31:46) I mean, this for people who don't know, this kid got, like, what was it, like, two hundred units of insulin or something?
Anais (31:52) He was insane. (31:53) I was like, how can you make that mistake? (31:55) I get I'm a rookie at this. (31:57) I've been doing this for two weeks, and I would not do this.
Scott Benner (31:59) The school nurse gave her two full syringes of insulin, like, misunderstanding the the system. (32:06) And the mom happened to be coming to the school, so, like, she was there and the and the school nurse does what was it? (32:12) Right? (32:12) The school nurse does Band Aids afterwards. (32:15) So the the mom was like, why are there two Band Aids on you?
Scott Benner (32:18) And that and that started the whole thing. (32:21) And then the mom panics, takes the kid, like, out, like, is gonna take him home for, like, I forget, for glucagon or something. (32:28) And then Yeah. (32:28) And then
Anais (32:29) she ends up in the
Scott Benner (32:29) it's just like this crazy story. (32:32) And and I and now I realize that it's a crazy story that at the end, the kid's okay.
Anais (32:37) Yeah. (32:37) No. (32:37) That the mom is
Scott Benner (32:38) talking about it, and I'm making fun of the nurse, she's laughing. (32:42) And you think, oh, as crazy as this is and as scary as this is, maybe it maybe it'll be okay and nothing even this bad will even ever happen to us.
Anais (32:49) Yeah. (32:50) Exactly. (32:50) That was kind of the where I started.
Scott Benner (32:53) Oh, that's wonderful. (32:54) And but and but you also took the right lesson from it because there are probably people who are gonna get on here and be like, I heard that one and hid in my closet for three weeks. (33:02) So but yeah. (33:03) Oh, that's really great. (33:04) So you tell me about that.
Scott Benner (33:06) Like, how did that re kind of remake you in that moment?
Anais (33:10) No. (33:11) I I think he made me realize that I mean, obviously, it's it's a, you know, it's a serious well, serious. (33:18) It's a serious disease. (33:19) It's here forever. (33:19) It's relentless.
Anais (33:20) I think that was, like, where I was. (33:22) And I was like, okay. (33:22) Well, yes, but we can laugh about it. (33:25) And, I mean, clearly, this woman had, like, a crazy experience, and then she must have been terrified. (33:30) But she's, like, telling her story, laughing about it, and you're, like, you know, cracking jokes.
Anais (33:35) And I'm like, okay. (33:36) Like, yes. (33:37) This is hard, but I think we can find a little bit of hope and levity in this whole thing. (33:42) And it it makes the whole journey a little bit more bearable to know that there is other people that that live through it. (33:49) And, I mean, since then, I've I've listened to a lot of other episode, but what I like about I'm gonna be nice to you now.
Anais (33:56) This is the part where I'm nice.
Scott Benner (33:57) But Thank you.
Anais (33:58) What I like about it is that I would have never learned about that many different people from that many walk of life before. (34:07) I think that's a silver lining for me is that I have had to meet very, very different people, caretakers, people that will work with my daughter, but also people that have diabetes that in before, I would have never interacted with ever. (34:22) And I think the podcast is really nice because you discover stories from people that have very different life and very very different perspective from my own. (34:31) And you do it in a very nonjudgmental way, which I I really like because it could go anyway. (34:38) And and you you just kind of give space to people to tell their story.
Anais (34:41) And I I I really have learned so much about diabetes, but also about, like, people's life situation, what they go through, and I I really enjoyed, kind of hearing those stories. (34:51) So thank you for doing that.
Scott Benner (34:52) Oh, it's my pleasure. (34:53) It really is. (34:54) I am really at my core just a person that's super interested in things. (34:58) I love hearing people's stories. (35:00) I don't really have a feeling that anyone's out there not doing a good job for themselves on purpose.
Anais (35:07) Yeah. (35:07) Like, That's totally true.
Scott Benner (35:08) I just think it's a strange decision to make to look at a struggling person and decide that they're there of their own accord. (35:15) What is funny? (35:16) I think what's funny is that I'm I'm one of those people that when you listen to me, you either like, you you think I'm the other thing or you think I'm you. (35:25) So, like, I think there are plenty of people who would maybe have conservative values who'd be like, I come across as, like, thinking the way they do. (35:33) And so they don't think that I'm making some, like, ultra liberal excuse for people who aren't trying hard.
Scott Benner (35:40) And I think that I'm very kind and and I am genuinely. (35:44) And so I think that people who might think of themselves as as super, you know, I don't know, community focused and and understanding, they see me as an ally as well. (35:53) And the truth is is that, you know, in a weird world where I think the Internet has tried really hard to put us all into groups, I really am just a moderate person around about a lot of things. (36:03) And I don't see that as meaning that I don't take stands on things. (36:08) I just try really hard to see everybody's perspective.
Scott Benner (36:11) And Yeah. (36:12) When it comes to people living with type one or other autoimmune stuff or the people that I've talked to on this podcast, I've never once heard a person who just said, yeah. (36:21) I don't care. (36:23) I'm just I'm sick and I don't care. (36:24) I I hear people who, don't understand how to use their insulin, who haven't been supported well, who don't have good technology, who maybe don't have the money or the time or the resource, who are struggling.
Scott Benner (36:35) I've heard of very bright people who are having psychological implications and that slows them down from helping themselves. (36:42) But I've never heard a person just stand up and say, you know what? (36:45) I don't care and that's why I'm not trying. (36:49) I think everyone is trying really, really hard. (36:51) I don't think they all have the same starting point and I don't think they all have the same tools, but I do think they're all really trying.
Scott Benner (36:57) It's my assumption and my assertion that if we give them the right tools and a better new starting point, that they could all have a lot more success. (37:07) And and that idea to me translates out to how we talk about people. (37:13) I don't know. (37:14) Like, I've never I I just I don't see people struggling and think, oh, they don't they must not care. (37:19) You know?
Scott Benner (37:20) So Yeah. (37:21) And and then you get to hear and this is a feeling I've had in the background. (37:25) And since you I don't talk about it often out loud because I'm always afraid it's gonna sound, like, judgy, but I don't mean it that way. (37:31) But you brought it up, so I'll say this. (37:34) I think it's awesome to turn this thing on on a Monday and hear a French lady, you know, who lives in Boston who's in biotech.
Scott Benner (37:42) And then to turn it on on Tuesday and hear somebody from Louisiana who, you know, doesn't have a job and still has type one diabetes. (37:51) And then to hear a guy from Arizona and then somebody from England tell you that their child passed away and then talk to somebody from Australia to realize that if you have type one or if you have autoimmune in your life, it does not matter which one of these continents you're on, which one of these states you're in, Your life is very similar to the rest of ours.
Anais (38:12) Yeah.
Scott Benner (38:13) And it's the details that make it different, really. (38:16) Anyway, I that's my goal in making it.
Anais (38:18) That's yeah. (38:19) Yeah. (38:19) So I I could not agree more.
Scott Benner (38:21) I don't mean to mix thoughtful Scott with stupid Scott in the same episode because it might it it might confuse some of you. (38:28) But
Anais (38:29) No. (38:30) No. (38:30) No. (38:30) We we we we can all be multiple persons.
Scott Benner (38:33) You you know you you you know isn't it great that you've listened to this podcast long enough? (38:37) You're like, oh, I know what he means. (38:38) Like, sometimes he said dumps, and sometimes he says stuff like that.
Anais (38:43) So we we all we're all complex creature. (38:45) I think that that's okay.
Scott Benner (38:47) Yeah. (38:47) Thank you. (38:47) Thank you. (38:48) I appreciate it. (38:48) Well, I I just love that it's that it's it's done that for you.
Scott Benner (38:51) And because because I can imagine that there are multiples of people who it's also done that for. (38:58) It's just it's lovely because, you know, I'll say over and over again, when when I started making this, I thought I was just telling you all how to pre bolus. (39:06) Like, I really that's what that was my goal. (39:08) I my goal really was I know that there's these 10 things that I do, and when I do them, my daughter's a one c stays in the low sixes. (39:14) I'll share it with people.
Scott Benner (39:16) I didn't know it was gonna turn into all this. (39:19) I didn't know I was gonna mature the way I did while I was making it. (39:22) You you know? (39:22) Like, I didn't know all of this. (39:24) This is ridiculous that that any of this has happened.
Scott Benner (39:27) I recorded the other day with a guy who has, like, a YouTube channel about GLP medications. (39:34) I like his vibe, but I wanted to have him on so he could tell people a little bit about what's coming in the future. (39:38) And I was feeling him out to maybe have him back on the podcast because I think he might be have good information as we go forward over the next, you know, decade or whatever and and where I think GLPs are gonna change and morph and be more valuable for people with type ones. (39:53) And and I realized that before we started talking, before we started recording and we were talking, like, he sees me in a completely different way in a way that I don't see myself because I'm not surrounded by other people who would consider themselves content creators. (40:09) Like, so I really do just think of myself as a guy that sits in a room with a chameleon staring at him making a podcast where people with diabetes get to tell their story.
Scott Benner (40:17) Right? (40:18) And I realized from his perspective, he's like, how many downloads do you get a day? (40:21) And I told him and he goes, dude, that's crazy. (40:24) He's like, a niche podcast about type one diabetes? (40:27) And I was like, yeah.
Scott Benner (40:28) He goes, oh my god. (40:29) He's like, you're, like, in the top, like, like, fine percent of all podcasts. (40:33) And I was like, no. (40:34) I know. (40:35) It was a big deal to him.
Scott Benner (40:36) And I was like, I didn't even, like, care. (40:38) I was like, oh, I know. (40:39) I'm I'm just trying to reach people with diabetes. (40:41) And I was like, oh, in a in another world, this thing means something completely different. (40:46) Like, if you take you out of diabetes, I didn't realize that, like, other people saw me a different way.
Scott Benner (40:52) And it was it was helpful, like, just to to understand
Anais (40:55) that. (40:56) To kinda have a different perspective on on it for sure.
Scott Benner (40:58) Yeah. (40:59) On myself or on the podcast, really. (41:01) Yeah. (41:01) You know? (41:02) Okay.
Scott Benner (41:02) So do you use the podcast for use it to learn management stuff? (41:07) Are you in the Facebook group? (41:09) Like, how else has it been helpful?
Anais (41:10) So I'm on and off on the Facebook group, but I I've used the podcast. (41:14) I did the pro tip series. (41:16) I it's super helpful. (41:17) I think I probably need to relisten to it now after having a little bit of experience.
Scott Benner (41:22) Mhmm.
Anais (41:22) My daughter's on Omnipod, and so I did the I think there was, like, three three or four episode, I don't remember, on Omnipod. (41:28) So when she was gonna start, I listened to those to try to kind of understand a little bit better how it all works. (41:36) And so that was super helpful. (41:37) I mean, I think there is a lot of things.
Scott Benner (41:39) The
Anais (41:39) hospital classes kind of make you generally aware of who know to kill your child, I would say, or keep them alive. (41:48) And I I think for me, what the pro tips and the the specific series did is, like, giving me more tools to, I think, really actually manage her disease and and hopefully do a good job. (41:59) And I think the next level is being able to manage to the degree that we are, but maybe with a little bit less effort, and that would be lovely. (42:08) But I I think we're not there yet. (42:10) We're still kind of tweaking a lot of the ratios and trying to understand who to bolus for certain foods.
Anais (42:15) And and oh, actually, bolus four, the series that you're doing where you just pick a random food, this is super helpful too.
Scott Benner (42:23) Okay.
Anais (42:23) I like that a lot.
Scott Benner (42:24) Oh, we're doing we're doing one for Thanksgiving. (42:26) It comes out Wednesday night.
Anais (42:27) Oh, really? (42:28) Oh, awesome. (42:28) Oh, yeah. (42:29) I'm gonna need that one for sure.
Scott Benner (42:31) Well, listen. (42:32) I'm gonna tell you a secret. (42:33) Thanksgiving's easy. (42:34) Like, people don't think it is, but you just have to treat it all like one big, like, timeline of eating and Yeah. (42:41) Get ahead of it, keep it down, and then get out of any extra that you're doing as far as basil goes or something like that.
Scott Benner (42:48) You just gotta get out of it in time to not cause a low, and then save one save one dessert for the end in case you've used too much insulin. (42:55) That's pretty much it. (42:56) But
Anais (42:57) Yeah. (42:57) That's a good strategy. (42:58) Like that.
Scott Benner (42:59) Get ahead. (43:00) Stay ahead.
Anais (43:01) Yeah.
Scott Benner (43:01) So let me ask you. (43:02) Like, you you mentioned working in biotech. (43:04) That made me pick around in your life a little bit while we're talking. (43:07) Does your education help you with this at all, and does what you do help you at all with the illness or not really?
Anais (43:15) I think yes. (43:16) I mean, I think to some extent because, I mean, we both my husband and I, we're both scientists, and I think it gives you a foundation to understand a lot of, like, the undialing make underlying mechanism and then the mass and, like, kind of anticipating things, solving problems, having that mindset. (43:34) But I do think that it's you don't necessarily need to have all that background to do a good job. (43:41) Actually, something that I realized that is people that care for my daughter the best, it's outside of me and my husband, are people that have a very practical, logical mind. (43:52) It doesn't matter what background they have.
Anais (43:54) It's just like they say, okay. (43:56) This is happening. (43:58) This is happening probably for this reason. (43:59) I'm gonna tweak this and see what happened. (44:01) And then the next time, I know that that happened, so I remember, and I'm gonna do the same thing because it worked out.
Anais (44:07) And I think people that have that mindset do real pretty well. (44:12) I don't think it matters what your background is. (44:14) It's more like the problem solving, recognizing patterns, and just, like, embracing the chaos. (44:20) I think it really is needed also.
Scott Benner (44:24) Has the experience you've had over the last year has it in any way impacted your work? (44:30) Like, did does it change for you now to be in a situation where you have, you know, personal perspective on illness?
Anais (44:39) Yeah. (44:39) That's a super good question. (44:42) I think so. (44:43) I do think so. (44:44) You know, I think part of my job sometimes is to try to understand how a drug is gonna be delivered.
Anais (44:49) So is it gonna be an injection? (44:51) Is it gonna be, you know, a pill, an IV? (44:54) And I think when you are the parents injecting a child six times a day, you realize that this is actually a big deal. (45:02) It's not just like, oh, it will be better if this injection was once a month. (45:07) Of course, it will be better.
Anais (45:08) You know that. (45:09) But it makes it a little bit more real. (45:12) Yeah.
Scott Benner (45:13) I won't give any details, but many hundreds of thousands, if not a million or more people across the country are gonna have a better user experience with an injectable because my wife was in a meeting and spoke up about something. (45:29) And she only she only knew to speak up because of, like, our lives.
Anais (45:34) Yeah. (45:35) I mean
Scott Benner (45:35) Yeah. (45:36) And it's not because the other people in the room didn't care. (45:38) It's not because people were being cheap or, yeah, you know, whatever people would, like, you know, jump to conclusions about. (45:42) Like, it's that there were five or six people in a room who'd never injected themselves with anything, and their job was to be in that room and talk about which one of these injectors to buy from a third party to package this stuff into. (45:54) And my wife looked at it, she was like, I don't think that's the right one.
Scott Benner (45:57) And then explained to them why and, you know, took a little time, and they got out of a contract, changed something else. (46:03) And now a lot of people are gonna have a better experience because of it.
Anais (46:07) And Yeah. (46:07) That's awesome. (46:08) And that's awesome when you can bring a little bit of your experience into your work and that can benefit more people for sure.
Scott Benner (46:14) Do you know another interesting thing? (46:17) My wife was brought into I have to be pretty vague about this, but her company is doing kind of a mental health support thing for for the for the, you know, the entire company. (46:29) And they wanted somebody from each, you know, kind of part of the company that's higher up to be involved a little bit. (46:35) And so my wife said, god. (46:37) They've reached out to me for this.
Scott Benner (46:39) And she's like, I just I do not have time for this. (46:41) And I was like I'm like, no. (46:43) I I know. (46:44) And I was like, are you gonna do? (46:45) She's like, I'm gonna do it, I guess.
Scott Benner (46:47) You know, it's it's it's a meeting a month. (46:49) Like, I can do it. (46:50) Like, my my wife for those of you who don't understand what it's like to have a a type a lady, in your house, My wife got up this morning at 05:00, got in the shower, was on a call at six. (47:03) She will do calls until one, and that's when she'll start working. (47:08) And then she'll work till 10:00 tonight.
Scott Benner (47:11) Yeah. (47:11) You can't talk her out of it. (47:14) It doesn't matter. (47:15) You could say whatever you want. (47:16) That lady needs weed.
Scott Benner (47:17) She gotta relax. (47:18) Whatever you're gonna it doesn't matter. (47:20) Like, she's type a. (47:21) She's Catholic. (47:22) She's she's responsible.
Scott Benner (47:25) She works hard. (47:26) She's the person you want. (47:26) You should any anyone listening should hire my wife. (47:29) You're gonna get an amazing employee.
Anais (47:31) Good value. (47:32) Good value. (47:32) Oh my god. (47:33) Yeah. (47:33) You're gonna
Scott Benner (47:34) yeah. (47:34) Whatever you're paying her, it it's you're getting twice the work. (47:36) It may and maybe twice as even undervaluing her. (47:40) But, you know, she took this this gig and she then you know, this extra thing, and she's in a meeting and somebody's talking and and she realizes, like, nobody's opening up. (47:50) So she started talking about, like, what it was like for Arden to be diagnosed.
Scott Benner (47:55) And in five minutes of being open, which is not really my wife's vibe, she's very Irish. (48:02) And so and, oh, you're French. (48:04) You really know what that means? (48:05) Yep. (48:06) Unfortunately.
Scott Benner (48:06) And she she opened up a little bit, and she said, Scott, it was like it was like cracking the seal on a on a old fire hydrant. (48:16) She's like, everybody just started talking. (48:19) And it was a lot of people with big titles who don't wanna be seen as weak, who were not gonna speak up in that room, and then they did. (48:27) And she's like, and now the whole thing is moving, and then the people under them realized they could open up. (48:32) And then people started talking about their struggles at work, and now they're gonna identify what's causing people issues, and they're gonna have a better workforce because of it.
Scott Benner (48:39) And people are gonna feel better, you know. (48:42) So and that comes from Kelly's growing up, you know, as an adult with a kid with type one. (48:48) So
Anais (48:48) Yeah. (48:49) That's awesome. (48:49) I mean That's pretty cool. (48:50) That she was I mean, you have to be a little bit brave. (48:53) I mean, I don't know if I'm if I'm there yet.
Anais (48:55) I mean, I I guess I'm on the podcast. (48:57) But
Scott Benner (48:57) No. (48:58) You're getting there. (48:58) Yeah. (48:58) No. (48:59) No.
Scott Benner (48:59) That's that's Yeah. (48:59) Pretty good stuff.
Anais (49:01) But I think there is you know, work is there is stuff that should stay private, obviously, but I think it's good that they they're trying to improve mental health because that's super important for sure.
Scott Benner (49:19) This episode was too good to cut anything out of, but too long to make just one episode. (49:24) So this is part one. (49:26) Make sure you go find part two right now. (49:28) It's gonna be the next episode in your feed. (49:31) Today's episode of the juice box podcast is sponsored by the Dexcom g seven, and the Dexcom g seven warms up in just thirty minutes.
Scott Benner (49:39) Check it out now at dexcom.com/juicebox. (49:44) Today's episode is also sponsored by Omnipod five. (49:48) Omnipod five is a tube free automated insulin delivery system that's been shown to significantly improve a one c and time and range for people with type one diabetes when they've switched from daily injections. (49:59) Learn more and get started today at omnipod.com/juicebox. (50:04) At my link, you can get a free starter kit right now.
Scott Benner (50:06) Terms and conditions apply. (50:08) Eligibility may vary. (50:09) Full terms and conditions can be found at omnipod.com/juicebox. (50:14) Okay. (50:15) Well, here we are at the end of the episode.
Scott Benner (50:17) You're still with me? (50:18) Thank you. (50:18) I really do appreciate that. (50:20) What else could you do for me? (50:22) Why don't you tell a friend about the show or leave a five star review?
Scott Benner (50:26) Maybe you could make sure you're following or subscribe in your podcast app, go to YouTube and follow me, or Instagram, TikTok. (50:34) Oh, gosh. (50:35) Here's one. (50:36) Make sure you're following the podcast in the private Facebook group as well as the public Facebook page. (50:42) You don't wanna miss please, do you not know about the private group?
Scott Benner (50:46) You have to join the private group. (50:48) As of this recording, it has 74,000 members. (50:51) They're active talking about diabetes. (50:54) Whatever you need to know, there's a conversation happening in there right now. (50:58) And I'm there all the time.
Scott Benner (50:59) Tag me. (50:59) I'll say hi. (51:01) The Juice Box podcast has been in production since January 2015. (51:05) And in that time, we have amassed just a fantastic catalog of information for you. (51:10) The defining diabetes series, also bold beginnings, diabetes pro tips, small sips, fat and protein, algorithm pumping, mental wellness, ask Scott and Jenny, diabetes variables defining thyroid, after dark, the math behind Omnipod five, pregnancy, how we eat, grand rounds, cold win, GLP meds, the quick start guide if you wanna get going with the podcast but you don't know where to go.
Scott Benner (51:33) Diabetes myths, there's even a type two diabetes pro tip series. (51:37) All of this is at juiceboxpodcast.com. (51:40) Go to the menu, click on series, and they can all be found right there. (51:45) If you go to juiceboxpodcast.com/lists, you'll get all these great downloadable lists of all the different series so you can save them on your phone, keep them for later. (51:54) Every episode is listed along with its episode number.
Scott Benner (51:58) So you can go into Apple Podcasts or your, you know, wherever you listen to your audio, and say you wanna hear episode fourteen sixty nine, steal a one c overnight from the small sip series. (52:08) You just go to the search bar, type juice box, one word, and then the episode number, fourteen sixty nine. (52:13) It should be the first return you get. (52:15) If you have a podcast and you need a fantastic editor, you want Rob from Wrong Way Recording. (52:21) Listen.
Scott Benner (52:22) Truth be told, I'm, like, 20% smarter when Rob edits me. (52:26) He takes out all the, like, gaps of time and when I go, and stuff like that. (52:31) And it just I don't know, man. (52:33) Like, I listen back and I'm like, why do I sound smarter? (52:35) And then I remember because I did one smart thing.
Scott Benner (52:38) I hired Rob at wrongwayrecording.com.
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