#1753 Diabetes Spectrum - Part 2
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In part two, Scott and Tricia explore years of missed LADA, digestive nerve damage, GLP use, and why rigid medical thinking fails people living with complex, autoimmune-driven diabetes.
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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.
Scott Benner (0:00) Friends, we're all back together for the next episode of the Juice Box podcast. (0:04) Welcome. (0:15) This is part two of a two part episode. (0:18) Go look at the title. (0:19) If you don't recognize it, you haven't heard part one yet.
Scott Benner (0:22) It's probably the episode right before this in your podcast player. (0:29) Nothing you hear on the Juice Box podcast should be considered advice, medical or otherwise. (0:33) Always consult a physician before making any changes to your health care plan. (0:44) If you're new to type one diabetes, begin with the bold beginnings series from the podcast. (0:49) Don't take my word for it.
Scott Benner (0:51) Listen to what reviewers have said. (0:53) Bold beginnings is the best first step. (0:55) I learned more in those episodes than anywhere else. (0:58) This is when everything finally clicked. (1:00) People say it takes the stress out of the early days and replaces it with clarity.
Scott Benner (1:04) They tell me this should come with the diagnosis packet that I got at the hospital. (1:08) And after they listen, they recommend it to everyone who's struggling. (1:12) It's straightforward, practical, and easy to listen to. (1:15) Bold Beginnings gives you the basics in a way that actually makes sense. (1:30) Cozy Earth is back with a great offer for Juice Box podcast listeners.
Scott Benner (1:34) That's right at cozyearth.com. (1:37) And right now, you can stack my code juice box on top of their site wide sale, giving you up to 40% off in savings. (1:45) These deals will not last, so start your holiday shopping today by going to cozyearth.com and using the offer code, JuiceBox at checkout. (1:53) This episode of the juice box podcast is sponsored by the Dexcom g seven, the same CGM that my daughter wears. (2:00) Check it out now at dexcom.com/juicebox.
Scott Benner (2:04) This episode of the juice box podcast is sponsored by the Omnipod five. (2:08) And at my link, omnipod.com/juicebox, you can get yourself a free what'd I just say? (2:16) A free Omnipod five starter kit. (2:19) Free? (2:20) Get out of here.
Scott Benner (2:21) Go click on that link. (2:22) Omnipod.com/juicebox. (2:24) Check it out. (2:25) Terms and conditions apply. (2:27) Eligibility may vary.
Scott Benner (2:28) Full terms and conditions can be found at omnipod.com/juicebox. (2:33) Links in the show notes. (2:34) Links at juiceboxpodcast.com. (2:37) And and I know you I know you don't get that reference, but that's where they that's where the Canadian researcher figured out about GLPs in the eighties. (2:46) He, he swabbed the I think it's a Gila monster.
Scott Benner (2:48) It's some some Yeah.
Tricia (2:49) Yeah. (2:49) Gila monster.
Scott Benner (2:50) Yeah. (2:50) Some big lizard that is voraciously hungry when it's hungry, but after it eats has no appetite and has no fat on it at all. (2:58) And he swabbed its mouth and found that the, GLP in its saliva was, like, significantly more than humans. (3:04) And that's how that's where today's idea came from originally.
Tricia (3:08) And So how?
Scott Benner (3:10) So I I will just tell you that I don't know how to it doesn't matter the words I use. (3:16) I appear to have a GLP deficiency because once you give it to me, I'm okay. (3:22) When you give like, Arden has no weight to lose. (3:25) But if you inject the GLP into her right now, in a couple of hours, her insulin needs are gonna start to go down. (3:32) In a couple of hours.
Scott Benner (3:34) Okay? (3:34) I know a 16 year old female with a ton of of lady problems and a a weight issue, meaning, like, two hundred and like, five three, 16 years old, five three, two hundred and twenty pounds. (3:50) Okay? (3:51) Has been on a low level of a GLP for eight days. (3:54) It's down 12 pounds already.
Scott Benner (3:56) I know. (3:57) Right? (3:58) We'll probably wake up a week from now and be 20 pounds lighter. (4:01) We'll probably wake up six months from now and be 50 and be bound to where they're supposed to be. (4:07) Now did it change their eating habit?
Scott Benner (4:09) It did. (4:10) But that can't be the entire story. (4:13) Like, because if I know if I would've taken that kid, locked her in a room, given her the same amount of food that she's had on the GLP, she would not be twelve pounds lighter today, eight days later. (4:23) Like, there's some people have deficiencies in places. (4:27) And I don't know what this juice is doing and what it's revealing, but we need more people to look at what's actually happening to people and and not to get stuck in, well, this is a type two diabetes drug.
Scott Benner (4:39) People think of it as a type two diabetes drug because that's what the original person developed it for. (4:45) But I can tell you that my wife works in drug safety and that she came home to me now, probably almost fifteen years ago and said one day, hey. (4:55) One day people are gonna take a shot and they're gonna lose weight. (4:58) And I was like, what? (4:59) And she goes, yeah.
Scott Benner (5:00) Yeah. (5:00) She goes, I just saw a ton of data. (5:02) By the way, I don't know why we didn't buy some stock when we heard about that, but we did not. (5:07) Okay? (5:07) And so but, like, she said, yeah.
Scott Benner (5:09) Yeah. (5:09) I'm seeing all this data. (5:10) There's this type two diabetes drug they're working on, and it's got this crazy side effect. (5:14) And I was like, what's the crazy side effect? (5:16) She goes, people are losing a lot of weight on it.
Scott Benner (5:18) And I was like, And that was just my wife talking about data that she saw, right, to me in our kitchen. (5:24) And then ten years later, I'm hitting myself with a pen every day, and I'm seventy pounds lighter two years later.
Tricia (5:31) Yeah. (5:31) And and I do have to say, I mean, it's not like it hasn't been seen before that certain drugs, it's all all of a sudden like, oh, has a different
Scott Benner (5:39) Yeah.
Tricia (5:40) This is a different off label
Scott Benner (5:42) Yeah. (5:42) But that's my point is that it it doesn't matter because when you get into the academia side of it, the people who sit around and congratulate themselves all the time for the great work they're doing. (5:50) Right? (5:51) They they get stuck in, like, well, it's a type two IVs drug. (5:55) Like, you're how many times I hear people like, oh, you can't have that.
Scott Benner (5:58) You have type one. (5:59) What the
Tricia (5:59) fuck that? (6:00) My GI doctor actually now I see a motility specialist. (6:04) Thank god. (6:04) I finally figured out where to go. (6:07) But long story short, like, he when he he thought I was asking I was asking about digestive drugs, but to your point, he when I he brought up the GLP ones and then referred it to as just a type two drug.
Tricia (6:22) As though I was asking to take them for me. (6:24) You know what I mean? (6:24) Like and I was getting confused.
Scott Benner (6:26) My anemia is completely gone since GLP. (6:29) Do I think that means GLP cures anemia? (6:32) Not saying that. (6:33) My best guess is my digestion works differently now, and I'm actually absorbing the nutrients out of the food I'm eating. (6:40) Right?
Tricia (6:40) I will tell you, and it's really important. (6:43) This is the other reason I'm here is it's a bit embarrassing, but I ended up finally going for the appropriate digestive test. (6:52) Like, where they they give you, like, these pellets to see how fast they move through your system. (6:56) I don't know if you or your daughter's ever had it. (6:59) I think it's, like, transenteric.
Tricia (7:02) You know, it's a test. (7:03) You go for four days, and I massively failed the test. (7:08) And it showed that I, from the sixteen years of diabetes, develop I I have severe colonic inertia. (7:17) So it didn't affect my upper tract like the normal gastroparesis. (7:22) It gave me gastroparesis in my colon.
Tricia (7:25) So it's another reason why I'm, like, very loud about what happened because I don't want this kind of thing to happen to anyone else because Lada can come with nerve damage. (7:38) And my doctor say my blood sugar must have been roller coaster because my fasting
Scott Benner (7:43) Well, so came down. (7:44) You ever tried, like, a a digestive enzyme or some, like, magnesium oxide along with your food to see if it
Tricia (7:51) So this is what I do. (7:52) This is what I do because my damage is so severe. (7:55) They told me, like, 80 like, 95% of your colon doesn't work. (7:59) I'm has yeah. (8:01) My endocrinologist told me that and my GI motility specialist.
Tricia (8:05) I'm on a drug. (8:07) No. (8:07) It's not a drug. (8:08) I take a medical device called Vibrant Capsule. (8:11) It's changing things for diabetics with nerve damage.
Tricia (8:15) It's sort of you take this it's an it looks like a pill. (8:19) It vibrates on a certain cadence when it hits your digestive tract, and a lot of type ones, especially old school who got damaged from before things got I think a little better for type ones, actually helps with peristalsis, and then I take a a medication called Motegrity. (8:38) And to your point, I take magnesium.
Scott Benner (8:40) Yeah. (8:40) And it makes the poopy come through faster.
Tricia (8:43) I this it once they put me you know how you now have the motor for people who have the gastroparesis in the upper Yes. (8:52) Stomach? (8:53) If I was not on this drug, I probably would be suicidal because my system worked so poor. (9:01) It was it's so severely damaged. (9:03) And I am five ten, and I only weigh about a hundred and twenty two pounds because it's like it's all all I can only eat
Scott Benner (9:12) so much volume
Tricia (9:13) per day. (9:13) Yeah. (9:14) And then the other thing is I used to be a very attractive woman. (9:17) You could see over the years between the GI issue and, you know, my body started to waste away from the diabetes. (9:27) And ironically, Scott, I cannot believe this.
Tricia (9:30) I got a consult and was seeing a urologist for three years between 2000, what, '11 or something. (9:43) And or something like between 2011 and 2015. (9:46) I'm I'm a type one child seeing a urologist for urgency, frequency, nocturia. (9:54) And in my labs, okay, this is why I want everybody to listen, my there was no glucose in my urine. (10:02) Okay?
Tricia (10:02) Folks, I'm going up and down with the slowly progressing type one, and when my labs were done, no glucose is being found in the urine.
Scott Benner (10:14) Mhmm. (10:15) Are you making what what is that? (10:17) The urgency, frequency, nocturia, is it you're peeing your pant you're peeing the bed?
Tricia (10:21) This no.
Scott Benner (10:22) No. (10:22) What does that mean?
Tricia (10:23) Urgency and frequency means you're at work and you're like, god. (10:26) I just peed. (10:27) Why do I have to pee again?
Scott Benner (10:28) Mhmm.
Tricia (10:29) So that's what I was seeing the urologist for. (10:31) And then at night, I started this is what I told the doctor in 2011. (10:36) I was getting very annoyed by my bladder in the middle of the night, like I drank a Big Gulp. (10:44) And that's what the doctor was like, I don't know. (10:46) It's got it's probably gone you know, go see your gynecologist.
Tricia (10:49) So my point is with slowly progressing type one, LADA, whatever you wanna call it, you're not necessarily being so bad, some of us, that you can't make it on you know, you can't stand on a commuter pus and make it make it through the the the tunnel. (11:06) You can't make it through the workday. (11:07) You're ear you could be irritated by it during the day, but it's not extreme. (11:12) Mhmm. (11:12) You could experience way too much peeing at night.
Tricia (11:17) So, you know, it's not the typical, oh my god. (11:22) I I'm peeing. (11:23) I can't I can't function, which I wanna tell people. (11:27) And it makes sense because if my fasting was normal, right, I'm not I'm not at you know, maybe my meal's going to two hundred to 02:50 or something in the early days. (11:40) Like, I probably am not reaching those highs.
Tricia (11:43) Like, I remember, what is it? (11:44) Like, Jake Cutler or one of the football players, like, I read about, like, he ends up in the emergency room.
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Tricia (13:58) At 500. (14:00) That that wasn't happening to me.
Scott Benner (14:02) You know what's funny? (14:03) You say that, you know, there's quiet stories about Jay Cutler being, like, a being a dick. (14:09) I don't if
Tricia (14:09) you if
Scott Benner (14:10) you know and I always wondered, like, I wonder if his blood sugar is just swinging all over the place.
Tricia (14:14) Well, he that's what they they found. (14:17) Like, he was losing, like, a ton of weight, and he also didn't have any energy. (14:21) And then he ends up, you know, yeah, in the emergency of 500. (14:27) So I'm just saying, like, doctors need to understand it can be a very different experience for
Scott Benner (14:32) person. (14:33) Hey. (14:33) So this thing you're using, it's called Vibrant Gastro?
Tricia (14:37) Yeah. (14:37) And I they like, I hope they get a lot of support. (14:43) It's a game changer for diabetics with nerve damage in their digestive tract. (14:49) You know, with lower digestive tract, you know, upper, I think there's other things for that, but it's a game changer.
Scott Benner (14:59) That's awesome. (15:00) Oh, it's awesome that somebody thought of something. (15:02) And what kind of, magnesium do you take?
Tricia (15:06) I take, what do I take? (15:08) I just take glycinate because I'm on Motegrity, which has a laxative effect.
Scott Benner (15:12) And Already.
Tricia (15:14) Yeah. (15:15) So it's like the doctor's like, okay. (15:16) Balance yourself.
Scott Benner (15:17) Yeah. (15:18) You don't wanna be gone too much.
Tricia (15:20) Yeah. (15:20) Or feeling sick, you know, or feeling, you know, just, like, nauseous or anything.
Scott Benner (15:25) Well, I I just I learned about magnesium oxide because I wanted to be ready in case I got constipated from the GLP. (15:33) So I just, like, I would take one.
Tricia (15:35) That was very smart. (15:36) That was very
Scott Benner (15:36) smart.
Tricia (15:37) Yeah. (15:37) Yeah. (15:37) Yeah.
Scott Benner (15:37) Yeah. (15:38) Well, I appreciate that. (15:39) But I I I just took one every day with the GLP to make sure I kept I I on the GLP, like, I realized you really wanna go to the bathroom every day. (15:47) Like, it's just it's super important to just keep things flowing as the as the
Tricia (15:51) It isn't it so funny, Scott? (15:52) I use such before this horrible experience just kept cascading through, you know, my life, and I, like, was so prim and proper. (16:04) Now it's like you've got diabetes. (16:06) You've been through all this. (16:07) I'm like, let me tell you.
Tricia (16:09) Let me tell the whole world I've got this horrible, severe problem and, like, you know, there's vibrant cat gastro and just really trying to help people
Scott Benner (16:20) Well, listen.
Tricia (16:21) With with diabetes.
Scott Benner (16:23) About two weeks prior to when this comes out, I will, at the end of some episode, be talking about a procedure I'm trying to get that I mean, I swallowed so hard before I said it out loud. (16:35) I was like, oh my god. (16:36) I'm gonna say this, aren't I? (16:37) Like, just okay. (16:38) And then I said it, and the woman I was talking to, she goes, I just she's like, I really appreciate that you just shared that.
Scott Benner (16:45) She's like, I think that probably impacts way more people than you think, and there's no way anyone's talking about it.
Tricia (16:51) And Yeah. (16:51) No. (16:52) I I agree. (16:52) And I sit in the waiting room at my motility specialist, and I'm pretty sure I can see there's a few people I've seen pumps, you know, saying I'm like, here we are. (17:01) Yeah.
Tricia (17:01) You know? (17:02) And and and for me, ironically, here I am young. (17:04) My blood sugars probably weren't as high, but this wasn't caught for such a long period. (17:09) And I'm in there with the old school, old guy diabetic who didn't have all this great technology, so he has damage. (17:16) And I'm always like, how ironic is it?
Tricia (17:19) You know, my doctor kinda calls it she she always says it's tragic, my endocrinologist now. (17:25) And I don't know how Scott, my sugars must not have been going or maybe it's the microbiome. (17:32) My vision, knock on wood, I'm knocking on wood, is perfect. (17:36) Okay? (17:37) So, like, it it's just very interesting.
Tricia (17:40) Although I'm constantly now being monitored because some of my liver enzymes have been out of whack to make sure I don't get what is it? (17:48) Autoimmune hepatitis. (17:50) Jeez. (17:51) And then I got put on, to your point earlier, thyroid medicine even though my TSH was normal, and it was life changing. (17:57) I got put on a small amount, and suddenly I stopped being freezing all the time.
Tricia (18:03) My my digestion improved somewhat. (18:06) So I'm like, who who cares if your TSH is normal? (18:10) I've, TPO antibodies, and my body doesn't function normally.
Scott Benner (18:15) Yep. (18:15) Medicate the symptoms, not the number. (18:18) That's what I say. (18:19) So Yeah. (18:19) Yeah.
Scott Benner (18:20) I I'll tell you. (18:21) Did you end up having kids?
Tricia (18:23) No. (18:24) It's a nice story. (18:25) I actually ended up divorcing, remarry marrying. (18:31) I think the health problems had a huge strain because I started to feel like I was crazy on on my first marriage. (18:39) I reconnected with my husband who I went to college with.
Tricia (18:43) He's just a wonderful guy. (18:45) He was my first boyfriend in college. (18:47) We we married, and I have two wonderful stepchildren. (18:51) And I I can't believe within this horrible story, I'm always grateful to the universe that I have had some wonderful, you know, come out of it. (19:03) I've I had to be treated for post traumatic stress disorder with EDMR.
Scott Benner (19:11) How'd that work?
Tricia (19:12) That took a year, but I had to do, like, a lot of cognitive behavioral therapy, e EDMR to calm the areas of my brain that associated with the medical misdiagnosis by that physician in 2016. (19:36) Mhmm. (19:38) Because I will never forget the day I my doctor, I said, let me put on a CGM, and I immediately spiked 180 with a, like, a half cup of, like, brown rice noodles. (19:56) And I I had post traumatic stress. (20:00) Could you imagine finding out that you had had type one fully progressing for sixteen years, and you had had a doctor make a mistake on your your case.
Tricia (20:16) So you were already experiencing damage, but then that doctor solidified that damage. (20:22) And so if I didn't do it, it wouldn't have calmed the area of my brain that's associated with that medical mistake. (20:32) And what I've noticed is I've had what they call post traumatic growth, which is basically like you have good things. (20:41) You can appreciate life because you've learned from this horrible experience that you've had. (20:51) And I also think time is precious.
Tricia (20:53) I don't know how much this has shortened my own life span. (20:59) And, you know, and, again, that's why I wanna get my message out that diabetes is the spectrum. (21:05) And if I see one more newsletter, Scott, that says that there's just type one and type two and doesn't talk about all of these news findings, I think I'm gonna rip my hair out. (21:15) Yeah. (21:15) And they're coming out of very prestigious
Scott Benner (21:18) Tricia, let me
Tricia (21:19) academic medical centers. (21:20) Yeah. (21:20) Let Those those letters.
Scott Benner (21:21) Let's talk about that for half a second because you brought that up a couple of times. (21:25) And I'm sorry for those of you listening who might find yourselves falling in this category, and I like you too. (21:30) You're good people. (21:31) But I see people on the LinkedIn congratulating each other all the time for doing shit that I'm like, that ain't gonna help anybody. (21:39) Like, what are you doing?
Scott Benner (21:40) Like, that's that's where you're spending your time and your resources. (21:43) I think there are a lot of academic people that like to get together and sit in rooms with each other and congratulate each other on all the good work they're doing. (21:50) And and they don't realize maybe that it's not it's not fast enough. (21:56) And even if they're right, and often they're wrong. (21:58) Like, you go back and you look at at the things that these organizations say, and you're like, oh my god.
Scott Benner (22:05) You were already fifteen years behind on this. (22:08) Like, I would never call anybody out, but I saw a video one time with this doctor. (22:12) He's a very well thought of person. (22:14) I've met him personally a couple of times. (22:16) He's a gentleman, a lovely person.
Scott Benner (22:18) Right? (22:19) And he's he says, I'm gonna make this big announcement on on his video channel, which, by the way, four people saw. (22:25) But that and I was and I was three of them because I because I watched it three times. (22:29) And he's gonna make this big announcement. (22:31) He's been doing this research for this, like, decades long decade long research.
Scott Benner (22:35) He's got big announcement for people with type one dice. (22:37) Big, big, big announcement. (22:39) Gets on, has somebody interview him so that it looks real official. (22:41) And, yeah, I'm like, sitting there. (22:42) I'm like, oh my god.
Scott Benner (22:43) The big announcement's it's coming. (22:44) It's coming. (22:44) It's gonna be something big.
Tricia (22:45) I'm looking
Scott Benner (22:46) for him. (22:46) He like I'm so excited. (22:49) And, his big announcement was that if you were a CGM and you set your alarms lower and you treat sooner, you have better outcomes. (22:58) It took him a decade. (22:59) Yeah.
Scott Benner (23:00) Took him a decade to make that announcement because he had to do research to find out if it was true. (23:04) I saw that with my daughter and then talked about it on a podcast 10 ago.
Tricia (23:09) And and Oh, I believe it. (23:10) Yeah. (23:10) Listened to one of your podcasts on digestion when you know, while I was still investigating things, and I found out more from you than I did.
Scott Benner (23:17) Of course.
Tricia (23:18) You and Arden.
Scott Benner (23:19) Yeah. (23:19) I saw a thing. (23:20) It made sense. (23:21) I watched it happen a couple of times, and I went, okay. (23:24) It proves itself out.
Scott Benner (23:25) I've done my research, and and now I mentioned to somebody else, hey. (23:30) Let me know. (23:30) If you do this, does this happen? (23:32) Yeah. (23:32) Yeah.
Scott Benner (23:32) Yeah. (23:33) Five, six, seven year you know, five, six years later, now the you know, you start hearing Dexcom saying it out loud. (23:39) Like, hey. (23:40) Make your make your make your, you know, make your high alarm lower. (23:43) You'll have better outcomes.
Scott Benner (23:44) Awesome. (23:45) Like, now they're able to by the way, they knew on day one too. (23:48) It's just they probably got to a point where they were finally able to say it out loud. (23:51) But it's and my point isn't that this person's silly or something. (23:54) My point is that the way that the world that he lives in works is he sees something, he knows it's true, and then he's gotta go through hoops to prove it out over years and years and years.
Scott Benner (24:05) He's gotta get money to find his things so he can figure it out. (24:08) I'm sure when he was saying I've got a big announcement, he was thinking, I am, like, so far behind on this, like, whatever, but I put all this work into it. (24:15) I gotta finish up now. (24:16) And and I'm not saying that shouldn't happen. (24:18) I want all that to happen.
Scott Benner (24:20) But you can't get into a room and congratulate yourself after having spent, like, half your career to figure out a thing that some jackass with a microphone figured out ten years before. (24:29) Like, right, like and and if that's happening in that specific situation, imagine all the other parts of life and medicine where this stuff is happening, where people like, real people like Tricia are suffering for decades while you're sitting in a room congratulating yourself for figuring something out and then having no way to put it into the world. (24:52) Because you go, well, what we figured out is, like, you know, we'll give them this test. (24:56) And if the test comes back between here and here, then that means go to this. (25:00) I mean you you could have spent five minutes teaching yourself how to think about this problem and figured it out much, much sooner.
Scott Benner (25:07) And I know that to be true. (25:08) Tricia, I know that to be true because I am not a special person. (25:13) I know I could not get through medical school. (25:15) I know that I my brain does not work like that at all. (25:18) I would not I couldn't do any of those things.
Scott Benner (25:21) And yet, I've, like, through storytelling and listening to people, have helped people figure out more things wrong with their life than anything. (25:29) And I'm just saying to those people, like, maybe a little more of that. (25:33) Like, you you like, I don't stop doing your your peer reviewed. (25:37) I'm not asking you to stop, but I'm asking you to, like, just see that there's other ways to think about this that get people to, like, happiness and health faster. (25:47) You know what
Tricia (25:48) listened to doctor Peter Ortiz
Scott Benner (25:51) I mean, I I think once or twice. (25:53) I heard him talking about something a week or two. (25:55) I was in the car, and he was on something, and I heard him talking. (25:58) And he seemed very reason like a reasonable guy. (26:00) Like, you know I mean?
Scott Benner (26:01) Like Well,
Tricia (26:02) he he figured out he had insulin resistance and then, like, changed his life. (26:06) But one thing I like about him is one time I did listen to him just say, listen. (26:12) We have to go back to med school and teach people critical thinking. (26:16) Yeah. (26:16) Like, he just did this whole he's like, you know what the problem with he's like, I'm surrounded by people who won't think and they won't really consider your family history.
Tricia (26:27) And my endocrinologist now said
Scott Benner (26:30) The Dexcom g seven is sponsoring this episode of the juice box podcast, and it features a lightning fast thirty minute warm up time. (26:38) That's right. (26:38) From the time you put on the Dexcom g seven till the time you're getting readings, thirty minutes. (26:44) That's pretty great. (26:45) It also has a twelve hour grace period, so you can swap your sensor when it's convenient for you.
Scott Benner (26:51) All that on top of it being small, accurate, incredibly wearable, and light, these things, in my opinion, make the Dexcom g seven a no brainer. (27:00) The Dexcom g seven comes with way more than just this. (27:04) Up to 10 people can follow you. (27:06) You can use it with type one, type two, or gestational diabetes. (27:08) It's covered by all sorts of insurances and, this might be the best part.
Scott Benner (27:14) It might be the best part. (27:16) Alerts and alarms that are customizable so that you can be alerted at the levels that make sense to you. (27:23) Dexcom.com/juicebox. (27:25) Links in the show notes. (27:27) Links at juiceboxpodcast.com to Dexcom and all the sponsors.
Scott Benner (27:31) When you use my links, you're supporting the production of the podcast and helping to keep it free and plentiful.
Tricia (27:37) She sometimes figures out people have autoimmune lot of because they or just the sort of type one, etcetera, because they've gone around to tons of people. (27:50) And she'll say she'll say, like, she'll kinda look at it like a jig purse saw a puzzle and be like, nobody's enacting the dots here.
Scott Benner (27:58) Yeah. (27:58) It's it's it's the and it's the only thing that makes sense to me. (28:02) Like, I ask everybody who comes on about their history and their family real quick, and most of them don't even like, sometimes they don't even see the connection. (28:08) I had a lady tell me the other day, no. (28:11) Like, there's no other autoimmune in my family.
Scott Benner (28:13) And then 20 later, she's telling me, like, that her dad has Raynaud's. (28:17) And I was like, that's autoimmune. (28:19) And she goes, oh, I didn't know that. (28:20) I didn't know that. (28:21) And I was like, yeah.
Scott Benner (28:22) It is. (28:23) And then you start then you have to wonder, like, what else is going on in her family that she doesn't know about? (28:27) Like, what did Sakina know when she told me twenty years ago, you know, that, hey. (28:33) Autoimmune runs in families. (28:35) And then the problem is is that them people word police you.
Scott Benner (28:38) Autoimmune doesn't run-in families. (28:39) It's not genetic. (28:40) Or or, like, what like, stop. (28:42) Who it doesn't I don't care what word it is. (28:44) Here.
Scott Benner (28:45) A lot of people
Tricia (28:46) was in my family? (28:47) What? (28:48) That's just the way we are.
Scott Benner (28:49) Yeah. (28:49) Is she thin? (28:51) Is she thin? (28:52) A lot of us are thin. (28:54) Like, yeah.
Scott Benner (28:54) You mean a lot of us are malnourished because we have celiac? (28:57) Is that what you wanted to say? (28:59) Yes.
Tricia (29:00) Exactly. (29:02) Exact and my father always makes me laugh. (29:04) He goes, back then, we were just back in the day, our our parents would say, like, they have the big c, like and, like, whisper about it. (29:12) So then, you know, then then you've got that
Scott Benner (29:14) Well, the spree
Tricia (29:15) in families.
Scott Benner (29:16) Oh, also, the sprue. (29:18) What what? (29:18) Oh, she's got the sprue. (29:20) I'm like, what is that? (29:21) I said to my wife and by the way, when I was dating my wife, if somebody would've
Tricia (29:24) That's hysterical.
Scott Benner (29:25) If someone would've told me the lady had the sprue and that this was all genetic, I would've just moved on to a different girl. (29:30) And, like, I didn't know I didn't know I tell listen. (29:32) I tell my kids all the time. (29:33) It's why I asked you if you had kids because on there's a part of me that's like, thank god you didn't have kids.
Tricia (29:38) Oh, no. (29:38) I'm I'm really grateful. (29:40) And I think that, to your point, other things manifested in my brother's family through epigenetics. (29:45) And, like, my nephew has born with severe food allergies to, like, several food groups. (29:52) And then his like I said, he's had to watch his sugars.
Tricia (29:56) He's only 18. (29:57) And, you know
Scott Benner (29:58) Your family is
Tricia (29:59) like 17.
Scott Benner (29:59) Your family is
Tricia (30:00) like Hashimoto's. (30:01) Yeah.
Scott Benner (30:01) Yeah. (30:02) Yeah. (30:02) Your family is like bulldogs that can't breathe. (30:04) You you you're like, uh-oh. (30:06) One too many generations.
Scott Benner (30:07) Ugh. (30:08) And, like, you get you know? (30:10) And and it's And
Tricia (30:10) then my brother laughs at his wife for having all these allergy things in his family, and he's like, we just weren't good together. (30:16) You know?
Scott Benner (30:16) Like, he'll go allergies that. (30:17) Are are are immune too. (30:20) Like like, for sure I know that allergies aren't considered autoimmune, but come on. (30:24) It's your body's immune system overreacting to something.
Tricia (30:27) Please. (30:27) Yeah. (30:28) They're gonna find out things years from now.
Scott Benner (30:30) Of course.
Tricia (30:31) I don't know. (30:31) I I what you're saying, it's highly suspect.
Scott Benner (30:35) No. (30:36) It's we just don't understand it a lot, and we think we do.
Tricia (30:39) Yeah.
Scott Benner (30:39) You know what it is? (30:40) We think we do because a hundred and fifty years ago, we were riding around on horses looking for rocks in the ground. (30:46) And, like, we like we think we're so, like, you know,
Tricia (30:48) thickest think we're advanced, but you just keep looking back over x decades. (30:54) I mean, we could just look in type one itself. (30:57) I mean, since Arden's been little, I mean, you could probably just tell me stories about like, think about it. (31:02) When I was a kid, I I I don't think they ever saw they thought they they just gave you some Synthroid, and that cured the entire issue with your body. (31:11) But you you're still having downstream issues from the the Hashimoto
Scott Benner (31:15) side of still have hard the thing we're not tackling is that it's and I've been doing this thing with Erica. (31:24) We've been recording this this series about body grief, which is a thing, like, you know, like, she's talking about a lot in her life, but we haven't really dug all through it yet. (31:32) But but it the it's the impacts on you. (31:35) Like, it's not as easy as take this pill and you'll be okay because sometimes people are like, I don't wanna be sick. (31:41) Like, do you
Tricia (31:41) know what
Scott Benner (31:42) I And and thyroid is an example. (31:44) It's, such a slow moving thing for some people that if you don't take the medicine, you don't know today that you're okay. (31:49) Like, the reason people take care of their type one diabetes is because you'll fucking die if you don't.
Tricia (31:53) No. (31:54) Right. (31:54) Right. (31:54) Right.
Scott Benner (31:54) Exactly. (31:55) By the way, that still doesn't stop some people. (31:57) So, like, instead of seeing that as, like, some, like I don't know. (32:02) You know, instead of seeing that as a personality flaw, I just think of it as I think of it as it it's your it's it's that thing that people have. (32:13) Like like, I can make it through anything.
Scott Benner (32:15) I can do this. (32:16) I can get by. (32:16) Like, it's that's important, by the way. (32:18) Like, if people don't have that belief in themselves, we'd all be dead. (32:21) Like, we'd all just give up the first time something happened.
Scott Benner (32:23) Right? (32:23) So you just believe that you can overcome anything. (32:26) But there are times in your life where that belief is dangerous. (32:30) Right?
Tricia (32:30) Like That happened to me with the doctor handing me the the diet. (32:37) Right? (32:38) And I'm thinking I'm gonna cure myself. (32:40) And then I'm I have a master's degree. (32:42) Think about it.
Tricia (32:43) How ironic. (32:44) I worked in health care. (32:45) Right? (32:45) Because a lot of us who grow up with people who have type one diabetes go on to wanna help other people. (32:52) And then I learned through my whole experience, learned helplessness.
Tricia (32:58) So I didn't start there, Scott, but I started to give up because no one was help helping
Scott Benner (33:06) It's hard.
Tricia (33:06) Me. (33:07) Right? (33:07) It's So you you've got an intelligent, educated person who if you taught her things when she went to the doctor's office about, you know, tests she should have or what she's vulnerable to. (33:20) She's gonna, you know, listen. (33:22) And and and and and it yeah.
Scott Benner (33:24) I'm so I'm so sorry to say that I think that one of the one of the my takeaways from making this podcast is that you just can't that it it's hard to it's easy to say the health care system doesn't work preventatively, but I think people's minds don't work preventatively.
Tricia (33:42) Now we're biased. (33:43) If you ever seen, there's work by Danny Conno man Kahneman? (33:49) I might say it wrong. (33:49) He's a psychologist who says the amount of, like, bias on it, like, that's not on a conscious level between you and the physician, both of you, are experiencing that's in the room actually interferes with, like, doctors making the right diagnosis or or or patients maybe taking the right next step. (34:14) They're like things we're not even conscious
Scott Benner (34:16) Yeah. (34:18) I I just and I think that we over value where we're at as far as our knowledge goes. (34:23) Like, I mean, it I don't know. (34:24) What's a
Tricia (34:25) I don't anymore, Scott.
Scott Benner (34:26) Yeah. (34:26) You should.
Tricia (34:26) I do not.
Scott Benner (34:27) What's a good example? (34:28) What's a good example of oh, okay. (34:31) Nineteen o nineteen o three, the Wright brothers fly for, like, ten, twelve seconds. (34:38) Okay? (34:38) In in 1969, we land on the moon.
Scott Benner (34:42) And last week, I watched a rocket get caught by a pair of metal scissors. (34:47) So, like like so it feels like, oh my god. (34:50) Look how fast we're going because in that realm, we are really going quickly. (34:55) But if you stop and talk to somebody who understands spaceflight, they'll tell you that, like, we don't really we're not very good at it at all. (35:02) Like, we're just way better at it than the Wright brothers were about about getting off
Tricia (35:06) the ground. (35:06) Yeah. (35:07) Look at look at my nephew. (35:09) He was told to avoid all nuts and milk because he had a food allergy. (35:16) Now we know that's the worst thing, and he had to then, as he got older in middle school, go for torturous milk challenges in order to get his body used to milk.
Tricia (35:27) And then the doctors were like, start eating almonds. (35:30) You're you're allergic to tree nuts, but we've tested and you're not allergic to these because we once thought not exposing your kids to the peanuts. (35:39) Okay? (35:39) This was this was not that long ago with actually telling pregnant women and then having their babies, like, don't eat them. (35:46) Right?
Tricia (35:47) And now we're like, oops. (35:49) Backpedaling on that one. (35:51) That actually makes you have the allergy Mhmm. (35:54) And, like, sustain the allergy. (35:56) Like, so
Scott Benner (35:57) Well
Tricia (35:58) To me, I always think about that. (35:59) When I go to the doctor now, I'm like, you don't know what you don't
Scott Benner (36:03) Yep. (36:03) I'm I'm gonna I'm gonna do this. (36:05) I just pulled up a list for you because I want people to kinda, like, feel this and then, you know, like, try to apply it to what you're seeing today. (36:12) Right? (36:13) There was a time where anytime somebody was sick, we did bloodletting.
Scott Benner (36:20) Right? (36:20) Anything that was wrong with you, they put a leech on you or sliced open your vein to let out the bad blood. (36:26) That's that that's a thing that was medically, like like, accepted as a great idea. (36:32) Doctors used to drill or scrape a hole in your skull to release evil spirits, cure headaches, or treat seizures. (36:39) We would lobotomize people by taking a sharp tool, inserting it through their eye socket to scramble part of their frontal lobe.
Scott Benner (36:46) People used to get mercury pills for medicine. (36:50) That would be mercury pills, ointments, and vapors were prescribed for syphilis, constipation, teething, and more. (36:57) The reality is that mercury poisoning, tremors, and insanity, and organ failure is what came from that. (37:02) Did you know that cigarettes used to be prescribed for asthma? (37:05) Heroin for cough suppressants for children.
Scott Benner (37:08) Bayer marketed heroin as a nonaddictive alternative to morphine. (37:12) It was sold over the counter, and that's not a thing we do anymore. (37:17) Radium water in the early nineteen hundreds, energy drinks were called, contained radium. (37:23) People also applied radioactive creams to skins and genitals for vitality. (37:29) Oh, here's one.
Scott Benner (37:30) Electric belts for erectile dysfunction. (37:33) Men were sold electric shock belts to restore virility often with no regulation. (37:37) Doctors endorse them. (37:39) Yeah. (37:39) What really happened is people got burns in electrocution.
Scott Benner (37:41) If you put a nine volt battery on your balls, I think you'll find out it isn't a great thing. (37:46) Vibrating massages for hysteria. (37:48) Doctors treated women for hysteria, by manually or mechanically inducing orgasms. (37:55) And, of course, snake oil and all of the other stuff. (37:57) Like, that's just 10 things that people used to say, those are absolutely right.
Scott Benner (38:03) We should be definitely doing these things. (38:04) This is what's helping people. (38:06) And you have to step back once in a while and ask yourself, what am I doing right now that in the future someone's gonna go, oh, you poor fool. (38:13) I can't believe you did that. (38:15) Like right?
Scott Benner (38:16) And I'm not saying that anybody's doing it on purpose. (38:18) I'm saying you need to wonder and try to figure it out for yourself. (38:22) And it's at at some point, like, that's a common sense statement that I think in modern times because of podcasting and people who, like, peep people who don't know what the hell they're talking about, I'm one of them. (38:34) Like, right, like, wondering out loud about things and sometimes being awfully wrong about that stuff. (38:40) I think it allows people to say, like, oh, no.
Scott Benner (38:42) No. (38:42) Just like you we just gotta trust that what we know is right. (38:45) Like, what we know is as right as we know it to be.
Tricia (38:48) Yeah. (38:48) It's only it could only be the the the the tip of the iceberg. (38:52) I mean, this week, it just came out that now they're like hormone replacement for women. (38:56) They just, like, backpedaled all all the information, that was out there saying that it was gonna give you breast cancer, etcetera.
Scott Benner (39:05) And now that's not true anymore.
Tricia (39:07) Right. (39:07) Yeah. (39:08) Oh, unless known that. (39:09) That's the thing is it's like they've known it, and now that's finally to your point earlier about, like, the ADA, etcetera, or or the the the doctor to it. (39:19) Like, it's like we're putting certain information out like it's new.
Scott Benner (39:23) My wife has been struggling with long COVID for a couple of years now. (39:26) Like, I mean, like, really badly. (39:29) And Oh,
Tricia (39:29) I'm sorry to hear that.
Scott Benner (39:30) No. (39:31) No. (39:31) I appreciate it. (39:31) But then a woman came on the podcast, like, a few months ago and was like, oh, yeah. (39:35) I had long COVID, but I I was able to get rid of it with nicotine patches.
Scott Benner (39:38) And I was like, say again, what now? (39:40) And Mhmm. (39:41) And so I said to my wife, I'm like, hey. (39:43) I on Amazon bought you 30 nicotine patches for $30. (39:46) And a month later, she's like, I feel so much better.
Scott Benner (39:49) And and, like, I I'm like, okay. (39:52) Like, I don't know I don't know why, but who cares?
Tricia (39:55) Yeah. (39:55) What's the sign what's the
Scott Benner (39:56) you what's by the way, there's a this the science behind it is something about, like, nicotine receptors and the where COVID's being, like, I don't know, spike proteins are being, like, uptaken. (40:05) I don't know. (40:06) Like, here's here's the thing. (40:07) I don't know. (40:08) But, like, what I knew was is that I watched my wife struggle for seven years with her thyroid thing while we all just sat around and wondered out loud.
Scott Benner (40:16) And that, again, I didn't think that wearing a nicotine patch for thirty days was gonna hurt her. (40:21) And so, like, what was the harm in trying? (40:23) It cost $30. (40:25) And and and I'm not here to tell you to do it. (40:27) I am here to tell you that her long COVID symptoms have not been a problem for the last fourteen days.
Scott Benner (40:33) So it took about a week for her to start feeling better, two weeks for her to feel much better. (40:37) And today, I'm watching her. (40:38) She gotta lighten her eyes again. (40:39) She's talking faster. (40:40) She's getting rested better.
Scott Benner (40:42) Like, she's I she it's not perfect, but it's a lot better than it was.
Tricia (40:47) And and, yeah, just to think all that she went through where, like, yeah, it makes sense that, you know, she she you get this information the same way with what you were saying about the thyroid, and you're you're you're saying what hurts if she put goes on it. (41:02) It's like now she's like, yeah. (41:03) I'm gonna try this.
Scott Benner (41:04) Give me a try. (41:05) Who knows? (41:06) Like, right, like and and and listen too. (41:08) I I there's there's many people right now that are hearing us talk, and they're like you. (41:12) They're like, yeah.
Scott Benner (41:13) Like, try something. (41:14) And there's just as many as like, you know, you don't trust the science, and you're like, I'm not that person. (41:19) Like, I'm not that person at all. (41:20) Like, I my kids are vaccinated. (41:23) You you know what mean?
Tricia (41:23) There's a there's a balance, but totally and like I said, we need things that are quality controlled. (41:31) Like, I wouldn't want someone to give me this fibre pill that runs through my system. (41:36) It's it looks like a pill. (41:38) It's, like, almost like plastic. (41:40) You you Right.
Tricia (41:40) Scott, you don't wanna know what it was like the first day I had to take it. (41:43) Now it can pop it down, like, no problem. (41:45) But it's, like, an extra large magnesium
Scott Benner (41:48) pill. (41:48) Down.
Tricia (41:49) Yeah. (41:49) Yeah. (41:49) I mean, but if someone hadn't quality checked that research list, I I don't want that swimming
Scott Benner (41:54) I'm certainly not saying yeah. (41:56) I know. (41:56) I'm certainly not saying that. (41:57) Right. (41:57) Right.
Tricia (41:58) Right. (41:58) No. (41:58) I don't think we're either one of us are saying that, but we're saying, like, there needs to be a balance within the the current environment, really.
Scott Benner (42:05) Is it still vibrating when it gets in the toilet?
Tricia (42:08) No. (42:09) It it it vibrates on a timer inside of you. (42:12) And the comical thing is, like, if I was heavier and I I had probably hadn't sustained the weight loss from all of the health issues, You probably wouldn't hear it in someone who was heavier. (42:23) But because I'm very thin, my doctor was like, sometimes you're gonna hear it, and it's so funny.
Scott Benner (42:30) Really? (42:30) Like
Tricia (42:31) yeah. (42:31) I'll hear it vibrating. (42:33) It does it on a timer at a like, I think we'll do eleven something, then it will do around 01:30 in the afternoon, then it'll do around 07:30. (42:43) Sometimes I can't feel it at all, but some days I'll feel it, and it will be pretty loud. (42:50) But, again, I am so grateful for it.
Tricia (42:52) And when the doctor told me about it, I looked at him like he had 10 heads.
Scott Benner (42:57) Sure.
Tricia (42:57) This was in 2023, the '23. (43:01) And do you know that show that movie from when we I didn't watch it. (43:06) I was too old, but, like, kids were watching it. (43:08) Honey, I Shrunk the Kids. (43:09) Sure.
Tricia (43:10) Or, like, the what is this? (43:11) The Inner Space where they fly in what is it? (43:15) Dennis Quaid's in it, and he goes in a little spaceship in someone's body? (43:18) That was my reaction. (43:20) I was like, you want me to do what?
Tricia (43:21) With what? (43:22) Mhmm. (43:22) And yeah. (43:23) Like, when? (43:24) But I'm like
Scott Benner (43:25) It'll help.
Tricia (43:25) It's my yeah. (43:26) My doctor says too for diabetics who've had issues like this or other people for other reasons. (43:32) Like, eventually, it might be able to be something you could the doctor can program via an app or you you can or, you know, something via technology to time it best for your body.
Scott Benner (43:42) Mhmm. (43:43) That interesting? (43:44) Well, listen. (43:44) Let hopefully, that won't end up being the that that won't end up being the electric belt for erectile dysfunction. (43:51) It'll end up it'll end
Tricia (43:52) up being right. (43:54) To your point. (43:54) Yeah. (43:55) And who knows? (43:56) Scott, I was thinking about it.
Tricia (43:57) I don't dwell on it because it's making my life a game changer every day. (44:02) I'm like, maybe this device has, like, metal in it. (44:05) Gonna give me cancer, or one one day it's gonna, like, do something and and rupture, like, a section of my I'm like, you know, they've only been doing this for three years.
Scott Benner (44:13) Yeah. (44:14) Well, listen. (44:15) As as wildly inappropriate as it is, I do have to say that, orgasm does calm my hysteria. (44:20) So maybe maybe there's something to be said for that one. (44:24) I don't know.
Scott Benner (44:24) Don't think it's good that your doctor was doing it for you. (44:26) But, but, nevertheless, okay. (44:29) You were awesome. (44:30) Thank you for doing this. (44:31) I really appreciate you sharing your entire experience.
Scott Benner (44:33) It was Yeah.
Tricia (44:34) It was fantastic. (44:35) I'll ask you one last question Please. (44:37) For for you. (44:38) Like, what does it take from your experience to get anything through to, like, the ADA or certain kind of doctors to kinda, like, talk about this? (44:50) Or do you think it's still, like, a real struggle?
Scott Benner (44:53) No. (44:54) I I don't think that'll ever happen. (44:56) No. (44:56) I I think that I think that professional people want to sound professional. (45:00) I don't think that anything about the conversation you and I just had sounds the way that they talk to each other.
Tricia (45:06) Mhmm.
Scott Benner (45:06) And and so in, you know, in polite society that this is not gonna work this way. (45:11) Like, their thing's always gonna be their thing, which, by the way, has a ton of awesomeness about it. (45:16) Like, there's no doubt there's a
Tricia (45:18) thousand No. (45:19) No. (45:19) You you you need you need you need it.
Scott Benner (45:21) Thousands things I would go to a doctor for and and gratefully say to you, I have no idea what you're doing, but please just do whatever it is you do. (45:28) Thank you very much. (45:29) And I just think that it's more of this part of it, the unknown stuff and having to pick through people's experiences, you know, like a I don't know. (45:38) Like, you're, like I don't know. (45:39) Like, you're looking at a map and trying to figure out which way to go next and then getting there and listening to the wind to decide which way to go next again.
Scott Benner (45:46) Like, that's what it feels like sometimes. (45:47) And it's hard Yeah.
Tricia (45:49) Do you wonder if somebody was sitting on a computer and put my history into AI? (45:55) Mhmm. (45:56) Right? (45:57) Would it have actually been, like, check for this?
Scott Benner (45:59) Oh, a 100%.
Tricia (46:00) That. (46:01) Right? (46:01) A 100%. (46:01) So it's like I couldn't trust the human. (46:06) Yeah.
Tricia (46:06) So the way I critical thinking.
Scott Benner (46:08) The way I've said it before is that you're asking too much of a doctor to keep the entirety of medical knowledge and the entirety of your history together and then to be able to collate them and come up with answers. (46:19) That's impossible. (46:20) You need a whiteboard and a twenty twenty miles of yarn to and and a lot of pushbins. (46:25) Right? (46:26) Like, so you can't you can't really you can't expect a human being to do that.
Scott Benner (46:31) This is where my my full belief is is that if you if you somehow I don't know what the simplicity of it is here is. (46:39) If you sat down right now and opened up your ChatGPT app and turned on the voice the voice talking or whatever AI you use and said, hey. (46:47) I'd like to have a conversation about my medical history. (46:50) And you laid out your history without giving it any of the answers that you got. (46:55) I'm experiencing this.
Scott Benner (46:57) This is happening. (46:58) This is happening. (46:59) I have this happen. (47:00) My mom has this. (47:01) My dad has that.
Scott Benner (47:02) My what do you think is wrong with me? (47:04) I think that in about twenty seconds, it would have figured out your problem.
Tricia (47:08) Yeah. (47:08) It would have said check for this, check for that.
Scott Benner (47:11) Right. (47:11) It wouldn't say
Tricia (47:12) lab test was
Scott Benner (47:13) Yeah. (47:13) It wouldn't say 100% do this, but it would give you a list of actionable ideas that would get you to the answer.
Tricia (47:19) Mhmm.
Scott Benner (47:19) I I think that
Tricia (47:20) I think that's how it's for my brother. (47:22) Just to have my be what should my brother check for? (47:25) And it it's
Scott Benner (47:26) Yeah. (47:26) And I wanna be
Tricia (47:27) clear than physicians.
Scott Benner (47:28) I wanna be clear. (47:29) I don't think it's because, like, AI knows everything. (47:33) I think I think that it it it does two things that are really valuable there. (47:37) And one is that it can simply keep all of those ideas, like, between your health dish your health issues and your history. (47:46) It can keep it straight very simply, and it can order it very simply.
Scott Benner (47:51) And then it can go look at the Internet for simple answers to those questions and spit back out.
Tricia (47:55) Have be careful with it. (47:56) Right? (47:56) Of
Scott Benner (47:56) course. (47:57) I'm not saying. (47:57) That you don't.
Tricia (47:58) We're both we're both not saying, but it's they're we're both seeing the value in it having all of that information and ordering the information.
Scott Benner (48:06) Yeah. (48:06) It can it can keep track of things better than you can. (48:11) And and, like, that's that that's the simplicity of it right there. (48:13) I don't care what it does with making videos or pictures or, like, that that's all bullshit. (48:18) Like, I don't I don't care about that.
Scott Benner (48:19) Like, right, like, even for writing, like, yeah, technical writing, it's it's gotten way better at. (48:25) I don't know that it's ever gonna write, you know, and and and, you know, take the place of
Tricia (48:29) I'm in I'm I'm in grad school, and, like, I'll use it sometimes just to, how should I like, I'll write my paper. (48:35) I never use it to because it sounds too wonky, and I'm old, and I want my brain to do the work. (48:41) But it comes back too wordy often.
Scott Benner (48:44) Yeah. (48:44) No. (48:44) There's it's a lot about how to learn how to talk to it. (48:48) And there's a way to work with it that I don't know that everybody's gonna, like, pick up.
Tricia (48:54) I'd never tell it it's wrong. (48:55) I love being like, you're wrong. (48:57) I'm like, you're completely wrong.
Scott Benner (48:58) Well, I don't I don't even mean like
Tricia (49:00) I am.
Scott Benner (49:00) I don't mean like that. (49:01) Like, I did a I did a a letter yesterday that goes out to the advertisers at the end of the year. (49:07) Right? (49:07) I do one I do one every year where I basically say to, like, look. (49:11) Put the business aside for a second.
Scott Benner (49:13) Here's what the podcast did for people this year, like, real people. (49:16) You you know what I mean? (49:17) Like, here here's your your ad dollars got you your clicks, and it did all the things that you wanted it to do, but here's what here's why I'm doing it. (49:25) Like, I'm not doing it for your clicks. (49:27) I kinda don't care about your clicks.
Scott Benner (49:28) Like, I care that you care so that you'll pay me so I can make the things. (49:31) I can have a two hour conversation with Tricia and pay Rob to edit it down and then put it online for people to hear it. (49:37) Like, that's the part I care about. (49:38) And so I sat down and I said I went to usually, would sit and start writing. (49:45) And instead, I went to a prompt and I said, I'd like to send a letter to the advertisers this year that highlights some of the good work that the podcast does for people aside of the business stuff for them.
Scott Benner (49:56) Here's a document that has all of this year's reviews for the podcast in it. (50:01) Look at the reviews, figure out where the podcast has helped people this year, and Mhmm. (50:06) And put together a little note. (50:08) And it put the note together, and I read it. (50:10) And I was like, this is not a thing I would actually send to somebody, but it did have the bones of what I meant.
Scott Benner (50:16) And so then I went back
Tricia (50:17) in I could use it. (50:18) Find that for a paper.
Scott Benner (50:19) Yeah. (50:20) Then I went back in storm. (50:21) I rewrote the whole thing, but over top of the bones. (50:24) Like, I didn't have to sit and come up with the, like, the the structure of it.
Tricia (50:27) It's yeah. (50:28) Yeah. (50:28) It gets your brain moving to to think I I mean, and some things you're like, oh, no. (50:32) I wanna do a little bit, and I need to add that. (50:35) But it it's it's still is helpful.
Tricia (50:38) I do think for kids, it's dangerous. (50:40) Like, you and I went to school. (50:41) We know how to write. (50:42) You know I mean?
Scott Benner (50:42) I I don't know. (50:43) It's just gonna it's just gonna change how people do things. (50:46) Like, it's I dangerous
Tricia (50:47) is It's gonna change. (50:48) I would just say, like, to me, I always look at it. (50:51) It's like, yeah. (50:51) Who knows though? (50:52) Your point who knows how it's gonna change things?
Scott Benner (50:54) I think like everything else, the people who are lazy and not motivated will misuse it, and people who see it as a tool will use it correctly. (51:01) Like like, as an example, like, I could not have gone through the, like, hundreds of reviews I got this year to find the ones that actually lean into the idea of, like like so it just was easy it was able to, like, go zip. (51:13) Hey. (51:13) Here's five of them that will let the advertisers know that, you know, they're they're buying ads from you actually help people, and the and these reviews do that. (51:25) And I'm like, okay.
Scott Benner (51:26) Great. (51:26) So there they are. (51:27) And and look, I'm gonna I'll read it to you right now. (51:30) Like, I don't mind if anybody hears it. (51:31) I said, it says now, and it's me rewriting it.
Scott Benner (51:35) As we wrap up the year, I've been thinking about the work we've done together. (51:38) On the surface, it's straightforward. (51:40) But as with every year's end, I wanna take a second to look at the part that doesn't show up in any report, the outcomes that will endure for lifetimes well after the business has been forgotten. (51:51) All year long, get messages from people, sometimes long, often emotional and reflective about fear easing up, confidence coming back, parents finally feeling like they can breathe, adults with type one adults with type one saying they understand their own bodies more completely. (52:07) People who felt alone until something in an episode or an interaction in the juice box community made them feel less so.
Scott Benner (52:13) So, yes, we did good business this year, but your dollars are also making something human happen for a lot of people quietly, steadily, one episode at a time. (52:23) And I just wanted to say that I see that, and I appreciate it, and I'm looking forward to next year. (52:28) And then it gives you six reviews that came back from people, One from a parent of a child, one from an adult, one from a long term adult, one from a short term, one from an RN whose kid has diagnosed got diagnosed, but they didn't know what they were doing. (52:43) Like, it gives them the feeling very quickly. (52:46) This is not just one person.
Scott Benner (52:48) Right? (52:48) Like, it's it's it's reaching all kinds of different people and all kinds of different things. (52:52) And that's it.
Tricia (52:53) I just No. (52:54) It's beautiful. (52:54) You guys helped me when I first got diagnose nose. (52:57) I used to take you guys on I used to go for for for walks and and even, like, like I said, some of the episodes on the digestive stuff, I was like, oh my god. (53:05) I'm not crazy.
Tricia (53:06) I am not Yeah. (53:08) It's important. (53:08) Insane.
Scott Benner (53:09) It's and and it takes somebody to stay and pay attention. (53:12) Like, I'm I I don't know in the end, like, if I'll even have time to, like, look back over my life and wonder what it was. (53:19) Right? (53:19) I mean, I'll just get hit by a car. (53:20) But, like, I I think that the value of those ads on this podcast is that one person with a brain like mine gets to sit into this stew and think about it all the time.
Scott Benner (53:34) Like, it's my job to wonder about this. (53:37) Like, I've made it my job. (53:38) Nobody gave it to me, but it's my job to hear your story and to think about it. (53:42) Like, I'll think about your story forever now, like bits and pieces of it, just like I do everyone else.
Tricia (53:48) No. (53:48) No. (53:48) You will. (53:48) You'll be like, remember that time we had that woman who didn't get diagnosed for sixteen years?
Scott Benner (53:53) Well, it's even and and sometimes it's even more functional stuff. (53:56) Like, you you said you had cystic acne. (53:58) Did it go away? (53:58) Was spironolactone the the reason? (54:01) Like, why do
Tricia (54:01) you still have it? (54:02) It was it was as soon as I went on the insulin and had, like, the low first, it it really ebbed and flowed when I went on that SIBO diet. (54:11) Okay? (54:12) So I was spiking. (54:13) It it's something and I'll notice now my my acne is pretty controlled because I'm a pretty I'm I'm my a one c, everything's, like, pretty good.
Tricia (54:24) Every once in a while, if I'll have a low, which is kinda hard. (54:28) I only take two units, but maybe I did a lot of physical Mhmm. (54:31) I'll get an I'll get acne. (54:33) So it's that up and down. (54:35) Something about that will give me an acne cyst.
Tricia (54:39) Like like, say I went not even super low, but The bounce thing. (54:42) And I I bounce. (54:44) And who knows? (54:45) I don't know. (54:45) I'm a different individual than all these other genes, but, like, there's something about there was something, of course.
Tricia (54:53) I didn't have, like, really bad cystic acne before I got the the diabetes. (54:59) Yeah. (54:59) So it and and now yeah. (55:01) My nephew started to get it as soon as they caught his sugars were out of whack.
Scott Benner (55:05) And I love that you explained. (55:07) Like, that's there are some people whose brains will hear, like, that's not right. (55:10) And, like, but you you she's not telling you that, you know, bouncing blood sugars definitely made her her acne pop up. (55:16) What she's telling you is this is what I noticed. (55:18) Now take that little piece of it and see if you notice something.
Scott Benner (55:21) Like, that's the important part. (55:22) Not you don't get stuck on the what you just said is exactly wrong. (55:26) Like, I sometimes get reviews and, like, people are like, you misspoke there. (55:29) And I'm like, awesome. (55:30) I'm glad you're perfect.
Scott Benner (55:32) Fuck off. (55:33) And and, like, you're like yeah. (55:34) Like and and it doesn't it doesn't hurt anything that I use the wrong word here or the wrong connotation of something. (55:40) Like, it's the conversation that's important. (55:42) And if you can't wrap your brain around that, then this kind of communication's not for you.
Scott Benner (55:46) And that's cool. (55:47) I'm sorry that, like, it didn't help you. (55:50) But, like, you can't get so you can't word police this thing to death. (55:54) You have to, like, just let people talk to see what comes from it. (55:58) And Mhmm.
Scott Benner (55:58) A lot of times, good stuff comes from it. (56:00) And I don't see a lot of bad stuff coming from it. (56:03) Right? (56:04) Like, there's no there's 75,000 people in that Facebook group. (56:07) No one's running around going, I misunderstood something and my head exploded.
Scott Benner (56:10) Like, you know, like, it's it's okay to let people talk and see what they see what they're experiencing.
Tricia (56:15) Yeah. (56:16) If I helped one person who has this kind of family history go get all the screening and all all the appropriate tests, I think some of the root cause for me started very young where I stopped going to an endocrinologist, right, for for for checkups.
Scott Benner (56:31) Yeah. (56:31) For
Tricia (56:32) sure. (56:32) So if I if I save one person, man, it's worth it. (56:37) And I I swear if any of your sponsors, etcetera, anyone talks to the ADA, some of these other organizations, stop start telling the truth about diabetes being a spectrum. (56:49) Okay? (56:49) Like, we have the data with the CGMs.
Tricia (56:51) Like, there's so much we know, and there's so many diabetes is exploding in this country, ultra processed food, etcetera, etcetera. (56:59) The GLP one drug drugs are changing things. (57:02) But, like and to your point, what's really going on with with some of that? (57:07) Like, we have to get this information talked about more in the mainstream.
Scott Benner (57:12) Yeah. (57:13) I agree. (57:13) Okay. (57:14) You're awesome. (57:15) I'm gonna say goodbye.
Scott Benner (57:16) Thank you very much.
Tricia (57:16) I'm gonna I'm gonna miss you, and then I have to look up. (57:19) I I
Scott Benner (57:19) You're gonna miss me?
Tricia (57:20) I they're talking to me about going on possibly trying a pump, and I'm like, I'm gonna look through your episodes. (57:27) I was gonna be surprised. (57:28) Me go to the Dexcom seven, and I'm trying to see what's good for someone who's active and doesn't really go low very
Scott Benner (57:36) hope the podcast helps you. (57:37) I I tell you that from our conversation, I've made notes here for myself. (57:40) I'm gonna get on an EDMR, like, therapist to talk about it. (57:44) I'm also gonna try to get somebody on who's doing psilocybin therapy out in Colorado and get them to talk about that because of the trauma stuff that you picked up. (57:54) And I've got this Vibrant in front of me.
Scott Benner (57:56) I'm gonna reach out to people there.
Tricia (57:57) Oh my god. (57:58) Please do it. (57:59) Because my endocrinologist was the my endocrinologist and then my the liver doctor, because she's in the digestion, they're like, they know about it. (58:08) And they're like, this is incredible for diabetics.
Scott Benner (58:11) The Vibrant system is clinically proven to deliver effective relief from chronic idiopathic constipation with fewer nasty side effects than drugs
Tricia (58:19) and laxatives.
Scott Benner (58:20) So if the people at Vibrant are listening, I think that sounds like a good ad. (58:23) You should get ahead of me.
Tricia (58:24) But I have no I don't really have negative side effects from it. (58:28) And then long and short very short, I would say too, I love your idea about the EDMR because type one diabetes, like, you have to think, I saw my mom turn purple and almost bite her tongue off. (58:38) You've had your stories. (58:39) I remember listening to the one about Arden in the prom. (58:42) Like, we go through trauma.
Tricia (58:44) That shit sticks to you. (58:45) Yeah. (58:46) And it helps you calm, like, maybe that trauma you have from seeing a hypo Yeah. (58:52) Or experiencing a hypo and going to the emergency room. (58:55) So I I love what you're saying.
Scott Benner (58:57) I appreciate it. (58:57) Also, you know, those little experiences, you wanna see a real life example of how it helps somebody. (59:01) One of those girls that was there when Arden had that seizure is in is in nursing school now. (59:07) And I drove her back to school after a break recently. (59:09) She didn't she needed a ride back to school, and I was like, I'll take you.
Scott Benner (59:12) You know? (59:12) So I'm driving her back, and we've been talking. (59:14) I've known her since she was a little kid, and we're talking and everything. (59:17) And she says, I'm in nursing school now, and we already talked about diabetes. (59:22) And I was like, right?
Scott Benner (59:23) And she goes, and then I look at Arden's life, and I think, that's all they're gonna teach me about this? (59:28) How am I gonna know what I'm doing? (59:29) And then it hit her, and she was like, oh, no. (59:32) What else don't I know? (59:33) And I was like, ah, that's the right that's the right question.
Scott Benner (59:37) What else don't
Tricia (59:37) I know? (59:38) One physician who said to me, I went into this because it's a life lifestyle disease, and I care about people, and I wanna be with them through their life with diabetes and help them live better. (59:49) And I'm like, we need guys like you. (59:52) We need people like you.
Scott Benner (59:53) Yeah. (59:53) I feel like that. (59:54) I don't I just don't know that everybody whose brain is doctor y is that I think more of them just wanna do tests, like, you know, flowchart Somewhat
Tricia (1:00:02) to me. (1:00:02) Endocrinologists, some are attracted because it's very much a numbers type field. (1:00:07) So then sometimes you can get people who are less. (1:00:10) I I I don't know if the tide's changing in terms of that, but, like, you gotta be careful of just going to endocrinologists who are numbers guys. (1:00:17) To your point about your wife and the normal TSH.
Scott Benner (1:00:19) Yeah. (1:00:20) No. (1:00:20) I would imagine that we probably need people who are more diabetes related because endocrinology covers a lot of different things. (1:00:25) And so Mhmm. (1:00:26) You know, it doesn't
Tricia (1:00:26) necessarily Yes.
Scott Benner (1:00:27) Mean that they even wanted to be involved with diabetes. (1:00:30) They might just have to be because of their specialty. (1:00:32) I have no idea.
Tricia (1:00:33) Yeah. (1:00:33) Yeah. (1:00:34) Yeah. (1:00:34) And my my best I had a better experience to your story of your with your daughter's friend with the diabetes. (1:00:41) When I got handed off to the diabetes educator, she looked at me, oh my god.
Tricia (1:00:45) I can't believe your story. (1:00:47) And then she was so compassionate, and she really taught me wonderful tips about how to and I'm like, the first doctor, you know, you didn't you you didn't I didn't get that. (1:00:57) And, yeah, it's like we need those we need those people within this field.
Scott Benner (1:01:01) Yeah. (1:01:01) So Well, hopefully, they'll come. (1:01:03) Alright. (1:01:03) Alright. (1:01:04) Hold on one second for me.
Scott Benner (1:01:05) You were lovely. (1:01:06) Hold on one second. (1:01:15) Dexcom sponsored this episode of the Juice Box podcast. (1:01:19) Learn more about the Dexcom g seven at my link, dexcom.com/juicebox. (1:01:26) A huge thanks to Cozy Earth for sponsoring this episode.
Scott Benner (1:01:29) Don't forget Black Friday has come early at cozyearth.com. (1:01:32) Right now, you can stack my code juice box on top of their site wide sale. (1:01:37) This is gonna give you up to 40% off in savings, and these deals are definitely not gonna last. (1:01:41) I'm talking about sheets, towels, clothing, everything they have. (1:01:45) Get that holiday shopping going right now today.
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Scott Benner (1:02:15) Full terms and conditions can be found at omnipod.com/juicebox. (1:02:20) Links in the show notes. (1:02:21) Links at juiceboxpodcast.com. (1:02:24) If this is your first time listening to the Juice Box podcast and you'd like to hear more, download Apple Podcasts or Spotify, really any audio app at all. (1:02:33) Look for the Juice Box podcast and follow or subscribe.
Scott Benner (1:02:37) We put out new content every day that you'll enjoy. (1:02:41) Wanna learn more about your diabetes management? (1:02:43) Go to juiceboxpodcast.com up in the menu and look for Bold Beginnings, the diabetes pro tip series, and much more. (1:02:50) This podcast is full of collections and series of information that will help you to live better with insulin. (1:02:58) My diabetes pro tip series is about cutting through the clutter of diabetes management to give you the straightforward insights that truly make a difference.
Scott Benner (1:03:06) This series is all about mastering the fundamentals, whether it's the basics of insulin, dosing adjustments, or everyday management strategies that will empower you to take control. (1:03:17) I'm joined by Jenny Smith, who is a diabetes educator with over thirty five years of personal experience, and we break down complex concepts into simple, actionable tips. (1:03:26) The Diabetes Pro Tip series runs between episode one thousand and one thousand twenty five in your podcast player, or you can listen to it at juiceboxpodcast.com by going up into the menu. (1:03:38) Thank you so much for listening. (1:03:39) I'll be back very soon with another episode of the Juice Box podcast.
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